Healthy Brain Initiative: Addressing Confusion, Memory Loss and Care Partner Needs in Illinois Presenters: Rhonda Clancy, MS, Project Coordinator, Healthy Brain Initiative Illinois Department of Public Health Nora Kelly, MPH, Data & Surveillance Team Illinois Department of Public Health Albert Botchway, PhD, Research Associate, Center for Clinical Research Southern Illinois University, School of Medicine Laurie Call, BA, Director, Center for Community Capacity Development Illinois Public Health Institute
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Illinois Healthy Brain Initiative - University of …...Illinois Healthy Brain Initiative Funding to IDPH Develop state and regional data Burden Briefs and a statewide webinar to increase
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How state and local public health agencies and their
partners can promote cognitive functioning, address
confusion and memory loss among community
members and help meet the needs of care partners.
Public health and aging agencies and private, non-
profit, and governmental partners are encouraged to
work together on actions that best fit their missions,
needs, interests and capabilities.
Roadmap Action Items
35 action items addressing four traditional domains
of public health:
1) monitor and evaluate
2) educate and empower the nation
3) develop policy and mobilize partnerships
4) assure a competent workforce
Prioritized (Delphi) – Nat’l Association of Chronic
Disease Directors experts, state CD directors and
local reps
Prioritized Action Items
1. Promote incorporation of cognitive health and impairment into state and local public
health burden reports. [Develop Policy and Mobilize Partnerships (P), P-03]
2. Use surveillance data to enhance awareness and action in public health
programming (e.g. link Behavioral Risk Factor Surveillance System questions on
cognition to other health-related quality of life or falls prevention). [Monitoring and
Evaluate (M), M-02]
3. Develop strategies to help ensure that state [and local] public health departments
[and aging partners] have expertise in cognitive health and impairment related to
research and best practices. [Ensure a Competent Workforce (W), W-01]
4. Collaborate in the development, implementation and maintenance of state
Alzheimer's disease plans. [P-01]
5. Engage national and state organizations and agencies to examine policies that may
differentially impact persons with dementia, including Alzheimer’s disease. [P-05]
6. Integrate cognitive health and impairment into state and local government plans
(e.g., aging, coordinated chronic disease, preparedness, falls and transportation
plans). [P-02]
IDPH Current Efforts
Legislation (Unfunded)
AD Advisory Committee
AD Research Fund
AD state plan every three years
Reports from the three state AD Centers
IDPH New HBI Efforts
“Opportunity Grants to Implement Selected Action Items from
The Healthy Brain Initiative: The Public Health Road Map for State and
National Partnerships, 2013 – 2018 (Roadmap)”
IDPH placed importance on applying for funds
One of six states/areas to receive grant –
Arizona, Hawaii, Illinois, Minnesota, Wisconsin, Puerto Rico
April 1, 2014 to March 31, 2015
All funds awarded to partner grantees
Illinois Healthy Brain Initiative
Funding to IDPH
Develop state and regional data Burden Briefs and a statewide webinar to increase awareness and promote use of data (#2, M-02; Med/Large Scope)
Assess state and local organizational competencies and capacity to address confusion and memory loss and care partner needs, and develop a report of findings for future workforce training development (#3, W-01; Low Scope)
Prioritize current Illinois Alzheimer’s Disease State Plan-2014 recommendations and identify next steps in state plan implementation
(#4, P-01; Med Scope)
Data & Surveillance Efforts
IDPH Team
Burden Report Primary Data Source
Illinois Behavioral Risk Factor Surveillance System
Data (BRFSS)
Cognitive Impairment (CI) Module
Caregiver Module
Demographics
Analysis
Prevalence
Comparison of those with CI vs. those who care for
people with CI
What is BRFSS?
Telephone random-digit dial survey of land and cell