This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the Marie Skłodowska-Curie grant agreement No. 824021 Newborn screening (nbs) for sickle cell disease in Kaduna: the journey so far Livingstone G. Dogara Department of Haematology, Faculty of Basic Clinical Sciences, Kaduna State University College of Medicine Kaduna NBS Working Group Sickle Cell Cohort Research Foundation (SCORE, www.scorecharity.com ) Abuja
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This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the Marie Skłodowska-Curie grant agreement No. 824021
Newborn screening (nbs) for sickle cell disease in Kaduna: the
journey so farLivingstone G. Dogara
Department of Haematology, Faculty of Basic Clinical Sciences, Kaduna State University College of Medicine
Kaduna NBS Working Group
Sickle Cell Cohort Research Foundation (SCORE, www.scorecharity.com) Abuja
• 2019: RCPath LabSkill Africa/IEF CESTRA Installation training
• 2020: ASH CONSA
What do you want to know?
Source: Bennett and Rockwell, 1995, Targeting Outcomes of Programs
Social-economic-environmental impacts
2009-2017 Planning Meetings – Katsina/Kafanchan/London SCD Nigeria Focus Group
FGD 2017
ARISE/EHA: 2018-2019
Call to Action: ASH Assessment visit/LabSkillAfrica 2018-2019
Ongoing
▪ Regular training workshops
▪ Policy review and updating
▪ Incident reporting and review
▪ Collection and review of key performance indicators
▪ Linking newborn and antenatal screening results
▪ Newborn outcomes project
Successes
• Government support and program approval• MoU between SCORE and KDSG
• Academic and other partner support (BDTH, KASU, ABU, ABUTH, MOH, SPHCDA, FantsuamFoundation, SSCF)
• ASH CONSA support
• ARISE Exchange/RCPAth LabSkill Africa Standardization of diagnosis and care
• Use of tools in management
Futuristic
• Ability to design a framework of inter-agency and intra-agency collaboration
• Being ready for partnership and collaboration (ASH education programme, BSH, Academic institution)
• Influencing national decision on guidelines for care of the sickle
• Develop framework/curriculum for holistic sickle care (Genetic counselling, school screening, pre-marital counselling)
• To use framework in standardizing care of other genetic disorders
Policy Framework
“There is no passion to be found playing small - in settling for a life that is less than
the one you are capable of living.”
Nelson Mandela Former President of South Africa
Thank You
This presentation reflects only the author(s)’s view and the EU Research Executive Agency (REA) is not responsible for any use that may be made of the
information it contains.
This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the Marie Skłodowska-Curie grant agreement No. 824021