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INSID
E Support Groups 4Services 5Education Calendar 6Debbie’s Corner
7Volunteer Spotlight 8
Meet The Board 8Crystal Rodriguez 9From Your Editor 10Lake &
Sumter 11The Villages 12
Upcoming Events 14Bowling Challenge 15Family Support Walk
16Buddy System 17Summer Tips 19
File of Life 20Hurricane Preparedness 21Simply Delicious 22Loved
One Poem 23
Spring 2018 Vol. 21, No. 2
ForDetailsSeePage 14.
• REGISTER • SPONSOR • DONATE • VOLUNTEER •
WE CHALLENGE YOU ON JULY 14, 2018WE CHALLENGE YOU ON JULY 14,
2018
http://www.seniorlivingguide.com/
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Spring is in the air! Flowers are blooming, birds are singing,
and the sun is getting hot…this is Florida! We are so lucky that we
haven’t been shoveling the snow our Northern friends have been
shoveling! With Spring comes clocks being turned forward, newly
planted flower beds blooming, and more outdoor activities.
Things here at the Alzheimer’s Family Organi-zation are busy as
always. So much to do and so many more opportu-nities to help. We
are truly lucky to be here to support you and your loved ones as
you walk your journey together. It is our goal to offer to make
that journey as smooth as possible, as best we can. Please always
remember we are only a phone call or click of the mouse away!
Since the Winter 2018 issue of The Caregiver’s Companion we held
our largest fundraiser, the annual “Alzheimer’s Family Support
Walk” at the Polo field in The Villages. This day always reminds me
of why we do what we do here at the AFO. We had over 800 people in
atten-dance. Some were family members, some were loved ones
affected by various forms of dementia, some were professional
caregiver’s, some were young, and some were old. Some walked on
their own, some walked with canes or walkers, by stroller, and some
by piggyback, but all were there for the same reason, to bring
awareness and show support for all those whose lives are touched by
this disease.
I am so very grateful to Parady Financial for their commitment
of sponsorship this year and again committing to be the co-name
spon-sor again next year! Parady placed first for the largest team,
then New Covenant United Methodist Church in second and The Day
Break Club in third! Thank you for your continued support and
undying efforts! Thank you to all our sponsors and to Cheryl
Courtright and Shelly Calkins for being co-chairs and to all the
committee members that pull this huge event off each year. Your
efforts and support do not go un-noticed! Many of our sponsors have
supported us year after year, and I know how important you are to
our success. Thank you! And last, but not least, the office staff
and the wonderful volunteers (and husbands/wives) that support this
event. Thank you!
I am excited for the number of Caregiver Learning events we have
scheduled for 2018 which are listed in this issue as well as a few
ad-ditional fundraisers such as The Hernando Bowling Challenge,
Citrus Walk Aware events and the AFO Charity Golf Tournament. All
are in the deep planning stages and should be a great deal of
fun.
In closing, as you meet the role of caregiver, whether that be a
new role, a long-distance role, a shared role, a professional role,
or a role you have been in for a long time, it may seem like a
thankless role, but it is not. It is my hope that you will know,
even though your loved one may not be able to tell you, that deep
inside, they are very grateful to have you there to care for them.
As you face the day to day frustrations of caregiving, know that
the person you are caring for is facing those same frustrations
right along with you. Try and revel in the good parts of the day
and enjoy the positive. Each night, try and reflect on what went
right “today” and find peace in knowing your role is not thankless.
Your role is the most important role to your loved one. Take time
to allow others to support you so you can take a little time for
yourself without feeling guilty. You are doing great!
Respectfully, Kathleen
2 Alzheimer’s Family Organization - Companion
Executive Director Kathleen WintersBoard President Deborah
SelsavageBoard Vice President Cheryl CourtrightBoard Treasurer
VacantBoard Secretary Bernie FitzgeraldBoard Members Michael
Benetto Katrina Butler Ron Francis Karen Mercer Glen Scharfeld
facebook.com/AFO.FL
Scan this QR code with your smartphone. It will take you
towww.alzheimersfamily.org. Download a free QR code reader
from the ITunes App Store or Android Market to read the QR
code.
Hours: 8:00 a.m. to 4:00 p.m., Mon. – Fri.Office: 461 Mariner
Boulevard, Spring Hill, FL 34609Telephone: 352-616-0170Fax:
352-616-0174 • E-Mail: [email protected] Site:
www.alzheimersfamily.orgFacebook: www.facebook.com/AFO.FLTwitter:
@AlzFamilyOrg
Kathleen Simington Bill Tuttle
Administrative Associate Alicia Vegerano Media & Marketing
Specialist Crystal Rodriguez
Your County EducatorsThe Villages Jackie Kuhn-Damron –
574-721-1177S. Sumter / S. Lake Pam Schmitz –
352-396-6927Pasco/Hillsborough/Pinellas Vacant
Vision StatementAll those with Alzheimer’s or other forms of
dementia, and their caregivers, will have a better quality of
life.
Mission StatementTo provide educational programs, support
services and assistance to caregivers, families and individuals
with Alzheimer’s disease and other dementia.
NewsletterEditor: Bill TuttleContributing Authors: Steve Davis,
James FinneganAll material in this newsletter is offered as
information to our readers. The Alzheimer’s Family Organization
does not warrant, endorse, or recommend any provider, program, or
product.Others interested in supporting this publication may call
the Organization office at 352-616-0170.The “Companion” is
published quarterly by The Alzheimer’s Family Organization located
at 461 Mariner Boulevard, Spring Hill, FL 34609. The Alzheimer’s
Family Organization disclaims any liability for damages resulting
from articles, opinions, advertising, or representations expressed
or implied in this publication. Any comments or claims are made
solely by the individual author and do not necessarily represent
the views of any other Alzheimer’s Family Organization member or
other persons, living or dead.
The Alzheimer’s Family Organization conforms to the Florida
“Solicitations of Contributions Act” pertaining to charitable
organizations:“A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL
INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES
BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP FLA) REGISTRATION
DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE
STATE.”
Twitter@AlzFamilyOrg
ALZHEIMER’S FAMILY ORGANIZATIONFAMILY IS OUR MIDDLE NAME
Non-Profit Community Based Organization Serving West Central
FloridaCovering Citrus, Hernando, Hillsborough, Lake, Marion,
Pasco, Pinellas, and Sumter Counties
WORDS FROM THE EXECUTIVEDIREC TOR
Kathleen M. Winters,Executive Director
https://www.facebook.com/AFO.FL/
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We try to correctly spell all names. However, if we have not
done so, please let us know and we will correctly spell it for our
next issue. Also, if you do not want to have your name listed,
please let us know when you make your contribution. We appreciate
each and every one of you who have donated, contributed, or become
members of our Organization. Where would we be without you? Thank
you for believing in what we do, and for helping us fulfill our
commitment to preserve the independence, quality of life and
personal dignity of persons afflicted with Alzheimer’s disease and
other related dementias, and their caregivers throughout the
Central Florida area.
DONATIONSBeacon WoodsElan Springs Magical
Christmas Bus TourHeart of DixieFedelis Beta Retired
TeachersRotary Club of Crystal RiverGrand Living for TheatreHINT
(Health Industry
Networking Team)Kings Ridge Performers
ClubRenee CoffmanLynn MilesBarbara KunkleBrian FisherFRIEND
MEMBERSHIPSPeggy and Roy SmithNorma
WinslowBrunettiMEMBERSHIPSKearstin HarmonLinda BellRobert and
Marjorie SolienJames SeacottCarol PollardFrank MarquesMay
PerryPeter and Ann SammonRichard MoravecLaura ManciniMarth
HyattDonald and Christine
WightmanJoan FuertesSusan SaundersJ ClarkKaren MercerWilliam
SmithBarrie and Jillian HogarthGreg and Cynthia Perkins
D O N A T I O N S , C O N T R I B U T I O N S & M E M B E R
S H I P S
Alzheimer’s Family Organization - Companion 3
VOLUNTEERSThank YouFamily SupportWalkPatrick WintersEd Vegerano
Vinny CarrozzaHelen HagopianDonna WelshEnid Cristodero
Greg ChurchLarry MercerCourtney LazoJean LazoJennifer
SokloskiBonnie ReidyTerry WelshDebra Vega
Generous Donations & Membershipsfrom December 22, 2017 to
March 21, 2018
Ronald MilburnEllis and Dorothy RogersWalsh FamilyCatherine
Hood
IN MEMORY OF DONATIONSLyn Jensen IMO Ross RathMarguerita Muller
IMO
Anthony MullerFrank Marques IMO April
MarquesDavid Rodgers IMO
Barbara PappasPaul and Alison Wedeking
IMO Clara WedekingDay Break Club IMO
Christine HealeyJessica Wine IMO Janna
DeMartaIra and Judith Parent IMO
Janna DeMartaJanice and David Warren
IMO Janna DeMartaHarry and Kari Miller IMO
Bill MuhleckLyn Jensen IMO Harry
BolandLyn Jensen IMO Richard
“Dick” PenceRobert Medd IMO Janna
DeMartaMary Gregory IMO Janna
DeMartaValerie Reynolds IMO
Janna DeMartaJohn and Sharon
Gutschenritter IMO Richard Pence
Joann and Gordon Verhaeghe IMO Richard Pence
Lyn Jensen IMO Don HallisyLyn Jensen IMO Edward
“Tom” McAfeeLinda Pence IMO Richard
PenceThomas Edelen IMO Tom
McAfeeMichele Duffy IMO Charles
DuffyKathleen and Patrick
Winters IMO Suzanne Ricci
Gregory and Deborah Packard IMO Suzanne Ricci
Jane Stewart IMO Phyllis Birney
The Orr Family IMO Don Hallisy
Buds n Blossum IMO Dick Pence
Laura Grigull IMO L PoffDale and Norita Stiles IMO
Our MothersBrook Walters IMO Bette
and Daniel WaltersJim Berryman IMO Pat
Heckel Ruth Swart IMO Dennis
Swart Lynda Gauger IMO
Marvin Watson Crethe Gerachty IMO
James Gerachty Marie Lazinkski IMO Marie
Buttner Edward Huss IMO Sharon
Huss Rick & Helena Schnetzer
IMO Shirley Schnetzer Mabel Pillion IMO Leroy
Chandler Dan Southworth IMO
Joseph Cooper Tonya Olsen IMO Gene
Daudelin Cynthia Warner IMO Gerri
WarnerDeb Martinez IMO Barbara
VerbosPatricia and Howard
Mortimer IMO Raymond Mortimer
Jackie Wasserman IMO Ruth Wasserman
IMO Hazel GarvinJohn Godin IMO Tom
McAfeeKen and Joyce Wright IMO
Pat HeckelMarta McKenzie IMO Pat
HeckelLynda Gauger IMO Marvin
WatsonAllen Squires IMO Pat
HeckelJim Berryman IMO Pat
HeckelJack Sprayer IMO Pat
HeckelNancy Sefler IMO Edward
“Tom” McAfeeAugie and Carol Fietkau
IMO Pat HeckelJoyce Fisher IMO Pat
HeckelTom Grace IMO Pat HeckelTom Edelen IMO Tom
McAfeeLinda Lillie IMO Tom McAfeeJohn McGrath IMO Grace
McGrathDon and Peggy Dati IMO
Joanne DatiRon & Dot Kempf IMO The
Nolan FamilySkip and Eva Gudeth IMO
Grammy Gudeth
Skip and Eva Gudeth IMO Grandpa Wurth
Skip and Eva Gudeth IMO Grandma Wurth
Beth Disque IMO Lillian Mitchell
Jim Thompson IMO Esther Thompson
Ron and Connie Kaissling IMO Lou Moody
Annie Caputo IMO MotherRuth Swart IMO Dennis
SwartJoe Mastoccilo IMO
Edward “Tom” McAfeeShirley Rullman IMO
Clayton RullmanAnonymous IHO Gene
DaudelinChandler and Patricia
Blewett IMO Pat HeckelMichael Ricci IMO His
MotherMichael Pipenburg IMO
Tom McAfeeThe Villages Clown Alley
179 Inc IMO Archie ErnstFox Run Social Club IMO
Thomas JayDeborah Fahy IMO
Genevieve DiffeeJackie Glass IMO Suzanne
RicciJoel Ricci IMO Suzanne
RicciEnid & Jill Toroker Benado IMO Doris Toroker
IN HONOR OF DONATIONSThe Day Break Club IHO
Those Affected by Alzheimer’s Disease
Louise ShueyCarl ShueyDeb SelsavageCheryl CourtrightShelly
CalkinsBecky AllenTyler BorowskiRick WigginsStan Golove
John LazoCindy WarnerKaren MercerCharlie HeckelJanet
ArgenzioBeth KondolezaDiane GolebRochelle Holcomb
Fashion ShowSylvia MencikGeorgette Katra-BaetenSandra
OlivaresKim WashingtonBowling ChallengeKatrina ButlerBill
TuttleJames McKittrickBobbie Stoots
Citrus WalkDebbie SelsavageEd YoungbloodOfficeTony CasellaDebbie
CasellaSherri Haun
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LAKEAvante at Leesburg Nursing & Rehab Center(Free Respite
Care During Meeting – RSVP to Dori)2000 Edgewood Ave., Leesburg, FL
347483rd Thursday of the month at 1:00 PMLeader: Doreen
Watson-Beard 352-217-6476Bridgewater at Waterman Village(Free
Respite Care During Meeting)500 Waterman Ave., Mt. Dora, FL 32757
3rd Wednesday of the month at 1:30 PMCo-leaders: Chaplain Alan
Jones 352-385-1133 Coleen Connolly 352-383-0051 x 313Brookdale
Clermont650 E. Minnehaha Ave, Clermont, FL 347111st Wednesday of
the month at 4:00 PMLeader: Pam Schmitz 352-396-6927Chapel of
Christian Faith1401 Paradise Drive, Lady Lake, FL 321593rd Thursday
of the month at 10:00 AMLeader: Martha Hyatt 352-748-7633Clermont
Arts & Recreation Center 3700 S Hwy 27, Room 7, Clermont, FL
347111st & 3rd Tuesday of the month at 4:00 PM Co-leaders: Deb
Smith 352-449-9449 Holli Wilbur 352-286-5924Cooper Memorial
LibraryRoom 221 (upstairs)2525 Oakley Seaver Dr., Clermont, FL
347113rd Thursday of the month at 2:00 PMLeader: Deborah Snow
352-406-8465The Cove at Tavares Village1501 Sunshine Parkway,
Tavares, FL 327782nd Monday of the month at 1:30 PMLeader: Amy
Lesner 352-250-2602Crane’s View Lodge ALF & Memory 1601 Hooks
Street, Clermont, FL 34711Last Tuesday of the month at 1:30 PM
Co-leaders: Heather Carelli 352-901-0239 Selly Castillo
352-801-1545Elan Senior Living at Spanish Springs930 Alverez
Avenue, The Villages, FL 321592nd Wednesday of the month at 2:00
PMLeader: Cathy Jackshaw 352-300-1089The Fellowship25900 US Hwy.
27, Leesburg, FL 347481st Monday of the month at 2:00 PMLeader:
Pamela Schmitz 352-396-6927Lake Port Square/A Brookdale
Community800 Lake Port Blvd., Leesburg, FL 347484th Wednesday of
the month at 2:00 PMLeader: Allison Church 352-728-8525, Ext.
1232Lakeview Terrace331 Raintree Drive, Altoona, FL 327022nd
Thursday of the month at 1:30 PMLeader: Cheryl Fletcher
352-409-5360North Lake Presbyterian Church975 Rolling Acres Rd.,
Lady Lake, FL 321591st Wednesday of the month at 1:00 PMLeader:
Louise Shuey 352-753-82623rd Wednesday of the month at 1:00
PMCo-leaders: Louise Shuey 352-753-8262 Don Dati 352-259-5363
CITRUSCornerstone Baptist Church1100 W. Highland Blvd.,
Inverness, FL3rd Wednesday of the month at 1:30 PMLeader: Debbie
Selsavage 352-422-3663Crystal Gem Manor ALF - You Must RSVP10845 W.
Gem St., Crystal River, FL 34428Last Tuesday of the month at 1:30
PMLeader: Debbie Selsavage 352-422-3663Crystal River Library8619
Crystal St., Crystal River, FL 344282nd Tuesday of the month at
1:30 PMLeader: Debbie Selsavage 352-422-3663Highland Place - You
Must RSVP700 Medical Ct. E., Inverness, FL 344524th Thursday of the
month at 2:00 PMLeader: Debbie Selsavage 352-422-3663Seven Rivers
Regional Medical CenterSenior Circle Center6201 N. Suncoast Blvd.,
Crystal River, FL 34428Last Wednesday of the month 10:00
AM to 12:00 NoonLeader: Sue Simone 203-725-6888
HERNANDOAtria Evergreen Woods - Pool House7030 Evergreen Woods
Trail, Spring Hill 346082nd Tuesday of the month at 1:00
PMCo-leaders: Lori Rocchi 352-397-1212 Mellaney Lesniewski
352-596-2055Bayfront Health BrooksvilleMedical Arts Bldg. – Ste.
12017222 Hospital Blvd., Brooksville, FL 34601Meets the 2nd and 4th
Monday of each monthCo-leaders: Bill Tuttle 813-712-9058 Donna
Alford 813-469-5024Brookdale Spring Hill10440 Palmgren Lane, Spring
Hill, FL 34608Tuesday’s from 10:00 AM to 11:00 AMLeader: Susan
Myers 352-584-8591The Residence at Timber Pines3140 Forest Road,
Spring Hill, FL 346063rd Monday of the month at 2:00 PMLeader: Bill
Tuttle 352-835-7191Timber Pines Country Club – Oak Room(Gated
Community – must register with Sue to attend)6872 Timber Pines
Blvd., Spring Hill, FL 346062nd Thursday of the month at 10:00
AMLeader: Sue Simone 203-725-6888
HILLSBOROUGHArden Courts of Tampa14950 Casey Rd., Tampa, FL
33624FTD Support Group2nd Sunday of the month at 10:00 AM to
NoonLeader: Maryann Upham 813-963-6100Caregiver Support Group for
Spouses3rd Wednesday of the month at 2:00 PM to 3:00 PMLeader:
Teresa Jackson 813-963-6100Brookdale Northdale3401 W. Bearss
Avenue, Tampa2nd Monday of each month at 10:00 AM4th Tuesday of
each month at 5:30 PMLeader: India Shilo 813-961-1044
Early Stage Group (for early stage patients)North Lake
Presbyterian ChurchFellowship Center Room 2975 Rolling Acres Rd.,
Lady Lake, FL 321591st and 3rd Thursday of the month at 1:00
PMLeader: Louise Shuey 352-753-8262
Osprey Lodge Assisted Living& Memory Care1761 Nightingale
Lane, Tavares, FL 327781st Tuesday of the month at 6:00 PMLeader:
Ruth Cantillon 352-253-5100Regency Park Assisted Living andMemory
Care(Free Respite Care During Meeting)15000 U.S. Hwy. 441, Eustis,
FL 327262nd & 4th Wednesday of the month at 2:00 PMLeader: Rick
Wiggins 352-661-9003
PASCO - CENTRALFlorida Hospital Wesley ChapelWellness Center -
Classroom 4B2600 Bruce B. Downs Blvd.Wesley Chapel, FL 335441st
Tuesday of the month at 10:00 AMCo-leaders: Michele Bonneville
813-991-7524 Lynelle Bonneville Cathy Bickham 813-618-0578
PASCO - EASTBaldomero-Lopez State VeteransNursing Home6919
Parkway Blvd, Land O Lakes, FL 34639Last Tuesday of the month at
10:00 AMLeader: Jennifer Chianella 813-558-5000CARES Crescent
Enrichment Center13906 5th St., Dade City, FL 33525Day of week and
time TBD-Please call Melinda Norman for more informationLeader:
Melinda Norman 352-518-9300Gulfside Hospice & Pasco Palliative
Care2061 Collier Parkway Land O’ Lakes, Florida 34639Call Jennifer
for day and time.Leader: Jennifer Chianella 813-558-5000Heritage
Park37135 Coleman Avenue, Dade City, FL 335254th Tuesday of the
month at 4:00 PMCo-leaders: Nila Premer 352-567-8615 Mary Beth
LumbraRegency Residence6711 Embassy Blvd, Port Richey, FL 34668Last
Tuesday of the month at 2:30 PMLeader: Jennifer Chianella
727-240-2907Zephyr Haven Health & Rehab Center38250 Avenue A,
Zephyrhills, FL 33542Call 813-782-5508 for support group
information.Zephyrhills Health & Rehab Center7350 Dairy Rd,
Zephyrhills, FL 33540Call 813-782-5508 for support group
information.
People touched by Alzheimer’s diseaseand other related disorders
come together in a non-judgmental,
safe environment to vent their frustrations, share coping
techniques, learn more about the disease and discover what
resources are available to them.
AFO SUPPORT GROUPS
4 Alzheimer’s Family Organization - Companion
Support Groups Continuedon bottom of page 58
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For more information please call 352-616-0170
Support Groups continued from page 4
A F O S E R V I C E S
Alzheimer’s Family Organization - Companion 5
PASCO - WESTAtria Park of Baypoint Village7927 SR 52, Hudson, FL
346673rd Thursday of the month at 1:00 PMCo-leaders: Lori Rocchi
352-397-1212 Rhonda TravlandThe Cottages5905 Pine Hill Road, Port
Richey, FL 346681st Wednesday of the month at 1:00 PMLeader: Vicky
Hudgins 727-364-4214Crane’s View Lodge ALF & Memory1601 Hooks
Street, Clermont, FL 34711Last Tuesday of the month at 1:30
PMCo-leaders: Heather Carelli 352-901-0239 Selly Castillo
352-801-1545First Baptist Church New Port Richey6800 Trouble Creek
Road, New Port Richey, FL 346532nd Thursday of the month at 1:00
PMLeader: Lois Petermann 727-849-4210Gulfside Hospice & Pasco
Palliative Care2061 Collier Parkway Land O’ Lakes, FLLeader:
Jennifer Chianella cell 727-992-8984
[email protected]
Oakview Terrace Assisted Living7220 Baillie Dr., New Port
Richey, FL 346533rd Thursday of the month at 11:00 AMLeader: Dina
Giannet 727-204-0083Regional Medical Center Bayonet Point14000
Fivay Rd., Hudson, FL 346671st Tuesday of the month at 10:00
AMLeader: Laura Arnold 727-863-0176 727-808-2053Villas at Sunset
Bay7423 Kauai Loop, New Port Richey, FL 346531st Wednesday of the
month at 1:00 PMand Last Wednesday at 6:00 PMCo-leaders: Laurie
Pearce 727-359-0637 Rob Brady 727-376-6814The Watermark at Trinity
1960 Blue Fox Way., Trinity, FL 346551st Tuesday of the month at
10:30 AM
727-777-5063
PINELLASGrand Villa Senior Living Community(Free Respite Care
During Meeting - Call to RSVP)880 Patricia Avenue, Dunedin, FL
346982nd Wednesday of each month at 11:00 AMCo-leaders: Susan
Kinder-Jones 727-734-4696 Jill Turner 727-734-4696
SUMTERBrookdale Place at Freedom PointeRSVP to 352-674-3950 -
Light Lunch is served1700 El Camino Real, The Villages, FL 321592nd
& 3rd Wednesday of the month at 12:00 PMLeader: Zullie Oliveras
352-674-3950Mission Oaks10780 N US Hwy 301, Oxford, FL 344842nd
Monday of the month at 2:00 PMLeader: Cheryl Fletcher
352-409-5360Sumter Place in the Villages(Free Respite Care During
Meeting)1550 Killingsworth Way, The Villages, FL 321623rd Wednesday
of the month at 1:30 PMLeader: Sheila Dickmann 352-674-3500New
Covenant United Methodist Church(Free Respite Care During
Meeting)3470 Woodridge Drive, The Villages, FL 32162Every Thursday
of the month at 10:00 AMCo-leaders: Louise Shuey 352-753-8262
Rochelle Holcombe 352-259-1243 Leslie Switzer 352-274-3673
For Caregivers Who Have PlacedTheir Loved OnesNew Covenant
United Methodist ChurchRoom 1 (Free Respite Care During
Meeting)3470 Woodridge Drive, The Villages, FL 32162First Thursday
of the month at 10:00 AMCo-leaders: Jackie Kuhn-Damron 352-259-1243
Nancy McGee 352-245-3930
Respite Care FinancialReimbursement Program This program
provides financial assistance
reimbursement to qualified members for respite of their loved
ones. The caregiver ar-ranges for their own respite care needs
using either in-home services provided through a home health
agency, neighbor, friend, or institutionally-based, short-term
respite such as adult day care, ALF, or nursing home care.
Applications and documentation are required for reimbursement of
funds.
Wanderer’s Reunification Program The objective or goal of the
Wanderer’s
Reunification Program is to identify and reunite a loved one
with Alzheimer’s disease or other form of dementia with their
caregiver as quickly and as safely as possible, thus reducing the
time of separation and trauma to the loved one. There are two
options offered under this program;
1.) An Identification Bracelet or Pendant 2.) A Human Scent Kit
Contact our office
for more information.Support Groups AFO support groups are for
family members,
caregivers, and others interested in learning more about
Alzheimer’s disease and coping skills. The meetings are free and
everyone is welcome. For more information and to verify meeting
dates and times, please contact our office.
Companion Newsletter Published quarterly, the “Companion”
con-
tains articles covering topics such as caregiv-
ing techniques, coping skills, and resources such as support
group meeting times, the AFO educational calendar, and upcoming
events.
Training / Seminars Training is provided for caregivers and
profes-
sional care providers to those suffering from Alzheimer’s
disease and related dementias. ALF, Nursing Home, and Home Health
Agency Dementia Specific Trainings are available to professionals
and approved by FPECA and the Florida Department of Elder
Affairs.
Alzheimer’s Resources andRelated Books Helpful books in our
library are available for
viewing at the AFO office or may be loaned out. The ‘36 Hour
Day’ is also available for $15.00 plus shipping.
Website The AFO website is a one-stop resource - easy to
use and full of helpful hints such as up-to-date community
information, links, and educational videos.
Resource Guide Our resource guide offers a variety of services
by
county, that support caregivers with the many issues that may
arise while caring for their loved one. Services such as, but not
limited to; Elder Law, Assisted Living Facilities, and Home Health
Agencies.
Resource Line Calling the office during regular business
hours
(M-F 8:00am - 4:00pm) provides information on caring for a loved
one with Alzheimer’s or other dementia.
Speakers Bureau Alzheimer’s Family Organization members are
available to speak to community groups, clubs, and organizations
about Alzheimer’s disease.
Pardon My Companion Card These cards enable caregivers to
provide in-
formation about Alzheimer’s disease and an explanation
concerning any unusual behavior by the Alzheimer’s patient while in
public.
Do Not Resuscitate Order Forms A properly executed DNRO stating
the patient is
terminal must be signed by the patient’s physi-cian. Emergency
Medical Services are directed to honor a DNRO and provide the
patient with comfort care only. The form must be with the patient
and is available at the AFO office.
Emergency Evacuation Registration This service guides the
caregiver through the
registration process in their local county for individuals with
special needs for safe evacua-tion prior to emergency
situations.
Emergency Placement Directives This service allows caregivers
the opportunity
to ensure that, in the event of a caregiver emer-gency, the
dementia patient will be cared for. All pre-arrangements are made
by the caregiver with help from our resource lists.
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Lake - April 20 First United Methodist Church-Wesley Center, 950
7th Street, Clermont, FL 34711West Pasco – May 18 Villas at Sunset
Bay, 7423 Kauai Loop, New Port Richey, FL 34653East Pasco – June 15
American House 38130 Pretty Pond Road, Zephyrhills, FL 33540 The
Virtual Dementia Tour will available!Citrus - July 20 Citrus
Memorial Hospital (Historic School House Building) 502 West
Highland Boulevard, Inverness, FL 34452 The Virtual Dementia Tour
will available!Hernando – August 10 The Residence at Timber Pines,
3140 Forest Rd., Spring Hill, FL 34606 The Virtual Dementia Tour
will available!Pinellas - September 14 Market Street: A Memory Care
Residence, 833 East Lake Road N., Tarpon Springs, FL 34688Lake –
October 12 Waterman Village Retirement Community, 255 Waterman
Ave., Mount Dora, FL 32757
6 Alzheimer’s Family Organization - Companion
Caregiver LearningLearn helpful information about Alzheimer’s
and dementia at our FREE Caregiver Learning Events!
These events last from 10:00 am to 2:00 pm unless otherwise
noted and include FREE Breakfast and Lunch! To register, visit
www.AlzheimersFamily.org/Caregiver or call the AFO office at
352-616-0170.
Senior Helpers Mobile Virtual Dementia Tour will be featured at
some events.See below for more information!
The Alzheimer’s Family Organization does not endorse the
services of any informational speakers. Presentations are for
educational purposes only.
VENDOR SPACE IS AVAILABLEYOU MUST REGISTER FOR ALL EDUCATIONAL
EVENTS
Call 352-616-0170 | Go to www.alzheimersfamily.org
The Virtual Dementia Tour The VDT is a science-based simulation
of what a person in mid-stage dementia experiences. the opportunity
to. It can help caregivers better understand what patients and
loved ones with dementia are hearing, seeing and feeling. If you
have not had the chance to experience the tour – please see our
schedule above for Caregiver dates that feature the VDT.
Support Group Leader TrainingFor New/Present Support Group
Leaders • Free to the Public
CALL OFFICE FOR LOCATION AND DATES
AFO EDUCATION 2018
Dementia and Alzheimer’s Training
State Required Dementia-Specific TrainingAlzheimer’s Family
Organization’s (AFO) Dementia-Specific curriculum has been approved
by the Florida Policy
Exchange Center On Aging (FPECA) for the Florida Department of
Elder Affairs for purposes of meeting the training requirement of
S.400.452, F.S. and Rule 58A-5.0191, F.A.C.
Our trainers…• Are committed to serving caregivers and
patients.• Relate to the needs of your staff.• Their knowledge is
based on the latest research and data.• Are part of a community
based local organization – a resource that continues after the
training is completed.
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Alzheimer’s Family Organization - Companion 7
DEBBIE’S CO R NER Debbie SelsavageCEO, Coping with Dementia, LLC
and
President of the AFO Board of Directors
I talk a lot about journaling in my workshops for caregivers,
which has proven a beneficial tool that all caregivers should have
in their tool box on this journey. As a caregiver, you must make
many adjustments in your life, and this can be very stressful. You
may have to deal with changes in sleep patterns, changes in
nu-trition, and changes in hydration or even medication. This alone
can cause you to not think clearly, and at times you may even
wonder if you are the one with Alzheimer’s!
At these times, you need grounding; you need per-spective, and
this is why it is important to journal, to keep a record of your
day. You do not have to dedi-cate a large amount of time to
journaling each day, and it does not have to be a literary
masterpiece. Nor do you need a fancy diary. Just keep notes, use
your computer, or even a hand voice recorder. Just know where this
documentation is stored, so you can return to it when you need
it.
Let’s talk about some of the reasons journaling is beneficial:/
Journaling is therapeutic. It can be emotionally healing
to see just how you are doing or to have notes about the things
you may need to work on.
/ It can reduce your stress as you reflect on the day’s events.
Get it out and get it down so you don’t roll it around in your head
all night long.
/ It can help you identify what are the good times and the bad
times of the day, which can help you adjust accordingly for
activities and outings.
/ It can help you tell the story to your physician and help him
or her determine the right times to prescribe medica-tions. How
often do we go into the doctor’s office and forget many of those
important things we wanted to say?
/ It can be a reflection that you made it through an-other day,
providing you with relief and self-esteem.
/ It can enable you to look back to better understand those
moments when you were not thinking clearly due to stress and
confusion.
/ It will help you identify patterns: changes in sleep-ing,
eating, bathroom habits, and other behaviors.
Your task will become more manageable when you can place it in
the context of a 24-hour day. And it may even help you identify the
tasks that you are not good at. The first step to asking for and
accepting help is realizing when you need it! And when your journal
helps you identify something that did not work, you can let it go,
move forward, and attempt to do it differ-ently tomorrow. Happily,
the opposite is true as well. Your journal will also show you just
how really good you are with the task you have been given.
Caregiver stress is not a joke. It is something to take very
seriously. Don’t look at journaling as just one more thing you have
to do during your busy and stressful day. Believe me: five minutes
of journaling can help you find ways to save hours. Just try it. I
believe you will find it can make care giving more efficient and
less stressful.
Journaling Can Provide Many Benefits To A Caregiver
JAMES R. BOONE, PH.D.DIPLOMATE IN CLINICAL NEUROPSYCHOLOGY
AMERICAN BOARD OF PROFESSIONAL PSYCHOLOGYFLORIDA PSYCHOLOGY
LICENSE #PY04361
TEL (727) 944-4600FAX (727) 945-9800
CYPRESS TURN CENTER2625 KEYSTONE ROAD
SUITE A-3TARPON SPRINGS, FLORIDA 34688
https://www.barbaraaepstein.com/http://www.seniorlivingguide.com/
-
8 Alzheimer’s Family Organization - Companion
A FO INFOR MATIO N
Tony was born to Anthony and Stacia Casella, and raised in
Pittsfield, Massachusetts. He is the youngest of two children, with
Dolores being four years his senior. He has five children; Mark,
Kathy, and Beth who all live in Hernando County, Brian in Atlanta,
GA and Kim in Chicago, IL. He has ten grandchildren and six
great-grandchildren. He has been married to his wife, Debbie
Fitch-Casella since 2008.
After graduating high school, Tony held jobs in the au-tobody
repair business until opening his own shop, Casella Auto Body in
1965. In addition to repairing automobiles, Tony became very
interested in snowmobiles and dirt bikes. For many years he raced
cars at Lebanon Speedway in Lebanon, New York, and snowmobiles in
many races in Western Massachusetts, Vermont, and in New York
State. He continued racing cars after moving to Florida at tracks
in Ocala, Citrus County Speedway, and Sunshine Speedway. Up until
2012 Tony was still riding his ATV in the woods at Croom State
Forest.
Tony moved to Spring Hill, Florida in 1982 and has lived in that
area since. Since living in Florida, Tony was co-owner of Interior
Decors by Terry. After closing the furniture store, Tony began
working in management overseeing the autobody shop at Sun Toyota
and Register Chevrolet. He retired in 2007 and soon realized
retirement wasn’t for him. At the age of 70, he returned to the
workforce working for Hernando Door and Window until 2016. In
addition to working there, he also had his own handy-man
service.
Tony has been a volunteer at Alzheimer’s Family Organi-zation
since the move from New Port Richey to Spring Hill in June of 2016.
Tony works diligently on our bulk mailers, newsletter distribution
mailers, handy-man work in the of-fice and any other items needed
at the office. Often you can find him sitting in the Board room
folding, tabbing, labeling, sorting, and organizing various
mailers. Tony is a committed volunteer at the office of the AFO,
making himself available whenever he is needed. He supports AFO
events such as the “I’ll Be Me” showing in Inverness as part of the
Citrus Walk Aware event held in October.
Tony’s commitment to the Alzheimer’s Family Organiza-tion is
greatly appreciated as a volunteer that can be counted on any time.
He brings a smile and a great sense of humor to the office,
creating a relaxed and fun atmosphere! We thank Tony for his
dedication to the AFO and appreciate all of his hard work to ensure
the AFO is successful! He is a pretty great guy…I know…because he
is also my Dad. THANK YOU!
VOLUNTEER SPOTLIGHT
By Kathleen Winters
Meet The Board –A Series:By Kathleen Winters
Bill was born in Alexandria, Vir-ginia and grew up in Richmond,
Virginia. Bill was a very active athlete, competing in several
sports, but excelling particularly in baseball. He is a graduate of
the University of Richmond with a Bachelor of Science degree in
Mathematics. Bill began his career in the Richmond area working for
AT&T in their local office with Chesapeake Potomac Phone
Company for many years and then moved to Florida in 1982 with the
corporate office, retiring from that company after 23 years.
Bill originally lived in the Tampa Bay area when he first moved
to Florida. Finding retirement wasn’t for him, he relocated to
Islamorada, Fl in the Keys. There he operated The Free Press News
for some time. He also opened AT&T wireless stores in seven
Florida locations. During his time in the Keys, Bill was named
Rotarian of The Year in part due to a very successful Chili Cookoff
fundraiser to benefit the local schools. Bill eventually sold his
wireless stores and moved back to the Tampa Bay area.
Bill began his career in the home health industry in 2011 first
with Comfort Keepers and has been with Senior Helpers in Hernando,
Citrus and East Pasco since 2014. In his role as Client Service
Manager has made countless partnerships with many facilities in the
service area. Bill is known to most people in the Tampa Bay area
through his work and hobbies.
Bill has been married to his lovely bride Debbie for seventeen
years. He has one son and one daughter. His son has four children,
ranging in ages 3years to 20 years in age. Bill and Debbie live in
Land O Lakes.
Bill joined the Alzheimer’s Family Organization Board of
Directors in July of 2017. Since joining us, he has been a very
active participant on the Board. He ensures the Virtual Dementia
Tour is available for our events in the service area of Senior
Helper’s. Bill has also jumped in with positive feedback on changes
we could make to become more successful. He has become the Editor
of The Caregiver’s Companion, serves on the Marketing Sub-committee
and is co-chair for a new fundraiser planned for July, The Hernando
Bowling Challenge. Bill brings enthusiasm, knowledge, and
commitment to his role on the Board. We are grateful to have
him.
Bill Tuttle Tony Casella
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Alzheimer’s Family Organization - Companion 9
A FO INFOR MATIO N
Welcome To Media and Marketing Specialist Crystal
Rodriguez!Remember a couple issues back we introduced Ke-
arstin Harmon? Well Kearstin and her now fiancé Ted have moved
to Texas. Before departing Kearstin gave us a great recommendation
for her best friend and old co-worker. Welcome Crystal Rodriguez
our new Media and Marketing Specialist. Crystal worked for Print
Shack, a local apparel printing company in Hernando County where
she met Kearstin! We are very lucky to have found someone that
shares the same graphic style and brain as Kearstin! Don’t worry
though, because Kearstin still gives Crystal her input and great
ideas and their two brains work like a well-oiled machine!!!
Crystal has worked for the AFO for just 3 short months, but she
feels like she has been here much longer. She says the AFO is like
being at home with her family! Crystal is the eldest child of her
parents, her sister being 3 years younger. She was born in Los
Angeles California, her parents moved to West Palm Beach, Florida
when she was 7 and they have been in Florida ever since. She
graduated from Forest Hill High and is a Full Sail University
graduate with a Bachelors in Graphic Design. Crystal is very proud
to say her sister, her closet cousin and herself are the only
children in the family who have chosen to go onto higher educa-tion
and complete a degree.
Crystal realized her love for design when she met her husband
Vinny in 2009. She taught herself many
of the Adobe programs, and he helped convince her to take it a
step further and go to school. She hasn’t looked back since.
“Design is not just my career, it’s my passion! Everything you see
around you has to do with some sort of graphic designing or art.
Some people say without music there is no life, without art our
world would be boring!” Crystal and her husband share a love for
horror mov-ies and Halloween, getting married on Halloween in
matching banana costumes!
Alongside her mother and father in law, Crystal and her husband
Vinny assisted caring for his grandmother Maria who had
Alzheimer’s, sadly she lost the battle in 2016. With round the
clock care, they all took turns do-ing the best they could in
caring for her. Crystal has a small understanding on what a big
impact this disease can have on caregivers, families, and friends.
“Attend-ing just two caregiver learning days, I have learned so
much and seen so many things we did wrong with caring for my
husband’s grandmother. I wish we could have a second try with
caring for her with everything I have learned now.”
ASSISTED LIVING AND MEMORY CAREWhere older adults enjoy a
lifestyle of comfort, convenience and connection!
930 CR 466, Lady Lake, FL 32159352-259-8185
AL#11908 • Assisted Living Facility #4832
This workshop will provide you with a betterunderstanding of
what your loved one is dealing with.The more you know, the better
caregiver you will be.
Of Dementia
I’m Debbie Selsavage, contact me at [email protected] or call
352-422-3663to find out if there is a workshop scheduled in your
area, or to find out how you can schedule an ABC of Dementia
workshop at your club, organization or church. It’s FREE! Visit our
website at www.coping today
http://coping.today/https://www.atriaseniorliving.com/retirement-communities/atria-lady-lake-lady-lake-fl/http://www.seniorlivingguide.com/
-
EVERY 13 SECONDS, an older Adult is treated in an emergency room
for a FALL RELATED Injury.
25% of those falls result in death, HAVE I CAUGHT YOUR
ATTENTION?
We can reduce falls greatly by doing some simple changes to our
daily activities. SLOW down and take your time, nothing is to
important that we need to rush.
Balance is vital to normal everyday life activities such as
getting out of a chair and walking, bending over to put your shoes
on, washing your hair, driving a car or going grocery shopping.
Just about everything you do in your daily life, whether for work
or leisure requires balance control, and most of the time you don’t
have to think about it. If balance problems develop, though, they
can cause profound disruptions in your daily life. In addition to
increased risk for falls, balance disorders can shorten your
attention span, disrupt normal sleep patterns, and/or cause
excessive fatigue.The Balance Control Process
Ability to maintain balance is a complex process that depends on
three major components: (1) your sensory systems for accurate
information about your body’s position relative to your
environment; (2) your brain’s ability to process this information;
and (3) your muscles and joints for coordinating the movements
required to maintain balance. The sensory systems include your
sense of touch (feet, ankles, joints), your vision and your inner
ear motion sensors. For example, we rely on our feet and joints to
tell us if the surface we are standing on is uneven or moving. We
rely on our eyes to tell us if the environment around us is moving
or still. And we rely on our inner ears to tell us if we are
upright or leaning or standing still or moving.
Balance control is accomplished “automatically” without
requiring our conscious attention. When our balance “auto pilot” is
disrupted, we have to exert in-
tense conscious effort to try to overcome the abnormal
sensa-tions and maintain control of our balance. This intense
effort, in turn, is what leads to the common secondary symptoms
such as shortened attention span and fatigue.Loss Of Balance
Control
In a normal healthy individual our senses of touch (feet,
ankles, joints), sight (eyes) and inner ear motion sensors work
together in harmony with the brain. A person with a balance
disorder, however, may have a problem in any one of these systems,
or in multiple systems. In some individuals, one or more of the
senses are missing and the person does not realize they are losing
their balance. In other people, the brain gets confused and creates
an inaccurate sense of falling when in fact the person is in
balance. The risk of de-veloping one or more of these problems
increases with age as our senses or brain centers are exposed to
degenerative or infectious diseases, or the effects of injuries
accumulated over a lifetime.Inevitable?
Is a loss of balance control an inevitable consequence of aging?
No. The natural aging process produces changes in our bodies as we
grow older, but these changes do not necessarily result in a loss
of balance control or mobility. Healthy seniors are quite able to
perform daily life activities normally with few physi-cal
limitations. In fact, recent studies have indicated that, elderly
fallers are different from their healthy, age-matched counterparts.
Dizziness among older adults can also be caused by a collection of
subtle degenerative or infectious processes or injuries that in
combination result in a balance problem.
Some individuals experiencing balance problems have an obvious
medical diagnosis such as diabetes, Parkinson’s disease, Dementia
disease, or even a stroke that are primary sources of the problem.
In other individuals with balance difficulties, the cause can even
be subtle undetected forms of these diseases. However, diseases are
not the only reason our senses and movements may be compromised. A
history of injuries, such as concussions, ear infections, or
serious sprains or fractures, may contribute to a loss of balance
control over time. In addition, various combinations of
medications, both prescription and over the counter, can be
detrimental to our senses or brain and cause either temporary or
permanent damage.
From Your Editor: SOMETHING TO THINK ABOUTBy Bill Tuttle, Client
Service Manager Senior Helpers
10 Alzheimer’s Family Organization - Companion
A FO INFOR MATIO N
https://www.seniorhelpers.com/naturecoast-fl/
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Community Educator’s Report:Lake and Sumter Counties
By Pam Schmitz
We are now three months into the new year, how many of you are
keeping your New Year’s Resolutions? I hope you are keeping the
resolution to attend a sup-port group at least once a month or as
often as you feel necessary. Remember, we have multiple support
groups, offered on multiple days, multiple times and multiple
locations throughout Lake and Sumter Coun-ties. I’m excited to
announce we have a new support group starting in Tavares. The new
support group will be held at The Cove at Tavares Village, 1501
Sunshine Parkway, Tavares. They will meet the 3rd Monday of each
month at 1:30PM. Their first meeting will be on Monday, April 16th.
You can contact Amy Lesner for additional information – Amy can be
reached at 352-250-2602. Be sure to review our list of Support
Group Meetings in our Caregiver’s Companion on pages 4 and 5.
Our biggest event this past quarter was our AFO Support Walk
held at the Polo Field in The Villages. It was a beautiful Saturday
morning, the best weather we’ve had in years, and a wonderful
turnout of walkers. I want to thank all our sponsors and
participants – we had a great time and thank you all for your
support of the Alzheimer’s Family Organization.
Health Fair season is winding down, I hope you had the
opportunity to attend one in your area. There will still be a few
scattered throughout the counties – if you see one in your area
please attend – they are a wealth of information.
Mark your calendar – Friday, April 20, 2018…..Our next big event
will be in South Lake, specifically Cler-mont. Our CAREGIVERS
DAY-LEARNING EVENT will be held on Friday, April 20, 2018 at the
First United Meth-odist Church-Wesley Center, 950 7th Street,
Clermont. The event is from 10:00AM to 2:00PM, a continental
breakfast and lunch will be provided. Our speakers will be Dr. Ira
Goodman, a Board Certified Neurologist with The Compass Clinic,
specializing in Alzheimer’s disease, Parkinson’s disease dementia
and memory loss. Dr. Goodman has been recognized as one of the top
neurologists in Central Florida for 18 consecutive years by his
peers. We will also have Stephen D. Dunegan, Esq. and Thomas E
Hynes, Esq. with the Law Office of Stephen D. Dunegan, Board
Certified in Tax Law and Wills, Trusts & Estates, discussing
the legal documen-tation which should be in place. They will also
cover
VA Aide and Attendance and Medicaid Planning. There will be a Q
& A period after each presentation. This will be your
opportunity to ask questions of the experts. Please plan on
attending! The Caregiver Learning Event is FREE, but we do ask that
you RSVP. We need an attendance count for the food preparation.
Please register for this event by call-ing our AFO office at
352-616-0170 or you may register online by visiting
www.AlzheimersFamily.org/Caregiver. Hope to see you in Clermont on
April 20th.
Please remember if your church, club or organization is looking
for a speaker please contact me at [email protected]. Part
of our mission is to provide educational programs….we look forward
to getting out into the communities and sharing information about
the Alzheimer’s Family Organization and Alzheimer’s/Dementia.
A FO INFOR MATIO N
● Medicare Advantage Plans
(HMO, PPO, SNP)
● Medicare Supplement Plans
● Medicare Prescription Drug Plans
● Long Term Care Planning
● Final Expense
● CD Alternatives
We are independent brokers dedicated to
finding the plan that best fits YOUR needs.
Connecting You to the Right Plan:
Call Timothy Hill: 352-650-2608
Alzheimer’s Family Organization - Companion 11
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A FO INFOR MATIO N
Community Educator’s Report: The VillagesBy Jackie
Kuhn-Damron
Remember the old saying “Time fly’s when you’re hav-ing fun!” I
do not know where these past three months have gone, but I do know
that it has been fun. What a busy time we have had. I don’t know
about you, but I am happy to put the wintry weather behind us and
begin to enjoy the beautiful plants and flowers starting to
bloom.
We have seen much joy and sadness as several of our family
members have put their loved ones in the hands of our Lord. Joy in
the sense that their journey is now complete, and we have many
great memories to fill our thoughts and heart. Sadness in knowing
the suf-fering they endured and that they will not know the joy
that they brought into our lives and home. Many of you remember our
Volunteer Spotlight from last edition was Lucille Jesaitis. She
went home to be with the Lord and what a celebration of life was
given in her honor by the many lives she touched.
The Villages area has been blessed with the many fund raisers
and donations this past quarter. A big thank you to “Heart of
Dixie” for the generous donation as they said goodbye to their
club. Our Family Support Walk was an enormous success. We have so
many to thank for the success of this big event. Many volun-teers,
participants, community businesses, those who donated their time
and gifts. This event says a lot to the community that our battle
with Alzheimer’s is not over and it is touching the lives of those
we love. Thank you to “Key to Senior Options” for our successful
first “Spring Bling Fling”. Hoping this can become an annual event.
Also, thank you to Brookdale for their several fund raisers that
helped make the walk a success.
Our Caregiver Day was awesome! A big thank you to
our speakers, Deb Selsavage (Coping with Dementia) and Rich
Behers (Cornerstone Hospice) for their words of encouragement and
shar-ing their knowledge for our caregivers.
Looking ahead we will be celebrating “Volunteer Appreciation
Day” on April 27th. More details to come.
If you have a need to have someone speak at your club,
organization or group and learn more about Alzheimer’s Family
Organization and Alzheimer’s/Dementia, please contact me as it
would be a privi-lege to serve you.
A Servant’s Heart, Jackie
12 Alzheimer’s Family Organization - Companion
Main Office (Open All Year)6640 Ridge Road • Port Richey, FL
34668 • 727-849-6562 • Fax 925-666-2987
21531 Village Lakes Shopping Center • Land O’ Lakes •
813-996-79408717 SR 52, Hudson - 727-861-1107 • Tarpon Springs
Walmart - 727-597-2548
Port Richey Walmart - 727-597-2597 • Palm Harbor Walmart -
727-597-0756New Pt Richey Walmart - 727-597-0676 • 24 Hr Refund
Hotline - 866-473-1040
John R. Jamison, EA
https://www.jacksonhewitt.com/Tax-Preparation-Services-Locations/FL/Port-Richey/11690/
-
Alzheimer’s Family Organization - Companion 13
https://www.atriaseniorliving.com/clusters/central-florida/
-
U P C O M I N G E V E N T S S A V E T H E D AT E
For more information on upcoming events or to purchase event
tickets: www.alzheimersfamily.org
For Educational Events, see page 6.
14 Alzheimer’s Family Organization - Companion
“ALLEY CAT” By: Crystal Rodriguez
GOLF TOURNAMENTGOLF TOURNAMENTCHARITY CHARITY Tampa Bay Tampa
Bay 8:00 AM
9:30 AM
www.AlzheimersFamily.org/Bowling
www.AlzheimersFamily.org/GolfTournament
● ● ● ●PLAY SPONSOR DONATE VOLUNTEER
th Oct. 20 2018
Nov. 10th 2018
th July 14 20181:00 PMStrike City
3544 Mariner Blvd
Spring Hill, FL 34609
Historic Downtown Floral City
8394 E. Orange Ave.
Floral City, FL 34436
Crescent Oaks Golf Club3300 Crescent Oaks Blvd.
Tarpon Springs, FL 34688
www.AlzheimersFamily.org/WalkAware
HERNANDO
CHALLENGEb wl ngb wl ng
● REGISTER
SPONSOR ●
● DONATE
● VOLUNTEER
DONATE ● ● ● ● WALK SPONSOR VOLUNTEER
Presents the 1stAlzheimer’s Family Organization & Meridien
Research
JOIN US FOR THE 18TH ANNUAL
HISTORICHISTORICHISTORICDOWNTOWN FLORAL CITY
A STROLL THROUGH
https://alzheimersfamily.org/bowling/https://alzheimersfamily.org/walkaware/https://alzheimersfamily.org/golftournament/www.alzheimersfamily.org
-
U P C O M I N G E V E N T S
Alzheimer’s Family Organization - Companion 15
PHONE: 352-616-0170 FAX: 352-616-0174
WWW.ALZHEIMERSFAMILY.ORGALZHEIMER’S FAMILY ORGANIZATION - 461
MARINER BOULEVARD, SPRING HILL, FL 34609
Proceeds to benefit the lzheimer’s amily rganizationA F O
JULY 14, 2018 | 1:00 PMJOIN US ON:
● ● ● ●REGISTER SPONSOR DONATE VOLUNTEER
50/50 Raffle, Silent Auction,Baskets and Prizes!
TEAMTeam of 4..................$150
HERNANDO
CHALLENGEb wl ngb wl ng
ALZHEIMER’S FAMILY ORGANIZATION & MERIDIEN RESEARCH
REGISTER A TEAM ONLINE & BECOME A SPONSOR
www.AlzheimersFamily.org/Bowling
Strike City 3544 Mariner Blvd, Spring Hill, FL 34609
www.alzheimersfamily.org/bowling
-
R E C E N T E V E N T S
Alzheimer’s Family Support Walk 2018By Kathleen Winters
GOLD - $1,000• Dr. Bill Brandy• Vitas Healthcare• Elan• United
Healthcare• Lake Medical Imaging• Brookdale Place at
Freedom Pointe
Silver - $500• Bioclinica Research• Cypress Care Center• Mission
Oaks• Vascular Vein Centers• Coping with Dementia• New Covenant
United
Methodist Church• Neurology Center of
Excellence
Bronze - $250• Senior Helpers• Brookdale of Clermont• Veterans
& Medicaid
Planning Group PLLC• Concierge Home Care• Cornerstone Hospice
&
Pallative Care• Baldwin Brothers
In-Kind• Minuteman Press of New Port Richey• Brooklyn Bagel•
Bj’s Wholesale Club• Mike Scott Plumbing
THANK YOU, SPONSORSCO-NAME SPONSOR - $10,000
16 Alzheimer’s Family Organization - Companion
Our 6th Annual Alzheimer’s Family Support Walk was held on
February 24, 2018. With the help of Parady Financial, AFO staff, 25
volunteers, 19 Sponsors, 4 In Kind Donors and 862 walkers we were
able to raise a total of $32,651.93! The money raised will go
towards continuing AFO’s support and education programs for the 8
counties that we serve! See page 5 to learn more about what we
do.
Wow! What a day we had! The Walk was held in The Villages at the
Polo Field on Saturday, February 24th and it was a great day all
the way around! The weather was perfect, not to hot and not too
cool. The sun was shining the whole day! We had 862 registered
walkers this year! More than last year! We had young and old, folks
that walked, some with walkers, some were pushed in wheelchairs,
and some in strollers. All came together for the spirit of the
day!
This day is a day to remember those we have lost, those walking
the journey now and for sup-port of each and every caregiver and
loved one being touched by this disease. We had a new addition to
the event this year, entertainment by Scooter the DJ! He kept the
crowd engaged and we had some great laughs! Our team trophies went
to: 1st Place – Parady Financial with 131, 2nd New Covenant United
Methodist Church with 76 and 3rd - The Day Break Club with 70!
We want to take a moment to thank Parady for being our co-name
sponsor again this year and committing already to be our co-name
again next year! THANK YOU! Your continual support of the AFO is
greatly ap-preciated! Thank you to The Villages Cheerleaders for
their continual support each year and for cheering on all the
participants! We appreciate you!
We were graced with the beautiful voice of Heather Ard, who sang
our National Anthem and the Vietnam Veteran’s Color Guard led off
the event with the Pledge of Allegiance.
Thank you to the Walk Committee; Co-Chairs, Cheryl Courtright,
DOB Vice-President and Shelley Calkins. Board President, Deb
Selsavage, Board Members Karen Mercer and Rick Wiggins, Community
Partners Tyler Borowski along with our Volunteers Becky Allen, Enid
Cristedero, Cindy Warner, Stan Golove, Charlie Heckel and John
Lazo.
We had 4 In Memory/ Honor of Boards full with loved ones who
were recognized by their family and friends!
Linda Bennett of Parady Financial, Kathleen Winters -
Executive
Director of AFO, and Cindy Reed President of Parady
Financial.
Scooter the DJ and our Executive Director Kathleen
Winters!
https://www.paradyfinancial.com/
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I N T H E K N O W
Alzheimer’s Family Organization - Companion 17
The Oxford English Dictionary defines the ‘buddy system’ as a
cooperative arrangement whereby individuals are teamed up and
assume responsibility for one another’s welfare. Once you remove
jargon and definitions, a workplace buddy system is simply about
helping people make friends and learn from each other!
One thing’s clear – friends within a work environment matter,
big time! In fact, research shows just having one close connection
makes us up to 50% happier however those bonds are formed –working
in collaboration, social events, or through buddy systems, all of
which enhances efficiency and increases effectiveness. It’s that
peer-to-peer relationship that distinguishes buddy programs from
formal work place mentoring and coach-ing programs, often
accompanied with performance goal setting.
Buddy systems are intentionally less structured so that the
relationship can flourish and develop naturally over time and
incrementally acquires new information when it is needed. It
enables caregivers to mutually exchange ideas, experiences,
successes, challenges, and importantly acknowledges the level of
difficulty and complexity of the job of caregiving without being
judgmental or critical.
In addition to expanding social networks and friend-ships, the
caregiver buddy system encourages informal learning and develops
skills through social interaction, shared experience, observation,
demon-stration and modelling. Mutual learning can occur through
this style of commu-nication and discussion that ultimately builds
skills, recognition, motivation and confidence. This is critical
for maintaining and sustaining focus, engagement and progression
towards the multitude of caregiving tasks.
Research shows that those who ex-press fulfilment and happiness
within their work environment are at least 12% more productive,
communicative and collaborative. This results from successful
teamwork –something that caregivers fully understand about the
importance of on a daily basis.
Unlike new employees starting a new job where orientation,
onboarding, work-flow processes, engagement and turnover are key
factors towards performance and
A Buddy System For CaregiversBy James Finnegan, MSW, LCSW, SPHR,
SHRM-SCP
retention, caregivers often inherit new or existing jobs of
caring for loved ones that were never anticipated or expected. So
making transi-tions to new roles, new communities and
neighbor-hoods, or completely new parts of the country invites
additional opportunities for building success. Although feelings of
being stressed and overwhelmed are often present, some positive
buddy system strategies include: • Arranging get-to-know lunches,
introductions, devel-
oping rapport and relationship building;• Establishing contacts,
resources, networks and groups;• Learning about local systems,
procedures, and un-
spoken rules;• Refocusing on personal structure, organization,
rou-
tine, and time management;• Regularly scheduled plus ad hoc
contact with your
newly assigned buddy• Developing a comfortable and safe
environment that
encourages asking questions and raising sensitive is-sues within
a culture of openness that further builds trust, morale and
teamwork.
Assigning a caregiver buddy who can help ease the transition
into their new role, environment, commu-nity etc., can be extremely
beneficial for all involved, especially during the early impactful
period where it
Buddy, continued on page 18.
www.seniorhelpers.com/thevillages
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I N T H E K N O W
18 Alzheimer’s Family Organization - Companion
is so important to feel comfortable in their new role or
environment, maintain a confident attitude, and re-main engaged and
energized with all of the caregiver’s daunting tasks.
It’s not just experienced caregivers who are excellent models to
provide buddy system support towards oth-ers. Less experienced or
diverse backgrounds of caring for loved ones are equally as
important towards gaining invaluable insights, tips, tools,
techniques and tricks for transferring knowledge and information
towards a new member of the caregiving community and can help set
the foundation for their long-term success. Building cultural
competence towards any new environment is an ongoing process, and
not a one-time event. Suc-cessful buddies often demonstrate the
following skills and knowledge:• Teaching, tutoring, or explaining
new or unfamiliar
tasks;• Socializing the new caregiver on norms, culture, and
unwritten guidelines;• Sharing insights on how things are done,
resources
accessed, available support networks;• Inclusion in social or
informal activities, such as lunch
events, coffee mornings, and support groups and
organizations.
Successful buddies are also realistic experienced in their roles
to be able to balance the comprehensive needs of themselves, their
loved one, plus their fam-
Buddy continued from page 17.
ily and friends within the new buddy relationship and understand
that: • They are not expected to be an expert on everything,
and don’t worry about living up to this ideal;• Focus attention
on the new caregiver and what they
need to be comfortable and successful in their new role or
environment;
• Remain patient—relationships take time to develop;• They don’t
try to cover everything immediately, as the
new caregiver more than likely feels overwhelmed and will need
time to digest all the information they are receiving from multiple
sources;
• The importance of staying positive. Caregivers grow into their
new roles or environment in time with ap-propriate support;
• Don’t try to force a relationship. Be available, but give the
caregiver time to adjust to you and feel comfort-able with using
you as a trusted resource;
• Be sensitive to the caregivers personality and com-munication
style and try to adapt accordingly;
• Keep an open mind and self-reflective. The caregiver in a new
role or environ-ment is relying on you amongst others, to be a safe
place to get answers to their many questions so maintain a
positive, teaching attitude.
Take great pride in your incredible ef-forts, as being a
caregiver is not easy and those who do it are very special. More
information regarding these and other support strategies for
caregivers can be found from one of the many dedicated staff from a
caregiver support agency such as Alzheimer’s Family Organization
about getting help.
Contributions towards the development of this article is
credited to the National Institute of Health, Project Management
Institute, Society for Human Resource Management and Safety at
Work.
Caregiving often calls us to lean into love we didn’t know
possible.
Caregiving often calls us to lean into love we didn’t know
possible.
missionoaks.net
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I N T H E K N O W
Summer Tips For CaregivingBy Steve Davis, M.S.
As most of us who have lived in Florida for a year or more know,
summer weather can be brutal. The excessive heat and humidity are
particularly danger-ous to individuals with cardiovascular,
pulmonary, and metabolic issues.
Make sure to plan your summer months in accor-dance with your
physical needs/limitations, as well as those of your loved one.
Above all, ensure that you each maintain proper hydration. Drink
a minimum of four to six ounces of water hourly, being ever-mindful
that caffeine and alcohol have dehydrating effects.
Dress appropriately with cool, loose-fitting clothing and
adequate sunscreen protection. Limit direct sun exposure to no more
than 20 minutes at a time. Most medications – especially
antibiotics, diabetes, heart, and pain meds – cause increased sun
and heat sensitivity.
Be alert for signs of heat exhaustion, which are primarily
faintness/dizziness, nausea/vomiting, heavy sweating with cold
clammy skin, weak/rapid pulse, pale or flushed face, muscle cramps,
headaches, and weak-ness/fatigue. Without immediate medical
attention, heat exhaustion can rapidly progress to heat stroke,
which may be fatal. Signs of heat stroke include flushed/hot dry
skin (with person’s ability to sweat being lost due to
dehydration), 105° or higher core body tempera-ture, fainting,
confusion, coma, and hyperventilation.
Always try to plan your daily activities well in advance, with
ample contingencies. Be sensitive to specific emo-tional and
physical needs of your loved one, focusing on those activities
within each of your comfort zones and ability levels.
Stay informed of community and regional group activities and
resources, including respite. Know your personal limitations. Plug
into a local support group and stay connected.
Have a safe and healthy summer!
Alzheimer’s Family Organization - Companion 19
Brookdale® is a trademark of Brookdale Senior Living Inc.,
Nashville, TN, USA72040-P2-0715-ROP SW
Is it possible to sustain mental function affected by the early
stages of Alzheimer’s?Recent research suggests that a well-designed
program, including cutting-edge technology, may be key to
maintaining cognitive function and slowing the progression of
Alzheimer’s disease and related dementias. Clare Bridge Crossings
offers innovative programming designed to engage residents, boost
self-esteem, improve quality of life and help seniors to remain
social. Our unique approach includes such mind enhancing activities
as:
• InTouch, a unique technology that provides a virtual world of
discovery
• Ventures Outings, our program that offers new learnings with
lectures and trips
To learn more about Clare Bridge Crossings, call
1-877-885-6153.
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Care1700 El Camino Real | The Villages, Florida 32159Assisted
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Discoverthe Latest Encouraging News About Early Stage Memory
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I N T H E K N O W
20 Alzheimer’s Family Organization - Companion
The File of Life is a record of medical informa-tion which you
can fill out yourself. The record is printed on heavy card-stock,
and records such things as emergency contacts, your doctor’s name,
recent surgeries, medical conditions, and medication chart. Once
filled out, this record is designed to slide into a bright red
plastic sleeve with a magnetic backing. The magnetic backing allows
anyone to attach the File of Life to their refrigerator.
So why fill this form out and stick it to the refrig-erator
door, where it takes up space you could fill with photos of
grandchildren, or game schedules of sports-playing
grandchildren?
Because in the event you need an ambulance at your house, those
paramedics who respond are trained to look at your refrigerator
door for just this kind of thing.
While they are treating the medical emergency, and preparing the
patient for transport, they can grab the File of Life, look it
over, and make sure it gets to the emergency room with the
patient.
The emergency room staff can, with a glance at the card, get a
pretty good idea of your medical history.
File Of LifeBy Katrina Butler
For more information please call 352-616-0170Would you like to
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And just as importantly, they can get an up to date record of
the medications you are using. Just consider what can happen if you
don’t post a File of Life on your refrigerator.
When the paramedics arrive, and get someone ready for transport,
they will want to know about medications. So someone will need to
scramble around collecting pill bottles, remembering how often the
patient takes each
pill, and how many pills they take each time. And communicate
this to the paramedics. And this needs to happen as two or three or
four paramedics, and maybe a police officer or two, are maneuvering
a gurney through the house, along with whatever other emergency kit
they need for the situ-ation. Do you think there is a chance
something might be overlooked, or forgotten, or mistakenly told to
the paramedic?
You can eliminate just that much stress in an awful situation by
keep-ing the File of Life on your refrigerator door.
Where can you get this resource? You can order online at
FOLife.org or Amazon.com, you can also check with your local
Sheriff’s Department.
https://www.edwardjones.com/financial-advisor/index.html?CIRN=9iMjW9Stv2SkfRBHE0Iagan1kDgfakFbgnLrF3Pey%2BFM5N4TSDezcEc74QeDw3gy
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I N T H E K N O W
Hurricane Preparedness TipsBy: Katrina Butler
The next time a disaster strikes, you may not have much time to
act. Planning ahead reduces anxiety. Prepare now for a sudden
emergency and remember to review your plan regularly.
Meet with your family and friends and explain your concerns to
your family and others in your support network and work with them
as a team to prepare.
Arrange for someone to check on you at the time of a disaster.
Be sure to include any caregivers in your meeting and planning
efforts.
Assess yourself and your household. What personal abilities and
limitations may affect your response to a disaster? Think about how
you can resolve these or other questions and discuss them with your
family and friends. Details are important to ensure your plan fits
your needs. Then, practice the planned actions to make sure
everything “works.”
Family communication plans are very important. Carry family
contact information in your wallet. Also, choose an out-of-town
contact person as well.
Ask about the emergency plans and procedures that exist in your
community. Know about your com-munity’s response and evacuation
plans (e.g., hurricane, nuclear emergency, severe weather). If you
do not own a vehicle or drive, find out in advance what your
community’s plans are for evacuating those without private
transportation or make arrangements with a neighbor or family who
would drive you. If you receive home care, speak with your case
manager to see what their plan is in times of emergency and how
they can assist with your plan.
Keep support items like wheelchairs and walkers in
a designated place so they can be found quickly. This step is
essential for those who have home-health caregivers, particularly
for those who are bed bound.
Keep copies of vital family re-cords and other important
docu-ments such as birth and marriage certificates, social security
cards, passports, wills, deeds, and financial, insurance and
immunizations records in a safe location, like a fire safe or
safe-deposit box. Plastic sleeves will help protect important
documents.
Ensure that your, and your loved ones, medications are refilled
ahead of the storm. Most pharmacies will allow you to fill refills
prior to the fill due date in cases of emergency, like a
hurricane.
The American Red Cross has an excellentpreparedness guide to
help keep you on track.
Our next issue will provide more information.
Alzheimer’s Family Organization - Companion 21
352-597-8839813-877-8839727-347-8839
WWW.NEWSTUDYINFO.COM
ALZ100
310C
We need individuals age 50 to 90 who have Alzheimer’s for a
study of a medication that may slow the progression of the
disease.Eligible participants will receive study-related care,
monitoring and investigational medication or placebo. Compensation
for time and travel may be available to patient and caregiver. Call
today to see if you qualify!
ALZHEIMER’S DISEASERESEARCH STUDY
352-597-8839813-877-8839727-347-8839
WWW.NEWSTUDYINFO.COM
ALZ100
310C
We need individuals age 50 to 90 who have Alzheimer’s for a
study of a medication that may slow the progression of the
disease.Eligible participants will receive study-related care,
monitoring and investigational medication or placebo. Compensation
for time and travel may be available to patient and caregiver. Call
today to see if you qualify!
ALZHEIMER’S DISEASERESEARCH STUDY
352-597-8839813-877-8839727-347-8839
WWW.NEWSTUDYINFO.COM
ALZ100
310C
We need individuals age 50 to 90 who have Alzheimer’s for a
study of a medication that may slow the progression of the
disease.Eligible participants will receive study-related care,
monitoring and investigational medication or placebo. Compensation
for time and travel may be available to patient and caregiver. Call
today to see if you qualify!
ALZHEIMER’S DISEASERESEARCH STUDY
352-597-8839813-877-8839727-347-8839
WWW.NEWSTUDYINFO.COM
ALZ100
310C
We need individuals age 50 to 90 who have Alzheimer’s for a
study of a medication that may slow the progression of the
disease.Eligible participants will receive study-related care,
monitoring and investigational medication or placebo. Compensation
for time and travel may be available to patient and caregiver. Call
today to see if you qualify!
ALZHEIMER’S DISEASERESEARCH STUDY
newstudyinfo.com
-
I N T H E K N O W
22 Alzheimer’s Family Organization - Companion
S I M P LY D E L I C I O U S
Chocolate Peanut Butter Banana BitesIngredients:• 1 cup
semi-sweet chocolate chips • 2/3 cup smooth peanut butter• 2 tsp.
coconut oil• 2 bananas, sliced into 1” rounds• Flaky sea salts
Preparation:1. Line a large, rimmed baking sheet with parch-
ment paper.2. In a medium bowl, heat chocolate in 30-second
intervals until melted. Heat peanut butter for 15 seconds in
microwave until runny.
3. In a medium bowl, mix chocolate and coconut oil until
combined.
4. Into small baking cups, add teaspoon scoops of chocolate. Top
with a slice of banana, a teaspoon-sized scoop of peanut butter,
and another scoop of chocolate. Repeat until you have used all your
banana slices. Top with a pinch of sea salt.
5. Place tray in freezer for 2 hours, or until frozen.
Serve.
AMD Care Management, Inc. Assisting Seniors in their time of
need
Advocating for seniors by providing a professional concierge
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I N T H E K N O W
Alzheimer’s Family Organization - Companion 23
Together with The Villages is a trademark of Holding Company of
The Villages, Inc., and is used with permission. 1/18
Assisted Living Facility License # 12833
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Please call [352] 300-1089 for moreinformation on this limited
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Moving a loved one into a memory care community could be one of
the hardest decisions a caregiver will ever have to make.
Loved OneAnonymous
Do not ask me to remember,Don’t try to make me understand
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I’m confused beyond your conceptI am sad and sick and lost
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Do not lose your patience with meDo not scold or curse or
cry
I can’t help the way I’m actingCan’t be different ‘though I
try
Just remember that I need youThat the best of me is gone
Please don’t fail to stand beside me, Love me till my life is
gone.
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NoN-Profit orgaNizatioNU.S. PoStage
P A I DtamPa, fL
Permit #6328
461 Mariner BoulevardSpring Hill, FL 34609352-616-0170E-mail:
[email protected] Site: www.alzheimersfamily.org
HAVE YOU MOVED???If your address has changed,
please let us know.
Published by
facebook.com/AFO.FL
How to Make a Bequest to the Alzheimer’s Family Organization
Enclosed is my tax deductible donation of $ _________Please
dedicate my donation in honor of/in memory of:(Name)
___________________________________And notify: Name
____________________________Address
__________________________________City _________________ State
_____ Zip ________Sent by
___________________________________Address
___________________________________City _________________ State
_____ Zip ________
The Alzheimer’s Family Organization needs your support to carry
on all of the services we offer including support groups, the
Helpline, the Newsletter and other activities to assist families
coping with Alzheimer’s disease and other dementias.q YES, I would
like to be a volunteer for the Alzheimer’s Family Organization.q
YES, I would like to support the work of the Alzheimer’s Family
Organization through
membership, which entitles me to receive the newsletter, updates
on research and notification of caregiver days/seminars.
Name
__________________________________________________________Address
_______________________________________ County __________City
_______________________________ State ______ Zip _____________Home
Phone ___________________ Email
____________________________Enclosed is my tax deductible
membership contribution of:q $50 Memberq $100 Friendq $500
Lifetimeq $1000 Alzheimer’s Angel
q $300 Corporate (organization, agency, nursing home or ALF)
q $500 Corporate Plus (organization, agency, nursing home or
ALF)
Speak with your attorney about the advantages of estate planning
and how your will can benefit both your loved ones and the
Alzheimer’s Family Organization. If you already have a will, your
lawyer may add a codicil to it. If you don’t have a will, the
bequest can be included when your will is drafted.
We accept MasterCard, Visa
and Discover
Twitter@AlzFamilyOrg
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Providing quality home care for those wishing to age in place.
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Would you like to help support AFO?
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