The Digital Coeliac Twitter, the City and the Gut How Coeliacs find food & re-write the city landscape with health-related knowledge PhD Thesis My doctoral research explores how individuals’ online interactions inform their health- navigation of the city. With the case study of coeliac disease, my research aims to visualise the flow of patient interaction through Twitter to detect patterns of decision- making and risk-aversion, by creating a virtual map of Big Data health annotations comparing the cities of London and New York. Sam Martin email: [email protected]twitter: @digitalcoeliac web: www.digitalcoeliac.com www.coeliacsam.com
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Twitter, the City and the Gut How Coeliacs find food & re-write the city landscape with health-related knowledge
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The Digital CoeliacTwitter, the City and the GutHow Coeliacs find food & re-write the city
The Digital CoeliacTwitter: Sentiment Analysis: 2006 – 2013
Rise in positive sentiment around hashtags: #coeliac #celiac and #glutenfree
The Digital CoeliacSentiment Analysis: The Rise of the Gluten Free
food industry reflected in daily Tweeting practices
• 10 of top 30 Tweeters in
Coeliac network are Gluten
Free food companies
• May add to skewed results of
positive sentiment due to
heavy marketing practices
• Need to bear this in mind
when analysing Twitter
corpora and patient hashtag
communities
Smaller samples: 39 Twitter Mentions:
Being Glutened• Sentiment Analysis of associated words used with term ‘glutened’
• Identify requests for help, sharing of commons knowledge & activism
The Digital Coeliac
The Digital CoeliacActivism on Twitter:
Being ‘Glutened’ = #coeliactivism
• Adverse reactions due to cross-contamination = Coeliacs turn into investigative journalists
• They often name and shame manufacturers, or hold them to public account on Twitter with probing questions/alerts to cross-contamination
August 2012
“Tea-Gate” 2012 – 2014
The Digital CoeliacActivism on Twitter: Being ‘Glutened’ = #coeliactivism
August 2012 April 2014
“Tea-Gate” 2012 – 2014
Coeliac Tweeters’ use of medical terms
• Co-occurence analysis of hashtags = just under a quarter of hashtag terms
used discussed medical issues to do with coeliac disease.
• These included words associated with presenting symptoms, medical tests,
diagnoses (#dx), possible associated diseases that were being tested for
(#thyroid, #ibs), and more general discussions around health and the gluten
free diet.
The Digital Coeliac
Coeliac Tweeters’ use of medical terms
• Word-pair analysis of “blood” and “test” (below), shows discussions that
concern negative blood tests, and asking GPs and charities for more
information.
The Digital Coeliac
The Digital Coeliac: Tweeting the MedicalCoding for medical behaviour (DiscoverText, 2014)
Codes revealed a combination of helpful patterns of behavior:
1. Discussing gluten free venues and products,
2. Helping others,
3. Discussing medical issues of diagnosis or research,
4. Sharing opinion of gluten free foods and services
The Digital CoeliacTemporal visualisations: Tweet Clusters in central
New York City from October 2013 – March 2014
The Problem with Big Data…Basic geo-tagged visualisation shows us central clustering, but not much else…
The Digital CoeliacTemporal visualisations: Tweet Clusters tweeted in
London from October 2013 – March 2014
The Problem with Big Data…Basic geo-tagged visualisation shows us central clustering, but not much else…
Break things down: Medium Data Samples + Qualitative Analysis = More InsightCo-occurrence Analysis: “#celiac + #glutenfree + where OR café OR find OR restaurant”
The Digital CoeliacTemporal visualisations: Tweet Clusters and top co-occuring
keywords tweeted in New York City from October 2013
– March 2014
27% of Tweets contain
Tweets about Coeliac
health & Symptoms
The Digital CoeliacTemporal visualisations: Tweet Clusters top co-occuring keywords
tweeted in London from October 2013 – March 2014
Break things down: Medium Data Samples + Qualitative Analysis = More InsightCo-occurrence Analysis: “#coeliac + #glutenfree + where OR café OR find OR restaurant”
38% of Tweets contain
Tweets about Coeliac
health & Symptoms
The Digital CoeliacTemporal visualisations
What buildings are Coeliacs near when
they tweet? What can this tell us about local spatial environment and how this affects
Coeliac movement? (Anonymous tweets in NYC from Oct 2013 – Nov 2014)
Break things down: Medium Data Samples +
Qualitative Analysis = More Insight
Pull in Google Street View to identify shops
associated with tweeted (anonymous) hashtags:
“#coeliac + #glutenfree + where OR café OR
find OR restaurant”
A Coeliac near Charing Cross Station requests info re. finding gluten free
afternoon tea in Central London, receives reply, and later enjoys afternoon tea
at Fortnum and Masons.
The Digital CoeliacReciprocal behaviour: Tweeted questions in relation to
space and place
The Digital CoeliacThe Coeliac in Popular Culture: Can I eat this…? Twitter: Coeliacs share videos of Gluten Free Diet in popular culture