PowerPoint Presentation
Presented at the Health Informatics Society of Ireland,
#HISI2016 17 November 2016Presented by: Vanessa Carter (Founder of
#hcsmSA and South African e-Patient activist) and Dr. Jamie Saris
(Maynooth University Anthropology Department and Co-chair of the
Global Diseases of Poverty Consortium)
Vanessa Carter
The first 8 years were a failure after multiple surgeries.
siloed care and poor communication between doctors were a problem.
Resources online were a mess.
In my 9th year of searching online, I started writing
overseas.
One day a world famous face transplant surgeon in boston offered
to skype me. He had seen cases like mine often.
I took his advice and searched FOR doctors in my area who
mimicked it. within 8 months my surgeries were successful. The
access to information made the difference.
The e in e-patient has many meanings
E-patients evolve as technology evolves
As we move towards web 3.0 and industry 4.0, e-Patients will
become even more informed with connected objects and wearables
Its important to remember:e-patients are not all equal. Some may
not want to use digital technology and stay in a paternal role with
their physician. Some may need support to understand how to use
technology. Others may expect better technology from their
provider.
As we move towards smart health, social media will play a major
role in connecting people
We have started to develop a course in south Africa which
teaches hcps and other stakeholders like patients how to use the
web and social media to improve digital literacy for the future
digital health systems
We host a monthly tweetchat to gain insight from diverse
stakeholders. We base our topics around the sdgs. We promote
community participation and idea sharing
A prominent aspect of social media is how it enables community
building. Patient communities are especially helpful to providing
peer-to-peer support
There are many technical applications using social media, we
have focused on how others have been applying it to build the
course
Thank you