1. Biobanks, data protection and issues ofintegrity: Finnish and Nordic perspectivesPromoting Health Research and InnovationBergen, May 12-14 2014 2. General trends and challenges•…

Slide 1What Should You Know and Be Doing About Genome Privacy? Ellen Wright Clayton, MD, JD Center for Biomedical Ethics and Society Vanderbilt University Slide 2 The main…

1. Making Qualitative Data Open Libby Bishop UK Data Service University of Essex RECODE – Open Access to Research Data University of Sheffield 14-15 May 2015 2. …how…

1. Making Qualitative Data Open Libby Bishop UK Data Service University of Essex RECODE – Open Access to Research Data University of Sheffield 14-15 May 2015 2. …how…

Slide 1 Protecting Participants in a Global Research Community Dr. Jane Kaye University of Oxford, UK Slide 2 Technological Advances Open Access Policies Building of Resources…

Slide 1 Relations matter: A solidarity-based perspective on data-rich medicine TRANSLATION IN HEALTHCARE- EXPLORING THE IMPACT OF EMERGING TECHNOLOGIES University of Oxford…

NHGRI Genomic Medicine Meeting 6/29/11 Electronic Medical Records and Genomics (eMERGE) Network Phase III Concept Clearance Teri Manolio, M.D., Ph.D. and Rongling Li, M.D.,…

CERC Survey Update CERC/CERC Survey Work Group Presented by: Maureen Smith and Ingrid Holm For the CERC Survey Work Group eMERGE Steering Committee Meeting June 29-30, 2015…