Service Developments to help you live with and beyond cancer Edel Aughey Macmillan Project Manger Transforming Cancer Follow Up Belfast Health and Social Care Trust
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Service Developments to help you live with and beyond
cancer
Edel AugheyMacmillan Project Manger
Transforming Cancer Follow UpBelfast Health and Social Care Trust
The cancer landscape is changing
In the past most people died some were cured
•Earlier detection•Advances in technology•New targeted therapies•Cancer research
Today people with cancer are living longer
Some of our achievement in 2008
What is the Northern Ireland picture?
67,000 today
Attitudes to Cancer are changing
Improvements in cancer treatmentPatients now living many years following diagnosisCancer now viewed as a chronic illnessHealth promotion key aspect of recoveryPatient and family encouraged to seek advice and supportNew services are available………….
As people with cancer live longer their needs are changing
To help people make the transition after treatment we need to focus on recovery
Transforming Cancer Follow Up (TCFU)
TCFU - Why?2009 patient workshop“Aftercare is an after thought”“One size does not fit all”Aim of TCFU programme:To improve the quality of cancer patients after treatment experience and the promotion of health and wellbeing
THE PAST
FINANCIAL
Cancer can impact on all aspects of a person’s life
Finding out “what matters to you” as opposed to ”what’s the matter with you”?
To bring about this change we have formed a partnership
Macmillan Cancer Support
Health & Social Care Board
Public Health Agency
NI Cancer Network
Involving people
affected by cancer in
the process
We are developing new pathways of care
More individualised to your needs Which could reduce the frequency
of your hospital visits Involves you in the decision making
about priorities Checks your concerns and agreeing
a plan of care Provides you and your GP with
tailored information Signposts you to services in your
community Focuses on your health and well
being and invites you to an event – such as this today
This is summarised by Macmillan as the Recovery Package
New services
Cancer Survivorship Website
Health and Wellbeing events
Macmillan Information and Support Manager
Macmillan Benefits Advisors
Physical Activity Cancer Rehabilitation
It’s about enabling you to have more control over your ongoing health
1. Assessment and Care Planning
2. Treatment Summary
Cancer health and wellbeing events are now being offered
Macmillan Information & Support Services are well developed
Financial Advice Services are available
Getting help to get back to work
Physical activity is important for ongoing health
Physical Activity &Cancer Rehabilitation
Various models being developed:10-12 week programmes introducing different types of exerciseFitness Instructors trained in Cancer RehabSchemes available in local leisure centres12 week circuit based programmesWalking programmes 6 week programme in Belfast Gynae & Colorectal CancersVarious locations across the province
To find out about services to support you go to the following web site...
www.survivorshop.cancerni.net
Search mechanisms
Postcode Health and social care trust area Service provider Services that cover all on N. Ireland All services
If you have any questions please ask!
Level 4, Cancer CentreBelfast City HospitalTel: 02895048551
Mob: 07747827405Email: [email protected]
Edel AugheyMacmillan Project Manger
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