PDF Quilt Project 2011

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Creativity and Parkinson’s History

The Creativity and Parkinson’s Project, led by the Parkinson’s

Disease Foundation (PDF), seeks to explore, support and encourage

the therapeutic value of creativity in people living with Parkinson’s.

Evidence suggests that creative activities — from painting to dancing,

sculpting, singing and even exercise — may reduce, or even

temporarily relieve symptoms associated with Parkinson’s. This can

be truly liberating for people living daily with the physical limitations

brought on by this debilitating disease.

Launched at the first World Parkinson Congress (WPC) in 2006,

the Creativity and Parkinson’s Project included a hugely popular

exhibition that featured the artwork of 186 people with Parkinson’s

disease from 13 different countries. This exhibition included art in

a variety of media, including among others, painting, poetry, sculpting,

dancing, jewelry making and photography.

To ensure that the value of creativity continued to be explored by

the Parkinson’s community, PDF launched in 2006 an online gallery

featuring the works of the artists included at the first WPC.

Today, the gallery has grown to include the artwork of nearly 300

artists living with Parkinson’s. Their inspirational works can be

found at www.pdf.org/en/creativity.

As an extension of this initiative, PDF launched in 2009 the

Parkinson’s Quilt Project. The Quilt Project gave people all over the

world the chance to express their support of people living with

Parkinson’s, and to honor their loved ones who are no longer living,

by creating a personalized quilt panel.

Quilt Planning Committee

Jean Burns | Sun Lakes, AZ

Kay Mixson Jenkins | Springfield, GA

Charlene “Pokie” Pryor | Vandalia, IL

PDF Staff

Matthew DePace

Elizabeth Pollard

Ivy Rook

Joanna Steichen | New York, NY

Linda Webb | Williams, AZ

Peggy Willocks | Johnson City, TN

Advisors

Ann Loeb

Sharon Stone

Volunteer

Beth Murphy

My quilt panel ... was meant to be a symbol of hope for the futures of people with Parkinson's.

This book is dedicated as a memorial to Joanna Steichen, who passed away on

July 25, 2010. She was a passionate supporter of the Parkinson’s Quilt Project

and believer in the therapeutic value of creativity for people living with Parkinson’s.

Joanna Steichen“ ”

September 2010

Dear Friends:

It gives me great pleasure to introduce to you to the first Parkinson’s

Quilt, a project developed by the Parkinson’s Disease Foundation

(PDF) to help focus world attention on the nearly one million people

in the US — and seven to 10 million people worldwide — living with

Parkinson's disease (PD).

In particular, I would like to recognize the more than 600 individuals

— people living with PD, care partners, family members, friends and

others — who created the panels that comprise the quilt. These indi-

viduals illustrate the truly global nature of the quilt, and of Parkinson’s

disease; they hail from 14 countries, including 46 of the 50 US states,

and four of Canada’s 13 provinces. Each quilt panel has a story to tell,

whether it was created by a person with Parkinson’s about his or her

experience, or by a care partner, family member or friend, in honor of

their loved one living with PD. As you browse through each panel, we

hope you are as inspired and touched by these stories as we are.

We at PDF must also express our gratitude to those whose generosity

and dedication helped to make the quilt a reality. Among these are

our planning committee members, volunteers, sponsors and donors.

We are pleased to let you know that the Parkinson’s Quilt, after its first

display at the 2nd World Parkinson Congress in Glasgow, Scotland, UK,

will become available to you and others around the globe to display in

your own communities.

With this in mind, lastly, we thank you, our quilt viewers, for your interest

in the quilt and its many contributors. May the quilt strengthen your

commitment to find a cure for Parkinson’s. After all, the quilt aims to

raise awareness of the impact that Parkinson’s has on people living with

and affected by it, and to illustrate our continued urgency to find a cure.

We hope that by sharing the quilt — not only today in Scotland,

but also in coming days with you, so that you may share it with your

friends, family and neighbors around the globe — that, together, we

will succeed in that mission.

Sincerely yours,

Robin Anthony Elliott

Executive Director

How to Use This Book

This book features 39 quilt blocks that make up the Parkinson’s Quilt

Project. Each block is made up of 16 panels. The names of the individuals

and groups /organizations that created each panel are listed in alphabet-

ical order in the index at the end of this book. To find an individual or

group/organization’s quilt, search by the first letter of the last name of

the individual, or the first letter of the group/organization. On each quilt

block page, the names of the quilters are listed next to each block.

The names are listed in groups of four, corresponding to the four rows

of panels in each block, with the first name of each group corresponding

to the far left panel.

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Park N Sons martini bar & lounge (always shaken, never stirred)

Anyone who knows this disease is well aware of the fact that during

its relentless progression, you’ve got to find a way to take a little

something back to try to help yourself keep things in perspective.

Symptomatic since I was 27, I have to look forward to living most of

my life with this unwelcomed visitor, unless there is a cure found soon.

My panel represents one of the lighthearted approaches I’ve taken

towards dealing with PD’s obstacles. This thinking, combined with

tons of love and support from my family and friends, helps me to

get through it all. Within the faux stained glass in my panel, I’ve listed

people, places, and things that have touched my life at some point.

Larry Schneider Jr.

Block 1Heather Eager

“

”

I am 73 years old and was diagnosed with PD 18 months ago.

My first reaction was despair, but after a few months I realized I was

controlling it with medication, although it is progressing in small ways.

I am an artist and I paint in my Virginia studio almost every day. I do

very detailed work. Among my initial fears was that I'd lose control

of my steady hand. I often joke with friends that if that happens,

I'll just become an abstract expressionist.

The cure will come; probably too late for me, but we must work

toward that goal by raising funds and consciousness. The Parkinson's

Quilt Project is a great way to do that and I am happy that I am

able to contribute.”

Although I have had Parkinson’s disease for over eight years now,

I am still able to spend time in and enjoy my small garden.

With this in mind, my panel depicts a simple garden theme.

A secondary theme of the quilt panel is “every cloud has a silver

lining.” The “cloud” of Parkinson’s disease has introduced me to my

“silver lining.” This came about when I read in our local newspaper

about a group of people with Parkinson’s who got together once a

week for an art session under the guidance of Anne Atkin,

herself a person with Parkinson’s.

This session has become my “silver lining” and I spend many hours

every week painting and drawing. I really enjoy creating colorful

images with pastels, pencils, acrylic paints, etc., and it replaces negative

thoughts with pleasant ones.

I was diagnosed with Parkinson’s almost six years ago at the age of

44. As a single, independent career woman, the news was devastating

to me. It took a while, but I eventually learned that this is a life sen-

tence, not a death sentence. I still live a full life. I work full-time as a

designer in the apparel industry and I have a full social life, even more

so now that I have met a whole new group of friends through my

support group and volunteer work. My real passion is painting, and

I have begun showing my work professionally in the last two years.

This panel comes from lessons experienced in my journey with this

disease. These lessons are gifts, and I chose a bouquet of tulips as

the symbol to represent them. Living with PD has opened me up

to receiving spiritual gifts, something I would have avoided or over-

looked before. This disease has shown me patience, but not merely

in dealing with a slower-paced life. I have been given the gift of

patience with others, something I could never have learned without

first experiencing my own physical and mental struggles. The other

gift is charity. Forgiveness and understanding now occupy a once

empty corner of my heart, and have given me a much greater

capacity and desire to help others in any way I can. For these gifts

I am grateful.

Block 2Alan Rubin

“

”

“

“

” Beverly Lavender

Person

al Statem

ents

Block 1

Block 3

Jin Kyoung ChoaeSeoul, SOUTH KOREA

Barbara FeinbergWilmette, IL, USA

Sharon StandishMarysville, WA, USA

Lisa FoleyEdmond, OK, USA

Ans Muller & Jane GrayVancouver, BC, CANADA

Sharon StandishMarysville, WA, USA

Lois SchneiderWilmette, IL, USA

Heather EagerBerwick, VIC, AUSTRALIA

Larry Schneider Jr.Gibbsboro, NJ, USA

Judi JecmenJefferson City, MO, USA

Mary HuizingaSan Francisco, CA, USA

Lenore LavertyMorden, MB, CANADA

3

Block 1

Linda FeinbergWilmette, IL, USA

Susan MurrayVoorhees, NJ, USA

Judi JecmenJefferson City, MO, USA

Duk Kyung ChoSeoul, SOUTH KOREA

Block 2

4

Kim Vitcenda CadeViroqua, WI, USA

Patricia BissellParrish, FL, USA

Greg GatesyGaylord, MI, USA

Alan RubinDelaplane, VA, USA

Parkinson’s UK-Newcastle BranchNewcastle, UNITED KINGDOM

Wanda MiltonSouth Pasadena, CA, USA

Alison PaoliniParadise, CA, USA

Bismarck Parkinson's Support GroupBismarck, ND, USA

Cheryl MajeskeQuinton, VA, USA

Alison PaoliniParadise, CA, USA

Wanda MiltonSouth Pasadena, CA, USA

Annelies MasseyDuncan, BC, CANADA

Lynette JacobsPrescott, AZ, USA

Eric SmithGlen Arm, MD, USA

Team ParkinsonKingston, NJ, USA

Edith SchwartzCorona, NY, USA

Patricia SherrickDelphos, OH, USA

Beverly LavenderToronto, ON, CANADA


Parkinson's Disease FoundationNew York, NY, USA

Patricia YarnoldRochester Hills, MI, USA



Joanna SteichenNew York, NY, USA

Pamela MoultonPort St. Lucie, FL, USA


Charlene SnyderGlen Mills, PA, USA


5

Block 3

Anne AtkinHallam, VIC, AUSTRALIA

Parkinson's Disease FoundationNew York, NY, USA

Diana SmyserSurprise, AZ, USA


6

Block 6

Diagnosed in 2007 at age 47, I decided that while some things might

be more challenging now, I would try to spend more time enjoying

creative pursuits. I find it brings peace when I am feeling anxious

and tremendous satisfaction! When I heard about the giant Quilt

Project, I felt that this would be a wonderful way to honor our

Support Group: to say thank you to our families and for the close

friendships we have made within our group. Vancouver Broadway

Support Group may not be able to go to Glasgow, but we

would like to be there in spirit through our collage! We hope

Panel 2083 will be bound to the giant quilt, just as we are bound

here by friendship. Going to Glasgow this fall? Look for our panel.

It was made with love.

Susan Allan

“

”

When I first told my darling family that I had Parkinson's, the news

was met with hugs, lots of love, and questions. As time went by,

I began to realize that many of the questions were actually musings

by each child and grandchild about not only the quality of my life,

but about their lives also. When the Quilt Project was offered as a

way to spread the message about Parkinson's and a way to express

ideas about this disease, I immediately thought about my family's

questions. Based on Mother Theresa's own thoughts about life,

I asked members of my family to choose one of the sentiments that

most closely reflected what life meant to them. This panel

represents their answers, and I feel it reflects the joy and hope that

ultimately colors all of our days.”

My husband, Vernon McMurtry, suffers from Parkinson’s disease.

The kaleidoscopes in this panel represent the uncertainty, anxiety,

and fear that this diagnosis engenders. As the disease progresses,

there are additional problems to cope with and new challenges

to be met by both patient and caregiver. The restful blues and

greens incorporated in the panel represent the eventual

acceptance of the disease as part of our lives. They also represent

our determination to enjoy every day to the fullest and to

remain ever hopeful that a cure will be found very, very soon.

Creativity helps us remain positive and happy people.

Block 6Helen Gerry

“

“

”Block 6

Kathleen McMurtry

Block 4Joanna Steichen

My panel began as a general design for the Parkinson’s Quilt. It was

meant to be a symbol of hope for the futures of people with Parkin-

son's. And it still is that. But as it grew, the theme of music took over.

Acrobats became dancers; a piano and sheets of music appeared.

I have always loved and needed music: piano, opera, folk, liturgical, Bach,

Beethoven, the list never ends. But in the last ten years of coping with

late onset Parkinson's, I've discovered how important music can be

for our daily functioning. Strong rhythms improve balance and move-

ment, singing for breath and voice, melody for joy or sorrow, and

chords or harmony for the power of companionship. The panel then

became part of a quilt block (block 4) dedicated to the power of

music for PD. Music for PD! PD for music!

“

”

Person

al Statem

ents

Larry Schneider Jr.Gibbsboro, NJ, USA

Joanna SteichenNew York, NY, USA

Davanna SaariLanesville, IN, USA

Cynthia CravenAsheboro, NC, USA

Aiko KawabeFlagstaff, AZ, USA

Audrey Gray SannerDecatur, IL, USA

Miriam PizarroMiami, FL, USA

Nancy WoodSouth Deerfield, MA, USA

Parkies JamminSmithland, KY, USA

Elena TueroFreehold, NJ, USA

Club CREATE- Struthers PD CenterGolden Valley, MN, USA


7

Block 4

Parkinso

n’s D

isease Fou

nd

ation

’s Mu

sic Qu

ilt

Kay Mixson JenkinsSpringfield, GA, USA

Peggy WillocksJohnson City, TN, USA

Sharon StoneMorristown, NJ, USA

Linda WebbWilliams, AZ, USA

Block 5

8

Eleanore HullPort Jefferson, NY, USA

Louise ColalilloDuluth, MN, USA

Lois ColeDes Moines, IA, USA

Janice CattonChatham, ON, CANADA

Carol BersanManchaca, TX, USA


Sandra ZanderKing Island, TAS, AUSTRALIA

Katherine for PCC NeurowritersPhiladelphia, PA, USA

Katherine for PCC NeurowritersPhiladelphia, PA, USA

Lisa LongacherCastle Rock, CO, USA


Carol CassidyCentennial, CO, USA

Cynthia HoDudley, West Midlands, UNITED KINGDOM

Patricia ColeElmira, NY, USA



Linda SpencerSalisbury, NC, USA

Kathleen McMurtryBetty's Bay, Western Cape, SOUTH AFRICA

Mary E. BoothUrbandale, IA, USA

Caralyn TurnerLoveland, CO, USA

Mona AmpudiaLa Habra, CA, USA

Helen GerryPolson, MT, USA

Gail PoynterRamona, CA, USA

Audrey Gray SannerDecatur, IL, USA

Susan AllanMaple Ridge, BC, CANADA

Sheryl AllenSan Jose, CA, USA

Judie RenfrowTucson, AZ, USA

Pamela SmithMurfreesboro, TN, USA

9

Block 6

Sharon StarkWellston (Hoxeyville), MI, USA

Esther BassBedford, MA, USA

Patricia MorrisIrvington, VA, USA

Nancy RodriquenzWestminster, MA, USA

10

I have a dream that in my lifetime there will be a cure for Parkinson's.

I had a dream about my quilt panel. It was all puzzle pieces.

The pieces are jumbled at the top of the panel and at the bottom,

some puzzle pieces are fitting together, while some are still trying

to find their place. All it will take is one puzzle piece to fit just right

and we will have a breakthrough for a cure.

I am an artist and a quilter. I have Parkinson’s. I also have creativity

and that keeps me active and alive in mind, body, and spirit. A cure

for Parkinson’s is my dream. I pray every day for that one piece of

the puzzle that will make the difference.

Lynne Stefanetti

“

”

My panel is dedicated to my husband, Tom. Since the onset of his

disease six years ago, we have been faced with many different

challenges. This is best illustrated by my choice of the game of

Scrabble. You have to figure things out to the best of your ability

with what you are given. Sometimes that's an easy task and

sometimes not.

Over the course of his treatment, Tom has been blessed with many

caring people whose names are embroidered on the edges of the

square. And, of course, there's me, his #1 supporter. Because of

this group, Tom has been given the opportunity to undergo deep

brain stimulation surgery this coming May. This is just the beginning

of finding a cure for this disease. It will take the courage of many,

but together we will solve this puzzle.”Parkinson's had a profound effect on my father, George Lukens.

The center of the panel is Dad sailing his restored dinghy on Cape

Cod. The panel remembers dad and all his lessons:

• Measure twice, cut once.

• Take care of your family and your home.

• Feed the birds.

• Be modest. (Few people know that dad worked with Travelers

Insurance Company, Friedan Computers, and Western Union to

create the beginnings of what we now know as the Internet.)

• Ice cream is better from the ice cream truck.

• Save everything — you never know when you'll need it.

(Not a single piece of fabric was purchased for this project!)

• Never walk if you can drive a tractor.

• Any day fishing or boating is a good day.

• Wash the windshield before you get on the highway, and always

wave good-bye.

Three months before retiring at the age of 60, I was diagnosed

with Parkinson’s disease. I knew almost nothing about PD.

After researching, reading, listening, and interacting with others

with PD, I am still “puzzled” by the many ways PD changes the

lives of millions, and we still do not have all the pieces of the

puzzle that will lead to a cure.

Determined to participate in this project, I had a design

idea, a pattern, a fabric selected, a 221 Featherweight sewing

machine (a quilters dream, I’m told) and NO QUILTING SKILLS!

However, I knew someone who could instruct me!!

With the help of my talented sister-in-law, Betty Connolly, the

“Parkinson’s Puzzle” is my contribution to the PD Quilt Project.

Black pieces represent the “unknown” while colored/design

pieces represent the progress made as research continues to put

the pieces together to find a cure.

Block 9Kathleen Diez

“

”

“

“

”Block 8

Gayla Doughty

Person

al Statem

ents

Block 7Pat Lukens

Block 7

Lynne StefanettiParadise, CA, USA

Karen SampsellOak Ridge, TN, USA

Pat LukensMarlborough, MA, USA

June D'AnieriWesterville, OH, USA

Christine RheaSevierville, TN, USA

Patricia HuffmanBoone, NC, USA

Katherine ArehartBunker Hill, WV, USA

Cheryl RykkenFremont, WI, USA

Linda MackeCamano Island, WA, USA

Yvonne BlakeKatoomba, NSW, AUSTRALIA

Paris HarrisonGreenville, SC, USA

Ila PatloganFlossmoor, IL, USA

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Block 7

Rebecca BreedloveKingston Springs, TN, USA

Michelle JacobowitzCanton, GA, USA

Mindy Kirsten AndersenEllensburg, WA, USA

Sheryl WilsonAntioch, CA, USA

Block 8

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Barbara BackusJohnson, VT, USA

Patricia HealyCedar Rapids, IA, USA

Mary HjalmarsonCardiff By the Sea, CA, USA

Rachel BrumerSeattle, WA, USA

Elizabeth Anne TraversePearland, TX, USA

Gayla DoughtyHurricane, WV, USA

Irene NovichihinMount Angel, OR, USA

Suzanne GoldmanSebring, FL, USA

Bethany ConventSt. Paul, MN, USA

Linda HabenstreitSpringfield, VA, USA

Carole and Jen HatkeItasca, IL, USA

Kathleen BroaddusMoweaqua, IL, USA

Georgia RancourtFairfield, ME, USA

Barbara DillTacoma, WA, USA

Judi SechterMerrick, NY, USA

Maralyn ClaycombScottsdale, AZ, USA

Jean HamiltonBellingham, WA, USA

Eleanor Flowers' ChildrenIndependence, MO, USA

Rebecca PeytonManassas Park, VA, USA

Gracia ClarkBloomington, IN, USA

Miriam PizarroMiami, FL, USA

Karen DeGraafElizabeth, IN, USA

Lynda RobsonRichmond, BC, CANADA

Valley Golden Living CenterSaint Marys, OH, USA

Janice WisemanKareela, AUSTRALIA

Melanie VotawBrooklyn, NY, USA

Maria L. De Leon, M.D.Nacogdoches, TX, USA

Kathleen DiezAurora, CO, USA

13

Block 9

Laura SangerHouston, TX, USA

Linda ArmstrongAurora, IN, USA

Cindy EdisonSturgis, SD, USA

Elena TueroFreehold, NJ, USA

14

Block 10

My husband Augie D'Alonzo was diagnosed with Parkinson's over

thirteen years ago. He is 68 years old, and we have been married

for the last 46 years. Calling him the "Mighty Oak" is a perfect

description. He has never let this disease take over him physically

and mentally, and has fought to live a normal life. With the support

of me, our five sons, their wives, our seven grand-children, and our

faith, we are helping him live a full and active life. He is an inspiration

to us all, especially our daughter-in-law, Patti, who had breast cancer.

He showed her how to face adversity and fight it with a confident

attitude. The branches of Augie's oak tree might bend, but they

won't break. I designed this quilt panel with these thoughts in mind,

and I hope the viewer sees that with a positive mind and support

of family that you can fight Parkinson's.

Rita D'Alonzo

“

”

The Quilt program is a reflection in terms of folk art, of the

kaleidoscope of experiences that came with Parkinson’s disease.

There is the immediate shock of one’s physical shortcomings,

followed by adaptation to a new form of life, necessitated by the

change. Prominent in my mind is the re-learning of tying a knot,

or wearing a tie, doing up one’s shoelaces, buttoning one’s clothes,

eating with only a spoon, and above all a new exercise regime.

It can be done!”

This panel is a tribute to my dad. Accepting that Parkinson’s was

now a permanent part of his life, our Abu (Dad) Haroon decided

to befriend his disease rather than view it as an enemy.

Fondly naming it “Pinky D,” he founded the Pakistan Parkinson’s

Society — a small group to raise awareness and provide support

for Parkinson’s patients in Pakistan. He has made his pink shirt a

signature statement for seminars, workshops, and corporate events.

The pink shirt represents confidence and dedication to his cause

with the hope and inspiration he wants to see in all patients,

families, and friends.

This photograph is of one of my oil paintings and a written

reflection that shows how art helps me to express and to cope

with the emotional isolation caused by PD.

My family and friends have no idea what I face on a daily basis.

I hide my struggles as much as possible, in order to enjoy being a

friend — just a friend — and not “a friend with PD.” As a result,

I am happier when with people, but lonelier when alone. I took

the advice of a wise friend who told me to learn to be happy with

my own company.

I grew less dependent on TV and movies to drown out my

loneliness, and started painting again, adjusting my style to

accommodate lost fine motor skills. The result is a body of work

far more compelling than my pre-PD paintings.

Block 12Sleem Majidulla

“

”

“

“

”Block 10

Marie Louise Hagen

Person

al Statem

ents

Block 12Shahzadi Shoaib

Sheila BoppMaineville, OH, USA

NiskaMontreal, QC, CANADA


Carolyn WeimerCleveland, OH, USA

Shirley ClineChristiansburg, VA, USA



Marie Louise HagenWashington, DC, USA

Heather UrquhartSan Diego, CA, USA

Susan PageGraceville, AUSTRALIA

Linda WittigAmbridge, PA, USA

Rita D'AlonzoPort Washington, NY, USA

15

Block 10

Margaret MagicBellingham, WA, USA

Judith HendelmanForest Hills, NY, USA

Karen DellElmhurst, IL, USA

Mildred CushmanHouston, TX, USA

Block 11

16

Dorothy WongHouston, TX, USA

Charlene VictorHouston, TX, USA

Aubrey CalvinHouston, TX, USA

Anna PetritesHouston, TX, USA

Robert CurtisHouston, TX, USA

Meg LauckHouston, TX, USA

Clarita BrownHouston, TX, USA

Carol FryHouston, TX, USA

Michael DriscollHouston, TX, USA

Mike ChurchmanGalveston, TX, USA

Myrna RodmanHouston, TX, USA

Ellis FreitagHouston, TX, USA

Paquita DeLeonHouston, TX, USA

Warren FranzHouston, TX, USA

Brenda LaryHouston, TX, USA

Mary WeyandHouston, TX, USA

Housto

n A

rea Parkinso

n’s S

ociety (H

APS) Q

uilt #1

Talat HashmiKarachi, PAKISTAN

GlaxoSmithKline StaffKarachi, PAKISTAN

Samina QureshiKarachi, PAKISTAN

Shahla ShareefKarachi, PAKISTAN

Tashi ShaikhKarachi, PAKISTAN

Shahzadi ShoaibKarachi, PAKISTAN


Salika AnwerKarachi, PAKISTAN

Nilofar-Nighat ZebaKarachi, PAKISTAN

Ayesha SamadKarachi, PAKISTAN

Sleem MajidullaKarachi, PAKISTAN


17

Block 12

Pakistan Parkin

son’s S

ociety Q

uilt


Shahzadi ShoaibKarachi, PAKISTAN

Rayyan BasheerKarachi, PAKISTAN

Raniyah BasheerKarachi, PAKISTAN

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I created this block to symbolize things that have been important in

my life. Some of them changed with my diagnosis of Parkinson’s as

my physical abilities did. Some, like family and friends, are central to

my life regardless. Now I find release and comfort in creating —

whether with quilts, music, art or poetry. I feel that as long as I can

find beauty in the world and a way to share it then I have lived well;

life may change because of Parkinson’s but it goes on and we keep

going, too, just at a different pace! One day there will be a cure.

Linda Webb

“

”

This square represents me and my dreams. I believe in the grass-

roots movement where great things can be accomplished by taking

small steps. The Margaret Mead quote is one that I live by:

“Never doubt that a small group of thoughtful, committed citizens

can change the world. Indeed, it is the only thing that ever has.”

The PD Tulip initiative was grassroots and look where we are today!

One person CAN make a difference.”

Besides being a work of art, a quilt is a jigsaw puzzle of memories.

A flannel square from a baby's blanket, a piece of corduroy from

a grandson's outgrown jacket, and a ribbon of taffeta from a

granddaughter's prom dress all blend together into a rainbow of color.

Each special event brings smiles to our faces and warmth to our hearts.

For those with Parkinson's disease, ordinary events become

precious. We remember friends and family around the world who

have made our lives special, in spite of the challenges we face.

The mountains in my panel represent these challenges, and the

leaping stag symbolizes the spirit and determination found in our

hearts. My contribution to this quilt was made possible by the

creativity and cooperation of others. Many thanks to Joanne Forkey

whose quilting talent saved the day!

The Things I Have Loved and Lost to Parkinson’s Disease

I have always loved high heeled shoes. I think that they “finish” an

outfit, any outfit. In fact, you could be wearing a burlap bag tied

in the middle with a piece of jute string, but if you wore the right

pair of high heeled boots — say leopard-skinned over the knee

Stuart Weitzmans … well, honey, you looked high-maintenance!

Well, Parkinson’s disease took all that away from me. I always had

trouble walking and chewing gum at the same time — but now

forget it. Balance is out the window. But, oh, those shoes!

They gave me such joy! And you know, they still do. The lips at

the lower right are me kissing them goodbye for my feet but

thanking them for their contribution to me. They are my muse in

the art of living with PD — with flair.

“

”

“

“

”Block 15

Christina LaGana

Personal S

tatemen

ts

Block 13Lois Ballard

Block 14 Block 14Jean Burns

Helga PetropoulosCadyville, NY, USA

Judy RussellPlattsburgh, NY, USA

Lora BarshowPlattsburgh, NY, USA

Ladies of the Lake QuiltersPlattsburgh, NY, USA

Kate DelsignorePlattsburgh, NY, USA

Carol Solari-RuscoePeru, NY, USA

Niki GemmillChazy, NY, USA

Carol CrowningshieldPort Kent, NY, USA

Barbara WagnerPlattsburgh, NY, USA

Mary GagnierPlattsburgh, NY, USA

Lois BallardPeru, NY, USA

John RussellPlattsburgh, NY, USA

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Block 13

Plattsb

urg

h, N

ew Yo

rk Parkinso

n’s A

waren

ess Quilt

Barbara LichtigPlattsburgh, NY, USA

Janet BoothPlattsburgh, NY, USA

Mary Lou BeauharnoisPlattsburgh, NY, USA

Patricia WoodPlattsburgh, NY, USA

Block 14

20

Flagstaff Support GroupWilliams, AZ, USA

Marcia WienerGreen Valley, AZ, USA

Quilt Project CommitteeNew York, NY, USA


Martha OberBath, NY, USA

Jean BurnsSun Lakes, AZ, USA


LSVT GlobalTucson, AZ, USA


PDPlan4LifeSun Lakes, AZ, USA


Shirley & Becky FarleyTucson, AZ, USA

Sharon KhaTucson, AZ, USA


Wendy GlassAustin, TX, USA


Arizo

na Parkin

son’s A

waren

ess Quilt

Danish PD AssociationCopenhagen K, DENMARK

Penny TeemWilliford, AR, USA

Karen LeesCowra, NSW, AUSTRALIA


Marion DolanBuffalo, NY, USA

Michele Lee BakerRanburne, AL, USA

Diane M. CampionWhitefish Bay, WI, USA

Lorna WhiteDubbo, NSW, AUSTRALIA

Michele Lee BakerRanburne, AL, USA

Diane M. CampionWhitefish Bay, WI, USA

Jacqueline Michal BarzelyKibbutz Revivim, ISRAEL

Christine LaGanaColumbia, MD, USA

21

Block 15

Christine LaGanaColumbia, MD, USA

Meryl LeesCowra, NSW, AUSTRALIA



22

My quilt panel is in memory of my Dad, Howard L. Reiter. We found

out Dad had Parkinson's in 1993. He and Mom did pretty well

while taking care of one another, but then we found out Mom had

bladder cancer. Mom died 17 months later. I took care of Dad for

seven years. It is the hardest job I have ever had but I would do it

again in a heartbeat.

The three segments represent the things I think of when I think of

Dad. He was a chef for 60+ years. After he “retired,” he started

sharing his cooking talents with his students at the local college.

Family meant a great deal to Dad. He treasured the babysitting time

after school with his grandson, who is now 30. We often wondered

who was taking care of whom. Dad's military career was something

he was very proud of, serving five years in Asia during WWII.

“

”

Submitting this quilt panel as one of many, makes me realize how

glad I am to be sharing in the PD Quilt project.

In spite of many changes that PD has brought into my life, quilting

still has the ability to bring me to a quiet place of creative tranquility.

It is that feeling of hope I wish to share with others.

It is important to define myself as to what I can do, rather than

spend time being troubled over what I have lost. Quilting helps to

supply that need, and keeps me feeling alive and useful in the face

of the disease.

I spent much time thinking through various ideas, with many changes

of mind. In the end, I chose a very peaceful background evoking

“nature,” “serenity,” and “tranquility.” To complete the theme, an

appliqué of three quilted leaves was added symbolizing springtime,

hope and rebirth.”Our quilt panel was made in honor of patients, caregivers, doctors,

nurses, chemists and pharmacists around the world who are living

proof that there is hope in combating this disease called Parkinson's.

With our panel design we want people to know that the state of

Texas, our town of Nacogdoches, and our support group are 100

percent behind all the organizations who are working diligently to

find new medications and new treatments to provide a better life

for Parkinson’s patients.

The tulip is not only a beautiful flower — it is strong, it withstands

the elements, and though lying dormant for a season, it always

returns more beautiful and stronger than ever. We dedicate our

panel to Parkinson’s "tulips" everywhere.

Texas is called The Lone Star State. We show this on the panel, but

also state the opposite for anyone coping with Parkinson's disease.

YOU ARE NOT ALONE!

Here is my quilt square, made with love and care for all those

afflicted with this hideous disease.

Perhaps our expressions on fabric will allow others to see, to heal,

and to understand what PD is. My quilt square is not perfect, but

neither is life! If the edges of the yellow fabric are not straight,

or if the black fabric is not equal, it’s no big deal. I am not a

professional quilter but I did my best; this is my work. In this quilt

are pieces of my skin suit of my inline team as well as photos of

the race I put on every year for PDF.

Why a quilt square? Simple! With words, through threads and

fabric we can express to the world our thoughts and feelings of

how Parkinson's disease affects us all. I'm an inline skater. Skating,

racing is my passion in life, expressed by putting on a skate race with

net proceeds donated to PDF. My brother was diagnosed eight

years ago and his life has changed in many ways since then. Putting

on the skate race is how I'm helping to find a cure. My name is

Audrey Winthrop of racebrake.com. I'm the team captain, inline

skater racer of the Beach Bladers Inline Skate Team, Sunset Beach,

CA, as well as the race director of the Parkinson's Open Inline skate

race at El Dorado Park in Long Beach, CA.

Block 18Elly Herman

“

”

“

“

”Block 17

Audrey Winthrop

Personal S

tatemen

ts

Block 17Nacogdoches PD Support Group

Block 16Catherine Reiter

Michelle JacobowitzCanton, GA, USA

Kathleen Hyland FritzHoney Brook, PA, USA

Leanne HolveckNewark, DE, USA

Julia HuestisLowell, MA, USA

Lydia ShaternikMontauk, NY, USA

Marilyn MollHudson, FL, USA

Chyleen PauesickKansas City, KS, USA

Jen, Lauren & Dottie KeeneMechanicsburg, PA, USA

Lynn BennettPalm Bay, FL, USA

Catherine ReiterAltoona, WI, USA

Michael & Cathy CollinsHalfmoon Bay, BC, CANADA

Laurence GreenfieldNorthfield, IL, USA

23

Block 16

Sue MangiapaneEncinitas, CA, USA

Donna CahalaneAnchorage, AK, USA

Arlene BrodskyMontauk, NY, USA

Oxford PD Support GroupOxford, OH, USA

Block 17

24

Karen SmithRidgecrest, CA, USA

Jeanne Armstrong & Jeannine ShadeState College, PA, USA

Gail PfeifferSparks, NV, USA

Judith JacksonFrostproof, FL, USA

Marilyn Van LentenWest Chester, PA, USA

Diane DurkeeNaples, FL, USA

Arthur & Patricia BierleValley Center, CA, USA

Nacogdoches PD Support GroupNacogdoches, TX, USA

Davis Phinney FoundationBoulder, CO, USA

M.F. KaneTucson, AZ, USA

Joan EngelWestbury, NY, USA

Marlene LishWesterville, OH, USA

Laurie BrownMenlo Park, CA, USA

William HolmanJeffersonville, IN, USA

Audrey WinthropSunset Beach, CA, USA

Columbia PD Support GroupColumbia, SC, USA

Colleen BradyCharles Town, WV, USA

Stacey Mellus-WhitingWoodside, NY, USA

Nicky BlakeneyTaylorsville, MS, USA

Linda KammannShelby Township, MI, USA

Sandy LaipplyBucyrus, OH, USA

Megan LaymanMartinsburg, WV, USA

Sheryl BoydElyria, OH, USA

Joyce FisherHarpers Ferry, WV, USA

Yvonne KozlowskiValparaiso, IN, USA

Carol HalpernLa Grange, IL, USA

NJ Chapter APDANew Brunswick, NJ, USA

Mary Lou PalmerWaverly, NY, USA

25

Block 18

Marian LickoElgin, IL, USA

Barbara FordStevensville, MI, USA

Elly HermanSharon, MA, USA

Berrien County Support GroupStevensville, MI, USA

26

Paisley prints

Denim

Flannel

Many different types of fabrics and prints joined together, as are

many hearts in a fervent wish to find a cure for Parkinson’s.

Through the Parkinson’s Quilt Project, hands across the world weave

their magic to commemorate loved ones suffering from this disease.

Pray for those afflicted

Donate your time and talent

Find a cure

Jean Graffius

“

”

Vince was diagnosed with Parkinson's disease in 2002. In designing

my panel, I wanted to convey our hopes that with Parkinson's

disease research we will win the fight against this insidious disease.

The dictionary refers to HOPE as "to desire with expectation of

fulfillment." A RAINBOW is referred to as an "illusion." We believe

that with Parkinson's disease research our RAINBOW will not be

an illusion but rather a reality. Many thanks go to my sister Jean and

niece Laura for their support in creating my panel.”

My quilt panel is in honor my husband and soul mate, Ted, who was

diagnosed with Parkinson’s disease in 1999. He has never given up

and works very hard to maintain his health and positive outlook.

We have been through endless doctor visits, physical therapy,

medicine changes and disappointments. We have discovered that

endless is not the same as hopeless. Keeping a positive outlook is

essential. Ted has a "never give up" attitude which has carried him

through the day-to-day challenges of living with Parkinson's disease.

He is my rock. Our family is very supportive and accepts that we

live day-by-day.

We are very blessed. We have good friends, a wonderful, under-

standing family, and the spiritual foundation that we draw on in

times of disappointment and pain. What else could you ask for?

A CURE FOR PARKINSON’S DISEASE.

Our brother, Bert, was diagnosed with Parkinson’s in 2005.

In typical Bert fashion, he’s chosen to ignore the disease as much

as possible. Being a scientist, he has volunteered for research

projects, feeling that if he can help doctors develop treatments

or find a cure, he will. I remember him telling us that he had

volunteered for a study of depression in Parkinson’s patients.

He was turned down; he just didn’t meet the criteria for the study.

He had Parkinson’s, but he wasn’t depressed!

Bert attended public school In Rhode Island, graduated from

Dennison University and received his doctorate in geology from

Johns Hopkins University. Our square shows Bert engaged in the

profession that he loves so much, and which has taken him all over

the world. He is surrounded and supported by his wife and chil-

dren and some of the places and activities that he enjoys so much.

It was embroidered by his siblings: Kathy, Becca,Ann and Woody.

Block 19Beth Murphy

“

”

“

“

”Block 21

Bert Swan’s Siblings

Personal S

tatements

Block 20Evelyn King

Block 19

Club CREATE- Struthers PD CenterGolden Valley, MN, USA

The Stewart FamilyMount Airy, MD, USA

Carol MooreFairbanks, AK, USA

Gary CrutchfieldSouth Boston, VA, USA

Jo Ann Van KesselColumbia, MD, USA

Beth MurphyNew York, NY, USA

Barbara AlveyCloudcroft, NM, USA

Issy MoskowitzAtlanta, GA, USA

PD Fdn. of the HeartlandLeawood, KS, USA

Louise KuklisNew Rochelle, NY, USA

Debbie MurphyWoodbury, MN, USA

Jean GraffiusSan Jose, CA, USA

27

Block 19

Christine MarteCypress, TX, USA

Rosemary RunyanElgin, IL, USA

Marguerite PychaChicago, IL, USA

Melinda RutledgeHoover, AL, USA

Block 20

28

Christie KernRacine, WI, USA

Donna HamillUnderhill, VT, USA

Mary BridgesEast Boothbay, ME, USA

Kay SieckOmaha, NE, USA

Lea Ahmed JussilainenStockholm, SWEDEN

Linda PiggConcord, NC, USA

Evelyn KingSellersburg, IN, USA

Linda JonesChandler, AZ, USA

Mary Ann Sharrer & Patricia SnyderColchester, CT, USA

Jennifer WellsFort Collins, CO, USA

Sharon DemintRiverside, CA, USA

Jamey Hadden & Pat BakerAstoria/Victor, NY, USA

Nirmala KrishnanCopley, OH, USA

Madeleine O'MaraMerrimack, NH, USA

Diana Garmus & Nancy GreenleeSacramento, CA, USA

Denise BrigodePerrysburg, OH, USA

The Esplanade Senior CenterWhite Plains, NY, USA

Pat BanksDevine, TX, USA


Loretta RamosSacramento, CA, USA

Bernadette StephensNew Boston, NH, USA


Susan SimpsonBend, OR, USA

Donna EllisSun Valley, CA, USA

Brenda BroussardGueydan, LA, USA

Dina HarrisWellfleet, MA, USA


Joyce HartleyRichmond, VA, USA

29

Block 21

Wilma LazaridisRowville, VIC, AUSTRALIA


Bert Swan's SiblingsCarmel, NY, USA


30

My husband, Dr. Gary Racusin, was diagnosed with Parkinson’s in

December 2002. Struggling to right ourselves, we decided to

continue to live as we always had. Parkinson’s would be the

background, not the center of our lives. This quilt panel honors

that decision. The panel represents some of Gary’s lifelong interests

— his beloved San Francisco Giants Baseball Team, music, Abraham

Lincoln and the Civil War, and Sherlock Holmes. With the inevitable

course of Parkinson’s, our original decision has had to be modified

somewhat. Nevertheless, Gary still follows the Giants, offers new

tidbits he’s learned about Lincoln, welcomes us home with rock

star accompaniments to his blasting stereo, and delights in tales of

Mr. Holmes. While Parkinson’s is no longer in the background,

Gary’s courage and determination are at the true center of our lives.

This quilt panel honors his strength as he holds onto his passions.

“

”

I created this panel with all the things I love: old wedding dresses,

lace and pearls. I have this romantic love of old wedding dresses.

They always make me smile because I think of the young bride

waiting at the back of the church, awaiting her big entrance and

her new life. Living with Parkinson’s is kind of like a new marriage.

It's a combination of fear, determination and hard work to make

your life as happy as you can. I was 44 when I was diagnosed

– three years and six months ago. I guess you could say I had to

divorce myself from my old life and got remarried to my new one.

A cure sure would make a nice wedding gift!

My granddaughter's second grade class at Shady Hill School in

Cambridge, MA invited me to talk with the class about Parkinson's

Disease Awareness Month and the PD Quilt project. They decided

to support PDF by making three panels, 27 squares, as part of their

study of early American crafts. The fish theme relates to their study

of the Charles River and all the various links to the community.

I have been a quilter for many years. For the past seven years since

I was diagnosed with PD, hand-work, especially quilting and knitting,

has helped me by keeping my mind and hands busy while still being

productive.

Crafted by creative and talented people with Parkinson’s, whanau

(family) and supporters throughout New Zealand, this quilt has

at its center the words “Love,” “Care” and “Share”: principles that

embody the spirit of caring. Each square is crafted using fabrics

and motifs that are typically New Zealand — from the paua shell

and endangered takahe bird to the kiwifruit — all iconic images.

Quilters from the farming heartland province Taranaki display

their mountain with a farming scene. Striking another note, a

square embroidered with “Music Heals” features the importance

of music in the lives of people with Parkinson’s. New Zealanders

come from varied origins. Home spun wool crocheted and

applied to the quilt harks back to the Scottish and Irish crofters

and squares embody Maori motifs through the Te Wai Wai

influence from the Pacific Islands. Diversity and creativity are

celebrated in the coming together of this panel.

“

”

“

“

”

Personal S

tatements

”Block 22

Nancy Moss-Racusin, Ph.D.

Block 24Cindy Craine

Block 23

Dianne MonahanShady Hill School Grade 2E

Block 23Parkinson’s New Zealand

Nancy Moss-Racusin, Ph.D.North Haven, CT, USA

Paula StocksVilonia, AR, USA

Rachel SmithTallahassee, FL, USA

HeartSprings/Denise MorrisFargo, ND, USA

Michael Tomich & Ward TomichGrand Rapids, MI, USA

Cheryl FrairDayton, NV, USA

Rock Steady BoxingIndianapolis, IN, USA

Carol BlannNew York, NY, USA

31

Block 22

Andrea BursawNewbury, MA, USA

Ambika RajanReading, Berkshire, UNITED KINGDOM

Deborah HickersonEsparto, CA, USA

Harry HershfieldBohemia, NY, USA

Joyce HamptonRanson, WV, USA

Shari Price KerseyFairview, NC, USA

Marilyn Mahan & Holly Mahan-RoweMonroe, LA, USA

Angela WintersEssexville, MI, USA

Block 23

32

Shady Hill School Grade 2ECambridge, MA, USA

Carolyn WeaverFreeland, MI, USA

Sarah JensenInternational Falls, MN, USA

Janice SmithPhiladelphia, PA, USA

Louise LauDodge City, KS, USA


Carol SwiskPiedmont, OH, USA

Parkinson's New ZealandAOTEAROA, NEW ZEALAND

Parkinson's New ZealandAOTEAROA, NEW ZEALAND



Carol MeenenGurley, AL, USA

Wisconsin Chapter APDAMadison, WI, USA

Rebecca SurmeierEmporia, KS, USA


Wisconsin APDA CaregiversMadison, WI, USA

Marlene Urbina de BreenWheaton, MD, USA

Betty ConnollySissonville, WV, USA

The Cure Parkinson's TrustLondon, UNITED KINGDOM

Diane McGrawNorth Liberty, IA, USA

Pamela WoodardWhitefish Bay, WI, USA

Tammy WalkerHagerstown, MD, USA

Pamela WoodardWhitefish Bay, WI, USA

Jennifer MarquetMedia, PA, USA

Canterbury Parkinson's Support GroupCedar Grove, NJ, USA

Yvonne RaesSlater, IA, USA

Cindy CraineFort Worth, TX, USA

Movers & Shakers (Inc.)Naples, FL, USA

33

Block 24

Sharron HilbrechtLouisville, KY, USA

The Cure Parkinson's TrustLondon, UNITED KINGDOM

Mary KiddSissonville, WV, USA

Pigtails, Pirate Ships & Parkinson'sLodi, CA, USA

34

In 1967, my great-grandmother, Big Mama, introduced me to

quilting. Inspired by the Double-Wedding-Ring quilt Big Mama made

for my wedding in 1975, I created this original pieced-appliqué

design. It blends an old traditional pattern, bits of old fabric scraps,

machine quilting, and a bit of machine embroidery. This small quilt

is much like our lives — the past with the present, old with new.

Loved ones we’ve lost are still with us, sometimes in things we can

actually touch as well as those intangible, yet very real, ways

— memories, feelings and lessons.

“

”

It began with a tremor in my left hand, an almost imperceptible

flutter that could have been attributed to weariness, but that

persisted. So I chose to depict hands in my quilt panel, hands that

are necessary for everyday functioning, hands that reach to be

comforted, that comfort my caregiver, that reach for an end to this

lurking evil. All the while, hope flutters like a butterfly, lightly, teasingly,

beautifully hovering hope. The butterflies on this panel represent

hope. This is not a very professionally quilted panel. I preferred to

leave it in a primitive form, as I have learned through coping with

Parkinson’s disease that sometimes perfection is not the goal.

Accepting what I can do and presenting it as my best is the most

I can offer. All of the materials in this panel are remnants of previous

projects. We take what we have and make the most of it.

My first memory associated with Parkinson’s disease was as a young

child visiting my grandmother in the nursing home. Due to a heavy

tremor, she struggled to even bring a mug of coffee to her lips.

In the past, my grandmother was a talented quilter, but always

insisted that her quilts were made to be used, not hung for display.

Therefore my brother and I always had lovely quilts on our beds

growing up, but few have remained intact over the years. I now

work at a Movement Disorders Clinic and help organize a support

group for individuals and caregivers dealing with Parkinson’s disease.

My quilt piece is dedicated to the wonderful people I’ve met in our

group and to my grandmother, Marcella Martin. She was a fabulous

wife, mother and grandmother.

When my husband was diagnosed with PD five years ago, it really

knocked us for a loop. I have to force myself sometimes to get

quilting again. I enjoy making quilts, machine embroidery and all

things related. Due to stress or fatigue, I have trouble making a

decision on what to make or getting the energy to do whatever

it is I want to do.

I find that quilting helps me to just “go somewhere else” and

forget the hassles of PD for a while.

As a caregiver, PD has slowed down my productivity, my energy,

and my creativity, but like my husband, I’ll be darned if it’s going

to stop me from creating gifts for the family or anyone who sees

my work. We decided when he was diagnosed that we would not

let PD control our lives and we have worked to stay a step ahead

whenever we can.

“

”

“

“

”

Personal S

tatements”

Block 25Big Mama’s Legacy

Block 25Peggy Titt

Block 27Erika Gergerich

Block 27Sharon Patnoe

Virginia KorolyHuntersville, NC, USA

Susan SawyerAlbany, NY, USA

Pamela WarfordFort Worth, TX, USA

Big Mama's LegacyLubbock, TX, USA

Sandi DickGreat Falls, MT, USA

Paige HarperSt. Petersburg, FL, USA

Dorothy RhodenEvans, GA, USA

Mary HjalmarsonCardiff By the Sea, CA, USA

Susan W. SmithNew Orleans, LA, USA

Peggy TittVictoria, TX, USA

Erin TylerClearwater, FL, USA

Deborah ReidJacksonville, FL, USA

35

Block 25


Sherry WinterYonkers, NY, USA

Lisa ScuderaNew York, NY, USA

Sandra CostiOlympia, WA, USA

Block 26

36

HAPSHouston, TX, USA

Lis CrawfordFriendswood, TX, USA

Susan FreitagHouston, TX, USA

Emilia HerediaHouston, TX, USA

Martha SteinThe Woodland, TX, USA


Alejandro AlvarezKaty, TX, USA

Max EldenHouston, TX, USA


Stan RodmanHouston, TX, USA


Anne PribylHouston, TX, USA

Georgene BrandonHouston, TX, USA

Roscoe JonesPearland, TX, USA

Robert SteinThe Woodlands, TX, USA


Housto

n Area Parkin

son’s S

ociety (H

APS) Q

uilt #2

Judy MarinoFayetteville, AR, USA

Sharon PatnoeFayetteville, AR, USA

Ann RobertsFayetteville, AR, USA

Sandy WoodsFayetteville, AR, USA



Jerry PatnoeFayetteville, AR, USA






37

Block 27

Fayetteville, Arkan

sas Senior H

ealth PD Support G

roup Quilt


Erika GergerichFayetteville, AR, USA

Gillian WoodsFayetteville, AR, USA


38

My panel is a tribute to my faith, family and friends who have

accompanied me through my life’s journey of joy and sorrow,

grief and anger, and now Parkinson’s. Parkinson’s is slowly stealing

my strength, thoughts, and words. However, my faith, family, and

friends will accompany me on this journey too as they always have

and always will: turning despair into hope, anger into acceptance,

and grief into a quiet joy. I am truly blessed.

“

”

Each piece of a quilt has its own color, pattern, texture and design

with unique beauty and charm. But when the individual pieces of a

quilt are sewn together, they become one magnificent work of art.

Just as the pieces of a quilt have unique beauty, the people in my

life have unique personalities, talents and skills. Their presence

blesses me in countless ways.

Who are the people in the patchwork of my life? They are those I

am close to, as well as those I meet in passing. I give thanks for all

of you who touch my life in some way. I enfold you in prayer and

hold you in a special place in my heart. You are an important part

of the fabric of my life — a tapestry of love.

I decided to do this quilt panel as a person diagnosed with PD 13

years ago, because it is the right thing to do. I am not qualified to

do research, but I can take part in Parkinson’s studies and I can

make a quilt panel with the help of my husband, family and friends,

and especially with hands-on help from my sister, June Metts.

I dedicate this panel to the Lanier Village Estates PD support

group, both past and present.

I chose the autumn leaves pattern because it reminded me that

PD is a disease that comes to you in the autumn years of your life.

It is no respecter of persons. We come from all walks of life with

different and varied symptoms. We are each like a leaf on an

autumn tree; each using his or her own talent, working together

as a whole, to one day soon find a cure.

My quilt square represents the things that PD has given me, rather

than what is has taken away.

The ukulele on the left side is my bell-weather. My neurologist

always asks me if I’m still able to play and sing, and if so, he knows

I’m doing okay! The buttons, the drawing, the crochet and

decorations represent my crafting hobbies that have become so

much more important to me since being diagnosed. Suddenly,

I have this incredible urge to create, to express myself. So, I bead,

carve, draw, crochet, write poetry and play music. I've done these

things before, but never with so much joy.

Finally, the two tulips in the middle represent the wonderful

friends I’ve found through PD, whom I probably never would

have met otherwise. Their support and that of my family and

coworkers has been an absolute revelation to me; an inspiring

and humbling experience.

“

”

“

“

”

Personal S

tatements”

Block 29Judy Murphy

Block 30Joan Szczepanksi

Block 30Ruth Pearce

Block 29Marian Bumala

39

Block 28

Portu

guese Parkin

son’s D

isease Asso

ciation Quilt

Portuguese PD AssociationLisbon, PORTUGAL

Block 29

40

Virginia McNeilVandalia, IL, USA

Rodeo MomVandalia, IL, USA

Charlene PryorVandalia, IL, USA

Patty Garcia-GrandonConcepcion, CHILE

Judy MurphyVine Grove, KY, USA

Susan HamlinLos Gatos, CA, USA

Cathleen PalminiStevens Point, WI, USA

Patty MeehanRichmond TWP, MI, USA

Marian BumalaLa Honda, CA, USA

Victor LopezConroe, TX, USA

Elaine SulzbergerPalo Alto, CA, USA



Peter Monday LuleNairobi, KENYA

Donna AvolioHouston, TX, USA


PatientsLikeM

e Quilt

Mary GoebelCincinnati, OH, USA

Pamela ChristnerNewbury Park, CA, USA

Susan DietrichActon, CA, USA

Ruth PearceGainsville, GA, USA

Ellen HogueSaratoga, CA, USA

Patsy BrownEl Dorado Hills, CA, USA

Kristi LeFevreRound Lake Beach, IL, USA

Patricia BerkeleyKeysville, VA, USA

Kathleen Reardon-NobletJamestown, RI, USA

Debra SteinmannAtlanta, GA, USA

Pauline DehnOakley, CA, USA

Terrie PrescottOrlando, FL, USA

41

Block 30

Joan SzczepanskiBay City, MI, USA

Roslyn HelfenWestfield, NJ, USA

Wendi LevinePalm Beach Gardens, FL, USA

Margaret WheelerLansdale, PA, USA

For her amazing and selfless heart. For the way she takes care of

everyone around her. For the example and inspiration she is.

For the many days she fell in love. For her joyful, playful spirit.

How motherhood made her shine and being a grandma makes her

glow. For her insistence that homemade and handmade is always

best. For her ability to cook for 100 and make it look like a walk in

the park. Because she distinguishes between white, off white and

“whipping cream” white. Because she believes ice cream is a frozen

glass of milk. For her faith and her ability to see good in everyone.

For her endless determination.

In honor of my mother, whose battle with Parkinson’s began

20 years ago.

She is the bravest woman I know.

“

”

I am very passionate about skiing. Because it gives me such a

tremendous sense of freedom, skiing is one of my best means of

dealing with PD. I also write poetry, a strange unexpected gift.

I woke up one morning after a nightmare in which I was drowning

(a PD dream) and a voice started dictating words and phrases.

I had no background in poetry, but decided to follow the voice.

Since July 2009, I’ve written more than 600 poems. Very recently,

I started art classes in drawing and oil painting. Again, I am surprised

at the results so far and am very much enjoying them. PD seems

to have spurred my creative side and, for me, this feels like a gift.

Parkinson's disease came tiptoeing into our lives and our awareness

a couple of years ago, although it had probably taken up residence

somewhat earlier. My husband had always struggled with stiffness,

so when that condition worsened, we simply attributed it to natural

progression or (is it remotely possible?) that age was taking its toll.

We now know that PD is the culprit, and that we need to adjust

and adapt to new demands. I only became aware of the PDF Quilt

Project within a month of the final acceptance date, so I chose to

adapt some of my UFOs (in quilter terms that's UnFinished

Objects) in order to complete a panel in time for submission.

It seems to me that "adapting" to new or challenging situations

may be the best solution for all of us whether we deal with PD in

our lives or not.

This panel is in honor of my husband Alan and depicts our happymemories of past vacations spent hiking in France. Alan and Iwere never very athletic — about the only form of exercise wewere both good at was walking. We loved to hike the open-spacetrails near our home in California. Then we learned about theChemin de St. Jacques, the 1,000-mile medieval pilgrimage trailthrough France and Spain to Santiago de Compostela. When Alan was 60, we set off to walk the trail from Le Puy-en-Velay.In two-week segments over three summers, we covered 350 milesof the trail. Then Alan began to have pain in his legs and had to give up hiking, and at age 70 he was diagnosed with Parkinson's. Five years later, some days he can still go out for a walk, but otherdays he struggles to walk at all. PD has made the memories of thesewonderful vacations all the more precious to us.

“

”

“

“

”

Personal S

tatements

”Block 33

Jill Seward

Block 33Marlene McNew

Block 32Sharon Copeland

Block 31Amy Van Voorhis

42

Block 31

Allison BlakleyNorthbrook, IL, USA

Sally WebbAberdeen, SD, USA

Beth DeLucoPlantsville, CT, USA

Susan WingCarol Stream, IL, USA

Mary HallBoulder, CO, USA

Barb BenseLong Prairie, MN, USA

Ruth NielsenCoupeville, WA, USA

Beverlee A. LanningRoswell, NM, USA

Harriett PotenzaWestern Springs, IL, USA

Susan ChaseBowdoinham, ME, USA

Kim PopePipersville, PA, USA

Sandra Martinez FiolMiami, FL, USA

Amy Van VoorhisWalnut Creek, CA, USA

Nan LittleSeattle, WA, USA

Diane TunisRockville, MD, USA

Linda PrestonDelanco, NJ, USA

43

Mary GreenMishicot, WI, USA

Sharon Gaffor & Diane JohansenElgin, IL, USA

Ellington, CT PD GroupEllington, CT, USA

Nancy PrestonWest Valley, NY, USA

Annette CorradoPort St. Lucie, FL, USA

Lynn ClementRoyal Oak, MI, USA

Margaret JonesMechanicsville, MD, USA

Marjorie E. AndersonSeattle, WA, USA

Karen NorthropNew York, NY, USA

Ann Lew KirschnerWellington, FL, USA

Barbara AllenClifton Park, NY, USA

Patricia YoungDeland, FL, USA

Block 32

Sharon CopelandAlbuquerque, NM, USA

Brian Grant FoundationPortland, OR, USA

Central IL PD Support GroupEast Peoria, IL, USA

Catherine RodriguezSan Diego, CA, USA

44

Broomfield Support GroupBroomfield, CO, USA

D. Sharon CreeganMorrisville, PA, USA

Tammy McPhersonKittanning, PA, USA

Caroline TannerBerkeley, CA, USA

Terry GuerraSan Jose, CA, USA

Nancy CichyElmhurst, IL, USA

Rhoda E. PillsburyRockford, IL, USA

Linda RuskFolsom, CA, USA

Lillian Lockhart JubiakWest Palm Beach, FL, USA

Northamptonshire Support GroupNorthampton, UNITED KINGDOM

Jill SewardOakdale, MN, USA

Marlene McNewSan Jose, CA, USA

Block 33

Susan FrangelloNew Port Richey, FL, USA

Joanne AbrahamsWhite Plains, NY, USA

Dorothy TannerCamden, TN, USA

Paula EiseleWest Chester, OH, USA

45

46

This photograph of one of my oil paintings and the words adapted

from "Walden" remind me that life has much to offer, despite living

with PD.

My mother died when I was 19; she was only 47. Although she was

proud of my accomplishments at Cornell, she was concerned that

I was working too hard. She suggested that I move to San Francisco

and sell my paintings on the street. She wanted me to be happy;

she wanted me to be free.

I didn't take her advice, but I got her point. I continue to feel her

love and support 33 years later.

PD has been a curse, but also a gift. It forced me to slow down,

and reminds me to make the most of every day — so that when I

come to die, I do not "discover that I had not lived."

“

”

There will always be a close connection between Parkinson’s and

quilting for me. I made one of my first quilts for my Grandpa, who

was just moving in to a nursing home due to advanced Parkinson’s.

I wanted to make something for him that would make him feel more

comfortable and know that he was loved and special. I thought a

quilt would be just the thing.

Since I didn’t have a clue on what to do, I ended up making my

Grandpa more of a quilt sandwich. The quilt was made from one

piece of fabric on the top, a piece of flannel for the back, and just

simply sewn together. The top fabric had these old fashion bathing

beauties on it, which was perfect for my Grandpa. My Grandpa was

tucked in with “his ladies” for every nap for the next two years.

My Grandpa loved “his ladies.”

This square is dedicated to people with Parkinson’s, as well as the

scientists who search for the cure.

For many people living with Parkinson’s, engaging in creative activity

helps to suspend PD symptoms. Although the symptomatic relief is

temporary (usually lasting only during the creative activity), I believe

that researchers will someday be able to replicate that unknown

power to perhaps suspend the symptoms indefinitely. Through

diligent and creative research, I believe there will be an end to PD.

The subtle message in this quilt square is found in the lettering of

the message: “Be creative: Stop the symptoms, find a cure.” There

are three letters in red which are outline-stitched in black thread…

Y O U. The key to creativity is “YOU”; whether you are a patient or

a scientist/researcher, be actively engaged in the creative process

— both to help relieve the symptoms and ultimately to find a cure.

Our journey with PD started 10 years ago, though my John wasn'tdiagnosed until just last year — and then all the questions andsymptoms fell into place and we had something to call it: Parkinson’s disease.

We knew several people who had PD, but had very little knowledgeabout the disease. Now we know more, but as we talk with friendsabout how PD is actually affecting John's lifestyle, we want to communicate more clearly and widely what this disease does to abody. When this opportunity came to me, I thought "Why not?"I've been secretary to my local quilt guild for five years, but in spiteof everyone's attempt to get me to be a “quilter,” I continue to bemostly a “quilt appreciator." I have never designed or made a quiltproject, but in honor of my John, and our desire to increase education and research for combating this disease, here is my quiltsquare. I thought of our 37 married years, and our life here on theCentral Coast of California when I designed my square. Mountains,and Yosemite in particular is a place for personal renewal and peacefor my John, as the ocean is for me, so both had to be included inthis block. The sandy beaches, the fruitful central valley, and the historic foothills are in between.

“

”

“

“

”

Personal S

tatements”

Block 34Marie Louise Hagen Block 35

Linda Hanafee

Block 35Sharon Stone

Block 36Harriet Clark

Block 34

Sandee NisenfeldChurchville, PA, USA

Jared BoNatick, MA, USA

Claire McCannBradley, OK, USA

Carol GoodwinMissouri City, TX, USA

Patricia D. MurrayTrumbull, CT, USA

Bonnie MillerSwain, NY, USA

Diane CrandellGarfield, AR, USA

Genevieve YuenNew York, NY, USA

Marie Louise HagenWashington, DC, USA

Joann KeyesMaple City, MI, USA

Hendricks County Senior ServicesClayton, IN, USA

Lonnie MemmerFremont, OH, USA

Betty PercyPalm Beach Gardens, FL, USA

Richard H. CollinsWestfield, WI, USA

Joan EmersonBiddeford, ME, USA

Helen Alison SwarbrickToowoomba, Queensland, AUSTRALIA

47

Kathryn PaigeAllendale, NJ, USA

Virginia SchwingeWest Caldwell, NJ, USA

Donna PeacockMount Vernon, IL, USA

Sandra HartnettWoodstock, IL, USA

Lynda ConklinVallejo, CA, USA

Carol BlueSpring Hill, FL, USA

Colleen RyanVanceburg, KY, USA

Jeannette PuckettHudson, FL, USA

Janice RamseyTaylor, MI, USA

Jean NeapolitanHatboro, PA, USA

Janice RamseyTaylor, MI, USA

Linda HanafeeBerkeley, CA, USA

Block 35

Linda MasonMcMinnville, OR, USA

Mary Lou PalmerWaverly, NY, USA

Sharon StoneMorristown, NJ, USA

Brenda ThomasCrofton, MD, USA

48

Amy ScottBrooklyn, NY ,USA

Michigan Parkinson FoundationScottville, MI ,USA

Ann Marie KonopkaKendall Park, NJ, USA

Harriet ClarkSan Juan Bautista, CA, USA

Trudy SchneiderAurora, CO ,USA

Margit Pinter Metuchen, NJ, USA

Melinda TilleyOak Ridge, TN, USA

Evie RuiterPipestone, MN, USA

Debra Lou YoungNew Albany, IN, USA

Barbara PischingSuisun City, CA, USA

Ellen DewsburySt. Augustine, FL, USA

MaryLou WalesAbington, MA, USA

Block 36

Jean BarfootFultondale, AL ,USA

Marguerite PychaChicago, IL ,USA

Cindy FoxWest Chester, PA ,USA

Jill NauCharles Town, WV ,USA

49

50

As a person with Parkinson’s (PWP), I felt a strong desire to

participate in the quilt project but had no idea as to what design

I could make. Fortunately, my friend, who is also a PWP, listened to

me and said to start off the design with “penguins” because we

sometimes walk like them! I liked this and immediately envisioned

two penguins standing on ice and snow in the Arctic and looking

skyward at the Northern Lights and seeing “Hope.” These last few

months, I have had difficulty with my PD meds and have tremors

most of the time, making it quite difficult to sew. My sister stepped

in and did most of the sewing and we had a great time.

“

”

My quilt panel displays my beaded jewelry pieces and some

crocheted items that I have made over the course of the past year.

I have always enjoyed crafting of all sorts, but I now find that keeping

busy by making these items helps with my symptoms of PD. I also

find that I have a sense of calm when creating.

This also gives me a sense of individuality. I still am Sherry, and not

“Sherry that has PD.”

I have now started to make my own beads with clay. I find this, along

with the beaded jewelry and crocheted items, to be very therapeutic.

Parkinson’s slowly and painstakingly crept in and stole my father, our

family’s golden patriarch. Technically my father died from complica-

tions of a stroke. I can’t help thinking that a blood clot had developed

from all the bruising and black and blues he had sustained from his

countless falls from his unpredictable and undependable body.

My Dad was a vibrant, hard working, loving family man. He was the

“American Dream”! One of eight children of Italian immigrants, a first

generation American, a World War II veteran, P.O.W., a man who didn’t

have a high school degree. But he managed to move his family out of

the city to the suburbs, to a house with a backyard and pool. He built

on weekends while others were resting for the next week. He worked

hard to support his family, most of his life working two jobs.

It was heartbreaking to see this strong man develop a shuffling,

stooped walk, see his hands tremble and shake as he ate, lose his

booming rich voice and see the onset of dementia and confusion.

This quilt is dedicated to this amazing man. It was sponsored by his

wife, children, and their spouses, grandchildren and great grandchildren.

It was designed, stitched and sewn together with love, respect and

adoration. Enjoy our father’s story and the retelling of his life’s journey.

My husband was first diagnosed with Parkinson’s about 10 yearsago when he was 55. Major life changes were in order. His way oflooking at life did not change, however. While he is no longer ableto play his beloved guitar, instead he has become an enthusiastic fan and collector of music. Though he is no longerable to enjoy the dynamic of playing basketball with our two sons,they now gather in our living room and enthusiastically cheer ourlocal team — the Golden State Warriors. Yes, Parkinson’s can devastate and bring sadness to a family. My husband chose totransfer his passion to other aspects of his life. His chief creativeoutlet is photography. In particular, California’s rugged coastlinekeeps beckoning him back. Then there is a photo of me in a miniskirt — but that’s another quilt, and another story for another time.

“

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Personal S

tatements

”Block 37Cheryl Byrne

Block 39Sherry Slutz

Block 38Charles Lucania Memorial Quilt

Block 37Linda Siquig

Block 37

Catherine ReiterAltoona, WI, USA

Patricia AlcaroRumson, NJ, USA

Betty HoustonAustin, AR, USA

Margaret Durazo Yuma, AZ, USA

Susan KanessFlourtown, PA, USA

Lois GwinnButternut, WI, USA

Janet ShinkleLiberty, MO, USA

Julia HuestisLowell, MA, USA

Ana CaneiraNewark, NJ, USA

Linda SiquigSan Jose, CA, USA

Jackie KreutzerColumbus, OH, USA

Rachael SchneiderEast Brunswick, NJ, USA

Cynthia CravenAsheboro, NC, USA

Cheryl ByrneAuburn, CA, USA

Audrey WinthropSunset Beach, CA, USA

Virginia SchwingeWest Caldwell, NJ, USA

51

Vietri FamilyLondon, UNITED KINGDOM

Clinton FamilyApex, NC, USA

Tragakis FamilyFort Gordon, GA, USA

Jackie & Joe BlantonAlexandria, VA, USA

Lina LucaniaMelville, NY, USA

Phelan FamilyAlto Loma, CA, USA

Vietri FamilyLondon, UNITED KINGDOM

Jackie & Joe BlantonAlexandria, VA, USA

Laura & Ron DePaceNewburgh, NY, USA

Mark & Lisa DePaceNewburgh, NY, USA

Linda VietriDelray Beach, FL, USA

Phelan FamilyAlto Loma, CA, USA

Block 38

Charles Lu

cania M

emorial Q

uilt

Clinton FamilyApex, NC, USA

Lina LucaniaMelville, NY, USA

Tragakis FamilyFort Gordon, GA, USA

Linda VietriDelray Beach, FL, USA

52

Jack and Carol PallyStaten Island, NY, USA

Marlene GatesyGaylord, MI, USA


Karen VaughanBrooklyn, NY, USA

Andree JannetteWest Chester, PA, USA


Charlie and Jean CondonGrundy, VA, USA

Heidi BissellMadison, WI, USA

Sherry SlutzPhiladelphia, PA, USA

Vicki LoarGlendale, AZ, USA

Michael MostranskyWantagh, NY, USA

Elizabeth FogartyErie, PA, USA

Block 39


Cislyn SmithMadison, WI, USA

Betty HigginsPresque Isle, ME, USA


53


Linda BellSupply, NC, USA

Terri Vanden Bosch & Karen VisRock Valley, IA, USA

Larry Schneider, Jr.Gibbsboro, NJ, USA


Paul J. SchroderDenver, CO, USA

Joyce LevineJerusalem, ISRAEL

Lorna WoorCambridge, UNITED KINGDOM

Alison Patricia BrowningLlandudno Junction, UNITED KINGDOM

Barbara CissneGarland, TX, USA

April CurfmanGresham, OR, USA

Katherine CastleGainesville, FL, USA

Block 40

Kathryn Vaandrager & Debra VanthulSheldon, IA, USA

Congrex UK LtdGlasgow, Scotland, UNITED KINGDOM


Norman Dean InskeepGrand Junction, CO, USA

54

Ancret ShiptonNar Nar Goon, VIC, AUSTRALIA


William RiceLimerick, IRELAND

Rita ThomsonInnerleithen, SCOTLAND

Hayley Carpenter for PANWashington, DC, USA

Thelma BalbesCarlsbad, CA, USA


Jackie Hunt-ChristensenMinneapolis, MN, USA

Jane Asher for Parkinson’s UKLondon, UNITED KINGDOM

Gert McMullinAtlanta, GA, USA

George HanksWesterlo, BELGIUM

Kathleen BloseHartford, UNITED KINGDOM

Block 41


Lynne StefanettiParadise, CA, USA

Stephanie CassellHartlepool, UNITED KINGDOM

Nan LittleSeattle, WA, USA

55

56

Canterbury Parkinson’sSupport Group

Block 24

Ruth Pearce | Block 30 HeartSpringsDenise Morris

Block 22

Curt Van Tassell with the panel of Jo Ann Van Kessel

Block 19

Betty Houston | Block 37

Gary Crutchfield | Block 19 Elena Tuero | Block 9 Diane McGraw | Block 24 Lois Cole | Block 5 Jean Graffius & Laura Kamian with thepanel of Beth Murphy

Block 19

People Behind the Parkinson’s Quilt

57

Michael MostranskyBlock 39

Jean Graffius | Block 19 Rita D'Alonzo | Block 10 Cathleen Palmini | Block 29 The Stewart FamilyBlock 19

Brenda LockhartColombo and LillianLockhart Jubiak

Block 33

Ellington, CT PD GroupBlock 32

Helen Alison SwarbrickBlock 34

Niska | Block 10 Tashi Shaikh, Asima Haroon, and Haroon Basheer

Block 12

The true power of the Parkinson’s Quilt Project comes from the more than 600 individuals who have created

the pieces. When the quilt is displayed, it will radiate the contributions of those around the world touched by

Parkinson’s. It will also remind the world that we need increased awareness and funds to find a cure.

Robin ElliottExecutive Director, Parkinson’s Disease Foundation

“”

58

AAbrahams, Joanne, 45Ahmed Jussilainen, Lea, 28Alcaro, Patricia, 51Allan, Susan, 6, 9Allen, Barbara, 44Allen, Sheryl, 9Alvarez, Alejandro, 36Alvey, Barbara, 27Ampudia, Mona, 9Andersen, Mindy Kirsten, 11Anderson, Marjorie E., 44Anwer, Salika, 17Arehart, Katherine, 11Armstrong, Jeanne, 24Armstrong, Linda, 13Asher, Jane, 55Atkin, Anne, 5Avolio, Donna, 40

BBackus, Barbara, 12Baker, Michele Lee, 21Baker, Pat, 28Balbes, Thelma, 55Ballard, Lois, 18, 19Banks, Pat, 29Barfoot, Jean, 49Barshow, Lora, 19Barzely, Jacqueline Michal, 21Basheer, Haroon, 55Basheer, Raniyah, 17Basheer, Rayyan, 17Bass, Esther, 9Beauharnois, Mary Lou, 19Bell, Linda, 54Bennett, Lynn, 23Bense, Barb, 43Berkeley, Patricia, 41Berrien County Support Group, 25Bersan, Carol, 8

Bert Swan's Siblings, 26, 29Bethany Convent, 12Bierle, Arthur, 24Bierle, Patricia, 24Big Mama's Legacy, 34, 35Bismarck Parkinson's Support Group, 4Bissell, Heidi, 53Bissell, Patricia, 4Blake, Yvonne, 11Blakeney, Nicky, 25Blakley, Allison, 43Blann, Carol, 31Blanton, Jackie, 52Blanton, Joe, 52Blose, Kathleen, 55Blue, Carol, 48Bo, Jared, 47Booth, Janet, 19Booth, Mary, 9Bopp, Sheila, 15Boyd, Sheryl, 25Brady, Colleen, 25Brandon, Georgene, 36Breedlove, Rebecca, 11Brian Grant Foundation, 44Bridges, Mary, 28Brigode, Denise, 28Broaddus, Kathleen, 12Brodsky, Arlene, 23Broomfield Support Group, 45Broussard, Brenda, 29Brown, Clarita, 16Brown, Laurie, 24Brown, Patsy, 41Browning, Alison Patricia, 54Brumer, Rachel, 12Bumala, Marian, 38, 40Burns, Jean, 18, 20Bursaw, Andrea, 31Byrne, Cheryl, 50, 51

CCahalane, Donna, 23Calvin, Aubrey, 16Campion, Diane M., 21Caneira, Ana, 51Canterbury Parkinson's Support Group, 33, 56Carpenter, Hayley, 55Cassell, Stephanie, 55Cassidy, Carol, 8Castle, Katherine, 54Catton, Janice, 8Central IL PD Support Group, 44Charles Lucania Memorial Quilt, 50, 52Chase, Susan, 43Cho, Duk Kyung, 3Choae, Jin Kyoung, 3Christner, Pamela, 41Churchman, Mike, 16Cichy, Nancy, 45Cissne, Barbara, 54 Clark, Gracia, 13Clark, Harriet, 46, 49Claycomb, Maralyn, 12Clement, Lynn, 44Cline, Shirley, 15Clinton Family, 52Club CREATE- Struthers PD Center, 7, 27Colalillo, Louise, 8Cole, Lois, 8, 56Cole, Patricia, 8Collins, Cathy, 23Collins, Michael, 23Collins, Richard H., 47Colombo, Brenda Lockhart, 57Columbia PD Support Group, 24Condon, Charlie, 53Condon, Jean, 53Congrex UK Ltd, 54

Conklin, Lynda, 48Connolly, Betty, 33Copeland, Sharon, 42, 44Corrado, Annette, 44Costi, Sandra, 35Craine, Cindy, 30, 33Crandell, Diane, 47Craven, Cynthia, 7, 51Crawford, Lis, 36Creegan, D. Sharon, 45Crowningshield, Carol, 19Crutchfield, Gary, 27, 56Cure Parkinson's Trust, The, 33Curfman, April, 54Curtis, Robert, 16Cushman, Mildred, 15

DD'Alonzo, Rita, 14, 15, 57D'Anieri, June, 11Danish PD Association, 21Davis Phinney Foundation, 24De Leon, Maria L., M.D., 13DeGraaf, Karen, 13Dehn, Pauline, 41DeLeon, Paquita, 16Dell, Karen, 15Delsignore, Kate, 19DeLuco, Beth, 43Demint, Sharon, 28DePace, Mark, 52DePace, Laura, 52DePace, Lisa, 52DePace, Ron, 52Dewsbury, Ellen, 49Dick, Sandi, 35Dietrich, Susan, 41Diez, Kathleen, 10, 13Dill, Barbara, 12Dolan, Marion, 21Doughty, Gayla, 10, 12

59

Driscoll, Michael, 16Durazo, Margaret, 51Durkee, Diane, 24

EEager, Heather, 2, 3Edison, Cindy, 13Eisele, Paula, 45Elden, Max, 36Eleanor Flowers' Children, 13Ellington, CT PD Group, 44, 57Ellis, Donna, 29Emerson, Joan, 47Engel, Joan, 24Esplanade Senior Center, The, 29

FFarley, Becky, 20Farley, Shirley, 20Feinberg, Barbara, 3Feinberg, Linda, 3Fiol, Sandra Martinez, 43Fisher, Joyce, 25Flagstaff Support Group, 20Fogarty, Elizabeth, 53Foley, Lisa, 3Ford, Barbara, 25Fox, Cindy, 49Frair, Cheryl, 31Frangello, Susan, 45Franz, Warren, 16Freitag, Ellis, 16Freitag, Susan, 36Fritz, Kathleen Hyland, 23Fry, Carol, 16

GGaffor, Sharon, 44Gagnier, Mary, 19Garcia-Grandon, Patty, 40Garmus, Diana, 28

Gatesy, Greg, 4Gatesy, Marlene, 53Gemmill, Niki, 19Gergerich, Erika, 34, 37Gerry, Helen, 6, 9Glass, Wendy, 20GlaxoSmithKline Staff, 17Goebel, Mary, 41Goldman, Suzanne, 12Goodwin, Carol, 47Graffius, Jean, 26, 27, 56, 57Gray, Jane, 3Green, Mary, 44Greenfield, Laurence, 23Greenlee, Nancy, 28Guerra, Terry, 45Gwinn, Lois, 51

HHabenstreit, Linda, 12Hadden, Jamey, 28Hagen, Marie Louise, 14, 15, 46, 47Hall, Mary, 43Halpern, Carol, 25Hamill, Donna, 28Hamilton, Jean, 13Hamlin, Susan, 40Hampton, Joyce, 31Hanafee, Linda, 46, 48Hanks, George, 55Haroon, Asima, 57Harper, Paige, 35Harris, Dina, 29Harrison, Paris, 11Hartley, Joyce, 29Hartnett, Sandra, 48Hashmi, Talat, 17Hatke, Carole, 12Hatke, Jen, 12Healy, Patricia, 12HeartSprings, 31, 56

Helfen, Roslyn, 41Hendelman, Judith, 15Hendricks County Senior Services, 47Heredia, Emilia, 36Herman, Elly, 22, 25Hershfield, Harry, 31Hickerson, Deborah, 31Higgins, Betty, 53Hilbrecht, Sharron, 33Hjalmarson, Mary, 12, 35Ho, Cynthia, 8Hogue, Ellen, 41Holman, William, 24Holveck, Leanne, 23Houston Area Parkinson's Society (HAPS), 36Houston, Betty, 51, 56Huestis, Julia, 23, 51Huffman, Patricia, 11Huseman, Katherine, 8Huizinga, Mary, 3Hull, Eleanore, 8Hunt-Christensen, Jackie, 55

IInskeep, Norman Dean, 54

JJackson, Judith, 24Jacobowitz, Michelle, 11, 23Jacobs, Lynette, 4Jannette, Andree, 53Jecmen, Judi, 3Jenkins, Kay Mixson, 7Jensen, Sarah, 32Johansen, Diane, 44Jones, Linda, 28Jones, Margaret, 44Jones, Roscoe, 36Jubiak, Lillian Lockhart, 45, 57

KKamian, Laura, 56Kammann, Linda, 25Kane, M.F., 24Kaness, Susan, 51Kawabe, Aiko, 7Keene, Dottie, 23Keene, Jen, 23 Keene, Lauren, 23Kern, Christie, 28Kersey, Shari Price, 31Keyes, Joann, 47Kha, Sharon, 20Kidd, Mary, 33King, Evelyn, 26, 28Kirschner, Ann Lew, 44Konopka, Ann Marie, 49Koroly, Virginia, 35Kozlowski, Yvonne, 25Kreutzer, Jackie, 51Krishnan, Nirmala, 28Kuklis, Louise, 27

LLadies of the Lake Quilters, 19LaGana, Christine, 18, 21Laipply, Sandy, 25Lanning, Beverlee A., 43Lary, Brenda, 16Lau, Louise, 32Lauck, Meg, 16Lavender, Beverly, 2, 5Laverty, Lenore, 3Layman, Megan, 25Lazaridis, Wilma, 29Lees, Karen, 21Lees, Meryl, 21LeFevre, Kristi, 41Levine, Joyce, 54Levine, Wendi, 41Lichtig, Barbara, 19

60

Licko, Marian, 25Lish, Marlene, 24Little, Nan, 43, 55Loar, Vicki, 53Longacher, Lisa, 8Lopez, Victor, 40LSVT Global, 20Lucania, Lina, 52Lukens, Pat, 10, 11Lule, Peter Monday, 40

MMacke, Linda, 11Magic, Margaret, 15Mahan, Marilyn, 31Mahan-Rowe, Holly, 31Majeske, Cheryl, 4Majidulla, Sleem, 14, 17Mangiapane, Sue, 23, 53Marino, Judy, 37Marquet, Jennifer, 33Marte, Christine, 27Mason, Linda, 48Massey, Annelies, 4McCann, Claire, 47McGraw, Diane, 33, 56McMullin, Gert, 55McMurtry, Kathleen, 6, 9McNeil, Virginia, 40McNew, Marlene, 42, 45McPherson, Tammy, 45Meehan, Patty, 40Meenen, Carol, 32Mellus-Whiting, Stacey, 25Memmer, Lonnie, 47Michigan Parkinson Foundation, 49Miller, Bonnie, 47Milton, Wanda, 4Moll, Marilyn, 23Monahan, Dianne, 30Moore, Carol, 27

Morris, Denise, 31, 56Morris, Patricia, 9Moskowitz, Issy, 27Moss-Racusin, Nancy, Ph.D., 30, 32Mostransky, Michael, 53, 57Moulton, Pamela, 5Movers & Shakers (Inc.), 33Muller, Ans, 3Murphy, Beth, 26, 27, 56Murphy, Debbie, 27Murphy, Judy, 38, 40Murray, Patricia D., 47Murray, Susan, 3

NNacogdoches PD Support Group, 22, 24Nau, Jill, 49Neapolitan, Jean, 48Nielsen, Ruth, 43Nisenfeld, Sandee, 47Niska, 15, 57NJ Chapter APDA, 25Northamptonshire Support Group, 45Northrop, Karen, 44Novichihin, Irene, 12

OOber, Martha, 20O'Mara, Madeleine, 28Oxford PD Support Group, 23

PPage, Susan, 15Paige, Kathryn, 48Pally, Carol, 53Pally, Jack, 53Palmer, Mary Lou, 25, 48Palmini, Cathleen, 40, 57Paolini, Alison, 4

Parkies Jammin, 7Parkinson’s Action Network, 55Parkinson's Disease Foundation, 5Parkinson's New Zealand, 30, 32Parkinson's Quilt Project Committee, 20Parkinson’s UK, 55Parkinson’s UK-Newcastle Branch, 4Patlogan, Ila, 11Patnoe, Jerry, 37Patnoe, Sharon, 34, 37Pauesick, Chyleen, 23PCC Neurowriters, 8PD Fdn. of the Heartland, 27PDPlan4Life, 20Peacock, Donna, 48Pearce, Ruth, 38, 41, 56Percy, Betty, 47Petrites, Anna, 16Petropoulos, Helga, 19Peyton, Rebecca, 13Pfeiffer, Gail, 24Phelan Family, 52Pigg, Linda, 28Pigtails, Pirate Ships & Parkinson's, 33Pillsbury, Rhoda, 45Pinter, Margit, 49Pisching, Barbara, 49Pizarro, Miriam, 7, 13Pope, Kim, 43Portuguese PD Association, 39Potenza, Harriett, 43Poynter, Gail, 9Prescott, Terrie, 41Preston, Linda, 43Preston, Nancy, 44Pribyl, Anne, 36Pryor, Charlene, 40Puckett, Jeannette, 48

Pycha, Marguerite, 27, 49

QQureshi, Samina, 17

RRaes, Yvonne, 33Rajan, Ambika, 31Ramos, Loretta, 29Ramsey, Janice, 48Rancourt, Georgia, 12Reardon-Noblet, Kathleen, 41Reid, Deborah, 35Reiter, Catherine, 22, 23, 51Renfrow, Judie, 9Rhea, Christine, 11Rhoden, Dorothy, 35Rice, William, 55Roberts, Ann, 37Robson, Lynda, 13Rock Steady Boxing, 31Rodeo Mom, 40Rodman, Myrna, 16Rodman, Stan, 36Rodriguez, Catherine, 44Rodriquenz, Nancy, 9Rubin, Alan, 2, 4Ruiter, Evie, 49Runyan, Rosemary, 27Rusk, Linda, 45Russell, John, 19Russell, Judy, 19Rutledge, Melinda, 27Ryan, Colleen, 48Rykken, Cheryl, 11

SSaari, Davanna, 7Samad, Ayesha, 17Sampsell, Karen, 11Sanger, Laura, 13

61

Sanner, Audrey Gray, 7, 9Sawyer, Susan, 35Schneider Jr., Larry, 2, 3, 7, 54Schneider, Lois, 3Schneider, Rachael, 51Schneider, Trudy, 49Schroder, Paul J., 54Schwartz, Edith, 4Schwinge, Virginia, 48, 51Scott, Amy, 49Scudera, Lisa, 35Sechter, Judi, 12Seward, Jill, 42, 45Shade, Jeannine, 24Shady Hill School Grade 2E, 30, 32Shaikh, Tashi, 17, 57Shareef, Shahla, 17Sharrer, Mary Ann, 28Shaternik, Lydia, 23Sherrick, Patricia, 5, 8Shinkle, Janet, 51Shipton, Ancret, 55Shoaib, Shahzadi, 14, 17Sieck, Kay, 28Simpson, Susan, 29Siquig, Linda, 50, 51Slutz, Sherry, 50, 53Smith, Cislyn, 53Smith, Eric, 4Smith, Janice, 32Smith, Karen, 24Smith, Pamela, 9Smith, Rachel, 31Smith, Susan W., 35Smyser, Diana, 5Snyder, Charlene, 5Snyder, Patricia, 28Solari-Ruscoe, Carol, 19Spencer, Linda, 9Standish, Sharon, 3Stark, Sharon, 9

Stefanetti, Lynne, 10, 11, 55Steichen, Joanna, 5, 6, 7Stein, Martha, 36Stein, Robert, 36Steinmann, Debra, 41Stephens, Bernadette, 29Stewart Family, The, 27, 57Stocks, Paula, 31Stone, Sharon, 7, 46, 48Sulzberger, Elaine, 40, 55Surmeier, Rebecca, 32Swarbrick, Helen Alison, 47, 57Swisk, Carol, 32Szczepanski, Joan, 38, 41

TTanner, Caroline, 45Tanner, Dorothy, 45Team Parkinson, 4Teem, Penny, 21Thomas, Brenda, 48Thomson, Rita 55Tilley, Melinda, 49Titt, Peggy, 34, 35Tomich, Michael, 31Tomich, Ward, 31Tragakis Family, 52Traverse, Elizabeth Anne, 12Tuero, Elena, 7, 13, 56Tunis, Diane, 43Turner, Caralyn, 9Tyler, Erin, 35

UUrbina de Breen, Marlene, 33Urquhart, Heather, 15

VVaandrager, Kathryn, 54Valley Golden Living Center, 13Van Kessel, Jo Ann, 27, 56

Van Lenten, Marilyn, 24Van Tassell, Curt, 54Van Voorhis, Amy, 42, 43Vanden Bosch, Terri, 54Vanthul, Debra, 54Vaughan, Karen, 53Victor, Charlene, 16Vietri Family, 52Vietri, Linda, 52Vis, Karen, 54Vitcenda Cade, Kim, 4, 7, 53, 54, 55Votaw, Melanie, 13

WWagner, Barbara, 19Wales, MaryLou, 49Walker, Tammy, 33Warford, Pamela, 35Weaver, Carolyn, 32Webb, Linda, 7, 18, 20Webb, Sally, 43Weimer, Carolyn, 15Wells, Jennifer, 28Weyand, Mary, 16Wheeler, Margaret, 41White, Lorna, 21Wiener, Marcia, 20Willocks, Peggy, 7, 35, 53, 54Wilson, Sheryl, 11Wing, Susan, 43Winter, Sherry, 35Winters, Angela, 31Winthrop, Audrey, 22, 24, 51Wisconsin APDA Caregivers, 32Wisconsin Chapter – APDA, 32Wiseman, Janice, 13Wittig, Linda, 15Wong, Dorothy, 16Wood, Nancy, 7Wood, Patricia, 19Woodard, Pamela, 33

Woods, Gillian, 37Woods, Sandy, 37Woor, Lorna, 54

YYarnold, Patricia, 5Young, Debra Lou, 49Young, Patricia, 44Yuen, Genevieve, 47

ZZander, Sandra, 8Zeba, Nilofar-Nighat, 17

In 2011, the Parkinson’s Disease Foundation (PDF) will

make sections of the Parkinson’s Quilt Project available

for rent to communities all over the world. Displaying

the Quilt offers a unique opportunity to raise awareness

of Parkinson’s and educate others about the disease. Any

individual, organization or company may apply to rent a

section of the Quilt. Specific panels can be requested.

Rental fees will vary. Most of the proceeds raised by

these fees will support the maintenance of the project;

any remaining funds will support PDF’s research

efforts to explore the therapeutic value of creativity

in Parkinson’s.

For more information or to apply to rent sections of

the Parkinson’s Quilt, visit www.pdf.org/en/quilt or

email [email protected].

Bring The Parkinson’s Quilt to Your Community

© 2010 Parkinson’s Disease Foundation

Parkinson’s Disease Foundation1359 Broadway, Suite 1509, New York, NY 10018 (212) 923-4700 / (800) 457-6676 | www.pdf.org

Logitech Nikon

Samsonite LuggageToshiba

Uncle Bob’s Self Storage

Friends of the Parkinson’s Quilt Project Biotechnology Industry Organization

Broadridge Financial SolutionsFocus On A Cure Foundation

Frances Grandlund Mary Duke Biddle Foundation

Schering Plough Sue Smith

Thimble SponsorAnonymous

Gifts in KindBenefactorsConrad W. De Fiebre Thomas P. Racobaldo

Ronald RashidToshiba

Winters Brothers Recycling

American Airlines Avery Crayola FedEx

Hewlett Packard- HP

Fabric DonorsA. Schneller Sons, Inc.

ALB International FabricsHS CompanyPierre Frey

PDF would like to thank The Names Project Foundation - AIDS Memorial Quilt for their time and the advisory role they played in helping to launch the Parkinson’s Quilt Project.

PDF Quilt Project 2011

Documents

parkinsons project

parkinsons quilt project

support of people

bythe parkinsons community

futures of people

individuals people

personalized quilt panel

quilt planning committeejean