what’s in a name? cavernoma cavernous angioma cavernous haemangioma cerebral cavernous malformation CCM.

what’s in a name?

cavernoma

cavernous angioma

cavernous haemangioma

cerebral cavernous malformation

CCM

a cluster of abnormal blood vessels in the brain or spinal cord

discovery of cavernoma

Magnetic Resonance Imaging Scan

frequency

1 in 600 affected asymptomatically

1 in 400,000 affected symptomatically

asymptomatic discovery as a result of MRI testing for other conditions

symptomatic discovery as a result of haemorrhages, seizures,

headaches, imbalance, slurred speech and double vision

Genetic Alliance UK Facilitating Networks

Project and CA UK

Guidelines for the management of cerebral cavernous malformations

presented by

Dr Rustam Al-Shahi Salman

The 7th Annual Pathobiology of

CCM Scientific Workshop Angioma Alliance

Genetic Alliance UK

Cavernoma Alliance UK

Dolce Chantilly Hotel

Friday November 18th 2011

should CCM be managed that has caused only one seizure?

Should CCM be managed in mothers before, during and

after birth?

this research would be impossible without the help of

Genetic Alliance UK, Facilitating Networks

Krystle Kontoh

Information Booklets & Leaflet

Symptomatic Cavernoma

Incidental Cavernoma

Genetics of Cavernoma Information Leaflet

Thank You!