e MyStory Journey: Capturing each child’s story to personalize the care we provide pediatric patients and their families Evidence strongly supports the importance of capturing the personal story and preferences of a child admitted to an acute care hospital setting. At University of Minnesota Amplatz Children’s Hospital, we have developed an initiative, called MyStory, that recognizes not just the patient, but the child as an individual. Objectives: families that will be an Always Event ™ when caring for children — MyStory o MyStory as an Always Event ™ is a interprofessional effort to capture each patient’s “story.” o Document the “story” in a convenient tool within the electronic health record. o Use the patient’s “story” to personalize the care we provide to patients, and to involve them in care planning and decision making. patients by learning their story and engaging them in care planning and decision making. Tools & Implementation: electronic health record to be used in the outpatient areas: o Surgery waiting room Outcomes: e MyStory project outcomes are measured by a number of metrics that have been put into a dashboard that is formatted to match the clinical quality and safety dashboard the organization uses. Cheristi Cognetta-Rieke, BSN, DNPc, RN; University of Minnesota Amplatz Children’s Hospital, Minneapolis, MN My name is: You can call me: Age: My caregiver(s) name(s) are: I am from: My friends are: My favorite toys or things to do are: I am good at: When I grow up, I want to be: Draw a picture of what you want to be when you grow up: My Story: (School Age) is is to be used as a template only! Give to health care team to enter in EPIC. uofmchildrenshospital.org My name is: You can call me: Age: My caregiver(s) name(s) are: I am from: My friends are: My favorite hobbies/activities are: I am good at: In the future, I want to: My past experience with being sick or coming to the hospital: Before a procedure, I need to know: My Story: (Teen) uofmchildrenshospital.org Lessons Learned: of this type of initiative is invaluable. Transforming the care we provide to children Evidence-based Interprofessional Collaboration Patient & Family Involvement MyStory Personalizing Pediatric Care Data Source Metric Measurement Time Period Pre MyStory Data Previous Measurement Current Measurement Target Long Term Target Trend Status vs. Target "Hospital workers talk to you?" 1Q 12 96.1% 85.7% 100% 100% P "Listen when you told them something?" 1Q 12 85.0% 78.6% 93% 100% P "Let you make choices?" 1Q 12 70.0% 67.9% 85% 100% P "Find ways to make hosp feel like home?" 1Q 12 58.3% 64.8% 79% 100% N "When hurting, help you feel better?" 1Q 12 80.0% 83.9% 90% 100% N "Like how they took care of you?" 1Q 12 83.3% 87.5% 92% 100% N "Did the Doctors pay enough attention to your experiences and suggestions in caring for your child?" 4Q 11 62.6% 96.9% 86.4% 100% N "Did the Nurses pay enough attention to you experiences and suggestion in caring for your child?" 4Q 11 63.6% 94.9% 88.0% 100% N "Would you have liked more involvement in making the decisions about your child's hospital care?" 4Q 11 67.3% 90.8% 77.3% 100% N "How much did you participate in your child's care, such as feeding or bathing?" 4Q 11 93.9% 95.2% 100% "Was the information about his or her condition discussed with your child in a way he or she could understand?" 4Q 11 57.6% 96.4% 81.3% 100% N "Did someone explain to your child the tests that were being done in a way he or she could understand?" 4Q 11 64.5% 94.8% 83.3% 100% N Do My Caregivers Know My Favorite Things? Jan 12 Feb 12 41% 53% 60% 75% N Do My Caregivers Know Things I Don't Like? Jan 12 Feb 12 30% 9% 60% 75% P Get Well Networ k University of Minnesota Amplatz Children's Hospital MyStory Dashboard Children's Satisfaction Survey NRC Picker Parent Satisfaction MyStory is being funded by the Picker Institute as an Always Event ™ . Arrow Up = Performance Improving Arrow Straight = Performance Same Arrow Down = Performance Declining Key: Green = Going Well Yellow = Monitor Red = Requires Mgmt Attention MyStory is a navigator/button on the left My name is: You can call me: Age: My caregiver(s) name(s) are: I am from: Special parent requests: My favorite toys are: I become upset or cry when: Things that comfort me are: You can distract me with: My past experience being sick or coming to the hospital: My Story: (Infant and Toddler) is is to be used as a template only! Give to health care team to enter in EPIC. uofmchildrenshospital.org * Questions taken from Children’s perceptions survey © Lindeke,L., Fulkerson, J., Chesney, M., Johnson, L., Savik, K. (2009). Children’s perceptions of healthcare survey. Nursing Administration Quarterly, 33(1), p. 26-31. * ** Questions taken from NRC Picker Patient Satisfaction Survey © **