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National MS Society, Gateway Area Chapter 2012 Wall Calendar

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Page 1: National MS Society, Gateway Area Chapter 2012 Wall Calendar

2012Gateway Area Chapter Calendar

Page 2: National MS Society, Gateway Area Chapter 2012 Wall Calendar

THE WALK WILL CHALLENGE YOU.THE EXPERIENCE WILL CHANGE YOU.

3 DAYS. 50 MILES. COUNTLESS MEMORIES. YOU CAN BE A PART OF CHALLENGE WALK MS.

JOIN US!

“I’ve met some wonderful and

inspiring people over the years at

Challenge Walk MS. I never thought

that walking 50 miles would be fun,

year after year, but it truly is.”

- Randy, walking for his dad

“We fell in love with

Challenge Walk MS.

It’s great because it is so

intimate. It’s like a retreat. ”

- Heather, diagnosed in 2009

“It was incredible. The fact that

I have MS and I was going to

do this walk was amazing. The

biggest thing is you get a real

sense of community.”

- Susan, diagnosed in 2010

“Other than my family, I’ve never been as

passionate about anything in my life as I

am about Challenge Walk.The people who

do the walk are the most amazing people

I’ve come across in my life.”

- Rick, diagnosed in 1997

DEAN TEAM AUTOMOTIVE CHALLENGE WALK MS | JUNE 1-3 | ST. LOUIS, MO | GATEWAYMSCHALLENGE.ORG | 800 344 4867

Page 3: National MS Society, Gateway Area Chapter 2012 Wall Calendar

D O S O M E T H I N G A B O U T M S N O W

www.gatewayMSsociety.org 800-344-4867

St. Louis, MO - MAY 19

Columbia, MO - TBD

JUNE 1-3St. Louis, MO SEPTEMBER 8-9

Columbia, MO

2 0 1 2 F U N D R A I S I N G E V E N T S

gatewayMSwalk.org

Walk 2012Walk 2012 2012

APRIL 21Arnold, MO

Carbondale, ILClayton, MO

Edwardsville, IL Eureka, MO

St. Peters, MOTroy, MOAPRIL 22

Millstadt, ILAPRIL 22

Cape Girardeau, MOGodfrey, IL

Moberly, MOAPRIL 26

Steppin’ Out for MS Night Walk St. Louis, MO

APRIL 28Columbia, MO

MAY 12 Jefferson City, MO

DEAN TEAM AUTOMOTIVE CHALLENGE WALK MS | JUNE 1-3 | ST. LOUIS, MO | GATEWAYMSCHALLENGE.ORG | 800 344 4867

MuckRuckus MSGateway AreaWalk 2012

Page 4: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

Back in the SaddleValarie Brunjes, who has lived with MS since 2003, had been to Family Weekend at Touch of Nature before, but had never been on a horse before last fall.

“I was terrified at first and really dubious of how these people were going to put me on a horse,” Valarie said.

Not only did Valarie get to experience the hour-long trail ride with her 8-year-old daughter Maya, she also felt more connected to her body.

“Because I sit in this wheelchair all the time I don’t get a lot of opportunities to move my hips anymore,” Valarie said. “To have them move and to reconnect them to my brain was a pretty neat experience. I felt really unstable about 15 minutes into it until my hips kind of loosened

up and I felt like I was walking. It was pretty incredible.”

The benefit of the therapeutic horsemanship experience didn’t end when Valarie left Touch of Nature.

“It gave me a completely different understanding about what my hips are doing,” Valarie said. “To actually move with that rhythm and the gait of a horse has changed the way I feel when I stand up. It’s given me an increased sense of security in daily tasks. I’ve got a different understanding of my body because of it.”

The Chapter offers financial assistance to qualified candidates for therapeutic horsemanship. Go to gatewaymssociety.org g Staying Healthy With MS g Therapeutic Horsemanship.

Valarie Brunjes and daughter Maya enjoyed horseback riding together at

Family Weekend at Touch of Nature in Carbondale.

Page 5: National MS Society, Gateway Area Chapter 2012 Wall Calendar

1 2 3 4 5 6 7

8 9 10 11 12 13 14

15 16 17 18 19 20 21

22 23 24 25 26 27 28

29 30 31 FEBRUARY 2012

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

New Years Day

Martin Luther King Jr.Holiday

January

S M T W T F S

1 2 3 4

5 6 7 8 9 10 11

12 13 14 15 16 17 18

19 20 21 22 23 24 25

26 27 28 29

S M T W T F S

1 2 3

4 5 6 7 8 9 10

11 12 13 14 15 16 17

18 19 20 21 22 23 24

25 26 27 28 29 30 31

DECEMBER 2011

CarePartner Tele-Chat

Kickoff RallyMarion, IL

Kickoff RallyO’Fallon, MO O’Fallon, IL

Cape Girardeau, MOColumbia, MO

Wellness Network

Chapter Open House

Volunteer Orientation

Chapter Annual Meeting

College Scholarship Application Deadline

Do you want to learn more about the Chapter or want to get more involved? Join us for a one hour open house, see how the Chapter is helping people move forward and learn how you can join the movement! Open houses are

the first Thursday of every month at noon or 6 p.m. at our St. Louis office at 1867 Lackland Hill Parkway, 63146.

Please RSVP through our website at gatewaymssociety.org g Chapter Calendar, or call 800-344-4867.

Kickoff RallyEdwardsville, IL

Fenton, MOChesterfield, MO

Kickoff RallyClayton, MO

Page 6: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

Persistence paid off for Robert Williams. Robert, who has MS, lives with his wife in a low-income Williamson County Housing Authority apartment in Johnston City, IL. Both he and his wife are disabled, yet his requests for a handicapped parking space to be installed at his complex were denied. After some research, Robert learned that not only was he eligible for a space, but it was illegal to not have one.

“At the time I was thinking they need a spot not just for me but for others,” Robert said. “I decided to start pushing for it and I took it as far and as high as I could. I kept with it because I knew what they were doing and saying was illegal.”

After about a year and jumping through all sorts of hoops including numerous requests to the Williamson County Housing Authority, contacting the Southern Illinois Center for Independent Living and finally filing a complaint through the U.S. Department of Human Rights, the Williamson

County Housing Authority finally agreed to install a handicapped parking space reserved for him.

“I was surprised, happy and elated because it took almost an entire year,” Robert said.

The new spot means that Robert and his wife will have a safe spot to get in and out of their vehicle and won’t have to park along a ditch near the parking lot.

Robert advocated for himself and it took a little research and a lot of time and patience, but it’s worth it.

“It takes a long time, but if you feel like your rights are being violated then stick with it and do whatever it takes,” Robert said. “It didn’t cost a dime.”

Persistence, Patience Pay off for Self-Advocate

“(Getting the accessible parking spot installed) takes a long time, but if you feel like your rights are being violated, than stick with it and do whatever it takes. It didn’t cost a dime.”

— Robert Williams

Robert Williams and wife Diane finally got an accessible parking spot in their apartment complex, after some persistence.

Page 7: National MS Society, Gateway Area Chapter 2012 Wall Calendar

February

1 2 3 4

5 6 7 8 9 10 11

12 13 14 15 16 17 18

19 20 21 22 23 24 25

26 27 28 29

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

President’s Day

Valentine’s Day

Groundhog Day

Lincoln’s Birthday

Washington’s BirthdayWellness Network

Carepartner & Family Group

S M T W T F S

1 2 3

4 5 6 7 8 9 10

11 12 13 14 15 16 17

18 19 20 21 22 23 24

25 26 27 28 29 30 31

MARCH 2012S M T W T F S

1 2 2 4 5 6 7

8 9 10 11 12 13 14

15 16 17 18 19 20 21

22 23 24 25 26 27 28

29 30 31

JANUARY 2012

Ash Wednesday

Mardi Gras

Leap Day

New ConnectionsCape Girardeau, MO

Meet & Greet St. Louis, MO

Chapter Open House

Young Professionals Meet & Greet

Town Hall MeetingColumbia, MO

Town Hall MeetingMt. Vernon, IL

Volunteer Orientation

Interested in special MS licence plates AND helping the Gateway Area Chapter? Contact the Chapter at 314.781.9020.

Sign up at www.nationalMSsociety.org/MSactivist to receive Action Alerts from the National MS Society.

MS Action DayJefferson City, MO

Page 8: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

On April 23, 2011, Wendy Booker became the first person with MS to stand at the North Pole. And that was just the beginning.

After her diagnosis with MS in 1998, Booker had made it her quest to climb the world’s Seven Summits. She succeeded at six: Mt. McKinley, Mt. Kilimanjaro, Mt. Elbrus, Mt. Aconcagua, Mt. Vinson Massif and Mt. Kosciuszko. But after two attempts in 2009 and 2010, she realized that summiting Mt. Everest was simply beyond her reach.

If she couldn’t reach the highest peak on earth, she decided she would reach the geographical “top of the world” instead.

“Taking on a physical challenge or goal is always a great way to engage your brain and move forward, but a challenge doesn’t always have to be physical,” the 57-year-old mother of three said. “Perhaps it is learning to paint, or a foreign language, or music. It doesn’t matter what it is. But during the time your mind is engaged you get back a piece of what you were before you had MS, and that is where empowerment will come from.”

Booker has said from the start of her Seven Summits journey that the physical peaks she climbs are metaphors for the ups and downs

we all face in life — especially if life includes an unpredictable illness.

“We often have to try a little harder and take a little longer,” she said. “I challenge those with MS to go out and find that special thing, that activity, that passion that will take them away from their MS, if only for awhile, and from that they will see that anything is possible.”

Get the latest news on Booker’s adventures at www.wendybooker.net.

Mountain Climber/Adventurer with MS to Kick-Off

Awareness Week March 11Wendy Booker, who has lived with MS since 1998, has stood on top of six of the world’s Seven Summits, as well as the North Pole. She will help us kick off MS Awareness week at a special thank you rally on Sunday, March 11.

Wendy, diagnosed in 1998On top of Mt. McKinley in Denali

Page 9: National MS Society, Gateway Area Chapter 2012 Wall Calendar

March

1 2 3

4 5 6 7 8 9 10

11 12 13 14 15 16 17

18 19 20 21 22 23 24

25 26 27 28 29 30 31

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

S M T W T F S

1 2 3 4 5 6 7

8 9 10 11 12 13 14

15 16 17 18 19 20 21

22 23 24 25 26 27 28

29 30

APRIL 2012

St. Patrick’s Day

First Day of Spring

Daylight Saving Time Begins

FEBRUARY 2012

S M T W T F S

1 2 3 4

5 6 7 8 9 10 11

12 13 14 15 16 17 18

19 20 21 22 23 24 25

26 27 28 29

New Connections Columbia, MO

Meet & Greet Kirksville, MO

Meet & Greet Kennett, MO

Town Hall Meeting Kennett, MO

Appreciation Rally St. Louis, MO

Wellness Network

MS AWARENESS WEEK

Carepartner & Family Group

MS Wellness FairColumbia, MOSt. Louis, MO

Research MS Collinsville, IL

Free From Falls St. Louis, MO

Free From Falls St. Louis, MO

Chapter Open House

Volunteer Orientation

National Doctor’s Day

MARCH 11-17 IS MS AWARENESS WEEK.• Start a Walk MS team, or ask someone to start a team

in your honor.• Mention MS Awareness Week on Facebook.• Mention the MS Society in your email signature.• Sign up to volunteer for a Chapter event.• Wear orange during MS Awareness Week

Town Hall MeetingMarion, IL

Page 10: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

In Tim Sauer’s first Walk MS fundraising campaign, he had an interesting concept.

“I never once asked for a donation,” Tim said. “I told my story and pointed them to where they could go to donate.”

Tim, who was diagnosed in September of 2010, used his Walk MS campaign as an opportunity to tell people he had MS. Tim sent out a series of emails describing living with MS and how it not only affects him, but his wife and two sons.

“Sending those emails was something I would not typically do,” Tim said. “I’m usually more private; my feelings are my feelings. From that standpoint this was a big thing.”

Tim decided to tell people he had MS on his 40th birthday in February.

“People were starting to not see me but something different,” Tim said. “It was because I wasn’t sharing with them what was going on. Keeping it quiet generated more questions.”

While Tim initially hesitated in telling people he had MS, once he decided to disclose it and once he decided to raise money for Walk MS – it was out there.

“I don’t do much small,” Tim said. “So I figured if I’ve got MS, I’m going to deal with it. I started going through all of my contacts and started putting out the emails and it progressed from there and before I knew it, my email distribution was up above 500-600 people. I had people from multiple states making donations online.”

Tim’s team the Mylein Hunters grew to about 30 people and raised about $13,000. While Tim’s messages inspired people to donate, their donations in turn inspired Tim.

“The fact that they were willing to donate on my behalf really motivated me to do more and to be more active,” Tim said.

Myelin Hunter Makes Big Impact in First Walk MS

Tim Sauer, who says he never does anything ‘small’, raised about $13,000 in his first year at Walk MS.

Page 11: National MS Society, Gateway Area Chapter 2012 Wall Calendar

April

1 2 3 4 5 6 7

8 9 10 11 12 13 14

15 16 17 18 19 20 21

22 23 24 25 26 27 28

29 30

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

S M T W T F S

1 2 3 4 5

6 7 8 9 10 11 12

13 14 15 16 17 18 19

20 21 22 23 24 25 26

27 28 29 30 31

MAY 2012

April Fool’s Day Good Friday

S M T W T F S

1 2 3

4 5 6 7 8 9 10

11 12 13 14 15 16 17

18 19 20 21 22 23 24

25 26 27 28 29 30 31

MARCH 2012

Wellness Network

Carepartner Tele-Chat

Arnold, MO Carbondale, ILClayton, MO

Columbia, MO Edwardsville, IL

Eureka, MO

Millstadt, IL

St. Peters, MO

Troy, MO

Steppin’ Out for MS Night WalkDowntown, St. Louis, MO

Spring Rendezvous, Grafton, IL

Spring Rendezvous, Grafton, IL

Cape Girardeau, MOGodfrey, IL

Moberly, MO

Easter Sunday

Palm Sunday

Passover BeginsFree From Falls St. Louis, MO

Free From Falls St. Louis, MO

Free From Falls St. Louis, MO

Free From Falls St. Louis, MO

Internship Application Deadline

Carepartner & Family Group

Chapter Open House

Young Professionals Meet & Greet Volunteer Orientation

Connect with others living with MS. Visit gatewaymssociety.org g “Meet Others with MS” to

learn about social programs and events like Family Evening and Weekend, carepartner resources and Talk MS programs.

Page 12: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

Getting Down and Dirty for Keri When someone living with MS tells their friends about their diagnosis, friends wonder and ask ‘what can I do?’ Keri Pruneau, who was diagnosed a couple of years ago, found an answer for her friends – ‘get dirty with me at this fundraiser for the National MS Society.’

Keri’s team, the Mudflaps, were 11 strong last year and raised nearly $4,000.

“This is good for my girlfriends to really show their support,” Keri said.

When Keri, who enjoys physical challenges,

heard about the obstacle course (now known as MuckRuckus MS) and it definitely interested her.

“It seems like something I would want to check off my bucket list,” Keri said.

The fact that money raised through the event benefits the 6,800 people in our area like Keri who live with MS was just the icing on the cake.

“Every person on my team tried to fundraise really hard,” Keri said. “Me having MS really gave them a reason to get involved and it opened our eyes to what charity events are all about. It’s truly

meaningful to people. It makes you want to be a better citizen and to be empathetic towards people.”

Keri will also definitely be back in 2012 for MuckRuckus MS.

“It was a really good experience and I’m glad I did it and will definitely tell others about it,” Keri said. “I do it because I can. I want to move while I can. Because my leg gives me so many issues, I fear that I’m going to have mobility issues and it scares me. So I want to do the best I can and move as much as I can and fundraise as much as I can.”

Keri Pruneau, her husband and a group of friends known as the Mudflaps raised nearly $4,000 last year.

Page 13: National MS Society, Gateway Area Chapter 2012 Wall Calendar

May

1 2 3 4 5

6 7 8 9 10 11 12

13 14 15 16 17 18 19

20 21 22 23 24 25 26

27 28 29 30 31 S M T W T F S

1 2

3 4 5 6 7 8 9

10 11 12 13 14 15 16

17 18 19 20 21 22 23

24 25 26 27 28 29 30

JUNE 2012

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

Mother’s Day

Memorial Day

S M T W T F S

1 2 3 4 5 6 7

8 9 10 11 12 13 14

15 16 17 18 19 20 21

22 23 24 25 26 27 28

29 30

APRIL 2012

Family Evening at Grant’s Farm

Wellness Network World MS Day

Talk MS Meet & Greet St. Charles, MO

Free From Falls St. Louis, MO

Free From Falls St. Louis, MO

New Connections Mt. Vernon, IL

Chapter Open House

Volunteer Orientation

Aren’t sure what to give mom or dad for Mother’s Day or Father’s Day?

A donation to the National MS Society in their honor is sure to fit.

Go to gatewaymssociety.org g “Donate.”

St. Louis, MO

Carepartner & Family Group

Kickoff RideSt. Louis, MO

2012

Kickoff RideColumbia, MO

2012

Jefferson City, MO

Page 14: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

When Susan Billiot first heard that she may have MS, she didn’t believe it.

“I wasn’t having any problems,” Susan said. “I didn’t feel bad so I thought nothing was wrong.”

A couple months later, when Susan was out on her daily walk with her husband, her leg felt stiff and was dragging. That’s when it hit that she may actually have MS.

Then some friends who also live with MS told Susan about the Dean Team Automotive Challenge Walk MS and walking 50 miles in three days.

“I didn’t think it was physically possible to walk 50 miles in three days,” Susan said. “My husband said yeah that’s crazy, you can’t walk 50 miles, you’ll be stumbling all over the place. But then I thought why not? I didn’t know what the course of MS was going to take and this would be my best shot at doing Challenge Walk MS.”

Susan accepted the challenge and joined the MS Ramblers team . She used Challenge Walk MS as a way to tell people that she had MS, and to raise more than $5,000.

“I just thought I’d send out a link to my fundraising site on my facebook page,” Susan said. “I couldn’t believe it. I got such an overwhelming response from people – people I hadn’t seen since high school.”

Those three days in June were also overwhelming to Susan.

“It was incredible. I didn’t think I’d be able to do it,” Susan said. “The fact that I have MS and I was going to do this walk was amazing. When you’re diagnosed with MS you come up with a list of things that you may not be able to do anymore, like walking. This gave me the opportunity to do something that I had never done before. I feel like I’m in better shape and I work harder because there is nothing to motivate you more to walk than to think you may not be able to.”

Up for the Challenge - In for the Experience

Susan Billiot had a memorable experience at her first Challenge Walk MS with the MS Ramblers.

Page 15: National MS Society, Gateway Area Chapter 2012 Wall Calendar

June

1 2

3 4 5 6 7 8 9

10 11 12 13 14 15 16

17 18 19 20 21 22 23

24 25 26 27 28 29 30

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

Flag Day

Father’s DayFirst Day of Summer

S M T W T F S

1 2 3 4 5

6 7 8 9 10 11 12

13 14 15 16 17 18 19

20 21 22 23 24 25 26

27 28 29 30 31

MAY 2012

Wellness Network

Research MSCarbondale, IL

Carepartner Tele-Chat

Family ProgramCape Girardeau, MO

Family EveningColumbia, MO

Family EveningCarlyle Lake, IL

S M T W T F S

1 2 3 4 5 6 7

8 9 10 11 12 13 14

15 16 17 18 19 20 21

22 23 24 25 26 27 28

29 30 31

JULY 2012

Carepartner & Family Group

Sylvia Lawry’s Birthday (NMSS Founder)

Chapter Open House

Young Professionals Meet & Greet

Volunteer Orientation

Don’t forget you can access Chapter programs like the monthly Midwest Teleconference series or the Wellness Network from

your home phone and computer at gatewaymssociety.org.

Town Hall MeetingWest Plains, MO

Walk 2012

Walk 2012

Walk 2012

Page 16: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

Kids Find Comfort Zone at Inaugural Camp Hope MSWendy Schneider knew everything she needed to know about her daughter’s experience at Camp Hope MS when Wendy picked up 10-year-old Lelah from the camp in Makanda, Illinois.

“The first thing she said to me was ‘I am so coming back next year,’” Wendy said.

Wendy, who has been living with MS since 1996, thought that the five-day summer camp would be a great opportunity for Lelah to just get away and have some fun, as well as meet other children affected by MS.

“I thought this would be very good because if I do have a major relapse, it would be good for her to build friends who understand what it’s like to have a parent with MS,” Wendy said. “The staff did a phenomenal job making her and all the kids

feel comfortable, more so than any other camp experience. The staff really shined bright.”

In July, the Chapter held its inaugural Camp Hope MS at Touch of Nature, just outside of Carbondale, and included swimming, canoeing, pontoon boat rides, adventure hikes, fishing, campfires, hay rides, arts and crafts, horseback riding and MS education and sharing groups. Wendy said the staff and volunteers created a very comfortable environment for her daughter.

“Lelah didn’t know anybody going to the camp but she seemed very comfortable with all the kids,” Wendy said. “I’m very glad she went. I don’t know what it was that the staff and volunteers did, but she just seemed to come more out of her shell and I want that for her. For her just to forget about serious stuff and be a kid was great.”

The inaugural Camp Hope MS was a tremendous success last July. Campers include (from left): MarLee Halfley, Lelah Schneider, Madeline Oxendine, and Carly Cottingham.

Page 17: National MS Society, Gateway Area Chapter 2012 Wall Calendar

July

1 2 3 4 5 6 7

8 9 10 11 12 13 14

15 16 17 18 19 20 21

22 23 24 25 26 27 28

29 30 31

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

S M T W T F S

1 2 3 4

5 6 7 8 9 10 11

12 13 14 15 16 17 18

19 20 21 22 23 24 25

26 27 28 29 30 31

AUGUST 2012

Independence DayCanada Day

S M T W T F S

1 2

3 4 5 6 7 8 9

10 11 12 13 14 15 16

17 18 19 20 21 22 23

24 25 26 27 28 29 30

JUNE 2012

Wellness Network

Carepartner & Family Group

Internship Application Deadline

Camp Hope MSMakanda, IL

Chapter Open House

Volunteer Orientation

Get inspired by the Tour de France and start your own Bike MS team! With 40,

75 and 100-mile route options each day, we’ve got a route for every cyclist.

Go to gatewaymsbikeride.org.

Page 18: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

Funding The FutureThe road has never been easy for Rebecca Merlenbach, who

won the National MS Society’s Presidential Scholar award in

2011. When Rebecca was diagnosed with MS as a teenager,

her parents were unable to care for her and she was homeless.

Due to financial hardships, her MS went untreated for a year

causing her grades to suffer due to depression, migraines and

blackouts. Through it all, Rebecca gained a new perspective on

life. She considered MS the diamond in the rough that helped

her become a more optimistic caring person with a drive to

succeed. She is now studying public relations management

and international business to learn how to run a nonprofit

organization helping children in need.

“Before I was diagnosed with MS, I took life for granted. Now I try to stay healthy, listen to my body, and strive to succeed. Sometimes jewels are hidden in the rough. MS was the rough that helped to reveal a more optimistic, caring me.”

— Rebecca Merlenbach

Presidential Scholar Award Winner

Page 19: National MS Society, Gateway Area Chapter 2012 Wall Calendar

August

1 2 3 4

5 6 7 8 9 10 11

12 13 14 15 16 17 18

19 20 21 22 23 24 25

26 27 28 29 30 31

S M T W T F S

1 2 3 4 5 6 7

8 9 10 11 12 13 14

15 16 17 18 19 20 21

22 23 24 25 26 27 28

29 30 31

JULY 2012

Wellness Network

Research MSCape Girardeau, MO

New Connections Belleville, IL

O’Fallon, IL

S M T W T F S

1

2 3 4 5 6 7 8

9 10 11 12 13 14 15

16 17 18 19 20 21 22

23 24 25 26 27 28 29

30

SEPTEMBER 2012

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

Chapter Open House

Young Professionals Summer Social Volunteer Orientation

In 2011, the Chapter awarded $40,000 to 21 new college students through

it scholarship program.

Carepartner & Family Group

Page 20: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

For the MHW Milers team, Bike MS is a family affair – in fact it’s more like an annual family reunion.

It all started with Jack Turek and his brother riding for their cousin, Liz Mullen, who has MS. The next year another cousin and Jack’s son-in-law joined. A couple of years later, the family members who came to Columbia to cheer on the riders decided to volunteer and now they sponsor a rest stop every year. The 20-25 person contingent that makes the trip to Columbia includes about 6-7 riders each year and enough volunteers to staff a rest stop.

“We have a catered dinner and party on Friday and Saturday night and it has become a mini-family reunion

as well as riding for the cause,” Jack said. “We wanted to keep our team just family. It makes it what it is for us and it keeps us all involved. We’ve got all kinds of cousins who live across the country. We have had people come from San Francisco, New York, Kentucky, Connecticut, Colorado and Texas.”

The team name, MHW Milers, is of course a family name – in fact it’s a three-family name. The team rides for five people who live with MS, one Mullen, three Haskells and one Williams. The families are actually connected through another family name, the Connells, the namesake of the rest stop Connells’ Crossing.

Bike MS isn’t just about getting

together and sharing stories – it’s also about raising money, and lots of it. Since 2004, the team has raised more than $240,000 simply through personal solicitation.“We started out our first year and raised $4,500 and thought that was great,” Jack said. “With more people riding or volunteering we’ve expanded the network. Everybody

gets a tremendous amount of satisfaction that not only are we able to have fun, but we’re doing something really meaningful not only for our own relatives but for others living with MS. It’s a way to give back. Many of us are awfully fortunate, so for me it’s become my primary way of giving back.”

Bike MS a family affair for MHW Milers

The MHW Milers Bike team has raised more than $240,000 since 2004.

Page 21: National MS Society, Gateway Area Chapter 2012 Wall Calendar

September

1

2 3 4 5 6 7 8

9 10 11 12 13 14 15

16 17 18 19 20 21 22

23 24 25 26 27 28 29

30

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

S M T W T F S

1 2 3 4 5 6

7 8 9 10 11 12 13

14 15 16 17 18 19 20

21 22 23 24 25 26 27

28 29 30 31

OCTOBER 2012

Labor Day

Grandparent’s Day Patriot Day

S M T W T F S

1 2 3 4

5 6 7 8 9 10 11

12 13 14 15 16 17 18

19 20 21 22 23 24 25

26 27 28 29 30 31

AUGUST 2012

Wellness Network

Rosh Hashanah

2012

Carepartner & Family Group

Bootheel Area, MOMt. Vernon, ILWashington, MO

Southernmost, IL

Chapter Open House

Research MSColumbia, MO

Volunteer Orientation

Do you know about the MS Ambassadors program?Become an MS Ambassadors and discuss MS with friends and family, tell your stories at MS Society events, speak to community groups, talk to your doctors and other health professionals, reach out through your church or synagogue, visit with sponsors, share information

online and represent the MS Society through media outreach. If interested call 314-781-9020.

Yom Kippur

2012

Page 22: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

New MRI research could spell earlier diagnosis in MSOne of the most difficult and frustrating things about multiple sclerosis is simply diagnosing it.

Dr. Tammie Bensinger and Dr. Soe Mar hope that their research in special MRI techniques will be a step forward. The research at Washington University is funded by the Gateway Area Chapter of the National MS Society.

“Our hypothesis is that we can see the difference between myelin injury vs. nerve injury using a special type of MRI called diffusion tensor imaging,” said Dr. Bensinger, a neuroradiologist.

The study actually looks at children and trying to differentiate pediatric MS from Acute Disseminated Encephalomyelitis (ADEM).

“Sometimes we have a problem differentiating children with ADEM and MS,” said Dr. Soe Mar, a pediatric neurologist at Children’s Hospital in St. Louis. “Usually it’s a clinical judgment to determine what it is. So we’re hoping directional diffusivity can potentially measure the axonal damage.”

Being able to diagnose children with MS has been particularly challenging, and delays or misdiagnosis could be potentially harmful to children.

“Right now we don’t give immune therapies to children until we’re positive what they have is MS,” Bensinger said. “We’re worried that in kids we’re delaying treatment because we can’t tell the difference between the different diseases.”

If the diffusion tensor imaging is effective then it could help with diagnosing MS and also determining how effective treatments for MS are.

“We are hoping in the long run that we can use the technique in people with MS to differentiate between the axonal damage and myelin damage and how damage correlates with disability,” Dr. Mar said.

Dr. Soe Mar and Dr. Tammie Bensinger are working on a special type of MRI technique that could benefit people living with MS.

Page 23: National MS Society, Gateway Area Chapter 2012 Wall Calendar

October

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Sunday Monday Tuesday Wednesday Thursday Friday Saturday

Halloween

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SEPTEMBER 2012

Family Weekend atTouch of NatureCarbondale, IL

Columbus Day

Family Weekend atTouch of NatureCarbondale, IL

Family Weekend atTouch of NatureCarbondale, IL

NOVEMBER 2012

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Chapter Open House

Young Professionals Meet & Greet

John L. Trotter Research Program

St. Louis, MO

2013 NMSS College Scholarship Application Period

Opens

Volunteer Orientation

MS Service Day

Sign up to get research updates at gatewaymssociety.

org. g MS Research.

Carepartner & Family Group

Page 24: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

When Dennis Murphy was diagnosed with MS in 2008, he looked for answers.

“Education is everything,” Dennis said. “The more educated you can be the more proactive you can be and the more prepared you can be for whatever happens when it comes around the corner.”

With that in mind Dennis and his wife Kathy attended the Chapter’s Relationship Matters program in Cape Girardeau designed for couples living with MS and carepartners. The Murphys learned they aren’t alone and they face issues other people face every day.

“The weekend was nice because you hear other couple’s stories and things resonate with things that we are struggling with,” Kathy said. “It was very valuable talking to others about different stages of the disease and different resources. We didn’t know there were this many resources available!”

Dennis is used to going 110 miles an hour. He has worked multiple jobs, been a community coordinator, a church pastor as well as a father and grandfather. Kathy has to walk a fine line on when to help and when to let Dennis be independent. Learning strategies to walk that fine line was one of the reasons the Murphys attended Relationship Matters.

“I try to be so independent and she is a natural caregiver, Dennis said. “I could see that it was creating some stress for her not being able to do things for me like she would like to. I thought the program would be a really good fit for us and for where we’re at in our relationship.”

“My husband is my hero with MS because he never complains,” Kathy said. “The first time it really affected us is when we went to the zoo with the kids and he was really struggling and he just kept walking and never complained. That was very brave on his part and he tried to protect us from how he was feeling. As his wife it upsets me to

see him struggling or know he’s in pain, but at the same time I really see how brave he is and he keeps on going. That’s why he’s my hero.”

Relationship Matters: Couples Living with MS

Kathy calls her husband Dennis, who was diagnosed in 2008, her hero for how he handles living with MS.

Page 25: National MS Society, Gateway Area Chapter 2012 Wall Calendar

November

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DECEMBER 2012

Daylight Saving Time Ends Veteran’s DayElection Day

All Saints Day

Thanksgiving Day

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OCTOBER 2012

Chapter Open House

Volunteer Orientation

November is National Caregiver’s month. Check out resources at

gatewaymssocity.org g “Learn about MS” g “For Caregivers.”

Wellness Network

Page 26: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

KATE SMITHYOUNG PROFESSIONALS VOLUNTEERFor me, volunteering is an opportunity to make a positive impact. At the same time, I get the benefit of meeting amazing people and learning team work and persistence, so it’s a win win! Getting the Young Professionals Group off the ground has had its ups and downs and sticking with it while the group grows has taught me invaluable lessons. I am constantly amazed by the number of people and programs working to cure this disease! I’ve also learned a lot about leadership, team work, networking, and community building. These are all invaluable skills and its pretty neat that I’ve been able to learn all of this while giving something back to my community.

KYLE ANDREWSDO IT YOURSELF VOLUNTEER

I volunteer my time to organize Do-It-Yourself events with 100% of proceeds benefiting the Gateway Area Chapter because my mom was diagnosed with MS when I was 3. The disease has always hit us literally close to home. It is my way of fighting back after watching my mom suffer all these years. I always dedicate these events to my mom. I’ve learned how many of your friends and family are willing to support you and your cause. People just seem to be happy when they are able to help out. It makes me feel good and adds smiles to other people’s faces, especially my mom’s.

JOYCE CLARK TELEFRIEND VOLUNTEER

I have lived with MS for 40 years and have been a Telefriend Volunteer for more than 20. I enjoy hearing and talking to people with MS as they are trying to live a better life. Everybody needs a chance to be able to help themselves. The people I call inspire me and it is interesting to learn things from them that I can apply to my life. When I was diagnosed with MS, my children were small and I did everything anyone would have done with small children and it was tough at times, but I had to keep doing it. I hope in some small way, my volunteer calls help keep people moving.

We couldn’t do it without you!Thank You Volunteers

Page 27: National MS Society, Gateway Area Chapter 2012 Wall Calendar

December

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JANUARY 2013S M T W T F S

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Sunday Monday Tuesday Wednesday Thursday Friday Saturday

Christmas Day Kwanzaa Begins

First Day of Winter

Hanukkah Begins

New Year’s Eve

Pearl HarborRemembrance Day

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Thank you for Joining the Movement with us. Remember we have something for everyone at the National MS Society. If you want to volunteer for a couple of hours, a day, or throughout the year, we have a fulfilling

volunteer project for you. Go to gatewaymssociety.org g Volunteer for more.

Wellness Network

Carepartner & Family Group

Awards PartySt. Louis, MO

2012Chapter Open House

Volunteer Orientation

Page 28: National MS Society, Gateway Area Chapter 2012 Wall Calendar

www.gatewayMSsociety.org | 800-344-4867

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We hope you enjoy the Gateway Area Chapter’s 2012 calendar.

We hope you find it useful and will join us this year by trying a program you haven’t before or inspiring our event participants through the Champions program.

For the most up-to-date information go to gatewaymssociety.org g Chapter Calendar or follow us online.

Have a very safe and Happy New Year!

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