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Health & Medicine Presentation at Rare Bone Disease Workshop - 24th June 2014

1. Dr Nicolas Sireau, Co-founder and Chairman An introduction to 2. 7000 Source: Rare Disease UK rare diseases of which 80% are very rare and only 200 have approved treatments…

Health & Medicine Open research cambridge December 16 2013 - presentation by Fiona Nielsen DNAdigest

1. Secure the data – share the knowledge DNAdigest.orgOpen Research Cambridge Fiona Nielsen, December 16, 2013 2. Take home messages • DNA sequencing = exciting new opportunities…

Healthcare Applications of Social Media for Research

1. Applications of Social Media for Research and Health Promotion Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee 2. JAMA Pediatrics Social Media Editor 3. Agenda…

Documents Undertaking rare disease research and surveillance Dr Chris Verity, Consultant Paediatric...

Epilepsy in children: an overview Undertaking rare disease research and surveillance Dr Chris Verity, Consultant Paediatric Neurologist #raredisease Whooping cough vaccination…

Documents Creating Champions For Open Source Rare Disease Drug Discovery With An App

PowerPoint Presentation Creating Champions For Open Source Rare Disease Drug Discovery With An App Sean Ekins1,2,3,4,5,6,7, Jill Wood2, 8, Lori Sames4, 9, Allison Moore3…