1 North West Midlands Cystic Fibrosis Centre The Team have been busy over the Summer months promoting the North West Midlands Centre service and fundraising and it looks as though you have all been busy too! As a Centre we are encouraging you to become part of the development of the service and you can be involved in as much or as little as you like. The Centre is developing a website and we are welcoming your thoughts on the content: http://northwestmidlandscfcentre.btck.co.uk If you would like to contribute to the next edition, please contact Erin Hodgetts, Cystic Fibrosis Coordinator on telephone 01782 675105 or email [email protected]. Autumn/Winter 2014/15 Page: 2. Your Team News 3. Hospital Integration New Children’s Centre in Shropshire 4. Special Recognition Award European CF Conference MPs Visit Specialist Centre Raising Awareness 5. Clinic Audit We Need You! Did You Know? 6. Nebuliser Servicing Please Bring You iNeb to Clinic Do You Need Your Nebuliser? EpiPen Reminder Have You Had Your ‘Flu Jab 7. High Cost Drugs Festive Foods 8. Future Events 11. Christmas Fundraiser Fantastic Fundraisers! 12. Contact Information
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North West Midlands Cystic Fibrosis Centre
The Team have been busy over the Summer months promoting the North West Midlands
Centre service and fundraising and it looks as though you have all been busy too! As a Centre
we are encouraging you to become part of the development of the service and you can be
involved in as much or as little as you like. The Centre is developing a website and we are
welcoming your thoughts on the content: http://northwestmidlandscfcentre.btck.co.uk
If you would like to contribute to the next edition, please contact Erin Hodgetts, Cystic
Fibrosis Coordinator on telephone 01782 675105 or email [email protected].
Autumn/Winter 2014/15
Page:
2. Your Team News
3. Hospital Integration
New Children’s Centre in Shropshire
4. Special Recognition Award
European CF Conference
MPs Visit Specialist Centre
Raising Awareness
5. Clinic Audit
We Need You!
Did You Know?
6. Nebuliser Servicing
Please Bring You iNeb to Clinic
Do You Need Your Nebuliser?
EpiPen Reminder
Have You Had Your ‘Flu Jab
7. High Cost Drugs
Festive Foods
8. Future Events
11. Christmas Fundraiser
Fantastic Fundraisers!
12. Contact Information
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Most of you will have noticed that our Cystic
Fibrosis Coordinator has a different surname! Erin
got married in July to Bobbie Hodgetts and we
wish them all the best for the future!
Omi Narayan secured a
a position within the
R respiratory and Cystic
Fib Fibrosis Department at
Bir Birmingham Children’s
H Hospital.
• Bernard Cheng is taking
up a Pharmacy position in London.
• Sue Hope has
left the Trust
on a career
break, the CF
Service will
always be
grateful for
her hard work
and support.
Dr. Senthil Kumar Sethuraman has recently joined the children’s CF team
at Shropshire. He has had tertiary respiratory experience in Birmingham
Children’s Hospital and experience in a New Cross Hospital managing 50
children with Cystic Fibrosis and difficult asthma.
Dr. Ang Ho has recently joined the Children’s CF Team at Stoke. He
started as a respiratory grid trainee for the Yorkshire Deanery and finished
his training in 2007. His experience in CF includes working at the Regional
CF Unit at St James's Hospital (now in Leeds General Infirmary) and also at
the Children's Hospital in Westmead in Sydney, Australia. Ang was
appointed as Consultant in Paediatrics at Macclesfield Hospital and led
the respiratory and CF services there from 2007 to 2014 as well as a
Clinical Director for East Cheshire NHS Trust. His special interests include
general respiratory conditions, bronchoscopy, sleep-related disorders and
allergy. Research and published papers include subjects on
Pseudomonas eradication and induced sputum in CF. Ang is married and
has 2 girls aged 7 and 10 years old. His hobbies include photography,
cycling and now has repaired knees hopefully a return to racket sports
and football.
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On 2 November 2014 the University Hospital of North Staffordshire
will be named University Hospitals of North Midlands NHS Trust. It
will be a single Trust with two hospitals of equal importance - one
in Stafford and one in Stoke-on-Trent.
It will incorporate the activities of the current University Hospital of
North Staffordshire NHS Trust (UHNS) and most of the activities of
the Mid Staffordshire NHS Foundation Trust (MSFT). Some of the
services provided by MSFT will transfer to the Royal
Wolverhampton NHS Trust.
The Trust will include services and teams at Stafford and City
General (in Stoke) hospitals, with the hospitals renaming to
become the County Hospital (Stafford) and the Royal Stoke
University Hospital (City General). Your Cystic Fibrosis Teams will
stay the same and the site you attend will also stay the same.
Email contacts will also change and you will be notified of the
new addresses in due course.
On 29 September 2014, saw the opening of the new Children’s
Services in Shropshire, which will bring huge benefits for children
and families with cystic fibrosis. Whilst the children’s ward in the
Royal Shrewsbury Hospital has now closed to overnight
admissions, the new children’s ward at the Princess Royal
Hospital, Telford, has state of the art new facilities. There are
fabulous large en-suite rooms for all and much better clinical
rooms, play and education facilities. From September 29th, any child requiring an overnight
stay will be cared for in this ward. The new Children’s Out-patient Department and the
Children’s Assessment Unit at the Princess Royal Hospital are now right next door to the new
Children’s Ward.
Although we are sorry to say “goodbye” to the Children’s Ward at
the Royal Shrewsbury Hospital, we will say “hello” to a greatly
improved Outpatients Clinic, housed in the old Children’s Ward,
and a new Children’s Assessment Unit in the main hospital (on
Ward 21 – follow the signs from the main entrance!). So children
from Shrewsbury and the West of Shropshire and Powys will still
come to clinics at The Royal Shrewsbury Hospital, and be able to
start IV courses there.
Any questions about what this all means for you just speak to any of the CF Team.
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Midlands Children of Courage 2014 Winner Ewan Smith is a 16 year old
young man who was diagnosed with Cystic Fibrosis at an early age. In 2012
he underwent a double lung transplant due to severe lung disease caused
by Cystic Fibrosis. Against all the odds, Ewan completed his GCSEs this year
and has achieved six C grades and 3 D grades. The school have described
Ewan as an inspiration and recognised his commitment to his education,
even when he was unwell. Ewan has also competed in the British
Transplant Games in Bolton this Summer where he won 4 bronze medals in
swimming and bowling. Ewan also regularly fundraises for the CF Trust and the Freeman
Hospital. To find out more about Ewan and the Midlands Children of Courage awards, please