Learn the Signs.
Act Early.
Marilyn Hartzell, MEd – OCCYSHN Director
Caryn Fiedler, MPP – Project ConsultantOregon Center for Children and Youth with Special Health Needs
AMCHP Act Early Technical Assistance CallState Roadmaps to Services
May 5, 2011
Oregon Commission on Autism Spectrum Disorder (OCASD)
• Report to the Governor December 2010• Recommends Navigation Map• Primary focus of the Community
Services for Children and Families Subcommittee in 2011
• Project intent is to give families a navigation tool at the moment of an ASD identification regardless of which system they enter first (medical, educational or developmental disabilities)
Project Details
• Workgroup = subset of the Community Services for Children and Families Subcommittee– Oregon Department of Health Services– Autism Society of Oregon– Families– Oregon Technical Assistance Corporation– Providers– County Health Department– Mental Health
• Starting point– Review and analysis of navigation tools from across the country– Survey of families across Oregon
Key Content Concepts
• Birth to 8 years old• Regionalized• First few months after an ASD is identified• Families enter through different systems
– Medical– Educational– Developmental Disabilities
• Acknowledgement that families feel overwhelmed
Next Steps
• Four focus groups with families around the state
• Two pilot sites with providers and families in a clinical setting
• Implementation of a dissemination and sustainability plan
