Palliare: Equipping the registered dementia workforce to support advanced dementia care and family caring Professor Debbie Tolson, Dr Rhoda MacRae, Dr Karen Watchman, Anna Waugh, Margaret Brown, Professor Graham Jackson University of the West of Scotland, UK @palliare1
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Palliare:Equipping the registered dementia workforce to support advanced
dementia care and family caring
Professor Debbie Tolson, Dr Rhoda MacRae, Dr Karen Watchman, Anna Waugh, Margaret Brown, Professor Graham Jackson
• Advanced dementia can last for an extended period of time, often longer than early stages
• Provision of dementia care and education variable across Europe
• Palliare Project aims to equip the qualified workforce in partners countries and beyond to champion evidence informed improvement to advanced dementia care and family caring
• Education that will support positive practice development in advanced dementia care
• Literature review on experience of advanced dementia• Comparative analysis of national dementia plans• In-depth case studies of experiences of advanced
dementia in range of care settings • Working towards consensus on European Best Practice
Statement on advanced dementia• Review of experiential and online learning• Educational gap analysis • Design of virtual Community of Practice and associated
The statement is divided into six sections covering:• Section 1: Protecting rights, dignity and inclusion• Section 2: Future planning for Dementia Palliare• Section 3: Managing symptoms and keeping well in
Dementia Palliare• Section 4: Living the best life possible• Section 5: Support for Family and friends • Section 6: Advancing Dementia Palliare Practice