Maastricht THE FUTURE OF HEALTH Monday, April 2 2012 Theater aan het Vrijthof, Maastricht
Mar 13, 2016
Maastricht
THE FUTURE OF HEALTH
Monday, April 2 2012
Theater aan het Vrijthof, Maastricht
CoördinationLinda van SchuijlenborghPaula Mali
RedactionMaartje Reijnders
TranslationDanique van Kesteren
PhotoeditorMark Meier
Graphic designWinneke de GrootJop van der KroefFelix van Dam
PhotographersAad van VlietMirella Boots
Speakers
Clarissa Silva
Geert VandeWalle
Roni Zeiger
Interview
Lucien Engelen
Speakers
Peter Nicks
Yori Swart
Jeroen vaan Dillen
Paul F. Levy
TEDxMaastricht
Around the world
Photo impression
TEDx Maastricht
Interview
Corine Jansen
Photo impression backstage
TEDx Maastricht
Illustration
Esther Gons
Quotes and tweets
Quests
4
6
8
10
12
14
15
16
18
TEDxMaastrichtContents
Colophon
Download the free layer
app. Scan the entire
cover and click tap to
view.
THE FUTURE OF HEALTH
Monday, april 2 2012
Theater aan het Vrijthof, Maastricht
4
TH
E F
UT
UR
E O
F H
EA
LTH
SpeakersClarissa SilvaGeert VandeWalleRoni Zeiger
Live with your strength,
not with your weaknesses
‘Bizarre how fast your life can
change’, that is how Clarissa start-
ed her talk. She worked as a care-
giver when she got mentally ill.
She was hospitalized in a psychi-
atric hospital for 1,5 year and noticed that family and
friends distanced from her. She noticed she was treat-
ed as a diseased, not as a human. A short while after
leaving the hospital she got fired. She was 27. She
isolated herself.
Fortunately she could keep in touch with her caregiver
via Internet. After losing her job she also lost her home
and she started living at Pameijer. Pameijer supports
disabled people to function in society. She noticed that
she had more faith in her own recovery than the
people at Pameijer, because unfortunately they ques-
tioned her ability to recover.
At Pameijer she learned how to apply her knowledge
and experience to empower herself in a way that
helped her to recover. She joined the Empowerment
team and learned that contact with peers is crucial for
recovery. But instead of getting better, her panic
attacks worsened around 2010. When she had the
chance to work at Pameijer she realized that her fear
for a new psychosis blocked her to live a life. This life-
changing conclusion gave her a new motto: ‘Start to
live with your strength, not with your weaknesses’.
Now she works at the PEP-team and gives workshops
on empowerment.
In the recovery process, supporters and clients are
working together as a joint team with equal partners.
This is a crucial condition for empowerment. Sharing
knowledge and experiences with people who want to
be your ally speeds up the recovery process. The fact
that Clarissa - as an ex-patient - is on stage at TEDx-
Maastricht, speaking for thousand people, proves that
the possibilities for recovery are infinite.
A blog by Annemieke Bol
Everybody can help Everybody
knows a picture can say a thou-
sand words, but it can do much
more: it can help you with your
TED talk. Geert Vandewalle admits
he has some difficulty with speak-
ing English, but he arranged for
some illustrative images to get his message across.
The best thing is that, even if you might not have
noticed it, Geert tells us his story before he even
begins. By showing the audience what is difficult for
him, they understand him and listen more carefully.
Someone asks him a question, others come to help.
And that is also what Blue Assist is about, to help
people with intellectual disabilities ask questions and
explain themselves so other people can help them.
But why is that important? Being able to manage your
own life makes you independent and being indepen-
dent is what we all want. Geert reminded us of the
United Nations convention for People with Disabilities.
More and more countries in the world are adopting
this, securing a place in our society for the people who
need it.
To illustrate his talk, he asks Peter and John on the
Clarissa Silva
Geert VandeWalle
TH
E FU
TU
RE
OF H
EA
LTH
5
stage. That TEDxMaastricht takes place in a theater
must have inspired Geert, because he performs an act
as both Peter and John. Peter is a classic case. He is
diagnosed with a disability and send away to live with
others like him, in a home somewhere outside a vil-
lage. While he may have a nice life, he will never fully
be able to live life the way we do. John, on the other
hand, has a blue screen on his smart phone. Some-
where in the near future, everybody will know what this
means: someone has a question and everybody can
help. Hopefully, this simple solution and great technol-
ogy will be adopted worldwide very soon and the blue
screen will become an international icon. This way, we
will grow to be a society where people with disabilities
are independent and respected. With Blue Assist you
can all help.
A blog by Michiel Rutjes
What is a patient? What is a
patient? Roni Zeiger, also known
as Dr. Google Health, knows. He
takes the audience of TEDxMaas-
tricht through a journey of technol-
ogy and health and his lessons
learned. ‘Patients are experts and
physicians should listen to them.’ He developed this
vision based on his professional experience and as an
experienced patient. Zeiger takes the TEDxMaastricht
audience on his journey to the discovery of the expert
patient.
He originally thought, during his internship, that geneti-
cal code brings us the solution to big medical prob-
lems like cancer. Later on he learned that biology and
pathology also matter. During his medical study he dis-
covered: ‘I am a geek’. He saw how little doctors use
data and decided to do something about that.
So he ended up at Google, where he finds Google Flu
Trends to be his favorite tool. Based on search words,
Google creates a trend line for flu that is almost identi-
cal to the trend line from the US Centers for disease
control. With just a little data you can create so much.
‘Searching data is the power of training little stories’.
En passant, Zeiger announces a new search function
of Google: Google Symptoms. Google analyses diverse
search results real time to see which symptoms match
best. Zeiger continues to tell about his travel. He
meets Jill Friedman who builds online communities for
patients. He reads great stories. But mainly he learns
that a smart patient, being confronted with a mortal
disease, becomes an expert in his disease.
This brings him to the question: What is a patient?
Unfortunately he had to become one to find an answer.
You can read his story at My Health Story. Zeiger
learns that he is a very impatient patient. He asks him-
self and the audience: ‘How can we scale the power
of expert patients? How can we help them to do more
with their expertise?’
Zeiger concludes that it is important for physicians that
doctors should listen to their patients. Do not only look
at symptoms, embrace the patient story. Expert
patients are everywhere and they are impatient. They
are experts and they want to cooperate.’
A blog by Karin Oost
Roni Zeiger
6
TH
E F
UT
UR
E O
F H
EA
LTH
Between coffee and satayLucien Engelen
He sold cars, ran a gas station, a car repair company,
a printing house, a funeral service, an emergency med-
ical service and finally ended up in the hospital with a
great passion. Is there any similarity between all these
jobs you might ask? ‘Constantly keeping an eye on the
needs of your target group is of crucial importance’,
Lucien would say. Don’t assume you know what they
want, ask them. The innovation of patient healthcare
means the world for him. Lucien points out we ignore
the patient far too often: ‘It’s ridiculous that during a
summit on patient healthcare we talk about patients
without them being present’.
Amazement This amazement instigated the birth of
the Patient Included Act: a quality seal that reflects
whether patients are in the crowd or speak during
summits. Not intended as a gimmick for summits, but
to bring together the knowledge of healthcare profes-
sionals and the needs of patients, which leads to a
higher quality in healthcare. This act is meant to be a
spark to ignite a debate and create awareness. Anoth-
er idea Lucien realized is the Chief Listening Officer.
An important position fulfilled by one of his closest
colleagues, Corine Jansen. Jansen’s job? Constantly
listening to patients, asking for their needs to be able
to improve healthcare.
Essentials Lucien’s mission is inspired by this quote
of St Francis of Assisi’s: ‘Start with the essentials.
Then do the possible. And then suddenly… you are
doing the impossible.’ Lucien’s essential is listening to
whom you are doing it for. This way you’ll find out
what’s possible. Once aware of what is possible you
start realizing it. This means something is only impos-
sible when you don’t listen to your target group. Hence
the importance of Radboud’s Chief Listening Officer,
just like the Patients Included Act is meant to create
awareness and to actually do something about it.
Dot on the horizon In the same way, Simon Sinek
(with his Ted-talk: ‘First why and then trust’) is a huge
inspiration for Lucien’s organic way of working. During
a project, everyone must constantly be aware of, and
focus on the why and what you have in mind. Person-
ally he favors the mind and the gut above project
plans or scripts because that’s where compassion is
most vivid. In fact, it’s like riding a bicycle without
using your hands to steer: when you keep focused at
that certain dot on the horizon, you’ll steer automati-
cally and bridge the distance more easily.
Drive Lucien is known for his drive, energy and ambi-
tion. As you’ve heard in his talk today, the diseases of
his parents play a huge role in his drive to innovate
healthcare. In 2009, he blogged about the loss of his
parents to multiple forms of cancer and how they dealt
with it. Lucien also wrote about the inspiring meeting
with Maarten Lens-FitzGerald and the open way in
which he dealt with his cancer. When I ask him if the
process until the death of his parents would look dif-
ferent today, he confirms decisively: ‘Absolutely. It
would’ve been a more jointly and therefore social pro-
cess. I would have used every contact in my social
network to get my parents the best specialists around.’
Still, he doesn’t know if this would have changed the
outcome. In a way, health care always characterized
his career. He even signed up for nursing school,
which his father cancelled because he could use Luc-
ien’s talents to run his car company. But a leopard
can’t change its spots, so Lucien ended up in a hospi-
tal anyway.
An interview with the
founder of TEDxMaas-
tricht about his perso-
nal drive for innovating
healthcare and what
made him the man he
is today.Text Wouter Wolters
TH
E FU
TU
RE
OF H
EA
LTH
7
The experiment that got out of hand Once working
at Radboud University Nijmegen Medical Centre,
Lucien noticed how patients were using the Internet
and decided he wanted to know more about it. So in
2008 he and his team invited Marco Derksen for an
inspiration session about social media. Because Lucien
did close to nothing with social media, Marco told him
to go experiment and discover what social media
could mean for healthcare. It inspired Lucien to great
extent. Barely a month later, he had to replace Marco
Derksen during another inspiration session because he
had lost his voice. It is clear now that the experiment
got out of hand: using social media hourly to reach out
to learn from patients and engage with others around
the world to really change healthcare.
No time to waste People close to him often describe
Lucien as incredibly driven and impatient. He is con-
vinced his impatience is one of his best skills and the
basis for his achievements. On the other hand, his
impatience can get quite tiresome for people he works
with and for himself. As I read through all my gathered
input, it seems to me Lucien is working towards a final
deadline, like there is some sort of time bomb ticking
inside of him. As I tell this to Lucien, he confirms this
by telling me he expects to die of cancer, like his par-
ents, before he turns 65. That’s why he doesn’t want
to waste any time on talking about innovation without
actually doing it and spreading ideas. That’s also why
90% of the TEDxMaastricht-invitees are people who
haven’t attended before: ‘We have to find and share
ideas and make sure they last, to actually change
healthcare’.
Start with coffee Lucien has a very open attitude to
new ideas. Contact him through social media and
before you know it, you’ll be drinking a great cup of
coffee in his office. Determining whom to talk to is
merely based on his gut feeling or advice from people
he considers do-ers. Considering it as a social event
that ties people, everything around Lucien starts with
coffee. Therefore the first step he took at Radboud
was the purchase of a decent coffee machine. Where
everything starts with coffee, every successful com-
pleted event or project is celebrated with friends and
satay. We can already picture him and his team cele-
brating an inspiring Future of Health 2012, being
served by a waiter with a tray of champagne and a
portion of satay, just sitting at the table enjoying the
team effort that was made.
About Wouter Wolters
Twitter: @WouterWolters
Li: linkedin.com/in/whpwolters
8
TH
E F
UT
UR
E O
F H
EA
LTH
SpeakersPeter NicksJeroen van Dillen Paul F. Levy
A letter from a patient to his
doctor I am watching a fragment
of a seemingly disoriented man in
a hospital bed with a smile on his
face. This is a somehow contradic-
tory image. ‘Why does he have a
smile on his face’, I wonder. ‘This
is my first time in a hospital’, he says with a glimpse
of disbelief in his eyes. The doctor then accordingly
congratulates him on this fact while images flash by of
him running to the rescue of others.
Impressive how a short trailer can outline the health-
care problem in America so clearly. You feel the
despair in patient’s eyes; you feel the powerlessness of
the one doctor that is present. Peter Kicks’ words add
to the understanding of the problem: ‘In the waiting
room of a public hospital, it is often a competition for
attention.’ He basically describes it as a battlefield
where, if you are not assertive, you won’t be helped.
Most of these people are very ill and according to
Dutch standards they should be given medical care, no
matter the cost, whether insured or not. This clearly
illustrates the crisis in these hospitals.
With the documentary The Waiting Room, Peter Knicks
puts a human face on this problem and show implicitly
what has to be changed. The movie is meant to be the
handle of a wheel. A handle with the voices of
patients, serving as an inspiration, that aggregate and
affect the wheel of policy making in healthcare. Docu-
menting the hearts and minds of these patients
might get other patients, all over the world, more
involved in their own story and their own faith. Peter
Knicks passion for documenting is clearly translated
when he says that he wants to put the power of the
camera in the patient’s hands. Inspired by the stories
of his wife and the footage he shot, he thinks that this
might actually influence the experience of patients with
illness and healthcare. Because if you talk about your
illness and share the emotions that come with it with
others, your experience will change for the better. He
has seen this play out live and I hope I can experience
the same feeling when watching his movie in the the-
atre. We as humans are social beings, with an
unavoidable capability to be empathic. This causes
that we depend on our social environment in order to
survive. Through the use of cameras and movies, we
can extend this social environment and learn from it to
improve our policy making.
A blog by Anke Murillo Oosterwijk
Three dilemmas of participa-
tion On stage is the inside of a
hospital room. There is a bed and
a wall behind it that holds post-
cards. It is not very comfortable,
which is unfortunately normal for
hospitals. As a patient you can’t
feel comfortable waiting for your diagnosis. You ask
yourself a lot of questions about what is going to
happen. There is another side to this: the doctor’s
point of view.
Jeroen shows the audience the dilemmas of working
as a young doctor in the most innovative university
hospital in the Netherlands, being so willing to deal
with ‘compassion for care’. Doctors are eager to be a
Peter Nicks
Jeroen van Dillen
TH
E FU
TU
RE
OF H
EA
LTH
9
guide for their patients. In doing so he is confronted
on a daily basis with the three dilemmas of participato-
ry health care: time, emotion and clinical practice.
Time
Of course doctors see the benefit of ‘the continuity of
care’. He understands that the patient wants the
doctor to be available, anytime. This is what makes the
patient comfortable. However, doctors cannot be avail-
able all the time.
Emotion
A doctor also has emotion and he wants to be
empathic. However, he cannot be empathic all the
time. He needs a ‘white coat to protect himself’ and to
do the other side of his job. That is about balancing.
Clinical Practice
The doctor wants to be the guide, to find the optimal
solution together with the patient. However: who pays,
who decides?
Doctors also know fear. They fear about prosecutions,
for example. He asks himself over and over again:
How do I react? Where do I draw the line? Van Dillen
calls for facing these dilemmas. Doctors also have to
be empowered to become the individual, empathic
doctor. This needs attention in the education of health-
care professionals. We do not have the answers, but
we can share our dilemmas and talk about it in an
open and respectful way. Onwards to patient and
doctor empowerment!
A blog by Eveliene Manten-Horstl
Balls and beds: building champi-
on teams in soccer… and hospi-
tals Even though he left his job
as a CEO for the Beth Israel Dea-
coness Medical Center in Boston,
Paul F. Levy is still passionate
about improving healthcare. He is
also passionate about soccer, having coached girl
soccer teams for twenty years, which is why he enters
the stage and announces he came here to talk about
soccer. He takes his sweater off, revealing a bright
orange soccer jersey.
According to Levy, one of the most important things in
soccer is preparation. You’ve got to think about what
you’re going to do before the ball touches your feet.
Shooting in panic hardly ever makes you win the
game. But telling people how they should to think may
not win you the game either, because people learn in
different ways. Some learn by listening, some people
need to feel, and others learn best by copying behav-
ior. So this is why running a hospital is no different
than coaching a bunch of twelve year olds on the
soccer field. If this offends anyone working in a hospi-
tal, read on! Coaching and teaching is not only the
core business of the soccer coach. You may have to
swap the jersey for a suit, but a large part of a hospi-
tal CEO’s job consists of, yes: coaching and teaching.
Paul Levy wanted to reduce the amount of preventable
deaths and other harm in his hospital.
But how do you avoid mistakes? Well, by investing in
process improvement and by talking. How to deal with
mistakes? In every other field of work, near misses do
occur every now and then. Even flagrant mistakes
occur. But to doctors, devoted to alleviate human suf-
fering caused by disease, a flagrant mistake often
results in dead patients. Quite a burden.
Although preventable harm should be prevented,
asking for a zero percent mortality rate and no near
misses is as reasonable as asking one of Levy’s girl
teams to win the world cup final against Argentina
in1978. Doctors WILL make mistakes. Even the best
soccer player sometimes misses. In order to build a
winning team, you need to create a learning environ-
ment. And learning is making mistakes. Even for the
highly trained and motivated people who work in hos-
pitals. They hate losing as much as the most spoiled
soccer star. The operating theatre is like a soccer field,
the player on the bench waiting to be sent onto the
field is as nervous as the patient waiting on an opera-
tion. A good coach encourages. A good doctor may
say some kind words to a person in distress. You
never know what impact it may have. It may win you
the game.
A blog by Marije Elderenbosch
Paul F. Levy
10
T
HE
FU
TU
RE
OF
HE
ALT
H
TEDx MaastrichtAround the world
Tanta / Egypt
Brisbane / Australia
Jönköping/ Sweden
Cleveland / U.S.A.
Porto / Portugal
Barcelona / Spain
Glasgow / Scotland
London / UK
Maastricht
Amersfoort AmsterdamApeldoornArhemBredaDen DolderDeventerDordrechtEdeEindhovenEnschede
GoudaGroningenHaarlemNijmegenPoortugaalRotterdamTielUtrechtWoerdenZeistZwolle
TH
E FU
TU
RE
OF H
EA
LTH
1
1
12
T
HE
FU
TU
RE
OF
HE
ALT
H
TEDxMaastrichtPhoto impression
TH
E FU
TU
RE
OF H
EA
LTH
1
3
14
T
HE
FU
TU
RE
OF
HE
ALT
H
InterviewCorine Jansen
When you say ‘TEDxMaastricht’, you immediately think
about Corine Jansen, one of the driving forces behind
this event. She is the team and speaker liaison at
TEDxMaastricht. In ‘normal’ life she works as a Chief
Listening Officer at Radboud Reshape and Innovation
Centre. Her function is to create a connection between
the patient and the health care professional. An impor-
tant goal is to bring compassion back into healthcare.
When it comes to patients, she always asks: ‘Did we
ask the patient?’
The basic idea is that the patient is part of the team
together with the healthcare professionals and family.
He is not at the centre of the team because if he is,
everyone talks about him. No, he really is part of the
team. He joins the conversation and is an equal partic-
ipant. Making decisions is also a joint responsibility. It’s
a whole new way of working and a different attitude
towards patients.
Corine’s work as a Chief Listening Officer has not gone
unnoticed. In February 2012 the UMC Radboud
received the TNS NIPO Hostmanship award in the cat-
egory Hospitals, especially because of her work as
Chief Listening Officer. Her work is to involve with the
patients and to improve care by doing so. Patients are
happy with this approach and appreciate it with an 8.2
(on a scale to 10), while the average score is 7.7.
Patients feel they are taken seriously at UMC Radboud
and that is for a great part due to the work of Corine.
Peter, an AYA patient who died in October 2010,
inspired Corine. He said ‘I want to live my life while I’m
dying and not die while I’m living’. It changed her per-
ception towards patients. It is not all about the pro-
cess of cure; it is important that you treat patients as
human beings and not as patients only. See all
patients with different needs and different knowledge.
Real contact is about listening to the other person;
seeing this person as a person – who happens to be
ill. Great work Corine, you are an example to a lot of
people in healthcare.
Co
rine
Jan
sen
TH
E FU
TU
RE
OF H
EA
LTH
1
5
TEDxMaastrichtBackstage
16
T
HE
FU
TU
RE
OF
HE
ALT
H
IllustrationEsther Gons
TH
E FU
TU
RE
OF H
EA
LTH
1
7
18
T
HE
FU
TU
RE
OF
HE
ALT
H
TEDxMaastrichtQuotes and tweets
Hans van Belleghem @Hansfeep
De zaal gevuld, bekende gezichten,
mooi programma. let the show begin!
#TEDxMaastricht
Fundació TicSalut @ticsalut
El 65% de la població primer consulta
Google i després el seu metge.
#Tedxmaastricht #ticsalut
YouSteps @YouSteps
Ron Zeiger "We must listen to patients,
not just about their symptoms, but their
values and their preferences"
#TEDxMaastricht #Health
Fine Point @Fine_Point
Als ik #TEDxMaastricht tot nu toe
beluister dan breken er mooie tijden
aan voor patiënten. Kan niet wachten!
Wouter Wolters @WouterWolters
samen met blogteam van
#tedxmaastricht ah ontbijt in
Designhotel Townhouse Maastricht.
Fundació TicSalut @ticsalut
El 65% de la població primer consulta
Google i després el seu metge.
#Tedxmaastricht #ticsalut
Peter van Helsdingen @PvHMC
Clarissa Silva tijdens #tedxmaastricht:
"Move from what is wrong to what is
strong" Mooi en waar! Maar niet altijd
makkelijk!
henk eisema @eisema
Naveen Jain is very inspiring! Wow!
#TEDxMaastricht
Frank Schalken (Oprichter en directeur
van E-hulp.nl)
‘I’m glad to see that at TEDxMaastricht
patient empowerment is a big issue. In-
ternet was made for healthcare. Internet
helps patients to get in charge and find
peers to share their stories with.’
Marco van Beers (Designer van ketting voor
borstkanker)
‘Design for debate is necessary to shape
the future of our Intimate Communication.
I have designed evolving jewelry which
helps breastcancer patients to share their
struggle against cancer with their loved
ones.’
Yori Swart (Singer Songwriter)
‘The key to a healthy future is a postive
mind’
Doret Brandjes @doretbrandjes
Goed beeld van TEDx! Zo goed, dat ik
hier thuis zit mee te klappen alsof ik in de
zaal zit #TEDxMaastricht
Marcel Heldoorn
“I have long been convinced that a
patient deserves an important role and
I am glad that this day gives so much
energy. We are no longer talking about
the patient, but with them.”
TH
E FU
TU
RE
OF H
EA
LTH
1
9
Teresa Bau @tbau_uoc
When we take control of our own destiny will be able
to change the world Naveen Jain #tedxmaastricht
Fundació TicSalut @ticsalut
El 65% de la població primer consulta
Google i després el seu metge.
#Tedxmaastricht #ticsalut
Natalie Bunschoten @Nataliebun
@ClarisSil OMG wat heb jij het goed
gedaan zeg! Geen woorden voor, zo'n
GROOTS gevoel! Wat ben jij een topper
#TEDxMaastricht wat een power
Chantal Senger @ChantalSenger
Heeee.. #livestream #tedxmaastricht
foetsie!!
Mascha van Dort @maschavandort
The new bas bloem? Patients AND doctors
need to be empowered. Great speech at
#tedxmaastricht by dr and patient
Truus Vernhout @argosadvie
#tedxmaastricht: Informatie/kennis als
bijproduct van zoekmachine Google,
kan ook een zegen zijn!
Alec Malmberg @AlecMalmberg
Courage is being afraid but to it anyway.
Clarissa Silva was long not listened to.
Equal relationship is essential
#tedxmaastricht
Nieks @nieks
Open en respectvol - keywords!
#tedxmaastricht
Wouter Wolters @WouterWolters
samen met blogteam van
#tedxmaastricht ah ontbijt in
Designhotel Townhouse Maastricht.
Yori Swart (Singer Songwriter)
‘The key to a healthy future is a postive
mind’
Bert Kortekaas @BKortekaas
En daar lig ik dan in #Rijnstate voor de
afronding van het prostaatproces,
zitten twee van de urologen bij
#TEDxMaastricht. Succes dus daar.
Bart Timmers
“TEDx is an inspiration to make sure that
we’ll perform even better tomorrow.”
Marike de Haan
“Days like these give me inspiration and
I use that energy to implement changes
in big organizations.”
Wilna Wind
“TEDx is a beautiful, inspiring day.
A good example is the Bluecard.
A super easy idea to make people
help each other more.”
Daan Dohmen
“Facetalk shows that healthcare doesn’t
have to depend on time or place. Thanks
to technology, the best healthcare is
always around for every patient.”
Health Valley is made possible by:
The following organizations are kindly disposed towards TEDx Maastricht and contribute to the realization of this magazine: