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AAIDDs Environmental
Health Initiative
Begun 2003
Priorities:
Education, Outreach, Training
Policy Research and Science
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Summit at Wingspread
Retreat at Airlie
National Agenda for Health Promotion &Disability Prevention
Funded by The John Merck Fund
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IMPORTANT CONSIDERATIONS
Disability PREVENTION has been anissue for decades
A Timely Issue as more people arefocusing on good health for
everyone
Growing national/international interest
in disability and the environment
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We know a great deal but many
causes are still unknown We are able identify many genetic,
chromosomal, biologic and organic
causes of disability that occur before,during or after birth.
In 60% of cases of intellectualdisabilities the causes are unknown
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Autism: A Developmental
Disorder Social reciprocity
Communication
Repetitive behaviors orrestricted interests
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Autism CausationMultifaceted:
One cause rare
Possible: 2 causes
Most common: 3 or more causes
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Concerns about Chemicals
Exposure to neurotoxins can cause
intellectual and developmental disabilities
Toxic exposures may affect the health ofpersons living with a developmental disability
Chemical rarely act in a simple cause/effectfashion: mixtures, aggregate exposure
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Solvents and
other neurotoxic
chemicals
Small exposures can
have a big effect on
the developing brain
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WE Live In a Sea of Chemicals26,746,543 Chemicals
were commercially available
in 2009
200,000+ are commonly used in
commerce
700 new commercial chemicals are
added each year
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WE Live In a Sea of Chemicals
U.S. Industries discharged
26.7 billion lbs. of
toxic waste in 2001
More than 75% of these chemicals have not had
any toxicological screening
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CONCEPT OF ENVIRONMENTAL
EXPOSURE IS CHANGING
Old paradigm.Old paradigm.
Chemical exposuresChemical exposures
happen at the factory, onhappen at the factory, on
the farmthe farmNew New
Homes/schools are aHomes/schools are a
source of exposuresource of exposure
Courtesy: J. Peterson Myers, Environmental Health SciencesCourtesy: J. Peterson Myers, Environmental Health Sciences
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The average American
carries BODY BURDEN
of hundreds of chemicals
in their blood, urine, fat,
and breast milk
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BODY BURDEN
LOW LEVELS OF CHEMICALS BUIILD UPOVER TIME Body Burden
CDC/LDDI Biomonitoring Projects
American Red Cross (n=10) Project Found287 industrial chemicals in newborn cord
blood. 217 were animal or humanneurotoxicants.
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The Precautionary Principle"When an activity raises threats of
harm to human health or the
environment, precautionarymeasures should be taken even ifsome cause-and-effect relationshipsare not fully established
scientifically." from the January 1998Wingspread Statement on the PrecautionaryPrinciple
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Are Developmental Disabilities on
the Rise?
Researchers estimate that between 3
and 8 percent of the 4 m babies born
in the US each year will be affected by
developmental disabilities
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Is environment involved in this
rise?
National Academy of Science experts
estimate that 3% of DD are directly
caused by environmental toxicants.
Another 25% are due to interactions
between environmental factors and
individual genetic susceptibility
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Rise in autism
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Permanent Address: http://www.scientificamerican.com/article.cfm?id=autism-rise-driven-by-environment
New Study: Autism Linked to EnvironmentResearch links soaring incidence of the mysterious neurological disorder to
fetal and infant exposure to pesticides, viruses, household chemicals
AUTISM AND ENVIRONMENT: The astonishing rise in autism in California cannot be explained by better diagnosis or changes in reporting, according to a
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THERE IS A SERIOUS LACK
OF RESEARCH ABOUT THEIMPACT OF TOXICANTS ON
PREGNANT WOMEN AND
CHILDREN AND ADULTS WHOARE LIVING WITH AUTISM
INTELLECTUAL AND
DEVELOPMENTALDISABILITIES
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HIGH RISK POPULATIONS
AND CHILDREN AND ADULTS
WHO ARE LIVING WITH
THESE CONDITIONS SHOULD
BE INCLUDED IN ALL
RELEVANT RESEARCH
STUDIES
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National Childrens Study
GOAL: Improve the health and well-being
of children
Examine the effects of environmental
influences on health and development of
100,000 children who will be followed
prenatally until 21 years of age
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National Childrens Study
NCS will examine:
Natural & Man-made environmental factors
Biological & chemical factors
Physical surroundings Social factors
Behavioral influences and outcomes
Genetic factors
Cultural & family influences and differences
Geographic locations
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National Childrens Study
Led by Federal Agencies: NIH, CDC, ED, EPA
Currently geared-up to collect data on 30,000
children through seven Vanguard sites.
Funding is a major issue our voices need to beheard. This is a critically important researchstudy that will help our children lead healthier
lives.
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Why Chemicals Impact Children
More: Behavioral Influences
Pica
Hand to mouthactivity
Mouth or chew on
objects
Mouth breathing
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Why Chemicals Impact Children
More: Behavioral Influences
Use special cups, bottles, or eating
utensils that are usually plastic rather
than glass or metal
Sit for long periods in a car seat,
special adaptive equipment, orwheelchair seat
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Why Chemicals Impact Children More:
Mobility Influences
Require assistance when washing
hands
Spend long periods of time indoors
year round
Crawl, sit, lie on the floor whenindoors
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Why Chemicals Impact
Children More: Physical
Influences
Predisposed to respiratory illness
such as asthma or reactive airway
disease
Unable to remove oneself from
irritating fumes or other exposure need help to move.
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Why Chemicals Impact Children More:
Health Influences
Compromised body systems
Pharmaceuticals
Preventive health behaviors/lifestyle factors
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INCREASED VULNERABILITY
DUE TO ENVIRONMENTAL
STRESSORS
MINORITY STATUS
URBAN
ENVIRONMENT
HAZARDOUS
OCCUPATIONS
POVERTY
HIGH
UNEMPLOYMENT
HEALTHDISPARITIES
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WHAT CAN WE
DO?
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TAKING ACTION At Work
At Home At School - Anyplace
REDUCE PESTICIDE USAGE
IPM Prevent/Monitor/Control Pests
USE GREEN CLEANING PRODUCTSREDUCE PCB EXPOSURE IN DIET
Cut fat vegetables fruits grains
EAT ORGANIC FOODSAVOID IRRADIATED FOODS
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TAKING ACTION At Work
At Home At School - Anyplace
REDUCE MERCURY EXPOSURE
Follow Fish Advisories
Properly Dispose Mercury Thermometers &
Alkaline Batteries
REDUCE INDOOR AIR CONTAMINANTS
Open the windows
Damp mopVacuum with Hepa Filters
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TAKING ACTION At Work
At Home At School - Anyplace
GET THE LEAD OUT
Eliminate lead based paint in old
buildingsRent or buy lead free homes
Test drinking water
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Action and Advocacy
In order tominimize healthdisparities forpeople with
developmentaldisabilities andautism thereneeds to be anincreased focus
on the effect ofenvironmentalexposures onhealth.
Through educationand teaching on theindividual level
Program
development andprimary preventionstrategies at thecommunity level
Advocacy,
empowerment andpolicy developmentat the regulatorylevel.
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TAKE ACTION
GET INFORMED and know the
specific sources of risks
PRIORITIZE which problem posesthe greatest threat
START SMALL
DO THE DOABLE
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AAIDD Environmental Health
Initiative www.aaidd.org
For additional information visit an associated
website atwww.ehinitiative.org
Thank You!
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Resources
National Library of Medicine Household ProductDatabase (http://householdproducts.nlm.nih.gov/)
National Library of Medicine Tox Town(http://toxtown.nlm.nih.gov/)
Coalition to End Lead Poisoning(http://www.leadsafe.org/)
EPA Carbon Monoxide(http://www.epa.gov/iaq/co.html )
Environmental Working Group (http://www.ewg.org )
Citizens Guide to Radon(http://www.epa.gov/radon/pubs/citguide.html )
Beyond Pesticides(http://www.beyondpesticides.org)