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AAIDD Webinar with Autism NOW Center February 10, 2011

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    AAIDDs Environmental

    Health Initiative

    Begun 2003

    Priorities:

    Education, Outreach, Training

    Policy Research and Science

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    Summit at Wingspread

    Retreat at Airlie

    National Agenda for Health Promotion &Disability Prevention

    Funded by The John Merck Fund

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    IMPORTANT CONSIDERATIONS

    Disability PREVENTION has been anissue for decades

    A Timely Issue as more people arefocusing on good health for

    everyone

    Growing national/international interest

    in disability and the environment

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    We know a great deal but many

    causes are still unknown We are able identify many genetic,

    chromosomal, biologic and organic

    causes of disability that occur before,during or after birth.

    In 60% of cases of intellectualdisabilities the causes are unknown

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    Autism: A Developmental

    Disorder Social reciprocity

    Communication

    Repetitive behaviors orrestricted interests

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    Autism CausationMultifaceted:

    One cause rare

    Possible: 2 causes

    Most common: 3 or more causes

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    Concerns about Chemicals

    Exposure to neurotoxins can cause

    intellectual and developmental disabilities

    Toxic exposures may affect the health ofpersons living with a developmental disability

    Chemical rarely act in a simple cause/effectfashion: mixtures, aggregate exposure

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    Solvents and

    other neurotoxic

    chemicals

    Small exposures can

    have a big effect on

    the developing brain

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    WE Live In a Sea of Chemicals26,746,543 Chemicals

    were commercially available

    in 2009

    200,000+ are commonly used in

    commerce

    700 new commercial chemicals are

    added each year

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    WE Live In a Sea of Chemicals

    U.S. Industries discharged

    26.7 billion lbs. of

    toxic waste in 2001

    More than 75% of these chemicals have not had

    any toxicological screening

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    CONCEPT OF ENVIRONMENTAL

    EXPOSURE IS CHANGING

    Old paradigm.Old paradigm.

    Chemical exposuresChemical exposures

    happen at the factory, onhappen at the factory, on

    the farmthe farmNew New

    Homes/schools are aHomes/schools are a

    source of exposuresource of exposure

    Courtesy: J. Peterson Myers, Environmental Health SciencesCourtesy: J. Peterson Myers, Environmental Health Sciences

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    The average American

    carries BODY BURDEN

    of hundreds of chemicals

    in their blood, urine, fat,

    and breast milk

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    BODY BURDEN

    LOW LEVELS OF CHEMICALS BUIILD UPOVER TIME Body Burden

    CDC/LDDI Biomonitoring Projects

    American Red Cross (n=10) Project Found287 industrial chemicals in newborn cord

    blood. 217 were animal or humanneurotoxicants.

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    The Precautionary Principle"When an activity raises threats of

    harm to human health or the

    environment, precautionarymeasures should be taken even ifsome cause-and-effect relationshipsare not fully established

    scientifically." from the January 1998Wingspread Statement on the PrecautionaryPrinciple

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    Are Developmental Disabilities on

    the Rise?

    Researchers estimate that between 3

    and 8 percent of the 4 m babies born

    in the US each year will be affected by

    developmental disabilities

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    Is environment involved in this

    rise?

    National Academy of Science experts

    estimate that 3% of DD are directly

    caused by environmental toxicants.

    Another 25% are due to interactions

    between environmental factors and

    individual genetic susceptibility

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    Rise in autism

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    Permanent Address: http://www.scientificamerican.com/article.cfm?id=autism-rise-driven-by-environment

    New Study: Autism Linked to EnvironmentResearch links soaring incidence of the mysterious neurological disorder to

    fetal and infant exposure to pesticides, viruses, household chemicals

    AUTISM AND ENVIRONMENT: The astonishing rise in autism in California cannot be explained by better diagnosis or changes in reporting, according to a

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    THERE IS A SERIOUS LACK

    OF RESEARCH ABOUT THEIMPACT OF TOXICANTS ON

    PREGNANT WOMEN AND

    CHILDREN AND ADULTS WHOARE LIVING WITH AUTISM

    INTELLECTUAL AND

    DEVELOPMENTALDISABILITIES

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    HIGH RISK POPULATIONS

    AND CHILDREN AND ADULTS

    WHO ARE LIVING WITH

    THESE CONDITIONS SHOULD

    BE INCLUDED IN ALL

    RELEVANT RESEARCH

    STUDIES

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    National Childrens Study

    GOAL: Improve the health and well-being

    of children

    Examine the effects of environmental

    influences on health and development of

    100,000 children who will be followed

    prenatally until 21 years of age

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    National Childrens Study

    NCS will examine:

    Natural & Man-made environmental factors

    Biological & chemical factors

    Physical surroundings Social factors

    Behavioral influences and outcomes

    Genetic factors

    Cultural & family influences and differences

    Geographic locations

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    National Childrens Study

    Led by Federal Agencies: NIH, CDC, ED, EPA

    Currently geared-up to collect data on 30,000

    children through seven Vanguard sites.

    Funding is a major issue our voices need to beheard. This is a critically important researchstudy that will help our children lead healthier

    lives.

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    Why Chemicals Impact Children

    More: Behavioral Influences

    Pica

    Hand to mouthactivity

    Mouth or chew on

    objects

    Mouth breathing

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    Why Chemicals Impact Children

    More: Behavioral Influences

    Use special cups, bottles, or eating

    utensils that are usually plastic rather

    than glass or metal

    Sit for long periods in a car seat,

    special adaptive equipment, orwheelchair seat

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    Why Chemicals Impact Children More:

    Mobility Influences

    Require assistance when washing

    hands

    Spend long periods of time indoors

    year round

    Crawl, sit, lie on the floor whenindoors

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    Why Chemicals Impact

    Children More: Physical

    Influences

    Predisposed to respiratory illness

    such as asthma or reactive airway

    disease

    Unable to remove oneself from

    irritating fumes or other exposure need help to move.

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    Why Chemicals Impact Children More:

    Health Influences

    Compromised body systems

    Pharmaceuticals

    Preventive health behaviors/lifestyle factors

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    INCREASED VULNERABILITY

    DUE TO ENVIRONMENTAL

    STRESSORS

    MINORITY STATUS

    URBAN

    ENVIRONMENT

    HAZARDOUS

    OCCUPATIONS

    POVERTY

    HIGH

    UNEMPLOYMENT

    HEALTHDISPARITIES

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    WHAT CAN WE

    DO?

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    TAKING ACTION At Work

    At Home At School - Anyplace

    REDUCE PESTICIDE USAGE

    IPM Prevent/Monitor/Control Pests

    USE GREEN CLEANING PRODUCTSREDUCE PCB EXPOSURE IN DIET

    Cut fat vegetables fruits grains

    EAT ORGANIC FOODSAVOID IRRADIATED FOODS

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    TAKING ACTION At Work

    At Home At School - Anyplace

    REDUCE MERCURY EXPOSURE

    Follow Fish Advisories

    Properly Dispose Mercury Thermometers &

    Alkaline Batteries

    REDUCE INDOOR AIR CONTAMINANTS

    Open the windows

    Damp mopVacuum with Hepa Filters

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    TAKING ACTION At Work

    At Home At School - Anyplace

    GET THE LEAD OUT

    Eliminate lead based paint in old

    buildingsRent or buy lead free homes

    Test drinking water

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    Action and Advocacy

    In order tominimize healthdisparities forpeople with

    developmentaldisabilities andautism thereneeds to be anincreased focus

    on the effect ofenvironmentalexposures onhealth.

    Through educationand teaching on theindividual level

    Program

    development andprimary preventionstrategies at thecommunity level

    Advocacy,

    empowerment andpolicy developmentat the regulatorylevel.

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    TAKE ACTION

    GET INFORMED and know the

    specific sources of risks

    PRIORITIZE which problem posesthe greatest threat

    START SMALL

    DO THE DOABLE

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    AAIDD Environmental Health

    Initiative www.aaidd.org

    For additional information visit an associated

    website atwww.ehinitiative.org

    Thank You!

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    Resources

    National Library of Medicine Household ProductDatabase (http://householdproducts.nlm.nih.gov/)

    National Library of Medicine Tox Town(http://toxtown.nlm.nih.gov/)

    Coalition to End Lead Poisoning(http://www.leadsafe.org/)

    EPA Carbon Monoxide(http://www.epa.gov/iaq/co.html )

    Environmental Working Group (http://www.ewg.org )

    Citizens Guide to Radon(http://www.epa.gov/radon/pubs/citguide.html )

    Beyond Pesticides(http://www.beyondpesticides.org)