Welcome to Family Secrets Workshop 1. BEGIN Biotechnology, Ethics, Genetics Instructional Network Life Sciences Learning Center, University of Rochester.

Welcome to Family Secrets Workshop

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BEGINBiotechnology, Ethics, Genetics

Instructional Network

Life Sciences Learning Center, University of Rochester

NYS Biology-Chemistry Professional Development Network

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Presenters Mike DuPré

[email protected]

Kathy [email protected]

Alan [email protected]

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Introductions

Share NameState, What You TeachLevel (HS or College)

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BEGIN Overview

Problem Based Learning (PBL)Student CenteredReal World: Human Genome Project

Bioethical Decision Making Model Gel Electrophoresis Genetic Testing Simulation Virtual Lab

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PBL Overview

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Online Resources

Family Secrets Virtual Lab

Family Secrets Resource

Coach’s Guides, Handouts, Resources

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Teacher Resource Book:A Quick Walk-Through

Introduction Quick Guides Parts 1-5

Script - Flag each script with Post-It’sWorksheets / Handouts - Get HandoutsOverview, Objectives, Lesson Sequence

Appendices - Strategies, Print and Internet Resources, Rubrics

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Family Secrets

Part 1: A Family Disease Part 2: The Dilemma Part 3: A Difficult Choice Part 4: Testing for the HD Gene Part 5: The Future

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Family Secrets Part 1 A Family Disease

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Assessing Prior Knowledge

What are some examples of diseases that “run in families?”

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In Part I, you will

Learn about a family whose members might have a genetic disease.

Make a list of Facts and Questions related to this family’s situation.

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Class read aloud Part 1:“A Family Disease”

Listen to reading (page 3)

Underline or highlight important Facts

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Work on Your Own

List Facts

Develop Questions

Record Lists on Individual Facts and Individual Questions Sheets

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Team Roles

Secretary RecorderSpokesper

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Brainstorm Guidelines

Take Turns and Call out ideas

Record ideas as stated (verbatim)

Strive for quantity

Resist evaluation of ideas Encourage all ideas

Piggy-back on other ideas

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Team Brainstorming

Recorder creates 2 posters

Team brainstorms a list of FactsTeam brainstorms a list of Questions

Each team member adds to their “Facts” and “Questions” sheets (Optional)

Facts Questions

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Read this brief article about Huntington’s Disease.

Highlight any information that provides an answer to your

team’s questions.

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Topical Barometer

If you were Jenny, would you have genetic testing for Huntington’s disease?

________________________________________ Definitely Maybe Not Sure Maybe Definitely

Yes Yes No No

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Family Secrets Part 2 The Test

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Class read aloud Part 2: “The Dilemma”

Listen to reading (Page 7)

Underline or highlight important Facts

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Work on Your Own

List Facts

Develop Questions

Record Lists on Individual Facts and Individual Questions Sheets

3 minutes

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Team Brainstorming

Recorder adds to 2 posters

Team brainstorms a list of FactsTeam brainstorms a list of Questions

Each team member adds to their “Facts” and “Questions” sheets (Optional)

Facts Questions

10 Minutes

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Categorize Questions

Diagnosis and

Treatment

(DT)

Symptoms and

Prognosis

(SP)

Risks and Cause

(RC)

Family

Issues

(FI)

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Teams Assign Category Specialists

Assign each team member a different category of Questions.

Each team member will become a “Category Specialist”

Write the title of the category you were assigned on the “Individual Student Research Log” (page 11)

5 minutes

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Category Specialists

Meet briefly with other Category Specialists.

Fairly divide the class Questions in the category and assign questions to each person in the Category Specialist group.

Record the questions assigned to you on your “Individual Student Research Log.” (Page 11)

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Individual Research

Work individually to research and record information relevant to the your Questions on your research log.

Use colored print resources

Record information on Student Research Log (Page 11)

20 minutes

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Research Articles

General Articles for All: White Diagnosis: Goldenrod Risk and Cause: Pink Symptoms and Prognosis: Blue Other Researchable Questions:

Yellow

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Jigsaw 1

Category Specialists meet to share research

Diagnosis

OtherResearchable

QuestionsRisks and Cause

Symptoms and

Prognosis

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Category Specialist Meeting

Share the results of your research

Complete a Category Specialist Report to Plan a 5-minute presentation for your PBL team (Page 13) What new information will you present to your PBL

team? What other information would be helpful or

interesting?

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PBL Teams Reform and Share Research: Jigsaw 2

Category Specialists give 5-minute research summaries to their PBL teams

PBL team members add NEW Facts and Questions to their lists

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Your Turn

Reaction?

Concerns?

Questions?

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Break !

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