Autism Society of Minnesota Autism Spectrum Disorder Emergency Planning and Preparedness Strategies Technology is a Valuable Tool Panel – Tuesday, June.

Autism Society of Minnesota

Autism Spectrum Disorder

Emergency Planning and Preparedness StrategiesTechnology is a Valuable Tool

Panel – Tuesday, June 21, 2011

Sherrie Kenny


We are very grateful to the Minnesota Department of Human Services, Disability Services Division, for

funding this Emergency Planning and Preparedness Project; and their commitment to assist individuals with Autism Spectrum Disorder (ASD) so they can

live in their own homes; and address the concerns of families and first responders in emergency situations

through these partnership efforts.


1 in 110

less then 2 years ago it was 1 in 150

12,000 Minnesota families

13,000 children

age 8 is the largest bubble of children diagnosed

largest adult population of people with ASD in history

Living with Autism…

Puzzling neurological disorder…


Persons with ASD are 7 times more likely than their peers without disabilities to have an emergency encounter—wandering, accidents, behavior escalation, communication issues, victims, perpetrators.

Professional responders (police, fire, EMS, ECC, emergency management and others) generally unprepared to address specific needs and challenges that individuals with ASD may present

Under The Americans with Disabilities Act (ADA) people with disabilities must be provided with an equally effective opportunity to participate in, or benefit from, a public entity’s aids, benefits, and services

Emergency Planning and Preparedness – Critical to Living Independently and Effective Public Safety!


ASD Emergency Planning and Preparedness Grant Objective

“Assess and develop emergency preparedness and response strategies to better enable persons with ASD to stay in their own homes by providing

low cost materials/resources/tools

and better informed individual, family and community support

systems”.


Strategies for Better Planning and PreparednessWhat strategies can we bring to bear to ensure safety and

lower the risk for persons with ASD (children and adults) in emergency situations?

For persons with ASD and their familiesFor Public Safety Officials and Professionals

Grant Outcomes: Greater awareness about the issueWide range of solutions from no tech-know how,

to low tech, to high techTraining for individuals with ASD/families,

professional respondersAccess to information and resourcesRoadmap to navigate resources and prepare

emergency plans


Solutions for awareness and better preparedness

General Awareness PresentationResponder videos (for demonstration or loan)Discipline specific responder training modules and handouts

Police, Fire, EMSEmergency Planning (EP) Essentials Overview, Resource Lists

Phones, tablets, other devices/tools for ID, planning and practiceSelf identificationStoring and sharing In Case of Emergency InformationCommunication options5 point scale for behavior modeling and modificationVideo modeling -> emergency planning/practice for custom

preparationOff the shelf applications

Tracking and locator solutions (to address wandering concerns)


A tool for how we act, react, and interact in difficult situations depends on our ability to quickly and efficiently assess what is happening and take appropriate actions.

5pt scale:A simple scale to teach a person with

ASD “social concepts and social behaviors”

Used in schools by educators on how to help students rate their feelings and/or change their behaviors

Color and Number sequence are used to rate and break down the concrete parts in order to help a child understand what it is you are asking for or what actions to take or to communicate their feelings.


Phone App for the “5 point scale” to use in Emergency Planning and Preparedness

5 – emergency4 – something hurts3 – I am ok, but help2 – nervous1 – I am ok


Press the red color bar #5

Image displays: Fire-fighter, Police or EMT

Text on bottom of screen:Dial 911

Audio is mother’s voice: Go to your emergency safe place”


Video modeling is a great way to plan and practice safety issues

Runner



Injury



Fire and Safe Place



Lost Dog



Listen to Police



Testimony from Linda



Testimony from Deputy


AuSM has devices pre-loaded with EP resources and applications

iPodiPadAndroid TabletCamera for video modelingEP Resource List with sample applications


More “Build Your Own” Using Other Off the Shelf Applications

Stories2Learn App (iOS) – make your own social stories

iPrompts – for communication and behavior modification

iCommunicate – build your own communication toolsRemember the Milk – task manager and reminder you

can use on phone, tablet or computer


Technology Solutions that Address Wandering Examples:

Project Lifesaver (Telemetry)—in partnership with local law enforcement (where available)

Devices with Monitoring Services: EmFinders, CareTrak, Comfort Zone

Devices to track and monitor: TrackMe360 (satellite GPS available for purchase or rent on a temporary basis), SecuraTrac (GPS), Amber Alert GPS, GPS Locator, loc8torPlus, S911 Bracelet, Ionkids

Phone Apps (track, monitor and alert): Glympse, Safe Kid Zone, Kuroo


Where to Access Information and Resources

Minnesota Governor’s Council on Developmental Disabilities: www.mnddc.org/emergency-planning/asd-emergency-planning.html

AuSM: www.ausm.orgPathLore (for DHS and others with access)Contact AuSM for assistance, more information or

speakers bureau. [email protected] or 651-647-1083


A. Review, collect and evaluate literature on the topics of ASD/emergency response/emergency preparedness related to these audiences:

(1) Individuals with ASD and families

(2) DHS lead agencies (counties, MCOs, tribes)

(3) Professional responders

(4) Emergency preparedness officials

(5) Provide review and comment to MSCOD for their Emerg. Prep. Booklet

EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS (a) PROJECT TO SUPPORT PEOPLE WITH ASD IN THEIR OWN

HOMES

GANTT CHARTDec 2010

I. Research Jan 2011

Feb 2011

April 2011

May 2011

June 2011

Mar 2011

22

Done

Done

Done

Done

Done

Done


B. Plan, arrange for and conduct focus groups to review what is known, what works and what has not worked about ASD/emergency response/emergency preparedness.

Done

(1) Establish criteria to assure “representativeness” of participants

Done a. individuals with ASD and families (9) Done b. Professional responders (12)

Done(2) Schedule meetings

Done(3) Prepare scenarios to be

discussed Done(4) Conduct focus groups 3/1/2011 3/3/2011

Done(5) Summarize results

Done

23

ASD EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS PROJECT

GANTT CHARTDec 2010


Feb 2011

April 2011

May 2011

June 2011

Mar 2011


C. Convert focus group results into input for decision making

Done(1) What existing

materials/technology/ training exist for emergency response emergency preparedness and ASD? FOOTNOTE 2

Done

a. Collect efficacy data Done(2) Is new material/

technology training needed for emergency response/emergency preparedness and ASD?

Done

a. Discuss options with app developer or other industrial engineer

Done

Dec 2010


Feb 2011

April 2011

May 2011

June 2011

Mar 2011

24


GANTT CHART


A. Based on literature review, focus group input, and efficacy data, begin collecting, purchasing and testing a wide range of materials, technology, and training for emergency response/emergency preparedness and ASD

B. Begin demonstrations and testing of materials, technology and training by:

(1) Individuals with ASD and families

(2) Professional responders

Dec 2010

II. Testing Jan 2011

Feb 2011

April 2011

May 2011

June 2011

Mar 2011

25

Done


GANTT CHART


A. Prepare briefing materials about the project findings

B. Deliver presentations to a wide audience

C. Submit material for Pathlore online training courses

D. Produce a consumer instructional DVD to depict video modeling

E. Investigate feasibility of collaborating with media outlets for greater reach

Dec 2010

III. Training, Technical Assistance, Outreach to Expand Partnerships Jan

2011Feb 2011

April 2011

May 2011

June 2011

Mar 2011

26


GANTT CHART


A. Council creates Emergency Planning website section posts and updates specific to this project

B. Provide consultation, evaluation and information for lead agencies through existing DSD channels

(see b)

C. Create a marketing plan and system

(1) Create agreements with lead agency staff on how to market availability of materials

D. Create emergency response/emergency preparedness package for 1st responders

Dec 2010

IV. Dissemination Jan 2011

Feb 2011

April 2011

May 2011

June 2011

Mar 2011

27

Done


GANTT CHART


A. Submit quarterly reports, a final report, collect learnings, and suggest possible future activities.

Qtrly report

Qtrly report

B. Select third party evaluator (in consultation with DHS)

C. Assess through satisfaction surveys

(1) individuals with ASD and families

(2) lead agencies (3) Professional

respondersD. Modify the project

based on fact based management

Dec 2010

V. Reporting and Evaluation Jan

2011Feb 2011

April 2011

May 2011

June 2011

Mar 2011

28

DoneDone

Done


GANTT CHART


THANK YOU

Autism Society of Minnesota Autism Spectrum Disorder Emergency Planning and Preparedness Strategies Technology is a Valuable Tool Panel – Tuesday, June.

Documents

asd emergency planning

emergency preparedness

emergency situations

asd children

emergency encounterwandering

emergency management

better planning

emergency plans solutions