So we hold each other -The story of Hong- Chun-Yu Chiu
Jun 25, 2015
So we hold each other -The story of Hong-
Chun-Yu Chiu
Type of siblings
The parentified child The withdrawn child The acting-out child The superachieving child
(Siegel & Silverstein, 1994)
Marisa
Withdrawn0%
Acting-out0%
Superachieving65%
Parentified35%
Meghan
Parentified49%
Withdrawn0%
Acting-out0%
Superachieving51%
Chun-Yu
Parentified30%
Withdrawn30%
Acting-out0%
Superachieving40%
Cultural concerns
Something about Hong…
The oldest son in the family.
Has one younger sister and one younger brother.
Now 28. MR+CP Non-verbal
communicator
5 12 18 24 25 27
Japanese encephalitis Day Program Pneumonia
Drool & towel Fracture of left leg now
5 12 18 24 25 27
Japanese encephalitis Day Program Pneumonia
Drool & towel Fracture of left leg now
5 year-old: Japanese encephalitis
A disease caused by the mosquito-borne Japanese encephalitis virus
Fever, headache Life-long neurological defects Epilepsy
5 year-old: Japanese encephalitis->Impact
Family support and crisis: Diagnosis: Profound MR
(Pervasive support) Placement: home Feeding+ Toileting
problem
--Oh well. I actually didn’t know what’s going on.
5 12 18 24 25 27
Japanese encephalitis Day Program Pneumonia
Drool & towel Fracture of left leg now
12 year-old: Drool & towel
Family: New family member Patrick
Placement: Self-Contained classroom
Accident! -> Towel
5 12 18 24 25 27
Japanese encephalitis Day Program Pneumonia
Drool & towel Fracture of left leg now
18 year-old: Day Program
Adolescent life Pet phrase
‘Retarded’
Placement: Day program Taipei Municipal Yang
Ming Home for the Disabled
3-60yr-old, 406 8:00am-3:30pm
5 12 18 24 25 27
Japanese encephalitis Day Program Pneumonia
Drool & towel Fracture of left leg now
24 year-old: Fracture of left leg
A phone call from Yang Ming
Home :‘Nothing happened.
But his leg is swollen.’ No treatment before my parents
arrived. The difficulty of transferring. A video indicated that there was a
staff on duty when Hong fell down.
To Sue or Not to Sue?
5 12 18 24 25 27
Japanese encephalitis Day Program Pneumonia
Drool & towel Fracture of left leg now
25 year-old: Pneumonia
A phone call from Yang Ming Home again…
High fever: Nightmare returns
Personal conflict Burden v.s. responsibility Free from duty? Fear of loss?
5 12 18 24 25 27
Japanese encephalitis Day Program Pneumonia
Drool & towel Fracture of left leg now
Supportive family v.s. personal sacrifice
Guiltiness
Hong’s health condition
Future plan
If I could explain it
Brother
Sister,
Is who you are
To one another.
-From Seasons of Love, Seasons of Loss by Connie Post, 1991
So we will hold each other…
Forever.
Thank you!
Questions?
?