1 North West Midlands Cystic Fibrosis Centre There have been a number of staff changes at Royal Stoke over the last few months with the Band 6 Physiotherapists rotating and Adult Support Nurses have been in place since Neil and Keely have left. You have all been very busy raising money for your local hospitals as well as the staff getting involved with marathons and 5K Runs, these donations will help patients with Cystic Fibrosis to improve the service and environment in the hospital. You will also be pleased to know that patients with CF are eligible to free Wifi when they visit Royal Stoke and don’t forget if you or your child is an inpatient for 2 weeks or more you can apply for free car parking. Also there is a website which is updated on a monthly basis with all the latest Centre updates, recipes, fundraising, team news and much more! If you would like to become involved in the Website group, we do have a teleconference facility to link into the meetings. All you need is a phone and a PC! Keep checking back to see what is happening in your Centre! http://northwestmidlandscfcentre.btck.nhs.uk If you would like to contribute to the next edition, please contact Erin Hodgetts, Cystic Fibrosis Coordinator on telephone 01782 675105 or email [email protected]. Spring/Summer 2015 Page: Page: 2. - Your Team News 7. - Kirsty Lawton Trust Fund - University Academy Kidsgrove - Christmas Fundraiser 3. - EastEnders Storyline - Holidays - European CF Conference ‘Living with CF’ Film 8. - Stafford Half Marathon - Forsbroook Primary School - Easter Raffle 4. - Parents Evenings - Transition and University - Your Inpatient Stay - Free! 9. - Bloxwich Golf Club - Masonic Society - More Thank Yous! - How You Have Helped 5. - CF Training Day - Fantastic Achievements! 10- 12. -Fundraising Events - Cash Stores 6. - Abbots Bromley Football Club - Tough Mudder - Wear with Pride…CF Ribbon Sale 13. - Contact Information
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1
North West Midlands Cystic Fibrosis Centre
There have been a number of staff changes at Royal Stoke over the last few months with the
Band 6 Physiotherapists rotating and Adult Support Nurses have been in place since Neil and
Keely have left. You have all been very busy raising money for your local hospitals as well as
the staff getting involved with marathons and 5K Runs, these donations will help patients with
Cystic Fibrosis to improve the service and environment in the hospital. You will also be pleased
to know that patients with CF are eligible to free Wifi when they visit Royal Stoke and don’t
forget if you or your child is an inpatient for 2 weeks or more you can apply for free car
parking.
Also there is a website which is updated on a monthly basis with all the latest Centre updates,
recipes, fundraising, team news and much more! If you would like to become involved in the
Website group, we do have a teleconference facility to link into the meetings. All you need is
a phone and a PC! Keep checking back to see what is happening in your Centre!
http://northwestmidlandscfcentre.btck.nhs.uk
If you would like to contribute to the next edition, please contact Erin Hodgetts, Cystic
Fibrosis Coordinator on telephone 01782 675105 or email [email protected].
Spring/Summer 2015
Page: Page:
2. - Your Team News 7. - Kirsty Lawton Trust Fund
- University Academy
Kidsgrove
- Christmas Fundraiser
3. - EastEnders Storyline
- Holidays
- European CF Conference
‘Living with CF’ Film
8. - Stafford Half Marathon
- Forsbroook Primary
School
- Easter Raffle
4. - Parents Evenings
- Transition and University
- Your Inpatient Stay
- Free!
9. - Bloxwich Golf Club
- Masonic Society
- More Thank Yous!
- How You Have Helped
5. - CF Training Day
- Fantastic Achievements!
10-
12.
-Fundraising Events
- Cash Stores
6. - Abbots Bromley Football
Club
- Tough Mudder
- Wear with Pride…CF
Ribbon Sale
13. - Contact Information
2
Dr Thomas married Martin on the 9th May 2015 so you will now know her as
Dr Angela McGowan! Instead of wedding gifts, they invited guests to
donate to charity with one of these charities being the CF Fund at UHNM
Charity. An amazing £2820 was collected to put towards the development
of the North West Midlands CF service. The team would like to thank
Angela and Martin as well as wishing them all the very best for the future!
• Neil Wheeler retired in April 2015. Sue Hope will be coming back
on ad hoc basis working alongside Laura.
• Keely Felton was successful in being recruited to the Deputy Ward
Manager post on Ward 233. Congratulations Keely from the CF
Team!
• Rachel Ritchie and Helen McCreary have completed their
physiotherapy rotation in CF and have been succeeded by
Stephanie Hagger-Knight and Laura Swinscoe. Thank you for all
your help!
• Dr Kamini Jain has succesfully got a Registrar post in Bristol, the paediatric team at Stoke all
wish well in her new venture!
Laura Swinscoe and Stephanie Hagger-Knight are on
rotation for 6 months in the physiotherapy role and
Christopher Hollinshead and Helene Barker are on
secondment for 6 months in the Support Nurse roles at Royal Stoke.
Laura has recently joined the Adults CF Team at Stoke. She studied physiotherapy at Keele
University between 2008 – 2011. She started working at
Stafford Hospital in 2011 and left in September 2014 to join
the Royal Stoke as a senior rotational respiratory
physiotherapist. She has recently worked in the medical
and paediatric teams, before moving into adult CF at the
start of July 2015. She is a keen hockey player and enjoys
running, she is currently training for the Birmingham Half
Marathon in October 2015.
Steph trained in Leeds and graduated in 2008, starting her
career at Leighton Hospital before moving to Stoke in 2009.
She became a Senior Respiratory Physiotherapist in 2013. She joined the
Paediatric CF Team from Critical Care in July 2014 on a rotational basis. In her spare time she is
currently packing to move house, running around after her 18 month old daughter and
expecting another baby in November!
Chris has been involved with CF since he was a student with
his elective placement being at Wythenshawe Adult CF
Centre. He was the first student to undergo a placement
outside of the area. Once qualified, Chris applied for the
Staff Nurse role on Ward 79 (the location of the acute
respiratory ward before Ward 233) as he knew they cared for
people with CF. He became CF Link Nurse on the ward and
from April he has been a CF Support Nurse.
Helene recently joined the CF team as a Support Nurse in
April 2015. She also works on the acute respiratory ward Ward 233 at Royal Stoke University
Hospital where she has been a staff nurse for 3 years.
Laura Swinscoe
Steph Hagger-
Knight
Chris Hollinshead Helene Barker
3
Recently there has been a Cystic Fibrosis storyline in EastEnders
which has raised questions from our families and what this means
for their children. The Cystic Fibrosis Trust worked closely with the
EastEnders production team to ensure that the condition was
portrayed accurately. It is also worth bearing in mind that the
Soap will add drama and so sometimes it may be distressing to
watch. It is also worth noting that every patient with CF is
different and their regimes and treatments are also different and so you or your family
member may not have the same severity as the characters in EastEnders. If you are worried
about the programme and have any questions about what this may mean for you please
speak to any of your CF Team.
Many of you are going on holiday to some lovely places in the
world! Please don’t forget to ask your CF Team Secretary for a
holiday letter well in advance. This will help you to travel through
airport security with minimal restrictions as well as notifying them
if you have a Port-a-Cath in situ.
Some airlines and/or insurance companies ask you to have a ‘Fit
to Fly’ assessment. You may also need an assessment if you have low lung function and
require oxygen during the flight. You need to arrange this in plenty of time so that you are
prepared and ready for your holiday. Please contact your CF Team if you need help with
organising this.
Dr Ang Ho, Zoe Rushton and Michelle Edinburgh attended the
European Cystic Fibrosis Society Conference which was held in
Brussels, Belgium in June. The conference is facilitated by world
renowned professionals providing advice and useful information
on compliance, Social Media, Infection Control and much
more.
The team are very proud of the film produced by Inspired
Media but more so for the patients and families who made
the film happen. Erin had the idea to produce the film as an
educational tool for delegates at the CF Training Day as well
as promoting what CF is to people who may not be aware of
the condition. The patients and families involved were
Callum and Cara Wilshaw, Rachael Parrott and Denise
Hasketh and of course Siobhan Davies! A huge thank you to all those who were involved! To
watch the film, copy and paste this link into your web browser.