National Institute on Deafness and Other Communication Disorders (NIDCD) and EHDI Research Amy Donahue, Ph.D. Marin Allen, Ph.D.

National Institute on Deafness and Other Communication

Disorders (NIDCD) and EHDI Research

Amy Donahue, Ph.D. Marin Allen, Ph.D.

Much of the biomedical research in the United States is Much of the biomedical research in the United States is supported by the Federal Government, primarily the supported by the Federal Government, primarily the

National Institutes of Health (NIH)National Institutes of Health (NIH)

NIDCD and EHDINIDCD and EHDI

Active research programs in many areas Active research programs in many areas relating to HL in infants and children, and relating to HL in infants and children, and we will continue and foster more we will continue and foster more

We set aside money to fund special We set aside money to fund special initiatives initiatives

The audiology, speech pathology, and The audiology, speech pathology, and medical communities are actively engagedmedical communities are actively engaged

Seeking answers to the changing issues Seeking answers to the changing issues and questions before us and questions before us

Areas of ResearchAreas of Research

Cochlear Implants Cochlear Implants Hearing AidsHearing Aids Normal Auditory DevelopmentNormal Auditory Development Auditory DisordersAuditory Disorders Auditory Diagnostic TestsAuditory Diagnostic Tests Speech and Lang Dev in Infants and Speech and Lang Dev in Infants and

ChildrenChildren Acquisition of American Sign LangAcquisition of American Sign Lang

Special EHDI InitiativesSpecial EHDI Initiatives

Intervention Strategies Following Early Intervention Strategies Following Early Identification of HIIdentification of HI

Genetic Testing and the Clinical Genetic Testing and the Clinical Management of Infants with Management of Infants with Nonsyndromic HINonsyndromic HI

Auditory/Perceptual Processing in Auditory/Perceptual Processing in Infants with HI: Issues in Assessment Infants with HI: Issues in Assessment and Managementand Management

Health CommunicationHealth Communication

ResearchResearch to investigate methods to inform to investigate methods to inform the public and to be used with public health the public and to be used with public health and professional audiences in and professional audiences in disseminating information.disseminating information.

ResourcesResources for infants with newly identified for infants with newly identified HL (Boystown, Univ Arkansas, Children’s HL (Boystown, Univ Arkansas, Children’s Hospital Philadelphia) as well as the NIDCD Hospital Philadelphia) as well as the NIDCD websitewebsite

Congenital CytomegalovirusCongenital Cytomegalovirus

Current initiative calls for a seven year Current initiative calls for a seven year studystudy

To evaluate presence of CMV and To evaluate presence of CMV and long-term audiologic/otologic outcomelong-term audiologic/otologic outcome

To address clinical validity and utility To address clinical validity and utility of CMV screening in the detection of of CMV screening in the detection of HI in the newborn and well as HI in the newborn and well as prediction of later onset HL after prediction of later onset HL after newborn periodnewborn period

NIDCD NIDCD Office of Health Communication Office of Health Communication

and Public Liaisonand Public Liaison

Labor DayLabor Day initiative started this year. Radio initiative started this year. Radio and print articles distributed on follow-and print articles distributed on follow-through to national audience for the first through to national audience for the first time. August is the month the most babies time. August is the month the most babies are born in the U.S. Labor Day weekend are born in the U.S. Labor Day weekend reminder about follow through (and testing) reminder about follow through (and testing) for parents, grandparents and friends of for parents, grandparents and friends of newborns. More to come in 2004 . .newborns. More to come in 2004 . . . .

Disseminated syndicated articles Disseminated syndicated articles in English and Spanishin English and Spanish

Bring Those Babies Back (Early ID Follow-through)Bring Those Babies Back (Early ID Follow-through)

new release has already generated 16 newspaper new release has already generated 16 newspaper articlesarticles

& Spanish version (just released)& Spanish version (just released) Pointers for Parents, Pointers for Parents, “Will Your Baby’s Hearing Be “Will Your Baby’s Hearing Be

Screened?”Screened?” generated 220 newspaper articles in 27 generated 220 newspaper articles in 27 states with a readership of 15.2 million to Jan 2004.states with a readership of 15.2 million to Jan 2004.

Pointers for Parents, Spanish Language article Pointers for Parents, Spanish Language article “Consejos para los padres”“Consejos para los padres” generated 124 newspaper generated 124 newspaper articles in 9 states with a readership of 8.7 million to articles in 9 states with a readership of 8.7 million to Jan 2004.Jan 2004.

EmphasizingEmphasizing . . . . . .

Health LiteracyHealth Literacy Cultural Cultural

CompetencyCompetency Support for Support for

decision-makingdecision-making

In the end…In the end…

NIDCD will continue to work with our federal NIDCD will continue to work with our federal partners to support the EHDI missionpartners to support the EHDI mission

But EHDI could not, and will not, happen But EHDI could not, and will not, happen without you…working diligently in your without you…working diligently in your home state. home state.

As your colleague, I thank you…As your colleague, I thank you…

And wish you a productive conference!And wish you a productive conference!