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ANALISIS JURNAL Effect of Family Empowerment Model on Quality of Life in Children with Chronic Kidney Diseases Oleh : Ricky Riyanzah 130100428 SEKOLAH TINGGI ILMU KESEHATAN ALMA ATA PROGRAM STUDI ILMU KEPERAWATAN YOGYAKARTA 2014
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  • ANALISIS JURNAL

    Effect of Family Empowerment Model on Quality of Life in Children

    with Chronic Kidney Diseases

    Oleh :

    Ricky Riyanzah 130100428

    SEKOLAH TINGGI ILMU KESEHATAN ALMA ATA

    PROGRAM STUDI ILMU KEPERAWATAN

    YOGYAKARTA

    2014

  • Kata Pengantar

    Assalamualaikum Wr. Wb

    Puji syukur penulis panjatkan kepada Allah SWT yang telah memberikan rahmat

    serta hidayahNya kepada penulis, sehingga penulis dapat menyelesaikan makalah

    analisis jurnal tentang Effect of family empowerment model on quality of life in

    children with chronic kidney diseases Block Urogenital system.

    Penulis menyadari bahwa dalam menyusun makalah ini pasti masih banyak

    kesalahan ataupun kekeliruan. Untuk itu demi sempurnanya makalah ini, penulis

    membuka kritik dan juga saran.

    Wassalamualaikum Wr. Wb

    Yogyakarta, 16 April 2015

    Penulis

  • Daftar isi

    Halaman Judul ................................................................................................. i

    Kata Pengantar ................................................................................................. ii

    Daftar Isi .......................................................................................................... iii

    Analisa Jurnal .................................................................................................. 1

    Lampiran Jurnal ............................................................................................... 10

  • ANALISIS JURNAL

    No. Komponen yang di

    analisis

    Hasil analisis Komentar

    1. Alasan pengambilan judul Ingin mengetahui pengaruh model

    pemberdayaan keluarga pada kualitas

    hidup pada anak-anak dengan penyakit

    ginjal kronis.

    Alasan pengambilan judul sudah

    sesuai dan menarik untuk ditiliti

    2.

    Judul:

    a. Singkat

    Effect of family empowerment model

    on quality of life in children with

    chronic kidney diseases.

    Menurut Setiadi (2007) tidak boleh

    lebih dari 20 kata karena untuk

    menimbulkan kerancuan. Pada

    jurnal ini sudah sesuai.

    b. Mengambarkan

    masalah dan variable

    yang diteliti

    Judul sudah menggambarkan masalah

    variable yang akan diteliti dan sudah

    meliputi apa dan siapa subyek

    penelitian.

    Judul yang diambil sudah cukup

    jelas dan dan menarik untuk di

    analisis.

    c. Tempat dan waktu

    penelitian

    Tidak menyebutkan tempat dan waktu

    penelitian.

    Sebaiknya mencantumkan tempat

    dan waktu penelitian agar lebih

    jelas.

    3. Penulis (Peneliti) dan

    Alamat

    Nama-nama peneliti :

    1. Zohreh Ghazavi

    Alamat : Department of Pediatric

    Nursing, Faculty of Nursing and

    Midwifery, Isfahan University of

    Medical sciences, Isfahan, Iran

    2. Marzieh Sadat Minooei

    Alamat : Student Research Center,

    Faculty of Nursing and Midwifery,

    Isfahan University of Medical

    sciences, Isfahan, Iran

    3. Zahra Abdeyazdan

    Alamat : Nursing and Midwifery

    Care Research Center, Faculty of

    Penulisan nama peneliti sudah

    sesuai urutan dimulai dengan

    peneliti utama dan pendamping.

  • Nursing and Midwifery, Isfahan

    University of Medical sciences,

    Isfahan, Iran

    4. Alaleh Gheissari

    Alamat : Isfahan Kidney Research

    Center, School of Medicine,

    Isfahan University of Medical

    sciences, Isfahan, Iran

    4. Abstrak:

    a. Tujuan

    Penelitian ini bertujuan untuk

    mengetahui dampak dari model

    pemberdayaan keluarga pada kualitas

    hidup pada anak-anak dengan penyakit

    ginjal kronis.

    Tujuan dari jurnal sudah ada dan

    jelas.

    b. Desain penelitian Tidak menyebutkan desain penelitian

    yang digunakan.

    Desain penelitian seharusnya

    disebutkan untuk mengetahui

    desain yang digunakan.

    c. Tempat penelitian Tempat penelitian tidak disebutkan. Sebaiknya menyertakan tempat

    penelitian agar lebih jelas.

    d. Waktu penelitian Waktu penelitian tidak disebutkan. Waktu penelitian seharusnya di

    sebutkan.

    e. Populasi penelitian 64 anak-anak dengan penyakit ginjal

    kronis dan keluarga mereka.

    Populasi penelitian sudah ada.

    f. Teknik pengambilan

    data

    Pengambilan data pada jurnal ini

    menggunakan kuesioner.

    Sudah dicantumkan teknik

    pengmbilan data.

    g. Hasil penelitian Menunjukkan perbedaan yang

    signifikan dalam kualitas hidup

    sebelum dan sesudah intervensi pada

    kelompok studi.

    Hasil penelitian jurnal sudah ada

    dan jelas.

    h. Kesimpulan Temuan menunjukkan bahwa model

    pemberdayaan keluarga adalah efektif

    dalam meningkatkan kualitas hidup

    anak-anak dengan penyakit ginjal

    kronis.

    Sudah dicantumkan kesimpulan

    dalam abstrak, untuk mengetahui isi

    jurnal dengan cepat.

  • i. Jumlah kata 233 kata. Sesuai dengan ketentuan yaitu

    antara 150-250 kata.

    j. Kata kunci Terdapat 3 kata kunci. Tidak lebih dari 5 kata penting.

    5. Pendahuluan Penyakit kronis merupakan penyakit

    jangka waktu yang panjang, biasanya

    lebih dari 6 bulan, dan sering sampai

    akhir pasien hidup.(Berman A. 2007).

    Statistik yang ada menunjukkan bahwa

    jumlah pasien dengan penyakit ginjal

    kronis berkembang, sehingga 1,5 juta

    pasien dari semua pasien dengan

    penyakit kronis memiliki penyakit

    ginjal. Oleh karena itu, program

    pemberdayaan yang diperlukan untuk

    meningkatkan kualitas hidup mereka.

    Penulis mencantumkan beberapa

    referensi pada pendahuluan sebagai

    dasar atau acuan untuk mengadakan

    penelitian.

    6. Metode penelitian Jenis penelitian

    Penelitian deskriptif-analitik.

    Tempat dan waktu penelitian

    Tempat dan waktu penelitian tidak

    disebutkan.

    Populasi dan sampel penelitian

    64 anak-anak dengan penyakit

    ginjal kronis dan keluarga mereka.

    Kriteria sampel penelitian

    Anak-anak usia 8-12 tahun, tidak

    ada riwayat transplantasi ginjal dan

    stadium akhir penyakit ginjal.

    Metode analisa data

    Model pemberdayaan keluarga

    berisi empat langkah :

    1. Peningkatan pengetahuan.

    2. Peningkatan self-efficacy.

    3. Peningkatan harga diri melalui

    Pada metode penelitian ini kurang

    mencantumkan tempat dan waktu

    penelitian dalam jurnal.

  • partisipasi pendidikan.

    4. Evaluasi proses.

    Kemuadian data dianalisis dengan

    statistik deskriptif dan analitik.

    7. Teknik pengumpulan data Teknik pengumpulan data

    menggunakan kuesioner yang diisi

    oleh orang tua dan anak.

    Cara pengumpulan data sudah

    tepat.

    8. Instrument penelitian Menggunakan demografi karakteristik

    kuesioner dan angket Core Ped QoL,

    version 4.

    Instrumen penelitian sudah ada dan

    baik digunakan dalam penelitian

    ini.

    9. Hasil dan bahasan Hasil penelitian menunjukkan bahwa

    nilai rata-rata (deviasi standar) dari

    kualitas hidup secara fisik, dimensi

    psikososial,dan total skor QOL adalah

    81,1 (14), 80,2 (13,8), dan 80,5 (12,3),

    masing-masing, sebelum intervensi

    dan 87,3 (9,4) , 86,5 (7,6) dan 86,8

    (7,4), masing-masing, setelah

    intervensi. Paduan t-test menunjukkan

    perbedaan yang signifikan sebelum

    dan sesudah intervensi. Independen t-

    test menunjukkan tidak ada perbedaan

    yang signifikan dalam skor total rata-

    rata kualitas hidup sebelum intervensi

    pada kedua kelompok, tetapi

    perbedaan itu signifikan setelah

    intervensi. Teimori et al. (2011), dalam

    sebuah studi untuk menentukan efek

    yang berpusat pada keluarga

    pemberdayaan pada kualitas hidup

    anak-anak dengan asma, menunjukkan

    perbedaan yang signifikan dalam skor

    total anak-anak dari kualitas hidup

    sebelum dan sesudah intervensi pada

    Dalam jurnal ini menunjukkan hasil

    yang jelas serta dalam

    pembahasanya mencantumkan dan

    membandingkan dari sumber atau

    penelitian sebelumnya, sehingga

    hasil lebih baik.

  • kelompok studi dan kontrol.

    10. Simpulan dan saran Kesimpulan

    Sebagai hasilnya menunjukkan,

    pemberian model pemberdayaan

    keluarga dapat meningkatkan kualitas

    hidup anak-anak usia 8-12 tahun

    dengan penyakit ginjal kronis.

    Saran

    Dengan demikian, kami menyarankan

    model ini akan digunakan dalam

    perawatan kesehatan rawat inap dan

    rawat jalan anak-anak.

    Jurnal ini telah memberi

    kesimpulan dan saran, namun

    terlalu singkat.

    11. Kaidah penulisan Kaidah penulisan penelitian jurnal ini

    dimulai dari judul, abstrak,

    pendahuluan, metode penelitian, hasil

    penelitian, pembahasan, kesimpulan

    dan menyertakan referensi.

    Kaidah penulisan sudah sesuai

    dengan ketentuan-ketentuan pada

    umumnya.

    12. Referensi Urutan pengutipan :

    Jurnal ini telah menguraikan kutipan

    secara berurutan. Namun penempatan

    tidak alfabeth.

    Nama dan Judul :

    Nama pengarang dan judul

    dicantumkan pada referensi.

    Tahun dan Halaman :

    Jurnal ini telah menuliskan referensi

    dengan tahun terbit dan halaman nya.

    Dalam jurnal ini mencantumkan

    banyak referensi sehingga dapat

    memperkuat penelitian.

    13. Implikasi keperawatan Perawat dapat menerapkan peran

    sebagai edukator. Dan perlunya

    keterlibatan keluarga pasien dalam

    kualitas hidup pasien.

    Penting bagi perawat untuk

    menerapkan dalam asuhan

    keperawatan.

    14. Kesimpulan jurnal Perawat mengedukasi keluarga dalam

    perawatan kesehatan rawat inap

    Diharapkan metode ini dapat

    diterapkan dengan baik oleh

  • maupun rawat jalan, agar kualitas

    hidup anak lebih baik sehingga dapat

    mengatasi penyakit ginjal kronis pada

    anak.

    perawat.

    15. Rekomendasi Disarankan untuk melakukan studi

    lebih lanjut di kelompok usia lainnya

    dan penyakit kronis lainnya.

    Dalam upaya meng-update ilmu

    pengetahuan, maka penelitian ini

    dapat dilanjutkan.

  • 371 Iranian Journal of Nursing and Midwifery Research | July-August 2014 | Vol. 19 | Issue 4

    Effect of family empowerment model on quality of life in children with chronic kidney diseases

    Zohreh Ghazavi1, Marzieh Sadat Minooei2, Zahra Abdeyazdan3, Alaleh Gheissari4

    AbstrActBackground: Quality of life is a concept, which in recent years is considered as a measure for health in chronic diseases such as kidney diseases. Complications of chronic diseases can affect the quality of life in children and their families over time. Therefore, empowerment programs are necessary to improve their quality of life. This study aimed to investigate the impact of the family empowerment model on the quality of life in children with chronic kidney diseases.Materials and Methods: This quasi-experimental study was conducted on 64 children with chronic kidney diseases and their families. The research tools included the questionnaire of demographic characteristics and the quality of life questionnaire 4th edition. After data collection in the first phase, the family empowerment model was implemented in the intervention group and the test was repeated after 1 month. For comparison of data between the two groups and within each group, independent t-test and paired t-test were used, respectively.Results: Independent ttest showed that the mean score of quality of life was not significantly different in the two groups before intervention. However, after intervention, the differences were significant. Paired ttest showed a significant difference in the quality of life before and after intervention in the study group.Conclusions: The findings showed that family empowerment model was effective in increasing the quality of life of children with chronic kidney diseases. Thus, we suggest this model to be used in inpatient and outpatient childrens health care.

    Key words: Chronic kidney disease, family empowerment, quality of life

    1Department of Pediatric Nursing, Faculty of Nursing and Midwifery, Isfahan University of Medical sciences, Isfahan, Iran, 2Student Research Center, Faculty of Nursing and Midwifery, Isfahan University of Medical sciences, Isfahan, Iran, 3Nursing and Midwifery Care Research Center, Faculty of Nursing and Midwifery, Isfahan University of Medical sciences, Isfahan, Iran, 4Isfahan Kidney Research Center, School of Medicine, Isfahan University of Medical sciences, Isfahan, Iran

    Address for correspondenc: Dr. Zahra Abdeyazdan, Department of Pediatrics, Faculty of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran. Email: [email protected]

    chronic renal diseases is growing, such that 1.5 million patients out of all patients with chronic diseases have renal diseases.[4] The total population of patients with chronic renal diseases has been reported to be 16,000, and is predicted to grow by twofold by the end of year 2012.[5] There is no available statistics about children with chronic renal diseases in Iran. Chronic renal diseases, as a threatening condition for patients health and socioeconomic status, as well as their families and society,[3] can also change the childrens and families quality of life (QOL).[6] Based on the World Health Organization (WHO) statement, QOL includes individuals perceptions from their life situation with regard to their culture, value system, goals, expectations, standards, and concerns.[7] Therefore, the point important in treatment of a chronic disease like renal disease is promotion of patients QOL, in addition to control of disease signs. Health and treatment team members can affect patients QOL through investigation of individuals health and its provision. They can also determine the negative impact of the disease on individuals QOL through measurement of QOL.[8] One of the ways to improve QOL in children with chronic diseases is empowerment of the families. Family empowerment includes the interaction of health professionals with the families, so that it causes a sense of control of families life and leads to achievement to positive changes in the

    Original Article

    IntroductIon

    Chronic diseases refer to the diseases which exist for a long period, usually more than 6 months, and often to the end of patients life.[1] Therefore, these diseases are expected to affect patients interactions with the physical and social environment they live in.[2] Chronic diseases include a vast range of heart diseases, respiratory diseases, asthma, and renal diseases. Among them, renal diseases, which lead to gradual dysfunction of kidneys for more than 3 months, are one of the major causes for mortality and morbidity in the world.[3]

    Existing statistics show that the number of patients with

  • Ghazavi, et al.: Family empowerment and quality of life

    Iranian Journal of Nursing and Midwifery Research | July-August 2014 | Vol. 19 | Issue 4 372

    direction of power, ability, and enhancement of skillsin families.[9]

    Family empowerment is so important. The nature of renal diseases disturbs the unit of the family and leaves serious complications since children with renal diseases receive a major part of their treatment at home and study in usual schools. Unfortunately, despite there being numerous researches conducted concerning familycentered cares and family empowerment, these cares are not basically administered based on parentsnurses reciprocal interactions.[10]

    In Iran, familycentered care and family empowerment do not seem to be administered, since what is done is just oneside decision, made and conducted by nurses and physicians.

    The goal of nursing interventions in family empowerment is to improve the ability of family members so that they can come over the existing obstacles in health context. Chronic renal diseases disturb the unit of family and leave serious complications.

    So, family empowerment can diminish hospitalization costs and number, improve physical and mental function, and reduce disease signs and school absenteeism of children with renal diseases. Researcher observations and experiences in various pediatric wards confirm that what these childrens parents receive is unstructured and disorganized information given to them by the physicians and nurses at the time of discharge, which is often forgotten due to lack of repetition and the use of medical terms in this education after discharge. These families should live their life in peace and physical and mental health from the time their children chronic disease is diagnosed, and have the ability of decisionmaking and determination of priorities for their own needs as well as their childrens. The parents skills should be confirmed by nurses, although the families are deprived of this right. Therefore, the researcher decided to investigate the effect of family empowerment on QOL of the children with chronic renal diseases, in order to suggest appropriate strategies for the promotion of their QOL.

    MAterIAls And Methods

    This was a quasiexperimental twogroup twostep study conducted on 64 children with chronic renal diseases and their families in two groups of study and control after obtaining their parents written consent. Inclusion criteria were age 812 years, no history of kidney transplantation and endstage renal diseases, childrens and their families interest to attend the study, ability of reading and writing

    in at least one of the parents, ability to understand Persian, children not affected withany other chronic diseases, parents not working as members of health and treatment team, lack of mental and psychological problems, and ability to fill the questionnaire. The exclusion criteria were patients interest to stop cooperating in the study, events such as parents divorce, parents or brothers or sisters death, and change of address during the study. The offices of childrens renal diseases subspecialists were selected as the research environment. Data collection tools were the demographic characteristics questionnaire and the questionnaire of Core Ped QoL, version 4. This questionnaire includes 23 questions of which 8 are on physical function and 15 are on psychosocial function (5 on emotional function, 5 on social function, and 5 on school function). Persian version of core Ped QoL was confirmed by Masaeli (2009) with Cronbachs alpha of 0.89.[11] The questionnaire was filled by the child and his/her parents, and if needed, by one of the researchers in two stages of before and 1 month after the last family empowerment session in the study and control groups in identical time points. Researcher, with agreement of the subjects, held needs assessment sessions of the study group in a building near one of the offices of childrens renal diseases subspecialists, and after detection of resources, limitations, needs, and weak points of the children and their parents, designed the content of empowerment program. Then, family empowerment model was held based on its steps and stages in six 45min sessions, according to childrens needs and tolerance. Three group discussion sessions were held for the parents too. Control group received no intervention. Family empowerment model contains four steps that are discussed below.

    First step (knowledge increase)The level of knowledge was improved in educational sessions through use of educational assistive materials such as Power Point, model, poster, group discussion methods, question and answer, lecture, and presentation. The subjects were assigned to 35 member groups based on their disease and received educational contents in a total of six 45min sessions (four sessions of theory and two sessions of practical presentation) as follows.

    In the first session physiology and anatomy of kidney, the children introduced themselves, and then, the general and behavioral goals, the evaluation method, and the duties of the subjects in educational sessions were explained by the researcher.

    In the second session, the researcher explained the cause, signs, complications, and prognosis. In the third session, nutrition and laboratory tests and their normal values were explained. In the fourth session, medication was discussed

  • Ghazavi, et al.: Family empowerment and quality of life

    373 Iranian Journal of Nursing and Midwifery Research | July-August 2014 | Vol. 19 | Issue 4

    with the children. For instance, the researcher explained the effect on nutrition on the disease. Then, the participants started discussing about it, based on their experiences, and the researcher conducted the session. Length of each session, based on childrens desire, was decided to be 45 min. At the end of each session, the given materials were finalized and the questions were answered, and finally, the data and goal of the next session were determined. In each session, two questions were asked to the children in relation with the subjects of former sessions to evaluate the level of their learning.

    Second step (improvement of self-efficacy)To increase selfefficacy, two educational sessions were held by the practical presentation method. It was such that after explanation of each skill of weight and BP measurement, the skill was practically presented and taught to the children as follows:1. Firstly, the researcher explained to the children about

    the related skill and its importance, the complications that arise due to lack of its control, and normal values of these measurements

    2. The researcher presented the ultimate procedure of the skill in front of the children

    3. Then, she divided the skill into more detailed components(for instance, concerning weight measurement, voiding before weight measurement, weight control after getting up in the morning, wearing identical clothes, tuning the scales gage, standing on the scales with no vertical pressure, and holding nothing during measurement)

    4. The children were asked to do the task5. The children were given a chance to get skillful by

    practice and repetition of the skill to be able to do it6. The children were asked to obtain selfefficacy in other

    components of the skill through practice and repetition to be able to do it without researchers attendance

    7. Finally, the children got completely selfefficient in the skill8. Childrens learning and the feeling of learning, as

    well as the ability of measurement and the feeling of capability resulted in their encouragement and increased selfesteem.

    Third step (increase of self-esteem through educational participation)At this stage, the children were asked to participate in their parents education concerning recognition of chronic diseaserelated issues and encourage their parents to help them. They transferred all they had learned in each group discussion session as well as all through observation in selfefficacy sessions to their parents. At this stage, the educational card of each session was given to the children and they were asked to pass the card to their parents to study. Parents wrote down their questions in this regard on a piece of paper after studying the card, concerning what

    they had learned from their children. If the parents were not interested in writing down the materials, they orally expressed their questions and their children wrote them down to be delivered to the researcher or to be discussed in the next session. In cases where the parents did not get selfefficient through their childrens education and by studying the educational card, they were invited to discuss the disease trend, nutrition, physical activity, medication, and disease complications with the researcher during three 45min educational sessions. Two weeks after holding the last session, phone calls were made to the subjects by the researcher to followup the skills and to be assured about application of the presented materials. In case of any further questions, researchers phone number was given to the subjects for clarification.

    Fourth step (process evaluation)In empowermentrelated sessions, an evaluation was made.

    In order to evaluate the knowledge at the beginning of each session, two oral questions were asked to the children from the previous sessions. Selfefficacy evaluation was conducted by asking the children to represent two related skills correctly and their selfconfidence and cooperation in education was evaluated in the form of returning the educational card related to their parents notes.

    Final evaluationOne month after the last empowerment session held in the study group, core Ped QoL inventory was given to the study and control groups. Data were analyzed by descriptive and analytical statistics (Chisquare, paired ttest, independent ttest) through SPSS.

    results

    In the present study, frequency distribution of the childrens education, location of residence, fathers education, mothers education, fathers occupation, and mothers occupation were identical [Table 1]. Subjects mean ages were 9.8 years and 10 years in the study and control groups, respectively. The mean lengths of disease were 5 years and 4.4 years and the mean ages of disease diagnosis were 5 years and 5.4 years in the study and control groups, respectively. Results showed no significant difference in the mean scores of QOL in the physical (P = 0.78) and psychosocial (P = 0.71) dimensions and the total score of QOL (P = 0.71) before intervention, but this difference was significant after intervention in physical (P = 0.02) and psychosocial (P = 0.01) dimensions and the total score of QOL (P = 0.007) in the study and control groups [Table 2]. There was also a significant difference in the mean scores of QOL in physical (P = 0.02) and

  • Ghazavi, et al.: Family empowerment and quality of life

    Iranian Journal of Nursing and Midwifery Research | July-August 2014 | Vol. 19 | Issue 4 374

    psychosocial (P = 0.03) dimensions and the total QOL score (P = 0.02) after intervention, but this difference was not significant in the control group in physical (P = 0.81) and psychosocial (P = 0.81) dimensions and the total score of QOL (P = 0.79) [Table 2]. Results showed that the mean scores (standard deviation) of QOL in physical, psychosocial dimensions, and the total score of QOL were 81.1 (14), 80.2 (13.8), and 80.5 (12.3), respectively, before intervention and 87.3 (9.4), 86.5 (7.6) and 86.8 (7.4),

    respectively, after intervention. Paired ttest showed a significant difference before and after intervention. This difference was not significant in the control group.

    dIscussIon

    Independent ttest showed no significant difference in the mean total scores of QOL before intervention in the two groups, but the difference was significant after intervention. Teimori et al. (2011), in a study to define the effect of familycentered empowerment on QOL of the children with asthma, showed a significant difference in the childrens total scores of QOL before and after intervention in the study and control groups.[12]

    Allahyari et al., in a study on the effect of family empowerment model based on the of schoolage children with thalassemia, showed a significant difference in the total scores of childrens general QOL before and after intervention in the study and control groups,[13] which is consistent with our findings. Independent ttest showed no significant difference in QOL in the physical dimension means scores between the two groups before intervention, but the difference was significant after intervention. Yao et al. (2011) showed no significant difference in the QOL in children with vesicoureteral reflux in physical dimension compared to healthy children (P = 0.9999).[14] Buyan et al. (2009), in a study on QOL in children with a chronic kidney disease, showed no significant difference in QOL in the physical dimension between the study and control groups.[15] Marciano et al. showed that QOL score in the physical dimension was significantly lower in children with chronic renal diseases compared to healthy children.[16] Our obtained results are not in line with the results of previous studies. One of the reasons for the significant difference in the QOL score in physical dimension is that in our study, two identical groups of patients were compared, and on the other hand, it was

    Table 1: Demographic characteristics of the subjects in the study and control groups

    P(%) No.VariableControlStudy

    Sex

    P=0.44(65.2) 21(56.2) 18Female

    (34.4) 11(43.8) 14Male

    Residential location

    P=0.39(71.9) 23(65.6) 21City

    (28.1) 9 (34.4) 11Village

    Educational level of the child

    P=0.96(12.5) 4(25) 8Second

    (25) 8(15.6) 5Third

    (25) 8(9.4) 3Fourth

    (21.9) 7(31.2) 10Fifth

    (15.6) 5(18.8) 6Others

    Mothers occupation

    P=0.56(83.9) 26(78.1) 25Home maker

    (16.1) 5(21.9) 7Employee

    Fathers occupation

    P=0.33(35.5) 11(40.6) 13Employee

    (12.9) 4(28.1) 9Worker

    (41.9) 13(25) 8Self-employed

    (9.7) 3(6.2) 2Others

    Mothers education

    P=0.38(9.4) 3(9.4) 3Primary

    (25) 8(15.6) 5Secondary

    (40.6) 13(40.6) 13Diploma

    (3.1) 1 (6.2) 2Associate degree

    (18.8) 6(21.9) 7BS

    (3.1) 1(6.2) 2>BS

    Fathers education

    P=0.2(6.2) 2(3.1) 1Illiterate

    (15.6) 5(9.4) 3Primary

    (25) 8(21.9) 7Secondary

    (28.1) 9(25) 8Diploma

    0(3.1) 1Associate degree

    (15.6) 5(25) 8BS

    (9.4) 3(12.5) 4>BS

    Table 2: Mean and SD of childrens QOL dimensions scores before and after intervention in the study and control groupsQOL dimensions (SD) Mean Independent

    t testStudy Controlt P

    Before

    Physical 81.1 (14) 80 (15.9) 0.29 P=0.78

    Psychosocial 80.2 (13.8) (17.3) 78.8 0.37 P=0.71

    Total (13.8) 80.2 (16) 79.2 0.37 P=0.71

    After

    Physical function 87.3 (9.4) 79.4 (15.3) 2.5 P=0.02

    Psychosocial function 86.5 (7.6) 78.3 (16.2) 2.6 P=0.01

    Total 86/8 (7.4) 78.7 (14.7) 2.8 P=0.007

    QOL: Quality of life, SD: Standard deviation

  • Ghazavi, et al.: Family empowerment and quality of life

    375 Iranian Journal of Nursing and Midwifery Research | July-August 2014 | Vol. 19 | Issue 4

    an interventional study, whereas Yao et al. and Buyan et al. compared the QOL of healthy and diseased children in a descriptive study. In the present study, independent ttest showed no significant difference in the QOL mean scores in psychosocial dimension before intervention in the study and control groups, but the difference was significant after intervention. Mary Banacg et al. (2010), in a study on family empowerment in stress management and childrens autism diagnosis acceptance, showed a significant difference in the empowerment of supportive systems after intervention[17] (P > 0.000). Marciano et al. (2011), in their study on behavioral disorders and low QOL in children and adolescents with chronic kidney diseases, showed that the QOL score in psychosocial dimension in these children was significantly lower, compared to that of healthy children[16] (P = 0.0001). Graves and Shelton, in a study on the effect of family empowerment on improvement of behavioral disorders in children, showed that these disorders were significantly different before and after intervention,[18] which is consistent with the abovementioned studies. Paired ttest results presented in Table 2 show a significant difference in the QOL scores in physical and psychosocial dimensions and the total score of QOL in the study group before and after intervention, but the difference in the control group was not significant.

    conclusIon

    As the results showed, administration of family empowerment model can increase the QOL of children of age 812 years with chronic renal diseases. It is suggested to conduct further study in other age groups and for other chronic diseases.

    AcknowledgMents

    The researchers of this study want to thank the Research Center of the Faculty of Nursing and Midwifery of Isfahan University of Medical Sciences, collaborators, and diabetic participants for their cooperation.

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    How to site: Ghazavi Z, Minooei MS, Abdeyazdan Z, Gheissari A. Effect of family empowerment model on quality of life in children with chronic kidney diseases Iranian Journal of Nursing and Midwifery Research 2014;19:3715.

    Source of Support: Grant No. 391138, Conflict of Interest: Nil.