“e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave [email protected] What e-Patients Want and Why They Need to Be Empowered
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“e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave [email protected]
What e-Patients Want and Why They Need
to Be Empowered
TEDx Maastricht, 2011
This is the year
of patients
rising.
TEDx Maastricht, 2011
Patient is not
a third person word
Lesson 1, from TEDx Maastricht, 2011
You can tell a lot about a futurist
by how their predictions pan out
Lesson 2, from 40 years in business:
1969!
Equipped Engaged Empowered Enabled�
�e-Patients are
What do we mean by
Empowered?
Empowerment “Increasing the capacity !of individuals or groups"
to make choices [about what they want]"
and to transform those choices !into desired actions & outcomes”!
World Bank, 2002!
People perform better when they’re
informed better.
Lesson 3, obvious in every industry but healthcare
It’s perverse to keep people
in the dark
and call them ignorant
Corollary:
Median Survival: 24 weeks
How has that one panned out?
How can it be
that the most useful and relevant and
up-to-the-minute information
can exist outside of traditional channels?
How has this one turned out?
Closed system Open network
Transformation of Knowledge Access
How that one has turned out
How a kidney cancer wife found the info she needed • No insurance;
no treatment. Then:
• Three bad hospitals; no help. Then:
• A friend said “I know a guy... on Twitter”
Regina Holliday’s Medical Mural Advocacy Project
The Walking Gallery ReginaHolliday.blogspot.com
You know it’s a revolution when the artists and musicians
show up
Lesson 4 (a culture lesson)
Dr. Eric Topol How’s that one turned out?
bit.ly / topol the data
“Gimme My DaM Data” bit.ly /gimmedata Deloitte guys get on board
“Data Liberación!”
Todd Park Innovator Entrepreneur HHS Chief Technical Officer US Chief Technical Officer
Federal government gets on board
When assets digitize, things change fast.
Lesson 5 (a shocker, in any pre-digital industry)
Why not “Google Earth for my body”?
Case Study: Hugo Campos wants his ICD data
Patient Experience
AliveCor: iPhone EKG 12/3/12: “FDA clears iPhone heart monitor, doctors can pre-order” Feb 2014: OTC
We perform better when we’re
informed better.
#WeAreNotWaiting
#NightScout
#DIYPS (“Do-it-yourself Pancreas System”
Who gets to say what’s in the patient’s best
interest?
The IOM says e-patients are an essential part of tomorrow’s healthcare.
Patient-Clinician Partnerships Engaged, empowered patients— A learning health care system is anchored on patient needs and perspectives and promotes the inclusion of patients, families, and other caregivers as vital members of the continuously learning care team.
“How can patients participate if they don’t have the information?” – Dr. Danny Sands
How’s this one workin’ out?
WONDERFULLY, thank you.
It’s great to be alive.
Withings
Withings Wi-Fi scale
Fitness wristband & heart band
YMCA Diabetes Prevention Class (food training & physical activity)
MyFitnessPal diet tracking app
Strong spousal support
My doctors can’t see this in their computers!
TEDx Maastricht, 2011
Permettez- moi de vous présenter… les Mini-Me’s.
Half of everyone who’s ever been 65 is alive today
Population today: ~7.0 billion End of World War II: ~2.3 billion
May The Fourth
James Franco as Luke Skywalker showing Yoda’s levitation training
James Franco as Luke Skywalker showing Yoda’s levitation training
Let My Data Go
We perform better when we’re
informed better.
We are
(you are)
the most under-used resource in healthcare.
Let Patients Help.
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