THE AUSTRALIAN JOURNAL ON PSYCHOSOCIAL REHABILITATION Autumn 2012 REFRAMING MENTAL HEALTH: A NEW STATE OF MIND
THE AUSTRALIAN JOURNAL ON PSYCHOSOCIAL REHABILITATION Autumn 2012
REFRAMING MENTAL HEALTH: A NEW STATE OF MIND
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PsychiatricDisabilityServicesofVictoria(VICSERV) Level2,22HorneStreet,ElsternwickVictoria3185Australia T0395197000,F0395197022 [email protected] www.vicserv.org.au
Editorial Team WendySmith,Editor KristiePate,EditorialAssistant AntheaTsismetsi,ContentAdvisor
newparadigm Editorial Advisory Group JoanClarke,AllanPinches,ChrisMcNamara,EllieFossey.
ISSN:1328-9195
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PsychiatricDisabilityServicesofVictoria(VICSERV)hasaneditorialpolicytopubliciseresearchandinformationonprojectsrelevanttopsychiatricdisabilitysupport,psychosocialrehabilitationandmentalhealthissues.Wedonoteitherformallyapproveordisapproveofthecontent,conductormethodologyoftheprojectspublishedinnewparadigm.
ContributorsWeverymuchwelcomecontributionstonewparadigmonissuesrelevanttopsychiatricdisabilitysupport,psychosocialrehabilitationandmentalhealthissues,buttheeditorretainstherighttoeditorrejectcontributions.
CONTENTS
EDITORIAL WendySmith 04
REFRAMING MENTAL HEALTH: A NEW STATE OF MIND A message from the Minister for Mental Health HonMaryWooldridgeMP 06
A new story for a new leadership MaryO’Hagan 08
Reframing community managed mental health KimKoopandWendySmith 11
Managing a merger ArthurPapakotsias 14
RESEARCH National psychosis survey: mapping use of services ProfessorVeraA.Morgan 30
YOUR SAY… Member profile PrahranMissionUnitingCare 38
Expression Session 41
Book Review 45
ABOUT US… 46
Peer support: an integral part of mental health services AnneWickingandFrancesSanders 18
Doorway: creating a home, building lives EmmaLadd 21
Recovery orientation: effective implementation through the use of coaching IanOliverandAlexCouley 24
Q&A: Equal pay for community sector workers LaurenMatthews 27
04newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
Wendy Smith, PolicyandResearchmanager
EDITORIAL
WelcometotheVICSERVReframingMentalHealth pre-conferenceeditionofnewparadigm.
REFRAMING MENTAL HEALTH: A NEW STATE OF MIND
Itisatasterforthoseofyouattendingtheconferenceandanopportunitytoengagewiththeleadingedgethinkingthatwill beonshowforthoseofyouwhocan’tmakeit.WearedelightedtohaveasourleadarticleamessagefromtheVictorianMinisterforMentalHealth,theHonMaryWooldridgeMP.Initsheoutlinesthegovernment’snewreformframeworkforthecommunitymanagedmentalhealthsector.MinisterWooldridgewillmakeanaddresstotheconferenceabout thereframingofmentalhealthtobettermeettheneedsofindividualswithcomplexneeds,theirfamiliesandcarers.
Althoughshecan’tbewithusinperson,oneofVICSERV’sfavouritethoughtleaders,MaryO’HaganfromNewZealandagreedtowriteforthisedition.Herpiececallsonustoreframetheold‘fadinglifechances’storyofmentalillness thatshewasgivenasayoungwomantoastorythatframesmadnessasaprofoundlyhumancrisisofbeingfromwhich wecanderivevalueandmeaning.Sheasks,’howdowegenerateanewstoryofmadnessthatmostpeoplesignup to?’Theanswersareinspiring.
VICSERVCEOKimKoopandIhaveco-authoredanaccountofthedevelopmentofapaperthatrecommendsaprogramofreformforthecommunitymanagedmentalhealthservicesinVictoria.TheAgenda for the futureisVICSERV’Smajorstrategicandadvocacypolicy.Itwasdevelopedwithandonbehalfofourmembers.ItwillguideourworkforthenextthreetofiveyearsandinformourresponsetotheVictorianGovernment’sPsychiatric Disability Rehabilitation and Support Services Reform Framework.
NeamiCEOArthurPapakotsiashaswrittenanaccountof therecentmergerbetweenNeamiandanothercommunitymanagedmentalhealthservice.Itprovidesgreatinsightinto theprocessthatwasinvolvedandthelessonsthatwere learnt.ArthurandMindAustraliaCEOGerryNaughtinwillbe
presentingattheconferenceontheirexperiencewithsuccessfulmergersandthebenefitsforconsumers,carersandstaff.
Oneoftheconferencesub-themesisconsumerleadershipandwillfeatureadiverserangeofspeakersoninspirationaltopics.TwoCEOsfromtheMutualSupportandSelfHelpNetwork,AnneWickingandFrancesSandersmakeacompellingcaseinthiseditionfortheroleandimportanceofpeersupportinthereformprocess.Housingandhomelessnessisanotherconferencesub-themeandEmmaLaddfromtheMentalIllnessFellowshipofVictoriaintroducesanexcitinginnovationinprovidinghousingandsupporttopeoplewithamentalillness.TheDoorwayprogramwillbeshowcasedattheconference.DouttaGallaCommunityHealthServiceisoneofanumberoforganisationsthatareusingtheCollaborativeRecoveryModel(CRM).Readhowtheyhaveincorporatedthemodelintostaffcoaching.
Theequalpaycaseforcommunityworkershasgeneratedgreatinterestforthosewhowillreceivethepayriseandforthosewhowillfundit.WearepleasedtohaveananalysisfromVCOSSonhowitcameaboutandwhatitmeansforthecommunitysector.
Oneofthemostsignificantpiecesofmentalhealthresearch inrecentyearsisthe2010Survey of high impact psychosis. Itis10yearssincethelastsurveyandwhiletherehavebeenimpressiveimprovementsinsomekeydomainsofeverydaylife;inequalityandsocialexclusionisstillafeatureofthelives ofpeoplewithapsychoticillness.ProfessorVeraMorganpresentssomeofthesurveyresultsinourresearchsection.
Asalways,Iamextremelygratefultoallthecontributors whomakeupthisedition.newparadigmprovidesarecord ofachievementandaspirationswhichisespeciallyvaluable asthesectorentersaperiodofmajorreform.
06newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
An Agenda for Change – reforming Victoria’s Psychiatric Disability Rehabilitation Support Services
TheVictorianCoalitionGovernment’sreleaseofamajorconsultationpapertodrivereformofstate-fundedPsychiatricDisabilityRehabilitationSupportServicesmarksthefirststageof anexcitingandchallengingperiodofchangedesignedtodeliverbetteroutcomesandmoretargetedandaccessibleservicesforpeoplewithseverementalillnessandtheircarersacrossVictoria.
Victoriahasadiverseandvibrantcommunity-basedmentalhealthsectorandtheVictorianCoalitionGovernmentseestheseservicesasavitalpartofthementalhealthsystem.
Morethantwodecadesfollowingthede-institutionalisation ofpeoplewithamentalillness,moreandmoreVictorians withamentalillnessarebeingsupportedtoliveinthecommunity.Thischangehasseencommunitiesdevelopagreaterunderstandingofandresponsibilityformentalhealth.
Asgovernmentswitnessthepositiveoutcomesofde-institutionalisationandcommunitybasedmentalhealthcarethereisalwaysaneedtocontinuetoimproveandevolve.
Inmanyways,de-institutionalisationwassuccessfuldueto thestrengthandfundamentalroleofVictoria’scommunitybasedmentalhealthservices,ormoreformally,thePsychiatricDisabilityRehabilitationSupportServices(PDRSS).WithoutthededicationandcommitmentofourPDRSSsector,mentalhealthcareinVictoriawouldbeinaverydifferentplace.
TheStategovernmentspendsmorethan$100million eachyeartosupportmorethan14,000Victoriansthataresupportedbyover100communitybasedmentalhealthservices.Thissupportcanalsobeintheformoflinkingpeopleintohousing,employment,educationandfamilysupport– allofwhichcontributeinabigwaytoassistingsomeone intheirpathofrecoveryandre-buildingtheirlives.
Asourrelianceonourcommunitybasedmentalhealth sectorcontinuestogrow,governmentsmustcontinuetocreateopportunitiesforinnovation,growthanddevelopment.Individuals,familiesandcarerswanthigherqualityservices thataremoreflexible,individuallytailoredandresponsive.
TheCoalitionGovernmentwantstoworkinpartnershipwithVictoria’sPDRSSsectortoreformandbuildsustainableandstrongcommunitymentalhealthservicesforthefuture.
EmbarkingonacomprehensivereformagendaacrossasectoraslargeanddiverseasthePDRSSisnotsomethingthatwedo
The Hon Mary Wooldridge MP, MinisterforMentalHealth
lightly.Weareconfidentthatthesectorisresilientandreadytoembracethechallengeandbecomestrongerasaresult.
Itisoftenwhenaparticularservicesectorhasreacheda criticalpointinitsgrowthandsuccessthatreformismostneededandthattheopportunitiesforbenefitaregreatest.ThatisnowthecasewithourPDRSSsector.
TheCoalitionGovernment’sconsultationpaperPsychiatric Disability Rehabilitation and Support Services Reform Framework seeksyourviewsonhowwecanachieveourvisioninreshapingcommunitybasedmentalhealthservices toensurebetteroutcomesforpeoplewithamentalillness.
Adhocinvestmentbygovernmentsovertimehascreatedanunsustainablesituationwithmanyagenciesunabletoprovideadequatechoiceandflexibilityforindividualsandfamilies.
Attheheartofourreformagendaistheneedtooffera moreconsistent,flexible,tailoredsetofsupportsthatmeet theneedsofindividualsandfamilies.Thismustincludeasharperfocusonbothindividualgoalsandkeyaspectsof socialandeconomicparticipation.
Inordertoachievethis,thereformprogramwillworksimultaneouslyonthreelevels.
First,wewillworktoenhancethecapacityoforganisations sotheyarestrongerandmoresustainable.ThismeansinvestinginthePDRSSworkforce,deliveringbettergovernanceandimprovingaccountabilityaroundoutcomes ofclientsaccessingservices.
Second,wewillremodelprogramssothattheyareflexibleandencourageinnovationandchoiceforpeopleaccessingservices.Wewantprogramsandservicesthatareeffective,
workinacoordinatedwaywiththefullrangeofotherhealthandsocialservicesandareresponsivetotheindividualneedsofapersonwithamentalillness.
Finally,wewillstreamlineservicessothattheyareofahigherquality,accessibleandmoreefficient.Weneedtoinvestinbuildingasystemthatisabletomeetthegrowingnumberofpeoplewhowillaccesscommunitybasedmentalhealthcare.
Thisisnotanagendathatgovernmentcanorshould pursuealone.Theoutcomesweseekwillonlybeachievedthroughclosepartnershipwithdeliveryagenciesandotherstakeholders.Iverymuchlookforwardtoworkingwithawiderangeofparticipantsinthissector.Iamparticularly keentohearfromserviceusers,theirfamiliesandcarers aswereshapethewaycommunitybasedmentalhealth carelookslikeinVictoria.
OurpartnershipwithVICSERViscriticaltothisagenda. IcongratulateVICSERVfortherecentreleaseofitsowndiscussionpaperonthechallengesforthecommunity-managedmentalhealthsector.Thatpapersharesmanyconclusionsofthegovernment’spaper.Thisbroadconsensus ondirectionsetsasoundbasefortheworkahead.
Thiskindofreformisnoteasy.TheCoalitionGovernmentiscommittedtoanopen,transparentandconsultativeapproachateachstage.Iamconfidentthattogetherwecanachieveanevenbetter,strongersystemofcommunity-mentalhealthsupportservices.
08
Theleadershipofpeoplewithlivedexperiencein theirownrecovery,inservicedeliveryandinthewidersystemisjustaside-show,whilethedarkdramaofadisempoweringandhope-sappingmentalhealthsystemplaysontofullhousesofcaptiveconsumersyearafteryear.
The old story
WhenIusedmentalhealthservicesasayoungwoman Iwasgivena‘pillsandpillows’serviceanda‘fadinglifechances’story;theideathatpeoplelikemecouldleadin anysenseofthewordwasasunimaginableasgaymarriage ordownloadingamovie.Mostofmypaidhelperswere goodpeoplewhotriedtohelpmebutfailedbecausetheyapproachedmewithadepletingblendofpessimismandpaternalism.Theyviewedmeaschronicallydisabled byachemicalimbalanceinmybrain.Noneofthemacknowledgedmystrengthsortheskillsandwisdom mylivedexperiencegaveme.Noneofthemevertoldme Icouldgoontoliveafulllife.Myonlyrolemodelswerepeoplelikemewhoseliveswereconsumedwithcrisesandhospitaladmissions.Idon’trecallanymentalhealthworkersopenlyacknowledgingtheirlivedexperience.Idon’trememberanymentalhealthworkersaskingmeifserviceshelpedme.Itdidn’toccurtomethatpeoplewithlivedexperiencecouldruntheirownservicesorsupportnetworks.
Howthingshavechangedinthelast20or30years.Wenowhaverecovery,peersupport,consumer-runorganisations,consumerparticipationpolicy,andconsumersworkinginmanagement,research,trainingandpolicy.There’sacatchthough–thesedevelopmentshaveaffectedveryfewconsumers’lives.Manydon’tknowaboutrecoveryortheirrighttoparticipation.Veryfewhaveaccesstopeersupportorhaveheardoftheconsumermovement.Manyarestilldisempowered,miredinan‘illness’identity,stuckinservices,andmarginalisedinthecommunity.
Theexplanationforthisisobvious:theleadershipofpeoplewithlivedexperienceintheirownrecovery–inservicedeliveryandinthewidersystem–isjustaside-show,whilethedarkdramaofadisempoweringandhope-sappingmentalhealthsystemplaysontofullhousesofcaptiveconsumersyearafteryear.Peoplewithlivedexperience,thementalhealthsystemandwidersocietyneedtoco-directanewplayforthemainstageinwhichpeoplewithlivedexperiencearetheprotagonistswiththemostquotedlines,ratherthanthevictimsorthevillainslurkingoff-stage.
Mary O’Hagan, Internationalconsultantinmentalhealthandrecovery
A new story for a new leadership
A new story
Atthemostfundamentallevel,thenewproductionneeds totellastoryaboutmadnessthatreleasesprofessionalsfromthe‘fadinglifechances’story,andcommunitiesfromtheirprejudiceandfear.Ithastobeastorythatframesmadness asaprofoundlyhumancrisisofbeingfromwhichwecanderivevalueandmeaning.Thereisanarchetypaltemplate forthistypeofstorywhichthemythologistJosephCampbellcalledthe hero’s journey.Hefoundthat,inthestoriesofmanycultures,theheroesdepartfromtheworldtheyknowandbecomelostinaperilousplacewheretheyfacemanyteststhatstretchtheirresourcestothelimit.Theyeventually findtheirwayoutofperilwithwoundsbutalsowithnewknowledgeandskills,thenmakethearduousreturnjourney totheknownworld,wheretheyusetheirlearningtomake anewcontribution.Theheroleadstheirownjourneybutsomeonewhohasbeensubjectedtothefadinglifechancesstoryhasnothingtolead.Aheroneedsempowermentandresourceswhereassomeonewithfadinglifechancemerelyneeds‘maintenance’supportsor‘palliative’care.It’seasytoseethatthestorywetellaboutmadnesshashugeimplications forthewaywerespondtoit.
Anewstorywouldenableustotakeonnewrolesandidentities.Itwouldgivepermissiontopeoplewithlivedexperiencetoleadtheirownrecovery–tobeactiveagents intheirlivesratherthanpassiverecipientsoftreatments,servicesandpoorprognoses.Itwouldtakementalhealthworkersoutofthedriver’sseatwheretheyhabituallysteer,controlanddothingsforpeople,intothepassengerseatwheretheyhavetolearntosimplynavigateandsupport. Attheindividuallevel,mentalhealthworkerswouldgiveprioritytoearningtrustanddevelopingcollaborativerelationshipswithconsumersratherthanignoringtheirhumanity,erecting‘professionalboundaries’,orhabituallyresortingtocoercion.
Anewstoryalsowouldhavehugeimplicationsforthedistributionofpoweratalllevels–awayfromdecisions andresourcesdominatedbyprofessionalsandmanagerstowardsthepeoplemakingthehero’sjourney,whoneed alltheempowermenttheycangettocompleteit.
Attheserviceorsystemlevelahero’sjourneystory wouldshowustheimportanceofdemocratisingour servicesandsystemssothatpeoplewithlivedexperiencewouldhaveagenuinevoiceindecisionmakingand resourceallocation.Anewstorybasedonthehero’s journeywouldencouragethementalhealthsystemto employmanymorepeoplewithlivedexperiencein allkindsofroles–aspeerworkersandasbureaucrats,managers,academicsandprofessionals.
Anewstorywouldgivethementalhealthsysteman urgentincentivetoofferarangeofservicesthatenable peopletoleadtheirownrecoveryandmakeprogress withtheirhero’sjourney.Theseincludepeersupport,recoveryeducation,supportineducation,jobsandhousing andhumaneoptionsinacrisis.
Finally,anewstorywouldmakestigmaanddiscriminationagainstmadpeopleasuntenableasitisagainstotherpeoplewhomakehero’sjourneysintotheunknown,suchassoldiers,mountaineers,firefighters,artistsandmonks.
Howdowegenerateanewstoryofmadnessthatmostpeoplesignupto?Thestoryneedstotransformeverythingwefeel,thinkanddo.Thestoryalsoneedstoinformeverylevelofthementalhealthsystemandeverycommunicationwemakewithourcommunities.Oneofthemostdirectwaystotransmitthenewstoryisthrougheducation. Peoplewithlivedexperience,theirfamilies,mentalhealthworkersandcommunitymembersallneedre-education togivethemnewawarenessandskillsattheindividuallevel andwhenworkingattheserviceorsystemlevel.
New competencies to support individuals
Allthemajorstakeholdergroupsneedanewsetofcompetenciestosupportindividualstoleadtheirownrecovery.Manyofthesecompetenciesneededbypeoplewithlivedexperience,theirfamiliesandfriends,mentalhealthworkersandcommunitymembersaresimilar.
People with lived experience
Toleadtheirownrecovery,individualswithlivedexperience needtobecomecompetentatbelievinginthemselves,managingtheirlivesandtheirrelationships,andusingtheresourcesthatareusefultothem.Forinstance,theyneedto:
•makesenseoftheirexperienceinarecoveryframework•resolveinternalisedstigma•recognisetheirownstrengthsandexpertise•acquireskillsinself-management•knowaboutserviceoptions,treatmentsandrights•knowhowtogetthemostoutofservicesand
communityresources•havepositivecommunicationandassertivenessskills•havenegotiationandcollaborationskills.
Families and friends
Familiesandfriendsalsoneedtobecomecompetent atsustaininghopeforthepersonwithmentaldistress,supportingtheirrecoveryandunderstandingthatthey maybeontheirownseparaterecoveryjourney.They needasimilarsetofcompetenciestopeoplewithlivedexperienceaswellastheabilityto:
newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
Theendofthefirstdecadeofthe21stCenturysawthedawn ofaneweraformentalhealthinAustralia.Improvingmentalhealthandassistingpeoplewithmentalillnesswashighon theagendaofgovernmentsatalllevelsandofallpersuasions.
Kim Koop, CEO and Wendy Smith, PolicyandResearchManagerVICSERV
Reframing community managed mental health
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•resolvethegrief,shameorangertheymayfeel abouttheirrelative
•supportthepersontoleadtheirownrecovery• leadtheirownrecoveryasafamilymember.
Mental health workers
Mentalhealthworkersneedtobecollaborative, flexible,respectful,andempowering.Inadditionto directlydevelopingthecompetenciesofpeoplewith livedexperiencetoleadtheirownrecoverytheyneedto:
•showrespectforthemadnessexperience•knowandapplyrecoveryprinciplesintheirwork•understandpeopleinthecontextoftheirwholelives•developpartnershipswithpeople,theirfamiliesand
otherservicesandcommunityresources•preventandprovidealternativestocompulsory
orcoercivepractices•havepositivecommunicationandassertivenessskills•havenegotiationandcollaborationskills.
Community members
Individualmembersofthecommunitywhodonot havelivedexperienceorfamilyexperienceneedto:
•understandmadnessaspartofthehumancondition•knowhowtorespondinanempoweringwayto
peopleindeepdistress•haveexposuretopositivestoriesaboutmadness•havepositivecontactwithpeoplewithlivedexperience•knowthatdiscriminationagainstpeoplewithlived
experienceisnottolerated•welcomediversityintheircommunity.
New competencies to work at a service or systemic level
Someofusinthestakeholdergroupsdoworkforthecollectivegoodattheserviceorsystemlevelinmany differentroles.Weneedalltheindividuallevelcompetenciesaswellascompetenciesrelatedtoourparticularroles;we alsoneedadditionalprofessionalcompetenciestosupport thenewstoryofmadnessandtheleadershipofpeoplewithlivedexperience.
People with lived experience and their families
Peoplewithlivedexperienceandfamiliesmayparticipate intheplanning,development,deliveryandevaluationofservicesandsystemsasvolunteersoremployeesinawidevarietyofroles.Theyneedtodevelopcompetenciestoenablethemtoamplifythevoiceandadvancetheinterests oftheirstakeholdergroup.Forinstancetheyneeddevelopmentinthefollowingareas:
Personal •understandandlearnfromtheirownor
theirfamilymember’sdistressandrecovery•acquireskillsinself-careinlifeandatwork•possessself-awarenessandskillsinreflectivepractice.
Knowledge •understandthevaluesoftheconsumermovement
and/orfamilymovement•understandrecoveryprinciplesandpractice•knowabouthelpingsystems•knowaboutcriticalperspectivesinmentalhealth.
Skills•knowhowtouseself-disclosureforthebenefitofothers•encourageotherstousetheirstrengthsandresources•enableconsensusorautonomousdecision-making• relateasequalstodiversegroupsofconsumersandfamilies.
Mental health professionals and managers
Mentalhealthworkersalsoneednewcompetenciesforanewleadership.Theyneedmanyofthesamecompetenciesaspeoplewithlivedexperienceandtheirfamilieswhoworkattheserviceorsystemlevelaswellastheabilitytopassonthesecompetenciestoserviceusersandfamilies.Inadditiontheyalsoneedto:
•knowandrespect‘livedexperience’perspectives andexpertise
•workinpartnershipandwithaccountabilitytoclients andtheirfamilies
•practisezerotoleranceofdiscriminationandabuse withinservices
• ‘comeout’asapersonwithlivedexperienceifthis ispartoftheirlifestory.
Community leaders
Communityleadersincludepoliticians,mediacommentatorsandopinionleaders.Theyarticulatecommunityviews onmentalhealthissues.Theseleadersneedto:
•understandmentalhealthissuesfromhumanrights andsocialjusticeperspectives
•practisezerotoleranceofdiscrimination•makesupportivepublicstatements• ‘comeout’asapersonwithlivedexperienceifthisis
partoftheirlifestory.
To finish...
Developingthesecompetenciesthrougheducationwillallowustoditchtheoldscriptandstagedirectionsandgiveusnewones.Ourperformanceswilldemonstratesupportivebeliefsaboutmadness,modelnewidentitiesandroles,equalisepowerdynamics,valueanddevelopaworkforcewithlivedexperience,andopenthewaytoabroaderrangeofservices.Onlythenwilltheleadershipofpeoplewithlivedexperiencecomeontothemainstage.
newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
A new story for a new leadership ByMaryO’Hagan
Thiswasreflectedinsupportivepolicyandsignificantfundingcommitments.ConsumersandcareradvocateswereenthusiasticaboutpsychiatricdisabilitybeingincludedinaproposedNationalDisabilityInsuranceScheme(NDIS). Inamongstitall,theuniquecontributionandphilosophy ofcommunitymanagedmentalhealthwasbeingrecognised. Inajointstatement,FederalMPsNicolaRoxon,Jenny MacklinandMarkButlerstated:
As important as clinical treatment is, other services and support in the community are also critical for the recovery of people with mental illness – to participate in social and community life, get and keep a job, improve relationships with family and friends and help manage the tasks of everyday life. The budget includes substantial additional funding for community-based mental health support including Personal Helpers and Mentors and essential respite support.1
InVictoriatheLiberalNationalsCoalitionreleasedamentalhealthpolicystatementwhichsaid:
Victoria has developed a good PDRSS* sector, but further investment is needed to build capacity of organisations
providing services to young people, adults and older Victorians. A stronger PDRSS sector will be effective in supporting people and their carers in their homes to manage and recover from mental illness, and in so doing, reducing the demand for acute services.2
ItwasinthispositiveenvironmentthattheVICSERVBoarddecidedthatitwastimetoreframethediscourseaboutcommunitymanagedmentalhealthinVictoria.Thestrategicintentwastopositiontheservicesystemtotakeadvantageofwhatwerehistoricopportunitiesforgrowthanddevelopmentthatwouldleadtosignificantlyimprovedoutcomesforconsumersandtheircarers.Beingproactiveensuredthatmomentumforreformcouldbemaintainedandconstructiverelationshipswithgovernmentsandotherstakeholderswould bebuiltupon.
AStrategicDirectionsSubcommitteewasestablishedtooverseethedevelopmentofaconsultationpaper.TheVICSERVAgenda for the future3(thepaper)wasreleased inFebruarythisyearandaperiodofextensiveconsultationconcludedinApril.
11newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
12Reframing community managed mental health ByKimKoopandWendySmith
InreframingtheCMMHservicesystem,thepaperlooked tothefuture.Threekeytrendswereevident:
• fundingformentalhealthservicesprovidedinthecommunityisexpectedtosignificantlyincreaseover thenextfewyearsdue,inalargepart,totheFederalGovernment’sAustralianMentalHealthInitiativeand theintroductionofanNDIS
• theshifttowardsindividualisedandtailoredserviceofferingswhichhadcommencedwiththeintroductionofHomeBasedOutreachService(HBOS)issettocontinueand befullyrealisedundertheproposedNDISmodel
•consumersandcarerswillhaveincreasingcontrolofhowtheirfundingdollarsarespentandwillbedemandingvalueformoney,choice,flexibility,qualityandaccountability. Thiswillleadtoamoremarket-basedapproachtoservicedelivery.Blockprogramgrantswilllargelybereplaced byindividualpaymentsandcompetitivepricing.New andfor-profitprovidersmayenterthemarket.
ItisinthiscontextthatthepapercallsontheVictorianStateGovernmenttodevelopanewprogramandfundingstructure.Existingprogramguidelineshavegenerallynotbeenreviewedformanyyearsand,aswillbediscussedfurther,fundingallocationshavetypicallybeenmadeonahistoricalandad hocbasisratherthanaplannedandrationalapproach.Thepaperputsforwardahigh-levelprogramframeworkdesignedtoassistthetransitiontothefullyindividualisedserviceenvironmentofthefuture.
DuringconsultationsonthepapermanyparticipantsconfirmedthatthestakeswereincrediblyhighforCMMHnowandintothefuture.Greaterchoiceandcontrolforconsumerswasconsistentwiththesector’sphilosophyandmajorfundinginvestmentsinprogramswerewelcome.However,manyhadexperiencedwhathappenedinothersectorswhennewfundingandservicedeliverymodelswereintroducedbasedontheseandsimilartrends.Agencieslostfunding,somewereforcedtoclose.Ofgreatestconcernwasthatpeopleinneedreceivedareductioninhoursofserviceormissedoutentirely.Thisledtosomeanxietyandcreatedasenseofurgencythattheextentandtimingofreformneededtobesufficienttominimisetheserisksoravoid
themalltogether.Thepaper’srecommendationforastategovernmentfundedtrialofindividualpackagingwaswellsupported.
ThescanofthepolicyandfundingenvironmentandoffuturetrendslikelytoimpactontheCMMHservicesystemconcludedthatagenciesofthefuturewouldneedtobecapableof:
•providingabroadrangeofservicestailoredtoindividual andchangingneeds
•usingbudgetsflexiblytodeliveranumberofservicetypes aspartofanintegratedsuiteand/or
•providingaspecialistornicheservicebasedonadefinedrecoveryorientatedlogic
•operatingplanning,financialmanagement,ICTandreportingsystemsthatareabletomeettherequirements ofmanydifferentfundingstreams
•developingbusinessmodelstooperateefficientlyinacompetitivemarketplace
•developingstrongpartnershipswithmultiplestakeholders•recruitingandretainingaworkforcewithappropriateskills
andknowledge.
Inordertoencourageagenciestoreframetheirbusinessandstrategicplanninginlinewithfuturedemandsthepaperputforwardaself-assessmentframeworktocapturetheseandothercapabilities.Chiefamongstthesewasthefinancialbottomline.Futurecapabilitydependsonarobustbalancesheetandmultiplerevenuestreams.
OneofthemajorfindingsfromtheresearchandanalysisundertakenforthepaperwasthatmostCMMHagencies, bothsmallandlarge,receiveonlysmallamountsofstategovernmentmentalhealthfunding.Figure1(nextpage)showsthedetails.Ofthe130agenciesaccessingPDRSSfunding, 73receivelessthan$500,000and33receivelessthan$100,000.Thepaperdrewnospecificconclusionsregardingeitherthedesirablesizeofagenciesorthesizeoftheirbudget.Thequestionwasreframedinthecontextofcapability.VICSERVhasrecommendedthattheDepartmentofHealthfundittoworkwithagenciestoincreasetheircapabilityandcapacitytothriveinthefuture.
PDRSS Allocation Tiny Very small Small Medium Large Very large Total
Orgsize <$100k $100k-$500k
$500k-$1m
$1m-$3m
$3m-$10m
>$10m
Small <$6m 5 17 8 7 0 0 37
Large >$6m 15 19 11 8 11 1 65
Aboriginal All 13 4 0 1 0 0 18
120
Figure 1: PDRSS funding distribution
Thefuturetrendsidentifiedabovepointtotheneednotonlyforagenciestobecapablebutthattheyareconfiguredaspartofarationalservicesystemdeliveringthefullrangeofservicesthatconsumersandcarersrequirewhereandwhentheyareneeded.Consumers,carersandworkershaveconsistentlyreportedthecomplexitiesofnavigatingthecurrentCMMHservicesystem.Partofthedifficultyisthathistoricfundingpatternshaveledtoanunevenspreadofserviceofferingsacrossgeographicareasandprogramtypes.ThishasbeenfurthercomplicatedbyallocationsofCommonwealthfundsoftennotbeingmadeonthebasisoflocalneedorcapacity.
Victoriaisnotaloneinhavingafragmentedsystemandsignificantattemptshavebeenmadetoaddresstheissue.However,changehasnotbeenachievedonthescale thatisrequiredfortheindividualisedandmarket-basedenvironmentofthefuture.VICSERVhasrecommended thattheDepartmentofHealthinitsroleofsystems manager,commissionalocalareaplanningproject.
CMMHagenciesthathavemadeathoroughassessment oftheircapabilityandareawareoftheirstrengthsandanyweaknesseswillbeinastrongpositiontoparticipateinlocal areaplanning.Oncethecurrentandfutureneedsofan areahavebeenestablishedthepaperoutlinesanumber ofpathwaystocreateamorerationalservicesystem thatiseasyforconsumers,carersandotherstonavigate. Thismightinvolvesharingbackofhousefunctions, co-locations,poolingresources,alliancesandpotentially,mergers.
VICSERVconsidersthatamorerationalapproachto areabasedplanningisakeybuildingblockforthefuture. Itrecognisesthediversityofagenciesandauspicesinvolvedandthecomplexityofreachingagreementaboutthe requiredplanningandauthorisingprocesses.ItwillrequireactiveengagementfromBoardsandtheDepartmentof Healthasthefundingbody.
Atthetimeofwriting,thestategovernmentisabouttoreleaseamentalhealthstrategyandPDRSSreformframework.Thesedocumentshavebeenmuchanticipated.VICSERVhasworked
collaborativelywiththeVictorianDepartmentofHealth overthelastfewyearsinmentalhealthreformandpartnershipgroupsandprojects.Itsownreformpaper hasbeenenrichedandinformedbythesecollaborations anddiscussions.Tocontinuethemomentumandmaintain thedialogue,VICSERVrecommendstheappointmentof anAmbassadorforCommunityManagedMentalHealth. ItalsorecommendsthatthetermPDRSSisnolongerused torefertotheservicesystemcollectively.Itisthenameof afundingstreamanddoesnotreflectthedistinctiveroleandpurposeofagenciesthataremanagedbyvoluntaryBoards toproviderecovery-basedservicesinpeople’shomesor closetowheretheylive.
TheprogramofreformoutlinedintheVICSERV Agenda for the future willassistwithreframingtheperceptionofCMMHfromabitplayerinthespecialistmentalhealthservicesystemtoanindustryinitsownrightthrivinginaradicallyalteredenvironment.Thekeydriverforchangeistocapitaliseontheopportunitiesthatwillarisetosignificantlyimprovethelivesofconsumersandcarers.
References
1 NationalMentalHealthReform(2011)Statement by the Hon Nicola Roxon MP, the Hon Jenny Macklin MP, the Hon Mark Butler MP
2 TheVictorianLiberalPartyandNationalsParty(2010)The Victorian Liberal Nationals Coalition Plan for Mental Health,p.3
3 http://www.vicserv.org.au/feature-menu/an-agenda-for-the-future-consultation-paper.html
* WherePDRSSisusedinthisreportitistoidentifythespecificfinancialcontribution madetocommunitymanagedmentalhealthagenciesbytheVictorianStateGovernment.PDRSSfundedprogramsinclude:MutualSupportandSelfHelp(MSSH),HomeBasedOutreachSupport(HBOS)andIntensiveHBOS,PlannedRespite,PsychosocialDayPrograms,ResidentialRehabilitation,SupportedAccommodationandPreventionandRecoveryCare(PARC)services.
Oneofthemajorfindingsfromtheresearchandanalysis wasthatmostCMMHagencies,bothsmallandlarge,receiveonlysmallamountsofstategovernmentmentalhealthfunding. Ofthe130agencies,accessingPDRSSfunding,73receive lessthan$500,000and33receivelessthan$100,000.
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FromtheperspectiveofstaffandBoardDirectorsofbothorganisations,themergerhasbeenhighlysuccessfuland wassteeredbyagoodprocess.Anecdotalfeedbackfromstaffworkingdailywithconsumersandcarershasbeenequallypositive,althoughitmaybeusefulinthenearfuturetoformallyevaluatetheconsumerandcarerexperienceregardingthischangeprocessaswellasanyeffectonthequalityofservice.
ThisarticleprovidesanarrativeaccountoftherecentmergeroftheInnerEastMentalHealthServiceAssociation(IEMHSA),agovernment-fundednot-for-profitorganisationprovidingpsycho-socialrehabilitationservicesinfourmunicipalitiesinMelbourne’sinnereasternsuburbs,withNeami,anon-governmentmentalhealthorganisationprovidingrehabilitationandrecoverysupportat26branchesacrossnorth-easternMelbourne,NewSouthWales,SouthAustralia,QueenslandandWesternAustralia.
InApril2012,wecelebratedthefirstanniversaryofthesuccessfulmergerandaprocesswhichhasprovideda valuableandpositivelearningexperience.
Ihopethisarticlefacilitatesusefuldiscussionandreflectionsabouttherelativemeritsofmergersaswellassomeoftheuniquechallenges.Itaimsalsotofosteranunderstandingofthesuccessfulprocessweundertook,whilstacknowledgingthat‘onesizedoesnotfitall’.
The beginnings
IreturnedtoMelbourneinmid-2009afterlivinginSydneyfortwoyearstooverseethedevelopmentofNeami’sHousingandAccommodationSupportInitiative(HASI).Afterearlyconsultationswithdepartmentalstaff,localclinicalleadersandsisternon-governmentorganisations,itbecameevidentthat
therewereconcernsatveryseniorlevelswithintheDepartmentofHealthregardingtheviabilityofthePsychiatricDisabilityRehabilitationandSupportServices(PDRSS)sector, inparticularforanumberofsmalleragencies.Itappearedthathistoricorganicgrowthinthesectorhadcomeunderscrutiny,withaviewemergingthat,inordertodevelopthesector,agencieshadtooperateatalargerscale,possessgreaterinfrastructureandhaveincreasedcapacitytoaddressthegrowingqualityimprovementrequirementsandcontractcomplianceresponsibilities.
OneofthemeetingsduringthistimewaswiththeCEOofInnerEastMentalHealthServicesAssociation(IEMHSA),anorganisationwithwhichNeamihadenjoyedalong-term,professionalrelationship.Oftendiscussingtrendsinthementalhealthsector,webegantorealisethesharedvaluesevidentineachorganisation.
DiscussioncontinuedwhenthenewlydevelopedIEMHSAStrategicDirectionswerereleased,expressingissuesofviabilityandthesubsequentneedforimprovedpartnershipsandtobuildcapacity.Webegantocanvassthequestion:whatwouldapartnershiporalliancebetweenNeamiandIEMHSAlooklike?
Afterdetaileddiscussion,theIEMHSABoardagreedthatfurtherexplorationofthisissueshouldoccurandtherelativemeritsofapartnershipwerepostulatedatanumberofformal
Arthur Papakotsias, CEONeamiLtd
Managing a merger
andinformalmeetings.Itwasduringoneofthesethattheword‘merger’wasused.ThenextstepwastotaketheissuetotheNeamiBoardtoconfirmwhetherDirectorswished toexplorethedesirabilityandfeasibilityofamergerwithIEMHSA.Theresultwaspositive.
The process
WithsupportfrombothBoards,amutually-agreedexternalconsultantwasappointedandaskedtofacilitateaworkshopbetweenseniormanagersandBoardDirectorsfrombothIEMHSAandNeamitoalloweachorganisationtoputtheir‘cardsonthetable’:thatis,declaretheir‘negotiables’and‘non-negotiables’,clarifyandhopefullyagreeona‘valueproposition’and,ifallpartieswerestillhappytoproceed, mapoutaprocessincludingtasksandtimelines.
Theworkshopturnedouttobeamilestoneeventin assistingthemergerprocess.Asalarger,nationalorganisation, Neamimadeitclearthatour‘non-negotiable’wasthatIEMHSAwouldbecomeapartofNeamiandthatIEMHSA, asitwasknown,wouldceasetoexist.Theotheroptionexplored–thatofmergingthetwoorganisationstogether toformanewone–wasrejectedbytheNeamiBoard.
Itbecameclearthat,withanoperatingbudgetofaround $3million,IEMHSAstruggledwithinadequateinfrastructure
andoperationalcapacitytoachievetheorganisationalimprovementsitdesired.IEMHSAalsoacknowledgedthattheEasternandInnerEasternsuburbsofMelbournewereaverycrowdedPDRSSspacethatwashighlycompetitive–growthopportunitieswerelimited.IEMHSAindicateditsdesiretobepartofanationalorganisationandhaveaccesstostafftraining,includinginanevidence-basedservicemodelofrecovery,suchastheCollaborativeRecoveryModel(CRM)whichNeamiutilises.
Inlate2010,Neamihadanoperatingbudgetofaround $30million,aswellasnationalcoverage.Thismeantithad thecapacitytodiversifyitsfundingsourceswhilstmaintaining aclearfocusonworkingwithpeoplewithaseriousmentalillness,providingitwithrelativelygoodgrowthprospects.
Themutuallyagreed‘valueproposition’wastoprovide thebestpossibleoutcomestopeoplewithamentalillnesslivingintheeasternsuburbs.AsuccessfulmergerthereforewouldaddresssomeoftheconcernsaboutcapacityandinfrastructureraisedbytheIEMHSABoardandseniormanagement.ButwhataboutthebenefitsforNeami?ReflectiononNeami’smissionof‘Improvingmentalhealth andwellbeinginlocalcommunities’andgenuinebeliefthatconsumersofIEMHSAwouldbenefitfromNeami’smodel ofservicedelivery(CRM)andintegratedapproachtoservicedelivery(seebreakout),wasenoughtosatisfythevalueproposition.
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16Managing a merger ByArthurPapakotsias
Approaches to service delivery
Neami’sintegratedapproachtoservicedeliverymeansthat,whenreceivingmultifunctionfundingforarange ofprograms,multifunctionteamsarecreatedtomanagethesedifferentservices.Forexample,grouprehabilitationandhome-basedoutreachsupportsareprovidedbythesamestaffmemberwithinateamapproach.ThereisthereforenoneedtoemployseparateGroupRehabilitationworkersandHome-BasedOutreachstaff.
Thisapproachwhichhasbeenprovenovertheyearstoprovidebetteraccessforconsumerswhooftenrequire arangeofservices.Neamihasalsoadoptedamodelofsupportwhereallgrouprehabilitationprogramsarerunincommunitysettings,notattheservicesitewhereourstaffarebased.ThishasbeenNeami’swayofassistingconsumerstoconnecttotheircommunityofchoiceforover10yearsandhassuccessfullypromotedsocialinclusion.Inshort,Neamidoesnotoperatedrop-incentres,hasnotdonesoforyearsanddoesnotintendtodosointhefuture.
IEMHSAhadexperiencedvariabilityinthisapproach; inworkingtowardsthemerger,itcouldseethebenefitsoftransitioningtothismodelandwasencouragedbyNeami’seagernesstointroduceaconsistentapproach inlinewithitsotherservices.Itshouldalsobeacknowledgedthattheadditionalgrowthcreatedby themergerwouldaddcapacityforNeamitoimprove itsabilitytotrainstaff,conductresearchandevaluateprogramsinamoreeffectivemanner,therebybetterresourcingstaffandimprovingoutcomesforconsumers.
Oncethevaluepropositionandnon-negotiableswere agreed,adetailedassessmentofeachorganisation’s serviceswascarriedouttodetermineifthemerger processshouldcontinue.Thiswasacriticalstepand involvedameticulousprocess,whichwasoverseenby aProjectLeadershipGroupconsistingofseveralseniormanagersandDirectorsfromeachorganisation,meetingregularlytoguideandassessworkundertaken.
Thefirstissuetoresolvewastoseeifthefunding bodieswerereceptivetothepossibilityofamerger. Fundersatbothstateandfederallevelsresponded positively,witheachtierofgovernmentgivingstrong signalstoproceed.
Theothertwocriticalissueswere:theneedtoundertake afinancialandlegalduediligenceexerciseaswellasanexplorationoftherespectiveculturesofeachservice. Thefinancialandlegalissueswereresolvedfairlyeasily,notwithstandingsomecapacityissuesindedicating resourcesandtimetotheseissueswhilststilloperating aserviceatfullcapacity.Similarly,theculturalfitwasassessedasexcellent,analmostperfectmatchinbothorganisations;directcarestaffvisitedeachother’srespectiveservicestoseehowservicesoperated,howstaffinteractedwitheachotherandwithconsumers.Staffwerekeentotrynewwaysofdeliveringservicesandwereverycommittedtoconsumer-directedservices.
The decisions
InFebruary2011,bothBoardsmadeindependentdecisionsthatthemergershouldproceed.ItwasagreedthatIEMHSAwouldbecomeapartofNeami,thatallIEMHSAstaffmanagingandprovidingservicesweretobeofferedongoingemploymentwithNeamiand,thatIEMHSAwouldbewoundupasalegalentity.(Justpriortothatwindingup,anIEMHSABoardDirectorwasappointedtoNeami’sBoard.)
ThreeIEMHSAheadofficestaff,includingtheIEMHSA CEO,werenotofferedongoingpositions,astheseroleswouldnotberequiredinthemergedorganisation.Suchdecisionscanbeverydifficultforallpartiesinvolved, howevereachofthethreemanagersdemonstrated integrity,honestyandahighrespectforconsumers,andit ispleasingtoseesomeofthemcontinuingtoplayvitalroles intheVictorianmentalhealthsector.
Afterthemergerdecisionsweremade,acommunicationstrategywasimplementedtoensureaclearandconsistentmessagewasprovidedtoconsumersandcarers,staff, clinical,housingandotherpartners,andfundingbodies.
CommunicationwithstaffattheIEMHSAwasmostcritical inconveyingwhatwouldchange,overwhattime,andhow.Wehadahighdegreeofclarityandplannedthetransitionprocessverythoroughly.Animportanttimingfactorwas thefundingbodies’abilitytotransferIEMHSAcontracts andfundingtoNeami.FromNeami’sperspectiveaquick transitionwasmuchbetterthanalengthyone.
The merger
On1April2011NeamiassumedmanagementofIEMHSA.TheIEMHSABoardcontinuedtomaintainoverallgovernanceresponsibilitiesuntilthetransferoffundingcontractswascomplete,howeverNeamiputinplaceamanagementstructuretoensureservicescontinuedandstaffwere
supported.Overthistime,consumers,staffandmanagementmettoclarifywhatNeamiintheeasternsuburbswouldlooklike,howtheserviceswouldoperateinadifferentmanner, toorganiseastafftrainingscheduleandtolayoutatimeline totransferleaseagreementsandassets.
AtJuly1,allIEMHSAstaffbecameNeamistaff,allcontracts,fundingandassetsweretransferredtoNeami,andstaffhadalreadybeguntraininginCRM,StaffSupervision,Coaching,MotivationalInterviewingandthelike.
ReassessingthemajorityofEasternclientstoprioritisewhichservicetheyshouldreceivewastheveryimportantnextphaseandwasaplannedandwelldocumentedprocess.Itwasidentifiedthatasignificantnumberofclients,aboveandbeyondthefundedtarget,wereregisteredwiththeservice.Manyweresocialparticipantswhohadlittleornocontact withtheagencyforextendedperiodsoftimeandanumberdidnotrespondtophonecalls,mailorotherattemptstocontactthemtoreassesstheirneedforservice.Afurthersignificantnumberdecidedtoexittheservicefollowingacomprehensiveassessment.Feedbackshowedthatmany oftheseindividualsdecidedthat,withoutadrop-incentreapproachtoservicedelivery,theydidnotwishtocontinuewiththeprogram.Itshouldbestressedthattheofferforservicedeliveryremainedavailabletoallindividuals.
The feedback
FromtheperspectiveofstaffandBoardDirectorsofbothorganisations,themergerhasbeenhighlysuccessfulandwassteeredbyagoodprocess.Anecdotalfeedbackfromstaffworkingdailywithconsumersandcarershasbeenequallypositive,althoughitmaybeusefulinthenearfuturetoformallyevaluatetheconsumerandcarerexperienceregardingthischangeprocessaswellasanyeffectonthequalityofservice.
Inpersonaldiscussions,anumberofstaff,inparticularservicemanagersinvolvedinthetransition,offeredtheviewthatthe
mergercouldhavehappenedevenfaster.Thisobservationseemedtoreflectmoreanxietyassociatedin‘notknowing’,thanactuallychangingpractices.
Wereceivedsomecomplaintsfromasmallnumberofconsumersandqueriesfromothers,whichinmostcasesweredirectlyreferredtome.Investigationshowedthat, inmostofthesecases,therehadnotbeenadequatecommunication.Amuchsmallernumberopposedthe lossofa‘drop-incentre’styleofservice.
The lessons
Itisnowmorethan12monthssincethemergertookeffect andithasbeenatremendouslysuccessfulventure.Ihave fiveimportantreflectionsabouttheprocessandresult.
Firstly,theterm‘merger’:formanypeople,thistermsignifiesthecomingtogetherofequalsandthedevelopmentofsomethingnewwhichappearsmoreequitable.Thiswas notthecasehereand,ineffect,theprocesswasmoreof anacquisitionthanamerger.
Secondly,clarityaboutwhocanmakewhatdecisions andwhoisinvolvedintheprocessiscritical.
Thirdly,consistentandagreedcommunicationbetween thetwoorganisations,bothinternalandexternal,isvital toconveyaccurateinformationandwillminimiserumours,gossipandconstantspeculation.
Fourth,thesupportoffundingbodiesiscriticalandultimatelydetermineswhethermergerscanproceed,givenallfundingcontractsneedtobetransferredfromtheexistingorganisationtothemergedentity.InNeami’scase,theDepartmentofHealthstronglysupportedthemerger.
Finally,agreeingupfrontonwhatisandwhatisnotnegotiablecansaveallpartiesalotoftime,resourcesandheartache.
ItappearedthathistoricorganicgrowthinthePDRSSsectorhadcomeunderscrutiny,withaviewemergingthat...agencieshadtooperateatalargerscale,possessgreaterinfrastructureandhaveincreasedcapacitytoaddressthegrowingqualityimprovementrequirementsandcontractcomplianceresponsibilities.
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‘The Victorian Government has stated in its strategic priorities its commitment to ensuring people with a mental illness receive help earlier, and that the treatment and support they receive effectively reduces the often devastating health, social and economic impacts of mental illness. The 2007 National Mental Health and Wellbeing Survey found that one in five Victorians aged between 16 and 85 years suffer from a mental illness at some stage in their lives. An estimated 4.6 per cent of the Victorian population – just over 250,000 people – experienced a severe mental illness or substance use disorder each year. A further 16 per cent experienced a moderate or mild mental health problem.’– (Department of Health, The Victorian Mental Illness Research Fund, p4)
InVictoria,thereismuchdiscussiononthereframingofthementalhealthsector,withtheStateGovernmentrecognisingthemagnitudeofsupportthatisneeded.Morethaneverbefore,weneedamentalhealthservicessystemthat:
• catersforadiverserangeofmentalhealthillnessesandissues•meetsadiverserangeofneed•adoptsearlyinterventionstrategies(bothearlyinlife
andearlyinepisode)forbothconsumersandcarers•providesawell-resourcedandintegratedcontinuum
ofcarethatfocusesonaclient-centeredapproach torecovery,includingthedevelopmentofself- managementandinclusivepractice.
Anne Wicking, CEO,TheCompassionateFriendsVictoriaInc.and Frances Sanders, ExecutiveDirector,ARAFEMI
Peer support: an integral part of mental health services
Intermsofearlyinterventionandprevention,peersupportprovidesunequalledaccesstosupport,knowledgeandreferralinawaythatrespectsandupholdstheknowledgeoftheindividual.Inreducingtheisolationandstigmaassociatedwiththeexperienceofmentalillness,itprovidesapowerfullysalientmodel,increasingasenseofmutuality,personalempowermentandcommunityconnection.
Withinthenewmentalhealthframework,peersupportneedstobeconsideredasavitalpathwaytorecoverythatsupportssocialinclusionandwellbeing.ThisarticleexaminesthecurrentpolicyframeworkformentalhealthrecoveryinVictoria,and therolepeersupportshouldplayinthatenvironment.
Mental health framework
In2011theVictorianDepartmentofHealthreleasedtheFramework for Recovery Orientated Practicewhichfocusedattentionontheuniquejourneyandinvolvementoftheindividualinrecoveryservices,definingitspurposeinthefollowingway:
‘In the paradigm of mental health, the concept of recovery is understood to refer to a unique personal experience, process or journey that is defined and led by each person in relation to their wellbeing. While recovery is owned by and unique to each individual, mental health services have a role in creating an environment that supports, and does not interfere with, people’s recovery efforts. To this end, the Framework for Recovery Oriented Practice explicitly identifies the principles, capabilities, practices and leadership that should underpin the work of the Victorian specialist mental health workforce.’
Withinthisframework,theLiteratureReviewidentifiedimportantcomponentsofrecovery-orientedpractices inorganisations.Theseincluded:
•apeersupportworkforce• involvementofpeoplewithlivedexperienceand
theirsignificantothersinprocessessuchasrecruitment,education,traininganddevelopment,andquality-improvementactivities
• responsivenesstopeople’sfeedback;forexample, throughusingoutcome-measures,surveys,quality audits,complaints,serviceplanningandevaluation activitiesandtrainingledbypeoplewithlivedexperience.
(VictorianDepartmentofHealth,2011,Framework forrecovery-orientedpracticep1,p4)
Addressingtheseneeds,andofparticularimportanceinanyreform,ispeersupport.Itdeliversaclientcentredapproachtorecovery,embracesself-directionandmanagement,providesarangeofchoices,encouragesfamilyinclusivepracticeandhasafocusonbuildingcapacity–individuallyandwithincommunities.
Role of peer support
PeersupportiswelldescribedbyBorkman(1976,p446)as:“Experiential knowledge is truth learned from personal experience with a phenomenon rather than truth acquired by discursive reasoning, observation, or reflection on information provided by others.”
Itisinthisdescriptionthatwefindtheessenceof‘livedexperience’andthevalueitcanaddinmentalhealthrecovery.Fortoolongthevalueoftheindividuals’experiencesinguidingtheirownrecoveryandwellbeinghasbeenundervaluedand,insomecases,discounted.Infact,wehavetoooftendeferredto‘discursive reasoning, observation or reflection on information provided by others’toinformpractice.
Peersupportserviceshavegrown,inVictoriaandelsewhere,overtheyearsbecausetheyhavefilledanimportantgapintheservicestructure.Manypeersupport(orMutualSupportandSelfHelp)groupswereformedasaresultofthelackofaccesstomentalhealthservices.Intermsofearlyinterventionandprevention,theyprovideunequalledaccesstosupport,knowledgeandreferralinawaythatrespectsandupholds theknowledgeoftheindividual.Inreducingtheisolationandstigmaassociatedwiththeexperienceofmentalillness,peersupportprovidesapowerfullysalientmodel,increasingasenseofmutuality,personalempowermentandcommunityconnection.
Theneedforpeer-basedinterventionsisbothanoutcome-basedandeconomicimperative.Studiessuggestthattheuseofpeersupportcanhelpreducetheoverallneedforanduseofmentalhealthservicesovertime(Chinman,etal,2001;Klein,Cnaan,&Whitecraft,1998;Simpson&House,2002).Theuseofapeersupportspecialistaspartoftreatmenthasbeenshowntodeliverarangeoffavourableresults(Daniels,2010),whileinformationprovidedbypeersisoftenseentobemorecrediblethanthatprovidedbymentalhealthprofessionals(Woodhouse&Vincent,2006).
Inothermodernmentalhealthsystems,avisionforthefuturehasengagedconsumersandcarersastheexpertsintheirownservicesandrecovery.TheSurgeonGeneralReport(1999)demonstratedthattherewerewelldocumentedevidencebasedtreatmentsinmentalhealth,andarangeoftreatmentsexistsformostmentaldisorders.Thereportalsopresentedfindingsthatself-helpandmutualsupport,fromwhichpeersupportserviceshaveevolved,wasthefastestgrowingservice
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Psychiatric Disability Services ofVictoria(VICSERV)
20Peer support: an integral part of mental health services ByAnneWickingandFrancesSanders
forpeopleinrecovery.Victoriahasformanyyearsled Australiainitsaspirationalprogresstowardspeerled supportsandinterventions.
Thevaluablerolethatpeersupportplaysintherecovery andwellbeingofindividualsisshownintherecentincrease infundingtopeersupportgroupsforpeopleexperiencingchronicphysicalillnessinVictoriaandtheexpansioninternationallyofpeersupportfunding.Withinthenew mentalhealthframeworkforVictoria,peersupportneedsto beconsiderednotonlyasa‘growth’servicebuta‘foundation’ tosupportpeoplewithmentalhealthillnessandissues.
Peer support advocacy
ThelaunchoftheCentreofPeerSupportandAdvocacy(MentalHealth)andreleaseoftheCharterofPeerSupportin2011wereimportantstepsinadvocacyfortheinclusionofpeersupportinserviceprovisionbygovernmentandnot-for-profitprovidersinthementalhealthsectorinVictoria.Writtenbyconsumersandcarersandnowendorsedbyarangeofmentalhealthservices,theCharterarticulatestheimportancethatconsumersandcarersplaceonthelivedexperience,throughsevenpillarsofpeersupport:
1.Opportunitiestobenefitfromcollectivewisdom2.Opportunitiestounderstandanddestigmatise
mentalhealthissues3.Arenewedsenseofself-respect,understandingand
belongingthroughbeingpartofacircleofacaringcommunity
4.Opportunitiesforpeopletore-discoverandactivatetheirownpersonal,hiddenresources
5.Opportunitiestoreceivehope,inspirationandempowermentforrecovery/healing
6.Opportunitiestogivehelptoothers,asequal-to-equal7.Auniquepathwaytohelp.
MostofVictoria’sspecialistPDRSSmentalhealthservices wereestablishedbypeoplewithlivedexperiencewhocouldnotfindthehelptheyneededelsewhere.Thesehavebeenprovidingsupportfor30yearsormoreforarangeofmentalhealthissuesthatconfrontconsumersandtheircarers.Peersupportaseitherastand-aloneorpartofacontinuumofcareisanintegralgatewayandpathwayforVictorianswhoexperiencementalhealthissuesandtheirfamiliesandcarers.
References
BorkmanT,1976,‘Experientialknowledge:Anewconceptfortheanalysisofself-helpgroups’,Social Service Review,50(3),p446.
ChinmanMJ,WeingartenR,StaynerD,andDavidsonL,2001,‘Chronicityreconsidered:Improvingperson-environmentfitthroughaconsumerrunservice’,Community Mental Health Journal,37(3)pp215-229.
DanielsA,GrantE,FilsonB,PowellI,FricksL,&GoodaleL(Eds),2010,Pillars of Peer Support: Transforming Mental Health Systems of Care Through Peer Support Services,availableat www.pillarsofpeersupport.org,p9.
DavidsonL,ChinmanM,Kloos,B,WeingartenR,StaynerD&TebesJK,1999,‘Peersupportamongindividualswithseverementalillness:Areviewoftheevidence’,Clinical Psychology: Science and Practice,6(2),pp165-187.
KlienAR,CnaanRA&WhitecraftJ,1998,‘Significanceofpeersocialsupportwithduallydiagnosedclients:Findingsfromapilotstudy’,Research on Social Work Practice,8(5),pp529-551.
Simpson,EL&HouseAO,2002,‘Involvingusersinthedeliveryandevaluationofmentalhealthservices:systematicreview’,British Medical Journal, 325,pp1-5.
The Charter of Peer Support, 2011,availableatwww.peersupportvic.org.
U.S.DepartmentofHealthandHumanServices,1999,Mental Health: A Report of the Surgeon General—Executive Summary, Rockville,MD:U.S.DepartmentofHealthand HumanServices,SubstanceAbuseandMentalHealthServicesAdministration,CenterforMentalHealthServices,NationalInstitutesofHealth,NationalInstituteofMentalHealth.
VictorianDepartmentofHealth,2011,Framework for recovery-oriented practice, StateofVictoria,p1,p4.
VictorianDepartmentofHealth,2012,The Victorian Mental Illness Research Fund, StateofVictoria,p4.
Woodhouse,A&VincentA,2006,Mental health delivery plan – development of peerspecialist roles: A literature scoping exercise, ScottishRecoveryNetworkand theScottishDevelopmentCentreforMentalHealth,Edinburgh.
ThelaunchoftheCentreofExcellenceinPeer Support(MentalHealth)andreleaseoftheCharter ofPeerSupportin2011wereimportantstepsin advocacyfortheinclusionofpeersupportinserviceprovisionbygovernmentandnot-for-profitproviders inthementalhealthsector.
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Psychiatric Disability Services ofVictoria(VICSERV)
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Psychiatric Disability Services ofVictoria(VICSERV)
One can have a place to live, but that place may not be one’s home. In a sense, one can become part of a group that is best described as the sheltered homeless if the place one lives is not a “real home” (Kendrick, 2008).
Workingalongsidepeoplewithseriousmentalillnesswho arehomelessoratriskofbecominghomeless,Doorwayis aninnovativehousingandsupportprogramdeliveredbyMentalIllnessFellowshipVictoriainpartnershipwiththeVictorianGovernment,clinicalmentalhealthservicesandtheRealEstateInstituteofVictoria(REIV).Overthenextthreeyears,Doorwaywillassist50Victorianstofindandcreatehomeswithintheprivaterentalmarketandtodevelopthesupportsandresourcestosustaintheirtenancies.
The model
Havingarealhomeprovidesaspaceforpeopletoconnectwithfriendsandfamily,findwork,improvehealthandwell-beingandbuildalife.DoorwaybuildsonthesuccessfulHousingFirstmodel,whichhasdemonstratedthatpeoplewithmentalillnesswhohavebeenhomelessareabletomaintaintenancieswhenprovidedwithhousingandpersonalisedsupport(Gulcuretal,2003;2007).Ithasalsodemonstratedthattimelyaccesstohousingreducesincidencesofhospitalisationandtheneedforacutetreatment(Sadowskietal,2009).However,themodelhasalsoattractedcriticism:Yanosetal(2007)reportedthatpeopleinterviewedfromaHousingFirstprogramwereinstablehousingbutappeared tolive‘liveswithoutanyinvolvingpursuitsorsetofmeaningful
Emma Ladd, RegionalManagerforQualityandServiceDevelopment, MentalIllnessFellowshipofVictoria
Doorway: creating a home, building lives
Doorwaysupportsparticipantstoidentifywhat‘home’isfor them–whetherthismeanshavingadog,livingwithapartner orchildren,orbeingclosetoasportsclub.Beingableto choosetheirownplacemeanspeoplefeelmoreconnected toandinvestedintheirhome,increasingthelikelihoodthat thetenancywillbesustainable.
22Doorway: creating a home, building lives ByEmmaLadd
connections’.Padgett(2007)likewisenotesthat‘othercoreelementsofpsychiatricrecoverysuchashopeforthefuture,havingajob,enjoyingthecompanyandsupportofothers, andbeinginvolvedinsociety...haveonlybeenpartiallyattained’.Tobuildonthegainsthatnonethelessaremadewhenstablehousingisattained,theDoorwayprogramisdesignedtoincreaseconfidenceandself-efficacyforparticipantsandtopromotegenuineandsustainablesocialinclusion.
AkeydifferenceundertheDoorwayprogramfromthetraditionalHousingFirstapproachliesinworkingwithpeople tonegotiatetheprivaterentalmarketaspartoffindingahome.Developingasolidtenancyhistoryenablespeople toavoidthepotentiallimitsoflivinginsocialorsupportedhousing,andbroadenstheiroptionsforcreatingreal homesnowandinthefuture.Goingthroughtheprocess ofidentifyingpreferencesandapplyingforpropertiescan alsobuildconfidenceinpeoplewhomayhavehadlittle ornochoiceorcontroloverpasthousingenvironments.Doorwaysupportsparticipantstoidentifywhat‘home’is forthem–whetherthismeanshavingadog,livingwithapartnerorchildren,orbeingclosetoasportsclub.Being abletochoosetheirownplacemeanspeoplefeelmoreconnectedtoandinvestedintheirhome,increasingthelikelihoodthatthetenancywillbesustainable.
Today’srentalmarketcanbehighlycompetitiveand manyoftheparticipantsinDoorwayhavestruggledtobeconsideredforprivaterentalhousingduetostigmaandtherequirementforprospectivetenantstodemonstrateastablerentalandemploymenthistory.Doorwayaimstodeveloppartnershipswithrealestateagenciesandlandlordstoaddresssomeoftheprivaterentalbarriersthatpeoplewithamentalillnessface.TheRealEstateInstituteofVictoria(REIV)hasbeenanenthusiasticsupporterofDoorway,detailingthebenefitsoftheprogramtoitsmembersandtolandlords. Anumberofrealestateagenciesarenowactivelyinvolved insupportingandpromotingtheprogramandhavereallyhelpedlandlordstounderstandtheprogram.Onceanagency isonboard,individualagentslearnaboutDoorwayandalso gettoknowparticipantsastheyattendinspectionsandapply forproperties.Agentsareabletoanswerquestionsthat landlordsmayhaveabouttheprogram,andevenadvocate forpeople.Inseveralinstances,thissupporthasmadethedifferenceinalandlorddecidingtooffertheirpropertyto aDoorwayparticipantoverotherapplicants.
Key components
Aswellasbuildingstrongrelationshipswithrealestate agenciesandlandlords,theDoorwayprogrammakessomeotherimportantadaptationstotheHousingFirstmodeltoassistparticipantstoincreasetheirlevelsofsocialinclusion.Theseinclude:
Increased choice
Eachpersonissupportedtoexploreandidentifyhousingpreferencesandtomatchthesewithavailableresourcesandproperties,sothataperson’s‘senseofwhatisadesirableandidealhomeisincorporatedintohowthathomeisformedandshaped’(Kendrick,2008).Oncetheysecureasuitablehome,aselectionoffurnishingsisprovidedsotheycandesigntheirhomeenvironmentandinviteinputfromfamilyandfriends.
Themovementtowardperson-centredserviceschallengesproviderstocontinuallygofurtheringivingpeoplechoice andcontrol,includingthepowertoco-designtheservices thatwillbestsupporttheirneedsandrecoverygoals. InDoorway,eachpersonisinvolvedinthe‘design’of anintegratedsupportteamfromaservicemenuthat hasbothcoreandflexibleelements,includingpeersupport,employmentconsultants,familyservicesandotherhealthprofessionals.Assessment,planningandreviewarealldesignedtobeledbytheparticipant.
Focus on social inclusion
Lonelinessandsocialisolationcontinuetobesignificantissuesforpeopleevenoncestablehousingisachieved(Franklin&Tranter,2011).Gettinginvolvedinemployment,educationandtrainingisakeymarkerofsuccessinrecoveryformanypeopleanddirectlyaddressesthesocialexclusionexperiencedbypeoplewithamentalillness.Doorwaywillcombinehousingandtenancysupportwithafocusonassistingpeopletoconnectwithfriends,neighboursandthe‘interlockingsocialorganisationsofpeoplethatmakeupcommunities’(David &Baron,2010).
Naturalsupportnetworksaretherelationshipsthatoccurineverydaylife,andusuallyinvolvefamily,friends,neighbours,co-workersandcasualacquaintances.Theserelationships tendtobereciprocalandarevitalinhelpingtodevelopasenseofbelonging.DoorwaydrawsontheCirclesofSupportapproach:asocialsupportinterventionthatprovidesguidelines
andstructuredinterventionsinthedevelopmentofa person’snaturalsupportnetwork.TheCirclesofSupportmodelhasalsoshownsomepromiseasanadjuncttoSupportedEmploymentservicesinassistingpeoplewithpsychiatricdisabilitiestogetandkeepajob(Spagnoloet al,2011;Robertsetal,2010).
Sustaining tenancy through employment
Peoplewithamentalillnesscanbecometrappedina stressfulcycleofdebtandpoverty,whichisaffectedby andaffectstheircapacitytobecomesuccessfultenants.Participantswillbeabletoaccess–whentheyareready–appropriate,tailoredsupporttogainemploymentand toimprovetheirfinancialsituation.
DoorwayparticipantswillhaveaccesstoemploymentconsultantswhousetheIndividualPlacementandSupportmodel.IPShasresultedinpaidemploymentformostparticipants,atafarhigherratethanpeoplewithaseriousmentalillnessenrolledinmainstreamvocationalsupport. AstudybyBond&Drake(2008)demonstratedthat43.6percentofIPSparticipantsworked20hoursormoreperweek,comparedto14.2percentofpeoplewhoreceivedtreatmentasusual.Gettingajobisawell-establishedmarkerofrecoveryandwillincreasepeople’sabilitytoreducetheirrentalsubsidy,ensuringthattenanciesaresustainablewhenpeoplemoveonfromDoorway.
Summary
Housingisunderstoodtobeabasichumanright,andmanyservicesforpeoplewithmentalillnessdoworktoensurethatpeoplehavesecureandstableaccommodation.InDoorway,theconceptofhomeissupportedbytheprinciplesofchoice,
socialinclusionandsustainability.Workingwithpeopletocreatebothahomeandalifemeansensuringthateachperson’sidentity,valuesandpreferencesareconsideredinshapingboththeirlivingenvironmentandtheservicesandpartnershipsthatsupporttheperson.
References
BondG&DrakeR,2008,‘Predictorsofcompetitiveemploymentamongpatients withschizophrenia’,Current Opinion in Psychiatry,21,4,pp362-369.
DavidJ&RichardB,2010,IntotheThickofThings:ConnectingConsumerstoCommunityLife–ACompendiumofCommunityInclusionInitiativesForPeoplewithPsychiatricDisabilitiesAtConsumer-RunPrograms’,TempleUniversityCollaborativeonCommunityInclusionofIndividualswithPsychiatricDisabilities.
FranklinA&TranterB,2011,Housing, loneliness and health,AHURIFinalReportNo.164,AustralianHousingandUrbanResearchInstitute,Melbourne.
GulcurL,TsemberisS,StefancicA&FischerS,2003,‘Housing,hospitalisation,andcostoutcomesforhomelessindividualswithpsychiatricdisabilitiesparticipatingincontinuum ofcareandHousingFirstprogrammes’,Journal of Community & Applied Social Psychology, 13,pp171-186.
GulcurL,TsemberisS,StefancicA&GreenwoodR,2007,‘Communityintegration ofadultswithpsychiatricdisabilitiesandhistoriesofhomelessness’,Community Mental Health Journal, 43,pp211-228.
KendrickM,2008,‘Howgenuinelysupportivepersons,agenciesandsystemscan enablepeopletohaverealhomesoftheirown’,Crucial Times,40,pp13-15.
PadgettDK,2007,‘There’snoplacelike(a)home:ontologicalsecurityamongpersonswithseriousmentalillnessintheUnitedStates’, Social Science and Medicine,64,pp1925-1936.
RobertsM,MurphyA,DolceJ,SpagnoloA,GillK,LuW&LibreraL,2010,‘Astudyoftheimpactofsocialsupportdevelopmentonjobacquisitionandretentionamongstpeoplewithpsychiatricdisabilities’,Journal of Vocational Rehabilitation, 33,3,pp203-207.
SpagnoloA,DolceJ,RobertsM,MurphyA,GillK,LibreraL,LuW,2011,‘AstudyoftheperceivedbarrierstotheimplementationofCirclesofSupport’,Psychiatric Rehabilitation Journal, 34,3,Winter,pp233-42.
SadowskiLS,KeeRA,VanderWeeleTJ&BuchananD,2009,‘Effectofahousingandcasemanagementprogramonemergencydepartmentvisitsandhospitalisationsamongchronicallyillhomelessadults:arandomisedtrial’, Journal of the American Medical Association,301, pp1771-1778.
YanosPT,FeltonBJ,TsemberisS&FryeVF,2007,‘Exploringtheroleofhousingtype,neighbourhoodcharacteristics,andlifestylefactorsinthecommunityintegrationofformerlyhomelesspersonsdiagnosedwithmentalillness’,Journal of Mental Health, 16,pp703-717.
TheRealEstateInstituteofVictoriahasbeenanenthusiasticsupporterofDoorway,detailingthebenefitsoftheprogramtoitsmembersandtolandlords...AnumberofrealestateagenciesarenowactivelyinvolvedinsupportingandpromotingDoorway,andhavebeenhugelyhelpfulinhelpinglandlordsunderstandtheprogram.
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Acoachismorethanaproblem-solver;heorsheisapartnerworkingwiththeindividualtohelpthembethebesttheycanbe.Crucially,acoachgeneratesanenvironmentinwhichthepersoncoachedisabletofeelstretchedandchallengedinasupportivemanner.
Whenwetalkaboutrecoveryinthementalhealthfieldmanyofusthinkofthejourneysdescribedbyconsumersofmentalhealthservices.Inrecoveryliterature,anumberofcommonthemesemerge(Slade,2009).Oneistalkof’someonewhobelievedinme’asacentraltenetoftherecoveryjourney. Thiscanbetranslatedassomeonewhocarriedhopefortheindividualwhentheyhadlittleornohopeforthemselves.
Overthelasttenyearsorsomanyservicesworldwide haverenamedthemselvesas‘recoveryorientated’or‘recoveryfocused’butveryfewhavesystematicallytrainedtheirstaffinthelatestevidence-basedrecoveryinterventions,muchlesscreatedsystemicchangestosupportthistraining. Theevidenceisclearfromallindustry,includinghealth andwelfare,thatverylittletrainingexpenditureisevertranslatedintopractice.
Thepotentialthusexistsfortherenamingofaserviceas‘recoveryoriented’tobeseenasmerelyanexpressionofpoliticalcorrectness.Indeeditcouldbearguedthatthiswillonlyreinforcetheargumentposedbythe‘recoveryskeptics’.
Howthencanworkersinrecoveryorientatedservicescarryhopeforpeopleiftheyhavenotbeengiventheskillsnecessarytoassistinthejourney?Oriftraininghasbeenprovided,butnotinternalisedandmadepartoftheworker’sday-to-daypractice?
Thispaperarguesthatmentalhealthservicescanlooktootherservice-basedindustriesforgoodmodelsforchangeandinnovation,andthatcoachinginparticularholdsgreatpromiseandpurpose.
Wesuggestthat,foraservicetobetrulyrecoveryorientated,theorganisationasawholemustfirstembracetheconceptandpracticesofrecovery(Slade,2009).Furthermore,thisrecoveryorientationshouldconsistofseveralparallelprocesses:theemergenceoftheserviceasanewlydefinedentity,theredefinitionbystaffmembersoftheirrole,andtheemergenceofapreferredidentityforconsumers.
Inconjunctionwiththis,thestaffmustpossesstheknowledge,valuebase,skillsetanddesiretomakerecoveryareality.Inessenceitisnotwhatyoucallyourselfbutwhatyouactuallydo,thatwilldefineyouintheeyesofothers.
Ian Oliver,ManagerPrevention&RecoveryCareProgramProjects ManagerRecovery-OrientedServicesDouttaGallaCommunityHealthand Alex Couley, BusinessCoachandVisitingFellow,AustralianInstituteofBusinessWellbeing
Recovery orientation: effective implementation through the use of coaching
Health care innovation
Manyauthorsandresearchersspeakaboutinnovationinhealthcare,howeververylittleappliesdirectlytomentalhealthserviceproviders.Muchoftheexistingresearchhasfocusedonimprovingthedeliveryofservicestoclientsinlargehealthcaresettings.NotablyPorterandTeisberg(2006)arguestronglythatthewaytoinnovateinhealthcareisthroughtherealignmentofahealthcareprovider’sservicedeliverywiththevalueitprovidestopatients.Thisseemsanattractiveandrationalargumentatfirstglance.
However,oneofthechallengesthehealthcaresectorbroadly, andmentalhealthsectorspecifically,hasfacedisinseeingitself asdifferentwhen,infact,manyofthesameorganisationaldynamicsexistwithinotherservice-basedindustries.Ifweacceptthatmentalhealthserviceprovidersrespondtothesameorganisationaldynamicsasotherservicetypes,thentherecouldbemuchtolearnfromthosenon-mentalhealthorganisationsthathaveflourished,whilesciencessuchasPositiveOrganisationalScholarship(Caza&Cameron,2008)teachmuchaboutwhatworkswellingeneratinginnovation.Thesametechniquesthathavehelpedtodeveloptheseindustrieswouldbenefitthehealthcaresector.
Wewillconcentrateinthisarticleupononeofthesecoretechniques:coaching.
Coaching: how to define?
Therearemanyandvarieddescriptionsofcoaching.Tocompoundthedifficultyinfindingacatch-alldefinition,therearealsonumerous‘models’ofcoaching(Passmore,2007).
Thatsaid,therearesomeagreedpracticesthatappearwithinalldefinitionsandmodels.Itisreasonablethereforetostatethat,throughaprocessofastructureddialogue,coachingofferstheopportunityforanindividualandtheirorganisation topursuetheirunrealisedpotential.Furthermore,through the art of effective questioning and reflection, coaches help individuals articulate their current situation clearly, leading to a greater vision of what they would like their future to look like. Acoachismorethanaproblem-solver;heorsheisapartnerworkingwiththeindividualtohelpthembethebesttheycanbe.Crucially,acoachgeneratesanenvironmentinwhichthepersoncoachedisabletofeelstretchedandchallengedinasupportivemanner.
Asyoulookatcoachingmoreclosely,theparallelswiththeessenceofrecoveryorientationbecomeapparent.TheUnitedKingdom’sInstituteofPsychiatry(2011)talksaboutcoachingas:assumingthepersonisorwillbecompetenttomanagetheirlife;learningtolivewithmentalillness;strengtheningtheperson’sexistingrelationships;andbothparticipantsplayinganactivepartinordertomakethiswork.
The role of coaching
Theevidenceisoverwhelminginwiderindustryforcoachingasthe‘goldstandard’fordevelopingstaffandenhancingtheuptakeofnewskillsets.Researchhasdemonstratedbenefitinallareasoforganisationalandindividualperformance,andledtoannualspendingoncoachingintheUnitedStatesofnowmorethan$1billion.Outsidethehealthcaresector,coachingisrapidlybeingacceptedinternationallyasacoremethodologyandsignificantgrowthisevidentinAustralia(Grant&Zackon,2004).Indeed,Bianco-Mathisetal(2008)makethepointthat‘organisations(which)arehopingtoraisethebarandcreatehigh-performanceculturesaremakingcoachingpartofthewaytheydobusiness’.
Thereisalsomountingevidencethatthecoreelements ofarecoveryorientationcanbebestachievedthroughacoachingdialogue.MikeSlade(2009)saysthat‘staffcansupportrecoveryby,whereverpossible,usingcoachingskills’andnotesthatcoachingisacoretenetofinnovativeworkbeingdoneintheUnitedKingdom.Indiscussingthepromotionofrecoveryincommunitymentalhealthservices,theUK’sInstituteofPsychiatry(2011)identifiescoachingas ‘aspecificinterpersonalstylewhichsupportsrecovery’.Ithasdevelopeditsowncoachingframeworkwithfivecorestages:Reflection,Exploration,AgreedOutcomes,ActionandHoldingtoAccount.
Despiteallthis,thereislittleevidencetosuggestthatmentalhealthserviceprovidersaresystematicallyintegratingcoachingintotheirpractices,eitherinAustraliaorelsewhere.
The Doutta Galla experience
DouttaGallaCommunityHealth(DGCH)isanexample ofaCMMHserviceusingcoachingmethodologytoaddress itsaimofbecomingtrulyrecoveryorientated.
DGCHprovidesarangeofprimaryhealthandcommunityservicesinMelbournetotheCitiesofMelbourneand MooneeValley.Servicesincludealliedhealth,healthpromotion,medical,dentalandmentalhealthprograms. Theconfigurationofitsmentalhealthprogramsisrepresentativeofthenon-government,not-for-profitsector inVictoria.Theseinclude:
•Home-basedOutreach•PreventionandRecoveryCareProgram(PARC)in
partnershipwithMelbourneHealth•SocialInclusionPrograms(formerlycalledDayPrograms)•AdultResidentialRehabilitation•YouthResidentialRehabilitation•CareCoordination&IntensiveHomeBasedSupportInitiative.
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Recovery orientation: effective implementation through the use of coaching ByIanOliverandAlexCouley
DGCHhasprovidedmentalhealthprogramssinceitsmergerwithMacaulayCommunitySupportAssociationin2000.LikemostPDRSSservices,thecurrentconfigurationofprogramshasevolvedextensivelysinceMacaulaywasoriginallyestablishedasasmalloutreachprogramwiththreestaffin1987.Theevolutioncanbechartedthroughanamalgam ofdriversandimperatives,includinginnovation,necessity,expansion,mergers,innovationgrants,opportunismandgrowthandinkeepingwithgovernmentpolicyinitiativesatbothstateandfederallevels.
Introduction of a CRM model
In2010DGCHintroducedtheCollaborativeRecoveryModel(CRM),astrengths-basedcoachingmodel,asitsoverarchingservicedeliverymodelacrossallmentalhealthprograms. TheCRMhasbeenwelldocumentedelsewhereandthereforewillnotbeexploredatlengthinthisarticle.Butat itsheartliesacoachingrelationshipwhichaimstogenerate anenvironmentwherethepersonbeingcoachedarticulatessolutionstotheirdesiredgoals(Oadesetal,2005).Thisis nottherapybutaprocessthatbuildsuponstrengthsand valuestogenerateameaningfullife.Inturnthisleadstothere-establishmentofhopefulnessandapreferredidentity.
ThereasonsbehindtheintroductionofCRMweremultiple,includingtheneedto:
• formallyadoptarecoveryorientation•pursueevidence-basedpractice•ensurequalityandconsistency•continuallyimproveconsumerinvolvement•providestaffwiththetraining,support,supervisionandtools
toperformtheirroles•embracecontemporaryknowledgeanddirectionsinmental
health(ledbybothgovernmentandconsumer).
CentraltoitsintroductionatDGCHwasthedecisiontoevolvetheroleoftheworkerfromsupportgivertorecoverycoach.Itwasthereforeamajorinitiativefortheserviceinvolvingextensiveconsultationandplanningwithstaffandconsumers,thetrainingofallmentalhealthstaff,andtheintroductionofformalcoachingtosupportandembedCRMtrainingintoeverydaypractice.Theapplicationofskillslearnt attrainingintotheworkplaceisreferredtoas‘transferoftraining’(Uppaletal,2008);amongstitsmanyotherbenefits,coachinghasbeenproventosignificantlyimprovetransfer oftraining(Deaneetal,2006).
DGCHworkersnowdelivertheCRMdirectlytoconsumersoftheservice.Theyare,inturn,coachedbyateamofinternalcoacheswhoaresupportedbyanexternalcoach.Plansareinplacetodevelopasmallteamofleadcoacheswhowilltakeoverthisexternalrole.
Results
Recentlytheorganisationconductedamulti-faceted reviewoftheimpactoftheCRMandcoachingprograms. Thisincludedtheuseofforums,anonlinesurvey,and one-on-oneinterviews.Anumberofthemesemerged:
1.Peoplespokeofthegrowththatcoachinghadbrought forthemasworkersandthosetheywerecoaching. Theparallelprocessinaction
2.Theyalsospokeofthe‘aha’momentswithincoaching;pointswheretheirpracticedevelopmentmovedthroughinternalrealisations
3.Mostpeopledescribeddevelopingadeeperunderstandingofthemodel(CRM).Thisisakeydriverinensuringfidelitytoanevidence-basedmodel
4.Significantlyenjoyingthecoachingitselfappearedtosupporttheprocessofengagingwithoverallframework.Havingfunhasbeenemphasisedasfundamentaltoeffectiveengagement.
Comments
Therearedemonstrablyclearparallelsbetweentheaimsoftherecoverymovementandthatofacoachingintervention.Leadersintherecoverymovementhaveidentifiedcoachingasamethodofenhancingrelationshipsandcommunicationinrecovery-orientedservices.Itissurprisingthenthatthementalhealthsectorhasnotwidelyadoptedcoachingasanorganisationaldevelopmentstrategy,despitethesuccessfulimplementationofcoachingthroughoutthebroaderbusinesssector.Wesuggestthenaturalalignmentbetweencoachingandrecoveryprovidesonemethodologyforassistingservicesinbecomingtrulyrecoveryoriented.
References
Bianco-MathisV,RomanC&Nabors,L,2008,Organizational Coaching: Building relationships and programs that drive results, AmericanSocietyforTraining&Development,UnitedStatesofAmerica.
BonfieldH,2003,‘Executivecoachingisnotjustforbigcompanies’,British Journal of Administrative Management, Summer,pp18-19.
CazaA&CameronK,2008,Handbook of Macro-Organizational Behaviour, Sage,NewYork.
DeaneF,CroweT,Kavanagh,D,&OadesL,2006,‘Challengesinimplementingevidence- basedpracticeintomentalhealthservices’,Australian Health Review, 30,pp305-309.
GrantAM&ZackonR,2004,‘Executive,workplaceandlifecoaching:findingsfromalarge-scalesurveyofinternationalcoachfederationmembers’,International Journal of Evidence Based Coaching and Mentoring,2,2,Autumn,pp1-15.
InstituteofPsychiatry,2011,Refocus: Promoting recovery in community mental health services,Rethink.org,UnitedKingdom.
OadesLG,DeaneFP,CroweTP,LambertWG,LloydC&KavanaghD,2005, ‘Collaborative recovery: An integrative model for working with individuals who experience chronic or recurring mental illness’, Australasian Psychiatry, 13(3),pp279–284.
Passmore J (ed), 2007, Excellence in coaching: the industry guide, KoganPage, LondonandPhiladelphia.
PorterM&TiesbergO,2006,Redefining health care: creating value based competition on results, HarvardBusinessSchoolPress,Boston.
Uppal,S,Oades,LG,CroweTP&DeaneFP,2010,‘BarrierstotransferofcollaborativerecoverytrainingintoAustralianmentalhealthservices:implicationsforthedevelopment ofevidence-basedservices’,Journal of Evaluation in Clinical Practice, 16,3,pp451–455.
SladeM,2009,Personal recovery and mental illness: a guide for mental health professionals, CambridgeUniversityPress,Cambridge.
SladeM,2009,100 ways to support recovery, a guide for mental health professionals, Rethink.org,UnitedKingdom.
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Psychiatric Disability Services ofVictoria(VICSERV)
This year saw a landmark ruling on equal pay for the community sector. How did this case begin?
ThepredominantlyfemaleSocialandCommunityServices(SACS)workforceendured,overmanydecades,anincreasingwagesgapwiththoseworkingincomparableindustries.Thisgap,anditslinktothegenderundervaluationofSACSwork,wasthecatalystforAustralianServicesUnion’s(ASU)equalpaycase.ThefirstcasewasruninQueenslandand,afteritssuccess,thedecisionwasmadetorunanationalcase,callingforsimilarsalaryincreasesaswereachievedinQueensland.
ThecasebeganinMarch2011whentheASU,alongwithotherunions,lodgedanapplicationforanEqualRemunerationOrderundertheFair Work Act 2009.Thiscasewasthefirst ofitskindundertheAct.
What were Fair Work Australia’s initial findings?
Afternearlyayearofhearings,sitevisitsandsubmissions, onMay16,2011,FairWorkAustraliahandeddownitspreliminarydecisionthatcommunitysectorworkersdonotreceiveequalremunerationforworkofequalorcomparablevalue.Theyalsoruledthatgenderwasanimportantcontributortothewagegap.
FairWorkAustraliathencalledonallinterestedpartiestomakefurthersubmissionsandprovideadditionalevidence totheextentthatgendercontributedtothewagesgapin
thesector.Fromthere,therewereanother10monthsofadditionalhearingsandevidence,includingajointsubmissionfromtheASUandFederalGovernmentthatagreedona wayforward,takingustoFebruary2012whenthefulldecisionwashandeddownbyFairWorkAustralia.
What was the decision and what does it mean?
It’snotoftenwegettobepartofmakinghistory,butwe didwiththedecisionwhichacknowledgedthehistoricalundervaluationoftheworkofthecommunitysector’spredominantlyfemaleworkforce.Thiswasprobablythemostexcitingpartofthedecision(apartfromthefinancialbenefitsfortensofthousandsofworkers,ofcourse)–therecognitionoftherolethatgenderplayedininhibitingwagesgrowthin thesector,whereabout80percentofworkersarewomen.
Thedecisionhas,ofcourse,widespreadandlong-termimplicationsforoursector.AsourCEOCathSmithsaid tothemediaontheday:‘This decision is a turning point for the future of the community sector. From today, when people are thinking about their careers, the community sector will now be seen as a rewarding and fairly paid career option for all Australians.’
What did FWA order, and is it what was expected/hoped?
Salaryratesinthesector,forthosewhoarepaidundertheSocialCommunityHomeCareandDisabilitiesServicesAward
Lauren Matthews, SectorSustainabilityPolicyAnalyst,VictorianCouncilofSocialService
Q&A: Equal pay for community sector workers
Wesaythatthecommunitysectordeliversservices ontheGovernment’sbehalfsoithasanobligation toensurethatwearefullyfundedtoprovidethese servicesandsupportstothemostvulnerableVictorians.
2010(SCHCDS),willincreasefrombetween19-41percent(Level2:19percent,Level3:22percent,Level4:28percent,Level5:33percent,Level6:36percent,Level7:38percent,Level8:41percent,).Ontopofthiswillbe4percentloading(paidoverthephase-inperiod),alongwithannualminimumwageincreases.
ThesearetheincreasesthattheAustralianServicesUnion(ASU)andthesectorhadcampaignedforandwhatweexpected(hoped!)tobedelivered,astheyreflectthosepreviouslygrantedtoQueenslandsectorworkers.The eightyearphase-inperiod,withnineequalinstallments, from1December2012islongerthanwehadhoped(theASUandtheCommonwealthGovernment’ssubmissionsrecommendedasixyearphase-in)howeverthistiming willhopefullyensurethatthereisnobarrierforfunders, bothgovernmentandnon-government,tofullyfundthe newwagerates.
So is everything done and dusted now – the pay rises will come automatically now?
No,actuallynowthehardworkhasbegunforthesector. InVictoria,wehavebegunworkingonmodelingwithgovernmentandnon-governmentsourcesoffunding– theDepartmentofHumanServices,employerorganisations, peakbodiesandourmembers–makingsurethesectorispreparedforthetransitiontotheSocial, Community, Home Care and Disability Services (SCHADS) Industry Award 2010 (commonlyknownastheModernAward)on1July2012 andthenfortheimplementationofthefairpaydecision on1December2012.
WearealsostillwaitingonthefinalEqualRemunerationOrder(ERO)tobehandeddownbyFairWorkAustraliaregardingtherelationshipbetweenthetransitiontotheModernAwardandthemethodologybeingusedtocalculatethesalaryincreasesthroughouttheimplementationperiod.
Haven’t both federal and state governments already committed to doing that?
TheCommonwealthhasbut,atthetimeofpublication,Victoriahasonlycommittedtofunding$200millionover 4years,pendingthefinalisationofthecase.WewillbeworkingcloselywiththeVictorianGovernmenttoensure thattheoutcomesofthecasearefullyfunded.
TheStateGovernment(andothersourcesoffundingto thesector)mayarguethattheydon’thaveenoughmoney tofundtheincreases.WesaythatthecommunitysectordeliversservicesontheGovernment’sbehalfsoithasanobligationtoensurethatwearefullyfundedtoprovide theseservicesandsupportstothemostvulnerableVictorians.Wearealsopointingoutthatallourresearch,includingthat oftheProductivityCommissionontheproductivityofthenot-for-profitsectorandresearchcommissionedbyVCOSSfromAllen’sConsultingGroup,hasshownthatnomore
efficienciescanbegainedfromthecommunitysector withoutcuttingintoservicedelivery.
VCOSS’ media release said, ‘The COSS network will be analysing the decision on implementation to ensure it won’t undermine service effectiveness over time.’ What does that mean?
Likewithanydecisiontobeimplementedoveralongperiodoftime,therewillbechangesintheenvironmentandshiftingcostsandrelativitiestotakeintoconsideration.Asasector weneedtoensurethatweanalyseourworkpracticesandorganisationalviabilitytoensurethatanysalaryincreases haveapositiveimpactonourworkersandourclients.
Alotofotherissueshavebeenonholdtoo,waitingforthedecision.Nowwecanopenthedoorondiscussionsaroundfundingforthesector,ratesforpriceindexationofservices,andbuildingastrongerworkforce,particularlylookingattherealchallengeswefaceontraining,recruitmentandretention.
What was it like getting such an outcome after such a long fought campaign?
Itwasamazingtobepartofsuchanhistoricwin.Thiscouldn’thavehappenedwithoutthechangestotheFair Work Act enactedbytheRuddandGillardGovernments,thesupport oftheCommonwealthindevelopingajointsubmissionwith theASU,theinvolvementofpeakbodiesandthesectorand,aboveall,theleadershipanddeterminationdemonstrated bytheASUandtheirmembers.Wewereupagainstsomeprettystrongopponents,includingbroaderindustryandemployergroups,andthere’sstillsomeriskthatthe decisioncouldbeappealed.
WecongratulatetheASUanditsmembersforrunningasuccessfulcaseoverthelasttwoyears.VCOSSalsowants tothankitsmembersfortheirlong-runningsupport,inparticularthosethatprovidedadditionalfundingforustocampaignonpayequity.
What’s the next step in advancing the sector’s sustainability?
Wearefacingaperiodofbigchange.Inthenext18monthswewilltransitiontotheModernAward,renegotiateratesofpriceindexationforVictorianGovernmentfundedservices,seetheintroductionofaNationalCharitiesRegulator,receivetheGovernment’sresponsetotheProtecting Victoria’s Vulnerable Children Inquiry, undergoVictorianandnationalnot-for-profitlawreform,andseethecommencementoftheNationalDisabilityInsuranceScheme(amongstanarrayofothersub-sectorreforms,CommonwealthofAustralianGovernmentinitiatives,etc).
VCOSSwillbeworkingwithpeakbodiesandthesector,commissioningresearch,developmentsectorviabilitymanagementtoolsanddeliveringtraining,supportandresourcestoensurethatthesectoriskeptinformedandrepresentedoneachandalloftheseissuesandinitiatives.
RESEARCH
28Q&A: Equal pay for community sector workers ByLaurenMatthews
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Surveyparticipantswereaskedtoidentifythemostimportantchallengesfortheminthecomingyear.Thetopthreechallengeswerenothealth-related.Theywerefinancialproblems(43percent),lonelinessandsocialisolation(37percent)andlackofemployment(35percent).
Section 1. Overview and findings
The2010SurveyofHighImpactPsychosis(SHIP)isAustralia’ssecondnationalpsychosissurvey.Thesurveycovered1.5millionpeopleaged18-64years,approximately10percentper centofAustraliansinthisagegroup.Atwo-phasedesign wasused.InPhase1,screeningforpsychosistookplaceinpublicspecialisedmentalhealthservices(publicinpatient andambulatory/communitymentalhealthservices)andnon-governmentorganisationssupportingpeoplewithmentalillness.InPhase2,1,825peoplewhowerescreen-positiveforpsychosiswererandomlyselected,stratifiedbyagegroup(18-34years;35-64years)andinterviewed.Thedatacollectionincludedsymptomatology,substanceuse,functioning,serviceutilisation,medicationuse,education,employmentandhousing,aswellasacomprehensiveassessmentofphysicalhealthincludingaphysicalexaminationandthecollectionoffastingbloodsamples.
Theone-monthtreatedprevalenceofpsychosiswas3.5casesper1,000population.Themajority(63percentpercent)ofparticipantsmettheWorldHealthOrganisation’sInternationalClassificationofDiseases(ICD-10)criteriaforschizophrenia orschizoaffectivedisorderand17.5percentmetcriteriaforbipolaraffectivedisorder.Symptomsreportedovera12monthperiodincluded:delusions(61percent),hallucinations(56percent),elevatedorirritablemood(23.5percent),anxiety(60percent)anddepression(54.5percent).Themajority(92percent)wereusingpsychotropicmedication.Polypharmacywascommon:63percentwereonmore thanoneclassofmedicationand27percentofthoseonantipsychoticswereusingtwoormore.
Halfofthesamplemetcriteriaformetabolicsyndrome,acombinationofmedicaldisordersthatincreasestheriskofdevelopingcardiovasculardiseaseanddiabetes.Ratesforotherphysicalhealthconditionsweremarkedlyhigherin
Professor Vera A. Morgan, Chair:SurveyofHighImpactPsychosisTechnicalAdvisoryGroupandHead: NeuropsychiatricEpidemiologyResearchUnit,SchoolofPsychiatryandClinicalNeurosciences,UniversityofWesternAustralia
National psychosis survey: mapping use of services
peoplewithpsychosiscomparedtothegeneralpopulation.Theproportioncurrentlysmokingwas66percent.Halfhad alifetimehistoryofalcoholabuse/dependenceand54percenthadalifetimehistoryofillicitdrugabuse/dependence.Two-thirdswereimpairedintheircapacitytosocialiseover thepreviousyearandone-thirdhadimpairedabilitytocare forthemselvesoverthepreviousfourweeks.Educationalachievementwaslowandonly33percenthadanypaidemploymentinthepastyear.Nonetheless,regardlessof thedifficultiesfacingthem,72percentofpeoplewithpsychosiswereveryorsomewhatsatisfiedwiththeirlevel ofindependenceand77percentbelievedtheircircumstanceswouldimproveovertheforthcomingyear.
Thisisthefirstnationalepidemiologicalsurveytomeasure theprevalenceofpsychosisinnon-governmentorganisationsfundedtosupportpeoplewithamentalillnessandtolookatthecharacteristicsofpeoplewithseverementalillnessusingthissector.Wepresentthedatacollectedfortwogroupsofusersofnon-governmentservices:
1.Peoplesolelyusingnon-governmentorganisationsin thecensusmonth(March2010)andnotreceivingpublicspecialisedmentalhealthservicesoverthesameperiod.ThissmallergroupisdescribedinSection2below.
2.Peopleusingnon-governmentorganisationsina12-monthperiodeithersolelyorinconjunctionwithpublicspecialisedmentalhealthservices.ThislargergroupisdescribedinSection3.
Therestofthisreportsummarisesmentalhealth serviceprovisioninthenon-governmentsectorandisextractedfromthemainreportofthesurvey(Morgan etal,2011).Thefullreportmaybedownloadedat: www.health.gov.au/mentalhealth.
Section 2. People solely in contact with non-government mental health services in the census month
One-month prevalence estimate
Theestimatednationalone-monthprevalenceofICD-10psychoticdisordersinpeoplesolelyreceivingmentalhealthservicesthroughnon-governmentorganisationswas0.4casesper1,000populationaged18-64years,atotalnumberof6,204persons.Theratewashigherformalesthanfemales, at0.6and0.3casesper1,000populationrespectively.
Key characteristics
Oneinten(11percent)participantswasonlyincontactwithnon-governmentorganisationsfundedtosupportpeoplewithamentalillnessinthecensusmonthandnotincontactwithpublicspecialisedmentalhealthservicesoverthesameperiod.
Theseparticipantsdifferedfromthoseusingpublicspecialisedmentalhealthservicesonafewkeyvariables.Theyweremorelikelytobeolder,withthreequarters(74percent)aged35-64years(comparedto60percent).Theywerelesslikelytobeemployed,eithercurrentlyorinthepastyear.
Althoughtheywerelesslikelytohaveadiagnosisofschizophreniaorschizoaffectivedisorder,peoplereceivingmentalhealthservicessolelythroughnon-governmentorganisationswereamoredisabledgroupwithmarkedlypoorerfunctioning.
Despiteonlyusingnon-governmentmentalhealthservicesinthecensusmonth,manyhadusedotherhealthserviceseitherinthe11monthspriortocensusorbetweencensusandinterview.However,theyweremuchlesslikelytohaveusedpublichealthservicesformentalhealthtreatmentandalittlemorelikelytohaveusedpublichealthservicesforphysicalhealthreasonsoverthepastyear(Table1).Theywerealso alittlemorelikelytousegeneralpractitionerservices.
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Proportion (%)
Using non-government organisations only in census month
Using public specialised mental health services in census month
Using public specialised mental health services in 11 months prior to census
Males 60.5 60.0 57.7
Olderagegroup(35-64years) 69.3 57.4 52.6
CompletedYear12education 30.7 31.2 32.5
Formalstudiesinpast12months 27.8 19.0 22.5
Inpaidemployment(pastyear) 24.9 30.5 43.0
Inpaidemployment(past7days) 16.6 19.2 30.6
ICD-10schizophreniaor schizoaffectivedisorder
46.3 67.2 58.9
Service use
Anyinpatientadmission(pastyear) •Mentalhealthrelated •Physicalhealthrelated
32.7 19.5 17.1
45.6 37.6 12.6
43.5 34.5 13.7
Involuntaryadmission(pastyear) 7.8 22.7 21.0
Anyemergencydepartment attendance(pastyear) •Mentalhealthrelated •Physicalhealthrelated
31.7 13.7 22.0
43.0 29.0 21.6
39.9 25.2 20.0
Anyoutpatientcontact(pastyear) •Mentalhealthrelated •Physicalhealthrelated
65.9 54.1 29.3
92.8 90.5 22.4
77.3 71.9 22.7
Mentalhealthrehabilitation program(pastyear)
74.1 36.8 16.6
Casemanager(pastyear) 67.8 78.1 43.3
Consultationwithgeneral practitioner(pastyear)
91.2 87.8 88.0
Chroniccourseofillness 32.2 33.0 22.0
Globalindependentfunctioning:moderately,significantly,extremely ortotallydisabled(pastfourweeks)
60.0 52.3 39.4
Proportion (%)
Public specialised mental health services
Non-government organisations
Attendedcommunityrehabilitationprogram* 14.5 22.4
For those accessing a community rehabilitation program
Typeofprogram •Group •Individual •Combinationofboth •Notknown Total
13.6 72.0 13.3 1.1 100.0
46.5 29.1 24.4 - 100.0
Usefulnessofprogram •Veryhelpful •Somewhathelpful
54.9 32.6
62.6 27.4
Table 1. Key characteristics of people solely in contact with non-government organisations in the census month compared to those in contact with public specialised mental health services
Table 2. Community rehabilitation programs in past year by sector
* Some participants used rehabilitation programs in both sectors
Section 3. People using non-government mental health services in the past year
Manyparticipantswereincontactwithbothnon- governmentandthepublicspecialisedmentalhealthservices,withoneinthree(30percent)participantsoverallusingmentalhealthservicesprovidedbythenon-governmentsectorinthepastyear.Thissectiondescribesthetypesofprogramsandkindofsupportthattheseparticipantswerereceivingfromtheseagencies.
Rehabilitation programs
Justoveronethird(36.5percent)ofpeoplehadparticipatedincommunityrehabilitationordayprogramswithinpublic
mentalhealthservicesand/ornon-governmentorganisationsinthepastyear(Table2).Moreparticipantswereinvolvedinrehabilitationprogramsinthenongovernmentsector(22percent)thaninthepublicmentalhealthsector(14.5percent).
Themajorityofparticipantsusingtheseprogramsfoundtheprogramuseful,with87.5percentofthoseusingpublicspecialisedmentalhealthservicesand90.0percentusingnongovernmentcommunityrehabilitationprogramsreportingthattheyweresomewhatorverysatisfied.
Thepercentagewithanindividualrehabilitationorrecoveryplanwas29percent.
Thisisthefirstnationalepidemiologicalsurveytomeasuretheprevalenceofpsychosisinnon-governmentorganisationsfunded tosupportpeoplewithamentalillnessandtolookatthecharacteristicsofpeoplewithseverementalillnessusingthissector.
National psychosis survey: mapping use of services ByProfessorVeraA.Morgan
34newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
Figure 1. Non-government organisation group-based rehabilitation programs
Figure 2. Non-government organisation one-to-one support
Group-based rehabilitation programs
Non-governmentorganisationsarekeyprovidersofrehabilitationprogramstopeoplewithpsychoticillnesses, withonequarter(22percent)ofallparticipantsattendingnon-government-runprogramsinthissectorand90per centofthemreportingthattheprogramswereveryorsomewhathelpful(Table2).
Themostcommonlyattendedprogramswereindependentdailylivingskillsprograms(33percent),healthylivingandfitnessprograms(30percent)andcreativeactivities(28percent).Thesewerefollowedbyprogramstargetinganxiety andstress(23percent),communicationandsocialskills(22percent),moodmanagement(17percent)andsymptommanagement(13percent).Smallerproportionsofpeople hadattendedalcoholanddrugmanagementprograms(7.5percent)andantismokingprograms(3.5percent)(Figure1).
One-to-one support
Aswellasrunninggroup-basedrehabilitationprograms,non-governmentorganisationsalsoprovidedone-to-onesupportandassistance.Two-thirdsofparticipantssupported bynongovernmentorganisations(69percent)hadreceivedcounsellingoremotionalsupport,whilemanyhadreceived helptoaccessotherservices,includingcommunityservices (45percent)andmentalhealthservices(37percent).Just overtwo-fifthshadreceivedinformationonmentalillness (44percent)orrecoveryplanning(41percent).Onethird hadbeengivenpracticalassistanceintheformofhomehelp (32percent)andsubsidisedmeals(32percent),andonequarterhadreceivedhousingassistance(25percent). Almostonequarterhadreceivedvocationalorskillstraining (23percent)orhelpwithpaidorunpaidemployment(22 percent)(Figure2).
Proportion (%)
0 10 20 30 40 50 60 8070
Help to access education
Counselling or emotional support 68.6
Help to access other community services 45.4
Information about mental illness 43.8
Information on recovery planning 41.4Support to link with mental health services 36.6
Free or cheap meals 32
Accommodation or help to find accommodation 24.6Vocational training/employment skills/experience 23Help to find or keepa job or volunteer work 22.4Financial assistance/material aid or help to access financial assistance/material aid 19.3
Home help 32.2
Proportion (%)
Public mental health services
Non-government organisation
Casemanager* 61.6 20.2
For those with a case manager
Contactwithcasemanagerisasoftenaspreferred Frequencyofcontact •Onceaweekormore •Lessthanonceaweek,butatleastonceevery4weeks Satisfactionwithcasemanager •Verysatisfied •Somewhatsatisfied
76.5 28.1 54.4 62.2 22.8
77.8 64.0 30.4 69.6 19.8
Table 3. Case management by sector if case managed in past year
*Some participants had case managers in both sectors over the past year
Case management and home visits
Sevenoutoftenparticipantsreportedhavingacasemanagerinthepastyear:62percentofthetotalsamplehadacasemanagerprovidedbypublicspecialisedmentalhealthservicesand20percenthadoneprovidedbyanon-governmentorganisation,with13percenthavingoneprovidedbyeachsectoratsomestageoverthepastyear(Table3).
Satisfactionwithcasemanagementfrombothsectorswashigh,with85percentofparticipantswithpublicspecialised
mentalhealthservicecasemanagersand89percent ofthosewithnongovernmentcasemanagersbeing veryorsomewhatsatisfied.
Three-quartersofparticipantsreportedbeinghappywith thefrequencyofcontactwiththeircasemanager.Mostof theremainderwouldhavepreferredmorecontact:13.5 percentofpeoplewithacasemanagerprovidedbypublicspecialisedmentalhealthservicesand16percentofpeoplewithoneprovidedbyanon-governmentorganisation.
Aroundhalf(53percent)hadhadoneormorehomevisitsinthepastyearbysomeonefromanon-governmentorganisation.
National psychosis survey: mapping use of services ByProfessorVeraA.Morgan
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Psychiatric Disability Services ofVictoria(VICSERV)
Proportion of those with a personal helper (%)
Providedparticipantwithsupporttomanagedailyactivities
64.0
Referredparticipant tootherrelevantservices
49.3
Accompaniedparticipant toappointments
45.3
Actedasanadvocate 45.3
Providedsupportwith physicalactivities
34.2
Supportedparticipant’s familyorcarer
21.3
Total respondents 225
Table 4. Type of support provided by personal helper in past year Personal Helpers and Mentors Services
ThePersonalHelpersandMentorsServices(PHaMS)is anAustralianGovernmentinitiativedeliveredthrough non-governmentorganisationstosupportpeoplewith aseverementalillnesstomanagetheirdailyactivitiesand liveindependentlyinthecommunitywithcoordinated, integratedaccesstocommunityservices.Thefirst demonstrationsiteswerefundedin2007.
Inall,12percentofparticipantshadapersonalhelper overthepastyear.Manyhadusedtheserviceforalong time.Themajorityofthoseusingtheservice(60percent) hadhadapersonalhelperforayearorlonger,andover aquarter(28percent)hadhadonefortwoyearsormore.
Twothirds(64percent)ofthoseparticipantswithapersonalhelperreceivedsupporttomanagedailyactivities.Personalhelpersalsoassistedbyreferringparticipantstootherservices (49percent),accompanyingparticipantstoappointments (45percent),andactingasanadvocate(45percent).Serviceshadalsoprovidedsupportwithphysicalactivitiestoone-third ofparticipants(34percent)andsupporttoonefifthofparticipants’familiesandothercarers(21percent).SeeTable4.
Section 4. Conclusion
Surveyparticipantswereaskedtoidentifythemostimportantchallengesfortheminthecomingyear.Thetopthreechallengeswerenothealth-related.Theywerefinancialproblems(43percent),lonelinessandsocialisolation(37percent)andlackofemployment(35percent).Health-relatedissueswererankednext,with27percentnamingphysicalhealthissuesand26percentnamingtheuncontrolledsymptomsofmentalillness.Housingwasrankedsixth,at 18percent.Amajorundertakingofthe2010SurveyofHighImpactPsychosis(SHIP)wastocollectkeyand,insomecases,uniquedataonthesechallengesandmanyotheraspectsofthelivesofpeoplewithseverementalillness,includingtheiruseofservicesprovidedbynon-governmentorganisations.Itishopedthatthedatacollectedwillinformpolicychangeandserviceprovisiontothebenefitofpeoplelivingwithpsychosis,theirfamily,carersandtheservicessupportingthem.
Reference
MorganVA,WaterreusA,JablenskyA,MackinnonA,McGrathJ,CarrV,BushR,CastleD, CohenM,HarveyC,GalletlyC,StainH,NeilA,McGorryP,HockingB,ShahS&SawS,2011,People living with psychotic illness 2010. Report on the second Australian national survey. Canberra,AustralianGovernmentDepartmentofHealthandAgeing.
National psychosis survey: mapping use of services ByProfessorVeraA.Morgan
YOUR SAY...
38newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
PrahranMissionUnitingCare(formerlyPrahranMethodistMission,thenlaterPrahranCityMission)wasestablishedin1946whenthepremisesat211ChapelStreetPrahranwerepurchasedfor30,000pounds.In1977theMissionbecamepartoftheNepeanPresbyteryoftheUnitingChurchinAustralia.In1982thefirstdayprogramforpeoplewithapsychiatricdisabilityinVictoriawasestablishedwithfundingfromtheCommonwealth-oneofonlytwoorganizations atthetimefundedforworkinthisareainVictoria.
PrahranMissioniscommittedtothewell-beingofthecommunitythroughitsmentalhealth,agedcare,employment,socialfirms,housingandresidentialservicesandcommunitydevelopmentactivities.Itprovideshighqualitysocialandprofessionalcommunityservicesandchallengesunjustsocialandeconomicstructures.PrahranMissionserves,assiststheempowermentof,andadvocatesalongsidepeoplewhohaveapsychiatricdisability,olderpeople,youth,thehomeless,peoplefromnon-Englishspeakingbackgrounds,diversecommunitiesandothereconomicallyandsociallydisadvantagedindividualsandgroups.
Ourmissionistopartnerwiththosewhohaveorhavehad amentalillnessorexperienceextremesocialandeconomicdisadvantageinordertofacilitateafullandmeaningfullife.PrahranMissionachievesthisthroughtheprovisionofservicesthataregroundedinourvaluesandbyeffectingbeneficialsocialchangethatcreatesopportunitiesformeaningfulparticipationinsociety.
During2010/11morethan3,500peoplewerehelpedbyPrahranMission.TheMission’sprofileandreputationwaslargelybuiltaroundprovidingasocialoutletandfood,clothingandmaterialaidtothefinanciallyandsociallydisadvantagedacrossMelbourne’sInnerSouth-Eastregion.Therealitynowhoweveristhatapproximately90%ofexpenditureandstafftimeisspentcaringforpeoplewithvaryingdegreesofmentalillness.Over600consumersaccesstheMission’sserviceseveryweek.
PrahranMission’sservicesextendacrosstheLocalGovernmentAreas(LGAs)oftheCitiesofStonnington, GlenEira,PortPhillip,Monash,Boorandara,Kingston, GreaterDandenong,YarraandBayside.
TherecentredevelopmentoftheChapelStreetsitehasallowedagrowthinservicessuchastrainingandjobplacementaswellasadditionalsocialsupportprograms andspaceforemergencyservicesforpeoplelivingwith mentalillnesstoincreasethecapacitytofeedandclothe,providefinancialreliefandassistinfindingahome.
PrahranMissionhassixdiscretesuitesofclientservicesprogramswhichare:Home Based Outreach Support (Mothers’SupportProgram,PHaMsBaysideandMonash,InnerSouthOutreach,KillaraAgedPDRSS);Day Rehabilitation (OpenHouse,SecondStory,EmergencyRelief,StablesArtStudio,VoicesVicandConnectEd)Employment, Education & Training(JobSupplyPersonnelEmploymentService). Aged Care (CommunityAgedCarePackages).Scottsdale Residential Service and Haven South Yarra (24hourResidentialbasedpsycho-socialrehabilitation)Retail Operations(OpportunityShops,Restaurant,Catering, Café,VolunteerSupportandHospitalityandRetailTraining).
OneofourmostimportantprogramsinthePDRSSHomeBasedOutreachareaistheMother Supportprogram.Thisprogramworkswithwomenwhoareaffectedbymentalillness,and whohavechildrenlivingintheircare.Thisprogramprovides apsycho-socialrehabilitationprogramtowomenwhohave anenduringmentalillness.Itisagoalorientedprogramwhichassistwomentoachieveimportantoutcomesinareassuchasparenting,housing,physicalwellbeingandsocialconnections.
AnotherimportantfocusoftheorganisationhasbeentoprovidesupporttopeopleintheOpenEmploymentarea.ThroughJobSupplyPersonnel,afederallyfundedEmploymentProgram, wehavebeenabletoassistover200peopleayearforthepast 18years.Thefocusonemploymentparticipationinallourstrengthbasedmentalhealthprogramshasbecomeincreasinglyimportant.
Member profile Prahran Mission Uniting Care
Mark Smith, GeneralManagerServices
VICSERV Conference Presentation:
PrahranMissionislookingtopresentandshowcaseanumberofareasinboththeVICSERVconferencethisyearandtheMHSconferencelaterintheyear.TheHavenSouthYarraResidentialRehabilitationprogramstaffwillpresentthebenefitsofworkingalongsidecarersinthisinnovativemodel.VOICESVIC,partofDayRehabilitation,willbepresentingontheenormousbenefitsandgrowthwhentrueparticipationisnurturedandencouragedwithinanorganisation.AsapartnerintheInnerSouthEastMentalHealthAlliance,Prahran Missionwillbepresentingwithothersontheartand practiceofcollaboration.
New Developments:
IntheearlydaysIthinkoursectorwasquitesignificantinprovidinganalternativetothemedicallybasedmentalhealthservicesandinfactitwasthis“volunteerparticipation”notionthatmanypeoplewereattractedto.Ibelievethatnowistheperfecttimeforsomenewthinkingaroundthewayservice isprovided.TheincreasedrecognitionbyparticipantsandgovernmentacrossAustraliaofthevalueofworkbythecommunitymanagedmentalhealthsectorwillleadto furtheropportunitiesforpartnershipsbetweenclinicalandcommunitymanagedservices.
Itisindeedexcitingtoseeparticipantsfindingtheirvoice acrossthesectorandhavingalotmoresayinplanning,developingandrunningofprograms.Ithasbecomingeasier toidentifythebuildingblocksofwhatconstitutesagoodprogram:empowerment;assumptionthattheuserisincontrol;dignity;meaningfulevaluationandvaluesthatarebasedonthebeliefthatrecoveryispossible.
TheareasIseeasdevelopingrapidlyinthenextfewyears willbethatcommunitymanagedagencieswillbeincreasinglylookingataccountabilityandhowtheycanmeasureaneffectiveoutcome,bothforparticipantsandforfundingbodies.Theabilityforagenciestoaccuratelyfullycosttheworktheydoinordertobeeffectiveandusethefundinginthemost
efficientmannerwillbecomemoreimportantasblockfundingchanges.Theimportanceofmeaningfulemploymentandphysicalhealthwillincreasinglyberecognisedasanimportantaidtorecovery.Theroleoffamiliesandcarersshouldbeutilisedmore,whereappropriate,toassistinthedevelopmentofrecoveryplans.
Organisationswillneedtobeinnovativearoundworkforcetraining,retentionandappropriaterecognitionasthesectorgrowsandrequirementsbecomemorestringent.
Onethinginourworkneverchanges–itisadeeplypersonalandchallengingrelationshipbetweentheorganisation,workerandparticipant.
Finally,asparticipantsoftenpointout,recoveryisadeeplypersonalandemotionalprocessyoudoyourself.Inrealityservicesarejustheretoassist,whenneeded.Ithasbeenmyimmensepleasuretobeabletoworkinanareawhereoneisconstantlyinspiredbythecourageanddeterminationofpeople.
About the author
Celebrating21yearsintheCommunityManagedMentalHealthSectorthisyear,MarkSmithhasbeenGeneralManagerofServicesatPrahranMissionUnitingCarefor almost9years.Hepreviouslyspent18monthsasa SeniorProjectOfficerintheMentalHealthBranchinthe DepartmentofHealthworkingonQualityImprovementProjectsandbeforethat12yearsinManagementinPDRSSHomeBasedOutreachandEmploymentprograms.Mark hasbeenadirectorontheVICSERVBoardofgovernance forthepastsixyears.
ExPRESSION SESSION
41newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
CallumMcfarlane
Thefollowingartworksinthisedition’sExpressionsession arebyparticipantsinNorthYarraCommunityHealth’sartprograms.NorthYarrawillbepresentingfurtherexamples ofcreativityattheReframingmentalhealthconference.
42newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
CallumMcfarlane
Expression Session
44newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
GulerAltunbas
Mentalillnessistroubling;troublingforthepersonwhohasitandtroublingfortheirlovedones.Oneinfivepeoplewillhaveamentalillnessinanytwelvemonthperiodandnearlyhalfwillexperienceitduringtheirlifetime.Willpower,loveandempathyareseldomenoughtomakethingsbetter.Whensomeone’sthoughtsaredisturbedanddisturbingortheirbehaviourisbizarrelyoutofcharacter,fewamongstusknowwhattodo. SobeginsthesearchforanswerswhichusuallystartswithseekingprofessionaladvicefromaGPormentalhealthpracticioner.
Somepeoplealsohavelatenightsessionswith‘DrGoogle’.Thereareexcellentwebsitesthatprovidefactsheetsandinformationaboutwheretogethelp.Readingmorewidelycanbehelpfulduringthejourneyfromdiagnosistorecoveryandbeyond.Manybookshavebeenwrittenaboutspecificillnesses,aboutlivingwithmentalillnessandaboutworkingwithpeopleaffectedbymentalillness.ArecentreleaseisUnderstanding troubled mindswhichisapracticalguidetomentalillnessanditstreatmentwrittenbyEmeritusProfessorSidneyBlochfromMelbourneUniversity.
Thebookbeginswithashortchapteronthehistoryofpsychiatrywhichhiglightsthesignificantadvancesthathave beenmadeinthelastfiftyyearsbythescientificcommunity andtheconsumermovement.Asenseofhopeandoptimismrunsthroughoutthebook.Theliberaluseofbriefcasestudies,insightsandimagesfromartistsandwritersrevealthecomplexity ofhumannature.Inchaptertwo:Making sense of a life,theauthorconsidersthelifeoftheartistVincentvanGoughusingthetwinperspectivesofunderstandingandexplanation.Themeaningbehindaseeminglyclear-cutcaseofmentalillness
ispresentedinthebroadcontextoffamilydynamics,culturalmoresandaparticularhistoricalmomentintime.ProfessorBlochusesthelifeofthisfamouslytroubledindividualtodemonstratethatunderstandingtheimpactofanillnessonapersonandtheirfamilyisthekeytoasuccessfultherapueticalliance.
Thebooklargelyconsistsofchaptersdescribingtheworkings ofthemindandspecificdisordersandtheirtreatment.There isasectiononchildrenandadolescents,oneonwomenandanotherontheelderly.Thebookdoesnotfocusonthesocialdeterminantsofmentalhealth.Nordoesitacknowledgetheroleofthecommunitymanagedmentalhealthservicesystem inworkingwithpeopletoassisttheirrecoveryandincrease theirsocialinclusion.Theconcludingchaptercontainsaveryinterestingdiscussionontheethicaldimensionsofthepractice ofpsychiatry.ProfessorBlochdescribesthemanydifferentethicalchallengesencounteredbypsychiatrists.Theseincludetheethicsofmakingadiagnosisandofvoluntaryandinvoluntarytreatment.Aframeworktodealwithethicalchallengesispresentedandisbasedonprinciciplismandcareethics.
Understanding troubled minds isveryreadable,informativeandthoughtprovoking.Iimagineitwouldbeparticularlyusefulforpeoplerecoveringfrom,orwhohaverecoveredfrommentalillnessandwhomightwishtospendsometimereflectingonhowitwastohaveatroubledmind.
Reviewedby Wendy Smith PolicyandResearchManager,newparadigmeditorVICSERV
Book reviewUnderstanding troubled minds: a guide to mental illness and its treatment (full revised second edition)
Professor Sidney Bloch, MelbourneUniversityPress,2011
Expression Session 45
newparadigm Autumn 2012
Psychiatric Disability Services ofVictoria(VICSERV)
ABOUT US
VICSERVisamembership-basedorganisationandthepeakbodyrepresentingcommunitymanagedmentalhealthservicesinVictoria.Theseservicesincludehousingsupport,home-basedoutreach,psychosocialandpre-vocationaldayprograms,residentialrehabilitation,mutualsupportandself-help,respitecareandPreventionandRecoveryCare(PARC)services.
ManyVICSERVmembers alsoprovideCommonwealth fundedmentalhealthprograms.
As the peak body for the community managed mental health sector in Victoria, we pursue the development and reform of mental health services.
We support members by:
•Promotingrecoveryorientedpractice•Buildinganddisseminatingknowledge•Providingleadership•Buildingpartnershipsandnetworks•Undertakingworkforcedevelopment,
trainingandcapacitybuilding•Promotingqualityinservicedelivery•Undertakingadvocacyandcommunityeducation
Our MissionOur Vision
Collaboration (Teamwork)
• Workingtogethertoachievesharedobjectives• Respectingtheknowledgeandskillsofothers• Puttingtheneedsoftheorganisationabove
individualinterests
Inclusiveness
• Listeningtoarangeofviews• Representingandembracingthediversityofthesector• Honouringtheconsumerandcarerexperience
Flexibility
• Proactivelyembracingchangeandnewopportunities• Steppingupandoutfromourrolesandperspectives
whenrequired
Courage
• Takingleadershipbyspeakinguponimportantissues• Encouragingandsupportinginnovation• Persistenceinthefaceofobstaclesanddelays
Integrity
• Doingwhatwesaywewilldoontimeandtothe bestofourability
• Listeningandrespondingtomembers• Havingarespectedvoiceandvisibilityinthesector,
broadersystemandingovernment•Beinganhonestbrokerofinformationandresources.
Our Values
VICSERV envisages a society where mental health and social wellbeing are a national priority and:
•Everyonehasaccesstotimelymentalhealth treatmentandsupport
•Mentalhealthservicesarerecoveryoriented•Peopleparticipateindecisionmakingabouttheir
ownlivesandtheircommunity•Peopleaffectedbymentalillnesshaveaccessto,and
afairshareof,communityresourcesandservices•Allpeopleareinvolvedasequals,withoutdiscrimination.
Psychiatric Disability Services ofVictoria(VICSERV) Level2,22HorneStreet, ElsternwickVictoria3185Australia T0395197000F0395197022 [email protected] www.vicserv.org.au