Welcome To EPIS 2017 Presenters: David Palacios, Novartis, Switzerland Christoph Thalheim, EMSP, Belgium Elena Ruiz de la Torre, EHA, Spain
Welcome To EPIS 2017
Presenters: David Palacios, Novartis, Switzerland
Christoph Thalheim, EMSP, Belgium
Elena Ruiz de la Torre, EHA, Spain
Communications & Advocacy
Unique expertise and experiences
Communications & Advocacy
Open and transparent
Communications & Advocacy
Mutual respect and trust
Communications & Advocacy
• Respecting and understanding
the patient community
perspective
• Expanding access to our
medicines
• Conducting responsible clinical
trials
• Recognizing the importance of
transparency and reporting
Delivered by actions and reflected in our
‘Commitment to Patients & Caregivers’ “
Thank you
Christoph Thalheim
EMSP, Belgium
What we hope to achieve today
• Understand better how developments in digital
technologies are revolutionising healthcare and helping
give patients a stronger voice in healthcare decision-
making
• Work together to come up with ideas on how to break
down resistance to accepting the value of the patient
voice
• Agree which ideas have the greatest chance of success
Patient involvement is key across the
medicines lifecycle
Input into clinical trials
Feedback on informed consent
and patient materialsProvide insights into the total costs
of living with a disease
Gather evidence of
real-world experience
on treatmentProvide input into
regulatory discussions
Advocate for optimal
treatment and care
Provide insights into value of a
medicine from a patient perspective
There is resistance to accepting the patient
voice across the medicines lifecycle
We need to work together to break down
this resistance
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EPIS members at the central hub
Raj
Mahapatra
ASIF
Nicola
Bedlington
EPF
Christina
Fasser
Retina
International
Neil
Johnson
CROÍ
Susanna
Palkonen
EFA
David
Palacios
Novartis Pharma AG
Christoph
Thalheim
EMSP
Elena Ruiz
de la Torre
EHA
EPIS members at the regional hubs
FRANCE ITALYGERMANY
Birgit Bauer
EMSP
Ottfrid Hillmann
EUROPSO
Giuseppe de Carlo
EFA
Denis Costello
EURORDIS
Realising the potential of digital
technologies: Innovative multisite format
Portugal
Germany
Spain
Italy
France
Norway Austria
Switzerland
Sweden
Hungary
Croatia
Finland
Czech
Republic
IRELANDBosnia and
Herzegovina,
Croatia,
Serbia and
Montenegro
Netherlands
…and more!
… And welcome to our
livestream viewers from
across Europe!
Elena Ruiz de la Torre
EHA, Spain
Agenda
Science fiction in healthcare
Digital reinvention: Rethinking healthcare
Setting the scene: Overcoming resistance to accepting
the value of the patient voice – exploring differing
perspectives
Ideathon
EPIS vote on SMART solution
Presentation of the most promising ideas
Join the Conversation!
#EPIS2017
Ask questions and
connect with other attendees
across Europe
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www.EPIS2017.com EPIS NEWSFEED
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We wish you an inspiring and productive meeting