2010 CMD Family ConferenceLive CMD
Learn CMDConnect CMD
Cure CMDAll volunteer organization with primary focus on
moving the CMD agenda on multiple fronts:Identifying targetsRaising awarenessRegistering the global populationEstablishing scientific resourcesFunding research looking at treatment targetsMaking CMD clinical trials do-able and a
realistic goal
Cure CMD VolunteersCure CMD Board
Cure CMD Scientific and Medical Advisory Board: Carsten Bonnemann, Francesco Muntoni, John Porter, Markus Ruegg, Alexandre Mejat, Edward Kaye, Petra Kaufmann
Project Support And Advocacy Lead: Susan Sklaroff- Van Hook, Diane Smith- Hoban, Ann Cloud, Jackie Nelson
2010 CMD Family Conference Support: Susan Sklaroff-Van Hook, Diane Smith Hoban, Mike Newton, Terri Clausen, Mari Schindele, Linda Gowarty, Alan Tuttle
Administrative and Communications/IT Becky May, Meera Gandhi, Rachel Alvarez, Joey Bower
Grant Team: Charlene York, Sandee Lefcoe, Erin McGuirk, Michael Davis
CMDIR Advisory Board: Jiri Vajsar, Madhuri Hegde, Vanessa Rangel Miller, Jan Kirschner, Susana Quijano-Roy, Susan Sparks
Cure CMD Collaborators and Sponsors
International CMD Community families, clinicians, allied health professionals, scientists, advocacy,
pharmaceutical industry and federal agencies
Our Principal SponsorOur Principal Sponsor
Gold SponsorsGold Sponsors
Associate SponsorsAssociate Sponsors
Hospitality SponsorsHospitality Sponsors
Conference LogisticsDr. Kurt Fischbeck Dr. Russ Butterfield
Sign ups:CMD BioBank bloodCMD BioBank skin
biopsiesPulmonary video:
general adviceCMD Advocacy