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1 Craig Newschaffer A.J. Drexel Au5sm Ins5tute Drexel University Philadelphia, Pennsylvania [email protected] www.drexel.edu/Au5smIns5tute Research and prac,ce that informs innova,on: The research perspec,ve…
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Research and practice that informs innovation: The research perspective...

Jul 25, 2016

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Page 1: Research and practice that informs innovation: The research perspective...

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CraigNewschafferA.J.DrexelAu5smIns5tute

DrexelUniversityPhiladelphia,Pennsylvania

[email protected]/Au5smIns5tute

Researchandprac,cethatinformsinnova,on:Theresearchperspec,ve…

Page 2: Research and practice that informs innovation: The research perspective...

PaulSha:uckProgramAreaLeaderAnneRouxKristyAndersonJessicaRastPeterDoehringAmyEdwardsElizabethMcGeeHasserickColleMeSosnowyAngelHogan

Thanksandacknowledgementsto….

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Page 3: Research and practice that informs innovation: The research perspective...

o  Thestudyofemploymentintheau5smresearchlandscape

o  Findingsonthechallengeso  Findingsonthepoten-alsolu-onso  Priorityresearchdirec5onso  Thoughtsonhowresearchandprac5cecan

worktogethertofosterinnova5on

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Page 4: Research and practice that informs innovation: The research perspective...

o  Thestudyofemploymentintheau5smresearchlandscape

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Page 5: Research and practice that informs innovation: The research perspective...

Pubmedpublica,onsoninterven-oninchildrenwithASD*andemploymentinadultswithASD*byyear

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*Basedonsearchingfortheword“au,sm”pluseither“interven,on”(toppanel)or“employment”(bo:ompanel)–resul,ngpublica,onswerethenfurtherscreenedforrelevance.

1 2 1 1 1 4 3 2 3

9 10 8 11

7 11

17

10

16

25 21

31 36

54

74

1 2 1 1 1 3 4 5 3 5

0

10

20

30

40

50

60

70

80 19

83

1984

19

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1986

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87

1988

19

89

1990

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91

1992

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1994

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1996

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1998

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99

2000

20

01

2002

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03

2004

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05

2006

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07

2008

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09

2010

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11

2012

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13

2014

20

15

Num

ber o

f Art

icle

s

Publication Year

Intervention in children

Employment in adults

Page 6: Research and practice that informs innovation: The research perspective...

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Page 7: Research and practice that informs innovation: The research perspective...

o  Thestudyofemploymentintheau5smresearchlandscape

o  Findingsonthechallengeso  Descrip5vestudieso  Observa5onalstudies

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Page 8: Research and practice that informs innovation: The research perspective...

Propor5on of young adults(age 21-25) with disabili5eseverhavingajobforpay

Source: NLTS2

Propor5onofyoungadults(age21-25)withASDeverhavingajobforpaystra5fiedbyHSworkhistory

Source : Na,ona l Long i tud ina lTransi,onSurvey2aspresentedintheNa,onal Au,sm Indicators Report –Transi-onIntoYoungAdulthood

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Page 9: Research and practice that informs innovation: The research perspective...

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o  18studieso  Only4ratedashighquality–limita5onsnoted:work

par5cipa5ono`enpartofacompositeoutcome,correla5onbetweenpredictorsnotadequatelyaddressed,resultscommonlydonotachievesta5s5callysignificant,combina5onsoffactorsnotconsidered

o  IQistheonlyfactorconsistentlysignificantlyassociatedwithworkpar5cipa5on

Page 10: Research and practice that informs innovation: The research perspective...

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79%

13%

45%

3%0%

20%

40%

60%

80%

100%

Lowest Skill Highest Skill

Income < $25KIncome > $75K

Disconnec,on(noworkorschool)stra,fiedbyskilllevelandfamilyincomeamongyoungadults(age21-25)withau,sm

Source:Na5onalLongitudinalTransi5onSurvey2aspresentedinShaMucketal,2012.Pediatrics129(6)

Page 11: Research and practice that informs innovation: The research perspective...

o  Thestudyofemploymentintheau5smresearchlandscape

o  Findingsonthechallengeso  Findingsonthepoten-alsolu-ons

o  Observa5onalstudieso  Experimentalstudies

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Page 12: Research and practice that informs innovation: The research perspective...

Observa,onalstudiesofsupportedemployment:TheUSDOERSA-911database

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Counseling

Job placement

Job supports

College

Voc. Training

Job readiness

Transport 0.5

5

0 1 2 3 4 5 6 7 8

Adj

uste

d O

dds

Rat

io

1.0 36 29

0

20

40

60

80

100

ASD Other Disabilities

Perc

ent

36% 29%

Workpar,cipa,onintransi,onageclientsbyASDstatus

Servicepredictorsofworkpar,cipa,onintransi,onagemaleclientswithASD

BurgessandCimera.AmerJIntelDevDis2014 Sungetal.JAu5smDevDisorders.2015

Page 13: Research and practice that informs innovation: The research perspective...

RandomizedcontrolledtrialofProjectSEARCHplusASDsupportsvs.HSa:endanceplusIEPservicesinVirginia

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Workpar,cipa,onatone-yearpostenrollmentbygroup

Wehmanetal.JAutDevDisord2014

87.5

6.25 0

20

40

60

80

100

Project Search Control

Perc

ent

87.5%

6.25%

Page 14: Research and practice that informs innovation: The research perspective...

o  Thestudyofemploymentintheau5smresearchlandscape

o  Findingsonthechallengeso  Findingsonthepoten-alsolu-onso  Priorityresearchdirec5ons

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Page 15: Research and practice that informs innovation: The research perspective...

Priorityresearchdirec,ons(1)

o  Understandingthechallengeso  Expandedoutcomesbeyondworkpar5cipa5on

o  Jobreten5on/sa5sfac5ono  Impact

o  Predictorsthatinformprogrammingo  Execu5vefunc5on,comorbidsymptoms,socialcogni5on

o  Interac5onbetweenpredictors(gender,cogni5vestatus)

o MeasurewhatmaMers!o  Longitudinaldata

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Page 16: Research and practice that informs innovation: The research perspective...

Priorityresearchdirec,ons(2)

o  Uncoveringsolu-onso  Comparisongroupso  Applyanaly5cmethodsthathelpcombatconfounding

(largesamplesizeandmeasurewhatmaMers-again!)o  Understand“ac5veingredients”o  Morerandomizedstudieso  Studyinnova5on

o  Collectqualitydataonemerging/novelprograms

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Page 17: Research and practice that informs innovation: The research perspective...

o  Thestudyofemploymentintheau5smresearchlandscape

o  Findingsonthechallengeso  Findingsonthepoten-alsolu-onso  Priorityresearchdirec5onso  Thoughtsonhowresearchandprac5cecan

worktogethertofosterinnova5on

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Page 18: Research and practice that informs innovation: The research perspective...

Researchandprac,ceworkingtogethertostudyinnova,on(1)

o  Programminginnovatorsshouldcommittodatacollec5onandevalua5ono  Developacultureofcompromisebetween

prac55onersandresearcherso  Resources(!?)o  Compe55vefundingprogramsincreasingly(butslowly)selngpriori5esthatareamatchfortheseini5a5ves

o  Sponsors(employers)needtoinvesto  EvenwithaboMom-lineorienta5on,R&Dwillpayoff

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Page 19: Research and practice that informs innovation: The research perspective...

Researchandprac,ceworkingtogethertostudyinnova,on(2)

o  Researchersshouldfindwaystoincubateinnova5veprogrammingo  Inpartnershipwithprac55oners,employers,and

philanthropists

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Drexel Transition Pathways Initiative

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www.drexel.edu/AutismInstitute [email protected]

Link to National Autism Indicators Report Transition Into Young Adulthood: drexe.lu/autismindicators