Renal PatientView Birmingham 2nd Sep 2008 Neil Turner Renal PatientView.

Renal PatientView

Birmingham2nd Sep 2008

Neil Turner

Renal PatientView

www.renalpatientview.org

Renal PatientView meeting

Edinburgh 24th September 2008

•Joining

•Running

•Effects – on patients, staff, your work, your records

•What it might do in the future

www.renal.org/rixg/users.html

Renal PatientView meeting

Edinburgh 24th September 2008

•Joining – uptake, use, analysis

•Running – masterclass

•Effects – on patients, staff, your work, your records

•National and international perspectives

•What it might do in the future

www.renal.org/rixg/users.html

Renal PatientView

RIXG

Sample Proton screens

The worldNHSnet

Renal server(e.g. Proton)

Webserver

Satellite unit

Other hospitals

Aug 2008

8000 patients

33 units

Renal PatientView

Design principles

Internet: view anywhere Open source engineering Specification by patients, renal IT staff and

clinicians All would share same view Implementation to require minimal extra work

in units Simple to use for patients Opt in

Renal PatientView

Design principles

NHS number is primary identifier Results with same NHS # amalgamated EDTA code Treatment code

… SNOMED, READ etc -ready

Treatment choices

Renal PatientView

Patient evaluation

Content– 95% very or quite valuable (65/30)– Results were the most valued part – Letters were the most wanted

Security– 7% very concerned prior, 1% after– 2% of non-participants said this why– 40% shared their login

Renal PatientView

Formal evaluation

Barriers to use– 64% non-users didn’t know of RPV – Gender profile same– 45% of non-users over 66yrs cf 10.5%– Lack of computer/internet access

Renal PatientView

Staff evaluation

Renal PatientView

Impact on unit

Not leading to extra consultation time Or patient anxiety Anecdotes of info availability helping Some improved compliance? Effect on data quality IT people speak to patients more

Renal PatientView

Hidden cost?

RPV admin’s extra time 6 mins per enrolment Lost passwords More corrections

Versus savings Fewer phone calls about results Data quality Better compliance with treatment?

Renal PatientView

Concerns

• Security

• Exclusion

• Cost/ opportunity cost

Renal PatientView

What next?

• More units

• More items

• Graphics

• Availability through other portals

Renal PatientView

What next?

• Patients discuss

• Patients enter data

• Patients send feedback to unit, clinician

• Primary care integration

• Your ideas

Renal PatientView

Beach scene

Further info

[email protected]/rixg/users.html

[Caption competition]

[email protected]

www.edren.org