Third meeting of the International Consortium for Fibrous Dysplasia/MAS Preliminary Program Wednesday 15-11-2017 13:00 Welcome 13:30-17:30 Fibrous Dysplasia: Basic Research. Confirmed speakers prof.dr.M.Riminucci Sapienza University, dr. M.T.Collins NIH. 19:00 Welcome dinner Thursday 16-11-2017 08:15 Welcome 08:30 Fibrous Dysplasia: Outcome of clinical studies Confirmed speakers: dr. R.Chapurlat Lyon, dr.A.Boyce NIH, dr.N.M.Appelman-Dijkstra LUMC. 12:30 Lunch 13:30 Fibrous Dysplasia: Focus on Orthopedic management and the managment of Craniofacial Fibrous Dysplasia from the surgeons perspective Presentation of abstracts from participating centers 16:30 Closing Friday 17-11-2017 08:30 Consortium meeting 09:45 International Patients day 10:00 10:15 10:45 11:15 11:45 Welcome: president of the Dutch FD patient association Clinical care pathway for FD: physicians perspective Clinical care pathway for FD : patient advocacy groups’ perspective European Patients’ registry: the role patient advocacy groups Round table discussion: Fibrous Dysplasia future research perspectives 12:45 Lunch 13:30 Round table discussion , continued 15:00 Closing The third meeting of the International Consortium for Fibrous Dysplasia will be held this year in Leiden, the Netherlands, from November 15 th -17 th 2017. Similar to the previous meetings, the main objectives of this meeting are - to review and update the clinical managment of Fibrous Dysplasia/MAS - to encourage the interaction between basic scientists with clinicians of various specialities and patient advocacy groups. An International Patients’ Day will be held on the last day of the meeting to which all interested patients are also invited. Please find below the preliminary program, for further information about the meeting, the program or to participate please contact dr. Natasha Appelman-Dijkstra at [email protected] Organizing comittee: Dr. N.A.T. Hamdy, internist-endocrinologist Prof. dr. P.D.S. Dijkstra, orthopedic surgeon Dr. N.M. Appelman-Dijkstra, internist-endocrinologist