User Involvement: Who is engaged? What does research tell us about involvement? Rosemary Chesson Health Services Research Group The Robert Gordon University
Dec 10, 2015
User Involvement: Who is engaged?
What does research tell us about involvement?
Rosemary Chesson
Health Services Research Group
The Robert Gordon University
Research
• designed to provide new knowledge
• it is generalisable
• findings open to critical examination & accessible to all
‘
’
Telford et al, 2002
‘refers to the appropriate, active participation of all groups (e.g patients, carers, local community and wider public) as partners in their own care and in the planning, monitoring and development of health services.’
Kelson, 1997
Involvement
What does research tell us?
• variable across countries & UK
• variable between services
• variable between diff care/client groups
• not straightforward to do
• resources needed
Little evidence to support claims of
• Improved treatment outcomes
• Leads to development of new / alternative approaches
• Increased sense of ownership of services
‘Its about them doing what they are told, when they’re told and that’s it’
‘It is difficult when we’ve got this duty of care’
Recommendations
• Recognise need for public education and support
• Need to implement & monitor staff development strategies
• Include evaluation as part of user involvement
• Promote dissemination of research on UI