RESOURCES FOR IPF CAREGIVERS Your guide to helpful online resources, books on caregiving, and mobile applications (apps). AMERICAN ASSOCIATION OF RETIRED PERSONS (AARP) Text messaging programs, tips, cost calculators, webinars, caregiving communities, and more. aarp.org/home-family/caregiving AMERICAN LUNG ASSOCIATION Pulmonary fibrosis support group and discussion community. inspire.com/groups/caring-for- pulmonary-fibrosis BREATHLESSIPF Information about IPF, including vital statistics, caregiving tips, and helpful tools and resources. breathlessipf.com CARING BRIDGE A personal, protected newsfeed designed to help you update others who care about your loved one’s condition. caringbridge.org LOTSA HELPING HANDS Online community you build to help friends and family get involved and help with tasks, errands, or other things your loved one needs. lotsahelpinghands.com LUNGS AND YOU TM Information, support, and resources to help with the challenges of caring for someone with IPF. lungsandyou.com PULMONARY FIBROSIS FOUNDATION (PFF) Find local support groups, webinars, community resources, and educational materials. pulmonaryfibrosis.org; 1-888-733-6741 PULMONARY FIBROSIS M.D. Get a better understanding of the disease, its symptoms, treatments, and implications for daily life with information provided by healthcare professionals specializing in PF. pulmonaryfibrosismd.com The Caregiver’s Survival Handbook BY ALEXIS ABRAMSON, PHD A supportive, reassuring, and practical guide to getting help, fostering independence, and balancing the demands on your own time and resources. No Saints Around Here: A Caregiver’s Days BY SUSAN ALLEN TOTH An intimate account of the realities of meeting the challenges of caring for a loved one. The Caregiving Wife’s Handbook BY DIANA DENHOLM Profiles of 6 women in caregiving situations offer survival tips and personal anecdotes. The Comfort of Home: A Complete Guide for Caregivers BY MARIA M. MEYER AND PAULA DERR, RN Provides help with every aspect of home care, including tips on self-care, avoiding caregiver burnout, and a list of resources. Elder Care Assistance: A Practical Guide Covering Health, Financial and Legal Considerations BY SANDY MYERSON A concise, straightforward guide to caregiving for aging parents, written in a systematic, logical format. CAREGIVING Ready or Not BY CHARLES PUCHTA Clear, unbiased information and insight to help caregivers and care receivers make informed decisions. They’re Your Parents Too BY FRANCINE RUSSO A psychological and practical roadmap through caregiving. GUIDES TO CAREGIVING ONLINE SUPPORT AND COMMUNITY
Welcome message from author
This document is posted to help you gain knowledge. Please leave a comment to let me know what you think about it! Share it to your friends and learn new things together.
Transcript
R E S O U R C E S F O R I P F C A R E G I V E R SYour guide to helpful online resources, books on caregiving, and mobile applications (apps).
AMERICAN ASSOCIATION OF RETIRED PERSONS (AARP)Text messaging programs, tips, cost calculators, webinars, caregiving communities, and more. aarp.org/home-family/caregiving
AMERICAN LUNG ASSOCIATIONPulmonary fibrosis support group and discussion community. inspire.com/groups/caring-for-pulmonary-fibrosis
BREATHLESSIPFInformation about IPF, including vital statistics, caregiving tips, and helpful tools and resources. breathlessipf.com
CARING BRIDGEA personal, protected newsfeed designed to help you update others who care about your loved one’s condition. caringbridge.org
LOTSA HELPING HANDSOnline community you build to help friends and family get involved and help with tasks, errands, or other things your loved one needs. lotsahelpinghands.com
LUNGS AND YOUTM
Information, support, and resources to help with the challenges of caring for someone with IPF. lungsandyou.com
PULMONARY FIBROSIS FOUNDATION (PFF)Find local support groups, webinars, community resources, and educational materials. pulmonaryfibrosis.org; 1-888-733-6741
PULMONARY FIBROSIS M.D.Get a better understanding of the disease, its symptoms, treatments, and implications for daily life with information provided by healthcare professionals specializing in PF. pulmonaryfibrosismd.com
The Caregiver’s Survival Handbook BY ALEXIS ABRAMSON, PHDA supportive, reassuring, and practical guide to getting help, fostering independence, and balancing the demands on your own time and resources.
No Saints Around Here: A Caregiver’s Days BY SUSAN ALLEN TOTHAn intimate account of the realities of meeting the challenges of caring for a loved one.
The Caregiving Wife’s Handbook BY DIANA DENHOLMProfiles of 6 women in caregiving situations offer survival tips and personal anecdotes.
The Comfort of Home: A Complete Guide for Caregivers BY MARIA M. MEYER AND PAULA DERR, RNProvides help with every aspect of home care, including tips on self-care, avoiding caregiver burnout, and a list of resources.
Elder Care Assistance: A Practical Guide Covering Health, Financial and Legal Considerations BY SANDY MYERSONA concise, straightforward guide to caregiving for aging parents, written in a systematic, logical format.
CAREGIVING Ready or Not BY CHARLES PUCHTAClear, unbiased information and insight to help caregivers and care receivers make informed decisions.
They’re Your Parents Too BY FRANCINE RUSSOA psychological and practical roadmap through caregiving.
GUIDES TO CAREGIVING
ONLINE SUPPORT AND COMMUNITY
Idiopathic pulmonary fibrosis
Copyright ©2016, Boehringer Ingelheim Pharmaceuticals, Inc. All rights reserved. (10/16) PC-00172
CAREZONE A care profile for logging information for the person receiving care. It includes a task list and journal, which can be shared with family/friend helpers, and medication tracking and file sharing services. Free for iPhone, iPad, and Android; carezone.com
CARINGBRIDGE Information-sharing app that also holds good thoughts, encouragement, and photos as well as medical/caregiving updates. Free for iPhone, iPad, and Android
COZI Manage the family schedule, organize shopping/to-do lists, plan meals, and set reminders. Allows users to assign tasks to others, send reminders, and text/e-mail to-do lists or weekly agendas. Free for iPhone, Android, Blackberry, Windows 8.1
DRAGON DICTATIONTranslate your spoken words into text and skip the keyboard. Free for iPhone, iPad, and Android
FINOVERA
Keep track of monthly bills and bank accounts with easy access to bills and statements. Includes payment reminders and bill retrieval from company Web sites. Free for iPhone and Android
LOTSA HELPING HANDSCreates a community of care around your loved one by allowing family, friends, and care aides to manage everything from sitters, errands, and appointments to family gatherings on an interactive calendar. Free for iPhone, iPad, and Web
MEDISAFESecurely keep track of multiple medications, set reminders, and create reports about how well your loved one sticks to his/her regimen. Free for iPhone and Android
SKYPE Talk face-to-face with family and friends even when you can’t get together in person. Also provides voice-over-internet and instant messaging free or for low cost. Free for iPhone, iPad, and Android
Visit BreathlessIPF.com today to learn about IPF.
R E S O U R C E S F O R I P F C A R E G I V E R SYour guide to helpful online resources, books on caregiving, and mobile applications (apps).
HELPFUL APPLICATIONS (APPS) FOR SAVING TIME AND EFFORT
Related Documents
