Applying the Sentinel Common Data Model to Electronic Medical Records: PCORnet ® Experience Lesley H Curtis, PhD Professor, Duke University, USA Lead, PCORnet Distributed Research Network Operations Center European Medicines Agency, London, UK 11-12 December 2017
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Applying the Sentinel Common Data Model to Electronic Medical Records: PCORnet® Experience
Lesley H Curtis, PhD Professor, Duke University, USA Lead, PCORnet Distributed Research Network Operations Center
European Medicines Agency, London, UK
11-12 December 2017
Today’s agenda
Brief overview of PCORnet
PCORnet data strategy
Our experience to date
PCORnet®: the National Patient-Centered Clinical Research Network
An innovative initiative funded by the Patient-Centered Outcomes Research Institute (PCORI), PCORnet is a large, highly representative, national patient-centered clinical research network.
Our vision is to support a learning U.S. healthcare system and to enable large-scale clinical research conducted with enhanced quality and efficiency.
Our mission is to enable people to make informed healthcare decisions by efficiently conducting clinical research relevant to their needs.
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PCORnet® embodies a “network of networks” that harnesses the power of partnerships
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20 Patient-Powered
Research Networks (PPRNs)
13 Clinical Data
Research Networks (CDRNs)
A national infrastructure for people-centered clinical research
+ = + 2
Health Plan Research Networks
(HPRNs) +
1 Coordinating
Center
With coverage in every state in the U.S. This map depicts the number of PCORI-funded Patient-Powered or Clinical Data Research Networks that have coverage in each state.
PCORnet data strategy
Standardize data into a common data model
Focus on data quality: data curation
Operate a secure distributed query infrastructure
Learn by doing and repeat
CDM guiding principles (abridged) CDM will contain data of general interest to PCORnet
CDM will be intuitive & easy to understand
Other CDMs exist – PCORnet will learn from them
CDM will reflect values found in source data
CDM will change over time
Not all networks are expected to populate all parts of CDM
Networks are free to add data/domains to their local CDMs
Bold font indicates fields that cannot be null due to primary key definitions or record-level constraints.http://www.pcornet.org/pcornet-common-data-model/