RD NATIONAL DEMENTIA CARE AWARDS · 4 Brighton, 30 October –1 November, 2012 UK DEMENTIA WEDNESDAY 31 October programme CONGRESS 7th &3RD NATIONAL DEMENTIA CARE AWARDS 09:30-11:00

UKDEMENTIAC O N G R E S S

7th

& 3 R D N AT I O N A L DEMENTIAC A R E AWARDS

PROGRAMME SPONSOR

OTHER SPONSORS

AWARDS MAIN SPONSOR

SATELLITE SPONSORS

IN ASSOCIATION WITH

ACADEMIC PARTNER

OFFICIAL PROGRAMME

3www.ukdementiacongress.co.uk

Welcome UKDEMENTIAC O N G R E S S

7th

& 3 R D N A T I O N A L DEMENTIAC A R E AWARDS

CONGRESS SUMMARYTuesday 30 October(More details below left)16:45-17:55 Registration18:00-18:20 Welcome and introduction18:20-19:30 Congress Debate19:30-20:15 Congress drinks reception20:15-late Dementia Care Matters

‘Beach Party’ (see page 7)

Wednesday 31 October(Full details: pages 4-5)08:00-09:25 Registration08:30-09:15 Early bird sessions09:30-11:00 Plenary session11:00-11:30 Refreshments, poster

& exhibition viewing11:30-12:40 Parallel sessions12:40-13:40 Lunch, posters & exhibition 13:40-14:30 Plenary session: keynote14:40-15:50 Parallel sessions15:50-16:20 Refreshments, poster

& exhibition viewing16:20-17:30 Parallel sessions17:30-18:30 Drinks reception19:15 National Dementia Care

Awards Drinks Reception20:00 National Dementia Care

Awards Dinner

Thursday 1 November(Full details: pages 6-7)08:00-09:10 Registration08:30-09:00 Early bird sessions09:15-10:25 Parallel sessions10:25-11:00 Refreshments, poster

& exhibition viewing11:00-11:50 Plenary session/workshops12:00-13:10 Parallel sessions13:10-14:10 Lunch, posters & exhibition 14:10-15:00 Plenary session15:00 Close

PROGRAMME CONTENTS4 31 October programme n6 3 November programme n7 Added attractions8 Congress supporters14 Speakers’ biographies29 Speakers’ abstracts

Welcome to the 7th UK Dementia CongressThe past year since our very successful 6th Congress in Liverpool seems tohave whizzed by and here we are already in Brighton setting out on theexciting journey which is a UK Dementia Congress. It is my great pleasure onbehalf of the Journal of Dementia Care, our Congress Planning Committee andall our sponsors to offer you a very warm welcome. One of the strengths of Congress is the variety and diversity of attractions

on offer beginning with our debates which have become well known for kickingus off to a controversial start. This year is no exception. The topic ‘This housebelieves that we should switch resources from workforce training to investingin leadership’ is bound to stimulate a vigorous exchange of views, and weencourage your active interventions. The following two days of plenaries,parallel sessions, posters and extra sessions (see pages 4-7) will offer a terrificselection of topics and speakers which will undoubtedly provide somethingsignificant for everyone to take back to their organisations.As the event organiser, the Journal of Dementia Care is greatly indebted to

a great number of people and organisations. The Congress PlanningCommittee (see page 7) played an invaluable role in shaping the event andhelping to select such interesting topics, speakers and chairs, and we extendour warmest thanks to them.We greatly appreciate the support of all our generous sponsors, and particu-

larly our main sponsor Bupa for their sponsorship of the Congress – it is theirpassion for learning and improvement which helps make possible this annualopportunity to get together and learn from each other.We are also extremely grateful to all our supporting organisations and

exhibitors who add so much to the event. The exhibition this year is superbagain, and we believe the many important services and products displayed addsignificantly to the value of the Congress. Do make sure you visit all thestands – you will find your time well spent!We wish you all a very productive and enjoyable Congress. By attending and

taking back to your workplace what you learn here in Brighton you can make areal difference to the quality of life of the people you support.Dr Richard Hawkins MBBS FRCS, Editor-in-Chief, Journal of Dementia Care

DEBATE & DRINKS RECEPTIONCONGRESS OPENING

TUESDAY 30 OCTOBER

16:45-17:55Conference registration andexhibition viewing

18:00-18:20Welcome and introductionOXFORDDr Richard Hawkins, Editor in Chiefof the Journal of Dementia Careand Director of Hawker Events.

How to make the most of CongressStudents from the University ofBradford

18:20-19:30Congress Debate OXFORDThe motion: This house believes we should switch resources from workforce trainingto investing in leadership • Proposer: David Sheard, Chief Executive, Dementia Care Matters• Opposer: Professor Dawn Brooker, Association for Dementia Studies• Chair: David Francis, Assistant Chief Inspector, CSSI Wales

We warmly welcome your contributions to this debate.

19:30-20:15Congress drinks reception – all welcome. Includes Jessica KingsleyPublishers book launch (see page 10).

UKDEMENTIAC O N G R E S S

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We warmly welcome people living withdementia and their carers to this CongressWe very much appreciate the contribution you bringto the whole event, and will do our best to ensureyou spend an enjoyable and rewarding few days withus. Please feel free to ask our staff for help orguidance at any time. There is a quiet area with softseating reserved for you, on the mezzanine level inthe poster display area; staff will be able to directyou there. If you would like us to reserve a place foryou in any parallel session, please let us know (weare also happy to reserve places for any otherdelegates who may be less mobile).

Brighton, 30 October – 1 November, 20124

WEDNESDAY 31 October programmeUKDEMENTIAC O N G R E S S

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09:30-11:00 PLENARY SESSION:

Chair’s introduction: Jeremy Hughes, Chief Executive, Alzheimer’s SocietyKeynote speakers: OXFORD

• Christopher Devas and Trevor Jarvis, Alzheimer’s Society Living with Dementiaprogramme; Kate Harwood and Peter Watson, Uniting Carers Dementia UK

• Norman Lamb MP, Minister of State for Care Services

13:40-14:30 PLENARY SESSIONKEYNOTE ADDRESS:

Dr G Allen Power, Eden Mentor at St John’s Home in Rochester, New York, ClinicalAssociate Professor of Medicine at the University of Rochester and author ofDementia Beyond Drugs: Changing the Culture of Care. Chair: David Sheard OXFORD

11:30-12:40 PARALLEL SESSIONS:

• DEMENTIA CARE IN ACUTE HOSPITALS ROOM 8A Chair: Hazel Heath Compassionate care in hospital: exception or norm? Alison Moon, UniversityHospitals Bristol; The value of the carer experience: the Butterfly Scheme and Dementia UK’s joint project to use the carer experience topromote understanding of dementia care amongst hospital staff Barbara Hodkinson, The Butterfly Scheme and Joy Watkins, Dementia UK; Dementiaand acute settings: A model for workforce development Jo Crossland, Dr. Claire Surr, Jan Robins and Emily Malet, Bradford Dementia Group

• IMPROVING DIAGNOSIS OF DEMENTIA CLARENCE Chair: Daren Felgate Improving Diagnosis of People Living with Dementia in Europe:Part of the ALCOVE Programme Dawn Brooker, Simon Evans, Jenny La Fontaine, Jennifer Bray, Peter Ashley and Karim Saad, University ofWorcester (the ALCOVE project); Managing dementia in Primary care Dr Nick Cartmell, GP lead for dementia, NHS Devon & NHS South ofEngland (West); Getting diagnosis right: a new paradigm Kate Schneider, NHS South of England, West

• SEVERE COMPLEXITY IN ADVANCED DEMENTIA: WHAT HAPPENS WHEN INTERVENTIONS ARE NOT EFFECTIVE? OXFORD Masterclass workshopfor experienced practitioners and managers Lesley Jones, Greater Manchester West MH NHS Trust and Graham Stokes, Bupa Care Services

• WORKSHOP: THE WAY FORWARD IN CARE HOMES: RELATIONSHIP-CENTRED CARE LANCASTER Professor Julienne Meyer, City Universityand Hilary Woodhead, Dementia UK

• LIFE STORY WORK ROOM 8B Chair: Gillian Brooks Implementing a volunteer scheme to provide life story work on inpatient wards acrossEast Kent Reinhard Guss, Consultant Clinical Psychologist, Kent & Medway Partnership Trust; Ian Asquith, Psychology Student, University ofKent, Canterbury; Delivering Care with Compassion and Inspirational Outcomes through Life Portrait work Suzanne Wightman, SouthWest Yorkshire Partnership Trust and Micky Dyson, University of Huddersfield; Your Story Matters – moving forward for everyone PollyKaiser, The Life Story Network CIC

08:30-09:15 EARLY BIRDSESSIONS:

11:00-11:30 REFRESHMENTS, POSTER & EXHIBITION VIEWING

08:00-09:25 CONFERENCE REGISTRATION

LEADERSHIP ROOM 8ADeveloping leadership in person-centred dementiacareA symposium to explore the key challenges indeveloping effective leadership, led by Buz Loveday, Dementia Trainers; Maria Scurfield-Walton, Bradford Dementia Group;Julie Prowse, Bradford Division of ServiceDevelopment and Improvement;Jackie Pool, Jackie Pool Associates.Chair: Professor Murna Downs

TRANSFORMING QUALITY OF LIFE ROOM 8BUnlocking the knowledge and confidence of care staffStuart Wright, Dementia Care Champion, Brunelcareand Jackie Hume-Richardson, True 2 Self

The Journey of Abbey Court Angela Boyle,Alternative Futures Group, Abbey Court and GillianBrooks, Dementia Care Matters

The benefits of grouping residents experiencing thesame stages of dementia and of matching staff skills

Anita Astle, Managing Director, Wren Hall NursingHome and Peter Priednieks, Dementia Care Matters

Transforming the quality of dementia care one yearon: perspiration paying off! Paul Edwards and TanyaLittle, Bradford Dementia Group

Moving personalisation forward for people withdementia Trevor Adams, Passionate Dementia Careand Gillian Bailey, Helen Sanderson AssociatesChair: Dr Amanda Thompsell

12:40-13:40 LUNCH, POSTER & EXHIBITION VIEWING (POSTER PRESENTERS IN ATTENDANCE 13:00-13:30)

ASSURING QUALITY, CHOICE AND CONTROL OXFORDVoice, choice, control and leadership in care homes:Findings from the My Home Life programmeJulienne Meyer, My Home Life and City University;Sharon Blackburn, National Care Forum.

The Dementia Quality Mark: assuring the qualityof dementia careDavid Francis, Assistant Chief Inspector, Care andSocial Services Inspectorate, WalesChair: Barbara Stephens

DEMENTIA-FRIENDLY SOCIETY LANCASTERDementia-friendly communities. What are theyand how can we get them?Come to hear about work going on to create dementia friendly communities following the launch ofthe Prime Minister’s Challenge, and to discuss whatneeds to happen. Andrew Chidgey, Director of ExternalAffairs, Alzheimer’s Society; Ann Johnson who is livingwith dementia; Ian Sheriff, Plymouth Dementia ActionAlliance; Graeme Whippy,Lloyds Banking Group.

NUTRICIA SATELLITE SYMPOSIUM HALL 4Nutrition and dementia: new approachesChair: Professor Ian McKeith, Professor in Old AgePsychiatry, Institute for Ageing and Health, NewcastleThe role of nutrition in mental health and dementiaDr Alex Richardson, Senior Research Fellow, Universityof OxfordSouvenaid, a paradigm shift in the management ofAlzheimer’s Disease Dr Roger Bullock, Consultant inOld Age Psychiatry, KingshillResearch Centre, Swindon

YOUNGER PEOPLE WITH DEMENTIA CLARENCEA care pathway for people with alcohol relatedbrain injury Karen East, Dukeries HealthcareDeveloping the role of the Kent and MedwayPartnership Trust dementia service user envoyReinhard Guss and Keith Oliver, Kent and MedwayPartnership Trust, Ian Asquith, University of Kent

Making the most of life with young onsetdementia - YoungDementia UK’s Oxfordshireservices Tessa Gutteridge, YoungDementia UK andLarry Garner, a younger person with dementiaChair: Professor David Jolley


WEDNESDAY 31 October programme UKDEMENTIAC O N G R E S S

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DEMENTIA UK SATELLITE SYMPOSIUM HALL 4Culture, Ethnicity and Dementia: Issues for us allChair: Manjit Kaur Nijjar, Uniting Carers, Dementia UKPresenters: Dr Julia Botsford, Admiral Nurse Academy;Vincent Goodorally & Sybil Sibanda, Admiral Nurses;Christine Gillham, Dementia Pioneer. Through present-ations, interactive discussion and video clips the sessionwill explore how culture and ethnicity impact on livingand working with dementia, and highlight ways in whichcultural needs can be recognisedand addressed positively

DEMENTIA DIAGNOSIS: BARRIERS AND SOLUTIONSLANCASTERFindings from ‘Unlocking Diagnosis’ the 2012inquiry of the All Party Parliamentary Groupon dementia and insights from the Alzheimer’sSociety ‘Worried about your memory?’ awarenessraising campaignMartina Kane, Policy Adviser and Anna Dowrick, Campaigns Officer, Alzheimer’sSocietyChair: Arlene Astell




17:30-18:30 CONGRESS DRINKS RECEPTION sponsored by SCA

19:15 NATIONAL DEMENTIA CARE AWARDS DRINKS RECEPTION & DINNER (20:00)

SUPPORT FOR CARERS LANCASTER“Sharing is so important” The Alzheimer’s Society Carers Information andSupport Programme (CrISP)Mary O’Brien, Ruth West and Jenny Hewson, Alzheimer’s Society and NaomiSmith, University of Brighton reflect on carers’ vital role in the co-design anddevelopment of this successful programme, its evaluation by the University ofBrighton, and future plans. Chair: Lucy Whitman

ACTIVE LIFESTYLES ROOM 8AKeeping physically active plays a significant rolein maintaining and improving physical and mentalhealth, preventing chronic ill health and reducingloneliness and isolation. It is a public healthpriority for everyone, but especially people withdementia, family carers and care workers.Symposium to hear about local and nationalinitiatives and how you can get involved, with DrNori Graham, Age Action Alliance (chair); NeilMapes, Dementia Adventure; U Hla Htay, formercarer; Carol Richards, Age UK Oldham; MartinThompson, London Borough of Camden and peoplewith dementia from the HOPE group, Brighton.

STAFF DEVELOPMENT ROOM 8B Chair: DarenFelgateHull Dementia Academy Louise Eastwood, Hull CityCouncil

Making a difference with a limited budget - bymaking quality count Brenda Walker, Senior Momentsand Kim Hughes, Lincolnshire County Council

The effectiveness of training in improving carehome staff knowledge, attitudes, job satisfaction &caring efficacy Dr Graham Stokes, Bupa Care Services& Dr Claire Surr, Bradford Dementia Group

How a ‘Support Package’ model for staff learningand development can help individuals with dementiato live well in a residential home Sarah Mould and TimForester-Morgan, The Dementia Training Company Ltd

Creating change in care Chris Gage and JudeSweeting, Ladder to the Moon

ARTS IN DEMENTIA CARE CLARENCE Chair: Pam SchweitzerPeople with dementia at the National Gallery ofAustralia: ‘You do it for the moment’ Dr MichaelBird, University of Bangor

Lost in Time and Space: the experience of older peoplewith dementia working on an intergenerational artsproject Maria Parsons, ARTZ UK/Creative Dementia ArtsNetwork and Sarah Plumb, Modern Art Oxford

London Arts Challenge in 2012: Evidence of theImpact of arts activities for people in the earlystages of dementia and their carers VeronicaFranklin Gould, Arts 4 Dementia

Leadership in creative responses: Supporting artsexchanges in residential homes Kathryn Gilfoy,Westminster Arts and Susanna Howard, Living Words

Enabling through Music: a training pilot for care homestaff Pemma Spencer Chapman, Guideposts Trust

TRANSFORMATION OXFORD Chair: John KillickDeveloping supportive design for people with dementiaSarah Waller, Enhancing the Healing EnvironmentProgramme, The King’s Fund, and Abigail Masterson,Abi Masterson Consulting Ltd

Mattering: the concept and glue of dementia careDavid Sheard, Dementia Care Matters, willdemonstrate that together, the concepts ofCongress and also others beyond dementia carecome together to form the glue of person-centreddementia care.

SAFEGUARDING, CARE AND COMPASSION ROOM 8AWorkshop on the findings of CHOICE (Care HomeOrganisations Implementing Cultures of Excellence),the final study of the Comic Relief/Department forHealth PANICOA research programme (PreventingAbuse and Neglect in Institutional Care of OlderAdults. Discussion will focus on the relationshipbetween organisational culture and care experience, andkey messages for care providers, commissioners andservice users. Professor Dawn Brooker (chair), IsabelleLatham and Jenny La Fontaine, Association for DementiaStudies, University of Worcester; Lynne Phair, ConsultantNurse Safeguarding Adults, NHS Sussex

DIAGNOSIS AND EARLY SUPPORT CLARENCEChair: Kritika SamsiCaring for people with dementia – Challenges forthe Primary Care Team Dr Nick Cartmell & Dr MartinFreeman, GP leads for dementia, NHS Devon, andNHS South of England (West)

Early Intervention in Dementia Care and Support:Innovation and Impact Viniti Seabrooke, Alzheimer’s& Dementia Support Services and Alisoun Milne,University of Kent

We Understand Dr Rosslyn Offord and Lucy Young,Cardiff & Vale University Local Health Board

A volunteer befriending scheme Sally Kitchin,Cambridge & Peterborough Foundation Trust with carersJemima Atkinson, Raymond Leverett & Julia Martos

Supporting autonomy and independence indementia Arlene Astell, University of St Andrews

COMMISSIONING AND JOINT WORKING OXFORD Chair: Karim Saad Re-designing a dementia service: integrated care pathways, the West Midlandsmodel Karim Saad, Consultant in Old Age Psychiatry and Regional Clinical Lead forDementia , NHS West MidlandsCommissioning a specialist dementia palliative care service from a hospice baseProfessor David Jolley, Consultant Psychiatrist and Ann Regan, Willow Wood HospiceReducing the impact of crises in dementia: a community basedapproach Victoria Wray, Jane Twigger and Paul Clinton, SussexPartnership NHS Foundation Trust

CARE HOMES: ACTIVITY AND ENGAGEMENT ROOM 8BChair: Jackie PoolCreative Spaces; dementia, community &environment Wendy Brewin, Sensory Trust and KarenHayes, Arts & Dementia ConsultantGrowing Memories Vikki Moorhouse, EducationCoordinator; Rebecca Smith, Care worker and CarmenDiaz, Dementia Champion, CCHT ArtsIntergenerational relationships – using telecommu-nications (Skype and Facebook) within a small grouphome to build and maintain important relationshipsYolande Brand, Manager of Huis Ina Rens and RayneStroebel, GERATEC, South AfricaBird Tales: a unique program embracing theinteraction between birds, birdwatching and the joys of naturebrought to individuals with dementiaRandy Lee Griffin, Griffin Consulting, USA


THURSDAY 1 November programmeUKDEMENTIAC O N G R E S S

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11:00-11:50 PLENARYSESSION:

WORKSHOPS RUNNING CONCURRENTLY:Update on medical and scientific advancesin prevention and treatment of dementiaOXFORD

Professor Julie Williams, Head of the Neurodegeneration section, Medical Research Council Centre onNeuropsychiatric Genetics and Genomics,Cardiff University School of Medicine.Chair: Professor Murna Downs, Universityof Bradford

1. PLAYFUL APPROACHES 11:00-11:50 ROOM 8AThis workshop led by John Killick aims to show how playful strategies canbenefit people with dementia, enhancing their lives and also those whosupport them. It will be practical and active, and participants will beencouraged to try out various games and approaches for themselves.John Killick’s book Playfulness and Dementia will be launched by JessicaKingsley Publications at the Congress.

2. KEEPING UP THE TRADITION: BRIGHTON WEEKENDS, SEX & DEMENTIA 11:00-11:50ROOM 8B Congress can’t come to Brighton and not explore the theme of sex,intimacy, relationships and dementia. Staff need guidance and practice inopening up this subject with people experiencing a dementia, their partnersand families. David Sheard and Sally Knocker, Dementia Care Matters, willexplore these sensitive areas through interviewing people who havethemselves had to face this critical aspect of living with dementia, in thehope that this brings alive what matters most.


• TOUCHSCREEN TECHNOLOGY AND ‘APPS’ FOR PEOPLE WITH DEMENTIA OXFORD Chair: Rachael DuttonEvaluating touch screen technology for engaging people with dementia in meaningful activity that promotes well-being Rev RichardBradshaw, Tees Esk & Wear Valleys NHS Foundation Trust and Alison Watson, Hand in Hand Care; Making ‘apps’ accessible to those withdementia - Project findings one year on Antony Walker, Housing 21 and Nada Savitch, Innovations in Dementia CIC

• EARLY STAGE SUPPORT – WITH COGNITIVE STIMULATION ROOM 8A Chair: Joy Watkins

‘COGS Club: A Club for People with Mild Dementia’ Jackie Tuppen, Specialist Practitioner, Kent; Tom’s Club: Building on Success

Kaye Efstathiou and Kayleigh Orr, Dementia and Cognitive Impairment Service (Haringey), Barnet, Enfield and Haringey Mental Health Trust.

• Workshop: INSIDE OUTSIDE – A PRACTICAL APPROACH TO PROMOTING PERSON-CENTRED COMMUNICATION LANCASTERDanuta Lipinska, dementia trainer and therapist and Susanna Howard, Living Words.

• CIRCLE DANCE FOR PEOPLE WITH DEMENTIA AND CARERS CLARENCE

Nicola Jacobson, Dance & Dementia, Cheltenham; Cynthia Heymanson and Kath Kershaw, Circle Dance in Dementia

• NURSES’ EXPERTISE MATTERS IN DEMENTIA CARE ROOM 8B Chair: Peter Priednieks Launch of Dementia Care Matters’ new dementia care nursing 50-point checklist Matthew Cox, Dementia Care Matters.

08:30-09:00 EARLY BIRDSESSIONS:


08:00-09:10 CONFERENCE REGISTRATION

DEMENTIA-FRIENDLY SOCIETY CLARENCESymposium to report on progress made byprojects in York and Liverpool and the work ofInnovations in DementiaParticipants will discuss what becoming a dementia-friendly organisation means in practice, what stepsare needed and how challenges can be overcome.Ruth Eley, AESOP Consortium and Bill Chambers,Liverpool Hope University; Janet Crampton, AESOPConsortium (Dementia Without Walls – JosephRowntree Foundation project). Steve Milton,Innovations in Dementia CIC

END-OF-LIFE CARE ROOM 8ACare at the end of life: What is important topeople with dementia? Martina Kane, Alzheimer’s Society

Planning for the end early on in dementiaAlice Fuller, The National Council for Palliative Careand Dying Matters CoalitionChair: Graham Stokes

SERVICE DESIGN OXFORDChair and discussant: Dr G Allen PowerMeeting the needs of an ageing population. EachStep: Specialist integrateddementia care Sue McLean, Community Integrated Care

Future proofing specialist dementia extra care

Angela Morrison, Quattro Design Architects

Design for people with dementia: A case study of Brookside extra carevillage Damian Utton, Pozzoni LLP Architects

DEMENTIA CHAMPIONS IN CARE HOMES LANCASTERChampions in Dementia – a partnership between Alzheimer’s Society andOrchard Care homesSu Burns and Sue Brewin, Alzheimer’s SocietyJane Thompson, Orchard Care HomesChair: Christopher Quince

ACUTE HOSPITAL CARE ROOM 8BThe benefits and challenges of developing dementiachampions in acute hospital settings: Early findingsfrom the South-Central Dementia Programme UK IanBainbridge, Department of Health, Professor DawnBrooker, University of Worcester & Yve White-Smith,Health and Social Care Partnership

Working together to improve Dementia Care inBristol Gareth Howells, North Bristol NHS Trust andHelen Morgan, University Hospitals Bristol

Making better dementia care a reality forhospitals: a call to action Rachel Thompson, Royal College of Nursing Chair: David Sheard

FOR DETAILS OF NEXT YEAR’S UK DEMENTIA CONGRESS (ALSO IN THE AUTUMN), PLEASE KEEP AN EYE ON OUR WEBSITE: WWW.UKDEMENTIACONGRESS.CO.UK


THURSDAY 1 November programme UKDEMENTIAC O N G R E S S

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THE ARTS IN DEMENTIA CARE ROOM 8BA symposium on improving the evidence base for arts interventions indementia care Chair: Professor Bob Woods, University of BangorPanel discussion including: Michael Bird, Katherine Algar and Catherine MacLeod,University of Bangor; Mercedes Pavlicevic, Nordoff Robbins Music Therapy.

14:10-15:00 PLENARY SESSION:

The Tom Kitwood Memorial Address OXFORD

Professor Bob Woods, Professor of Clinical Psychology of Older People,University of Bangor, WalesChair: Dr Graham Stokes, Director of Dementia Care, Bupa Care Services


13:10-14:10 LUNCH, POSTER & EXHIBITION VIEWING (POSTER PRESENTERS IN ATTENDANCE 13:00-13:30)

15:00 CLOSE

MENTAL CAPACITY ACT LANCASTERA masterclass workshop aimed at experiencedmanagers, on resolving tricky issues anddilemmas related to the Mental Capacity Act Isabelle Latham, University of Worcester;Lynne Phair, West Sussex Primary Care Trust (chair)

COMMUNICATION AND CARE IN ADVANCEDDEMENTIA OXFORDImproving caring micro-skills with the Marte Meomethod – lessons from Scandinavia and HollandPaul Whitby, Avon and Wilts Partnership Trust

Learning to listen with our eyes: developingtraining on how to engage people with severedementia Wendy Perry, University of Worcester

Hearts and voices: a Singing for the Brain projectin an acute inpatient area for people withchallenging behaviour associated with dementiaGillian Drummond, Greater Manchester West MH NHSTrust Chair: Sally Knocker

COMMUNITY CARE CLARENCE Chair: Lucy WhitmanEvery moment matters: Making a person-centredapproach a reality in domiciliary care servicesStuart Wright, Brunelcare and Andy Bradley,Frameworks 4 Change

The development of Dementia Care MappingSupported Living, and its role in developing staffmembers and care services in domiciliary care

Sharon Jones and Paul Edwards, Bradford DementiaGroup; Jayne Lynch, Somerset Care, and AnnetteDarby, Dudley Borough Council

Shared Lives for people with dementia – resultsfrom a three years study Rachael Litherland,Innovations in Dementia CIC and Jane Bell, SWAPs

TRIO SCHEME- Day Support ServiceKate Wilkinson and Becky Steen, PSSThe ‘Lifetime Garden Project’ Julie Kerton and CliffordCook, Norfolk and Suffolk Foundation NHS Trust

INVOLVEMENT ROOM 8A Chair: Peter AshleyMaking involvement count: People with dementia help shape local servicesSarah Booker, South Gloucestershire Local Involvement Network (LINk), AnneRollings, Alzheimer’s Society South WestHaving our voices heard; film footage and findings from the DementiaEngagement and Empowerment Project Toby Williamson, Mental Health FoundationCo-producing dementia services in Kent Emma Hanson, Kent County Counciland NHS Kent & Medway

This congress isapproved for

Continuing ProfessionalDevelopment

purposes by the CPDCertification Service

With thanks to... The 7th UK Dementia Congress has been planned in consultationwith a group of advisers including: Professor Dawn Brooker, University ofWorcester; Dr Roger Bullock, Kingshill Research Centre, Swindon; Professor MurnaDowns, University of Bradford; Dr Nori Graham, Age Action Alliance; ProfessorSteve Iliffe, University College London; Andrew Ketteringham, Alzheimer’s Society;Professor Jill Manthorpe, King’s College London; Maria Parsons, ARTZUK/Creative Dementia Arts Network; Lynne Phair, West Sussex PCT; BarbaraStephens, Dementia UK; Graham Stokes, Bupa Care Homes; Jude Sweeting, Ladderto the Moon; Rachel Thompson, Royal College of Nursing; Professor Bob Woods,University of Bangor; Sheena Wyllie, Barchester Healthcare.

THE DEMENTIA CARE MATTERS BEACH PARTYDementia Care Matters is pleased to be hosting a sea front beach party on theevening of 30 October directly after Congress reception drinks. This will commenceat 8.15pm until late and guests are welcome to drop in at any time during theevening. The venue is Brighton Music Hall – just a 2 minute walk from the Hilton.

FILM SHOWINGSDuring lunchtimes in one of the session rooms we will be showing extracts fromnew films and training DVDs, including:• Dementia Care Matters' new DVD training programme for nurses and care

workers, set in four leading care homes: Mattering® in a Dementia Care Home • Dementia Engagement and Empowerment Project – showing user-led groups of

people with dementia talking about involvement• Shared Lives for people with dementia

• Living Well with Dementia – an information film made by guests of memory cafes• Dementia Uncovered: Six short films visually expressing poems shaped by the

words of people with dementia

POSTER PRESENTATIONSOver 55 important and innovative projects are featured in our poster displayarea. Poster presenters will be in attendance during lunch times to give shortpresentations on request and/or answer questions about their project.

TAI CHI FOR WELL-BEING – TASTER SESSIONJackie Hume-Richardson is offering a taster session of Tai Chi movement forwell-being (TMW). TMW is based around Tai Chi but is more relaxed and lessformal, and designed so that anyone can take part.

For times and places look out for announcements and notices on theCongress noticeboard.

ADDED ATTRACTIONS AT CONGRESS


Congress supportersUKDEMENTIAC O N G R E S S

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ALZHEIMER’S SOCIETYAlzheimer’s Society is the leading support and research charity for people withdementia, their families and carers. We work to improve quality of life for peopleaffected by dementia.

APETITOWith 50 years experience apetito have the expertise to partner you in creatingan individual approach to food for your care home.”

ASSOCIATION FOR DEMENTIA STUDIES, WORCESTER UNIVERSITYThe Association for Dementia Studies, based at Worcester University, is a multi-professional group led by Professor Dawn Brooker, who are expert in the field ofperson-centred dementia care and support.

BARCHESTER HEALTHCAREBarchester Healthcare is a major care provider committed to delivering highquality care services. We employ almost 17,000 people to care for more than10,000 residents at more than 200 locations in the UK.

BRADFORD DEMENTIA GROUPFor twenty years Bradford Dementia Group at the University of Bradford has beenleading the field in excellence in dementia research, education, training andpractice development to enhance the lives of people with dementia and theirfamilies and to support the practitioners who care for them.

BRUNELCAREBrunelcare are a renowned provider of high quality housing, care and supportservices, and are widely recognised for their experience in caring for peopleliving with dementia and supporting their families.

BUPABupa is a leader in dementia care. We haveover 300 care homes where we look aftermore than 6,000 people with advanceddementia. Our unique ‘Person First, dementiasecond’ training ensures that we are leadingbest practice across our dementiacommunities in the UK and overseas. Tel 0845 6004622 www.bupa.co.uk/care-homes

CARE UKCare UK is one of the UK’s leading providers of health and social care services.For older people, we provide support at home, through supported living services,day clubs or in residential or nursing homes.

SCA HygieneProducts Ltd aredelighted to besponsoring the UK DementiaCongress DrinksReception on 31 October, from17.30 to 18.30All welcome


Congress supporters UKDEMENTIAC O N G R E S S

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CIRCA CONNECTCIRCA Connect provides touchscreen systems that allow people with dementia tocommunicate again. All our products have been developed with people who havedementia by an internationally recognised research team.

CLAIRMONTClairmont believe that with shared resources and open communication excellentcare can be delivered to those who are most vulnerable in our society. Clairmontwill continue with its mission of developing solutions for those who are livingwith Dementia that both work and are affordable

COMMUNITY INTEGRATED CARECommunity Integrated Care is one of the UK’s leading social and health carecharities, supporting thousands of people across the England and Scotland. Thisyear they launched ‘EachStep’, a ground-breaking model for dementia care thatsupports people from diagnosis and throughout the progression of their condition,by delivering a holistic range of dementia care services from one location.

CPICPI is an international training organisation specialising in workplace training.Our programmes equip staff with the essential knowledge and skills to improvethe care, welfare and safety of vulnerable people.

DANFLOORDesigned for the demands of the care sector, danfloor’s impervious healthcarecollection is BRE certified, hardwearing and suitable for people living withcognitive impairments such as dementia.

DEMENTIA CARE MATTERSDementia Care Matters is a leading UK organisation inspiring culture change indementia care. We do this through Care Home Development, Learning Productsand Resources, Tailored Consultancy / Training and University RecognisedLearning in person centred care, leadership and training /coaching skills.

DEMENTIA UKDementia UK is committed to improving quality of life for all people affected bydementia. Our mission is to support families to live positively with dementia andto develop professionals to provide high quality care.

HAWKER PUBLICATIONSPublishers of Caring Times, Journal of Dementia Care and organisers of manyconferences and congresses on care and dementia across the country, plus theNational Care Awards – see www.careinfo.org.

BOOK LAUNCH ANNOUNCEMENTJessica Kingsley Publishers are delighted to announce the launch of three new titles on dementia care at the UK Dementia Congress on 30 October, at the drinks reception from 7.30pm:

• Playfulness and Dementia by John Killick• Leadership for Person-Centred Dementia Care by Buz Loveday• Dementia – Support for Family and Friends by Dave Pulsford & Rachel Thompson

Special Guests: • Professor Murna Downs, Chair in Dementia Studies, University of Bradford • Rachel Thompson, Dementia Project Lead for the Royal College of Nursing (RCN) and Admiral Nurse for Dementia UK• John Killick, Writer in Residence for Alzheimer Scotland, lecturer, trainer and author • Buz Loveday, Lead Trainer at Dementia Trainers (www.dementiatrainers.co.uk)

10% off all book purchases for delegates at the UK Dementia

Congress



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HOUSING 21 DEMENTIA VOICEHousing 21 Dementia Voice is a dementia centre of excellence. Putting the personbefore the dementia, we develop and manage service provision, conductspecialist research, provide training and offer advice.

INNOVATE DEMENTIAInnovate Dementia is a transnational project to promote innovative care forpeople living with dementia, aiming at improving quality of life for people withdementia by developing sustainable solutions that boost innovation andemployment.

INNOVATIONS IN DEMENTIA / SHARED LIVES SOUTH WESTInnovations in Dementia CIC work nationally on positive projects with people withdementia. Shared Lives South West provides a range of Shared Lives servicesincluding short breaks for people with dementia.

JACKIE POOL ASSOCIATESJackie Pool Associates is a nationally recognised organisation that develops andsells specialist dementia leadership programmes and QCF dementia trainingmaterials for the Health and Social Care sector.

JESSICA KINGSLEY PUBLISHERSJessica Kingsley Publishers is an independent, award-winning company foundedin 1987 recognised for publishing accessible books that make a difference. We area leading publisher in the field of Dementia Care and also publish lists in socialWork, Autism, Psychology and Arts Therapies.

JOSEPH ROWNTREE FOUNDATION & HOUSING TRUSTJoseph Rowntree Foundation and the Joseph Rowntree Housing Trust worktogether for social justice by searching out the underlying causes of poverty anddisadvantage; identifying and demonstrating solutions; and influencing positiveand lasting change.

THE LEWY BODY SOCIETYThe Lewy Body Society (www.lewybody.org) raises awareness, supports researchand campaigns to ensure that people affected by Lewy Body Dementias receivethe best possible treatment, care and support.

THE LIFE STORY NETWORKThe Life Story Network is a Community Interest Company focused on developingbest practice in Life Story Work through networking, training, consultancy andknowledge transfer using a Human Rights approach.

NUTRICIANutricia specialises in the delivery of advanced medical nutrition for the veryyoung, the old and the sick. It is the largest specialist nutrition company inEurope and the market leader in the UK.

RUNWOOD HOMESOne of the fastest growing UK Companies in residential care for older people,Runwood Homes provide services in Essex, Hertfordshire, Bedfordshire, Suffolk,Norfolk, Nottinghamshire, Warwickshire and Northern Ireland.

SOCIAL CARE INSTITUTE FOR EXCELLENCE (SCIE)SCIE’s Dementia Gateway offers up-to-date information and guidance; includingpractical tips, tools and activities. It is written by national dementia experts tohelp you best work with people with dementia. www.scie.org.uk/dementiagate-way

ST ANDREW’S HEALTHCARESt Andrew’s is the UK’s largest not-for-profit mental healthcare charity.We offer specialist services for men, women, adolescents and older peopleacross, Mental Healthcare, Learning Disability and Brain Injury.

SHAW HEALTHCAREShaw healthcare is one of the UK’s leading health and social care providers. Withover 4,600 employees working across 80+ sites, it provides specialist care toindividuals in nursing and residential homes, hospitals, supported living accom-modation, extra care schemes and domiciliary care settings.

TRIBALTribal is a leading provider of learning resources and training to the health andsocial care sector. We can offer a range of flexible programmes to meet stafftraining needs.



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Our mission is tosupport familiesto live positivelywith dementiaand developprofessionals toprovide goodquality care. Admiral Nurses – specialist dementia nurses who offer individualised support to family carersAdmiral Nursing DIRECT – a confidential telephone andemail helpline provided by Admiral Nurses0845 257 9406 [email protected] Carers – an involvement network of family carerswho contribute their experiences to educate the public andprofessionalsDementia UK Training – develops the dementia careworkforce through the provision of specialist training

www.dementiauk.orgCharity Reg no: 1039404


Speakers’ biographies A-BUKDEMENTIAC O N G R E S S

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TREVOR ADAMSPassionate Dementia CareDr Trevor Adams is founder of Passionate Dementia Care which offers training,consultancy and policy analysis that builds on and extends existing approachestowards person-centred care and addresses government drivers regarding the‘personalisation agenda’. Trevor has worked in dementia care for over 25 years inpractice, training and practice development. He has published widely on dementiaand presented at conferences around the world. He holds honorary posts at ChristChurch Canterbury University and University of Brighton, and was a SCEPTrEFellow at the University of Surrey for innovative teaching approaches in dementiacare. Trevor is also an associate of Innovations in Dementia and has recentlyworked with Helen Sanderson Associates to develop a self-assessment tool forcare homes seeking to offer personalised support to people with dementia.

MARY ALDRIDGENorfolk & Suffolk NHS Foundation TrustMary is the Lead Dementia Educationalist within the Norfolk Dementia CareAcademy for Norfolk & Suffolk NHS Foundation Trust. Her role encompassesconsultancy, design, delivery and evaluation of a range of learning and developmentstrategies to support dementia care practice in her own organisation and with othercare providers. Mary is a mental health nurse who has worked within the NHS forover 28 years. Mary has a degree in nursing studies and graduated this summerfrom University of Bradford with a MSc in Dementia Studies (DCM).

KATHERINE ALGARDSDC, Bangor UniversityKatherine Algar has worked at the Dementia Services Development Centre at BangorUniversity since 2009 where she has developed her interest and knowledge of ageingand dementia care. Involvement with reminiscence, art, and support groups forpeople with dementia and carers has provided her with a good understanding of well-being in people with dementia. This has led to her current research investigating howart can have an impact on quality of life for people with dementia. Kat is lead of theNEURODEM Arts and Dementia Research Development Group, and through this wassuccessful in gaining funding for her PhD which started in April 2011.

PETER ASHLEYAssociation for Dementia Studies, University of WorcesterPeter Ashley is a highly active campaigner speaking out on behalf of people withdementia since 2001, following his diagnosis with Lewy body dementia in 2000. He wasthe founding member of The Lewy Body Society. He has been involved with some of themajor policy developments in dementia, being a part of NICE/SCIE dementia guidelinesgroup, a part of the external reference group for the national dementia strategy, and anadvisor to the National Audit Office on dementia. He is an Ambassador of theAlzheimer’s Society and a supporter and presenter for Alzheimer’s Research UK. He is amember of DeNDRoN (the Dementias and Neurodegenerative Diseases ResearchNetwork). He is a member of Alzheimer Europe’s working group on Advanced Directives,an associate member of the Association for Dementia Studies, University of Worcester,an associate of Innovations in Dementia CIC and a member of the ALCOVE project team.

IAN ASQUITHUniversity of KentIan Asquith is an undergraduate student at the University of Kent where he isstudying applied psychology and clinical psychology. During the 2011-12 academicyear, Ian worked on placement in a community mental health team for older adultsunder the supervision of Reinhard Guss. Ian’s main task was to facilitate a varietyof service user involvement and life story projects across East Kent. Back for hisfinal year of study, Ian’s final dissertation project is on improving the person withdementia’s involvement in service evaluation.

ARLENE ASTELLUniversity of St AndrewsDr Arlene Astell is a clinical psychologist and senior lecturer in the School ofPsychology at the University of St Andrews. She has worked with older adults,including people living with dementia, for over 20 years. Her research focuses ondeveloping interventions, including novel applications of technology, to supportand maintain independence and optimal quality of life. She currently leads theCOBALT and NANA projects and was previously principal investigator on CIRCA andLIM, creating engaging and meaningful activities for people living with dementia.

ANITA ASTLEWren Hall Nursing HomeAnita has managed Wren Hall Nursing Home, a 53 bedded Care Home with Nursingfor the past 23 years. Wren Hall Nursing Home has been accredited as an Investorin People and with the Quality Standard BS EN 9001: 2002 kitemark since 1994.Wren Hall Nursing Home is recognised by the Care Quality Commission as anexcellent Care Home. Anita trained as a Registered General Nurse and specialisedin Burns and Plastic Surgery Nursing. Anita has commissioned newly built homes,managed groups of homes, liaised with both Health Authorities and LocalAuthorities and represented the independent sector at a local and regional level.Anita is passionate about delivering high quality services and works hard tosupport the wider health and social care workforce to develop and enhance itsknowledge and skills.

GILLIAN BAILEYHelen Sanderson AssociatesGill Bailey is employed part-time within the person-centred planning team in alocal authority; the rest of her time she spends working with Helen SandersonAssociates (HSA). Gill’s lead area within HSA is developing person-centred practicewith older people and services that support them. Gill has written and contributedto a range of publications on person-centred planning. She was involved in leadingthe Practicalities & Possibilities programme in three sites in 2007/08: this nationalprogramme worked with nine sites across England to explore what it would take tomake person-centred thinking and planning work well with older people. Gill’searly work included nursing, working with a number of provider and commission-ing units across adult health and social care over 25 years, eventually managingwithin learning disability day services for 10 years. She moved into work specifi-cally around person-centred practice in 2000.

IAN BAINBRIDGEDepartment of HealthIan Bainbridge has worked in social care since the late 1970s, initially as a socialworker and later in management. After a range of council positions in rural andurban settings and some experiments with joint agency working, he joined theSocial Services Inspectorate. There he pursued inspection and performance, andled responsibilities for aspects of older people’s work before returning tomanagement, this time in the south-east region. With the creation of CSCI, Ianbecame Deputy Regional Director for London and latterly interim regionaldirector. After further work heading up Adult Services through a period ofintensive modernisation and performance improvement, Ian then returned to theDepartment of Health to take up the new post of Deputy Regional Director for theSouth East. In addition to regional responsibilities, Ian has a national rolesupporting implementation of the national dementia strategy and has maintainedparticular interests in the management of change, dementia services, and broaderintegrated older people’s services.

SPEAKER AND POSTER PRESENTER

BIOGRAPHIES


Speakers’ biographies B UKDEMENTIAC O N G R E S S

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JANE BELLShared Lives South WestJane Bell is Chief Executive of Shared Lives South West, an independent SharedLives scheme covering Devon and Cornwall, and has been there since setting it upin 2004. Prior to that Jane was Deputy Chief Executive of the Alzheimer’s Societyfor 10 years, and has also worked for Rethink and Birmingham City Council. Jane iscurrently leading a national Shared Lives and dementia project with Innovations inDementia, collating people with dementia’s experiences of Shared Lives andworking with schemes and commissioners to expand into this area of work.

MICHAEL BIRDDSDC University of BangorMike Bird is an Australian psychologist with a long clinical and research interest inameliorating problems in ageing. Until recently he was senior clinical psychologistand co-ordinator of aged mental health in a large area of New South Wales, andhas been involved in evaluation and development of several state and nationalinitiatives, all mostly connected with improving care of people with dementia. Hisinterests include anxiety and depression in later life, management of challengingbehaviour associated with dementia, strain among and support of staff in carehomes, and raising the profile of work with older people among Australianpsychologists.

SARAH BOOKERSouth Gloucestershire Local Involvement Network (LINk)Sarah Booker has been South Gloucestershire Local Involvement Network’sDevelopment worker for four years. During this time she has successfullycompleted a number of engagement projects with services users and carers froma variety of communities.

JULIA BOTSFORDSenior Admiral Nurse, Haringey Julia currently holds a joint post - Research Lead (Admiral Nurse Academy –Dementia UK) and Senior Admiral Nurse (BEH Mental Health Trust). She hasworked in dementia care for over twenty years in a variety of clinical, lecturingand research roles. Her PhD focussed on cultural issues in dementia.

SHARON BLACKBURNNational Care ForumSharon has held a number of senior strategic and operational roles across the for-profit, not-for-profit, charitable and housing sectors. She is Chair of theDH-CNO/Independent Sector Advisory Forum, Co-Chair of the Dementia ActionAlliance, National Advisor to NCPC on Older People, Fellow of the RSA and amember of the Residential Forum, England Advisory Group for My Home Life,National Implementation Reference Group for the National Dementia Strategy, andBoard Member of EAHSA. In 2012 she was appointed to the Prime Minister’sNursing and Care Quality Forum.

JUDITH BOWERAlzheimer’s SocietyJudith worked in higher education as a lecturer in sports technology, biomechan-ics education and staff development, for 15 years. She took up a post withAlzheimer’s Society five years ago managing and developing projects asinformation and awareness development officer. She set up ‘Caring Café’ projectsinvolving the local memory assessment clinics, providing services for people withdementia when first diagnosed. Working recently as a dementia adviser she liaiseswith The University of Central Lancashire in ongoing ‘Creative Connections’ toprovide positive experiences for people living with dementia and their carers.These interactive sensory graphic resources are now available for loan in theCentral Lancashire Resource and Activities library or to share in creativeexperiences within groups and activities locally.

ANDY BRADLEYFrameworks 4 ChangeAndy has worked with people with learning disabilities for 18 years. He has worked in awide range of roles, but his focus has always been on equal rights and the importanceof people with learning disabilities being heard and being in control of their lives. Andyhas been involved with advocacy training and development for the last five years andis currently leading a project for Turning Point, which aims to give guidance to commis-sioners on the new Independent Mental Capacity Advocate role. Andy’s other workincludes training and development around person-centred approaches, active supportand intensive interaction. The advocacy organisations Andy works with supportspeople from all sections of the community, including people with autism, older people,people with dementia and people with mental health issues.

RICHARD BRADSHAWTees Esk and Wear Valleys NHS Foundation TrustRichard Bradshaw is a chaplain with the Tees Esk and Wear Valleys NHS Foundation Trust.He works across the spectrum of mental health and learning disability but has a particularinterest in dementia. This interest is personal as well as professional as he cared for hisfather with vascular dementia who died earlier this year. He delivers a programme called‘Mindfull of Music’ in both day centre and organic ward settings, working as singer andkeyboard player to engage with clients, staff and carers in responding to familiar songs.More recently he has worked with iPads to stimulate day centre clients.

YOLANDE BRANDGERATEC, South AfricaYolande is an occupational therapist. She worked in the UK for nine years beforereturning to South Africa. Her path crossed with GERATEC, an innovative companythat embraces the Eden Alternative philosophy to create lives worth living. Shenow manages Huis Ina Rens, a small group home for people living with dementia.The home forms part of the extended services at Huis Vergenoegd, a well-established home for older people in Paarl, Western Cape. A close partnershipbetween Huis Vergenoegd and GERATEC has ensured that this home offers person-centred care to combat loneliness, boredom and helplessness.

LISA BREAMENorfolk & Suffolk NHS Foundation TrustLisa Breame has been working as a nurse within various dementia care settings for28 years. For the past two years she has co-designed and facilitated person-centreddementia workshops within a small training team. She has also worked as acommunity mental health nurse developing the concept of relating theory to practice.

SUE BREWINAlzheimer’s Society Sue has worked with Alzheimer’s Society for ten years in various roles, includingdevelopment worker, branch manager and trainer. For the past two years Sue has beenan associate trainer with the Alzheimer’s Society Education and Development team,delivering specialist dementia training to staff working with people with dementia.

DAWN BROOKERUniversity of Worcester, Association of Dementia StudiesProfessor Dawn Brooker qualified as a clinical psychologist in 1984. She hasworked in a variety of clinical, academic and managerial posts in services forolder people for over 25 years. In 2005 she was awarded a personal chair at theUniversity of Bradford in recognition of her scholarship in practice development ofperson-centred care for people with dementia. In 2009 she established Universityof Worcester Association for Dementia Studies where she leads a team dedicatedto improving the lives of those living with dementia.

GILLIAN BROOKSDementia Care MattersGillian has over 20 years’ experience working with older people with dementia in aresidential care setting, in the community, in people’s homes and in hospital. She workedas a nursing auxiliary and care assistant and, after qualifying as a social worker in 1986,worked in a management role in a residential care home for people with a dementia. For14 years she worked in community and hospital social work with older people as a seniorsocial worker and later as an assistant team manager. She was involved with stafftraining, practice teaching for social work students and was an NVQ4 Assessor.


Speakers’ biographies B-DUKDEMENTIAC O N G R E S S

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ROGER BULLOCKKingshill Research CentreRoger Bullock is Consultant in Old Age Psychiatry and Clinical Director of theLiaison and Later Life Business Unit at the Avon and Wiltshire Mental Health CarePartnership NHS Trust. He is also the Principal Investigator and Director at theKingshill Research Centre, Swindon, and has over 20 years’ clinical trialsexperience. His research interests are in psychopharmacology and neuropsychol-ogy, alongside service development and innovation. His particular interests arememory services and understanding ‘early diagnosis’ and treatment.

SU BURNSAlzheimer’s SocietySu has worked with people living with dementia for 27 years. In this time she hasworn many different hats from care worker to dementia support manager. For thelast 18 years Su has worked for Alzheimer’s Society, running and developing localservices in the Brighton and Hove area, and for the last four years has worked asa dementia trainer. In 2010 Su became an Alzheimer’s Society Gold StandardDementia Trainer and joined the Society’s Education and Development team. Suco-developed and delivers the popular Champions in Dementia programme course,alongside the wider training portfolio.

JENNINE BUTLEROxleas NHS Foundation TrustJennine Butler is an Occupational Therapy Technical Instructor working with olderpeople in Oxleas NHS Foundation Trust in south London. Jennine began working inthe Woodlands Unit in March 2011 with dementia patients. Jennine is trained inperson-centred care approach. Jennine provides daily social and therapeuticactivities between two dementia wards, facilitates a weekly group schedule, andassists her occupational therapist in ADL assessments on and off the ward. Overthe past year she has been working with her colleague Angela Williams to developand facilitate a football reminiscence project. The project has also been supportedby Michael White from Sporting Memories.

PAULINE CAMERONDSDC University of StirlingPauline is a qualified and registered mental health nurse specialising in the care ofpeople with dementia and particularly those people who experience severebehavioural and psychological symptoms as a result of their illness. Her role atDSDC involves the development and delivery of training, including the BestPractice in Dementia Care Learning Programme, leading on the support of facilita-tors of the Best Practice programme, writing and developing other trainingprogrammes and courses, and writing articles for pubication. She is currentlygathering data for a major evaluation of the Best Practice Learning Programme.

NICK CARTMELLNHS Devon & NHS South of England (West)Nick is a GP principal in Devon and GP lead for dementia to NHS Devon, NHS Southof England (West), South Devon & Torbay CCG, and the Western Locality of NEWDevon CCG. His involvement with dementia started in earnest in 2010 and he hasbeen working since at all levels to improve primary care involvement in dementiacare. This includes an education programme and ensuring adequate support forinvolvement from secondary care, social care, third sector providers and detailedelectronic information support.

ANDREW CHIDGEYAlzheimer’s SocietyAndrew Chidgey is Director of External Affairs at the Alzheimer’s Society wherehe has worked for 10 years. In that time he has been responsible for leadingcampaigns for mental capacity legislation, access to drugs and changes to thesystem of charging for care. Andrew has advised politicians, policy makers andcommissioners on the needs of people with dementia and their carers, and hasappeared as a spokesperson for the Alzheimer’s Society on many occasions. In2005-2006 Andrew was seconded to the Department of Health where he workedon the White Paper Our Health, Our Care, Our Say and the comprehensivespending review.

ELIZABETH COUSINSKent & Medway NHS and Social Care Partnership TrustElizabeth studied art at degree level in 1979-82, qualified as an art teacher in 1983and worked in secondary and special schools and as a specialist tutor. Shegraduated from Goldsmiths College as an art psychotherapist in 2001 and gainedher Masters degree in Art Psychotherapy in 2004. Her first experience workingwith dementia was on a placement at West Kent Alzheimer’s Society. She currentlyworks for the East Kent Older Adults Psychology Service providing group andindividual sessions on an assessment ward for people with dementia.

MATTHEW COXDementia Care MattersMatthew Cox has recently joined Dementia Care Matters (DCM) as a consultantnurse. His background includes working in home care and as a senior care workerin learning disabilities services. In 2006 he completed a degree in mental healthnursing, and went on to manage several care homes for people with dementia. Hehas worked as a project manager for a large organisation, supporting the head ofcare to roll out the dementia strategy across the group.

JANET CRAMPTONAESOP ConsortiumJanet Crampton has been the lead consultant on the year-long Joseph RowntreeProject, Dementia Without Walls, exploring how York could become a moredementia-friendly city. Until March 2011, Janet was in the DH’s Older People andDementia Branch, and prior to that led the commissioning programme for CSIP andthe National Change Agent Team. Janet is a carer of her mother with dementia.

JO CROSSLANDBradford Dementia GroupJo is a Registered General Nurse and Registered Mental Health Nurse. Shecompleted basic Dementia Care Mapping training in 2002 and qualified as atrainer in 2007. She has worked with people with dementia in a variety of caresettings for over 20 years within both NHS and independent sector organisations.Jo has a BSc (Hons) in Dementia Studies and an MSc in Dementia Studies(Dementia Care Mapping) with the University of Bradford. Jo works as DementiaCare Practice Development Consultant and Trainer with Bradford Dementia Groupat the University of Bradford.

ANNE DEASGuideposts TrustAnne works for Guideposts Trust as a Dementia Information Service Co-ordinatorand is responsible for providing up-to-date impartial information for two countywebsites (Warwickshire and Leicestershire), talks, signposting and `drop-ins.’Anne has a varied professional background. She has worked for two nationalcounselling charities (Relate and British Association for Counselling andPsychotherapy) in information roles. She has also worked as a lecturer for twolarge colleges and tutor/assessor for smaller training providers.

ELIZABETH DENNISUniversity of ExeterLiz began her musical career as a flautist but has also worked as an instrumentalteacher, piano accompanist and music agent. Last year she undertook an MSc atthe University of Edinburgh in Music in the Community. It was during her studiesthat she began to develop an interest in the effect that music has on those withdementia and she had the opportunity to spend some time in a residential carehome investigating this in some depth. Liz continues to work in the field of musicand dementia and her aim is to further develop her research by commencing aPhD later in the year.

CHRISTOPHER DEVASAlzheimer’s SocietyChristopher was diagnosed with Alzheimer’s disease in 2008. After his diagnosishe gave up his job as a magistrate but continued to work by delivering parcels forFed Ex. Christopher was the one of the faces of dementia awareness week in2011and spoke at the UK Dementia Congress in November 2010. Since then he hasspoken about his experience of living with dementia at a number of eventsincluding conferences for GPs and nurses.


Speakers’ biographies D-F UKDEMENTIAC O N G R E S S

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MURNA DOWNSBradford Dementia GroupMurna Downs is Chair in Dementia Studies at Bradford University and Head of theBradford Dementia Group. Her research interests focus on quality of life andquality of care for people with dementia and their families. Her current workincludes: evaluation of service redesign for older people with mental healthproblems; developing partnership working in primary care for people withdementia; and examining awareness and dementia. She has co-authored or co-edited several key texts in dementia care, including ‘Excellence in dementia care:Research into practice’ (McGraw-Hill 2008), ‘Living and dying with dementia:Dialogues about palliative care’ (Oxford University Press 2007) and ‘The futures ofold age’ (Sage Publications 2006).

ANNA DOWRICKAlzheimer’s SocietyAnna Dowrick leads the Alzheimer’s Society early diagnosis campaign, whichinvolves raising awareness of dementia among the public and improving healthprofessional understanding of dementia. She previously led service improvementsin breast care at Breakthrough Breast Cancer, and has been a researcher forLiverpool University and WHO.

GILLIAN DRUMMONDGreater Manchester West Mental Health NHS Foundation Trust (GMW)Gillian Drummond is employed by Greater Manchester West Mental Health NHSFoundation Trust (GMW) as the Dementia Quality Lead for the organisation. Prior tothis she worked for a number of years as a Matron/Senior Manager within theSalford Later Life Services as part of GMW. With a 28-year nursing career predomi-nantly in dementia care, Gillian is passionate about all elements of dementia carewith particular emphasis on end of life care, practice development, promotingquality in dementia and supporting carers. Gillian has a Diploma in Mental Health, aBsc (Hons) in Psychosocial Interventions and PGCE (Practice Educator) qualification.

RACHAEL DUTTONHousing 21Rachael Dutton is a social science researcher manager who has worked inuniversity, voluntary and local government settings in the fields of health, socialcare, usability engineering,and health promotion. At Housing 21 she is responsiblefor a team of researchers and for developing and implementing a nationalprogramme of applied research on the care and housing of older people. Currentprojects include environmental design for people with dementia, evaluations ofdementia specialist schemes and services, and prototyping and piloting assistivetechnologies.

KAREN EASTDukeries HealthcareKaren East is a Registered Mental Health Nurse. She works for DukeriesHealthcare, a small private healthcare provider, overseeing the care provision andmanagement of their alcohol related brain injury services. These services offer amixture of dementia and brain injury care approaches, where clients are able toreturn to the community following successful rehabilitation.

PAUL EDWARDSBradford Dementia GroupPaul is Head of Training and Practice Development and a senior lecturer with theBradford Dementia Group. He is a qualified mental health nurse and prior toworking with the group he spent many years working in the NHS developing careand services for people with dementia. He became a Dementia Care Mappingtrainer in 2000 and has run many courses across the UK and internationally. Heleads a team at Bradford Dementia Group whose aim is to bring about real changein care for people with dementia through effective knowledge transfer. Paul’swork was highlighted on the 2009 BBC programme ‘Can Gerry Robinson fixdementia?’ where he was able to support a home that was in difficulty and on thebrink of closure. Paul is the co-editor of ‘DCM: Experiences into practice’ alongwith Dawn Brooker and is joint author of the Bradford Dementia Group goodpractice guide on ‘Enriched care planning’ with Hazel May and Dawn Brooker.

KAYE EFSTATHIOUBarnet, Enfield and Haringey Mental Health TrustKaye is an experienced mental health nurse with a career spanning over 25 years,the past 16 years of which she has worked for Barnet, Enfield and Haringey NHSTrust. She has worked in older people’s services for seven years with expertise inworking with people with dementia and their families, and latterly in Enfield &Haringey Dementia Home Treatment Team. Kaye developed the idea about Tom’sClub in conjunction with a carer and colleagues from the Admiral Nurse Serviceand is Project Lead for Tom’s Club.

RUTH ELEYAESOP ConsortiumRuth Eley is a founding Director of the AESOP Consortium, which providesconsultancy in heath, housing and social care, and of the Life Story Network CIC.As the National Programme Lead for Older People and Dementia in theDepartment of Health, she led the implementation support for the nationaldementia strategy and contributed to the development of the commissioning packfor dementia. As well as work on dementia-friendly communities she recentlymanaged the DH funded ‘Your Story Matters’ training programme in life story workfor health and social care staff working with people with dementia.

LINDSAY EVANSBrighton Sussex University Hospital Trust (BSUH)Lindsay Evans is a specialist occupational therapist working with people withdementia at the Princess Royal Hospital, Haywards Heath. Lindsay was involved insetting up the Poynings Unit, a Shared Care dementia unit and developing an OTOutreach Service across the rest of the site to provide specialist mental healthassessment and interventions, support, advice and signposting. She is alsoinvolved in providing staff training and service development to ensure BSUHbecomes a dementia-friendly trust. Lindsay has experience of working in medicaland mental health settings with adults of all ages.

DAREN FELGATEDementia Care MattersDaren is a Consultant Trainer and Head of Learning Resources with Dementia CareMatters. He has worked in learning and development for over 20 years, 15 of whichhave been in the field of dementia care. At the Alzheimer’s Society he helped tocommission, develop and produce a wide range of publications and trainingresources including ‘Yesterday, Today, Tomorrow.’ In 2008 he joined AgeCare, acharity with care homes where his role was to provide dementia care relatedlearning and supporting the development of dementia care within AgeCare andother organisations. Daren joined Dementia Care Matters in 2010 working on awide range of learning and development programmes, his favourite beingleadership development.

TIM FORESTER-MORGANThe Dementia Training Company LtdTim has specialised in the development and delivery of dementia awarenesstraining programmes, dementia service development consultancy and therapeuticenvironmental design consultancy for the last 20 years. Tim has a designbackground and after running a variety of arts workshops, began working in a carehome for older people as an activities organiser. He worked in the third sectoracross a variety of different care management, service management and servicedevelopment roles within older peoples services for over 15 years before focusingon his dementia specialist role.

DAVID FRANCISCare and Social Services Inspectorate WalesDavid is Assistant Chief Inspector for Operations in Wales. In addition tooverseeing all frontline services he is responsible for the modernisation of theprocesses for inspection, registration and enforcement in Wales. He has a strongbackground in regulation having previously worked for NCSC, CSCI and CQC. Priorto moving to Wales he worked for the Department of Health implementing thenational dementia strategy in England. He was a pioneer in the development ofthe Short Observation Framework for Inspection (SOFI) for dementia services. Hisinterest in the support of people with dementia and their carers extends into thecommunity having run a ‘Music and Memories’ project for many years.


Speakers’ biographies GUKDEMENTIAC O N G R E S S

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VERONICA FRANKLIN GOULDArts 4 DementiaVeronica Franklin Gould, curator and biographer, is chief executive of Arts 4Dementia (A4D). In March 2011, the charity was registered, and a wide-rangingpilot programme for people in the early stages of dementia and their carers wasentered in the Mayor’s Culture Diary for 2012. Inaugurated with the 2011 Arts 4Dementia Best Practice Conference, this London Arts Challenge in 2012programme of thirteen projects at arts venues around the capital, offering freeweekly courses in art, dance, South Asian dance, drama and scriptwriting, music,photography and poetry, was awarded the London 2012 Inspire Mark. Veronica,who has been liaising with Dementia UK to provide training for arts organisers, iskeen to encourage wider development of these re-energising workshops.

MARTIN FREEMANGP advisor on dementiaMartin has recently retired from clinical practice after 33 years as a GP. He wasthe GP lead for dementia for Gloucestershire for 3 years, and is currently anadvisor on dementia to the SHA South of England (West), and a non-executivedirector of 2Gether NHS Foundation Trust in Gloucestershire.

LUCY FROSTBrighton & Sussex University Hospitals NHS TrustLucy is a mental health nurse with 10 years’ post qualifying experience. She hasworked in hospitals, community settings and in both primary and acute care. Sheis currently Dementia Champion for Brighton and Sussex University Hospitals.Lucy is heavily involved in looking at ways that we can improve the experience ofpeople living with dementia using acute hospital services. She also works directlywith people with dementia who come to use services, and supports ward teamsand nursing staff to deliver person-centred care.

ALICE FULLERNational Council for Palliative CareAlice is Policy & Parliamentary Affairs Lead at The National Council for PalliativeCare (NCPC), the umbrella charity for all those involved in palliative, end of lifeand hospice care in England, Wales and Northern Ireland. NCPC believes everyoneapproaching the end of life has the right to the highest quality care and support,wherever they live, and whatever their condition. Alice works with the charity’ssmall but dynamic policy team to make this a reality. NCPC has been working toimprove palliative and end of life care for people with dementia and their familiesfor the last six years, and was instrumental in ensuring the national dementiastrategy featured end of life care when published by the Department of Health in2009, a year after the national end of life care strategy. Alice worked in publishingprior to moving into the voluntary sector in 2009. She is a trustee for the BritishHumanist Association and Mind in Haringey.

CHRIS GAGELadder to the MoonChris is a social entrepreneur, with a background in community and engagedtheatre practice. As a result of his experience with his grandmother living in carewith dementia, and through his work in residential care, he has pioneered Rela-tionship Theatre® as an effective model for workforce, culture and communitydevelopment in dementia care settings. He has been CEO of Ladder to the Moonsince 2005. Chris holds a degree in Theatre and Performance (Community) fromthe University of Warwick.

CHRISTINE GALLAGHERBromley MindChristine has been employed in the care sector for 25 years. She worked initiallyin residential and nursing homes and then moved into home care developing herknowledge of dementia and care provision in the community. In 1995 she joinedCroydon Crossroads and from 1999 coordinated their Alzheimer’s project. In 2003she joined the Alzheimer’s Society coordinating day services. She became anapproved trainer with the Alzheimer’s Society in 2006. In 2010, she joinedBromley Mind as a Dementia Skills Coach, developing training programmes forExtra Care Housing in Bromley. In 2011 she piloted a successful Carers Training andSupport Programme providing group workshops and individual training sessionswithin carers’ own homes.

AARTI GANDESHARoyal College of PsychiatristsAarti has an undergraduate degree in psychology from the University of Leeds,and joined the National Audit of Dementia project in 2009. Aarti’s main interestsare evaluating patient experience and staff attitudes towards caring for peoplewith dementia in general hospitals.

LARRY GARDINERLarry Gardiner has multi-infarct vascular dementia. He first noticed problems withmemory and organisation at age 50 and he now attends the Memory Clinic at JohnRadcliffe Hospital in Oxford. Early onset dementia has had a devastating effect onhis life and his family. The onset of dementia came at a time when Larry had ademanding job, a mortgage and three school age children at home. Since losinghis job Larry has worked as a dementia activist and advocate. He is now a trusteewith Oxfordshire Advocacy, an advisor for Alzheimer’s Society, a Non-ExecutiveDirector with Dementia Adventure CIC and an enthusiastic champion for YoungDe-mentia UK. In this capacity he has supported public relations, outreach, marketingand publicity efforts. He has recently helped to launch a learning resourceproduced through the ‘No Limits: Re-imagining Life with Dementia’ project. Larryreceives a 1:1 support service from YoungDementia UK and he has a live-inPA/carer to help him continue developing influence as a conference speaker, mostrecently at an event organised by the Association for Dementia Studies at theUniversity of Worcester. Larry also works with professionals, clinicians, practition-ers and medical students, most recently as a speaker at the Royal College ofGeneral Practitioners. He has decided to create an independent, representativeand autonomous dementia working group in this country. He has also beensponsored by Alzheimer’s Society and YoungDementia UK to participate in theinaugural proceedings to create a European Dementia Working Group.

KATHRYN GILFOYWestminster ArtsKathryn Gilfoy has worked as an artist and programme manager within communityarts for the last 26 years, and has developed a passion for work with older peopleincluding intergenerational projects. She has developed programmes for peoplewith dementia with Studio 3 Arts, Magic Me and now through Resonate, an artsprogramme for older people with mental health issues including dementia,managed by Westminster Arts and supported by NHS Westminster. Kathryn alsocurrently works as a freelance artist for Age Exchange, the European Reminis-cence Network and Magic Me.

NORI GRAHAMAge Action AllianceDr Nori Graham is Emeritus Consultant in the Psychiatry of Old Age at the RoyalFree Hospital. She was the National Chairman of the Alzheimer’s Society forEngland from 1987 to 1994 and Chairman of Alzheimer’s Disease International(ADI) from 1996 to 2002. In 2010 she was invited to join the Older Age workinggroup for the Centre for Social Justice. In 2011 she became a member of thesteering group of the Age Action Alliance and she chairs the working group onPublic Health and Active lifestyles. Her most recent publication is with JamesWarner, ‘Understanding Alzheimer’s disease and other dementias’ (BMA 2011).

RANDY L. GRIFFINGriffin Consulting, USARandy has more than 30 years of experience in dementia care, ranging fromnursing and nutritional services to programme development and healthcareadministration. She is a Certified Holistic Nurse, Reflexologist and TherapeuticTouch practitioner and instructor. Randy is pioneering the practice of ‘intentionalcare-giving’ for people with dementia. She is the author of ‘S.A.F.E. responsetechniques in crisis situations’, a four-step process to show staff how to safelyhandle agitation and address aggressive behaviors when caring for people withdementia. Randy’s background in nursing and culinary training as a chef in Parisprovided the impetus for her innovative approaches to nursing care, diningcreations and culture change for long-term care facilities. ‘Dining with grace’ isone of the programmes she created specifically to enhance the dining experiencefor people with dementia. Randy’s DVD, ‘An introduction to therapeutic touch’ wasreleased in June 2012. Her latest programme Bird Tales, a unique interactiveprogramme, was developed in conjunction with the National Audubon Society. Sheis also the author of a new book ‘Changing the culture for dementia care’.


Speakers’ biographies G-H UKDEMENTIAC O N G R E S S

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REINHARD GUSSKent & Medway NHS and Social Care Partnership TrustReinhard Guss is a Consultant Clinical Psychologist in Older People’s services andclinical lead for young onset dementia with Kent and Medway NHS and Social CarePartnership Trust. He is serving on the national committee of the Faculty for thePsychology of Older People (PSIGE) of the British Psychological Society, andacting as their current dementia lead. Reinhard trained in the 1980s in clinicalpsychology at Heidelberg University and has worked in the NHS since 1989,specialising in psychological interventions and therapeutic approaches withpeople with a dementia.

TESSA GUTTERIDGEYoungDementia UKTessa has worked in this specialist field since 1996. She is currently the Director ofYoungDementia UK. Having researched the impact of young onset dementia on thelives of those with the condition, she was instrumental in developing a range ofaward-winning services in Oxfordshire and is now raising awareness of thiscondition further afield. Her values and work are shaped by her personalexperience with dementia as well as her background in mental health advocacyand advice work following a first career in business and publishing.

KATE HARWOOD Uniting Carers Dementia UKKate has been caring at home for the past 9 years for her husband Marco who hasfronto-temporal dementia. As a former teacher and campaigner for equality andsocial justice Kate is now passionate to raise awareness about dementia and thevital role of family carers.Kate has done her best to enable Marco to beindependent, while balancing supporting him and being involved where she can, toshare her experience. An active member of Uniting Carers Dementia UK, Kate hasfocused on the implementation of the Dementia strategy, nationally and locally inCamden, raising the voice of family carers.

RICHARD HAWKINSJournal of Dementia Care & Caring TimesRichard Hawkins is the Editor-in-Chief of Caring Times and the Journal ofDementia Care. He is co-founder of Hawker Publications, a publishing companywith interests in the medical, nursing and social care sectors. Apart frommagazines Hawker Publications publishes books and directories, hosts an onlinecare portal, www.careinfo.org, and organises a range of care conferences.

KAREN HAYESArts and dementia consultantKaren Hayes is a poet and performer specialising in improvised and devised work.Since 2005 she has been concentrating on working with people with dementia andexploring with words, music and through visual arts and film/performance howbest to enable people with dementia to express and articulate feelings. At thesame time she has worked across art forms with family members, carers and staffto enable them to reflect on how their lives are touched by the condition. Hercreative partnership with Richard Aylwin has led to the formation of their artscompany Margent. She has published an anthology, ‘The edges of everywhere’and, as Margent, co-produced another, ‘Only just orchid’. She has worked with theWelsh National Opera creating a devised opera film, ‘Horizons’. During 2012 shehas been creative consultant for dementia-focused theatre company CollectiveEncounters in Liverpool and writer in residence with the Sensory Trust in Cornwall.

MARIE HENDERSONTees, Esk & Wear Valleys NHS Foundation TrustMarie Henderson is an occupational therapist with the care home liaison team inNorth of Tees locality in Tees, Esk & Wear Valleys NHS Foundation Trust. She has aninterest in using Dementia Care Mapping as a collaborative tool to change theculture of care within care homes and in promoting the positive risk taking in riskadverse cultures. For the past two years Marie has been working on a project withcare homes to increase their use of non-pharmacological interventions.

JENNIFER HEWSONAlzheimer’s SocietyJenny Hewson is a dementia support worker and has worked for Alzheimer’sSociety for nearly three years. Jenny was trained as a CrISP facilitator in March2012 and has delivered 3 CrISP sessions in Hertfordshire so far. Jenny volunteeredto be trained for CrISP as she felt there was a need for carers to receive moreinformation at the beginning of the dementia journey in order to help themsupport themselves and the person they care for. Before working with theAlzheimer’s Society, Jenny studied psychology with neuroscience at theUniversity of Leicester, completing her dissertation on Alzheimer’s disease.

CYNTHIA HEYMANSONCircle Dance in DementiaCynthia Heymanson has worked in a range of roles since 1983 including homecare, care homes, and a social work assessment team. She has worked for EastSussex County Council, The Relatives & Residents Association, and as DementiaDevelopment Worker for the Royal Borough of Kensington & Chelsea. She hasworked as an independent trainer in care homes and for Brighton & Hove CityCouncil. Currently she provides circle dance and dementia training and is involvedwith Glyndebourne Opera Education in their annual dementia project.

BARBARA HODKINSONThe Butterfly SchemeBarbara Hodkinson, the leader of the Butterfly Scheme, was a secondary school-teacher with pastoral and academic managerial responsibilities when she began tocare for her mother, who had vascular dementia. Her experiences of hospital carefor people with memory impairment led her to develop a practical system forsupporting all hospital staff in delivering appropriate, personalised care to thesepatients. Since her mother’s death from dementia, Barbara has run the scheme full-time and continues to lead an average of two launches a week at incoming hospitals.

SUSANNA HOWARDLiving WordsSusanna Howard leads Living Words residencies, which have taken place in carehomes, hospitals, arts centres and local libraries. Looking at creative ways of‘being’, Living Words use the spoken and written word to improve well-being andaid person-centred communication.

GARETH HOWELLSNorth Bristol NHS TrustGareth is the Deputy Director of Nursing at North Bristol NHS Trust, havingpreviously been an Assistant Director of Nursing at the Royal United Hospital inBath. After qualifying as a Registered Nurse in 1987, Gareth has held a variety ofclinical and senior managerial posts. He spent three years as the Director ofNursing at NHS Direct Wales and four years as the Divisional Nurse for Medicine,Elderly Care and Community Services in Swansea. In 2009, Gareth graduated witha Master of Arts in Healthcare Law and Ethics and holds a specialist interest in thelegal and ethical aspects of care.

U HLA HTAYUniting Carers, Dementia UKU Hla Htay is a former family carer of his wife who was initially diagnosed withearly onset Alzheimer’s type of dementia and progressed to severe dementia,caring alternatively at own home and at a care home for 16 years. Co-researcherof NIMHE(National Institute for Mental Health in England) pilot mental healthclinical trials website, posted at INVOLVE PPI web link, presented at INVOLVEConference; contributed in PIP (Public Information Pack). Research NetworkVolunteer at Alzheimer’s Society, campaigner for dementia medicines, dementiacare at home and palliative care and a member of DAA (Dementia Action Alliance).A Carer Investigator at various dementia researches at the UCL (UniversityCollege London). A member of Uniting Carers, Dementia UK; give regular talks atDementia UK Training Courses on caring experience, accessing social andhealthcare services; working with commissioners, statutary and agency carers.PPI (Public and Patient Involvement) member at MRC (Medical Research Council),Mental Health Foundation, and DeNDRoN (Dementias and NeurodegenerativeDiseases Research Network. A member of Cochrane Dementia & CognitiveImprovement Group and Cochrane Consumer Network. A Carer Ambassador(Carers UK) at CCGs (NHS Clinical Commissioning Groups).


Speakers’ biographies H-KUKDEMENTIAC O N G R E S S

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JEREMY HUGHESAlzheimer’s SocietyJeremy Hughes joined Alzheimer’s Society as Chief Executive in November 2010. He hasled the charity in producing a five year strategy, ‘Delivering on Dementia 2012-17’.Jeremy co-chairs the Dementia Friendly Communities Champions Group with AngelaRippon as part of the Prime Minister’s Challenge on Dementia. Previously Chief Executiveof Breakthrough Breast Cancer, he has held leadership posts at the InternationalFederation of Red Cross & Red Crescent Societies, British Red Cross, Leonard Cheshire,Muscular Dystrophy and NCH Action for Children. Jeremy is currently a Trustee ofSightsavers and Chair of National Voices, the umbrella health and social care charity.

JACKIE HUME-RICHARDSONTrue 2 SelfJackie’s professional and personal development over the past 27 years has resulted inTrue2self, a well-being company that offers compassionate and mindful approaches tocare. Jackie has worked as a nursing assistant, home manager, social worker, organisa-tional trainer and Personal Outcomes assessor. She is currently a freelance trainingconsultant with a number of organisations including Frameworks 4 Change. She offersTai Chi Movement for Well-being, meditation and enquiry as additional approaches.

ANDREW HUNTERNational University of Ireland, GalwayAndrew qualified as a mental health nurse in 1996 and worked in various services inEdinburgh, training in cognitive behavioural therapy and completing his MSc in Education.He went on to lecture in mental health nursing at Edinburgh University and undertakeresearch and lecturing while working at The University of Manchester. Since January2008 Andrew has been lecturing and researching at The National University of Ireland,Galway. He specialises in teaching communication and psychosocial interventions tounder- and postgraduate nursing students and is in the final year of his PhD research.

NICOLA JACOBSONDance and DementiaFollowing a long-held passion for dance, Nicola qualified as a dance movement psychother-apist from Goldsmiths, University of London, in 2007. Her employment background over 15years has been in care, care management, advice, support work, and training delivery. Shehas worked for Alzheimer’s Society both in Sheffield and Worcestershire and currentlyworks part-time as Dementia Practice Development Coach for the Association forDementia Studies at the University of Worcester. She is self-employed as a dancemovement psychotherapist, facilitating dance therapy and circle dance sessions for peoplewith dementia and family members in care settings and in the local community.

ANKE JAKOBKingston UniversityAnke Jakob is an academic and design practitioner whose research interests focus onexploring fields of design related to sensory and spatial experiences employing light,material/textiles and digital media. Anke currently holds a position as post-doctoralresearch fellow at Kingston University London. In 2007, she was awarded a PhD at BathSpa University. Until 2010 Anke co-directed the architecture and design practice leit-werk ltd based in London. Before engaging in interdisciplinary projects, she practisedas a textile and surface designer within the industry in Germany and the UK.

TREVOR JARVISTrevor was diagnosed with vascular dementia in 2001 and has since spoken at theAlzheimer’s Society national conferences on younger people with dementia, beenan active committee member for a self-help group for younger people withdementia in Doncaster, and is an active member of the Royal College of Psychia-trists Consumer Group. Trevor spoke at the 2011 Dementia Congress and he hasbeen involved in the Champion Group for Dementia Friendly Communities, as partof the Prime Minister’s Challenge on Dementia.

ANN JOHNSONAlzheimer’s Society Living with Dementia Network MemberAnn is a trained nurse and was a lecturer in nursing until her retirement in 2005. Shewas diagnosed with Alzheimer’s disease when she was 52. Ann is now 59. Shespeaks at various events around the country about living with Alzheimer’s diseaseand dementia. She is an Ambassador for Alzheimer’s Society. Ann has recently beenawarded an Honorary Doctorate from the University of Bolton as Doctor of HealthCare for her work raising awareness of, and trying to dispel the stigma of, dementia.

DAVID JOLLEYPSSRU Manchester UniversityPresently David Jolley is consultant psychiatrist and honorary reader with thePSSRU Manchester University. He is also an honorary consultant at Willow WoodHospice and Gnosall Medical Centre. He has published and presented on a widerange of topics relating to old age. His current main interests include providingservices within primary care, holistic care support throughout the course ofdementia and other mental disorders, including terminal care. He is a patron ofDementia UK. He was previously Chairman of the Section (now Faculty) of Old AgePsychiatry, Royal College of Psychiatrists, Medical Director and Professor of OldAge Psychiatry Wolverhampton 1995-2003, and Consultant Psychiatrist at SouthManchester 1975-95.

SHARON JONESBradford Dementia GroupSharon is a state registered occupational therapist, who worked for the NHS for29 years, and in the private sector for three and a half years. Sharon is anapproved Dementia Care Mapping (DCM) trainer, and has worked with people withdementia for a number of years. She has used DCM extensively within her ownpractice in order to improve the lived experience of dementia. Sharon joinedBradford Dementia Group in October 2009 as a Practice Development Consultantand Trainer. She works with organisations and care practitioners to develop andimprove services for people living with dementia.

LESLEY JONESGreater Manchester West MH Foundation TrustLesley has been a mental health nurse for over 23 years. For the last 14 years shehas specialised in later life mental health and has worked with people who havefunctional and organic mental health problems. Throughout her career Lesley hasundertaken a number of roles from staff nurse, sister, practice development nurseand clinical leader. For the last 4 years she has worked as an advanced practi-tioner in dementia care. This position is embedded within inpatient dementia careworking with individuals whose dementia is in the moderate to severe stages andtheir families. Lesley’s professional areas of interest include exploring challengingbehaviour in dementia, pain, palliative and end of life care, physical complexity indementia, life story work and supporting relatives. She also enjoys teaching,training and presenting work at conferences.

POLLY KAISERNational Life Story NetworkPolly Kaiser has always worked to promote person-centred approaches including lifestory work. She was the National Lead for Mental Health in Later Life for the MentalHealth Equalities Programme within the National Mental Health Development Unit(NMHDU) at the Department of Health promoting age equality (2009-2011), where sheedited the ‘Let’s Respect for care homes’ toolkit with a team of national experts. Sheis employed part-time in Pennine Care NHS Foundation Trust as a consultant clinicalpsychologist. She sits on the national faculty of old age psychology PSIGE .

MARTINA KANEAlzheimer’s SocietySince joining the Society in January 2011 as policy adviser, Martina has worked ona range of projects, including dementia and end of life, and supporting the inquiryinto diagnosis by the All Party Parliamentary Group on dementia. She alsosupports the volunteer group who provide information and support on appealingNHS Continuing Care decisions. Prior to joining the Society, Martina spent fouryears at Rethink, first in the publications team, then as policy officer. Martina isalso a psychodynamic counsellor and has worked at City University and with acommunity service in south east London.

JAN KENDALLDementia Advocacy Network (DAN)Jan is the manager of the Dementia Advocacy Network (DAN), a national support networkfor independent advocates. She has held this post for almost 5 years following 15 years invarious roles in the statutory and voluntary sector supporting people with dementia.Through DAN Jan provides training and networking opportunities for over 250 advocates,promotes best practice in advocacy and campaigns for increased access to independentadvocacy for people with dementia. DAN has two publications which explore anddemonstrate how advocacy can enable the voices of people with dementia to be heard.


Speakers’ biographies K-L UKDEMENTIAC O N G R E S S

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CLAIRE KEOGHHousing 21Dr Claire Keogh has previously worked as a Research Fellow at the University ofSalford, as an Undergraduate/Postgraduate Information Systems Development andResearch Methods Lecturer at Manchester Metropolitan University and a ResearchPolicy Officer at Flintshire and Manchester City Council. Claire has publish widelyand presented at national and international conferences and workshops. CurrentlyClaire is employed as a Research Project Lead at Housing 21 on the Department ofHealth funded Portable Care Packages: Care from Housing to Hospital pilotresearch project, exploring the effectiveness and impact of keyworkers from theExtra Care setting supporting tenants in hospital.

CLAIRE KIDGELLNational Institute for Health ResearchClaire joined the NIHR Public Health Research programme in May 2010 as a SeniorProgramme Manager. She has over five years’ experience working in researchmanagement and administration having both worked for Cardiff University as aStrategic Research Co-ordinator and for the Wellcome Trust as a Science PortfolioAdvisor. She completed a PhD in microbiology at Imperial College London andundertook postdoctoral research at the Scripps Research Institute, San Diego,USA.

JOHN KILLICKDementia PositiveJohn’s background is in teaching and writing. He began writing work with peoplewith dementia in 1993, and since then has worked to promote communicationthrough the arts generally. John has presented, written and broadcast widely onthis subject. John’s main current interests include how humour, improvisatorydrama and play can open up communication and help to develop relationships. Hismost recent publication is ‘Playfulness and dementia’ (Jessica Kingsley 2012).Thewebsite he shares with Kate Allan is www.dementiapositive.co.uk

SALLY KITCHINCambridge and Peterborough NHS Foundation TrustThe Dementia Carers’ Support Service recruits volunteers who have cared for arelative/ friend with dementia in the past to become befrienders of thosecurrently in the informal carer role, thus offering peer support. Sally Kitchin,mental health nurse and joint coordinator of the project, will be speaking at UKDementia Congress 2012 alongside volunteer befrienders Jemima Atkinson,Raymond Leverett and Julia Martos.

SALLY KNOCKERDementia Care MattersSally is a consultant trainer with Dementia Care Matters, training on theiruniversity recognised one year course, working alongside managers and careworkers developing Butterfly Service™ care homes and providing tailoredconsultancy and training. She previously worked for NAPA for ten years andmaintains a specialist interest in bringing activity, fun and variety into the lives ofolder people. Sally has written a range of publications on activity and on theneeds of older lesbians and gay men. Sally is particularly passionate aboutbringing about transformational change in care homes through developinginspiring leaders and working alongside staff to develop their skills.

JENNY LA FONTAINEUniversity of WorcesterJenny La Fontaine, has many years’ experience working in the NHS including as aconsultant nurse and Admiral Nurse. Her work with the Association for DementiaStudies has included research and service evaluations in early intervention anddementia adviser services. She has also developed courses in early intervention indementia and in specialist mental health practice with people living withdementia. She has specialist interests in early intervention, and in working thera-peutically with families and people living with dementia, and in younger peoplewith dementia. She has a Florence Nightingale Research Scholarship for her PhDstudies.

NORMAN LAMB MPMinister of State for Care ServicesNorman Lamb’s first entry into politics was in the unlikely role of ParliamentaryAssistant for a Labour MP in the early 1980s. He went on to win a seat on NorwichCity Council, in time becoming leader of the opposition. He was first encouragedto stand for Parliament in 1992 and, after two attempts in 1992 and 1997, won theseat of North Norfolk in 2001. Following his election to Parliament, in the autumnof 2001 Norman was appointed Lib Dem Deputy Spokesperson for InternationalDevelopment. In November 2002 he moved to become Shadow Treasury Ministerin the party’s Treasury Team and in January 2003 he was elected to the influentialTreasury Select Committee. In October 2003 he was appointed PPS to CharlesKennedy. Following his re-election in 2005, Norman Lamb was promoted to theLiberal Democrat Shadow Cabinet, with responsibility for Trade & Industry. InMarch 2006, Norman was appointed as Chief of Staff to the new Liberal DemocratLeader Ming Campbell, and in December 2006 he became Liberal DemocratShadow Health Secretary. After the 2010 General Election, Norman was appointedchief parliamentary and political advisor to Nick Clegg MP, the Deputy PrimeMinister in the coalition government between the Liberal Democrats and theConservative Party. He was also appointed as an Assistant Government Whip.Norman became Chair of the Liberal Democrats’ Federal Policy Committee in 2010.Norman and Mary married in 1984. They have two boys. Norman is a long-standingNorwich City supporter and season ticket holder.

RHIANNON LANEBright ShadowRhiannon Lane is co-Director of Bright Shadow, a community performancecompany whose mission is to strengthen, value and celebrate the lives, storiesand character of communities and individuals. Bright Shadow has been producingperformance-based projects for people with dementia in care settings since 2009.Its aims are to use performance techniques to promote group activity that allowsfor individual expression, enjoyment and that increases both social and emotionalwell-being for all participants.

ISABELLE LATHAMUniversity of Worcester, Association of Dementia StudiesIsabelle has 15 years’ experience working with people living with dementia in avariety of settings. She managed an advocacy service for people with dementiaand those experiencing abuse, later specialising in safeguarding adults advice andeducation for a national care provider. Isabelle has also worked as training anddevelopment manager for a Safeguarding Vulnerable Adults Board. Isabelle iscurrently a Research Associate at the Association for Dementia Studies,University of Worcester, conducting a nationwide study into the impact of organi-sational culture on the care experiences of older people living with dementia inresidential and nursing care.

SHIRLEY LAWDSDC University of StirlingShirley is responsible for developing, leading and managing the delivery of theBest Practice Continuous Personal Development programmes in dementia care topublic and private care homes and hospitals which have been deliveredthroughout the UK, Netherlands and Malta. She is a mental health nurse andacknowledged as an authority in the care of people with dementia. Shirley wasrunner-up in the Scottish Health Awards 2010 in the Mental Health category. Shehas authored, developed and presented a customised range of training coursesand materials in the care of people with dementia to diverse audiencesthroughout the UK and Europe, presented at DSDC national conferences, nursingconferences and national organisations

DANUTA LIPINSKATrainer/therapistDanuta has worked with men and women with dementia, their relatives andprofessionals who support them both in the USA and UK for thirty years. As apsychotherapist in relationship with men and women with dementia, Danuta andSusanna Howard of LivingWords discovered a shared appreciation for the innerand outer worlds and creative experience of persons with dementia and how wecommunicate with one another. Danuta and Susanna will present a workshoptogether at UK Dementia Congress 2012.


Speakers’ biographies L-MUKDEMENTIAC O N G R E S S

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RACHAEL LITHERLANDInnovations in Dementia CICRachael Litherland has worked with older people and people with dementia for thepast fourteen years. With a background in psychology and advocacy, shedeveloped and managed the national Living with Dementia programme for theAlzheimer’s Society between 2000 and 2006. This included providing leadershipon issues relating to the involvement and support of people with dementia andsupporting people with dementia in service and information development,campaigning and self-advocacy. Rachael now works through a community interestcompany, Innovations in Dementia, working on a range of projects with peoplewith dementia.

TANYA LITTLEBradford Dementia GroupTanya qualified as a registered nurse in 1991, and has worked since then in avariety of roles supporting vulnerable adults within the health and social caresectors in the Kent area. Tanya has worked as an independent consultant trainerfocussing on developing and delivering dementia training to the independentsector, NHS and social services care workers. She has also spent time recently asa training consultant for Kent & Medway Safeguarding Vulnerable AdultsCommittee. Tanya joined Bradford Dementia Group as a Dementia Care PracticeDevelopment Consultant and Trainer at the end of January 2011. Since then shehas delivered DCM training in the UK and Italy. She is currently working co-leadinga two year programme culture change within a large care home in London.

BUZ LOVEDAYDementia TrainersBuz Loveday is the lead trainer of DementiaTrainers(www.dementiatrainers.co.uk), a small team of specialist trainers working withorganisations including the NHS, various London boroughs and county councils,and many private and voluntary sector care providers. Buz runs a number ofaccredited training courses, including programmes for dementia care leaders andtrainers. Buz is co-author, with Tom Kitwood, of the training manual ‘Improvingdementia care’ and she has written extensively for the Social Care Institute ofExcellence and the Alzheimer’s Society. Buz is the author of the new book‘Leadership for person-centred dementia care’ published by Jessica Kingsley.

ELAINE MACGREGORKent & Medway NHS and Social Care Partnership TrustElaine originally qualified as a botanist but after raising two children commencedwork in care homes providing activity opportunities for residents. She trained asan occupational therapist, qualifying in 2007. Since then she has worked witholder adults for Kent and Medway NHS and Social Care Partnership Trust. She hasdeveloped a particular interest in working with people with dementia, both asinpatients and living in the community and is currently studying for a Mastersdegree in Dementia Studies. She enjoys supporting the development of new andcreative interventions for people with dementia and their carers.

CATHERINE MACLEODDSDC Bangor UniversityCatherine MacLeod is a Research Officer at the Dementia Services DevelopmentCentre, Bangor University, and recently completed her PhD at the University ofStirling. She is interested in the study of memory and cognition, particularlyfactors influencing changes in cognition across the lifespan and those maintainingcognitive function. She works on several projects including the Cognitive Functionand Ageing Study Wales, the Wales Dementias and Neurodegenerative DiseasesResearch Network, and the Dementia and Imagination project. Through the lattershe looks at the challenges in assessing impact of arts engagement on quality oflife, health and well-being of people with dementia.

EMILY MALETBradford Dementia GroupEmily’s background is in mental health nursing. For the majority of her clinicalcareer she worked in acute hospital liaison. Her role at Bradford Dementia Groupinvolves training on their practice development projects and teaching on theirdistance learning BSc in Dementia Studies. She is currently working on researchwhich explores the experiences of peer facilitators of learning in dementia care.

NEIL MAPESDementia Adventure CICNeil Mapes is the founder and director of Dementia Adventure CIC. He is a CloreSocial Fellow and was recently honoured with an International Dementia Excellenceaward in Sydney. Neil was selected by an expert panel of judges at NESTA and theObserver newspaper as one of ‘Britain’s New Radicals’, a list of 50 people andorganisations changing Britain for the better. Neil has a background in clinicalpsychology and dementia advocacy and also has experience of leading adventuretravel holidays in Europe, Asia Minor and South America.

ABIGAIL MASTERSONAbi Masterson Consulting LimitedAbigail Masterson established her own consultancy company in 1998. Prior to this sheheld clinical, education and research posts in organisations including St Bartholomew’sHospital, the Royal College of Nursing and the University of Bristol. Abi has extensiveexperience in evaluating service and practice developments and has been workingwith Sarah Waller and the Enhancing the Healing Environment (EHE) team at the King’sFund, supporting the evaluation of the EHE projects focused on dementia.

SUE MCLEANCommunity Integrated CareSue McLean led the development of Community Integrated Care’s ground-breaking‘EachStep Blackley’ dementia care service in Manchester. Sue is a qualified nurse withover two decades experience in the care of older people, working in a variety of senior,strategic roles in both the not-for-profit and private sectors. Having overseenCommunity Integrated Care’s wide portfolio of services for older people since June2009, holding the role of Director for Senior Care, Sue has recently become the charity’sDirector of Quality and Standards. In this position she takes overall strategic responsibil-ity for the delivery of quality standards, compliance and safeguarding in the charity.

JULIENNE MEYERMy Home Life programmeJulienne Meyer is Professor of Nursing at City University and Director for My HomeLife (MHL) programme, a UK-wide initiative that promotes quality of life for thoseliving, dying, visiting and working in care homes for older people. MHL is led by AgeUK, in partnership with City University and Dementia UK. Julienne is a registerednurse and qualified teacher, with a substantial portfolio of research experience incare for older people. This work has been undertaken in a range of health and socialcare settings and focuses on improving practice through participative methods.

ALISOUN MILNEUniversity of Kent at MedwayDr Alisoun Milne has worked at the University of Kent for sixteen years. Her key researchinterests are mental health in later life, early diagnosis of dementia, older carers andservice development. She has received funding from a range of sources including theDepartment of Health. Since 2006 she has published 30 papers in peer reviewed journals,8 book chapters and co-edited a book on mental health and care homes in 2011. Alisoun isa member of the Standing Commission on Carers, the NICE Social Care Quality StandardsTopic Expert Group and the British Society of Gerontology Executive Committee.

STEVE MILTONInnovations in Dementia CICSteve Milton has worked in social care since 1987 as a researcher, writer, trainer, andservice manager. He has worked in the dementia field since 1995, running the Alzheimer’sSociety helpline from conception until 2002. He became an associate trainer for DementiaVoice in 2003 and received Alzheimer’s Society accreditation in 2004. Now a co-director ofInnovations in Dementia (CIC) Steve leads their work around training and policy.

EDANA MINGHELLAEdana Minghella ConsultingEdana is an experienced independent consultant in health and social care policy,service development and research. She specialises in collaborating with people whouse services to inform policy, service redesign & improvement. Formerly AssociateDirector at the Audit Commission and Healthcare Commission, Edana has providedconsultancy to the DH as well as SHAs, PCTs and local trusts. Recent publicationsinclude a Framework for the Dementia Commissioning Pack (DH, 2011), a regionalPersonality Disorder strategy for South West SHA, and a national report onimproving cancer diagnosis (Delayed Diagnosis of Cancer, NPSA, 2010).


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GARY MITCHELLQueen’s University BelfastGary Mitchell graduated from Queen’s University Belfast with First Class Honoursin Nursing Sciences (2010). He achieved a Masters with Distinction from Queen’sUniversity (2011) and has worked as a staff nurse in a dementia care unit inNorthern Ireland with Four Seasons Health Care. Gary is currently enrolled withQueen’s University as a PhD student.

ALISON MOON University Hospitals Bristol NHS Foundation TrustAlison joined the NHS in 1980 and qualified as a Registered Nurse at FrenchayHospital, Bristol. She has a wealth of experience as a clinician and leader in bothsecondary and primary care and has previously held roles of Director of Nursingand Clinical Governance at Yeovil District Hospital NHS Foundation Trust and atBristol North Primary Care Trust. Alison has a proven record and passion forensuring the patient experience and voice is at the centre of all services andimproving standards of care, delivering service improvements, influencing changeand pioneering new roles both locally and nationally. Alison was awarded an MA inManagement in 1999 from the Bristol Business School. In addition to her role aschief nurse at University Hospitals Bristol NHS Foundation Trust, Alison has alsotaken on the Regional Clinical Champion role for improving care for people withdementia in acute hospitals

HELEN MORGANUniversity Hospitals Bristol NHS Foundation TrustSince qualifying in 1983, Helen has held a range of clinical and managerial posts.In 1987 Helen joined University Hospitals Bristol, gaining experience in a numberof different roles, including Oncology Ward Sister, Palliative Care Nurse Specialist,Matron and Head of Nursing. In 2011 Helen was appointed as Deputy Chief Nurse.Helen is the Trust operational lead for dementia and is committed to ensuring thatcare for people with dementia acknowledges the person behind the diagnosis andis delivered by a knowledgeable, skilled and compassionate workforce.

ANGELA MORRISONQuattro Design ArchitectsAngela Morrison was a founding director of Quattro Design Architects in 1984. Sheserved on the local health authority for 8 years and developed a particularinterest in elderly mental health. In her practice she leads the team deliveringprojects for older people; extra care housing, care homes and specialist dementiaservices. She has carried out many projects with Housing 21 and their specialistDementia Services team and the project presented at this year’s congressfeatured in their Design Guide launched last year.

SARAH MOULDThe Dementia Training Company LtdSarah is an occupational therapist and trainer with over twenty years’ experienceof working in dementia care. Sarah continues to draw inspiration from people withdementia, their carers and professionals as she facilitates training or undertakesconsultation within health, social care, private and voluntary sectors across theUK. Among the achievements of which Sarah is most proud are her contributionsto the third and fourth editions of ‘The Pool Activity Levels Instrument for Occupa-tional Profiling’ (Jessica Kingsley Publishers), her attainment of the MSc inDementia Studies from the University of Stirling and her Co-Directorship of TheDementia Training Company Ltd.

MARNIE NAYLORBrighton & Hove City CouncilMarnie Naylor has worked for Brighton & Hove City Council since 1989 starting asa hands-on care worker, progressing to service manager for in-house residentialand day care services and then on to her current post in Performance &Development in adult Social Care. Marnie’s work has predominantly concentratedon older people and older people with mental health needs. For seven years shemanaged a residential dementia care service where she started her passion forworking with older people, their carers and other professionals to promote inde-pendence, and to try new creative ways of working with those with dementia.

MARY O’BRIENAlzheimer’s SocietyMary O’Brien is the Development Manager of the Carers’ Information Programme (CrISP)for Alzheimer’s Society. She designed and developed the workshop style CrISP programmefor family carers of people with dementia and coordinates the delivery of CrISP acrossEngland, Northern Ireland and Wales. As a qualified trainer and assessor, she also trainsthe staff and volunteers who deliver the programme and undertakes their assessment aspart of the Society’s Approved Facilitator scheme. Before joining Alzheimer’s Society, sheworked for eighteen years within the Citizens Advice service, in roles including moneyadvice provision, volunteer management and trained staff and volunteers.

KEITH OLIVERKent and Medway NHS and Social Care Partnership TrustKeith Oliver is the current Kent and Medway NHS and Social Care Partnership TrustDementia Service User Envoy. Keith had a distinguished career in education includingserving as an LEA advisor for Kent and headmaster of a large Canterbury primary school.Keith was diagnosed with Alzheimer’s disease in 2010. Since then he has participated in alarge number of projects and activities to raise public awareness of dementia, adviseservices as an expert service user, and promoting positive ways of living well with dementia.

ROSSLYN OFFORDCardiff & Vale University Health BoardRosslyn Offord qualified as a clinical psychologist in Sheffield in 2002, where shedeveloped an interest in the potential for using psychotherapeutic approaches tosupport people with a dementia. After qualifying she moved to Cardiff to work in mentalhealth services for older people and moved to the Cardiff Memory Team in 2005, whereshe has developed groups for both older and younger people. She has a long interest inservice user involvement, dating back to her work as a youth worker, prior to training asa clinical psychologist, and a more recent interest in narrative therapy.

KAYLEIGH ORRBarnet, Enfield and Haringey Mental Health TrustKayleigh Orr qualified as an art therapist in 2011. Her interests in dementia care grewfrom her experiences as a trainee art therapist in an older adult’s day hospital. Sincethen she has been employed by Barnet, Enfield and Haringey Mental Health Trust as aproject worker for Tom’s Club; an information and therapeutic support group for carersand people with dementia. Kayleigh has developed and rolled out Tom’s Clubs acrossthe Borough of Haringey in partnership with social care partners and Age UK Haringey.

MARTIN ORRELLDepartment of Mental Health Sciences, University College LondonMartin Orrell is the Director of the London Centre for Dementia Care as well asEditor of the Journal Ageing and Mental Health. He is also course director of theMSc in Ageing and Mental Health at University College London. He is clinicaladvisor to the Audit Commission for the National Study on Mental Health Servicesfor Older People. He has worked at the Department of Health and Health AdvisoryService advising on services and standards. He is also a consultant old age psychi-atrist at North East London Mental Health Trust.

MARIA PARSONSARTZ UK/Creative Dementia Arts NetworkMaria Parsons has 25 years’ experience as a social worker, manager, lecturer,trainer, researcher, and consultant. Maria wrote and managed the social workdegree programme at Oxford Brookes University, set up and managed the OxfordDementia Centre (a partnership between Anchor Trust and Oxford BrookesUniversity) and the London Centre for Dementia Care, and has led on policy andstrategy development in local authorities and has worked as a freelanceconsultant. She has expertise in the design of the physical environment for peoplewith dementia and inclusive product design. She is an External Examiner for theDegree in Dementia Care at Canterbury Christchurch College, Kent.

MERCEDES PAVLICEVICNordoff RobbinsMercedes Pavlicevic is Director of Research at Nordoff Robbins Music Therapy and amusic therapist, committed to developing practitioner research in the interests ofpractice-led evidence. She has written and researched extensively on music therapy.


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WENDY PERRYAssociation for Dementia StudiesWendy Perry has been working with older adults for over 20 years, and has beenspecifically involved in the development, staff training and management ofmemory care services in both the US and the UK over the last 12 years. She hasspent the last three years providing staff training and leading on servicedevelopment projects for AgeCare (Royal Surgical Aid Society) and in Septemberof 2012 joined the staff of the Association for Dementia Studies at the Universityof Worcester as a Dementia Practice Development Coach working on the FITSproject.

LYNNE PHAIRNHS Sussex & independent advisorLynne is the Consultant Nurse for Safeguarding Adults at Risk NHS Sussex, anindependent nurse consultant, a professional advisor to the Relatives andResidents Association, and clinical advisor for Milford Care. Her independent workincludes being a nurse expert for two public inquiries in Northern Ireland andScotland and undertaking best interest assessments for the Court of Protection.She has worked in the NHS and in the voluntary sector, caring for both physicallyfrail and older people with mental health problems and dementia. She has writtenwidely to promote quality of care of this vulnerable group.

SARAH PLUMBModern Art OxfordSarah Plumb is Project Manager: Learning & Partnerships at Modern Art Oxfordand Project Manager of the recent Lost in Time and Space intergenerationalproject. Before working in Oxford, she worked at the gallery Compton Verney forfive years in a variety of roles including Learning Development Manager. Plumbhas specialist experience in working with vulnerable young people and haspreviously worked at Midlands Art Centre, Birmingham and The New Art Gallery,Walsall. She received her Masters with Distinction in Art Museum and GalleryStudies, specialising in Gallery Education, from the University of Leicester in2006.

JACKIE POOLJackie Pool AssociatesJackie Pool is an occupational therapist specialising in dementia care and is thefounder of Jackie Pool Associates Ltd. As one of the UK’s leading specialists indementia care services, Jackie was commissioned by Skills for Care to write theQCF Dementia Units. With the belief that people with dementia can experiencehigh levels of well-being when they are cared for by people with special skills,Jackie is recognised as one of the UK leaders in pioneering systems that arehelping to make major differences to the quality of life for those with dementiaand their carers.

G ALLEN POWERSt. John’s HomeG. Allen Power, MD is Eden Mentor at St. John’s Home in Rochester, NY, and ClinicalAssociate Professor of Medicine at the University of Rochester. His book,‘Dementia beyond drugs: Changing the culture of care’, received a 2010 Book ofthe Year Award from the American Journal of Nursing. Dr Power received a 2012Bellagio Residency from the Rockefeller Foundation. He is a board member andeducator for The Eden Alternative, and has worked this year in an advisorycapacity to the US Centres for Medicare and Medicaid services and the US SenateSubcommittee on Aging.

PETER PRIEDNIEKSDementia Care MattersPeter has had a varied work life, beginning as a science teacher in Nottingham. Hethen moved to become an RAF officer with responsibility for training anddevelopment. This was followed by being a training and development manager inindustry for 13 years. He joined Dementia Care Matters in 2000 initially as thedevelopment manager/consultant of the team. He specialises in linking leadershipand change management with implementing person-centred care. To achieve thishe draws on his experience as a Master Practitioner in NLP (Neuro-LinguisticProgramming) which explores how people form their identity and view of theworld.

ANN REGANWillow Wood HospiceAnn qualified as an RGN in South Manchester in 1987 and as an RMN at Stockportin 1991, and has nursed in the fields of elderly care, acquired brain injury andneuro-rehabilitation. Ann returned to dementia care in 2003, working as a wardsister in older people’s mental health assessment in community hospitals inDerbyshire. She completed a postgraduate diploma in dementia care with StirlingUniversity in 2011. Ann now leads the dementia service at Willow Wood Hospice inTameside, Greater Manchester.

ALEX RICHARDSONUniversity of OxfordAlex Richardson is best known for her research into how nutrition (and particu-larly fatty acids) can affect behaviour, learning and mood, although her work alsoinvolves several large-scale collaborative programmes that include studies ofepidemiology, genetics, brain imaging, biochemistry and nutrition as well as physi-ological and psychological functioning. Her primary research interests include therole of nutrition in brain development and function, and its implications forbehaviour, learning and mood, and the biology of individual differences inpersonality, perception and cognition, particularly in relation to developmentaland psychiatric disorders.

ANNE ROLLINGSAlzheimer’s SocietyAnne has just completed a two year ‘Involving People Living with Dementia’Project undertaken on behalf of Alzheimer’s Society, commissioned by South WestDementia Partnership which was overseeing the implementation of the NationalDementia Strategy (NDS) in the region.

PAULA RYLATTSouth West Yorkshire Partnership NHS Foundation TrustPaula Rylatt is a specialist practitioner in psychosocial interventions within olderpeople’s services at South West Yorkshire Partnership NHS Foundation Trust. Paulahas worked predominantly within community mental health services within arecovery and strengths model and works within the clinical management teamwithin the practice effectiveness and training and development remit. Paulamanages two arts and health projects; ADAPT (Arts and Dementia Access Project)and Vivify; an arts and sculpture project for people within the recovery and well-being mental health pathways, plus supports other areas of the servicedeveloping groups and meaningful activities for people involved with the Trust’sservices.

KARIM SAADCoventry & Warwickshire Partnership NHS TrustDr Karim Saad is regional clinical lead for dementia in the West Midlands. Asconsultant in old age psychiatry, he set up a dedicated community team foryounger onset dementia in Coventry, and was former chair of the MidlandsRegional Younger Person with Dementia Forum. He is a member of the HealthTechnology Assessment (HTA) programme which prioritises research into Psycho-logical and Community Therapies, and an honorary member of the NationalInstitute of Health Research (NIHR) Faculty. He is an examiner and clinical teacherat Warwick Medical School and a member of the Clinical Leaders Network (CLN).He is a clinical advisor to the Department of Health and an executive boardmember on the Alzheimer Cooperative Valuation in Europe (ALCOVE) joint actionproject. He is a member of the Prime Minister’s Challenge on Dementia Schoolsand Intergenerational work.

KRITIKA SAMSIKing’s College LondonKritika Samsi has a background in psychology and gerontology and has workedacross a number of research projects in dementia, including minority ethnicissues, quality of life and end of life care, interviewing people with dementia andcarers, practitioners and staff involved in providing support. Her PhD exploredchange in quality of life in dementia and how services could be developed tomaintain quality of life. She is committed to mixed methods research, driven bythe demand of the research question, and she lectures at the Institute ofPsychiatry MSc courses on qualitative research modules.


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NADA SAVITCHInnovations in Dementia CICNada is a director of the community interest company Innovations in Dementia, anational organisation that tests opportunities that enable people with dementiato live life to the fullest, promoting a more positive view of dementia. Nada leadsInnovations in Dementia’s work around technology, computers, websites andaccessibility. Her book ‘We can do IT too’ is based on a successful project thatintroduced computer and internet technology to Dementia Voice–Housing21 daycare centres and her work with the computer club at the Hounslow Alzheimer’sSociety. She has undertaken various projects to ensure that people with dementiaare involved in the design of interfaces including working with Trent DementiaServices Development Centre and the Disabled Living Foundation to redesign theATDementia website.

PAM SCHWEITZEREuropean Reminiscence NetworkPam has spent the last 25 years developing reminiscence arts work, especiallyoriginal reminiscence theatre productions. She founded Age Exchange Theatre,created the first Reminiscence Centre in London and supported the developmentof similar centres in the UK and other European countries. In 1993, Pam set up theEuropean Reminiscence Network, co-ordinating international conferences,festivals and collaborative action research projects.

MARIA SCURFIELD-WALTONBradford Dementia GroupMaria is a registered mental health nurse who has 29 years’ experience of workingin the NHS in a number of management and clinical roles including practicedevelopment nurse and lead nurse for older person’s mental health services. Shewas the lead for implementing the DCM and Person-centred Care Strategy intopractice across the organisation and this experience has been published in‘Dementia Care Mapping: Applications across cultures’ (Health Professions Press).Maria became an Advanced Dementia Care Mapper in 1998 and became a licensedDCM trainer for Bradford Dementia Group in 2003. Maria joined Bradford DementiaGroup as a Practice Development and Consultant Trainer in June 2011. She isparticularly interested in culture and organisational change, staff developmentand leadership in person-centred care. Maria was involved in devising and facili-tating the Bradford Dementia Group and Service Development and ImprovementDivisions short course Developing Leadership in Person-Centred Care.

VINITI SEABROOKEAlzheimer’s & Dementia Support Services, KentDr Viniti Seabrooke is project manager for a 5 year early intervention project innorth west Kent. She has worked with ADSS since 2002 and began by researchingthe dementia related needs of the black and minority ethnic communities. Since2006 she has focused on working with primary care practices to raise awarenessof dementia and facilitate its earlier diagnosis. Viniti has worked in mental healthand dementia since 1997 and is committed to ensuring that people with dementiaget a timely diagnosis and that dementia services are responsive individual needs.

DAVID SHEARDDementia Care MattersOver the last 30 years David has developed a reputation as a challenging andmotivational speaker in the UK, Ireland, USA and Canada and as a leading UKdementia care consultant. After 15 years in health and social services in specialistdementia care posts, latterly as a General Manager of Old Age Psychiatry in anNHS Trust, he founded Dementia Care Matters in 1995. For over 10 years he workedas an external training consultant to Alzheimer’s Society. Dementia Care Matters’beliefs and approach as a team are outlined in publications and DVDs entitled the‘Feelings Matter Most’ series. His 7th publication ‘Supporting: nurses matter indementia care homes’ is to be launched at this Congress alongside Dementia CareMatters’ new major training DVD ‘Mattering: in a dementia care home’. He has anappointment as a Visiting Senior Fellow in the Division of Health and Social Care,University of Surrey and holds the Honorary Degree award of Doctor of theUniversity (DUniv). In 2009 David worked as a Dementia Care Consultant to theBBC for the programme ‘Can Gerry Robinson Fix Dementia Care Homes’ believingthis was the most powerful way to get the message across that dementia carecould be so different. More recently in February 2012, he featured on an S4Cdocumentary ‘One in Three’.

IAN SHERRIFF University of PlymouthIan has had three successful careers, firstly as an aircraft engineer and laterstudying to become a social worker. He joined Devon County Council as a socialworker in 1987. From 1987 to 2004 Ian worked in local government, includingmanaging a wide range of social services adult teams and project managing arange of change programmes. Ian’s third move was into academia, where from2007 to 2009 at the University of Plymouth Ian was an active member of theSouth West Lifelong Learning Network with a special interest in the public andthird sectors. Ian is currently a member of the Plymouth University DementiaPartnership Research Team. Their research to date includes ‘Early Diagnosis ofDementia in Plymouth’ Dementia Quality Mark for Residential Care. The teampresented their work at the Alzheimer’s International Conference 2012. Ian is alsoa member of the Prime Minister’s Dementia Friendly Communities Challenge Group2012 and a national trustee for the Alzheimer’s Society.

NAOMI SMITHUniversity of BrightonNaomi Smith is a Research Fellow in the Social Science Policy and Research Centre(SSPARC) at the University of Brighton and part of the CrISP External EvaluationTeam. Naomi is an experienced qualitative researcher in health and social carewith a particular interest in older people, care and identity. Since 2011 Naomi hasbeen developing research on Dance and Dementia with people with dementia andtheir carers. She has particular expertise in evaluation and an interest in longitu-dinal studies and narrative research. Before joining the university in 2003 sheworked for many years in local government and the voluntary sector.

JANE SOUYAVEAlzheimer’s SocietyJane worked in industry as a graphic designer on print based media for 10 yearsbefore moving into education. Jane has been a lecturer in graphic design for thelast 20 years and more recently conducted initial studies into how visual commu-nication can add value to the lives of people with dementia. Within this area herfocus is on how sensory graphics can generate new positive experiences forpeople with dementia. The fundamental aims are to identify new ways of commu-nicating to adults living with dementia, in order to generate ‘positive moments’using sensory graphics. Ongoing projects are with the Alzheimer’s Society, CentralLancashire, in Preston and Guild Lodge Secure Unit in Longridge, Preston.

PEMMA SPENCER-CHAPMANGuideposts TrustAfter working for many years as director of a community music education trust,Pemma studied for a Masters Degree in Music Therapy at the Nordoff-RobbinsMusic Therapy Centre in London in the late 1990s. Placements within a neuro-rehabilitation unit and in a dementia home fuelled her fascination with the brain’sresponse to music and aroused a passionate interest in using music to help peoplewith dementia. After qualifying Pemma set up a music therapy service within ahome for people with advanced dementia (now run by Four Seasons Health Care)and has also set up a music therapy service for people with dementia living athome, funded by an Oxfordshire based charity, Guideposts Trust. She has a privatepractice working with children with learning disabilities and autism.

GRAHAM STOKESBupa Care HomesProfessor Graham Stokes is Director of Dementia Care at Bupa Care Services. Heis an Honorary Professor at the University of Bradford; Honorary Research Fellowin the Faculty of Medical and Human Sciences, University of Manchester;Honorary Tutor in the School of Psychology and Honorary Lecturer in theInstitute of Applied Social Studies at the University of Birmingham; and HonoraryLecturer in the Faculty of Health and Sciences, Staffordshire University. He is aspecialist in the understanding and resolution of behaviour that challenges indementia and has been instrumental in the development of person-centredapproaches to care. He has written books, book chapters and papers on dementiaand person-centred care.


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RAYNE STROEBELGERATEC, South AfricaGERATEC is an acronym for Gerontological Research, Training, Education andCaring. Rayne started the company 15 years ago to provide services to long-termcare facilities, with a special focus on preserving and improving the quality of lifeof older people with dementia. Having grown up in an old age home with hismother as the matron of the home, Rayne made it his business to change themindset of those working in the aged care industry.

CLAIRE SURRBradford Dementia GroupClaire has worked at the Bradford Dementia Group for over 14 years. Her roleinvolves research on the experience of living with dementia and dementiaworkforce development approaches and their efficacy in supporting the deliveryof person-centred care. She also has responsibility for the academic distancelearning courses in Dementia Studies and works in partnership with organisationssuch as Bupa, MHA and CQC on workforce development projects and tools.

JUDE SWEETINGLadder to the MoonJude’s work in health and social care includes general nursing in cancer care,prison nursing and work in the voluntary sector supporting families and friendswho care at home, including those living with dementia. After 12 years developingjoint dementia services in the City of Westminster she combined two passions intoher present role with Ladder to the Moon – to bring both coaching and creativearts to the heart of dementia support services. Jude is a dementia trainer and aqualified coach trained in life and personal development, and team managementand leadership.

PHIL TAVERNERNational Institute for Health ResearchMost of Phil’s career to date has been spent in social work with children andfamilies, both in the UK and New Zealand. Following ten years as a practitioner hemanaged multidisciplinary professional teams in health and social care settingsfor 20 years. For ten years Phil worked as an Assistant Director for the NSPCC. In2008 he broadened his horizons with a move into research management with theNational Institute for Health Research where he is mainly responsible for thePublic Health Research programme. Phil’s recent responsibilities have involved co-ordinating the UK-wide NIHR themed call on dementia research.

JANE THOMPSONOrchard Care HomesJane has worked in the care industry for 22 years in various roles. She has beenArea Operations Manager with Orchard Care Homes since 2006, working with ateam of dedicated and forward thinking people who are determined to make adifference to the lives of our residents. Jane has recently become a DementiaChampion following an intense training course with the Alzheimer’s Society.

RACHEL THOMPSONRoyal College of NursingRachel Thompson is currently working as Dementia Project Lead at the RoyalCollege of Nursing focusing on dementia care in general hospital settings. Rachelhas worked as nurse for over 25 years across a range of settings, including daycare, inpatient and community services. This included a project working withhealth care assistants to identify support and training needs for working witholder people with mental health problems. She specialised in the care of peoplewith dementia and their families as an Admiral Nurse and was the PracticeDevelopment Lead for Admiral Nursing with Dementia UK. Rachel continues tosupport the work of the charity and is also the chair of the Higher Education forDementia Network (HEDN). She has written and co-authored a number of articleson dementia care and the provision of education for health and social care profes-sionals, and has just co-authored a book published by Jessica Kingsley Publishers,‘Dementia: Support for family and friends’.

SUSANNAH THWAITESTees, Esk & Wear Valleys NHS Foundation TrustSusannah Thwaites is a clinical lead occupational therapist with Tees, Esk & WearValleys NHS Foundation Trust, who has experience of working with behaviour thatchallenges in dementia across in-patient and care home setting. She has recentlycompleted her MSc in Advanced Clinical Practice. Her interests include thesensory needs and experiences of people with dementia and how this impacts onfunction and behaviour, the environment and how OTs can enhance the use of aformulation-led approach to understanding behaviour that challenges. For thepast two years Susannah has been working on a project with care homes toincrease their use of non-pharmacological interventions.

JANE TOOKEAlzheimer’s SocietyJane Tooke is currently employed as the Acting Evaluation Programme Manager for theAlzheimer’s Society. For the last two years, her role has included the evaluation ofSociety services, evaluation support and training for other staff, and the development ofa pilot project to increase the involvement of people with dementia in the work of theSociety. Prior to this role Jane worked as an academic researcher for various universi-ties. Her research focused on exploring the changing provision of public and voluntarysector services and within this the increasing importance of user involvement.

JACKIE TUPPENIndependent practitionerJackie is a trained mental health nurse. She has worked with older people withmental health problems for over 16 years. She was the acting community servicesmanager before she joined the East Kent Admiral Nurse team in 2008. She worksfor Dementia UK on their Admiral Nurse Helpine and raises awareness of dementiathrough presentations. Also, as an independent Specialist Practitioner, she hasdeveloped an intervention, ‘COGS Club for people with mild to moderateDementia’. She has published a small number of articles about dementia and co-presented at the International Conference in York in 2009.

DAMIAN UTTONPozzoni LLPDamian Utton is a chartered architect and a partner at Pozzoni, an architecturalpractice based in Manchester and London. Damian has over 20 years’ experiencesince professional qualification, and has worked in the social housing and olderpeople sector. Damian now leads a team creating innovative designs within costand programme constraints. Damian is also the author of the book ‘Designinghomes for people with dementia’ (Hawker Publications 2006), the result of aworldwide study-tour on the subject and he is a regular speaker at national andinternational conferences on all aspects of designing for older people.

CHRISTINE VAN DER VALKAlzheimer’s Society, Living with Dementia ProgrammeChristine is a nurse and the carer for her husband who had frontotemporal lobedementia, which was diagnosed in 2007. By learning about dementia and how tomanage it, they have enabled her husband to retain a level of independence andallow his newly found artistic skill to flourish. Together they undertook training withWSCC to enable them to teach others what it is like to live with dementia and alongthe way they have learnt, shared their experiences, made friends and had fun.

BRENDA WALKERSenior MomentsBrenda Walker is a freelance trainer/consultant trading as ‘Senior Moments’. She hasworked with a wide range of public, private and voluntary organisations which delivercare to people with dementia. Brenda has 14 years’ managerial experience in localauthority home care and residential care for older people followed by 7 years as astaff development officer for a large social services department. Senior Moments hasdesigned and delivered all the training needed to set up and develop the JackDaweScheme, a specialist dementia home care service and has been involved with anumber of other organisations to help with service development. She was also a co-author of the evaluation of the Dementia Champion Programme designed by theAlzheimer’s Society and piloted in BUPA homes. Brenda’s training has been heavilyinfluenced by the work of Professor Tom Kitwood from the Bradford Dementia Group.She holds teaching, social work, training and dementia qualifications and is anAssociate Member of the Chartered Institute for Personnel and Development.


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ANTONY WALKERHousing 21Antony is a Research Officer with Housing 21’s Research Department and iscurrently working on a diverse range of projects in the areas of customerengagement, assistive technology, dementia, and on the issues facing LGBTpeople in later life. His previous roles with Birmingham City Council involvedcorporate performance management and tackling homelessness.

SARAH WALLER CBEThe King’s FundSarah Waller is the Programme Director for the King’s Fund’s Enhancing theHealing Environment (EHE) Programme. She joined the King’s Fund in 2000 todevelop the programme having had a long career working at all levels in the NHSboth in nursing and human resource management. A former non executivedirector and vice chair of the London Ambulance Service NHS Trust Sarah waselected a fellow of the Royal Society of Arts in 2004 and was appointed CBE forservices to Nursing and the NHS in 2008.

DIANE WALLER OBEUniversity of BrightonDiane Waller is Principal Research Fellow in the School of Applied Social Science,University of Brighton and Emeritus Professor of Art Psychotherapy at Goldsmiths,and Imperial College London. Diane has participated in several collaborative researchprojects designed to explore the potential of arts and arts therapies with people withdementia, Parkinson’s, stroke, cancer and psychosis. Her parallel interest is in therole of institutions in the care, well-being and provision of psychological services forpeople with dementia and their families; and in working towards alleviating theisolation and stigma that they often experience. Diane is a member of the Health andCare Professions Council. In 2007 she was awarded an OBE for Services to Health.

JOY WATKINSUniting Carers at Dementia UKJoy coordinates the national network of family carers, Uniting Carers Dementia UK.She is developing opportunities to enable carers to have a voice and use the skillsand experience they have gained to make a difference to the quality of servicesprovided for people living with dementia and their carers. Joy believes that familycarers have a vital and unique role to play in increasing awareness and understand-ing of dementia and its impact on those that care for them. Joy has worked in thevoluntary sector for many years, most recently in HIV& AIDS and Crossroads Caringfor Carers. She has experience in teaching, training and skills development, withparticular interest in carer, service user and volunteer involvement.

ALISON WATSONHand in Hand CareAlison Watson established Hand in Hand Care in 2007, to support people in receiptof personal budgets across the spectrum of mental health, learning disability andphysical disability. Alison also supports and raises funds to sustain local servicesfor people with dementia, such as ‘Young at Heart’, a user led group and FusionDementia Café, in conjunction with other agencies such as a Cleveland Alzheimer’sResidential Charity (Clevearc)and Stockton Integrated Mental Health Service. Alisoncurrently provides technical support and training for a project evaluating touchscreen technology as a meaningful resource for people with dementia.

PETER WATSONUniting Carers, Dementia UK Peter’s wife was diagnosed with vascular dementia in 2006 at the age of 59. At thetime he ran a successful management consultancy but found that as the diseaseprogressed he was less and less able to work effectively. Eventually he gave up hisjob to care for his wife full time. Luckily, one of his customers retained him as a parttime advisor, a job that in the main he could do from home. He became veryconcerned about the lack of awareness in 'the system' about Young Onset Dementia,and the lack of support generally for carers of people with dementia. Since his wifeentered full-time care he has become involved in many ways to raise awarenessabout dementia and delivers dementia awareness-training programmes within theNHS in Berkshire. Peter is an active member of Uniting Carers, Dementia UK, hasspoken at various conferences and contributed to the Department of HealthReference Group on Commissioning for Dementia. Peter is very keen to raise publicand professional awareness of the challenges of caring for someone with dementia.

RUTH WESTAlzheimer’s SocietyRuth West is a member of the Alzheimer’s Society’s Carers Information andSupport Programme (CrISP) project team since it started in October 2010 and wasinvolved in the pre-pilot courses for both CrISP 1 & 2. Ruth accompanied her mumon a 13 year journey with dementia from pre-diagnosis to death. She completed adiploma level course in person-centred dementia care in 2011. Ruth was a managerin the civil service for 26 years. She chose to work part-time for the second halfof her career in order to combine it with voluntary work in a hospice, in daycentres and on a reminiscence project.

GRAEME WHIPPYGroup Disability Programme, Lloyds Banking GroupGraeme Whippy started his career in 1984 as an undergraduate teaching in theComputing Centre for People with Disabilities at the University of Westminster.Since then Graeme has performed a variety of IT roles, gaining experience ofsoftware/web development throughout the project delivery lifecycle. He joinedLloyds TSB as an IT project manager in 2001, but his passion and enthusiasm foraccessibility resurfaced and in 2005 he succeeded in persuading the bank’sdirectors to set up the IT Accessibility Centre of Excellence. In 2009 his remit wasbroadened when he was invited by the Director of Group Operations to join LloydsBanking Group’s disability executive steering committee and work full-time on theGroup Disability Programme which is charged with improving the Group’sperformance on all matters affecting disabled customers and colleagues. His workhas included the design and implementation of an innovative reasonableadjustment process for colleagues described by the Employers’ Forum onDisability as “redefining best practice” which received a Technology4Good awardin 2011 and an inaugural European Disability Matters award in 2012. In addition tohis work with the Employers’ Forum on Disability Graeme works with bodies suchDisability Rights UK, Alzheimer’s Society, BSI, OneVoice for Accessible ICTCoalition, Go ON Gold and the EU Commission on mainstreaming inclusiveness fordisabled people.

PAUL WHITBYAvon & Wilts NHS TrustPaul is a clinical psychologist with over twenty years’ experience. Prior to this hewas a psychiatric nurse. A significant part of his duties involve working on thelocal in-patient unit. Earlier this year he completed a Winston Churchill MemorialTrust scholarship visiting Scandinavia and Ireland for just over one month to studythe use of Marte Meo.

TERRI WHITEGuideposts TrustTerri White works for Guideposts Trust and as a Dementia Information Service Co-ordinator and is responsible for providing up-to-date impartial information for twocounty (Bath & North East Somerset and Gloucestershire) websites, talks,signposting and `drop-ins.’

YVE WHITE-SMITHHealth and Social Care PartnershipYve has enjoyed a career working within diverse people-centred organisationsincluding health and social care, education, voluntary and the commercial sectors.She has worked directly with vulnerable people and their families across the agespectrum, later moving into organisational governance, workforce education andservice development. She has experience of working at national, regional andlocal service level and remains passionate about helping organisations to offereffective valued services, and to bring out the best in their people. Yve has beenworking with Professor Dawn Brooker to develop and roll out the DementiaChampions programme in the south east.


Speakers’ biographies W-ZUKDEMENTIAC O N G R E S S

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SUZANNE WIGHTMANSouth West Yorkshire Partnership NHS Foundation TrustSuzanne is currently a Senior Manager Practice Development in South WestYorkshire Partnership NHS Foundation Trust. After some years of experience inward and day hospital settings she became a community psychiatric nurseworking in older peoples services. In 1998 she managed and established the firstmulti-disciplinary team for care home liaison in the UK and has since beeninvolved in leading edge practice and improvements for people living withdementia in mental health, care home and acute hospital settings. She developedthe CARER model in 2001/2 (Wightman 2005) when she worked as team managerfor the care home liaison team. Suzanne currently leads on Practice DevelopmentUnit (PDU) accreditation and a Trust wide Collaborative project and the Trust LifeStory Network in addition to the development of a ‘Portrait of a Life’, amultimedia toolkit for life story work. Suzanne is a member of the national LifeStory Network steering group and feels privileged to have had the opportunity toorganise the 1st national conference on behalf of this group. She has a keeninterest in quality outcomes, person-centred care, Dementia Care Mapping, lifestory work, working with family carers, team working and the Essence of Care.

KATE WILKINSONPSSKate has worked for social enterprise PSS for the past four years. In 2010, Katerevamped the service that is now known as TRIO. This community based supportscheme is all about building new friendships and widening support networks, andultimately, TRIO is working to reduce the social isolation felt by those living withdementia.

ANGELA WILLIAMSOxleas NHS Foundation TrustAngela Williams is a nurse consultant working with older people in Oxleas NHSFoundation Trust in south London and Kent. She began working with people withdementia during the 1990s. She is an advanced dementia care mapper and in hercurrent role Angela is involved in practice development work providing trainingand support for staff and is particularly interested in therapeutic interventionsand staff development. Over the past year she has been working with hercolleague Jennine Butler to develop and facilitate a football reminiscence project.The project has been supported by Michael White from Sporting Memories. Angelaand is a lifelong Newcastle United supporter.

ANGELA WILLIAMSThe Orders of the St John’s TrustAngela’s career started as a healthcare assistant in an acute mental healthsetting. Once qualified she worked in a day hospital for older adults, thenprogressed to the role of Admiral Nurse attached to a memory service. She joinedThe Orders of St John Care Trust as the first My Home Life Admiral Nurse to bedirectly employed by a care home provider. This nursing model varies from thetraditional role; Angela now predominantly supports formal carers, although thereis still a great deal of direct contact with relatives through support groups.

JULIE WILLIAMSCardiff University School of MedicineProfessor Julie Williams is a senior figure in the field of Alzheimer’s disease (AD)research. Her publication in 2009 (Harold et al., Nature Genet) of the first newsusceptibility genes for 17 years defined a pivotal moment in Alzheimer’s geneticsresearch. Since, her group has continued the momentum and has played a leadingrole in the discovery of 8 of the 9, new susceptibility loci now identified. Early inher career she recognised the complexity of AD genetics and began focussing herresearch on large more powerful studies. Accordingly, Julie changed her strategyto focus on collecting case-control samples, well before others in the field. Herwork has received extensive support in the literature with findings replicated innumerous samples. Julie has also shown leadership at a national strategic level. In2008 she became Chief Scientific Advisor to Alzheimer’s Research UK and hasused this position to broaden the funding options available to scientists, increaseresearch capacity and training in the area and has actively campaigned to keepthe importance of dementia research on the national agenda. She has also advisedUK and Welsh Governments on dementia policy. Recently, she became DeputyDean of Research for the School of Medicine.

TOBY WILLIAMSONMental Health FoundationToby has worked at the Foundation, a national research and development charity,since 2002. He is responsible for the Foundation’s programme on mental healthissues in later life as well as issues affecting people with dementia. He has carriedout several research and development projects that have involved getting theviews and experiences of people with dementia and how issues such as personali-sation may affect their lives. He has also lead on research, service improvementand policy work involving mental capacity issues. Prior to working at theFoundation Toby worked in and managed adult mental health services.

HILARY WOODHEADDementia UKHilary Woodhead has worked with people with dementia, their families and theprofessionals supporting them for 20 years, in a range of roles across health andsocial care. Over the last 10 years she has specialised in service improvement andworkforce development in dementia care. Since 2008 Hilary has worked forDementia UK as a Dementia Pioneer. In this role she leads on a wide range ofpartnership projects including the My Home life London leadership and communitydevelopment programme.

BOB WOODSBangor UniversityBob Woods has been practising as a clinical psychologist with older people forover 35 years. He has been Professor of Clinical Psychology of Older People atBangor University since 1996, where he is co-Director of the Dementia ServicesDevelopment Centre Wales. Current research primarily concerns the developmentand evaluation of therapeutic approaches for people with dementia and theircare-givers, and he has authored and edited numerous books, journal articles andtraining materials on all aspects of dementia care. He collaborated with the lateTom Kitwood in developing and evaluating a training strategy for care homes inthe 1990s.

VICTORIA WRAYSussex Partnership NHS Foundation TrustVictoria Wray has worked as a mental health nurse since 2003; shortly afterqualifying she gained a first class degree in nursing. She has a range ofexperience, but recognised early in her career her desire to work with olderpeople. Victoria passionately supports the development of inclusive services forpeople with dementia: She argues that close partnership working with externalagencies is essential to achieving positive outcomes. She has managed DementiaCrisis Service South since it began in 2010 and works on several projects todevelop dementia services across Sussex. Victoria also manages the West SussexCare Home In-Reach Team.

STUART WRIGHTBrunelcareStuart’s organisation-wide remit as Dementia Care Champion for Brunelcare is toinvolve all staff in the ownership of their response and ability to make a differencein everyone’s life; to engage staff in building an individualised and person-centredculture, and living the philosophy moment- by-moment in their work. Another bigpart of his work is to facilitate people with dementia having a voice, beingempowered to make choices, to live well until they die, and then to die wellknowing they matter, in care homes, community services and housing settings.

LUCY YOUNGCardiff & Vale University Local Health BoardLucy Young worked until recently as an assistant psychologist at the Cardiff andVale NHS Memory team, in this post for three years. She is now a Dementia CareAdvisor in the community REACT service (a crisis service for older adults). Lucygraduated in Psychology BSc in 2005 and went on to work as an assistant psychol-ogist, and over the last six years has worked in both the NHS and the privatesector in various settings. In 2010 she completed a Postgraduate Diploma inClinical and Abnormal Psychology. Lucy has undertaken research with CardiffUniversity.


Speakers’ abstracts A-B UKDEMENTIAC O N G R E S S

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Trevor Adams, Passionate Dementia Care and Gillian Bailey, Helen Sanderson Associates

MOVING PERSONALISATION FORWARD FOR PEOPLE WITH DEMENTIAIn this session we will present recent innovative work by Helen Sanderson Associates tosupport organisations across health and social care to embed the delivery of person-alised supports. We will present a new version of ‘Progress for Providers’, aself-assessment tool that enables staff and managers to see the progress they aremaking towards the implementation of personalised care to people with dementia incare homes. We will also outline a range of ‘thinking tools’ comprising interactivestrategies that help people with dementia make choices, and will present case examplesof their effectiveness.

Arlene Astell, University of St Andrews

SUPPORTING AUTONOMY AND INDEPENDENCE IN DEMENTIAWorking with a small group of older people with dementia and their partners over a two-year period we set out to explore the impact of dementia progression on therelationships of the couples, including the feelings of stress and burden of the partnercarrying out the caregiving and how this changes over time. The results suggest thatworking with people in their own homes permits a close exploration of the difficultiesthey experience on a day-to-day basis and highlights the potential for tailoring interven-tions to meet these needs. The work also examined the utility of using standardisedmeasures, the acceptability of diary methods and the value of collecting information atdifferent time points with people with dementia that reflects their changing needs plusthe challenges of developing interventions to meet these changing needs.

Anita Astle, Wren Hall Nursing Home and Peter Priednieks, Dementia Care Matters

THE BENEFITS OF GROUPING RESIDENTS EXPERIENCING THESAME STAGES OF DEMENTIA AND OF MATCHING STAFF SKILLSFollowing an extension to Wren Hall Nursing Home we began a course of training of thewhole staff team in recognising and understanding the person with dementia’s livedexperience, and we created new lounge areas. Each lounge was designed to support aspecific stage of dementia. We decided to group people experiencing the same stage ofdementia and matching staff competence and skill to those various stages. People withdementia have benefitted immensely. They are happier, less distressed, less anxious,are more mobile and have an increased level of self-esteem and self-worth. We havefound similar benefits for staff: they report feeling a greater connection with thosewithin their care, and more motivated and committed to their work.

Ian Bainbridge, Department of Health, Dawn Brooker, University of Worcester andYve White-Smith, Health and Social Care Partnership

THE BENEFITS AND CHALLENGES OF DEVELOPING DEMENTIACHAMPIONS IN ACUTE HOSPITAL SETTINGS: EARLY FINDINGSFROM THE SOUTH-CENTRAL DEMENTIA PROGRAMME UKUp to 70% of acute hospital beds are occupied by older people. Many older people whoare admitted to acute hospitals have a dementia that may or may not be diagnosed.Although dementia is not usually the reason for admission it will complicate theirtreatment considerably. 60,000 deaths a year are directly attributable to dementia.The current cost to the NHS is estimated at £1.3 billion a year. Despite recent effortsaimed at improving dementia care, including the recent Prime Ministerial Challenge onDementia, there is need for further improvement in acute settings. There is arecognised need to support services to work together, to share knowledge and under-standing and specifically to improve leadership in acute hospitals, and at the interfacebetween acute care and community services. Challenges faced by acute hospital staff tocare positively and compassionately for people living with dementia cannot be underes-timated. Hospital staff often do not see the needs of patients with dementia as apriority. To address the need for leadership and staff development we have developedand implemented a sustainable Dementia Champions programme across seven AcuteHospital Trusts in the South of England. The aim is to inform, empower and support staffleaders and the wider organisation to identify opportunities and challenges around carefor people with dementia, in an acute phase of ill health, through working in partnershipacross health, social care and the wider community. Dementia Champions can offerleadership to develop systems of working that support care based on choice, dignityand personhood. This session will explore the delivery and outcomes of the programme

across the Acute Trusts, with emphasis on the Dementia Champions understanding theneed to work in partnership to improve patient experience, drawing on examples ofworking with carers, supporters and community services.

Michael Bird, Dementia Services Development Centre, Bangor University

PEOPLE WITH DEMENTIA AT THE NATIONAL GALLERY OFAUSTRALIA: ‘YOU DO IT FOR THE MOMENT’This project investigated the effect of exposing people with dementia to works at theNational Gallery of Australia (NGA). Fifteen people from the community and eight fromresidential care attended the NGA weekly for six weeks. They were shown artworks bygallery educators, who had been trained in dementia skills. Sessions were filmed and levelof engagement analysed using time sampling. Focus groups were held for participants,family members, and gallery staff. This activity went beyond many offered to people withdementia and all, even some who were losing speech, were able to engage and appearedless impaired in this setting. This was mainly a feasibility study and we took no measuresto assess lasting effect. In any case, a family member quote: ‘You do it for the moment’,encapsulates a sense that an activity is worth doing even if benefits are only apparentwhile it is running. The programme is expanding to other galleries in Australia.

Sarah Booker, South Gloucestershire Local Involvement Network (LINk) and AnneRollings, Alzheimer’s Society South West

MAKING INVOLVEMENT COUNT: PEOPLE LIVING WITH DEMENTIA IN SOUTH GLOUCESTERSHIRE AND BRISTOL HELP SHAPE LOCAL SERVICESProviding services to enable people with dementia to live an active and fulfilling lifeshould be at the heart of commissioning. With this in mind Alzheimer’s Society, SouthGloucestershire and Bristol Local Involvement Networks (LINks) and Innovations inDementia worked in partnership to deliver a series of engagement workshops to meetthis need. The project intended to explore four themes: experiences of diagnosis;support at home or in the community; experience of hospital; living well with dementia.The workshops took place in an informal, welcoming environment; people with dementiaand their carers were able to discuss their concerns and describe the challenges theyhave faced when using local services and their experiences before and since diagnosis.The findings and recommendations that resulted from the workshops are proving to bea valuable source for commissioners and providers of services in optimising theresources available to support the increasing number of people with dementia and theircarers in Bristol, South Gloucestershire and beyond.

Angela Boyle, Alternative Futures Group and Gillian Brooks, Dementia Care Matters

THE JOURNEY OF ABBEY COURTAbbey Court is a 30 place independent hospital for people aged 55 and over, managed byAlternative Futures Group (AFG), a Liverpool based charity. Twenty of these places are forpeople with a dementia. Abbey Court was originally an NHS provision, with 30 long-servingNHS staff who transferred to AFG two years ago. Over the past two years AFG hasimplemented a whole new approach to dementia service delivery for people requiringhospital assessment and intervention. We began our very challenging journey havingcommissioned Dementia Care Matters to introduce and implement a feelings basedapproach to our service. Our presentation will focus on the challenges and triumphs in thejourney we have taken from changing old malignant cultures of dementia care toapproaches that enrich lives and personhood. We will also highlight the many emotionalelements of endeavours to unpick thirty years of cultures set in a fixed medical model.

Richard Bradshaw, Tees Esk and Wear Valleys NHS Foundation Trust and AlisonWatson, Hand in Hand Care

EVALUATING TOUCH SCREEN TECHNOLOGY FOR ENGAGINGPEOPLE WITH DEMENTIA IN MEANINGFUL ACTIVITY THATPROMOTES WELL-BEINGCleveland Alzheimer’s Residential Centre Ltd is leading on a year-long touch screentechnology project with Hand in Hand Care and Tees, Esk and Wear Valleys NHSFoundation Trust in Stockton on Tees. The project started in March 2012, inspired by theshared learning and experiences of a Herefordshire partnership using the technology toincrease meaningful communication and activity with people with dementia. The

SPEAKERS’ ABSTRACTS


Speakers’ abstracts B-CUKDEMENTIAC O N G R E S S

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Stockton project will evaluate the potential benefits of the lightweight, mobile, multi-sensory technology, comparatively easier to operate than keyboards. It will voluntarilyengage both older and younger people with dementia in a range of interactiveexperiences in various settings. An anonymous evaluation template of the person’s well-being is completed after each session, based on individual and group experiences. Thisinformation will be later collated and analysed to formulate the potential benefits of thetechnology and shared with local dementia care providers.

Yolande Brand and Rayne Stroebel, GERATEC, South Africa

INTERGENERATIONAL RELATIONSHIPS: USING TELECOMMUNI-CATIONS (SKYPE AND FACEBOOK) WITHIN A SMALL GROUPHOME TO BUILD AND MAINTAIN IMPORTANT RELATIONSHIPSGlobalisation has had a great impact on intergenerational relationships around theworld. Within this small group home in South Africa, 50 per cent of the current residentshave children living outside the country. The home is run according to The EdenAlternative principles with a vision to have elders and others enjoy excellent quality oflife and care; where they, their families and the staff can engage in and fostermeaningful relationships. Skype and Facebook were introduced to provide a method formore regular contact with family members (those close and those far away) in order tomaintain these existing meaningful relationships. This presentation will focus on thechallenges of introducing the internet and instant worldwide communications to theresidents as well as the care partners. It will also demonstrate the impact successfuland frequent contact has had on intergenerational relationships as well as the addedbonus of being a more integrated part of the local community.

Dawn Brooker, Simon Evans, Jenny La Fontaine, Jennifer Bray, Peter Ashley, KarimSaad on behalf ot the ALCOVE project

DIAGNOSIS OF PEOPLE LIVING WITH DEMENTIA IN EUROPE:PART OF THE ALCOVE PROGRAMMEThe ALzheimer’s COoperative Valuation in Europe (ALCOVE) project is a Joint Action co-financed by the European Commission and comprised of 30 partners from 19 EU MemberStates. ALCOVE aims to improve knowledge and promote the exchange of information ondementia and its consequences to preserve health, quality of life, autonomy, and dignityof people living with dementia and their carers in EU Member States. This presentationreports on ALCOVE work package 5, which is being led by the UK and focuses on earlydiagnosis and intervention in dementia. We present findings from a questionnaire surveyof 27 EU countries along with a review of the literature on national systems for thediagnosis of dementia in order to access to a common definition with associatedoperational criteria. The presentation concludes by outlining draft recommendations forimproving early diagnosis of dementia, both in community and nursing home settings.

Wendy Brewin, Sensory Trust and Karen Hayes, Arts and Dementia Consultant

CREATIVE SPACES: DEMENTIA, COMMUNITY AND ENVIRONMENTThe Creative Spaces project began at one care home where residents, staff, relativesand young people were engaged together in outdoor-related activities, trips to outdoorvenues and in re-developing a care home garden. These methods were then dissemi-nated through other homes and the community, supporting home carers and outreachworkers. Carers were trained in the benefits of using outdoor environments in dementiacare. We engaged Karen Hayes, a poet experienced in working with people withdementia, to work alongside people with dementia, using their words to create poems.Young people were also involved in creating poems which they developed to expresshow their perception of people with dementia has changed for the better. Digital mediaartists are involved in representing a selection of these poems in various formats,including film and animation. These representations are being used as part of a series ofcommunity workshops developed to support home carers and outreach workers as wellas educating the public.

Dawn Brooker, Isabelle Latham, Jenny La Fontaine, University of Worcester andLynne Phair, West Sussex Primary Care Trust

CARE HOME ORGANISATIONS IMPLEMENTING CULTURES OFEXCELLENCE (CHOICE): THE FINAL STUDY OF THE COMICRELIEF/DEPARTMENT FOR HEALTH PANICOA RESEARCH PROGRAMMEThe 18-month PANICOA (Preventing Abuse and Neglect in Institutional Care of OlderAdults) project, undertaken by four universities, used 12 in-depth case studies in whichresearchers spent intensive periods of time observing daily life in the care home andtalking to residents, care staff, managers, relatives and visitors. Specifically, thisinvolved: observation of the care of residents with advanced dementia who required ahigh degree of support for quality of life; identification of potential good and poor

practice issues and their relationship to organisational culture and then examined thesefurther through ethnographic observations and interviews; examination of commonlyrecorded indicators (eg safeguarding referrals) and their relationship to the careexperienced/observed in the home; analysis of case studies to establish features oforganisational culture that are conducive to, or prohibitive of, high quality care; andinvolvement of older people who are resident in care homes as advisors during thestudy to ensure its relevance to older people themselves. We will present our findingson the relationships between organisational culture and care experience, such as: theways in which ‘care’ is actioned; staff’s role performance; and the sense of communityevident in a home. Following discussion of findings, we wish to gain your thoughts andsuggestions regarding key messages for care providers, commissioners and serviceusers, and how to communicate the messages in an accessible and usable way. LynnePhair‘s presentation will be included in this session (see separate entry).

Roger Bullock, Kingshill Research Centre

SOUVENAID: A PARADIGM SHIFT IN THE MANAGEMENT OFALZHEIMER’S DISEASEOf the pathological hallmarks of Alzheimer’s disease (AD), synapse loss is considered tobe the most direct structural correlate to cognitive performance. Synapses consistprincipally of neural membranes, and the neuronal synaptic loss observed in AD hasbeen linked to the degeneration of neuronal membranes. Alterations in membranecomposition are also observed in patients with AD, such as disturbances in phospholipidcomposition. Synaptic loss and membrane-related pathology therefore providepotentially useful targets for intervention in AD. Dietary intervention can increase theavailability of specific nutrients that support the formation of neuronal membranes andtherefore synapses. As such, specific nutrients may modulate membrane-relatedpathology and synaptic loss in AD. In this presentation, Dr Bullock will discuss theresults of the pre-clinical studies that led to the concept of a new medical food,designed to support synapse formation and function. Multi-centre, multi-country,randomised, controlled trials were designed to evaluate the efficacy and mechanisms ofaction of Souvenaid during different stages of AD, and to investigate the AD patientpopulations from whom Souvenaid provides clinical benefits. The trial programme has afocus on memory performance as a nutritional endpoint used to measure new synapticactivity, and during the presentation, study designs, efficacy and safety results, as wellas future direction, will be discussed.

Su Burns and Sue Brewin, Alzheimer’s Society and Jane Thompson, Orchard Care Homes

DEVELOPING CHAMPIONS IN DEMENTIA CARE The Alzheimer’s Society development programme ‘Champions in dementia’ is a uniqueand challenging training course designed to benefit organisations providing residentialor home care to people living with dementia. The training programme comprises aseries of six workshops combined with periods of self-directed study, encouragingreflective practice, use of observational tools and finally implementing improvements inpractice. Working in partnership with Alzheimer’s Society, Orchard Homes invested inthe attendance of approximately 70 members of staff on the programme during 2011and 2012. This workshop will explore the challenges encountered on our shared journey,as individuals, through this programme and how we worked to overcome thesechallenges together. Alzheimer’s Society continues to evaluate the projects and jointlymonitor performance to measure return on investment for the Orchard Homes, andmore importantly measure outcomes, such as improvements on the quality of life, forpeople living with dementia in their home communities.

Nick Cartmell, NHS Devon & NHS South of England (West)

IMPROVING DIAGNOSIS OF DEMENTIA/MANAGING DEMENTIA INPRIMARY CAREImproving diagnosis of dementia will highlight areas where PCTs and clinical commis-sioning groups (CCGs) can work with primary care to identify those people who havedementia but do not appear on primary care QOF registers. This will assist in improvingaccess by such people to services for dementia, allowing for better forward planning,and ensuring health and social care staff are aware of the diagnosis whenever theperson needs their input.

Nick Cartmell and Martin Freeman, NHS Devon & NHS South of England (West)

CARING FOR PEOPLE WITH DEMENTIA: CHALLENGES FOR THEPRIMARY CARE TEAMThe presentation will review the arguments for and against the making of a diagnosis ofdementia by primary care clinicians rather than the need for referral to a specialist ledmemory assessment service. The paper will consider the practical issues of making adiagnosis by primary health care teams. This will include: the standards for making a


Speakers’ abstracts C-E UKDEMENTIAC O N G R E S S

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diagnosis in primary care; the capabilities of clinicians required to make a diagnosis;issues relating to investigations required to exclude physical illness; post-diagnosticsupport to ensure equity of outcome; issues of choice and involvement by service users,and consideration of which patients need fuller assessment in a specialist led memoryassessment service. Approved guidelines will be considered in the discussion togetherwith examples of systems for diagnosis being made with a primary care setting.

Matthew Cox, Dementia Care Matters

NURSES’ EXPERTISE MATTERS IN DEMENTIA CARE: LAUNCH OFDEMENTIA CARE MATTERS’ NEW DEMENTIA CARE NURSING 50-POINT CHECKLISTFor people living with dementia, the person-centred and relationship focussed approachhas changed their quality of life beyond anyone’s imagination. The time has now cometo also bring `bodies’ back into focus in order to put the final pieces into the holisticjigsaw. Matthew will share experiences of practice development with dementia carenurses, presenting key examples of why and how bodies matter in dementia care. Thissession will provide the opportunity for people involved in dementia care nursing toappraise a new tool designed to focus on what are the essential components ofdementia care nursing and to help those attending to initiate, within teams, a way ofidentifying nursing’s unique contribution to specialist dementia care in nursing homes.

Janet Crampton, AESOP Consortium

DEMENTIA WITHOUT WALLSThe Dementia Without Walls project, sponsored by the Joseph Rowntree Foundation, hasbeen exploring people’s experiences of living with dementia in York. The project hasexplored the difficulties people encounter in going about their daily lives, and whatmight be done to remove some of the difficulties. Its findings confirm that the impact ofhaving dementia is not exclusively ‘owned’ by health and social care – that the wholecommunity has a role in enabling people with dementia to remain their customers,passengers, members, clients and so on. The workshop will describe the project’sfindings and how it has enabled people with dementia, their carers and a wide variety ofcommercial, user-led, voluntary, community and statutory agencies to come together toresolve how living well with dementia becomes a normal part of daily life in York.

Jo Crossland, Claire Surr, Jan Robins and Emily Malet, Bradford Dementia Group

DEMENTIA AND ACUTE SETTINGS: A MODEL FOR WORKFORCEDEVELOPMENTThis presentation will describe two acute hospital workforce development projects. Thefirst project aims to provide a sustainable approach to dementia training in the acutesetting through the training of ‘Dementia Champions’ within the acute hospital. They willonward deliver a bespoke training programme at both foundation and intermediatelevel. The workshop will provide an overview of the Champion preparation programmeand training materials. It will also discuss findings of research which has evaluated theimpact of the Foundation level training on staff knowledge, skills and confidence indelivering dementia care. The second project involves supporting hospital staff in anacute hospital in South Yorkshire to use Dementia Care Mapping to transform theexperience of care for people with dementia. It adopts a training and on the groundmentorship approach to support practice change. We will provide an overview of both ofthese projects and highlight some of the key challenges and successes.

Anna Dowrick and Martina Kane, Alzheimer’s Society

DEMENTIA DIAGNOSIS: WHY IS PROGRESS SO SLOW? In response to the increasing demand to know why diagnosis rates aren’t increasing at afast enough pace, the All Parliamentary Party Group (APPG) on Dementia conducted aninquiry into diagnosis rates, supported by Alzheimer’s Society. This inquiry gatheredevidence from people living with dementia, carers, health professionals, care home staffand support service workers. It explored barriers that stop people getting a diagnosis ofdementia and made recommendations for action that can be taken to increase the rateof dementia diagnosis. Alzheimer’s Society will present the key findings of the APPGreport and the recommendations that have been made that could lead to increaseddiagnosis rate. The Society will also present the activities of the ‘Worried about yourmemory?’ awareness raising campaign, which aims to tackle one of the identifiedbarriers to diagnosis – lack of presentation of patients in general practice.

Gillian Drummond, Greater Manchester West Mental Health NHS Foundation Trust (GMW)

HEARTS AND VOICES: IMPLEMENTING A SINGING FOR THEBRAIN PROJECT WITHIN AN ACUTE INPATIENT AREAIn August 2011, Woodlands were among several GMW entrepreneurs who entered theDragon’s Den to pitch for money to support innovative quality projects in their area ofwork. The projects had to support the achievement of the Trust’s seven Quality AccountImprovement priorities. Staff from Woodlands were awarded £5,000 to launch the firstever ‘Singing for the Brain’ programme in an inpatient setting in the UK. Singing hasbeen shown to be a powerful interaction for the person with dementia with bothphysical and mental benefits as it exercises all the muscles involved in communication,improves breathing, combats depression and reduces stress. A project group was set upat Woodlands, supported by staff and volunteers from the Alzheimer’s Society as well asthe Reach Beyond Project which is a service within GMW which advocates volunteering.

Karen East, Dukeries Healthcare

NO BRAINERThe presentation will focus on the need for nationally recognised guidelines and a carepathway for people with alcohol related brain injury, also known as Korsakoffssyndrome/alcohol dementia. I am responsible for the operation of three rehabilitationfacilities for people with the condition. A common notion is that this condition is nottreatable and that people are best placed in care homes, despite their often young age. I willintroduce the condition, the fact that is on the increase, and the fact that many people inthis situation do not get the opportunity to undergo rehabilitation. I will propose a carepathway and illustrate the current care pathways which do not address the person’s needs.The presentation is informed by our experiences, our own clients’ stories and research.

Louise Eastwood, Hull City Council

HULL DEMENTIA ACADEMYThe Hull Dementia Academy has been developed to drive up standards of dementia carethrough training and workforce development. The Academy will provide a single point ofaccess for people living and working with people with dementia across Hull to receiveinformation, training and workforce development. The Academy consists of five elements:Dementia Care Mapping Team; Person Centred Care Team; Training and Development Team;Support and Coordination Team, and the Dementia Ambassadors Network. The modelfacilitates standardisation of training and workforce development across the City and willbe validated and accredited. Everyone who has direct contact with a person with dementiawill have the opportunity to undertake some basic awareness training and this is increasedin intensity according to need. It will also provide carers with the education and trainingabout living with well with dementia. The Care Quality Commission is a key partner and willact as the vehicle to drive up standards of care through their monitoring process.

Paul Edwards and Tanya Little, Bradford Dementia Group

TRANSFORMING THE QUALITY OF DEMENTIA CARE: ONE YEAR ONBuilding on from UKDC last year, we describe the progress made within, and our ongoingcommitment to, the development of a blueprint for excellence in dementia care. Inpartnership with Nightingale Care Home, Bradford Dementia Group offers an insight intothe successes, the difficulties, the tears , the laughter and the learning as we continueto support this large care organisation face up to the challenge of whole system culturechange. This session will shed light on the multiple methods used to inspire and sustainchange and improvement. We will demonstrate how staff and residents have enteredinto new partnerships, collaborated on changes across the board including medicationdispensing, the environment, food provision, volunteering and community engagement.We will demonstrate to others how this unique model for person-centred care deliverycan be sustained through leadership, knowledge exchange and coaching.

Kaye Efstathiou and Kayleigh Orr, Barnet, Enfield and Haringey Mental Health Trust

TOM’S CLUB: BUILDING ON SUCCESSTom’s Club is a community based project, which provides information, therapeutic andsocial support groups across the London Borough of Haringey. Unlike the existing cafémodels, Tom’s Club provides a main information and support session for carers but alsoa separate structured activity for the people with dementia (based on the principles ofcognitive stimulation therapy). Tom’s Club arose from a carer’s concern that there wereno services in Haringey which addressed the needs of the carer and the person withdementia simultaneously. The Admiral Nurse Service has developed this unique projectwhich has enabled carers to link in with services in an informal way, enabling them toaddress issues, as they arise, without having to wait for a health professionalappointment and also provides mutual carers support. We endeavour to roll out afurther three Tom’s Clubs, in different locations across the borough.


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Ruth Eley, AESOP Consortium and Bill Chambers, Liverpool Hope University

DEMENTIA-FRIENDLY: WHAT DOES THIS MEAN FOR ORGANISATIONS?The Joseph Rowntree Foundation are leading a project on developing York as adementia-friendly city. In similar work, as part of its ambition to become a dementia-friendly university, Liverpool Hope University ran a dementia awareness campaign weekearly in 2012 in partnership with PSS, a large local charity working in the field ofdementia. The aim was not only to raise the profile of dementia within the university asa topic for research and practice development, but also to raise basic awareness amongthe staff and student population. This workshop will present the outcomes from theweek, in particular its impact on local partnership working and how the momentum isbeing sustained. Secondly, the workshop will explore what becoming a dementia-friendly organisation means in practice and what steps are needed to move towardsachieving that status.

Veronica Franklin Gould, Arts 4 Dementia and Hannah Chetwynd, A4D London Arts Challenge

LONDON ARTS CHALLENGE IN 2012: EVIDENCE OF THE IMPACTOF ARTS ACTIVITIES FOR PEOPLE IN THE EARLY STAGES OFDEMENTIA AND THEIR CARERSArts 4 Dementia has developed dynamic outreach for arts venues to help maximisebrain function and override dementia stress. A4D’s London Arts Challenge in 2012 (LAC2012), a programme of fourteen course workshops in art, comedy, dance, scriptwritingand drama, music, photography, and poetry, at arts venues, a pub and on a canal boat,was part of the London 2012 Inspire Programme. Workshops were delivered, wherepossible weekly, for up to eight weeks. To maximise the benefit, the person withdementia and their carer were encouraged to develop arts themes or activities betweensessions. Person-centred, challenging but achievable, the LAC 2012 programme wasdelivered by some thirty educators, supported by volunteer arts students, to almost twohundred participants. Educators and volunteers had received training in dementiaawareness, and were guided by A4D for the interactive arts approach for people in theearly stages of dementia. Courses culminated in a performance or display of work.

Alice Fuller, National Council for Palliative Care

EXPERIENCES OF PLANNING FOR END OF LIFE IN DEMENTIAThis session will look at the NCPC publication, ‘Difficult conversations: Making it easierto talk to people with dementia about the end of life’, which is designed to encourageprofessionals to engage in good practice in discussing end of life care. It is based onfifty conversations with people with dementia and carers and contains information andtips on how starting conversations about death and dying.

Chris Gage and Jude Sweeting, Ladder to the Moon

CREATING CHANGE IN CAREIn 2010, the Department of Health invested in Ladder to the Moon’s Culture ChangeStudio, and the initial ideas and findings were shared at Congress. Two years on, wehave a quality and cost effective tool for implementing emotional, relationship basedcare and support, which is being used widely across the sector by providers includingBarchester and MHA. In recognition of the quality of the innovation, the approach was afinalist at the National Dementia Care Awards 2011. We will share case studies, rangingfrom a home saving £20,000 saving on staff sickness over 6 months, to very individualoutcomes for people living with a dementia, to changes in staff practice. The presenta-tion will include video of the interventions. It will also cover the theoreticalunderpinning in well-being and positive psychology and how it translates into practicaltools and approaches.

Kathryn Gilfoy, Westminster Arts and Susanna Howard, Living Words

LEADERSHIP IN CREATIVE RESPONSES: SUPPORTING ARTSEXCHANGES IN RESIDENTIAL HOMESNow in its fourth year, Resonate is an arts programme for older people with mentalhealth issues including dementia that seeks to offer creative opportunity through self-expression. Projects take place in residential homes, day centres and out in thecommunity, including one-to-one in people’s own homes. Last year Resonate photogra-pher Hester Jones, visual artist Joanna McCormick and poet Susanna Howard of LivingWords created programmes that suited each of the three participating care homes andfacilitated relevant and personalised creative interventions for individuals living there.Kathryn Gilfoy, Resonate’s leader, will speak about the process in each home, andSusanna of Living Words will speak specifically about the Living Words residency and theimportance of peer-to-peer learning, buddying and mentoring. Photos of the artwork,staff workshops and parties will be shown along with the reading of one or two poems.

Dr Nori Graham (Age Action Alliance), Neil Mapes (Dementia Adventure), U Hla Htay,former carer, Carol Richards (Age UK Oldham), Martin Thompson (London Borough ofCamden) and people with dementia from the HOPE group, Brighton

HEALTHY LIFESTYLES AND DEMENTIA: TIME FOR ACTION!At long last healthy lifestyle habits are becoming recognised as a public health priorityfor the entire population. It is not often realised that a healthy lifestyle is of particularimportance for people at risk for dementia (especially vascular dementia), people withdementia, family carers and care workers. The recently formed Age Action Alliancesupported by government has made Public Health and Active Lifestyles one of its corethemes. The aim of this group is to collect together and disseminate on a national basisinitiatives which have been already tried, tested and evaluated. This session will look atsome of these initiatives which centre round healthy lifestyles in an attempt to urge theaudience that attention to these factors needs to become an integral part of daily lifefor everyone involved with dementia in whatever capacity.

Randy Lee Griffin, Griffin Consulting

BIRD TALES: A UNIQUE PROGRAM EMBRACING THEINTERACTION BETWEEN BIRDS, BIRD WATCHING AND THE JOYSOF NATURE BROUGHT TO INDIVIDUALS WITH DEMENTIABird Tales is a programme about nature, about individuals with dementia and aboutdedicated professionals working together as a team to provide a unique interactiveprogramme. The therapeutic programme brings the natural outdoor world of birds topeople living with dementia. It promotes engagement, autonomy and independence byencouraging participants to connect with birds on a multisensory level of sight sound smelland touch. Studies have shown that nature itself has restorative qualities that promotehuman well-being. Interacting with nature through the fascinating world of birds helpspeople with dementia connect to a purposeful time and place a well as validate memoirsad life experiences. This programme was developed with a team of dedicated DementiaCare Ambassadors in a long-term care facility and the National Audubon Society.

Reinhard Guss, Kent & Medway NHS and Social Care Partnership Trust, Ian Asquith,University of Kent and Keith Oliver, Kent and Medway NHS and Social Care Partnership Trust

DEVELOPING THE ROLE OF THE KMPT DEMENTIA SERVICE USERENVOY: AN INNOVATIVE APPROACH TO GETTING THE VOICE OFPEOPLE WITH DEMENTIA HEARD IN AN NHS ORGANISATIONKent and Medway NHS and Social Care Partnership Trust has been exploring the bestmethod of obtaining views on services from the person with dementia’s view. Since hisdiagnosis of young onset Alzheimer’s disease in 2010, Keith Oliver has worked on numerousprojects as the voice of the person with dementia in both public and private consultations.In 2012, the researchers worked with Keith on a project which evaluated his service userinvolvement experiences, using an in-depth qualitative analysis of detailed self-reports. Thiswas used as a starting point for the creation of the KMPT dementia service user envoy.Using the outcomes from this research, the innovative position of a dementia envoy wasdesigned to allow Keith to give personal account of dementia or services from experience,help with the recruitment of staff and continued staff development. He would also become afocal point for people wishing to talk about dementia, and for shaping the services whichare currently being provided. This presentation will focus on the development of the envoyposition, which was jointly led by Keith at all stages. Issues such as the remit of the envoy,personal time commitments, clinical supervision, distribution of findings effectiveness ofthe position and Keith’s personal wellbeing will be discussed from the perspective of theclinician, researcher and service user.

Reinhard Guss, Kent & Medway Partnership Trust and Ian Asquith, University of Kent

IMPLEMENTING A VOLUNTEER SCHEME TO PROVIDE LIFE STORYWORK ON INPATIENT WARDS ACROSS EAST KENTDue to time constraints on staff in the NHS, finding the time needed for the consistentengagement with clients required to complete a life story can be difficult. In East Kent,following the success of a pilot study, a unique project has been running which equipsstudents from the University of Kent to conduct life story work and facilitate this on four in-patient wards. In a collaboration between a senior clinician and hospital volunteers service,the volunteers received three initial training sessions related to dementia, being a volunteerand life story work. Subsequently the clinical psychologist supported them throughsupervision seminars at three week intervals to develop reflective skills and to discuss anyissues arising from their experiences on the wards. The project has been evaluated onseveral levels, including cost effectiveness. Staff and student volunteers received question-naires evaluating aspects of the project, analysing whether it was worthwhile from theirperspectives. The discussion will also consider the difficulties encountered over the periodof the project, how they were remedied, and the learning arising from it.


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Tessa Gutteridge, YoungDementia UK and Larry Gardner

MAKING THE MOST OF LIFE WITH YOUNG ONSET DEMENTIA:YOUNGDEMENTIA UK’S OXFORDSHIRE SERVICESYoungDementia UK is dedicated to being alongside younger people with dementia andtheir families to help them make the most of life. Our One to One and Family Servicesboth focus, in different ways, on individual support relationships that adapt over thelonger-term and help instill what is needed for life to continue as fully as possible. OurOxfordshire social programme, including a very lively café, provides the vital links toothers in similar circumstances. We are, of course, continuing to develop and evolve thesupport according to requests from our members and we have not yet been able toachieve all that we have set out to do together. We work with restrictions, battle withcapacity and resources, but we are creative, positive, determined, and we absolutelycherish the idea that life is precious, and should be lived to the full. Larry Gardiner, aYDUK member (to name but one affiliation in a very busy life!), speaks from personalexperience about whether YDUK’s Oxfordshire services make a difference to his life.

Emma Hanson, Kent County Council and NHS Kent & Medway

CO-PRODUCING DEMENTIA SERVICES IN KENTThis project has been underway since autumn 2011, undertaken by the Social InnovationLab Kent (SILK-KCC) on behalf of social services. We are working with members of thepublic, people living with dementia and their carers, professionals from health andsocial care, community, voluntary and private organisations to gain an understanding ofthe dementia care pathway from a different perspective. The insights gathered areinforming our commissioning and helping to develop sustainable service solutionsalongside the community, who are involved in the whole process. We are now developinga range of ideas, including creating a ‘checklist’ of dementia symptoms which can betaken by a person to the GP to help express their concerns of the symptoms they have,supporting them to get a diagnosis; creating a standard offer of services which peoplecan expect across Kent, and looking at the possibilities of memory assessments beingcarried out in different settings.

Cynthia Heymanson, Circle Dance in Dementia

CIRCLE DANCE IN DEMENTIA: AN ACTIVITY FOR PEOPLE WITHDEMENTIA AND THEIR CARERSOur presentation focuses on using circle dance for groups of people living with dementiaand their carers. Circle dancing offers users and family/friends an opportunity to shareenjoyment together and to sustain their relationship. The circle dances are adaptedfrom its authentic repertoire and are simple to follow. During this year, Kath is piloting agroup for six sessions in a Yorkshire care home for five residents and their visitingspouses/partners. In the past year there have been two studies evidencing the benefitsof circle dance of users and carers together: a group run by two Admiral Nurses inManchester, and The East London NHS Trust research pilot study. A community sessionshowing people living with dementia and their carers has now been documented in ashort DVD and clips of this will be shown. The presentation will include the opportunityfor participation as well as information about Kath’s couples group, the researchproject, the impact and benefits of circle dance, and discussion.

Barbara Hodkinson, The Butterfly Scheme and Joy Watkins, Uniting Carers at Dementia UK

THE VALUE OF THE CARER EXPERIENCE: THE BUTTERFLYSCHEME AND DEMENTIA UK’S JOINT PROJECT TO USE THECARER EXPERIENCE TO PROMOTE UNDERSTANDING OFDEMENTIA CARE AMONG HOSPITAL STAFFThe Butterfly Scheme was developed by a family carer in order to support hospitals incaring for people with memory impairment. That carer insight has proven to beinvaluable to hospital staff and the scheme has spread – mainly through recommenda-tion from staff at member hospitals – throughout the length and breadth of mainlandUK. This is an opt-in scheme, where uptake by eligible patients consistently runs atvirtually 100 per cent; carers warmly welcome its effects. Dementia UK approached thescheme to offer its support and then successfully applied for Department of Healthfunding for Dementia UK’s Uniting Carers, led by Joy Watkins, to co-train a team ofUniting Carers members as Butterfly Scheme speakers, all of whom have extensiveexperience of caring for people with dementia and of the hospital experience for thosefamily members. Team members now co-present with the scheme’s leader at all launchevents. The carer-speakers, too, have gained valuable insight into the hospital staff’sperspective. This presentation will be given by the Butterfly Scheme lead and one ofthat carer-speaker team.

Susanna Howard, Living Words and Danuta Lipinska, Trainer/Therapist

INSIDE OUTSIDE: A PRACTICAL APPROACH TO PROMOTINGPERSON-CENTRED COMMUNICATIONThis workshop will be a practical exploration of person-centred care, focussing on a re-engagement with the self. We will focus on exploring new depths of communication betweenthe caregiver and people with dementia by experiencing what goes on inside and outside ofourselves and the people we support. We will use mindfulness relaxation, a focus on practicalphysical awareness and the spoken word to give participants easy and enjoyable techniquesto be shared back in the workplace. Practical demonstrations and ways of working willinclude: proven guided imagery exercises; Being HERE NOW (exercises to connect with thepresent moment employing therapeutic use of silence, creative listening and ‘behind the eye’communication and ‘as if’ experiences), and group poetry – focussing on the sharedexperience by creating a poem together. Susanna will also read poems from residencies todemonstrate possibilities in verbal communication and metaphor. Danuta’s lifetime expertisein therapeutic communication as well as her dementia training expertise will combine withSusanna’s proven Living Words approach working in care homes, hospitals, day centres andarts venues with people living with dementia.

Gareth Howells, North Bristol NHS Trust and Helen Morgan, University Hospitals Bristol

WORKING TOGETHER TO IMPROVE DEMENTIA CARE IN BRISTOLThe Joint Bristol Hospitals Dementia Group was established in 2011 to develop a collabo-rative approach to care across the city and provide a focus for the implementation ofthe South West Dementia Care Standards. It was recognised that there is a need toensure the care for people with Dementia who are admitted to the University HospitalBristol Foundation Trust and North Bristol NHS Trust is consistent and of high quality.The progress to date includes: dementia awareness training is now mandatory for allTrust staff; the Dementia Champion role was successfully launched in December 2011;developing the Trust’s volunteer services; supporting the role of the ‘carer’ byintroducing a Carers Charter; implementing use of the ‘This is me’ record; reducing wardmoves; diagnosing and recording dementia status has improved; and developing‘dementia-friendly’ ward environments.

Nicola Jacobson, dance movement psychotherapist

CREATING A SENSE OF COMMUNITY: THE EXPERIENCES OFCHELTENHAM’S CIRCLE DANCE GROUPThis presentation will look at the use of dance in a community setting. Discussions willbe based around a local dance group, using an adapted form of circle dance as its basis.The group is facilitated by a dance movement psychotherapist and is set up to supportpeople affected by dementia, but is also open to members of the wider community.Feedback from attenders to the group will be sought and recorded to share in the pres-entation. I also hope to show some video footage of a session. We will look at how thisgroup might result in people feeling more a part of their local community, how the localcommunity might benefit in return and whether this kind of group can contributegenerally towards a community being more dementia-friendly. The presentation willfocus on the experience of setting up this particular group, its challenges andsuccesses, but will also consider implications for similar ventures elsewhere.

David Jolley, PSSRU Manchester University and Ann Regan, Willow Wood Hospice

A SPECIALIST DEMENTIA PALLIATIVE CARE SERVICE FROM AHOSPICE BASE: FROM COMMISSIONING TO FIRST STEPSDr Victor Pace and his colleagues at St Christopher’s Hospice in Croydon have demon-strated that palliative care skills offered by an outreach team from a hospice canachieve better symptom control and better use of services. In seeking to create aninterpretation of this model for the people of Tameside and Glossop we consulted withrelevant agencies, patients and carers. We found that services here are not the same asthose in St Christopher’s locality: a range of initiatives designed to respond to peoplewith dementia in their terminal weeks had been put into place in recent years includingspecialist in-reach to care homes by both Mental Health and Macmillan nurses. Yet thepeople providing individual services did not always know about the related services andstaff groups rarely if ever met each other: thus there remain gaps in the system and aminority of patients experience dreadful, unresolved symptoms, some complicated bymoves between agencies. There is thus support across the board for improvedcompetence in this area. Following St Christopher’s, Willow Wood has been commis-sioned to provide an outreach team led by a senior nurse with mental health andpalliative care skills. Supervision and support will be provided by colleagues at thehospice. The ambitions of the service include specialist palliative care advice, supportand education to patients who are identified as at risk of experiencing difficulties asthey approach the end of life with dementia. Education and support will also be given totheir informal and professional carers.


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Sharon Jones and Paul Edwards, Bradford Dementia Group, and Jayne Lynch,Somerset Care, Annette Darby, Dudley Borough Council

THE DEVELOPMENT OF DEMENTIA CARE MAPPING SUPPORTEDLIVING, AND ITS ROLE IN DEVELOPING STAFF MEMBERS ANDCARE SERVICES IN DOMICILIARY CARESince 2008, Bradford Dementia Group has been working on the development of anadapted Dementia Care Mapping tool that is acceptable for the use in the person’s ownhome. From 2009, we have been working with a number of organisations to embed thisversion of DCM, Dementia Care Mapping Supported Living (DCM-SL), into their supportservices, and have recently delivered our first organisational training packages. Theprocess of this tool differs somewhat from that of DCM version 8, in that there is adirect focus on individual staff member supervision, support, and development of carepractices. It also includes direct feedback from both the person with dementia andtheir family carer on their perspective of the care that they receive. This presentationwill outline the development of the DCM-SL tool, and how this has been used tosupervise and develop staff members within some of the organisations that we havebeen working with.

Lesley Jones, Advanced Practitioner Dementia Care, Greater Manchester WestMental Health Trust and Graham Stokes, Bupa Care Services

SEVERE COMPLEXITY IN ADVANCED DEMENTIA: WHAT HAPPENSWHEN INTERVENTIONS ARE NOT EFFECTIVE? MASTERCLASSWORKSHOP FOR EXPERIENCED PRACTITIONERS AND MANAGERS Behavioural and psychological symptoms in dementia are commonly referred to asBPSD or behaviour that challenges. It is acknowledged that the presentation of thesebehaviours can be a cause of stress for the individual and their carer, reduce quality oflife and be the reason for institutionalised care. More recently needs-led models havebeen developed as a way of exploring possible reasons for the presentation ofbehaviour that challenges. There is also an increased drive to identify non pharmacol-ogy approaches to managing these symptoms. For the majority of individuals with timeand appropriate tailored assessment and interventions these behaviours will cease orreduce in severity. But what if this does not occur? What if the behaviour remains unre-sponsive to interventions and its degree of severity does not reduce over time? In thisworkshop Lesley Jones will draw on her clinical practice in an in-patient NHS dementiaassessment ward. She will discuss the presentation of severe complexity in advanceddementia when behaviour that challenges remains severe and enduring, the implica-tions for individuals, their relatives and care team when presentations arenon-responsive to interventions and the skills required to care for an individual with thispresentation.

Martina Kane, Alzheimer’s Society

EXPERIENCES OF PLANNING FOR END OF LIFE IN DEMENTIAOne in three people over the age of 65 will end their lives with some form of dementia.In 2010 alone, more than 25,000 registered death certificates had a form of dementialisted as an underlying cause. As the population ages and more people get dementia,planning for the end of life will become increasingly important. As capacity diminishes itis more difficult for people with dementia to make decisions about their end of life care,so it is important that end of life wishes are discussed and documented early on. In thissession I will present the findings of the Alzheimer’s Society’s report on end of life carefor dementia. This work engaged with more than 30 people with dementia, carers andbereaved carers to explore their experiences of end of life care and end of life careplanning. The experiences encountered will be summarised and the recommendationsand examples of good practice contained in the report will be highlighted.

Polly Kaiser, The Life Story Network CIC

YOUR STORY MATTERS – MOVING FORWARD FOR EVERYONEThe Life Story Network (LSN) has successfully delivered training in life story work to500 people in 6 months from across England including staff from health, social care,housing, voluntary sector and carers. The ‘Your Story Matters’ project, commissioned byDH to support the workforce strategy for the National Dementia Strategy, hasdeveloped an innovative training programme incorporating face to face and e-learningwith reflective practice. The presentation will: share the outcomes from the evaluationof the project; highlight the ways in which we can transform organisational cultures byusing a combination of life story work and human rights; discuss ways of embedding lifestory work in everyday practice; and demonstrate how life story work provides asolution to the Prime Minister’s challenge to speed up the implementation of thenational dementia strategy and develop dementia friendly communities.

Julie Kerton, Norfolk and Suffolk Foundation NHS Trust (NSFT)

THE LIFETIME GARDEN PROJECTIn June 2007 I set up a garden project for people with dementia and their carers. The ideafor the project grew from recognising the importance of a therapeutic outdoor environmentfor people with dementia and the restorative effect it could have on overall well-being. Priorto the project, people with dementia, carers or staff were rarely seen in the garden as it hadbecome overgrown and opportunities for meaningful outdoor experiences were limited. Itwas important that a garden designed for people with dementia was created by people withdementia. A further aim was to bring nature nearer to the residents who were less able toaccess the garden, by encouraging wildlife, sowing and nurturing plants. The gardens nowoffer opportunities for social engagement, exercise, relaxation, gardening, privacy and lotsof opportunities for reminiscence. The gardening group continues to meet twice a monthand activities are tailored to each person’s level of ability. The project also gives relativesthe opportunity to become absorbed in something other than ‘caring’.

John Killick, Dementia Positive

PLAYFUL APPROACHESThis workshop aims to show how playful strategies can benefit people with dementia,enhancing their lives and also those who support them. It will be practical and active,and participants will be encouraged to try out various games and approaches forthemselves. The workshop leader has experience of improvised drama techniques, andhas already developed and demonstrated THE FUNSHOPS. This workshop will take thisprocess a stage further. The leader’s book ‘Playfulness and dementia’ will be launchedby Jessica Kingsley Publishers at the Congress.

Sally Kitchin, Cambridge and Peterborough NHS Foundation Trust (with carercolleagues Jemima Atkinson, Raymond Leverett and Julia Martos)

THE ‘BEFRIENDING JOURNEY’This project was developed following publication of the national dementia strategy in2009, and improves easy access to care, support and advice following diagnosis ofdementia. Former carers become a volunteer befriender, supporting current carers ofpeople with dementia throughout their caring journey. Successful piloting in EastCambridgeshire enabled the service to develop and expand in June 2011; it now servesCambridge City and South and East Cambridgeshire. 93 referrals have been received, and arobust team of volunteers have now commenced the ‘Befriending Journey’. Volunteers aregiven in house training, induction and attend montly peer group supervision sessions. Theycan befriend as many carers as they wish, depending on their own availability. Supportvaries from face to face, telephone or email contact. This unique service addresses therecovery and well-being of the carer, the person cared for, and the volunteer. It providesboth high quality and cost-effective support to carers of people with dementia.

Isabelle Latham, University of Worcester and Lynne Phair, West Sussex Primary Care Trust

MENTAL CAPACITY ACT In this masterclass workshop aimed at experienced managers, participants will discusstricky issues and dilemmas related to the Mental Capacity Act, and share examples ofapproaches they have found helpful.

Rachael Litherland, Innovations in Dementia CIC and Jane Bell, SWAPs

SHARED LIVES FOR PEOPLE WITH DEMENTIA – RESULTS FROM ATHREE YEAR STUDYShared Lives is a little known form of social care that offers either permanent support orregular breaks in the home of a local family. This session will describe the results from anational three-year programme to develop Shared Lives opportunities for people withdementia. The programme has worked closely with a small group of schemes and localauthority commissioners to learn about the best ways of providing Shared Lives to people withdementia. Through the programme, 150+ Shared Lives schemes across England accessedtraining and good practice to improve and increase their ability to develop a dementia specificservice. The programme has also tracked the experiences of people with dementia and carerswho use Shared Lives as a care option. This session will describe the work to develop andadapt the model for people with dementia, including tools for commissioners and a trainingmanual, as well as sharing outcomes from people with dementia and their carers.

Buz Loveday, Dementia Trainers, Maria Scurfield-Walton, Bradford Dementia Group,Julie Prowse, Bradford Division of Service Development and Improvement, JackiePool, Jackie Pool Associates

DEVELOPING LEADERSHIP IN PERSON CENTRED DEMENTIA CAREThis symposium will focus on contemporary issues in dementia care, key priorities forleaders in developing person-centred care and barriers and solutions to changingpractice. It will examine the importance of empowerment of local leadership for


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delivering improvements in practice. The symposium is designed to create audiencedebate and discussion of effective approaches for the development and practiceapplication of leadership skills and strategies to transform the quality of person centreddementia care. The symposium will include feedback from dementia practitioners whohave attended Bradford Dementia Group/Division of Service Improvement trainingcourse ‘Developing leadership in person-centred care’, and Dementia Trainers DementiaCare Leadership Programme. The symposium will be facilitated by a panel of experts inthe field of dementia care and service development and improvement.

Catherine MacLeod, DSDC, Bangor University

DEMENTIA AND IMAGINATION: IMPLICATIONS FOR RESEARCH,POLICY AND PRACTICEThere has been an upsurge from research, policy, and practice in interest in the positiveeffects engagement in the arts can have on quality of life, health and well-being. In theUK, there is considerable activity around delivering art programmes to people withdementia. This presentation highlights some findings of research development workrecently funded by the Arts and Humanities Research Council. It discusses some of thechallenges around researching this topic. It identifies a number of research gaps andmethodological issues – for example the lack of consensus around what outcomes areimportant, and the need to consider the wider social aspects and value in terms ofsocial connections. It will make some suggestions as to what might be needed to buildon best practice and use the arts as a catalyst for change to make an impact on policyand contribute to the vision of dementia supportive, resilient communities.

Sue McLean, Community Integrated Care (C-I-C)

MEETING THE NEEDS OF AN AGING POPULATION. EACHSTEP:SPECIALIST INTEGRATED DEMENTIA CAREThe social care charity Community Integrated Care has recently opened ‘EachStep Blackley’,one of the UK’s most innovative dementia care services, in Manchester. This purpose built£5 million service provides a holistic range of support from one location (includingdomiciliary care, day care, respite support and residential and nursing care) to supportpeople with dementia and their loved ones from the early stages of their condition until theend of their lives. Our presentation will explain the insights we have used to develop ourEachStep service and provide practical guidance which can be adopted by dementia careprofessionals of all backgrounds. By providing an integrated service, we hope to ensure thatpeople have an easier transition through care services and always receive the right supportfor their needs, delivered by staff with whom they have lasting relationships.

Julienne Meyer, My Home Life programme and Sharon Blackburn, National Care Forum

VOICE, CHOICE, CONTROL AND LEADERSHIP IN CARE HOMES:FINDINGS FROM THE MY HOME LIFE PROGRAMMEThis presentation will report the findings of a three-year appreciative action researchstudy to explore the lessons learnt from implementing best practice in care homes forolder people (including those with dementia), and in particular, in taking forward work tosupport the promotion of ‘voice, choice and control’ and ‘the development of leadership’within the sector. The work was carried by the My Home Life programme, a UK-wide collab-orative initiative led by Age UK, in partnership with City University, Joseph RowntreeFoundation (JRF) and, more recently, Dementia UK. This presentation will explore whatneeds to happen to take forward good practice in care homes, in particular looking atissues such as choice for older people, positive risk-taking, and community involvement.Findings were primarily generated from 124 care home managers who have been engagedin the My Home Life Leadership Support and Community Development programme within10 local authorities. The paper reflects on the need to work strategically and collectively toopen up an honest dialogue with the community in order to create a shared vision of whatwe want from care homes and how we collectively we can achieve it.

Julienne Meyer, My Home Life and Hilary Woodhead, Dementia UK

THE WAY FORWARD IN CARE HOMES: RELATIONSHIP-CENTRED CAREThis workshop provides a reflective space for participants to consider what is meant byrelationship-based care and how it is different to person-centred care. Relationship-based care (otherwise referred to as relationship-centred care) is a concept thatunderpins My Home Life, a UK-wide initiative to promote quality of life for those living,dying, visiting and working in care homes for older people. It is argued that policy onolder people (eg NSF for Older People, DH 2001) has highjacked the term ‘person-centred care’ to focus on ‘independence’ and ‘choice’ and that there is now a need tochange the language from ‘person-centred care’ to ‘relationship-centred care’ to differ-entiate the importance of focusing more on ‘relationships’. Relationship-centred careplaces emphasis not only on the needs of older people (with or without dementia), butalso, the needs of relatives and of staff.

Steve Milton, Innnovations in Dementia CIC

TOWARDS DEMENTIA FRIENDLY COMMUNITIESThis presentation will form part of the Dementia-Friendly Society symposium on Nov 1,09.15-10.25. Since early 2011 Innovations in Dementia (CIC) has been at the forefront inwork around the concept of dementia-friendly communities in the UK and in Ireland.This presentation will report on our work in this area. Our first task was to seek theviews of people with dementia and their supporters on what constitutes a dementiafriendly environment. Since we reported our findings to the Department for HealthThink Tank in March 2011, we have been commissioned to work on dementia-friendlycommunities in three top-tier local authorities in England, and worked with Alzheimer’sSociety Ireland to develop their work in this area. As part of our work for the AgeingWell Programme, we have produced (with the Local Government Association) a toolkit tothe support the work of communities in engaging with people with dementia and theircarers, and in making practical changes at local level to help people with dementia tolive well and be part of their communities. We have also produced a conceptualframework for dementia-friendly communities that enables communities to assess theirexisting resources, and the steps they need to take to unsure that their community isone in which it is truly possible to live well with dementia.

Alison Moon, Chief Nurse, University Hospitals Bristol

CREATING MOMENTUM: THE SOUTH WEST PEER REVIEW PROCESSThis presentation will describe and consider the impact of an improvement processwhich has seen each general hospital in the South West implement Standards forDementia Care in Hospital, audit against these standards, implement improvementplans, and participate in a regional peer review of progress. We will explore thosefactors that have supported change and improvement. We will discuss a new model forlarge-scale complex system change, and draw on our experience of designing andparticipating in improvement processes at regional, hospital, ward and community levelin order to develop this thinking further. We will reflect on, and consider the leveragewhich the introduction of a national dementia CQUIN has afforded, drawing on localillustrations of how local work to implement the Hospital Standards for Dementia carehas provided an essential environment in which to embed the CQUIN. The presentationconcludes by highlighting key factors, and key steps to complex system change,challenging local communities, and health and care leaders.

Vikki Moorhouse, Rebecca Smith and Carmen Diaz, Central & Cecil Housing Trust

GROWING MEMORIESGrowing Memories is a year-long project in a care home for frail elderly people, some ofwhom are living with dementia. It is held indoor most of the year, outside when weatherpermits. The heart of the project focuses on residents meeting as a group with RebeccaSmith, a horticultural therapist, to engage in gardening activities and share gardeningmemories. Images, plants, soil and tasty vegetables are looked at, smelled and eaten inthese discussions to engage the senses and support reminiscence. In the lounge of thecare home Rebecca engages some of the frailest residents in conversation and sensorystimulation. A ‘Growing Memories assistant’, a care worker in the home, attends sessionsand then facilitates activities that further extend the gardening and reminiscence.Sessions are sociable, reflective, comic, with sharing and mutual learning. Residents gavecooking tips, voted for favourite tomatoes, gave gardening advice, remembered foodrationing, and performed poetry. The display of plants and the tasks of growing seedlingsaround the home have created ongoing interest that extends beyond sessions.

Angela Morrison, Quattro Design Architects

FUTURE PROOFING SPECIALIST DEMENTIA EXTRA CAREHousing 21 and their architects, Quattro, have designed a scheme for WokinghamBorough Council that exemplifies future proofing in the sector. Based on the ‘greenhouse’ concept for residential care, evidenced from the US, the unique aspect of BeechesManor is that it takes these design features and places them for the first time into anextra care build, replacing en-suite rooms with individual flats. Here two clusters of nineone-bedroom flats each create a home-like environment with front doors arrangedaround a cloistered court. In the footprint of a tenth flat is the hub of the home with thehearth as a focal point to a living room and a farmhouse kitchen. This model offers amore cost-effective alternative to residential care maximising the opportunity to easilyobserve residents and reducing the overall staffing requirement. Flats are designed toadapt to an individual’s needs, enabling support up to the end of life. Agreements interms of continuing care are in place to support this. Average monthly cost for this modelis £640 per month with a comparative residential care charge of £800+ for equivalentspecialist dementia services. The scheme will be subject to a comprehensive researchevaluation focusing on the effects of these design features.


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Sarah Mould and Tim Forester-Morgan, The Dementia Training Company Ltd

HOW A ‘SUPPORT PACKAGE’ MODEL FOR STAFF LEARNING ANDDEVELOPMENT CAN HELP INDIVIDUALS WITH DEMENTIA TOLIVE WELL IN A RESIDENTIAL HOMEThe presentation will describe how Southampton City Council (SCC) and the DementiaTraining Company (DTC) worked in partnership to design, deliver and evaluate individu-alised ‘Support packages’ which met the learning and development needs of SCC staff inthree specialist residential homes. The content of each ‘Support package’ was identifiedthrough continuous assessment of the needs of the staff and the needs of the residentsand their families. The ‘Support package’ was designed to be entirely bespoke to eachresidential home and was delivered in-house. The method of delivery was in ‘bite sizechunks’ to maximise the opportunity for every member of staff in each Home to beinvolved and supported. The presentation will describe the ‘Support packages’ and giveexamples of the measurable changes to care practice, working relationships andphysical environment in each home. It will also describe the exciting new roles for staffand residents which have emerged.

Mary O’Brien, Ruth West, Jennifer Hewson and Naomi Smith

SUPPORT FOR CARERS: “SHARING IS SO IMPORTANT” The presentation provides an overview of the development and delivery of theAlzheimer’s Society’s Carer Information and Support Programme (CrISP). This is a large-scale project designed to provide information and support to family carers of peoplewith dementia, in response to national priorities to increase access to information bothat point of diagnosis and throughout the course of their care across the UK. We willdescribe the progression of the CrISP programme from the initial discussions withfamily carers, through the pilot stages to the launched version of the programme, whichwill have been delivered over 100 times by April 2013. We will discuss the programme’saims, evaluation findings and outcomes and look at two case studies of carers attendingCrISP programmes in Hertfordshire. Colleagues from the University of Brighton willdescribe the external evaluation which is currently being conducted.

Rosslyn Offord and Lucy Young, Cardiff & Vale University Local Health Board

‘WE UNDERSTAND’This presentation describes the recent development of a ‘Coping Manual’. This manualhas been developed by people with a dementia to support others and focuses on theemotional responses following a diagnosis. As part of a memory assessment service,various methods of support are available, including a ‘Post-diagnosis group’. Manymembers have attended this group over the years and have indicated in their feedbackhow they have benefitted from the emotional support and discussions. An idea arosefrom a group member about the possibility of a coping manual describing the emotionsthat may be experienced after a diagnosis and including suggestions on ways tomanage. Following on from the initial idea, a group of people with dementia and theirpartners came together to develop the ‘Coping Manual’. The manual was developed andwritten in their words and included what the group felt was important. It is hoped thatin the future it will be a means of offering written emotional support to people at thetime of diagnosis.

Maria Parsons, ARTZ UK/Creative Dementia Arts Network and Sarah Plumb, Modern Art Oxford

LOST IN TIME AND SPACE: THE EXPERIENCE OF OLDER PEOPLE WITHDEMENTIA WORKING ON AN INTERGENERATIONAL ARTS PROJECTLost in Time and Space (LITAS) is a nine-month project initiated and co-ordinated byModern Art Oxford. Drawing on an 2011 exhibition by Kerry Tribe (whose work exploredmemory, forgetting, ambiguity and doubt through multi-media), a group of youngerpeople and a group of older people with dementia and carers were brought together toexplore aspects of memory, in particular of their lives in Oxfordshire, and togetherproduce a short film. The LITAS group participated in exhibition tours, museum visits,objects, pen and paper exercises and film production such as scripting and lighting,shared activities that provided the medium for members of two generations to makerelationships and to discuss memory loss. The presentation will be led by Sarah Plumb ofMAO. Maria Parsons will discuss the evaluation of the project.

Wendy Perry, University of Worcester

LEARNING TO LISTEN WITH OUR EYES: DEVELOPING TRAININGON HOW TO ENGAGE PEOPLE WITH SEVERE DEMENTIAThis presentation is based on a small-scale study I conducted in a dementia specificcare home. The study used staff questionnaires to identify the perception of profes-sional carers regarding communication and people with severe dementia. These

perceptions were then contrasted with actual practice as observed through DementiaCare Mapping to identify the missing links between carer perception and practicereality. The information gathered was used, along with communication theory andevidence of current best practice, to develop a training program for care home staff.This training program focuses on how to identify the unique methods of communicationemployed by people with advanced dementia who have extremely limited verbalabilities. The presentation will cover the study methods and a discussion of the datacollected as well as a brief overview of the training module developed from the data.

Lynne Phair, NHS Sussex & Independent Advisor

HOW CAN YOU BOTTLE CARE AND COMPASSION?This presentation will form part of the Safeguarding, Care and Compassion workshop onOct 31, 16.20-17.30. A recurring theme in most investigations into neglect of people withdementia in the NHS indicates that low-level concerns about the quality of care andcompassion were evident, but were not noticed until large-scale concerns wereidentified. The Sit & See tool has been designed to capture good fundamental practice,and use them as vital signs to demonstrate care, kindness and compassion. The obser-vational tool sets simple, objective standards that can be observed and recorded by anyperson who has received simple training and the tool can be used by anyone for a periodas short as 20 minutes. The tool has been developed with the support of patient repre-sentatives from the Local Involvement Networks ( LINk) in West Sussex, East Sussex andBrighton and Hove and is now used in all acute and community Trusts across Sussex. Thetool should be used to record and celebrate positive examples of care, kindness andcompassion as well as recording poor practice and areas of concern. The results can beused by teams, directorates, trusts or commissioners to reflect, review and implementaction plans to change cultures of care, by examining and understanding how thesmallest things that can make the biggest difference.

Alex Richardson, University of Oxford

THE ROLE OF NUTRITION IN MENTAL HEALTH AND DEMENTIANutrition is fundamental to mental as well as physical health, but despite adequate orexcessive energy intakes in most developed countries, deficiencies of some essentialmicronutrients are widespread. Epidemiological, biochemical and other evidence showsclear links between micronutrient deficiencies and many disorders of mood, behaviourand cognition, including dementia. To date, randomised controlled trials have providedonly limited evidence of causality, although this is not unexpected given both thecomplex synergies between different micronutrients and the timescales over whichnutritional effects are known to operate. People with Alzheimer’s disease (AD) havedistinct nutritional requirements compared with the healthy elderly. This may originatefrom lower levels of specific nutrients such as omega-3 fatty acid, B-vitamins andantioxidants; metabolic alterations related to the uptake of nutrients and endogenousproduction of various intermediates from nutrients; and/or the increased need fornutrients because of the AD-related breakdown of synapses. Recent scientific evidencewill be summarised, highlighting its implications for both prevention and managementof dementia.

Karim Saad, Coventry & Warwickshire Partnership Trust

DEMENTIA CARE PATHWAYS; THE WEST MIDLANDS MODELThe global economic impact of dementia can bankrupt healthcare systems. Interna-tional, national and local trends are converging to shape dementia services in Europeand in the UK. In an increasingly outcome-driven patient-led financially constrainedNHS, an overview of today’s dementia services in England serves both to inform andmotivate aspiring clinicians to effectively engage in commissioning services fit forpurpose. The West Midlands Dementia Strategy, with an emphasis on integrated carepathways, ‘upstream interventions’ and ‘Digital services’, may contribute to underpin-ning a contemporary dementia service redesign.

Kate Schneider, NHS South of England, West

GETTING DIAGNOSIS RIGHT: A NEW PARADIGMThis presentation charts the work of a multi-agency, multi-professional partnership in theSouth West which has been developing its understanding about diagnosis and thediagnosis pathway. We have moved from a focus on diagnosis rates to a new paradigm fordementia – one in which diagnosis is one step in a pathway of care. I will present ‘10 KeySteps for GPs and primary health care teams’ to improve the diagnosis pathway, and ‘10Key Steps for Commissioners’ to improve rates of diagnosis, designed to support a wholesystems approach to change. We will illustrate how these ‘key steps’ have influencedlocal improvements and present vignettes from practice. I will explore those factors thathave supported change and improvement, considering the ‘catalysts’, ‘accelerators’ and‘enablers’ which NHS South of England is introducing to drive improvement, and highlight


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the continuing challenges. I will consider those factors which have enhanced this process,and illustrate this with vignettes of leadership, and positive practice and related evidencedrawn from a peer review of memory services carried out in 2011-12.

Viniti Seabrooke, Alzheimer’s & Dementia Support Services and Alisoun Milne,University of Kent

EARLY INTERVENTION IN DEMENTIA CARE AND SUPPORT:INNOVATION AND IMPACTIn 2008, a specialist dementia charity in Kent set out to make early intervention indementia a reality for local people. With funding from the Big Lottery it set up a five-year project to raise awareness of dementia and facilitate earlier diagnosis via primarycare. It targeted people aged 65-75 with the aim of engaging them in services as earlyas possible. The project has since worked with 24 surgeries, developed a template forGPs to use for assessing people with memory concerns and raised dementia awarenessamong nearly 10,000 people. We have clear evidence that people with dementia arebeing identified, and linked into support, at an earlier stage. The project has started torun quarterly learning groups for carers struggling to come to terms with their caringrole. The charity is growing rapidly to meet the increasing demand for good qualityinformation and early intervention services for local people. Here we will highlight thenature of two of its initiatives and explore evidence about their efficacy and impact.

David Sheard, Dementia Care Matters

MATTERING: THE CONCEPT AND GLUE OF DEMENTIA CAREOver the last seventeen years, Dementia Care Matters has developed a body of workaround the concept of ‘Feelings Matter Most’. This approach has focused on being personcentred, enabling quality of life, inspiring leadership, recognising and nurturing emotionallabour and growing training that works. In the next stage of Dementia Care Mattersdevelopment work, the concept of ‘The Feeling of Mattering’ will be explored. In this pres-entation Mattering® will be considered in terms of its success in parallel fields of healthand social care and then specifically defined in dementia care. Eight key features will bepresented: Feel, Look, Connect, Occupy, Share, Reach, Relax and Matter. This presenta-tion will be introduced through a six minute DVD ‘Deep End Dance’ in which a mother andson explore how they matter to each other. Dementia Care Matters within this presenta-tion will also launch its major new DVD training programme for nurses and care workersset in four leading care homes: ‘Mattering® in a Dementia Care Home’. Through powerfulvisual learning, David Sheard will demonstrate how the concept of Mattering® bringstogether most elements that matter in achieving good quality dementia care.

David Sheard and Sally Knocker, Dementia Care Matters

KEEPING UP THE TRADITION: BRIGHTON WEEKENDS, SEX ANDDEMENTIACongress can’t come to Brighton and not explore the theme of sex, intimacy, relation-ships and dementia. Staff opening up this subject with people experiencing living with adementia, partners and families require literal practice in forming introductorysentences. Grasping how fundamental this area is to people’s lives and to well-being iscritical for all staff to learn. Knowing the range and how dementia can change people’sexpressions of intimacy is at the heart of being person centred towards people. Davidand Sally will explore these sensitive areas through interviewing people who havethemselves had to face this critical aspect of living with dementia in the hope thisbrings alive what matters most.

Graham Stokes, Bupa Care Homes and Claire Surr, University of Bradford

THE EFFECTIVENESS OF TRAINING IN IMPROVING CARE HOME STAFFKNOWLEDGE, ATTITUDES, JOB SATISFACTION AND CARING EFFICACYImprovement in care quality and staff knowledge and skills is identified within thenational dementia strategy for England. Developing an informed and effective carehomes workforce is a strategic component of improving care quality, however, thereremains limited evidence about effective and sustainable staff training interventions forcare homes. Bupa and the University of Bradford have worked in partnership to developthe ‘Person First ... dementia second’ workforce development programme. Theprogramme comprises the mentor facilitated Essentials Workbook as well as the PersonFirst Coach facilitated Dementia Excellence Core Modules. This presentation will presentpreliminary results of an evaluation of the ‘Person First ... dementia second’ trainingprogramme, conducted by the University of Bradford. The evaluation is currentlyongoing, however this presentation will discuss some of the early findings and theirimplications for effective and sustainable workforce development approaches in carehomes.

Rachel Thompson, Royal College of Nursing

MAKING BETTER DEMENTIA CARE A REALITY FOR HOSPITALS:A CALL TO ACTIONThis presentation will describe the next steps of the ‘Commitment to care for people withdementia in general hospital settings’ developed by the RCN and supported by a range ofstakeholders including other royal colleges, and voluntary sector organisations. In order tosupport the delivery of improvements in hospitals a new DVD/web-based resource and a‘how to guide’ is being developed by the RCN which will include perspectives of peoplewith dementia, family carers and practitioners. The new resource will include tools andexamples of good practice. Clips from the film will be shared as part of the presentation.Next steps to support making better care a reality for hospitals will be described includinga development programme using patient/carer experience to evaluate the impact ofimprovements. The RCN is also working alongside the NHS Institute for Innovation andImprovement and members of the Dementia Action Alliance in a new call to action toimprove the experience of care for people with dementia and their families whilst inhospital. The Call to Action approach will also be shared as part of this presentation.

Jackie TuppenCOGS CLUB: A CLUB FOR PEOPLE WITH MILD DEMENTIACOGS Club provides the opportunity for people with dementia to recall and/or developnew skills and facilitate the transfer of these skills to activities at home. The activitiesare based on and run in the same structured way as cognitive stimulation therapy butinstead of sessions lasting the usual two hours, a COGS Club offers a day of activity,stimulation, music and fun for a person with mild/moderate dementia. It also providesthe family/carer/significant other with a day’s respite. The presentation will raiseawareness of the innovative use of cognitive stimulation. Attendees will gain a greaterappreciation and understanding of the value and clinical worth of cognitive stimulationtherapy plus a variety of other approaches for people with mild to moderate dementia.The presentation will raise awareness of the COGS Club initiative using experiences ofmembers and their carers.

Damian Utton, Pozzoni LLPDESIGN FOR PEOPLE WITH DEMENTIA: A CASE STUDY OFBROOKSIDE EXTRA CARE VILLAGEBrookside provides 111 extra care apartments plus communal facilities for use byresidents, their families and the surrounding community of Ormskirk, Lancashire. Thescheme has evolved from a partnership between Arena Housing Group, NHS CentralLancashire and Lancashire County Council. Designed along dementia design principles,Brookside provides: 86 two-bedroom apartments, 25 one-bedroom apartments, a bistrostyle restaurant (accessible to the wider community), a hydrotherapy pool, a fitnesssuite, a beauty salon, a day care centre, a library/IT room, a multi-purpose/cinemaroom, treatment rooms and offices for NHS Central Lancashire. Whilst the principles ofdesigning for people with dementia have been followed throughout, there is a small‘cluster’ of apartments specifically for people with dementia. This presentation willreview how the scheme is working in practice.

Antony Walker, Housing 21 and Nada Savitch, Innovations in Dementia MYLIFE: MAKING ‘APPS’ ACCESSIBLE TO THOSE WITH DEMENTIA– PROJECT FINDINGS ONE YEAR ONThe market for tablet computers is a major growth area and the touch-screentechnology offers increased accessibility compared to conventional personal computers.MyLife is an ‘app’ which seeks to take advantage of these benefits to improve thequality of life of those with memory problems. Funded by the European Union, theproject is a collaboration between organisations in the UK, Norway and Germany. Thispresentation updates delegates on progress made with the trials since last year’s event.Trials of the app began in March 2012 but recruitment has been particularly difficult inthe UK and, as with many such projects, the software has taken time to stabilise.Despite these challenges, the app has been really well received by the participants withfamily members quick to realise the potential of this technology for keeping in touchwith their relative and improving their quality of life. We will present baseline dataoffering insights into areas where MyLife can benefit those with memory problems aswell as valuable insights into the functionality and interfaces that are most engagingand accessible to those in later life who tend to be wary of new technology.

Brenda Walker, Senior Moments and Kim Hughes, Lincolnshire County CouncilMAKING A DIFFERENCE WITH A LIMITED BUDGET –BY MAKING QUALITY COUNTHaving worked with a wide range of organisations across the country I can say withsome confidence that, in relation to the residential sector, Lincolnshire County Councilmakes every penny of its training and development budget count. Participants at this


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session will learn about two of Lincolnshire CC’s developments: the first, ‘Making aDifference, was commissioned from Trent Dementia Services Development Centre andinvolves a two and a half day ‘culture change’ programme that relies on cascadinglearning throughout staff teams. The second programme is offered to health and socialcare quality assurance/contract monitoring staff from across the East Midlands, givingthem the opportunity to learn how to use the QUIS (Quality of Interaction Schedule) tooland the BDG well-being profile. Together, these tools open participants’ eyes to the realexperience of their residents and show how things can move forward both as a wholeand for individual residents.

Sarah Waller CBE, The King’s Fund and Abi Masterson, Abi Masterson Consulting LtdDEVELOPING SUPPORTIVE DESIGN FOR PEOPLE WITH DEMENTIAThe King’s Fund has been working with 23 NHS trusts to improve the care of peoplewith dementia in hospital through a Department of Health funded programme toimprove the physical environment of care. This programme has highlighted the needfor better training and education of clinical, estates and support staff in theimportance of developing more supportive design solutions for people with dementiain order to ease decision making, reduce agitation and distress and encouragegreater independence and social interaction. The experience of people with dementiaand their carers has been critical to the programme’s success. The programmeoutcomes and evaluation findings will be presented to demonstrate how high quality,innovative, cost effective, exemplar schemes can have a very significant impact onimproving the care of people with dementia in hospital as well as increasing staffunderstanding of the needs of people with dementia and raising staff, carer andpatient morale.

Paul Whitby, Avon & Wilts NHS TrustMARTE MEO, IMPROVING CARING MICRO-SKILLSMarte Meo is an intensive video feedback technique to help improve the care of peoplewith dementia. This promising method comes out of the field of developmentalpsychology and has its roots in Attachment Theory and parent-infant communication.The intention is to build on the existing strengths of the nurse/carer–patient interactionvia a fine-grained, second-by-second analysis of actual episodes of care. It highlightsthe essential nature of care particularly in communicating security and trust to theperson with dementia. This seems to be especially useful at times when staff arerequired to provide personal care. Marte Meo appears on an anecdotal level to be highlyeffective in reducing unpleasant arousal in the person with dementia. From my conver-sations it is also very popular with the junior staff.

Suzanne Wightman, South West Yorkshire MH Trust and Micky Dyson, University ofHuddersfieldDELIVERING CARE WITH COMPASSION AND INSPIRATIONALOUTCOMES THROUGH LIFE PORTRAIT WORKDelivering care with compassion and achieving inspirational outcomes for people withdementia through ‘Life Portrait’ work is now commonly seen in care settings supportedby ‘Portrait of a Life’, the multimedia toolkit for life story work. It provides a compre-hensive A–Z or a one-stop shop for life story work and is supporting many teamsnationally working in a variety of different community and care settings. The toolkit wasdeveloped by the Portrait of a Life team and supported with grant funding from theMental Health Foundation. Launched nationally in 2010; the toolkit comprises a trainingDVD, short film, DVD Rom and a written guide. This workshop/presentation willdemonstrate how life story work is the key to person-centred care and will share someof the inspirational ‘life portraits’ that have been developed as well as providing vividinsight into the many positive outcomes being achieved in a variety of care settingsutilising the toolkit. This toolkit not only delivers on the agenda for workforce educationbut through Portrait of a Life training is developing leaders in the field which is clearlydemonstrated in films supporting the formal evaluation of the work. Many care homesreport raised levels of wellbeing influenced by meaningful and creative care planning,engagement of families and intergenerational work and most of all delivering care withreal compassion.

Kate Wilkinson, PSSTRIO SCHEME - DAY SUPPORT SERVICEPSS TRIO Scheme provides day care support for individuals living with dementia. Fundedby Conwy local authority, TRIO is an innovative approach to day care services. Thescheme provides opportunities for individuals to meet others in their local area withsimilar interests. TRIO is provided by trained adult placement carers delivering a flexiblesix-hour weekly service. TRIO provides informal carers valuable respite from their caringrole and users of the service support to remain independent. This alternative model ofcare provision, delivered by carefully recruited and trained adult placement carers,located in rural areas, provides an opportunity (as outlined in the National Dementia

Vision for Wales) for the development of dementia supportive communities. We createopportunities to access a wider support network for those experiencing social isolation,through inclusion within the local community.

Toby Williamson, Mental Health FoundationHAVING OUR VOICES HEARD: FILM FOOTAGE AND FINDINGSFROM THE DEMENTIA ENGAGEMENT AND EMPOWERMENTPROJECTThe active involvement of people with dementia in the development of services andpolicies affecting their lives has developed very significantly over the last few years inthe UK. This session will report on the findings and activities from the DementiaEngagement and Empowerment Project (DEEP). DEEP has investigated the ways thatpeople with dementia are currently engaged in groups and projects influencing serviceand policy development at local, regional and national levels across the UK and whatthey would like to do in the future. This session will describe the results of the mappingsurvey and events which were completed in 2012. This session will present informationfrom the survey, film footage of the events, and people with dementia talking aboutwhat their groups have achieved, as well as time for discussion and debate. DEEP hasbeen a collaboration between the Mental Health Foundation, Innovations in Dementia,and the Alzheimer’s Society, and is funded by the Joseph Rowntree Foundation.

Victoria Wray, Jane Twigger and Paul Clinton, Sussex Partnership NHS Foundation TrustREDUCING THE IMPACT OF CRISES IN DEMENTIA: A COMMUNITYBASED APPROACHThe Dementia Crisis Service (DCS) was set up in October 2010. An in-depth audit hasshown this small team of health and social care professionals at DCS has worked withhundreds of individuals and their carers to successfully tackle a wide variety of complexchallenges. DCS sees people with dementia of all ages and living in all settings, workingalongside existing care provision or where there has previously been none. Partnershipworking has allowed professional expertise, funding and resources to be combined tomaximise efficiency. Most importantly for individuals and carers this means the samesmall group of professionals supporting a person throughout their crisis. As a newservice, input from people with dementia and their carers has been crucial to ourdevelopment. Using a combination of questionnaires and interviews we have soughtfeedback which has been used to inform the ongoing development of the service.

Stuart Wright, Brunelcare and Jackie Hume-Richardson, True 2 SelfUNLOCKING THE KNOWLEDGE AND CONFIDENCE OF CARE STAFFThis project involved sharing the philosophy and approach of Frameworks 4 Change withBrunelcare staff. The aim was to listen to staff, to unlock their own experiences,knowledge and skills to be open to meet the needs of individuals in the widest sense.Thirty two staff were provided with and enabled to apply ‘F4C’s unique ‘CompassionHabits’ with confidence with clients, and in their teams. The project outcomes exceededexpectations when staff in their own initiative took practice changes into their workinglives, with measurable change particularly in domiciliary services, with regard to staffwell-being and the relationships with clients living with a dementia. Staff experiencedthe ‘compassion habits’ through learning for themselves what being profoundly listenedto feels like. Staff felt valued and respected, and able to describe the culture of carethat they wanted, not only to receive but to provide.

Stuart Wright, Brunelcare and Andy Bradley, Frameworks 4 ChangeEVERY MOMENT MATTERS: MAKING A PERSON-CENTREDAPPROACH A REALITY IN DOMICILIARY CARE SERVICESWe joined with Frameworks4Change Media to produce a film with accompanying facilita-tion notes that did not shy away from the real issues faced by frontline staff and theirclients. The format can be used to provide 12 short workshops that examine the issues,provide opportunity for discussion and gives practical solutions to combat theconstraints and release the compassion and skill inherent in many domiciliary careworkers. In working with real care workers and clients during the making of the film wecaptured the truth and reality of their every day lives. We are currently evaluating theimpact on the care experience of people living with a dementia as a result of thispackage, but feedback indicates that staff are now making sense of a person centredapproach in the community setting and are making every moment they are with clientscount, giving people their undivided attention in the areas of personhood, communica-tion, comfort, autonomy and life story despite the tensions in the currentcommissioning process.



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