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You are not You are not Alone Alone
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You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Jan 13, 2016

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Brent Lawson
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Page 1: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

You are not You are not AloneAlone

Page 2: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Why Families Need SupportWhy Families Need Support• Unexpected feelings• New parenting challenges

Page 3: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.
Page 4: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Why Peer Support?Why Peer Support?•Parents feel more comfortable sharing with a peer than with a professional

•Parents feel better able to cope with their child and their situation

•Parents are able to view their family and circumstances more positively

•Parents value helping other parents make progress toward their own goals

Singer et al, 1999

Page 5: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

StressStress• http://www.youtube.com/watch?

v=cvjzwTBjXMI

Page 6: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

The Purpose of Parent to Parent To match trained helping parents (peer

mentors) with parents who are experiencing a time of crisis, such as new diagnosis or seeking information.

Page 7: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Coming along side to offer:SupportExperience Information

Page 8: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Helping parents are: Parents or family members of a child

with a disability or special healthcare need .

Have attended the helping Parent training Offer encouragement, emotional

support and information on an informal and personal basis.

Serve as a peer model to help families adjust to their new diagnosis.

Page 9: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Helping Parents are NOT:Counselors or therapists

Advisors, especially medical advisors.

Page 10: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Our GoalOur Goal Parent is emotionally supported-“You are

not alone” The parent has a support network-“If a parent’s world is small, the child’s

world will be small” Parenting Skills Information- “Information- is Empowerment”

Page 11: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Sharing the Journey

Page 12: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Parent to Parent

Is a nationwide network

Has programs in almost every county in Washington

Page 13: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Our Helping Parent Our Helping Parent TrainingsTrainings

Page 14: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Shock and Denial

Anger and Guilt

Bargaining

Tears and Fears

Adjustment and Acceptance

Despair and Resignation

The Grief Cycle

Page 15: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

The Art ofLISTENING

Page 16: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

STORIESSTORIES

Page 17: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Boundaries

Page 18: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Special Circumstances

Page 19: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

When a family needs When a family needs more than a Helping more than a Helping

ParentParent

Page 20: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Taking Care of Taking Care of YourselfYourself

Page 21: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

DREAM Of A BIG LIFEDREAM Of A BIG LIFE

Page 22: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

ResourcesResources

Page 23: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

NUTS AND BOLTSNUTS AND BOLTS

Page 24: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Helping Parent DutiesHelping Parent Duties• Be a family member of a child with a disability• Complete the training• Complete the P2P helping parent self assessment

and review with coordinator• Demonstrate good communication skills• Demonstrate a nonjudgmental attitude• Commit to volunteer for one year• Maintain confidentiality • Make initial and follow up contact with referred

parents• Follow up with the coordinator

Page 25: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Referral ProcessReferral ProcessCoordinator receives initial referral and does

an intake.

Coordinator matches with appropriate Helping Parent.

Coordinator contacts Helping Parent

Helping Parent contacts the family

After contact is made, Helping parent debriefs with the Coordinator.

Follow up with family served

Page 26: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Where We Recruit Our Where We Recruit Our Helping ParentsHelping Parents

• Parents who have benefitted from P2P

• Referrals Birth to Three providers• Referrals from disability specific

agencies• Other Community agencies• Referrals from other Helping Parents

Page 27: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Who Can Refer?Who Can Refer?• ANYONE!• Professionals: FRCs, Public Health

nurses, CSHCN, Hospitals, WIC, disability agencies, Head Start, Schools

• Friends and neighbors• Parents can self refer

Page 28: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

The Cradle of LeadershipThe Cradle of Leadership• Experiences support from P2P• Learns to cope with stress• Becomes connected to the

community• Becomes a Helping Parent• Receives more training• Becomes an advocate• Becomes a leader

Page 29: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

What Happening with P2PWhat Happening with P2P• E-groups• Social Media• Ethnic Support• Workshops and trainings• Family Gatherings• Support Groups- informal and formal• Recreation Programs• Special Sitters- Respite• Sib Shops• Father’s Network• Support across the lifespan

Page 30: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

How to ConnectHow to Connect• Parent to Parent USA

http://www.p2pusa.org• Washington State Parent to Parent

www.arcwa.org

Susan Atkins [email protected] Murahashi

[email protected]

Page 31: You are not Alone. Why Families Need Support Unexpected feelings New parenting challenges.

Thank You for coming!Thank You for coming!