The Dutch Dyslexia Programme A case study Open data access week RuG 26-10-2012 Natasha M. Maurits Professor of clinical neuroengineering Chair of the DDP steering group University Medical Center Groningen www.clinicalneuroengineering.com [email protected]
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The Dutch Dyslexia Programme A case study Open data access week RuG 26-10-2012 Natasha M. Maurits Professor of clinical neuroengineering Chair of the DDP.
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The Dutch Dyslexia ProgrammeA case study
Open data access week RuG 26-10-2012
Natasha M. MauritsProfessor of clinical neuroengineering
Chair of the DDP steering group
University Medical Center Groningenwww.clinicalneuroengineering.com
• behaviour and developmental measures: 17 months – 6 years
• reading – spelling - calculating: group 2 – 5
• influence environment: at home and school
• intervention project• early: group 2 and 3 (5 and 6 years) – and group 4
• genetic project• sib-pairs from 108 (independent) families → traits
• DNA from parents and children from the longitudinal project
Open data access week RuG 26-10-2012
How much data are we talking about?
Open data access week RuG 26-10-2012
How much data are we talking about?
Open data access week RuG 26-10-2012
DDP and Open Access
Goal• to provide future data access to DDP group and
other interested researchers
Means• DANS – Data Archiving and Networked Services
(KNAW and NWO)• data storage and access for ‘alpha’ and ‘gamma’ sciences • self archiving (metadata and raw data files)
Implementation1) Other acces (data deposited under embargo for three years)2) Restricted access (steering group decides who gets access)3) Open access in future?