WELCOME. Caregiver you are a gift Presented by Neosho County Community College Karla Jamison RN, BSN This project is funded in part (79%) by a grant under.

WELCOME

Caregiver you are a gift Presented by Neosho County Community College Karla Jamison RN, BSN This project is funded in part (79%) by a grant under the Presidents High Growth Job Training Initiative, as implemented by the U.S. Department of Labors Employment and Training Administration.

CAREGIVER THE GIFT OF CARING FOR OTHERS CARING FOR YOURSELF

Gift of being a caregiver This class will assist you to become better at your job as a caregiver. You will be able to understand how to assist others without burnout. You are a gift.

CAREGIVER EDUCATION This programs goal is to educate the caregivers. Enabling caregivers to care for their loved ones, and themselves. They will learn techniques to empower themselves to accomplish this goal with their resources and the resources of the community.

Goals of Program 1. What types of caregivers are out in the community? 2. What a caregiver does and what is your worth. 3. Why more people are choosing home or assisted housing for their place of care. 4. The impact of care giving on the family and care provider. 5. Direct and indirect costs to the family unit with an ill member. 6. The impact of loss to all members of the family unit. 7. How to make the daily tasks of care giving easier. 8. How to make the daily tasks of care giving more organized. 9. How modern conveniences can help with care giving tasks. 10. Caring for yourself. 11. The goal of a successful caregiver!

1. What types of caregivers are out in the community? Relatives- by blood or marriage Significant others 1. Friends 2. Lovers 3. Ex-spouse 4. Neighborhood families 5. Church families Paid Caregivers

Paid caregiver Someone you pay to care/live with your loved one In home interim care In home based state care for the frail elderly or developmentally disabled In your home or assisted living You can have paid caregivers in your home or assisted living

Insurance or Medicare/Medicaid paid caregiver Short term Must meet criteria 1. unable to leave home 2. must need a skilled service 1. Therapy physical, occupational, or speech 2. Nursing-education, injections, wound care, etc 3. Need someone to help provide care when caregiver not there 4. May be co-pay with insurance

Long Term Care Insurance Is any in home care included? Is assisted living and nursing home both in policy? What is the criteria? Read the policy !!! Ask your vendor about services ??? Ask if this is regular insurance coverage or is it same as medicare services?

Medicaid HCBS services Criteria Less than $2000 in assets Spouses can split assets Assets can be seized by the state recovery fund if not in home long enough after use of the funds Includes all assets: car, house, personal property of value Who to talk to Social and rehab services Area Agency on Aging Care needs based on need (amount of time given to the client) First come first served Usually a waiting period until funds available

Vendors in this area Get book from Area Agency on Aging http://www.agingkansas.org or 800-432-3535 http://www.agingkansas.org Resource Guide for Seniors Explore Your Options Misc. other resources Lists Nursing Homes, Assisted living, Home Plus Lists Home Health agencies Lists Organizations for local area to assist with needs and where to go Lists equipment suppliers Lists your rights, consumer information, financial assistance, housing, legal assistance, ect

2. What a caregiver does and what is your worth? A. Companion B. Assist with ADLs C. Manage needs of household D. Liaison E. Finance assistant

A. Companion Shoulder to cry on Hands to hold and person that touches them Hugs Physical touchpat,contact to skin, backrub, ect Visiting daily about everything from personal needs to illness daily needs and desires normal conversation fears and hopes

B. Assist with ADLs (Activities of Daily Living) Toileting and incontinent care if needed Hair care Bathing Walking Transferring- if unable Using wheelchair for mobility Dressing Assisting at meal time as needed AM and PM care wash face brush teeth and floss denture care cleanse as needed to prevent body odor apply toiletries such as deodorant and colognes reposition as neededEvery 2 hrs feeding-cooking

Cont. B. Assist with ADLs Chauffer for physician visits or for any activities or secures rides Delivery driver for groceries, meds, and ect Handles finances Prepares meals and clean up Cleans house Laundry Medication administration and setup Organization of care schedule Decision making for the ill loved one

C. Manage needs of the household upkeep on house upkeep on yard upkeep on the automobile or securing other means of travel-(w/c van ect) Ensure that bills and utilities continue to be paid

D. Liaison for the ill patient Working with Doctors and other healthcare workers Understanding the disease Understanding the treatment Understanding medication regime Understanding the signs and symptoms of disorders Understanding death and dying Communicating with the family members explaining about disease process explaining about the treatment explaining limitations and needs of ill loved one explaining about medications and usage explaining to family members about finances and needs

E. Finance Assistant Checkbook deposits check account management Paying bills consumer accounts rent or mortgages utilities taxes medical care- physician bills & medication costs

AVENUES OF ASSISTANCE GroceriesSpecial diets can be costly Food Pantries Angel food program Toiletries/Laundry Products/etc Food pantries at Salvation Army, Churches, and community groups These are harder to obtain due to some places are limited on supplies Medicines Medicare D Medicine programs Companies-- 90 days supply for lower prices Drug companies medications - will send with the help of physicians Physicians offices- samples from med representatives. Especially for short term items like antibiotics Community help agencies SRS has a list Counties often have programs through misc organizations Programs to assist with med costs even if minimal costs are difficult Utilities Programs to assist with med costs even if minimal costs are difficult Fixed payment plans Limited services on phones Using LEAP to assist Government program to assist with utilities each year refunded costs for low income

Budgeting for fixed or limited income when costs are more expensive than ever before physician bills medication costs grocery costs less income than ever before staying at home instead of working disability insurances and other coverage's end

The worth of a care giver !!! Unable to calculate your worth!! Too many jobs to imagine the worth!!! Money could not pay for what you do!!! Your only payment will be Love and the only way you would do this is for the sake of Love and Concern for others above yourself!!!!!

3. Why more people are choosing home or assisted housing for their place of care More independence Want to stay home as long as possible Personal setting- own room and house things they are comfortable with Pets can be close Family with them or them with family Can keep personal possessions with them-more space More choices about what they want to be carried out daily Can carry out their routine not that of the facility meal times, bath times, ect Cheaper than Long Term Care Average Cost of LTC- $ 130 -190 a day This is for Private Pay --Includes: Room and Food No Medication No Supplies- briefs, dressing supplies, Oxygen, ect

Average Cost of LTC- $ 130 -190 a day This is for Private Pay --Includes: Room and Food No Medication No Supplies- briefs, dressing supplies, Oxygen, ect Cost of Assisted Living HighSpecialty Care-$150 a day Low ---$85 a day Does not count the special needs that are contracted for the person-these residents are to be able to be independent Baths Medicine setup Laundry services Cost of private paid caregivers (often only use as needed or a few hours a day) Low-$10 hr High-$15 hr Cost of a caregiver from agency(often only use as needed or a few hours a day) Low-$15-20 High-$20-25 COMPARE THE COST

4. The impact of care giving on the family and care provider. May need to leave job-especially toward end of life FMLA-Family Leave Medical Act must work one year at your job papers must be filled out no guarantee the job you left will be the one you come back to Set number of weeks leave- then it is completed To be paid--may have to use vacation before or during FMLA To be paid--may have to use sick leave for FMLA criteria for FMLA small companies ask human resources large companies ask human resources

The impact of care giving Loss of income Loss of work related relationship Loss of freedom Exhaustion from 24 hr a day care Expectations that feel overwhelming Family members often criticize instead of assist with cares

5. Direct and indirect costs to the family unit with an ill member. Direct Costs- Financial Time Freedom Stress Sleep Loss of peace of mind Increases Stress- uncertain future Strained relationships with ill loved one and with other family members Unexpected expenses Loss of privacy More travel- Dr appointment, ect Unexpected problems things that you do not think may occur family events even holidays are not the same. Need a caregiver to stay if you leave.

6. The impact of loss to all members of the family unit Dr Elisabeth Kubler-Ross "On Learning from Death & Dying studied death and dying and found that all individuals suffer losses in the same way. Denial Anger Bargaining Depression Acceptance The ultimate lesson all of us have to learn is unconditional love, which includes not only others but ourselves as well.

7. How to make the daily tasks of care giving easier. Bed making Incontinent Care Catheter Care Repositioning Ambulating Safely Bathing Transfers Infection Control Medication Vital signs

8. How to make the daily tasks of care giving organized. Get a calendar or a date book Appointments When you need to perform procedures Use as a diary for doctor visits Record Vital signs Add to date book-- Blood Glucose readings Weights Visitors like nurse visits, ect Dates others can come to give respite care for shopping,ect

Being Organized Make a daily routine. When people are ill it helps them remember what is going to happen and what to expect. (If they have memory) Repeat the same words and schedule--- it keeps everyone on the same page Make sure everyone understands it is easier when everyone that helps does the same routine.

Being Organized Am Cares: Wash face and hands Clean mouth and teeth or dentures Toilet and refresh perineal area Clean clothing and bedding as needed Breakfast Clothing Protector Help set up food and feed as needed Cleanse hands and face Offer plenty of fluids except if on fluid restriction Mid Morning Offer fluids and snacks Cleanse face and hands after snacks Offer toileting and cleanse Noon Meal Clothing Protector Help set up food and feed as needed Cleanse hands and face Offer plenty of fluids except if on fluid restriction

Being Organized Mid Afternoon Offer fluids and snacks Cleanse face and hands Offer toileting cleanse and freshen perineal area Evening Meal Clothing Protector Help set up food and feed as needed Cleanse hands and face Offer plenty of fluids except if on fluid restriction PM Cares Bedtime Cares Offer fluids and snacks Cleanse face and hands after snacks Offer toileting and cleanse Back rub Calm atmosphere Calming or enjoyable music or sounds like nature sounds-waterfall-rain- ocean-ect

9. How modern conveniences can help with care giving tasks Lifts Gait belt Lift sheets Lift/Incontinent pads Briefs Electric beds Bedside toilets Bedside bathing and hair washing Bedpan/ Urinals/ Catheters Wet Wipes /warmers Creams and emollients Skin Protection area

10. Caring for Yourself Your needs Physical 1. Rest & sleep 1. Naps 2. Bedtime 2. Energy 3. Nutrition and fluids 4. Elimination 5. Oxygen Emotional 1. Someone to talk to 2. Time to yourself 3. Respite caretime off 4. Possible needs for medication 1. Anxiety 2. Depression 3. Pain 4. Your disease processes

Caring for Yourself Spiritual 1. Church to become involved 2. Talk to spiritual friends on the phone 3. Continue to attend church get sitters from family and friends 4. Pray and follow your faith, whatever it is Gives you strength to carry on Provides you with comfort and peace in times of trouble Respite Care 1. Family and others involved 2. Schedule changes ahead of time for days off 3. Schedule weekend caregivers Paid caregiver Family caregiver 4. This will help you be a better care giver Refreshed Renewed Fresh view of situation

11. Goals of Successful Caregiving Personal Goals 1. What do you want to occur in this situation 2. What will you do after 3. Focus on these goals What does the family expect of you 1. Your responsibility 2. Family responsibility 3. What if outcome is not as desired Family meeting and agreement on possible outcomes

Goals of Successful Caregiving What does the ill loved one want done 1. Living wills 2. Advance directives 3. What they told family and you 4. What will happen if death would occur Who will handle this What will happen before occurrence 1. Hospice symptom and cost control Support for all- family and the patient DOES NOT MEAN YOU HAVE TO DIE!!!

Goals of Successful Caregiving Live life as you and your loved one would want Do not live up to anyone else expectations Enjoy life with illness like you enjoyed life before---- Thing and situations have changed No Matter What!! YOU ARE STILL YOU!!!!!!!!!

Life is Fragile as the petals of these flowers. Remember to count the blessings. Remember to savor the wonderful fragrance of living each day. Do Not Let Illness stop you from Laughing Crying Sharing Loving Others And Living-Really Living!!

Thank You

WELCOME. Caregiver you are a gift Presented by Neosho County Community College Karla Jamison RN, BSN This project is funded in part (79%) by a grant under.

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