1. Social Economic Burden and Health-related Quality of Life in Patients withRare Diseases in Europe (BURQOL-RD) A/101205 Amsterdam, May 14, 2011 www.burqol-rd.com 2. Background…

1. European Union actionin the field of Rare Diseases Gastein, 1st October 2009 Antoni Montserrat Moliner European CommissionDG SANCO Health Information Unit 2. Legal basis…

1. IRDiRC: State of the Art Paul Lasko, PhD Canadian Institutes of Health Research Chair, IRDiRC Executive Committee 1 2. Rare disease research in 2010  Large-scale global…

1. 5th European Conference on Rare Diseases ECRDKrakow 2. 5th European Conference on Rare Diseases ECRD, Krakow Proposal for a Directive on Patients’ rights in cross-border…

1. 13° CONVEGNOPatologia immune e malattie orfane 2010Torino 21 - 23 gennaio, 2010 Network europei per le malattie rare Domenica Taruscio Direttore Centro Nazionale Malattie…

1. Ancy JoseBiotechnology Engineering2011-2015 BatchSCET,Kodakara 2.  Neglected Diseases: Rare diseases and tropical diseases. Any disease that affects a small percentage…

Slide 1 Social Economic Burden and Health-related Quality of Life in Patients with Rare Diseases in Europe (BURQOL-RD) A/101205 www.burqol-rd.com Slide 2 (2010 – 2013)…

Slide 1 NECOBELAC network to promote infomation production and diffusion in public heath A possible application in the field of rare diseases NECOBELAC network to promote…

Slide 1 Cross-border healthcare The Belgian experience Conference of the National Health Fund, Warsaw - 18/06/2015 Christian Horemans Expert International Affairs National…

UCL SCHOOL OF LIFE AND MEDICAL SCIENCES Creating knowledge, achieving impact Translation and Experimental Medicine 2 PREFACE UCLâs School of Life and Medical Sciences encompasses…