h"p://www.ny*mes.com/2016/12/06/magazine/life-in-obamacares-dead-zone.html?hp&ac*on=click&pgtype=Homepage&clickSource=story-heading&module=b-lede-package-region®ion=top-news&WT.nav=top-news&_r=1
PrimarySource:h"p://ajph.aphapublica*ons.org/doi/abs/10.2105/AJPH.2016.303515?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub%3Dpubmed&SecondarySource:h"p://www.etsu.edu/news/2016/11_nov/nr_poorestcoun*es.aspx
PrimarySource:h"p://ajph.aphapublica*ons.org/doi/abs/10.2105/AJPH.2016.303515?url_ver=Z39.88-2003&rfr_id=ori%3Arid%3Acrossref.org&rfr_dat=cr_pub%3Dpubmed&SecondarySource:h"p://www.etsu.edu/news/2016/11_nov/nr_poorestcoun*es.aspx
[IntheUS]…comparedtothewealthiestcoun*esinthena*on,thepoorestcoun*esseesmokingratesthataretwiceashigh,a50percenthigherrateofobesityandalifeexpectancy7to10yearsshorter
HealthDispari*es
Unequalaccesstohealthcare
• LowSES• LowResource• Women• LGBTQI• MenwhohavesexwithMen• PhysicalandCogni*veandSensoryImpairments• Olderadults• BehavioralHealth
– E.g.,drugaddic*on• MentalHealth• Veterans• Incarcerated
ResearchDispari*es
• Weneedtoconnect• Gobeyondwhoiscorrect
• Differentsyntax,sameseman*cs
ImprovingSmartandPervasiveHealth
Proac*velyworktoreduce
dispari*es
Image:h"ps://en.wikipedia.org/wiki/Yin_and_yang
CreateInnova*veTechnologiesDon’tleaveoutpopula*ons
Workswithspecificpopula*onsCommunity-basedresearch
– Approaches,sharing,reciprocity,value
AdaptabilitytoDifferentContexts
Flexible– researchdesigns
• Pilo*ngideas– technologysystems– adap*ngtoresources&expecta*ons– overtheproject*meline
• [Agency]Howdowedocumentchangesappropriatelytoensurescience
AdaptabilitytoDifferentContexts
Flexible– researchdesigns
• Pilo*ngideas– technologysystems– adap*ngtoresources&expecta*ons– overtheproject*meline
• [Agency]Howdowedocumentchangesappropriatelytoensurescience
Exci=ngResearch• Createnovelmethodstounderstand
allstakeholders• PublicHealthmethods• EmpoweringLayLeadership
• Iden*fymissingdata/gaps– Whatdatatypesdoweneed?– Whatassump*onscanwemake?
• What,ifany,healthcareprovidersdotheyvisit?
• Iden*fyandaddresspersonalandalgorithmicbiasesandimpact
HighLevelGoals
• AllresearchproposalsshouldincludeappropriatemethodsdesignandengagementmethodsinIntellectualMerit(aspartoftheresearch)fortheintendedtargetpopula2on– SimilartoSmartCommuni*es– E.g.,ifyourproposalisaboutstrokepar*cipants,
thenyoushouldbeworkingwithstrokepa*ents
ItisIntellectualMeritbecauseimpactsthegeneralizability,usability,andimpactoftheScience
HighLevelGoals
• Proposalstocalloutresearchaddressingdispari*esinrela*onto– Access– Iden*fyInequi*es– Interven*ons– Methods(howtodocommunity-basedreasarch;
engagewithallstakeholdersandinfrastructure,interdisciplinarycollabora*ons)
– TechnicalApproachesItisIntellectualMeritbecauseimpactsthegeneralizability,usability,andimpactoftheScience
RaisetheFloor;LowertheBar
Howdowedothis?-Resources-Exper*se-DesignMethods
• Howdowefindcollaborators?
• Howdowefundgoodcollabora*ons?
HighLevelGoals
• Encouragingproposalsthatmeetporpoliogoalsrelatedtohealthdispari*es– [Agencyside]
ExampleHealthDisparity/MarginalizedGroups
• LowSES• LowResource• Women• LGBTQI• MenwhohavesexwithMen• PhysicalandCogni*veandSensoryImpairments• Olderadults• BehavioralHealth– E.g.,drugaddic*on
• MentalHealth• Veterans• Incarcerated
HealthDispari*es• Createnovelmethodstounderstandit– Understandingwhytheapproachesexist
• AndreaGrimes-Parker– Howtowiththepopula*onstodesignsystems
• Iden*fymissingdata– Beingmoreflexibleaboutwhatdatatypesweneed– Assumingtheygettohealthcareproviders
• CommunityHealthcareworkers– LowSESpopula*onsmaynotgototradi*onalhealthcarefacili*es–theygotominuteclinics,ERs,communityhealth
• PublicHealthmethods• EmpoweringLayLeadership