Small, n=me, data Deborah Estrin Professor, Computer Science, Cornell NYC Tech Professor, Public Health, Weill Cornell Medical College Co-founder, Open mHealth [email protected]work done with collaborators from Cornell, UCLA, openmhealth.org, ... 1 1 Saturday, August 17, 13
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individual as nexus for fusion of their data streamsapps run over data in personal data vault
• Subscriber access to their individual data traces--data liberation!
•programmatic, realtime, opt-in through personal data APIs
• Raw data shared with subscriber only
•avoids a range of privacy and regulatory concerns
• Fuel new market of third-party personal informatics apps/services
• some apps will run in PDV; others externally
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Individual as nexus: discussion
• Each data source has shared/other origins
• Individual has control over their corpus of data streams to correlate, fuse
• App/service utility derives from lack of anonymity
• Selective sharing embodied in apps
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small data: key challenges
• Getting the data– Personal data APIs (data liberation to the consumer)– Convincing/incentivizing service providers
• Data processing, inference, fusion, modeling– diverse, noisy, lossy data– signal processing, machine learning, natural language...
• Data and API standards– app model and economy
• Personal data vaults– Security models and mechanisms, usability– Policy questions re. ownership, access, rights
• Testbed for prototypes and pilots– economy of scale in a shared testbed for rapid iterative exploration– secure and private data handling, IRB, methods, tools 11
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mpireproposed Testbed for Small Data and personal informatics
participant recruitment, incentives, management--across large and diverse participant populations