Residential/Health Care Residential/Health Care Facilities Facilities Food Avoidance/Gluten Free Food Avoidance/Gluten Free Success Success Celiac Disease prevalence and awareness Celiac Disease prevalence and awareness Food avoidance- Food allergy Food avoidance- Food allergy Menu Design/Food Service Menu Design/Food Service Gluten Free Diet management Gluten Free Diet management RD’s have a leadership role in health management Ronni Alicea MBA RDN CSG [email protected]
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Residential/Health Care Facilities Food Avoidance/Gluten Free Success Celiac Disease prevalence and awareness Food avoidance- Food allergy Menu Design/Food.
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Residential/Health Care Facilities Residential/Health Care Facilities Food Avoidance/Gluten Free Food Avoidance/Gluten Free
SuccessSuccess
Celiac Disease prevalence and awareness Celiac Disease prevalence and awareness Food avoidance- Food allergyFood avoidance- Food allergy Menu Design/Food ServiceMenu Design/Food Service Gluten Free Diet management Gluten Free Diet management
1 out of 3 people say they modify 1 out of 3 people say they modify their diets because they, or a their diets because they, or a loved one, have a food loved one, have a food intoleranceintolerance/allergy/allergy
www.Niaid.nih.govwww.Niaid.nih.gov
~110,000,000 people~110,000,000 people,,70% of people over 65 can expect to 70% of people over 65 can expect to
use residential care use residential care longtermcare.gov longtermcare.gov
Conclusion: The prevalence of celiac disease was high in elderly people, but the symptoms were subtle….. Increased alertness to the disorder is therefore warranted.
Vilppula A et al. Undetected coeliac disease in the elderly: a biopsy-proven population-based study. Digestive and Liver Diseases 2008;40:809-13
F325 F325 §483.25(i)(2) Receives a therapeutic diet §483.25(i)(2) Receives a therapeutic diet
when there is a nutritional problem.when there is a nutritional problem.
Maintains acceptable parameters of Maintains acceptable parameters of nutritional status, such as body weight and nutritional status, such as body weight and protein levels, unless the resident’s clinical protein levels, unless the resident’s clinical condition demonstrates that this is not condition demonstrates that this is not possible possible
FNC Food Allergy and FNC Food Allergy and IntoleranceIntolerance 66
F365 Food prepared in a form designed to F365 Food prepared in a form designed to meet individual needmeet individual need
F366 Substitutes offered of similar nutritive F366 Substitutes offered of similar nutritive value to residents who refuse food servedvalue to residents who refuse food served A food Substitute should be consistent with A food Substitute should be consistent with
the usual and ordinary food items providedthe usual and ordinary food items provided
FNC Food Allergy and FNC Food Allergy and IntoleranceIntolerance 88
Resident ChoiceResident Choice
See Residents Rights at 42 CFR 483.10 See Residents Rights at 42 CFR 483.10 (b)(3) and (4) and F 154 and F155(b)(3) and (4) and F 154 and F155
‘‘In order for a resident to exercise his/her In order for a resident to exercise his/her right appropriately to make informed right appropriately to make informed choices … consequences of refusing choices … consequences of refusing treatment….. When allergies are in the treatment….. When allergies are in the medical record, a medical note is needed medical record, a medical note is needed if ‘allergy to food’ is to be served. if ‘allergy to food’ is to be served.
Admin support
FacilityTraining
Standardize diet ordersAssess
food delivery systems
Plan MenuPlan Nourishments
Plan Snacks
Buy and store food
Cross contamination Kitchen training
Tray Accuracy
Check your Policy: Therapeutic DietsCheck your Policy: Therapeutic Diets
Therapeutic diets are prepared and served Therapeutic diets are prepared and served as prescribed by the attending physician. as prescribed by the attending physician.
Therapeutic diets are planned and are on Therapeutic diets are planned and are on menu extensions.menu extensions.
Check there is a solid policy for like Check there is a solid policy for like substitutions. Many with gluten/dairy substitutions. Many with gluten/dairy restrictions will want their favorite brand!restrictions will want their favorite brand!
1010
1111
Admin support
Facility Mission
StatementLiability
Satisfaction Survey’s
3 Million Celiac12 Million Food Allergy
F- tag Potential
Food, personal products and
crafts may cause reactionsInterdepartme
ntal
1212
Food Intolerances
Non-immunologic Allergy
Metabolic Disorders
False food AllergIdiosyncratic
IgE Mediated T-cell Mediated
Lactose Intolerance
Inborn Errors
Sulfites
Food colors
Celiac Disease
Cow’s Milk / soyaAllergy
Sensitivity/Intolerances
Gluten Intolerance
Pharmacologic
CaffeineAlcohol
MSG
Gluten IIntolerance
Big 8 Allergens
160 foods
Latex
Food Intolerances
Non-immunologic Allergy
Metabolic Disorders
False food AllergIdiosyncratic
IgE Mediated T-cell Mediated
Lactose Intolerance
Inborn Errors
Sulfites
Food colors
Celiac Disease
Cow’s Milk / soyaAllergy
Sensitivity/Intolerances
Gluten Intolerance
Pharmacologic
CaffeineAlcohol
MSG
Gluten IIntolerance
Big 8 Allergens
160 foods
Latex
1313
Food Avoidance
Food Aversion Intolerance Allergy
(Immune)
1414
No MilkDairy Allergy
Milk freeLactose Free
Food Aversion
I do not like milkI am Vegan
IntoleranceMay not drink milk but
uses Lactose Free milk eats yogurt and cheese
Allergy
No Casein, WheyOr Lactose
An in-depth food preference interview is needed to help your kitchen be successful Follow the most strict diet order until individualized!
XXXXXXXXX
xxxxxxxxxxxxxxxx
People and Professionals may use different words to describe food avoidance
FNC Food Allergy and FNC Food Allergy and IntoleranceIntolerance 1616
What’s your most unusual one?What’s your most unusual one?
Allergies are to proteins Allergies are to proteins
Gal d 6 is the second allergen characterized from egg yolk.
Only one allergen from the egg yolk, alpha-livetin (Gal d 5) has been described thus far. A new egg yolk allergen was detected studying 27 egg allergic patients. 5 of the 27 patients (18%) detected a yolk allergen of an apparent molecular weight of 35 kDa. Heating and reduction treatments did not affect its allergenicity, although digestion with simulated gastric fluid diminished the IgE-binding capacity of the allergen. The N-terminal amino acid sequence corresponded with the YGP42 protein, a fragment of the vitellogenin-1 precursor. The allergen was designated Gal d 6.
Amo A, Rodríguez-Pérez R, Blanco J, Villota J, Juste S, Moneo I, Caballero ML.Gal d 6 is the second allergen characterized from egg yolk.J Agric Food Chem 2010 Jun 23;58(12):7453-7.
1717
FNC Food Allergy and FNC Food Allergy and IntoleranceIntolerance 1818
FNC Food Allergy and FNC Food Allergy and IntoleranceIntolerance 1919
Metabolic intolerance Metabolic intolerance FavismFavism Trehalose insufficiency Trehalose insufficiency Pancreatic dysfunction Pancreatic dysfunction Inborn Errors of MetabolismInborn Errors of Metabolism Damage to enzyme producing cells can Damage to enzyme producing cells can
cause secondary Intolerancescause secondary Intolerances Histamine intolerance: reduced activity of Histamine intolerance: reduced activity of
diamine oxidase (DAO). diamine oxidase (DAO).
FNC Food Allergy and FNC Food Allergy and IntoleranceIntolerance 2020
Digestive Enzymes and sourceDigestive Enzymes and source Mouth: ∂ amylaseMouth: ∂ amylase Stomach: pepsinsStomach: pepsins Pancreas: amylase, Pancreas: amylase,
lipase and Proteaseslipase and Proteases Gall Bladder: BileGall Bladder: Bile Brush BorderBrush Border
Lactose→glu + galLactose→glu + gal ∂ ∂ 1 →4 bonds ∂ 1→6 bonds1 →4 bonds ∂ 1→6 bonds Sucrose → glu & fruSucrose → glu & fru maltose → glu & glumaltose → glu & glu Removal of N terminal aa’sRemoval of N terminal aa’s
Why is GF so popular?Why is GF so popular?
Food Avoidance
Gluten/Wheat
Food Aversion
High Protein DietFad Diet
IntoleranceMay limit pasta and
bread due to digestive discomfort
Allergy/Celiac
Wheat Free isNot Gluten Free
Positive31
Negative4095
Positive81
Negative3155
Positive205
Negative4303
Positive33
Negative1242
Prevalence1:40
Prevalence1:22
Prevalence1:39
Symptomatic subjects3236
1st degree relatives4508
2nd degree relatives1275
Healthy Individuals4126
Risk Groups9019
Population screened13,145
Prevalence1:132
Projected number of celiacs in the U.S.A.:3.3 million
Center for Celiac Research Epidemiologic Study in USA Arch Int Med 163:286-292, 2003 Fasano et al.
Celiac disease is an immune reaction to proteins found in wheat (Gliadin), rye (secalin) and barley (hordein) collectively known as gluten. Other grains have proteins that food scientists call gluten that are not avoided on physician ordered gluten-free diets, important for pharmacy calls.
FNC Food Allergy and FNC Food Allergy and IntoleranceIntolerance 2525
A. Fasano and T. Shea Donohue, Nature Clin Pract Gastroenterol Hepatol 2005 (in press)
World Gastroenterology Organization Practice Guidelines:
Detection of Celiac Disease in Primary Care:A Multicenter Case-Finding Study in North America
Carlo Catassi, M.D., M.P.H.,
CD was diagnosed in 22 out of 976 investigated patientsCD was diagnosed in 22 out of 976 investigated patientsThe most frequent reasons for CD screeningThe most frequent reasons for CD screeningbloating (12/22) thyroid disease(11/22), bloating (12/22) thyroid disease(11/22),
chronic fatigue (5/22), chronic fatigue (5/22), and constipation(4/22). and constipation(4/22).
The small bowel biopsy was available in 15 out of 22 The small bowel biopsy was available in 15 out of 22 GFD was implemented in 17 out of 22 cases. GFD was implemented in 17 out of 22 cases.
American Journal of Gastroenterology ISSN 0002-9270 2007 by Am. Coll. of Gastroenterology doi: 10.1111/j.1572-0241.2007.01173.x
Classic GI PresentationClassic GI PresentationHF: 86 YO WF admitted to sub-acute care unit for
DX: Deconditioned post hospitalization for syncope and collapse.
Persistent Diarrhea ċ c-dif negative, anemia of chronic disease
Admit wt 112 # family stated UBW 125 5’3 Wt loss ~13# past quarter (90% UBW)
Increased confusion, poor po of regular diet and supplements (2Cal product 120 mL QID)
Decreased H/H, BUN 32, Cr .5, GFR WNL GI consult ordered, admitted to the hospital
HF: 86 YO WFReadmit new dx: Celiac Disease DO: RegularFacility MD resistant to diet change due to ageFamily meeting: Changed to gluten-free diet orderTherapeutic vitamin (strovite plus), Iron supportNutritional supplements (2-Cal/mL 120 mL QID)Weight gain, increased participation in activities and
Physical therapy and resolved diarrhea Discharged back to the Assisted Living in 15 weeks
Requested ‘Celiac Requested ‘Celiac panel’, total IGA and panel’, total IGA and Vit DVit D
Lab results: Lab results:
Reticulin IgA WNLReticulin IgA WNL
EMA WNL, EMA WNL,
Gliadin IgA WNLGliadin IgA WNL
Gliadin IgG WNLGliadin IgG WNL
LN: Cal count resultsLN: Cal count results45kcal /kg 1.8 g protein/kg45kcal /kg 1.8 g protein/kg
WT: 98#WT: 98#
MD concluded negative for celiac
www.celiac.nih.gov
LN continuedLN continued
Went home and was readmitted to Went home and was readmitted to the hospital with respiratory distress.the hospital with respiratory distress.
Was to return to the sub-acuteWas to return to the sub-acute
53 YO with weight loss despite a 53 YO with weight loss despite a hearty appetite died of respiratory hearty appetite died of respiratory failurefailure
Celiac panel inconclusive: no total IgACeliac panel inconclusive: no total IgA
Recommendations for practiceRecommendations for practice Call lab and ask for lab numbers for Total Call lab and ask for lab numbers for Total
IgA and tTG instead of the ‘celiac panel’IgA and tTG instead of the ‘celiac panel’ Acculab in NJ total IgA # 1029Acculab in NJ total IgA # 1029 Acculab in NJ tTG # 1506Acculab in NJ tTG # 1506
Less expensive test ideal for screeningLess expensive test ideal for screening With results seek GI referral. Will justify With results seek GI referral. Will justify
EGD when presented with extraintestional EGD when presented with extraintestional symptomssymptoms
LL admitted 01/2008LL admitted 01/2008
DiagnosisDiagnosis Syncope and CollapseSyncope and Collapse Pneumonia Pneumonia AnemiaAnemia Celiac DiseaseCeliac Disease
Diet History : Diet History : Gluten Free Diet 20 Gluten Free Diet 20
yearsyears Lived with niece due Lived with niece due
to mental deficit to mental deficit Rice Krispee’s AMRice Krispee’s AM Communion (regular)Communion (regular)
Labs: As expectedLabs: As expected
Nutrition Plan of Care:Nutrition Plan of Care:
1- Review GF diet with 1- Review GF diet with KitchenKitchen
2- Review facility GF 2- Review facility GF diet with resident diet with resident and and FamilyFamily
3- Give Activities GF 3- Give Activities GF hosts for Pastor to hosts for Pastor to blessbless
4- Meet Nutrition needs4- Meet Nutrition needs
as assessedas assessed
Admin support
FacilityTraining
Standardize diet ordersAssess
food delivery systems
Plan MenuPlan Nourishments
Plan Snacks
Buy and store food
Cross contamination Kitchen training
Tray Accuracy
Communication channelsCommunication channels::
Dietary: Clinical and Food Service Dietary: Clinical and Food Service
Nursing Functions: med pass/ HS snacksNursing Functions: med pass/ HS snacks
MatzoMatzo www.glutenfreematzo.comwww.glutenfreematzo.com Made from GF OatsMade from GF Oats
CMS CMS INTENT: §483.25(i) 325 INTENT: §483.25(i) 325 Nutritional Status uses Celiac Nutritional Status uses Celiac
Disease example:Disease example:
A resident with known celiac disease A resident with known celiac disease (damage to the small intestine related to (damage to the small intestine related to gluten allergy) develops persistent gluten allergy) develops persistent gastrointestinal symptoms including weight gastrointestinal symptoms including weight loss, chronic diarrhea, and vomiting, due to loss, chronic diarrhea, and vomiting, due to the facility's failure to provide a gluten-free the facility's failure to provide a gluten-free diet (i.e., one free of wheat, barley, and rye diet (i.e., one free of wheat, barley, and rye products) as prescribed by the physician. products) as prescribed by the physician.
Admin support
Standardize diet orders
Check the Diet ManualCheck the Diet Manual!!!!!!!!!! misinformationmisinformation
‘ Read all labels carefully. Many ingredients contain gluten but may not list it as such. Avoid: commercial products or mixes containing malt or malt flavorings, textured vegetable protein, hydrolyzed vegetable protein, cereal products, flour, starch, wheat, rye, barley, oat, farina, semolina, durum, triticale, gums, emulsifier ….
MENU PLANNING GUIDELINES:stabilizers, vinegar, artificial colors or flavors, some
monosodium glutamate, vanilla.
What’s up with this statement in the manual guidelines? Use of soy products should be individually evaluated. Millet and
buckwheat may not be tolerated by some.
StandardStandard All DO’sAll DO’s Policy until individualizedPolicy until individualized
Gluten FreeGluten Free Celiac, wheat allergy, wheat Celiac, wheat allergy, wheat free, no breadfree, no bread
No Wheat, rye, barley aka No Wheat, rye, barley aka malt, spelt or oatsmalt, spelt or oats
Dairy FreeDairy Free No Milk, Milk or diary No Milk, Milk or diary allergy, Casein Free allergy, Casein Free
No animal milk: Lactose, No animal milk: Lactose, Casein, whey ingredientsCasein, whey ingredients
Food preferences may have Food preferences may have milk protein (casein & whey) milk protein (casein & whey) e.g. coffee creamerse.g. coffee creamers
Egg FreeEgg Free Egg allergy, no EggsEgg allergy, no Eggs No egg ingredientsNo egg ingredients
No egg substitutesNo egg substitutes
Peanut/tree nut freePeanut/tree nut free Peanut allergy, nut allergy, Peanut allergy, nut allergy, no seeds or nutsno seeds or nuts
No nuts/peanuts including No nuts/peanuts including their oilstheir oils
Soy-FreeSoy-Free Soy allergy, no soySoy allergy, no soy No soy ingredients. Soy oil No soy ingredients. Soy oil and lecithin allowed unless and lecithin allowed unless specifiedspecified
Additive-FreeAdditive-Free Feingold diet, sulfite, MAO Feingold diet, sulfite, MAO MSG, asthma dietMSG, asthma diet
No additives: low sulfite, No additives: low sulfite, Salicylates, tyramine Salicylates, tyramine
Latex FreeLatex Free Any diet with latex allergy Any diet with latex allergy Identified in chartIdentified in chart
No latex gloves around food No latex gloves around food or tray, no banana, kiwi, or tray, no banana, kiwi, avocado, chestnutsavocado, chestnuts
Worcestershire SauceWorcestershire Sauce
Ingredients: distilled white Ingredients: distilled white vinegar, molasses, water, sugar, vinegar, molasses, water, sugar, onions, anchovies, salt, garlic, onions, anchovies, salt, garlic, cloves, tamarind extract, natural cloves, tamarind extract, natural flavorings, chili pepper extract. flavorings, chili pepper extract.
FDA definition gluten freeFDA definition gluten free
< less then 20 PPM in finished goods < less then 20 PPM in finished goods
One slice of regular bread has 124,000 PPMOne slice of regular bread has 124,000 PPM
One slice of gluten free bread usually < 5 PPMOne slice of gluten free bread usually < 5 PPM
Claims for food service are encouraged to follow Claims for food service are encouraged to follow FDA regulation for manufacturersFDA regulation for manufacturers
TIP: Use ‘ Gluten-restricted’ as term TIP: Use ‘ Gluten-restricted’ as term
Use gluten-free ingredients or TEST.Use gluten-free ingredients or TEST.
Daily intake of Carbs and ppm of Daily intake of Carbs and ppm of gluten in food for celiacsgluten in food for celiacs
www.tastelikerealfood.com www.tastelikerealfood.com NET WT 14.7 oz. (417g) Makes 1 loaf. NET WT 14.7 oz. (417g) Makes 1 loaf.
Mix contains less than 20 ppm total Mix contains less than 20 ppm total gluten content, which is considered gluten content, which is considered gluten-free according to the Codex gluten-free according to the Codex Alimentarius, the European food safety Alimentarius, the European food safety standard. standard. Ingredients SPECIALLY Ingredients SPECIALLY FORMULATED WHEAT STARCH*, FORMULATED WHEAT STARCH*, BUCKWHEAT (WHOLE GRAIN AND BUCKWHEAT (WHOLE GRAIN AND FLOUR), PRECOOKED RICE FLOUR, FLOUR), PRECOOKED RICE FLOUR, GLUCOSE, BEET FIBER, POTATO GLUCOSE, BEET FIBER, POTATO FIBER, SESAME SEEDS, POTATO FIBER, SESAME SEEDS, POTATO STARCH, STABILIZER (E464), SALT, STARCH, STABILIZER (E464), SALT, RICE STARCH, VEGETABLE FAT RICE STARCH, VEGETABLE FAT (PALM OIL), RAISING AGENT (PALM OIL), RAISING AGENT (CALCIUM PHOSPHATE, SODIUM (CALCIUM PHOSPHATE, SODIUM HYDROGEN CARBONATE), HYDROGEN CARBONATE), THICKENING AGENT (XANTHAN THICKENING AGENT (XANTHAN GUM).GUM).
Admin support
Standardize diet ordersMeal Service
system
Review your system and risks Review your system and risks Tray Line PlateTray Line Plate Buffet Style Buffet Style Room Service cook to orderRoom Service cook to order
Snack carts, Floor Stock and ActivitiesSnack carts, Floor Stock and Activities
Assess Food Service Systems
Admin support
Standardize diet ordersMeal delivery
system
Plan MenuPlan Nourishments
Plan Snacks
§483.35 Dietary Services§483.35 Dietary Services(c) Standard Menus/Adequacy(c) Standard Menus/Adequacy
F 363 Probe (c) (1)F 363 Probe (c) (1)
If a food group is missing from the resident’s daily diet, does If a food group is missing from the resident’s daily diet, does the facility have an alternative means of satisfying the the facility have an alternative means of satisfying the resident’s nutrient needs.resident’s nutrient needs.
F 363 Probe (c) (3)F 363 Probe (c) (3)Is food served as planned?Is food served as planned?
Specifics help the production staff
Facility Knowledge:
FSD first GF resident was from the UK. They requested Rice Krispees… on the UK list of ‘allowed’ prior to 2008.
5656
Menu Analysis: Food Allergy extension
Do Not Serve Do not serve Do not serve Do not serve Do not serve Do no serve Do not serve Do not serve
Recipe #Menu item name
Dairy allergy Egg Allergy Fin Fish allergy gluten reduced Lactose reduced peanut/nut free Seafood Free Shellfish allergy
1Juice of Choice
2Cold Cereal (Chex Cereal only)
3Oatmeal ? Made with milk? (Cream rice only) ? Made with milk?
4Farina ? Made with milk? (Cream rice only) ? Made with milk?
5Cream of Rice ? Made with milk? ? Made with milk?
6Scrambled Egg
? Made with milk? ( Greek yogurt or
other 7 gram protein
7Bacon
8Toast? Made with milk? Made with egg? (Gluten Free bread)
9Milk Soy, almond milk lactose reduced
10Tuna Salad Sandwich
? Milk in dressing ? Mayo Ham salad (gluten free bread ham salad
11 beef Pot Pie Worchester sauce?
Serve Beef stew if flour not used or beef stir fry on rice
5757
5858
Foods that contain: _____Gluten/wheat__________________
Recipe # Sub with:
1.__white/rye/toast/rolls__________ Sub_ gluten-free bread or fruit cup_
2.__Muffins/croissants____________ Sub__gluten-free muffin or fruit cup
3. _pancake/waffle _______________ Sub __gluten-free pancake
4.__blintz__________________ _ Sub ___omelet_______
5._______________________ Sub ____________________
6.______________________ Sub____________________
7.______________________ Sub____________________
8. ______________________ Sub ____________________
9.______________________ Sub ____________________
Cheat sheets can assist departments
Oven Fried chickenOven Fried chicken Baked Chicken BreastBaked Chicken Breast
Dinner RollDinner Roll GF Microwave CornbreadGF Microwave Cornbread
MargarineMargarine MargarineMargarine
Lemon Meringue PieLemon Meringue Pie Lemon Pudding onLemon Pudding on
GF Microwave BiscuitGF Microwave Biscuit
Whipped CreamWhipped Cream
6060
CONTAINS BARLEY
Rice Chex are Gluten Free The barley has been replaced with Molasses!
Watch Gravy and bacon bits Watch Gravy and bacon bits Gluten Free Stock Gluten Free Stock
Certified:Certified: Celinal FoodsCelinal Foods Cuisine Santé (HACO)Cuisine Santé (HACO) RC Fine FoodsRC Fine Foods
Read all labels for Read all labels for ingredients: recipes ingredients: recipes can change on non-can change on non-certified food.certified food.Limit Cross Contamination!
Make GF gravyportion, label and freeze
All Wheat Flour is Enriched All Wheat Flour is Enriched ThiaminThiamin
RiboflavinRiboflavin
NiacinNiacin
IronIron
FolateFolate
GF products usually are GF products usually are not fortifiednot fortified
Contains wheat, milk, egg and soy ingredientsContains wheat, milk, egg and soy ingredientsFALCPA
FDA advised that advisory labeling such FDA advised that advisory labeling such as "may contain [allergen]" should not be as "may contain [allergen]" should not be used as a substitute for adherence to used as a substitute for adherence to current Good Manufacturing Practices current Good Manufacturing Practices (cGMPs). In addition, any advisory (cGMPs). In addition, any advisory statement such as "may contain [allergen]" statement such as "may contain [allergen]" must be truthful and not misleading. must be truthful and not misleading.
Fines attached for non-complianceFines attached for non-compliance
WHEAT FREE WHEAT FREE IS NOT GLUTEN FREE!IS NOT GLUTEN FREE!
Made in plant with Wheat- GMPMade in plant with Wheat- GMP
Shared Equipment : GMP more difficultShared Equipment : GMP more difficult
CONTAINS BARLEY
Rice Chex are Gluten Free The barley has been replaced with Molasses!
Soy SauceSoy Sauce often contains wheatoften contains wheat
Mono and Mono and DiglyceridesDiglycerides may have a wheat may have a wheat
carrier when used in carrier when used in dry ingredients but it dry ingredients but it should be declaredshould be declared
Brown Rice SyrupBrown Rice Syrup may be made from may be made from
barleybarley* By definition may contain wheat but US manufactures say they are not using gluten containing grains
Other ConcernsOther Concerns
Where to purchase?Where to purchase? Distributor: May stock or Special OrderDistributor: May stock or Special Order Local Grocery: Keep Receipts!Local Grocery: Keep Receipts!
Check Labels Each Time!Check Labels Each Time!
Store High if possible Store High if possible
Label book for referenceLabel book for reference
Assess production ability: make or buyAssess production ability: make or buy
Diet Diet Facility Gluten Free DietFacility Gluten Free Diet No Outside snacks No Outside snacks Communion (low-gluten)Communion (low-gluten)
Labs: IV for Labs: IV for dehydrationdehydration
Plan of Care:Plan of Care:
1- Review GF diet with 1- Review GF diet with KitchenKitchen
2- MD to evaluate 2- MD to evaluate Pancreatic Mass Pancreatic Mass for for changechange
3- R/O C- Diff3- R/O C- Diff
4- Nurses to check 4- Nurses to check medications with medications with pharmacypharmacy
Crumbs CountCrumbs Count
Double DippingDouble Dipping
Trouble hot spotsTrouble hot spots
Flour and rice scoop stored together
No Ingredient statement
The KitchenThe Kitchen
There are no scientific studies to evaluate cleaning There are no scientific studies to evaluate cleaning practices or methodspractices or methods
Food Allergy News suggestions Food Allergy News suggestions 1- Warm soapy water 1- Warm soapy water 2- Fresh cloth or paper towel to wipe2- Fresh cloth or paper towel to wipe3- Prep the special diet foods first3- Prep the special diet foods first4- Wrap and Identify clearly4- Wrap and Identify clearly
Ongoing Inservice Education
Admin support
Standardize diet ordersMeal delivery
system
Plan MenuPlan Nourishments
Plan Snacks
Buy and store food
Cross contamination Kitchen training
Tray Accuracy
Right Tray, Right PersonRight Tray, Right Person
Visual cues Visual cues Tray colorTray color napkin colornapkin color IconIcon
Tray ticket colorTray ticket color
Privacy rightsPrivacy rights
XXXXX
What if Everything was perfect: What if Everything was perfect: except the roll?except the roll?
Prepare for Kitchen TrainingPrepare for Kitchen Training
Rewrite inservices to include an allergy Rewrite inservices to include an allergy component for continued reinforcementcomponent for continued reinforcement
Allergen trays prepared first Allergen trays prepared first
Equipment and work surfaces will be cleaned before use Equipment and work surfaces will be cleaned before use with a fresh cloth or paper towel. with a fresh cloth or paper towel.
Clean and Sanitized utensils to be used in food Clean and Sanitized utensils to be used in food production and portioning. production and portioning.
Label read every time unless specific claim made on the Label read every time unless specific claim made on the labellabel
Food can not be fixed…. start overFood can not be fixed…. start over
Admin support
Tray delivery feeding asstsTherapists
Standardize diet ordersMeal delivery
system
Plan MenuPlan Nourishments
Plan Snacks
Buy and store food
Cross contamination Kitchen training
Tray Accuracy
October 31, 2008 October 31, 2008
By By DAVID GIALANELLADAVID GIALANELLA Staff Writer Staff Writer
Prosecutors said Thursday they are reviewing the case of an Elgin MentalProsecutors said Thursday they are reviewing the case of an Elgin Mental Health Center patient who died months ago Health Center patient who died months ago
after two facility employees allegedly gave him after two facility employees allegedly gave him a meal containing fish despite a severe fish a meal containing fish despite a severe fish
allergyallergy. . Morris Howard, 58, formerly of Chicago, died on June 20 after the employees gave him the meal, which Morris Howard, 58, formerly of Chicago, died on June 20 after the employees gave him the meal, which
investigators said sent him into anaphylactic shock.investigators said sent him into anaphylactic shock. A coroner's jury on A coroner's jury on Wednesday ruled the death a reckless homicide. Wednesday ruled the death a reckless homicide.
Illinois State Police investigators earlier this week handed the case off to the Kane County State's Attorney's Office, and Illinois State Police investigators earlier this week handed the case off to the Kane County State's Attorney's Office, and
criminal charges against the employees could be announced in the coming days, according to State's Attorney John Barsanticriminal charges against the employees could be announced in the coming days, according to State's Attorney John Barsanti ..
menu for resident for GF statusmenu for resident for GF status 6/2009 WT 115 (new MDS 6/2009 WT 115 (new MDS
significant change) Supplement significant change) Supplement 2cal/mL and magic cups2cal/mL and magic cupsVitamin not ordered after call to Vitamin not ordered after call to pharmacy no GF guarantee. pharmacy no GF guarantee.
admitted to share room) admitted to share room) 9/2009 WT 115-1189/2009 WT 115-118 10/2009 WT 12010/2009 WT 120 11/2009 WT 118-12011/2009 WT 118-120 12/2009 weight gain started 12412/2009 weight gain started 124
7/2010 Wt 133- nurses are 7/2010 Wt 133- nurses are concerned due to acute decrease concerned due to acute decrease in PO. No GI distress reported. in PO. No GI distress reported.
Resident states: ‘I eat gluten-free Resident states: ‘I eat gluten-free foods: no bread or pasta’foods: no bread or pasta’
Strovite Plus Vitamin orderedStrovite Plus Vitamin ordered
Celiac panel orderedCeliac panel ordered
LB CCRC DNR DNH resident in Skilled NursingLB CCRC DNR DNH resident in Skilled Nursing
Reticulin IgA WNLReticulin IgA WNL Endomysial IgA WNLEndomysial IgA WNL
Gliadin IgG 15.8 HGliadin IgG 15.8 H Gliadin IgA 13.2 HGliadin IgA 13.2 H
Labs inconclusive Labs inconclusive would need an EGD would need an EGD to confirm celiac to confirm celiac disease at this time. disease at this time.
LB CCRC DNR DNH resident in Skilled NursingLB CCRC DNR DNH resident in Skilled Nursing DiagnosisDiagnosis
charting on overt intake of charting on overt intake of gluten containing food gluten containing food between meals. (husbands between meals. (husbands PB&J HS snack). PO PB&J HS snack). PO improving, seeking food improving, seeking food items. No GI distressitems. No GI distress
DO continued Gluten-Free. DO continued Gluten-Free.
Recommend to change to Recommend to change to regular diet with RD selecting regular diet with RD selecting gluten-free meals as gluten-free meals as preference 2° to behavior preference 2° to behavior and clinical presentation.and clinical presentation.
www.glutenfreedrugs.com to www.glutenfreedrugs.com to review medications as review medications as needed. needed.
GF resident admittedGF resident admitted
Review diet management with kitchenReview diet management with kitchen
Review diet order rational with nursing/caregiversReview diet order rational with nursing/caregivers
Review religious needs with activities. Review Review religious needs with activities. Review with other departments as needed: speech with other departments as needed: speech therapy screens no crackers. therapy screens no crackers.
Request baseline tTG for monitoring on Request baseline tTG for monitoring on admission with known celiac residents.admission with known celiac residents.
Management MustsManagement Musts
All therapeutic diets should be in the diet All therapeutic diets should be in the diet manuals. Road map for staff success. manuals. Road map for staff success.
Policy for purchasing foods for ‘free-of’ diet Policy for purchasing foods for ‘free-of’ diet requests. (Therapeutic diet vs preferences)requests. (Therapeutic diet vs preferences)
If allergen food requested (Resident Rights) If allergen food requested (Resident Rights) written medical approval is required.written medical approval is required.
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Resources & Web SitesResources & Web Sites Gluten-Free Diet: A Comprehensive Resource GuideGluten-Free Diet: A Comprehensive Resource Guide - Shelley Case www.glutenfreediet.ca - Shelley Case www.glutenfreediet.ca
The Celiac Diet, Series 1-7 Carol Rees Parshi MS RDThe Celiac Diet, Series 1-7 Carol Rees Parshi MS RD http://www.healthsystem.virginia.edu/internet/digestive-health/nutrition/resources.cfmhttp://www.healthsystem.virginia.edu/internet/digestive-health/nutrition/resources.cfm
Evidence Based Standards of PracticeEvidence Based Standards of Practicehttp://celiac.nih.govhttp://celiac.nih.govwww.eatright.org manual of clinical dieteticswww.eatright.org manual of clinical dieteticsAGA Institute Medical Position Statement on the DX and Mngt of Celiac Disease:AGA Institute Medical Position Statement on the DX and Mngt of Celiac Disease:
Center for Celiac ResearchCenter for Celiac Research www.celiaccenter.orgwww.celiaccenter.org
Steve Plogsted’s medication listSteve Plogsted’s medication list www.glutenfreedrugs.comwww.glutenfreedrugs.com
Local Support Groups: CSA, GIG,CDF, IndependentsLocal Support Groups: CSA, GIG,CDF, Independents [email protected]@optonline.net
Religious resourceReligious resource [email protected]@benedictinesisters.org, , http://glutenfreematzo.comhttp://glutenfreematzo.com
Allergen Food for Institutions mailorderAllergen Food for Institutions mailorder www.celinalfoods.com (also available thru Gordon Food Service) www.med-diet.com www.celinalfoods.com (also available thru Gordon Food Service) www.med-diet.com
Murray JA. Et al. Morbidity and mortality among older individuals with undiagnosed celiac disease. Gastroenterology. 2010 Sep;139(3):763-9
Collin P et al. Increasing Prevalence and high incidence of celiac disease in elderly people: A population-based study. BMC Gastroenterology 2009; 9:49
Vilppula A et al. Undetected coeliac disease in the elderly: a biopsy-proven population-based study. Digestive and Liver Diseases 2008;40:809-13.
Lurie Y et al. Celiac disease diagnosed in the elderly. Journal of Clinical Gastroenterology 2008;42:59-61
Hu WT et al. Cognitive impairment and celiac disease. Archives of Neurology 2006;63:1440-46.
Hankey GL, Holmes GK. Coeliac disease in the elderly. Gut 1994;35:65-67.
Celiac Disease and the aged: limited clinical studies