[email protected][email protected]1 The National Library of The National Library of Medicine’s Medicine’s Native America Outreach Native America Outreach Portfolio: Portfolio: Overview and Lessons Learned Overview and Lessons Learned by Fred B. Wood, Gale Dutcher, by Fred B. Wood, Gale Dutcher, Angela Ruffin, Paul Theerman, and Angela Ruffin, Paul Theerman, and Patricia Tuohy, NLM Patricia Tuohy, NLM Conference of Native American Conference of Native American Health Information Services Health Information Services Albuquerque, NM – July 20-21, 2006 Albuquerque, NM – July 20-21, 2006
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The National Library of Medicine’s Native America Outreach Portfolio: Overview and Lessons Learned
The National Library of Medicine’s Native America Outreach Portfolio: Overview and Lessons Learned. by Fred B. Wood, Gale Dutcher, Angela Ruffin, Paul Theerman, and Patricia Tuohy, NLM Conference of Native American Health Information Services Albuquerque, NM – July 20-21, 2006. Outline. - PowerPoint PPT Presentation
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The National Library of Medicine’sThe National Library of Medicine’sNative America Outreach Portfolio:Native America Outreach Portfolio:Overview and Lessons LearnedOverview and Lessons Learned
by Fred B. Wood, Gale Dutcher, Angela Ruffin, by Fred B. Wood, Gale Dutcher, Angela Ruffin, Paul Theerman, and Patricia Tuohy, NLMPaul Theerman, and Patricia Tuohy, NLMConference of Native AmericanConference of Native American
Health Information ServicesHealth Information ServicesAlbuquerque, NM – July 20-21, 2006Albuquerque, NM – July 20-21, 2006
Health Information Task Force, SISHealth Information Task Force, SIS Listening Circle Project, NLM, OHIPDListening Circle Project, NLM, OHIPD Health Information Web SitesHealth Information Web Sites
Underlying Outreach Underlying Outreach StrategiesStrategies Improving information infrastructure Improving information infrastructure
and technical capabilitiesand technical capabilities Employing communication methods Employing communication methods
that are culturally sensitive and that are culturally sensitive and appropriate—Native consultation is appropriate—Native consultation is keykey
Building effective partnerships with Building effective partnerships with Native community groups and Native community groups and national organizationsnational organizations
Training Native health and Training Native health and information professionals, and information professionals, and community leaders and memberscommunity leaders and members
Increasing the scope of NLM’s Increasing the scope of NLM’s information products and services to information products and services to cover more Native-related materialcover more Native-related material
Emphasizing capacity building in Emphasizing capacity building in Native communities where possibleNative communities where possible
Making site visits to assure direct Making site visits to assure direct interactions, full understanding, and interactions, full understanding, and effective working relationshipseffective working relationships
Fine tuning outreach planning and Fine tuning outreach planning and evaluation for Native community-evaluation for Native community-based projectsbased projects
For more info, see JMLA Vol. 93, No. 4, For more info, see JMLA Vol. 93, No. 4, Supplement on Community-Based Supplement on Community-Based Health Information OutreachHealth Information Outreach
Some Native Some Native InspirationInspiration All my relatives (family, friends, All my relatives (family, friends,
peoples, and intelligences)peoples, and intelligences) Let every day be a good dayLet every day be a good day Live in harmony with the Medicine Live in harmony with the Medicine
Wheel and Sacred TreeWheel and Sacred Tree With the wisdom, foresight, and With the wisdom, foresight, and
strength of the Eaglestrength of the Eagle For the good of the Next Seven For the good of the Next Seven
Initial two weeks at NLMInitial two weeks at NLM– Online training classesOnline training classes– Orientation to NLMOrientation to NLM– Focused meetings with staffFocused meetings with staff
Training/ConferencesTraining/Conferences– Dependent upon specific needs/interestsDependent upon specific needs/interests
Connection with RML and NN/LMConnection with RML and NN/LM Additional activities possibleAdditional activities possible
By Angela Ruffin, Head, NNO/NLMBy Angela Ruffin, Head, NNO/NLM
Outreach to Minority, Underserved Outreach to Minority, Underserved and Native Communitiesand Native Communities– Lessons learned through the yearsLessons learned through the years– Enhanced lessons learnedEnhanced lessons learned
2006 – 2011 Priorities2006 – 2011 Priorities
Reflections on NN/LM Reflections on NN/LM OutreachOutreach
Earlier Lessons LearnedEarlier Lessons LearnedElectronic AccessElectronic AccessObjectives and OutcomesObjectives and Outcomes
Objectives follow from assessing needsObjectives follow from assessing needs Identify key players/community leaders at siteIdentify key players/community leaders at site Continued presence & communicationContinued presence & communication Stay poised to alter courseStay poised to alter course OutcomesOutcomes
– Raise awarenessRaise awareness– Increase accessIncrease access– Affect use & effectivenessAffect use & effectiveness– Change in information seekingChange in information seeking
Enhanced Lessons LearnedEnhanced Lessons LearnedCommunity Based OutreachCommunity Based Outreach
Understand the communityUnderstand the community - Language- Language - Culture, beliefs, traditions- Culture, beliefs, traditions - What they think & worry about- What they think & worry about - Information needs & uses- Information needs & uses - What/who are their communication channels- What/who are their communication channels - What/where are their cultural and friendship - What/where are their cultural and friendship
centerscenters Meet them on their turf and ‘where they are’Meet them on their turf and ‘where they are’ - Telecommunication infrastructure- Telecommunication infrastructure - Information skills- Information skills
Enhanced Lessons LearnedEnhanced Lessons LearnedCommunity Based OutreachCommunity Based Outreach
Participatory planningParticipatory planning Asset-based versus solely needs-Asset-based versus solely needs-
based approachbased approach Relationship buildingRelationship building CreativityCreativity More community engagementMore community engagement Community partners as Community partners as
2006-2011 RMLs and 2006-2011 RMLs and CentersCenters
National Training Center and Clearinghouse (NTCC) – New York Academy National Training Center and Clearinghouse (NTCC) – New York Academy of Medicineof Medicine
Outreach Evaluation Resource Center (OERC) – University of WashingtonOutreach Evaluation Resource Center (OERC) – University of Washington Web Services, Technology Operations Center (Web-STOC) – University of Web Services, Technology Operations Center (Web-STOC) – University of
WashingtonWashington
University of Massachusetts
University of Maryland, Baltimore
New York University
University of Illinois, Chicago
Houston Academy of Medicine – Texas Medical Center
OutreachOutreach– Community partnerships, CBOsCommunity partnerships, CBOs– Regional evaluation expertsRegional evaluation experts– Dissemination of best practicesDissemination of best practices– Encourage/identify cross regional Encourage/identify cross regional
opportunitiesopportunities– Proposal writing assistanceProposal writing assistance– Health information literacyHealth information literacy– Expanded scope of technology conferencesExpanded scope of technology conferences
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
Collaboration in Library Work:Collaboration in Library Work: A Learning ProcessA Learning Process
by Paul Theermanby Paul TheermanHead, Images and Archives Head, Images and Archives History of Medicine DivisionHistory of Medicine DivisionNational Library of MedicineNational Library of Medicine
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
MHA Systems—MHA Systems—– A tribal business of the Mandan-Hidatsa-A tribal business of the Mandan-Hidatsa-
Arikira Nation, the “Three Affiliated Arikira Nation, the “Three Affiliated Tribes” of Fort Berthold Reservation, New Tribes” of Fort Berthold Reservation, New Town, North DakotaTown, North Dakota
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
BackgroundBackground– Listening Circle established through NLM’s Listening Circle established through NLM’s
Office of Health Information Programs Office of Health Information Programs Development (OHIPD), Elliott Siegel, Development (OHIPD), Elliott Siegel, Director, and Fred Wood as principalsDirector, and Fred Wood as principals
– NLM’s Director, Dr. Donald A. B. Lindberg, NLM’s Director, Dr. Donald A. B. Lindberg, met with Mr. Tex Hall, Chairman of MHA met with Mr. Tex Hall, Chairman of MHA Nation, to begin a project to build tribal IT Nation, to begin a project to build tribal IT capacity and to provide NLM with digitized capacity and to provide NLM with digitized datadata
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
Specific StepsSpecific Steps– MHA Systems to scan and mark-up books and MHA Systems to scan and mark-up books and
manuscript materials from the History of manuscript materials from the History of Medicine DivisionMedicine Division
– NLM to assist MHA in assessing technical NLM to assist MHA in assessing technical needs—skills, technology, work flow, quality needs—skills, technology, work flow, quality control, and with business management control, and with business management trainingtraining
– NLM to secure appropriate training and NLM to secure appropriate training and provide oversightprovide oversight
– Move to production after training periodMove to production after training period
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
Who were involved from NLM?Who were involved from NLM?– Fred Wood—Office of Health Information Fred Wood—Office of Health Information
Programs Development, NLMPrograms Development, NLM– John Rees, Curator of Manuscripts, Images John Rees, Curator of Manuscripts, Images
and Archives Section, History of Medicine and Archives Section, History of Medicine DivisionDivision
– Paul Theerman, Head, Images and Archives Paul Theerman, Head, Images and Archives Section, History of Medicine DivisionSection, History of Medicine Division
– Susan Schreibman, Assistant Dean and Head Susan Schreibman, Assistant Dean and Head of Digital Collections, University of Maryland of Digital Collections, University of Maryland Libraries—technical training and assistanceLibraries—technical training and assistance
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
Who were involved from MHA?Who were involved from MHA?– Rosie Johnson, and then Richard Mayer—Rosie Johnson, and then Richard Mayer—
MHA Systems CEOMHA Systems CEO– Chris Rabbithead and then Jonathan Chris Rabbithead and then Jonathan
Berryhill—project directorsBerryhill—project directors– Joan Zavalny—MHA SystemsJoan Zavalny—MHA Systems– Jerry Stai—Minot State University School of Jerry Stai—Minot State University School of
Business, advisorBusiness, advisor– Many scanners and coders from MHA Many scanners and coders from MHA
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
TimelineTimeline– Into production in the second half of 2005Into production in the second half of 2005– Materials added to NLM’s website, “NLM Materials added to NLM’s website, “NLM
Archives,” in 2005-2006Archives,” in 2005-2006http://www.nlm.nih.gov/hmd/manuscripts/nlmarchives/http://www.nlm.nih.gov/hmd/manuscripts/nlmarchives/
index.htmlindex.html
– Total amountsTotal amounts A 525-page bookA 525-page book 40 sets of Regents’ Minutes40 sets of Regents’ Minutes 52 Annual Reports52 Annual Reports 271 issues of Technical Bulletins271 issues of Technical Bulletins
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
New ProjectsNew Projects– New project in 2006: scanning printed New project in 2006: scanning printed
materials to provide an on-line guide to a materials to provide an on-line guide to a very large NLM collection on the Food and very large NLM collection on the Food and Drug Administration (FDA)Drug Administration (FDA)
– 60 volumes of materials to be scanned 60 volumes of materials to be scanned prior to OCR and data extractionprior to OCR and data extraction
– Project will go into 2007Project will go into 2007
MHA Systems and MHA Systems and NLM’s History of Medicine NLM’s History of Medicine DivisionDivision
Thanks to:Thanks to:– Elliot Siegel and Fred Wood, Office of Elliot Siegel and Fred Wood, Office of
Health Information Programs DevelopmentHealth Information Programs Development– John Rees, Curator of ManuscriptsJohn Rees, Curator of Manuscripts– Susan Schreibman, technical consultantSusan Schreibman, technical consultant– Jonathan Berryhill, Rosie Johnson, Richard Jonathan Berryhill, Rosie Johnson, Richard
Mayer, Chris Rabbithead, Joan Zavalny, Mayer, Chris Rabbithead, Joan Zavalny, and numerous scanners and coders, MHA and numerous scanners and coders, MHA SystemsSystems
– Jerry Stai, business consultantJerry Stai, business consultant
Developing an NLM Exhibition Developing an NLM Exhibition about Native American about Native American Concepts Concepts of Health and Diseaseof Health and Disease
Center for Effective Collaboration and Practice Center for Effective Collaboration and Practice cecp.air.orgcecp.air.org
National Center for Cultural Competence Georgetown National Center for Cultural Competence Georgetown University Child Development Center University Child Development Center gucchd.georgetown.edu/nccc/gucchd.georgetown.edu/nccc/
Terry Cross, et al. Terry Cross, et al. Towards a Culturally Competent System Towards a Culturally Competent System of Care.of Care. 1989 1989
Michael Baxandall, “Exhibiting Intention: Some Michael Baxandall, “Exhibiting Intention: Some preconditions of the Visual Display of Culturally Purposeful preconditions of the Visual Display of Culturally Purposeful Objects,” Objects,” Exhibiting Cultures: The Poetics and Politics of Exhibiting Cultures: The Poetics and Politics of Museum Display.Museum Display. I. Karp and S. Lavine, eds. I. Karp and S. Lavine, eds.
What exhibition What exhibition development development has in common with has in common with competent health promotioncompetent health promotion
Culturally competent approaches to Culturally competent approaches to health promotion respects the cultural health promotion respects the cultural values, beliefs, and practices of the values, beliefs, and practices of the intended audienceintended audience
So, too, does good exhibition So, too, does good exhibition development development
Cultural knowledge:Cultural knowledge: familiarization with selected familiarization with selected cultural characteristics, history, values, belief cultural characteristics, history, values, belief systems, and behaviors of the members of another systems, and behaviors of the members of another ethnic group.ethnic group.
Cultural awareness:Cultural awareness: developing sensitivity and developing sensitivity and understanding of another ethnic group. This usually understanding of another ethnic group. This usually involves internal changes in terms of attitudes and involves internal changes in terms of attitudes and values. Awareness and sensitivity also refer to the values. Awareness and sensitivity also refer to the qualities of openness and flexibility that people qualities of openness and flexibility that people develop in relations to others.develop in relations to others.
Cultural sensitivity:Cultural sensitivity: knowing that cultural knowing that cultural differences as well as similarities exist differences as well as similarities exist without without assigning values to those cultural differences.assigning values to those cultural differences.
What is cultural competencyWhat is cultural competency
Cultural competencyCultural competency is defined as a is defined as a set of congruent behaviors, attitudes, set of congruent behaviors, attitudes, and policies that come together in a and policies that come together in a system, agency, or among professionals system, agency, or among professionals and enables that system, agency, or and enables that system, agency, or those professionals to work effectively in those professionals to work effectively in cross-cultural situations. cross-cultural situations.
Cultural competency emphasizes the Cultural competency emphasizes the idea of idea of effectively effectively operating in different operating in different cultural contexts.cultural contexts.
How do you adapt and respond to How do you adapt and respond to different cultural beliefs and practices different cultural beliefs and practices when providing health information?when providing health information?
How do you and your organization or How do you and your organization or institution practice cultural institution practice cultural competency?competency?