Sibaleni Nathi Volume 8- 2012

Sibaleni Nathi Count Us In

Volume 8- 2012

In this edition..... Nasal Congestion/CatarrhSlaying the Dragon of AssumptionsAdulthoodBranch News

Dssa Contact Details:Tel: 011 484 8890/1Email:Website:

2 Sibaleni nathi- Volume 8

WDSC 2012

D

Who should Attend?

www.wdsc2012.org.za

3Sibaleni nathi- Volume 8

EditorialNational NewsInternational NewsA Parents PerspectiveMedicalMinimag- Count us in our voiceEarly YearsEducationAdulthoodBranch News

Back Page

Contents

Sibalni nathi 2012- In this edition...


Thank you to all our generous Sponsors

DSSA is partially supported and funded by the National Lottery Dis-

tribution Trust Fund

DSSA is supported by LEV Denmark we thank you for your partnership in projects we have implemented

through the years.


Message From

Editorial

I am very humbled to bring you the 8th volume of our national publication antly count me in!

Roxanne Scholtz

What a fantas-tic memorable year 2012 will be for DSSA

Please join our Facebook page, where we continue to keep you informed of our activities and most up to date information.DSSA is partially supported and

funded by the National Lottery Dis-tribution Trust Fund

the Editor from the desk of the National Organisational

{ }


National

National News

Directors News from the desk of the National Director

W


National News

Vanessa dos Santos with Hayley Rehbock a DSSA Self Advocate


National

National News

Project Manager News from the desk of the National Project Manager

I

DSSA/LEV Break the Barrier- Strengthening the Township Project 2011-2013


National News

{ I am looking forward to continuing with this proj-ect & others over the years }

Jabulani Dikgale


National News

Awareness & Fundraising

National Genes DayA

World Down Syndrome Day 2012

National Down Syndrome Day 2011

Fundraising

Vanessa with the Deputy Minister and other members of DSSA

National News


B

Best Buddies

If you would like to participate in any of the programs please con-tact Jabulane on 011 484 8890/1 alternatively you can email him on [email protected]


Down Syndrome

International News

International News New York, 21 March 2012- Secretary-Generals message on World Down Syndrome Day

T


International News

D

Objective 1: World Down Syn-drome Congress 2012 (WDSC)

Research Group (SARG)

Objective 3: Global Outreach

Objective 4: DSi Website, Social Media, Newsletter and Member-ship Forums

Objective 5: World Down Syn-drome Day (WDSD)- 21 March


Inclusion

International News

International

I

Shikuku Obosi

International News


Inclusion Africa General Assembly

I


Our Story a recollection of the experience we had as parents of a boy with Down syndrome

M

{ I opened my sons bold red letters Down syndrome }

A Parents Perspective

A Parents Perspective


{ My Kayden taught me how to love and what a bless-ing he is }


Medical

Medical Nasal Congestion/Catarrh Some management strategies which may help Article written by DSMIG for the Down Syndrome Association Newsletter (UK)

T

Nasal saline douches

Nose blowing

Mechanical decongestion


Dairy-free diet

Oral antihistamines

Low dose antibiotics

Nasal decongestant sprays

Oral decongestants

To sum up

Medical


MiniMag

Stories from our Self Advocates

Count us in our voice by Hayley Rehbock who has Down syndrome

Hayley Rehbock appearing on a United by Music Post card, United

by Music tour 13 June 2011- 16 July 2011

I

This was typed by Suze, Hayley interpreted to her.

Hayley Rehbock is the Chairperson for the Self Advocacy Movement of South Africa a program of DSSA. Hayley is also a board member of

DSSA.


Stories from our Self Advocates

Count us in our voice by Ephraim Mohlokane who has an Intellectual Disability

H

shop for people with Intellectual Disabilities

{ For my dream I hope the world can change and respect people for who they are }


Hypotonia

Early Years

M

Always check with an appropri-ate health care professional before implementing any of these suggestions, to make sure these hypotonia exercises are going to be correct for your baby/child, as well as to clarify and make sure you understand how to imple-ment them safely.

Gross Motor Control Exercises

For a newborn with hypotonia you can:

Occupational Therapy exercises for those with hypotonia

Early Years


Hypotonia Exercises conclusion

Remember, the best stimulus for anyone who suffers fromhypotonia is loss of patience, understanding, education and most important, love.

{ }


Education

Education

Slaying the Dragon of Assumptions Article written by Zane Joynt

H

{ In my opinion the big-gest stumbling block to education is the practice of making assumptions. }

Education


{ These are the special moments that we as educa-tors live for. }

David with Zane

Sibaleni nathi- Volume 826

Adulthood

Adulthood

T

What health conditions occur more often in DS?

What is hypothyroidism? How is it diagnosed and treated?

What is celiac disease? How is it diagnosed and treated?

What is atlantoaxial instability? How is it diagnosed and treated?

Why does obesity occur more often in DS?

Adulthood


Adulthood

What is obstructive sleep apnea? How is it diagnosed and treated?

What about behavioral changes in adulthood?

What health conditions occur less often in DS?

What about healthcare mainte-nance? Source: with thanks to the NDSS www.ndss.org and special guest author Jose Flores, M.D., Ph.D. for preparing this piece.


Amathole

Branch News

Shanghai Restaurant sponsored food for the Christmas Party

T

Members from Hamilton Club assisting with the Street Collection

Outreach and Parent Support Groups

Branch News


Fundraising

Exercise Classes

CONTACT DETAILS

World Down Syndrome Day

Cupcake and Cocktail Evening


Branch News

Gauteng

Down Syndrome Associa-tion Gauteng (DSAG) Out-reach Support Services:

DSAG Self Advocates, Adult Sup-ported Employment and Job Skill Training:

Branch News


Branch News

DSAG Awareness Day Events:

DSAG CMI Childrens Christmas Party, December 2011:

We thank you and are proud to be under your wings.CONTACT DETAILS


Kwa Zulu Natal

Branch News

W

Outreach Report

Branch News


{ We start by Saying a very big thank you to our Sponsors}Fundraising

Functions

Workshops

National Public Awareness Day

CONTACT DETAILS:


Support Cape

Branch News

D

Self Help Groups

Toy Library News

Branch News


Family Counsellor

Committee

Thanks and Acknowledgements

CONTACT DETAILS


Tshwane

Branch News

T

Early Intervention/Outreach

Inclusive Education

Branch News


Parent Information Mornings

New Parents

Fundraising

Self Advocate Group

Swimming

CONTACT DETAILS


Western Cape

Branch News

O

Supported Employment and Skills Development

Parent Support and Workshop

Leisure Libraries

Branch News


Cycle Tour{ We would like to thank the Mountain View

Cyclists }SASSAI Games Paarl 2012

Committee Members:

Staff Members:

CONTACT DETAILS


Branch News

Nelson Mandela Metropole P

Outreach:

Fundraising:

Self Advocacy:

CONTACT DETAILS:

Branch News


Free State

Early Intervention

Self Advocacy and Awareness

CONTACT DETAILS:

Sheri Brynard


DSSA Outreach

Branch News

Kimberley North West

Mercia Van Rooyen- Outreach coordinator Contact: 078 182 3172 Members of the Outreach

with the Fire Station staff

Betty Motloane- Outreach coordinator

Contact: 071 359 4154


DSSA Outreach DSSA Outreach

Branch News

Kimberley Limpopo Witbank

Difference Motseo Out-reach coordinator

Contact: 078 246 0888

Lerato Mokoena Out-reach coordinator

Contact: 083 732 6189Highveld Mall for World Down Syndrome Day

DSSA STAFF:

DSAA OFFICE BEARERS:BRANCH CONTACT DETAILS:Amathole (East London): Gauteng:Kwa Zulu Natal:Support Cape (Red Cross Childrens Hospital):Tshwane:Western Cape (Belville):SUPPORT GROUP CONTACT DETAILS:Nelson Mandela Metrople (Port Elizabeth):

Free State:OUTREACH CONTACT DETAILS:Kimberley:North West:Limpopo:Mpumalanga:DSSA ADVISORY COMMITTEE:Medical (Genetics):Inclusive Education:Speech and Language:Skills Development:Supported Employment and Self Advocacy:

Self Advocates:USEFUL WEBSITES

Personalised Books- Especially 4Uwww.personalisedbooks4U.com

Your Child is the Star of each story * Features the childs name throughout the book * Features names of family/friends throughout the book * Educates the child * Encourages an early joy of reading * Superbly illustrated * Bold easy-to-read type * Washable hard covers * Unique family keepsake * Enhances a childs self-esteem & sense of identity

Log onto the website for the many different Title options & order today20% of all books sold goes to DSSA, contact Vanessa to place your order 082 893 0988

Your Child is the Star of each story * Features the childs name throughout the book

Your Child is the Star of each story * Features the childs name throughout the book

Your Child is the Star of each story

* Features names of family/friends throughout the book * Features the childs name throughout the book * Features names of family/friends throughout the book * Features the childs name throughout the book

* Educates the child * Features names of family/friends throughout the book * Educates the child * Features names of family/friends throughout the book

* Encourages an early joy of reading * Superbly illustrated * Encourages an early joy of reading * Superbly illustrated * Encourages an early joy of reading

* Bold easy-to-read type * Superbly illustrated * Bold easy-to-read type * Superbly illustrated

* Washable hard covers * Bold easy-to-read type * Washable hard covers * Bold easy-to-read type

* Unique family keepsake * Enhances a childs self-esteem & sense of identity * Unique family keepsake * Enhances a childs self-esteem & sense of identity * Unique family keepsake

Sibaleni Nathi Volume 8- 2012

Documents