Black, Minority Ethnic and Refugee Communities and Dementia
Reflections from Implementing The National Dementia Strategy in London
David TruswellSenior Project Manager
Croydon22%
Sutton & Merton14%
Kingston 12%
Richmond & Twickenham11%
Wandsworth-2%
Waltham Forest4%
Barking & Dagenham-7%
Redbridge17%
Havering24%
Tower Hamlets-2%
City & Hackney-6%
Newham-1%
Lam
beth
-1%
Lewisham0%
Greenwich12%
Bromley21%
Bexley28%
So
uth
wark
-1%
Enfield18%
Camden18% Islington
0%
Haringey10%
Barnet20%
Healthcare for London
Dementia Increase Projections
2005- 2021
Hounslow 8%
Harrow22%
Hillingdon18%
Ealing8%
Brent24%
Ham
mersm
ith &
Fu
lham
14%
Westm
inster
32%K
& C
54%
KEY
>10%
>1% but <10%
No change or decrease
The scale of changing
dementia care needs across London
Percentage increases in the number of people from black and minority groups with dementia by PCT, 2001 to 2021
Taken from Healthcare for London Dementia Service Guide Appendix1: Needs Assessment (2009)
Financial impactPCT Number of people from
BME groups with late onset dementia in 2001
Estimated number of people from BME groups with late onset dementia in 2021
Total Increase Addtional Annual cost at £48,306 per annum ($)
Total Annual Cost by 2021 at £48,306 per annum ($)
Barking & Dagenham 42 302 260 $12,559,560 $14,588,412
City & Hackney 330 562 232 $11,206,992 $27,147,972
Islington 149 252 103 $4,975,518 $12,173,112
Lambeth 392 631 239 $11,545,134 $30,481,086
Lewisham 235 582 347 $16,762,182 $28,114,092
Newham 337 849 512 $24,732,672 $41,011,794
Southwark 242 557 315 $15,216,390 $26,906,442
Tower Hamlets 266 498 232 $11,206,992 $24,056,388
Wandsworth 266 448 182 $8,791,692 $21,641,088
Central London (Overall Dementia Rate
Declining)
2259 4681 2422 $116,997,132 $226,120,386
London Total 7566 16846 9280 $448,279,680 $813,762,876
UK Average cost of residential care in 2011/12 is $48,306 per annum
Why is this a particular concern for black, minority ethnic and refugee (BMER) communities?
1. In London, home to 45% of the total UK black and minority ethnic population, the numbers of those aged 65 and over in the BMER population are expected to triple between 1991 and 2011
2. Within these broad trends there is projected to be a substantial increase of older people in some BMER populations, notably the Indian and African-Caribbean populations, reflecting historic migration patterns into the capital
3. Lack of awareness as well as social and cultural factors militate against help seeking behaviours in BMER populations, especially for mental health problems
4. There is an expectation of discrimination and/or lack of cultural competence from mental health services by BMER populations
5. There are known predisposing health factors e.g. South Asian and African Caribbean groups are at increased risk of developing vascular dementia - the second most common form of the dementia - due to enhanced levels of diabetes and hypertension
6. Professionals’ assumptions about lifestyle and care giving cultural norms of BMER communities may inhibit help-giving behaviour
7. Use of appropriately standardised diagnostic tools in assessments needs to be considered
Stigma
Factors affecting service access
Information
Access to Services & Support
CommunityEngagement
What would organisations working with dementia in BMER communities like to see?
• Raise awareness that will advise and inform relevant regional and national bodies
• Develop an expert reference group for BMER issues and dementia services for London
• Ensure expertise of BMER communities is recognised and valued
• Improve clarity on accountability structures for commissioners
• Improve the role and financial stability of 4th sector organisations (4th Sector = small BMER grassroots groups that struggle to secure funding)
• Larger 3rd sector organisations need to work more closely with the 4th sector
• Improve promotion of the work of providers who demonstrate good practice
System wide benefits of improving focus on BMER groups
Use of Community Services
A & E access Use of
In-patient Services
Rate of access to Residential Care
Carer Use of Health Services
http://www.facebook.com/pages/Resources-for-Dementia-and-Black-Minority-Ethnic-and-Refugee-Communities/122493921131184
This Facebook Page is to provide a networking and information sharing forum for organisations working to support people from Black, Minority and Refugee communities living with dementia and their carers.
Dementia & Minority Ethnic Communities and Dementia Awareness Project
Working across 6 London Boroughs – Westminster, Harrow, Hillingdon, Barnet, Brent, Enfield, Islington
In partnership with major 3rd Sector organisations – Dementia UK and Alzheimer's Society
Establishing contacts with local community organisations – Culture Dementia UK and Chinese National Healthy Living Centre
Developing locally sourced information material and exploring multi-media platforms
Deliberately eclectic
Contact Details
David Truswell
Senior Project Manager, CNWL
[email protected]: 0779 258 4253
or via Linked-In