Action for M.E. and the Association of Young People with M.E. Survey 2008
May 29, 2015
Action for M.E. and the Association of Young
People with M.E.
Survey 2008
Part 3Your Current GP and
Your M.E.
Part 3: Your Current GP and Your M.E.
Question 15. When was the last time you saw your GP about your M.E.?
0 - 1 month (598)2 - 6 months (758)6 months - 1 years (433)I no longer see my GP about my M.E. (815)I no longer see my GP at all (50)I am not registered with a GP (2)Over a year but I have an appointment (31)
Severity of M.E. now v last time you saw your GP
When was the last time you saw your GP about your M.E.?
At the moment 0-1 month 2-6 months 6 months - 1 year
1 no longer see my GP about
my M.E.
I no longer see my GP at all
I am not registered with
a GP
Over a year but I have an
appointmentTotal
Bedbound 30 (27.27%) 27 (24.55%) 23 (20.91%) 0 (0.00%) 20 (18.18%) 9 (8.18%) 1 (0.91%) 110
Housebound 183 (24.05%) 234 (30.75%) 130 (17.08%) 1 (0.13%) 189 (24.84%) 13 (1.71%) 11 (1.45%) 761
Mobile over short distances 293 (24.73%) 355 (29.96%) 184 (15.53%) 1 (0.08%) 322 (27.17%) 15 (1.27%) 15 (1.27%) 1185
Near-normal life 84 (13.93%) 135 (22.39%) 94 (15.59%) 0 (0.00%) 274 (45.44%) 12 (24.49%) 4 (0.66%) 603
Total 590 (22.19%) 751 (28.24%) 431 (16.21%) 2 (0.08%) 805 (30.27%) 49 (1.84%) 31 (1.17%) 2659
Part 3: Your Current GP and Your M.E.
Question 16. How would you describe your current GP with regard to your M.E.?
Very supportive (621)Supportive (1069)Unsupportive (285)Well informed (49)Less informed than s/he could be (482)Not informed (140)
GP Description : By Country
CountryVery
supportive Supportive Unsupportive Well informed Less informed Not informedSurvey
Responses
England 474 (23.37%) 820 (40.43%) 228 (11.24%) 40 (1.97%) 359 (17.70%) 107 (5.28%) 2028
Northern Ireland
5 (21.74%) 10 (43.48%) 3 (13.04%) 0 (0.00%) 3 (13.04%) 2 (8.70%) 23
Scotland 34 (27.42%) 51 (41.13%) 9 (7.26%) 2 (1.61%) 26 (20.97%) 2 (1.61%) 124
Wales 19 (22.62%) 38 (45.24%) 6 (7.14%) 0 (0.00%) 19 (22.62%) 2 (2.38%) 84
Total 532 (23.55%) 919 (40.68%) 246 (10.89%) 42 (1.86%) 407 (18.02%) 113 (5.00%) 2259
GP Description : By NHS Region
NHS Region Very supportive Supportive Unsupportive Well informed Less informed Not informed Survey Responses
East Midlands 43 (22.88%) 84 (44.68%) 15 (7.98%) 7 (3.72%) 37 (19.68%) 2 (1.06%) 188
East of England 76 (24.92%) 118 (38.69%) 32 (10.49%) 8 (2.62%) 51 (16.72%) 20 (6.56%) 305
Guernsey (and Sark)
0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 1 (50.00%) 1 (50.00%) 2
Isle of Man 1 (100.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 1
Jersey 4 (66.67%) 1 (16.67%) 0 (0.00%) 0 (0.00%) 1 (16.67%) 0 (0.00%) 6
London 39 (20.86%) 83 (44.39%) 20 (10.70%) 1 (0.53%) 38 (20.32%) 6 (3.21%) 187
North East 8 (16.00%) 22 (44.00%) 9 (18.00%) 1 (2.00%) 7 (14.00%) 3 (6.00%) 50
North West 45 (22.06%) 71 (34.80%) 32 (15.69%) 5 (2.45%) 35 (17.16%) 16 (7.84%) 204
South Central 47 (26.26%) 73 (40.78%) 17 (9.50%) 5 (2.79%) 29 (16.20%) 8 (4.47%) 179
South East Coast 52 (23.85%) 89 (40.83%) 29 (13.30%) 3 (1.38%) 38 (17.43%) 7 (3.21%) 218
South West 92 (23.59%) 152 (38.97%) 43 (11.03%) 4 (1.03%) 72 (18.46%) 27 (6.92%) 390
West Midlands 32 (20.39%) 65 (41.40%) 16 (10.19%) 3 (1.91%) 29 (18.47%) 12 (7.64%) 157
Yorkshire and the Humber
35 (24.82%) 62 (43.97%) 15 (10.64%) 3 (2.13%) 21 (14.89%) 5 (3.55%) 141
Total 474 (23.37%) 820 (40.43%) 228 (11.24%) 40 (1.97%) 359 (17.70%) 107 (5.28%) 2028
GP Service : By Country
CountryBest
possibleGood Fair Poor Very poor
Survey Responses
England360
(19.42%)398
(21.47%)459
(24.76%)327
(17.64%)310
(16.72%)1854
Northern Ireland
4 (21.05%) 9 (47.36%) 3 (15.79%) 0 (0.00%) 3 (15.79%) 19
Scotland 28 (24.35%) 24 (20.87%) 22 (19.13%) 21 (18.26%) 20 (17.39%) 115
Wales 14 (18.42%) 18 (23.68%) 20 (26.32%) 10 (13.16%) 14 (18.42%) 76
Total406
(19.67%)449
(21.75%)504
(24.42%)358 (17.34)
347 (16.81%)
2064
GP Service : By NHS Region (England)
NHS Region Best possible Good Fair Poor Very poor Survey Responses
East Midlands 32 (18.39%) 38 (21.84%) 49 (28.16%) 31 (17.82%) 24 (13.79%) 174
East of England 56 (20.29%) 58 (21.01%) 79 (28.62%) 38 (13.77%) 45 (16.30%) 276
Guernsey (and Sark) 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 1 (100.00%) 1
Isle of Man 1 (100.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (100.00%) 1
Jersey 3 (60.00%) 0 (0.00%) 1 (20.00%) 0 (0.00%) 1 (20.00%) 5
London 35 (20.59%) 32 (18.82%) 47 (27.65%) 38 (22.35%) 18 (10.59%) 170
North East 7 (16.28%) 9 (20.93%) 8 (18.60%) 9 (20.93%) 10 (23.26%) 43
North West 34 (18.09%) 43 (22.87%) 41 (21.81%) 33 (17.55%) 37 (19.68%) 188
South Central 35 (20.71%) 38 (22.49%) 44 (26.04%) 28 (16.56%) 24 (14.20%) 169
South East Coast 36 (18.56%) 37 (19.07%) 46 (23.71%) 40 (20.62%) 35 (18.04%) 194
South West 74 (20.33%) 77 (21.15%) 83 (22.81%) 61 (16.76%) 69 (18.96%) 364
West Midlands 25 (17.99%) 28 (20.14%) 32 (23.02%) 29 (20.86%) 25 (17.99%) 139
Yorkshire and the Humber 22 (16.92%) 38 (29.23%) 29 (22.31%) 20 (15.38%) 21 (16.15%) 130
Total 360 (19.42%) 398 (21.47%) 459 (24.76%) 327 (17.64%) 310 (16.72%) 1854
Part 3: Your Current GP and Your M.E.
Question 17. Because of your M.E., have you ever received or requested a home visit from any of the
following?
GP
Specialist doctor
Nurse
Occupational therapist
Physiotherapist
0 250 500 750 1,000
Received Requested and received Requested but refused
Comments and Queries
You can send any comments, queries or questions about this survey to :-
E-mail : [email protected]
Action for M.E. Website : www.afme.org.ukAYME Website : www.ayme.org.uk
Thank You !!
Thank you for watching this presentation.
Thanks also go to the many people who participated in this survey.