2010 CMD Family Conference Live CMD Learn CMD Connect CMD.

2010 CMD Family ConferenceLive CMD

Learn CMDConnect CMD

Cure CMDAll volunteer organization with primary focus on

moving the CMD agenda on multiple fronts:Identifying targetsRaising awarenessRegistering the global populationEstablishing scientific resourcesFunding research looking at treatment targetsMaking CMD clinical trials do-able and a

realistic goal

Cure CMD VolunteersCure CMD Board

Cure CMD Scientific and Medical Advisory Board: Carsten Bonnemann, Francesco Muntoni, John Porter, Markus Ruegg, Alexandre Mejat, Edward Kaye, Petra Kaufmann

Project Support And Advocacy Lead: Susan Sklaroff- Van Hook, Diane Smith- Hoban, Ann Cloud, Jackie Nelson

2010 CMD Family Conference Support: Susan Sklaroff-Van Hook, Diane Smith Hoban, Mike Newton, Terri Clausen, Mari Schindele, Linda Gowarty, Alan Tuttle

Administrative and Communications/IT Becky May, Meera Gandhi, Rachel Alvarez, Joey Bower

Grant Team: Charlene York, Sandee Lefcoe, Erin McGuirk, Michael Davis

CMDIR Advisory Board: Jiri Vajsar, Madhuri Hegde, Vanessa Rangel Miller, Jan Kirschner, Susana Quijano-Roy, Susan Sparks

Cure CMD Collaborators and Sponsors

International CMD Community families, clinicians, allied health professionals, scientists, advocacy,

pharmaceutical industry and federal agencies

Our Principal SponsorOur Principal Sponsor

Gold SponsorsGold Sponsors

Associate SponsorsAssociate Sponsors

Hospitality SponsorsHospitality Sponsors

Conference LogisticsDr. Kurt Fischbeck Dr. Russ Butterfield

Sign ups:CMD BioBank bloodCMD BioBank skin

biopsiesPulmonary video:

general adviceCMD Advocacy