Research Participant Satisfaction - ICTR

Research Participant SatisfactionCurrent Results from the January 2020 Survey

Research Participant Satisfaction Survey

• In January 2020, the Institute of Clinical and Translational Research randomly selected participants from the Clinical Research Management Services list to receive a survey by email if they were involved in a research study at Johns Hopkins within the last 6 months

• Currently, 108 participants responded

Demographics of Survey Participants

6%

7%

14%

23%

50%

18-34 35-44 45-54 55-64 65+

52%48%

Female Male

2% 2%

18%

0%

78%

Asian American Indian or Alaskan Native

Black or African American Native Hawaiin or Pacific Islander

White

Age Race Sex

Overall Experience in Research Study

0%

5%

10%

15%

20%

25%

30%

35%

40%

45%

50%

0 (Worst) 1 2 3 4 5 6 7 8 9 10 (Best)

Would you recommend joining a research study to your family and friends?

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Yes No

Importance of Reasons for Joining Study

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Very important/Somewhat important

Not very impotant/Not important at all

Preparation for Study

Did the informed consent form prepare you for what to expect during the study?

Did the information and discussions you had before participating in the research study prepare you for your experience in the study?

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Yes No

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Yes No

Satisfaction with Research Team

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Treated me with respect Listened to me carefully Pressured me to join study Knew how to reach team Felt valued as a partner

Never

Sometimes

Usually

Always

Satisfaction with Research Process

0% 10% 20% 30% 40% 50% 60% 70% 80%

Did you ever have to wait too long for your visit to begin?

Did you ever have to wait too long between tests at your visit?

Were you ever concerned about your safety or health during the study?

Always Usually Sometimes Never

Consideration of leaving the research study

Did you ever consider leaving the study? If you ever considered leaving the study, did you feel pressure from the research team to stay?

0% 10% 20% 30% 40% 50% 60% 70% 80% 90%

No

Yes, briefly

Yes, a great deal

Yes, I left the study

0% 10% 20% 30% 40% 50% 60% 70% 80%

Never

Sometimes

Usually

Always

I did not consider leaving

Reasons for leaving a research study

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Very important/Somewhat important

Not very important/Not important at all

Reasons for staying in a research study

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Very important/Somewhat important

Not very important/Not important at all

Things that would be important for participants in a future study

0%

5%

10%

15%

20%

25%

Access tocomputer,

internet, andtelevision

Access tocomfortable bed

Payment/MorePayment

Support groups Volunteerappreciation

Flexible schedule Accessibleparking and study

location

Planneddischarge and

proper goodbyeto research team

Summary ofoverall research

results

Results ofpersonal lab tests

Other

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