The Burden of Facial Clefting and How its Global Impact can be Addressed by NGO led Global Partnerships Professor Michael J Earley The Childrens University.

The Burden of Facial CleftingThe Burden of Facial Cleftingandand

How its Global Impact can be How its Global Impact can be Addressed by NGO ledAddressed by NGO led

Global PartnershipsGlobal Partnerships

Professor Michael J EarleyProfessor Michael J Earley

The Childrens University HospitalThe Childrens University Hospital

DublinDublin

TheTheCleft Cleft

BurdenBurden

A Generational BurdenA Generational Burden

The Extended BurdenThe Extended Burden

The Family… Bonding problemsThe Family… Bonding problems

GuiltGuilt

Ignorance / FearIgnorance / Fear❖ Society… Society…

OutcastOutcast

UnschooledUnschooled

Unemployed/UnemployableUnemployed/Unemployable

OUR GOAL OUR GOAL

The goal of The goal of Operation Smile is Operation Smile is to provide free to provide free reconstructive reconstructive surgery for facial surgery for facial clefts and other clefts and other congenital congenital craniofacial craniofacial anomalies.anomalies.

The REALITYThe REALITY

Neonatal and Infant DeathNeonatal and Infant Death Poor Results to Lip RepairsPoor Results to Lip Repairs Poor Speech ResultsPoor Speech Results Palatal FistulaePalatal Fistulae Poor or Absent DentitionPoor or Absent Dentition Poor GrowthPoor Growth

The PROBLEMSThe PROBLEMS

In developing In developing countries, the most countries, the most significant problems significant problems lie in the social, lie in the social, geographical, and geographical, and economic disparities economic disparities between members of between members of the population.the population.

The PROBLEMS The PROBLEMS

For the poorer section For the poorer section of the population plastic of the population plastic surgery is unaffordable; surgery is unaffordable; there are no resources, there are no resources, access to any services is access to any services is very difficult and the very difficult and the quality of that service if quality of that service if reached may be reached may be inadequate. inadequate.

Transport Transport VarietyVariety

The Oversimplified SolutionThe Oversimplified Solution

GO INGO IN TREAT and “CURE”TREAT and “CURE” TEACH HOW TO DO ITTEACH HOW TO DO IT LEAVELEAVE

““THE PARACHUTE MISSION”THE PARACHUTE MISSION”

Parachute MissionsParachute Missionsvsvs

Service Delivery ProgrammeService Delivery Programmevsvs

Sustainable DevelopmentSustainable Development

The Authors ExperienceThe Authors Experiencewith Operation Smile Missionswith Operation Smile Missions

Minsk, BelarusMinsk, Belarus Harbin,ChinaHarbin,China Settat, MoroccoSettat, Morocco Casablanca, MoroccoCasablanca, Morocco Battembang,CambodiaBattembang,Cambodia Hai Phong, VietnamHai Phong, Vietnam Asuncion, ParaguayAsuncion, Paraguay Addis Ababa, EthiopiaAddis Ababa, Ethiopia

20042004 20052005 20062006 20072007 20082008 20092009 20102010 20112011

MISSIONSMISSIONS

INTERNATIONAL MISSIONSINTERNATIONAL MISSIONS

INTERNATIONAL SUINTERNATIONAL SUPPPORTED LOCAL MISSIONS PORTED LOCAL MISSIONS

LOCAL MISSIONSLOCAL MISSIONS

TEACHING MISSIONS TEACHING MISSIONS

SPECIALIZED MISSIONS (CRANIOFACIAL AND SPECIALIZED MISSIONS (CRANIOFACIAL AND MICROSURGERY)MICROSURGERY)

A Typical International A Typical International MissionMission

Medical Screening (two days)Medical Screening (two days) Surgery SelectionSurgery Selection Pre-Op CarePre-Op Care Safe Surgery (five days)Safe Surgery (five days) Post-Op CarePost-Op Care Ongoing Follow-upOngoing Follow-up

IDEAL CAREIDEAL CAREis Team Careis Team Care

NursingNursing DieticianDietician Speech PathologySpeech Pathology Plastic surgeryPlastic surgery PediatricsPediatrics

ENTENT Psychology Psychology DentistDentist OrthodonticsOrthodontics GeneticsGenetics

CLEFT CARE CLEFT CARE CENTRESCENTRES

CLEFT CARE CENTRESCLEFT CARE CENTRESINDIAINDIA

Capacity Building (1)Capacity Building (1)

Start with a focused Vision and MissionStart with a focused Vision and Mission

Be prepared to engage ALL interested Be prepared to engage ALL interested partiesparties

Form PartnershipsForm Partnerships

A Few of the Partnerships A Few of the Partnerships

Johnson and Johnson (Ethicon)Johnson and Johnson (Ethicon) Marriott Hotels in ChinaMarriott Hotels in China Latter Day Saints CharitiesLatter Day Saints Charities Rotary WorldwideRotary Worldwide The Peace CorpsThe Peace Corps UNICEFUNICEF World VisionWorld Vision Partners in HealthPartners in Health

Capacity Building (2)Capacity Building (2)

Assess the Pre Existing NeedAssess the Pre Existing Need

Are those needs being met?Are those needs being met?

What about other NGOs with Same Goals?What about other NGOs with Same Goals?

Capacity Building (3)Capacity Building (3)- Organizational- Organizational

An efficient organizationAn efficient organization Strong leadership that knows how to devolve and share Strong leadership that knows how to devolve and share

responsibilityresponsibility Ability to disseminate knowledgeAbility to disseminate knowledge Transparent accountability in….Transparent accountability in….

FinancesFinances

OrganizationOrganization

CredentiallingCredentialling

Outcomes Outcomes

The The Importance of Importance of

an Experienced an Experienced OrganizationOrganization

1 week follow up1 week follow upEARLY OUTCOMEEARLY OUTCOME

Documenting the early resultsDocumenting the early results Providing confidential feedback to the surgeonProviding confidential feedback to the surgeon

6 MONTH6 MONTH and and

1 YEAR1 YEARFollow-upFollow-up

Capacity Building (4)Capacity Building (4)

Continual reassessment Continual reassessment

Self ReflectionSelf Reflection

Ability to changeAbility to change

Op Smile Statistics from 2011 Op Smile Statistics from 2011 Annual ReportAnnual Report

18,000 surgeries18,000 surgeries 124 sites124 sites 164 missions164 missions 13 comprehensive care centres13 comprehensive care centres 60% of surgeries were in LOCAL missions or in 60% of surgeries were in LOCAL missions or in

care centrescare centres 4% expenditure on administration4% expenditure on administration 23% expenditure on fundraising23% expenditure on fundraising

The FutureThe Future

Support Capacity BuildingSupport Capacity Building Education/InstructionEducation/Instruction Human ResourceHuman Resource Retention of expertise (staff)Retention of expertise (staff) Avoid Volunteer FatigueAvoid Volunteer Fatigue Maintain CentresMaintain Centres Manage other Health Care Priorities Manage other Health Care Priorities

AcknowlegementsAcknowlegements

Luis Bermudez …. Luis Bermudez ….

RubenAyala ….RubenAyala ….

Natalie Miller….Natalie Miller….

The Patients………………The Patients………………