STRATEGIC IMPLEMENTATION PLAN 2016-17

INTERNATIONAL DIABETES FEDERATION

STRATEGIC IMPLEMENTATION PLAN

2016-17

Despite the significant scientific advances of the last century, diabetes remains a major health challenge across the world. This chronic and incurable non-communicable disease (NCD) is responsible for millions of deaths annually and limits many lives with life-threatening complications. No country, rich or poor, is immune to the epidemic.

In its 2015 Diabetes Atlas, IDF estimated that 415 million people are currently living with diabetes; many as yet undiagnosed and untreated. To put this in an even more graphic way, if the people in the world with diabetes today lived in one country, it would be the third largest in the world after China and India. IDF estimated that, if nothing is done to address the growing diabetes epidemic, by 2040 the global figure will rise to 642 million – or one in 10 adults.

Around 90% of people with diabetes have type 2 diabetes, which in many cases can be prevented by adopting a healthy lifestyle. A growing number of people have type 1 diabetes, an autoimmune condition which cannot yet be prevented, but which can be managed with good medical care. Yet despite this, over 100 million people went without the essential diabetes medicines and technologies required to maintain their health and prevent complications. These complications account for the majority of the five million deaths worldwide attributable to diabetes in 2015. The greatest burden of diabetes is increasingly falling on low- and middle-income countries. The cost of the disease to health services, estimated at 673 billion dollars (USD) in 2015, will continue to rise with catastrophic consequences for vulnerable economies and people with diabetes.

As a strong non-governmental organisation with

the support of over 230 Members and economically powerful partners, we have the opportunity to address these challenges.

Scientific advances in the detection and treatment of diabetes are plentiful, with new lower cost solutions becoming available around the world. There is much IDF can do to promote knowledge exchange and understanding of these advances and help drive policy change to ensure they are available at affordable prices for all. But perhaps our greatest opportunity to curb the growth of diabetes is to harness the willingness of governments and inter-governmental organisations to drive change in policy, which will in turn create an environment that promotes better care of people with Type 1 and Type 2 diabetes, and greater opportunity to choose healthier lifestyles.

The adoption of the Sustainable Development Goals (SDGs) by the UN in September 2015 marks the next step from the Millennium Development Goals. They bring with them a commitment from governments around the world to reduce premature mortality from non-communicable diseases by one third through prevention and treatment, and to ensure access to quality essential health-care services, and to provide safe, effective, quality and affordable essential medicines for all. In addition, the SDGs include commitments to substantially increase health financing and the recruitment, development, training and retention of the health workforce in developing countries; and strengthening the capacity of all countries, in particular developing countries, for early warning, risk reduction and management of national and global health risks.

The SDGs provide a baseline for IDF’s work, as we continue to fight for better access to medicines

INTRODUCTION

3IDF Strategic Implementation Plan 2016-17

and care, greater focus on prevention and education, a stronger health workforce to care of people with diabetes and a bigger investment in risk reduction initiatives by public authorities.

In the 2016-2017 biennium, we have the opportunity to work closely with our Members and partners to hold governments to account to the commitments in the SDGs, convince them of the financial benefits to their economies and to ensure that they are used to create a better world for people with diabetes and those at risk. In doing so we will continue to build on the Global Diabetes Plan 2011-2021, which sets out three priority objectives: To improve education and care for people with diabetes; to prevent the development of type 2 diabetes; to prevent discrimination against people with diabetes.

We will review our Global Diabetes Plan 2011-2021 at the mid-term point in 2016 and develop it into a new IDF Strategic Plan for 2017-2027.

The first step is the Implementation Plan 2016-2017, set out in this document, in which we highlight our objective to remain the global voice of people

with diabetes. This Implementation Plan has been drawn up at a time when the global financial crisis continues to have significant impact, and threatens governments’ ability to meet the needs of people with diabetes, adding to the strain on families and individuals who must pay for treatment. The financial climate also poses a challenge to IDF and our Members, and accordingly we will broaden the range of partners with whom we work, not only to enhance our own financial stability, but to open new possibilities of funding and developing practical alliances for our members and ultimately for the people with, and at risk of, diabetes whom we serve.

OUR FEDERATIONIDF is unique in being a federation of not-for-profit organisations dedicated to action on diabetes, and as such forms the largest civil society organisation in the world serving people with and affected by diabetes.

With over 230 Members in more than 170 countries, IDF is the legitimate voice of the global diabetes community. The Federation continues to grow, both in terms a growing membership base, but also in terms of engagement at a global level with the World Health Organisation (WHO) and United Nations (UN). IDF enjoys official recognition with WHO, as well as with UN Economic and Social Committee.

IDF’s greatest strength lies in the capacity of its membership and the ability to ground global advocacy in the reality of local experience. Our Members provide a large volunteering force to ensure we can

achieve our strategic objectives, particularly in low- and middle-income countries where the Federation has a strong presence.

IDF Members are organised at both global and regional level, in which Members belong to both the IDF at global level and are also grouped together at a regional level. The IDF regional structure is loosely based on the WHO regional model, following broadly the same regional allocation of countries as WHO. Accordingly IDF has seven regional groups, which provide the opportunity for IDF Members within a geographical region to engage in collaborative action to improve the lives of people with diabetes. The regional structure exists to enhance IDF’s capacity to execute its mission, and as a route to deliver support to its Members.

4 IDF Strategic Implementation Plan 2016-17

Source: IDF Diabetes Atlas Seventh Edition 2015

IDF Strategic Implementation Plan 2016-17 5

IDF was incorporated in 1950 under the Belgian law for international not for profit organisations of 27th June 1921 (AISBL). Its Articles of Association, last amended on 10th March 2015, provide the legally binding purpose of IDF, which is encapsulated in our Vision and developed in our Mission and Strategy.

VisionLiving in a world without diabetes

MissionTo be the leading, authoritative global voice for people with diabetes and those at risk of diabetes, and improve the quality of life of all people with diabetes, prevent type 2 diabetes and fight discrimination against all affected by diabetes.

Building on a foundation of sound administration, good governance and financial stability IDF will execute its mission through a strong three pillar model of engagement bringing together strong partnership, effective policy and powerful presence, to ensure that it can achieve its mission of being the global voice of diabetes.

IDF VISION, MISSION AND STRATEGIC AIMS

OUR VALUESIDF is built on seven strong values, to which we hold ourselves accountable

SolidarityWe will support one another within the global diabetes community since solidarity is the founding principle of our Federation; we value and seek strategic alliances.

IntegrityWe will uphold our ethical code, maintain a high standard of personal conduct and embed our values in all that our organisation does.

HonestyWe will be truthful, deliver on promises and remain willing to be held to account; we will maintain confidentiality and respect individuals’ privacy.

CompassionWe will act with empathy and without prejudice, appreciating the personal impact of diabetes and the necessity for action.

IndependenceWe will maintain our independence and not be beholden to other organisations.

Embracing Risk We will be audacious, set ourselves ambitious targets and embrace risk whilst safeguarding our organisation.

CollaborationWe will encourage open dialogue and freedom of expression; we will work in collaboration with the diabetes world, providing leadership without arrogance.

CreativityWe will stay flexible, seek innovative and alternative ideas, be willing to challenge conventional wisdom and seize opportunities as they arise.

Cultural SensitivityWe will respect and value all cultures and acknowledge the human rights of all people.

HumilityWe will give credit to others, never forgetting that all we do is for the benefit of people with diabetes; we will accept and learn from our errors.

Sound Administration, Good Governance, Financial Stability

IDF The Global voice of Diabetes

Partnership

Policy

Presence


IMPLEMENTATION PLAN 2016-2017The work of IDF in the years 2016-2017 will focus on our core mission of being the Global Voice of Diabetes. We will speak with a strong voice drawing on our wide Membership and the support of our partners in industry and across civil society. We will speak with authority based on our engagement in a wide range of research initiatives covering diabetes care and prevention, epidemiology, statistics, health economics, health education for professionals and citizens, as well as health system reform.

Our voice will have presence and be heard in environments where real and lasting change for diabetes awareness, care and prevention can be driven. Our Global Voice will drive action which creates change to make the lives of people better and help protect those at risk.

• Lead and deliver effectiveadvocacy andcommunications.

• Develop a strong internationalcross-media profile.

• Position IDF as partner ofchoice for internationalhealth researchers and policy makers.

• Convenor for change,development and growth

• Global reference for statisticsand epidemiological data ondiabetes

• Sustainable, diverse long termfunding based on partnershipand philanthropy

• Strong network of Membersworking together at regionaland global level

• Stable Executive Office withhigh staff satisfaction andCollaborative Board withstrong engagement and longterm vision

• Mainstream prevention ofdiabetes at primordial,primary and secondary level

• Improve health outcomes forpeople with diabetes throughbetter access to care

• Drive integrated policy makingto ensure diabetes awarenessin all areas of politicalengagement

• Fight for equality in diabetescare and end discrimination.

• Authoritative guidelines andstandards for care andprofessional education

Sound Administration, Good Governance, Financial Stability

IDF The Global Voice of Diabetes

Policy High quality research

and policy development to:

Partnership Sustainable and strong organisation at global

and regional level

Presence Globally recognised

authority on diabetes

IDF will protect its reputation, ensuring financial security. To achieve its objectives, IDF will make sure that all procedures are fully implemented and respected.


PARTNERSHIPSustainable and strong organisation at global and regional level

Strong network of Members working together at regional and global levelWe will continue to work closely with our Members, seeking to support the newer organisations in their development and foster collaboration with and between all Members, strengthening communication with and among them.

In addition to working directly with our Members, we will seek to involve them in our work with other non-governmental organisations (NGOs), in particular our peer NGOs, which are brought together in the NCD Alliance (NCDA). IDF is a proud founding Member of NCDA, which offers many opportunities for uniting at regional and global levels to address the common risk factors of all NCDs.

Sustainable, diverse long term funding based on partnership and philanthropyThe primary purpose of IDF’s partnership with the corporate sector is to guarantee its sustainability and impact.

Historically our corporate partnerships have been predominantly in the pharmaceutical sector. While we acknowledge the critical importance of the medicines and technology coming from this sector, we note also that the wider corporate world has a huge impact on the lives of people with diabetes and those at risk of diabetes. Every day decisions about what food to eat, what goods to buy, how to travel to a place of work, how to spend leisure time; whether and how to take part in sports, impact on the health of an individual and a community. We need to work with industry and governments to increase access and availability to healthier lifestyle choices.

Recognising the impact of the wider corporate world on everyday life, IDF is now seeking to bring key players from outside the pharmaceutical sector into closer working relationship with IDF. Our objective is

to work with range of new partners to enable IDF to invest in mission driven projects and initiatives with the support of corporate partnerships, philanthropic support of foundations; donations from High-Net-Worth Individuals as well as other people through targeted online fundraising.

Collaborative Board and an Executive Office and with strong engagement and long term visionIDF depends on committed volunteers, a small group of whom are elected every two years by the General Assembly of Members to serve as a Board of Directors.

The Board brings together range of expertise covering financial management, strategic governance, experience of living with diabetes, physicians and other health professionals. The Board is assisted in the day-to-day management by an Executive Office which, under the leadership of a Chief Executive Officer brings professional expertise in finance and administration, a wide range of scientific expertise, a team dedicated to working with our partners, as well as staff divided across three departments: Internal Affairs, External Affairs and Policy & Programmes.


POLICYHigh quality research and policy development for strong advocacy to drive policy change

The objective of the Policy pillar of IDF is to support IDF’s advocacy and education initiatives with high quality research which drives policy adoption at national, regional and local level to:

• Mainstream prevention of diabetes at primordial,primary and secondary levels;

• Improve health outcomes for people withdiabetes through better education and care;

• Drive integrated policy making to ensure diabetesawareness in all areas of political engagement;

• Fight for equality of access to diabetes educationand care and combat discrimination and stigma;

• Develop authoritative guidelines and standardsfor care and professional education.

Our policy work will fall in three main work streams:

• Education• Epidemiology & Public health• Prevention, Access & Care

The work conducted under each stream will be informed by the priorities defined by the Board; it will also take into account new policy decisions and the specific priorities of funding partners. The objectives listed in this plan are dependent upon funding being secured for our work.

We will seek to execute work in all of the areas listed below, with a primary focus on those projects shown in bold at the top of each column in the table.

EducationThis has been a priority of IDF for many years and will remain so. The key objective of this work stream is to support the development of health professionals so they are equipped to deliver high quality care to people with diabetes and at risk of developing diabetes.

To ensure that IDF remains a leader in supporting

high quality clinical practice and working with our established network of global experts, we will work towards the establishment of the IDF School of Diabetes, which will:

• Build upon the success of our education platformas the online resource to support healthprofessionals working in diabetes;

• Provide access to online education modules,to support training of health professionals indiabetes through self-directed learning;

• Develop practical guides to support themanagement of type 1 and type 2diabetes indifferent global settings.

Prevention, Access and CareIDF will increase its focus on prevention of type 2 diabetes, in order to help stem the ever increasing incidence of type 2 diabetes. It will also continue to promote specific models of care and resources to support optimal management of people with diabetes.

A new focus in 2016-2017 will be on developing resources for primordial prevention, in which we will develop policies and resources to raise awareness of the need to effect changes at a population level to prevent new cases of type 2 diabetes. These will include policy statements and toolkits and specific tools such as the diabetes prevention score.

IDF will build on the success of its many primary prevention projects in recent years to develop low-cost interventions with a specific focus on promoting improvement of IGT/IFG to normal glucose tolerance.

To support care to people with diabetes, we will continue to develop sustainable and cost-effective throughout the life course.

Access to essential medicines and supplies, particularly insulin, remains a key focus of IDF work.


Accordingly we undertake surveys to assess current access to care and undertake targeted work to improve access to insulin, other medicines and essential technologies:

IDF’s humanitarian programme Life for a Child provides insulin to over 17,000 of the neediest children with type 1 diabetes in the world. On a policy basis we will work more closely with governments where Life for a Child operates to promote strengthening of health systems to ensure local provision of insulin and essential technologies.

Wider access to medicines will be assessed during 2016 to provide a global picture of the ‘real-life’ availability of all diabetes medications and supplies as well as essential medicines for diabetes and cardiovascular disease. The data will be instrumental in equipping IDF’s further work in advocating for improved provision to meet the 2025 target of 80% access to essential medicines.

Epidemiology and Public HealthIDF will continue to be the global reference for accurate, up-to-date estimates of the prevalence of diabetes and its burden on individuals and health economies. The IDF 8th edition Atlas will be developed in 2016-2017 and published at the end of 2017. A full review of its methodologies will be undertaken in 2016

To enhance the data in the Atlas we will also work to establish models of cost effectiveness of diabetes prevention and treatment to provide the evidence needed to encourage governments to invest now to save future health and other costs, by preventing the onset of type 2 diabetes and to provide appropriate management of diabetes to prevent complications.

EDUCATION PREVENTIONACCESS & CARE

EPIDEMIOLOGY & PUBLIC HEALTH

• IDF School of Diabetes• Education modules• Guidelines• Resources to support

people with diabetes

• Resources- primordial prevention

• Research• Models of care to improve

outcomes• Primary prevention• Access to medicines• Health system reform

• Atlas - global burden of diabetes

• Research• Cost effectiveness of

diabetes prevention and treatment

• Research - global burden of diabetes complications


PRESENCEGlobally recognised authority on diabetes

In order to truly be the global voice of diabetes IDF must be a presence on the global stage. Our work under the Presence pillar will:

• Launch effective advocacy campaigns underpinned by strong policy positions;

• Develop a strong international cross-media profile;

• Position IDF as the partner of choice for international health researchers and policy makers;

• Advocate for change, development and growth.• Reaffirm our status as the global reference for

epidemiological data on diabetes.

This work is divided into two broad categories: advocating globally for people with diabetes and those at risk of diabetes and their families; and growing the global recognition of IDF and diabetes as a real health and development challenge. As in the case of our work in the Policy pillar, we depend on the support of our corporate partners.

Advocating globally for people with diabetes and those at risk Informed and supported by the evidence and policies developed under the Policy pillar, IDF’s advocacy work will engage with international bodies, leading political platforms and national governments to effect tangible, beneficial and long-term change for people with diabetes. Building on the successes of previous advocacy work with respect to the Millennium Development Goals (MDGs), IDF will go beyond UN processes and actively involve its Members to hold governments accountable to the national voluntary targets set at the UN High Level Review on NCDs. The objective is clear: to outline specific actions that will support people with diabetes and implement compulsory measures to halt the global diabetes epidemic (Type 2 prevention).

We will deepen our cooperation with the WHO

on specific activities that will benefit people with diabetes and halt the epidemic. This includes functioning as a key advisor to WHO on the 2016 World Health Day, which is dedicated to diabetes for the first time; identifying opportunities to work more closely with the WHO NCD department and sub-departments to ensure diabetes-related issues are well-informed and appropriately supported. IDF will also continue to work with the NCDA to ensure that diabetes is represented in and regional actions related to diabetes

We will continue our work with existing key political platforms, to advocate for people with diabetes and those at risk, building on our Calls to Action to the G20 & G7 in 2014 & 2015.

We will work with the data generated in the IDF Atlas and other key projects to ensure that credible facts, figures and recommendations inform all our advocacy activities and ensure broader and deeper engagement with policy-makers and regulators.

We will continue to build alliances with partners who possess the expertise, recognition and/or visibility to support our overall advocacy objectives to ensure real change. IDF will continue to work with the NCDA to ensure diabetes is a visible and vital part of the global action to address NCDs.

Growing global recognition of IDF and diabetes IDF will become a leading online global diabetes resource. Funding permitting, we will continue to grow our online activities using clear objectives and transparent metrics. We will continue to develop the IDF website; strengthen our social media channels and, enhance our engagement with the on-line diabetes community.

As well as a virtual presence, we will continue have a strong presence at key global events. With the financial support of our partners we will hold strong side events at the World Health Assembly, lead an


impactful World Diabetes Congress in 2017 as well as related regional congresses and targeted events. We will also strengthen our engagement with key global events which could have an impact on the development of diabetes relevant policy. World Diabetes Day remains a unique event that is ‘owned’ and managed by IDF The World Diabetes

Day theme will also become a key vehicle for showcasing IDF’s expertise, authority and position as the global voice for people with diabetes and those at risk throughout the year.

ADVOCATE GLOBALLY FOR PEOPLE WITH DIABETES

AND THOSE AT RISK

• WHO contact point, globally andregionally

• Drive political and regulatorychange0 Platforms (G7/BRICS)0 Policy & Programmes (e.g. Atlas)0 Alliances & Platforms

GROW GLOBAL RECOGNITION OF IDF

AND DIABETES

• Be the leading Authority onDiabetes0 Strong online presence0 WDC (IDF World Congress), Regional Congresses and targeted events0 World Diabetes Campaign & WDD0 Take part in a wide range international events.


IDF BOARD 2016-17

President Dr Shaukat Sadikot

President–Elect

Vice-President Governance

Vice President Finance

Vice President

Vice President

Vice President

Vice President

Vice President

Vice President

Chair European Region Prof Sehnaz Karadeniz

Chair African Region Dr Ahmed Reja

Chair Middle East & North African Region Dr Nizar Albache

Chair South East Asian Region Dr Anil Bhoraskar

Dr Wayne H H Sheu

Chair North American & Caribbean Region Ms Sharon Fraser

Chair South & Central American Region Dr Ammar Ibrahim

13

Prof Nam H Cho

Mr David Du Pont

Mr John Grumitt

Ms Annemarie Bevers

Prof Angus Forbes

Dr Luis Gardete-Correia

Prof Akhtar Hussain

Mr Serge Langlois Ms Zobida Ragbirsingh

STRATEGIC IMPLEMENTATION PLAN 2016-17

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