Semi – structured Interview Part 1 - Explore how the person became a carer. Most significant steps and most important changes in individual biography.

Semi – structured InterviewPart 1 - Explore how the person became a carer. Most

significant steps and most important changes in

individual biography.

Part 2 – Explore the caring experience with BEI Method.

Which were the most significant tasks of your

caregiving experience? Could you please make a list?

Part 3 – transition from the role of carer

32 former carers have participated in our research

Which were the most difficult moment after the loss of your relative / friend / partner?

What did you do / feel / think? What did you think about other people involved? What did you want to do? What did you do? How did it end? What happened? Who or what was more helpful?

How has your life changed? How is your daily life / routine changed?

Who are the people that you meet regularly? (Design a map of his / her relations, specifying intensity and type of contacts).

Re-submit the semantic differential on prevalent emotions / behaviours referred to nowadays

“Now, I have plenty of time. I can see how much time I spent for her care. I understood how fast the time was running”

“Now, I feel more relaxed. I was so tired back then. I go out, I go for swimming”

“Now, I am so far away from all the obligations that this disease bring together”.

“I feel empty. My either half is missing. I am wandering why had happened that to me. If you have been in that position you start to care for all the people that are suffering. Now, I want to go out all the time, to gain the time I have missed”

“I take care of my grandson, I do gardening. I wasn’t able to do that when I was caring for my sister”

“I take care of my grandchild. My daughter is working. I couldn’t do that when I was caring for my husband”

“I go twice a week to my grandchildren and I visit my sister. I invite friends to my home. I prefer it than visiting them. Time heals the pain”

“I try to do voluntary work in a Dementia Center. I am a member of an NGO for children with chronic diseases and sometimes I go excursions with an aunt of mine.

ATHENS ASSOCIATION OF ALZHEIMER’S DISEASE

AND RELATED DISORDERS

M. MOUSOUROU 89, ATHENS, GREECE, 11636

TEL. +30 210 70 13 271

[email protected]

www.alzheimerathens.gr